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Patient and Family Advisory Councils for Research: Recruiting and Supporting Members From Diverse and Hard-to-Reach Communities.
- Source :
-
JONA: The Journal of Nursing Administration . Oct2019, Vol. 49 Issue 10, p473-479. 7p. - Publication Year :
- 2019
-
Abstract
- OBJECTIVE: To describe strategies to recruit and support members from hard-to-reach groups on research-focused Patient and Family Advisory Councils (PFACs). BACKGROUND: Ensuring diverse representation of members of research PFACs is challenging, and few studies have given attention to addressing this problem. METHODS: A qualitative study was conducted using 8 focus groups and 19 interviews with 80 PFAC members and leaders, hospital leaders, and researchers. RESULTS: Recruitment recommendations were: 1) utilizing existing networks; 2) going out to the community; 3) accessing outpatient clinics; and 4) using social media. Strategies to support inclusion were: 1) culturally appropriate communication methods; 2) building a sense of community between PFAC members; 3) equalizing roles between community members/leaders; 4) having a diverse PFAC leadership team; and 5) setting transparent expectations for PFAC membership. CONCLUSION: Increasing the diversity of research PFACs is a priority, and it is important to determine how best to engage groups that have been traditionally underrepresented. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 00020443
- Volume :
- 49
- Issue :
- 10
- Database :
- Academic Search Index
- Journal :
- JONA: The Journal of Nursing Administration
- Publication Type :
- Academic Journal
- Accession number :
- 138934833
- Full Text :
- https://doi.org/10.1097/NNA.0000000000000790