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Family involvement in cancer treatment decision-making: A qualitative study of patient, family, and clinician attitudes and experiences.

Authors :
Laidsaar-Powell, Rebekah
Butow, Phyllis
Bu, Stella
Charles, Cathy
Gafni, Amiram
Fisher, Alana
Juraskova, Ilona
Source :
Patient Education & Counseling. Jul2016, Vol. 99 Issue 7, p1146-1155. 10p.
Publication Year :
2016

Abstract

<bold>Objective: </bold>Little is known about how family are involved in cancer treatment decision-making. This study aimed to qualitatively explore Australian oncology clinicians', patients', and family members' attitudes towards, and experiences of, family involvement in decision-making.<bold>Methods: </bold>Semi-structured interviews were conducted with 30 cancer patients, 33 family members, 10 oncology nurses and 11 oncologists. Framework analysis methods were used.<bold>Results: </bold>Three main themes were uncovered: (i) how family are involved in the decision-making process: specific behaviours of family across 5 (extended) decision-making stages; (ii) attitudes towards family involvement in the decision-making process: balancing patient authority with the rights of the family; and (iii) factors influencing family involvement: patient, family, cultural, relationship, and decision.<bold>Conclusion: </bold>This study highlighted many specific behaviours of family throughout the decision-making process, the complex participant attitudes toward retaining patient authority whilst including the family, and insight into influencing factors. These findings will inform a conceptual framework describing family involvement in decision-making.<bold>Practice Implications: </bold>Clinicians could ascertain participant preferences and remain open to the varying forms of family involvement in decision-making. Given the important role of family in the decision-making process, family inclusive consultation strategies are needed. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
07383991
Volume :
99
Issue :
7
Database :
Academic Search Index
Journal :
Patient Education & Counseling
Publication Type :
Academic Journal
Accession number :
116159152
Full Text :
https://doi.org/10.1016/j.pec.2016.01.014