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Quality end-of-life care: patients' perspectives.

Authors :
Singer PA
Martin DK
Kelner M
Singer, P A
Martin, D K
Kelner, M
Source :
JAMA: Journal of the American Medical Association. 1/13/99, Vol. 281 Issue 2, p163-168. 6p.
Publication Year :
1999

Abstract

<bold>Context: </bold>Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients.<bold>Objective: </bold>To identify and describe elements of quality end-of-life care from the patient's perspective.<bold>Design: </bold>Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis.<bold>Setting: </bold>Toronto, Ontario.<bold>Participants: </bold>A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38).<bold>Outcome Measures: </bold>Participants' views on end-of-life issues.<bold>Results: </bold>Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones.<bold>Conclusion: </bold>These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
00987484
Volume :
281
Issue :
2
Database :
Academic Search Index
Journal :
JAMA: Journal of the American Medical Association
Publication Type :
Academic Journal
Accession number :
107205150
Full Text :
https://doi.org/10.1001/jama.281.2.163