Pacient s mnohočetným myelomem v systému zdravotní a sociální péče v České republice - vyhodnocení dotazníkového šetření.

The paper offers an insight into diagnostics and therapy of multiple myeloma in the Czech Republic including complications associated with the therapy. Multiple myeloma is classified in the group of rare disease. In a real life this fact is objectively confirmed by initial diagnostic difficulties, but it is subsequently reflected in requiring life situations on the patients and their close relatives. The basic supportive role in the whole system is played by medical and non-profit organizations. The authors offer the results of a short-term questionnaire survey performed in members of the Multiple Myeloma Patients' Club, which was performed in January and February 2015. The objective of the questionnaire survey was to monitor the extent of practical experience of the patients with the accessibility of highly innovative therapeutic drugs used in the treatment of multiple myeloma within specialized center for the therapy of multiple myeloma in the Czech Republic used outside clinical evaluations. The other objective was to monitor the degree of accessibility of social compensations, which - for many patients with this rare disease - are indispensible since the moment of diagnosis. [ABSTRACT FROM AUTHOR]