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389 results on '"van den Ende, Cornelia H. M."'

4. One-year effectiveness of long-term exercise therapy in people with axial spondyloarthritis and severe functional limitations

Author

van Wissen, Maria A T, primary, van den Ende, Cornelia H M, additional, Gademan, Maaike G J, additional, Teuwen, Max M H, additional, Peter, Wilfred F, additional, Mahler, Elien A M, additional, van Schaardenburg, Dirkjan, additional, van Gaalen, Floris A, additional, Spoorenberg, Anneke, additional, van den Hout, Wilbert B, additional, van Tubergen, Astrid M, additional, Vliet Vlieland, Theodora P M, additional, and van Weely, Salima F E, additional

Published
2024
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6. Efficacy of methylprednisolone in very early systemic sclerosis: results of the “Hit hard and early’’ randomized controlled trial

Author

Kersten, Brigit E, primary, Lemmers, Jacqueline M J, additional, Vanhaecke, Amber, additional, Velauthapillai, Arthiha, additional, van den Hombergh, Wieneke M T, additional, van den Hoogen, Frank H J, additional, van den Ende, Cornelia H M, additional, Smith, Vanessa, additional, and Vonk, Madelon C, additional

Published
2024
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8. EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis

Author

Parodis, Ioannis, Girard-Guyonvarc'h, Charlotte, Arnaud, Laurent, Distler, Oliver, Domján, Andrea, Van den Ende, Cornelia H. M., Fligelstone, Kim, Kocher, Agnes, Larosa, Maddalena, Lau, Martin, Mitropoulos, Alexandros, Ndosi, Mwidimi, Poole, Janet L., Redmond, Anthony, Ritschl, Valentin, Alexanderson, Helene, Sjöberg, Yvonne, von Perner, Gunilla, Uhlig, Till, Varju, Cecilia, Vriezekolk, Johanna E., Welin, Elisabet, Westhovens, René, Stamm, Tanja A., Boström, Carina, Parodis, Ioannis, Girard-Guyonvarc'h, Charlotte, Arnaud, Laurent, Distler, Oliver, Domján, Andrea, Van den Ende, Cornelia H. M., Fligelstone, Kim, Kocher, Agnes, Larosa, Maddalena, Lau, Martin, Mitropoulos, Alexandros, Ndosi, Mwidimi, Poole, Janet L., Redmond, Anthony, Ritschl, Valentin, Alexanderson, Helene, Sjöberg, Yvonne, von Perner, Gunilla, Uhlig, Till, Varju, Cecilia, Vriezekolk, Johanna E., Welin, Elisabet, Westhovens, René, Stamm, Tanja A., and Boström, Carina

Abstract

OBJECTIVE: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). METHODS: A task force comprising 7 rheumatologists, 15 other healthcare professionals and 3 patients was established. Following a systematic literature review performed to inform the recommendations, statements were formulated, discussed during online meetings and graded based on risk of bias assessment, level of evidence (LoE) and strength of recommendation (SoR; scale A-D, A comprising consistent LoE 1 studies, D comprising LoE 4 or inconsistent studies), following the European Alliance of Associations for Rheumatology standard operating procedure. Level of agreement (LoA; scale 0-10, 0 denoting complete disagreement, 10 denoting complete agreement) was determined for each statement through online voting. RESULTS: Four overarching principles and 12 recommendations were developed. These concerned common and disease-specific aspects of non-pharmacological management. SoR ranged from A to D. The mean LoA with the overarching principles and recommendations ranged from 8.4 to 9.7. Briefly, non-pharmacological management of SLE and SSc should be tailored, person-centred and participatory. It is not intended to preclude but rather complement pharmacotherapy. Patients should be offered education and support for physical exercise, smoking cessation and avoidance of cold exposure. Photoprotection and psychosocial interventions are important for SLE patients, while mouth and hand exercises are important in SSc. CONCLUSIONS: The recommendations will guide healthcare professionals and patients towards a holistic and personalised management of SLE and SSc. Research and educational agendas were developed to address needs towards a higher evidence level, enhancement of clinician-patient communication and improved outcomes.

Published
2024
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11. Effectiveness of longstanding exercise therapy compared with usual care for people with rheumatoid arthritis and severe functional limitations: a randomised controlled trial

Author

Teuwen, Max M H, primary, van Weely, Salima F E, additional, Vliet Vlieland, Thea P M, additional, van Wissen, Maria A T, additional, Peter, Wilfred F, additional, den Broeder, Alfons A, additional, van Schaardenburg, Dirkjan, additional, van den Hout, Wilbert B, additional, Van den Ende, Cornelia H M, additional, and Gademan, Maaike G J, additional

Published
2024
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13. Quality of reporting and nature of harms in clinical trials on supervised exercise in patients with rheumatoid arthritis or axial spondyloarthritis

Author

Teuwen, Max M. H., primary, Vlieland, Thea P. M. Vliet, additional, van Weely, Salima F. E., additional, Schoones, Jan W., additional, Rausch Osthoff, Anne-Kathrin, additional, Juhl, Carsten B., additional, Niedermann, Karin, additional, Gademan, Maaike G. J., additional, and van den Ende, Cornelia H. M., additional

Published
2023
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14. Functional limitations of people with rheumatoid arthritis or axial spondyloarthritis and severe functional disability: a cross-sectional descriptive study

Author

Teuwen, Max M. H., primary, van Weely, Salima F. E., additional, Vliet Vlieland, Thea P. M., additional, Douw, Thom, additional, van Schaardenburg, Dirkjan, additional, den Broeder, Alfons A., additional, van Tubergen, Astrid M., additional, van Wissen, Maria A. T., additional, van den Ende, Cornelia H. M., additional, and Gademan, Maaike G. J., additional

Published
2023
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18. EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis

Author

Parodis, Ioannis, primary, Girard-Guyonvarc’h, Charlotte, additional, Arnaud, Laurent, additional, Distler, Oliver, additional, Domján, Andrea, additional, Van den Ende, Cornelia H M, additional, Fligelstone, Kim, additional, Kocher, Agnes, additional, Larosa, Maddalena, additional, Lau, Martin, additional, Mitropoulos, Alexandros, additional, Ndosi, Mwidimi, additional, Poole, Janet L, additional, Redmond, Anthony, additional, Ritschl, Valentin, additional, Alexanderson, Helene, additional, Sjöberg, Yvonne, additional, von Perner, Gunilla, additional, Uhlig, Till, additional, Varju, Cecilia, additional, Vriezekolk, Johanna E, additional, Welin, Elisabet, additional, Westhovens, René, additional, Stamm, Tanja A, additional, and Boström, Carina, additional

Published
2023
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23. Physical therapy in systemic sclerosis: the patient perspective

Author

MS Reumatologie/Immunologie/Infectie, Infection & Immunity, Liem, Sophie I E, van Leeuwen, Nina M, Vliet Vlieland, Thea P M, Boerrigter, Gerrie M W, van den Ende, Cornelia H M, de Pundert, Lian A J, Schriemer, Marisca R, Spierings, Julia, Vonk, Madelon C, de Vries-Bouwstra, Jeska K, MS Reumatologie/Immunologie/Infectie, Infection & Immunity, Liem, Sophie I E, van Leeuwen, Nina M, Vliet Vlieland, Thea P M, Boerrigter, Gerrie M W, van den Ende, Cornelia H M, de Pundert, Lian A J, Schriemer, Marisca R, Spierings, Julia, Vonk, Madelon C, and de Vries-Bouwstra, Jeska K

Published
2023

26. Physical Therapy in Systemic Sclerosis: The Patient Perspective

Author

Liem, Sophie I. E., primary, van Leeuwen, Nina M., additional, Vliet Vlieland, Thea P. M., additional, Boerrigter, Gerrie M. W., additional, van den Ende, Cornelia H. M., additional, de Pundert, Lian A. J., additional, Schriemer, Marisca R., additional, Spierings, Julia, additional, Vonk, Madelon C., additional, and de Vries‐Bouwstra, Jeska K., additional

Published
2022
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30. Position statement on exercise dosage in rheumatic and musculoskeletal diseases : the role of the IMPACT-RMD toolkit

Author

Metsios, George S., Brodin, Nina, Vlieland, Thea P. M. Vliet, Van den Ende, Cornelia H. M., Stavropoulos-Kalinoglou, Antonios, Fatouros, Ioannis, van der Esch, Martin, Fenton, Sally A. M., Tzika, Katerina, Moe, Rikke Helene, Veldhuijzen van Zanten, Jet J. C. S., Koutedakis, Yiannis, Swinnen, Thijs Willem, Veskoukis, Aristidis S., Boström, Carina, Kennedy, Norelee, Nikiphorou, Elena, Fragoulis, George E., Niedermann, Karin, Kitas, George D., Metsios, George S., Brodin, Nina, Vlieland, Thea P. M. Vliet, Van den Ende, Cornelia H. M., Stavropoulos-Kalinoglou, Antonios, Fatouros, Ioannis, van der Esch, Martin, Fenton, Sally A. M., Tzika, Katerina, Moe, Rikke Helene, Veldhuijzen van Zanten, Jet J. C. S., Koutedakis, Yiannis, Swinnen, Thijs Willem, Veskoukis, Aristidis S., Boström, Carina, Kennedy, Norelee, Nikiphorou, Elena, Fragoulis, George E., Niedermann, Karin, and Kitas, George D.

Abstract

There is convincing evidence to suggest that exercise interventions can significantly improve disease-related outcomes as well as comorbidities in rheumatic and musculoskeletal diseases (RMDs). All exercise interventions should be appropriately defined by their dose, which comprises of two components: a) the FITT (frequency, intensity, time and type) and b) the training (ie, specificity, overload, progression, initial values, reversibility, and diminishing returns) principles. In the published RMD literature, exercise dosage is often misreported, which in "pharmaceutical treatment terms", this would be the equivalent of receiving the wrong medication dosage. Lack of appropriately reporting exercise dosage in RMDs, therefore, results in limited clarity on the effects of exercise interventions on different outcomes while it also hinders reproducibility, generalisability and accuracy of research findings. Based on the collective but limited current knowledge, the main purpose of the present Position Statement is to provide specific guidance for RMD researchers to help improve the reporting of exercise dosage and help advance research into this important field of investigation. We also propose the use of the IMPACT-RMD toolkit, a tool that can be used in the design and reporting phase of every trial.

Published
2022

36. Patient-reported outcomes to assess dyspnoea in interstitial lung disease and pulmonary hypertension: a systematic literature review of measurement properties.

Author

Lemmers, Jacqueline M. J., Vonk, Madelon C., and van den Ende, Cornelia H. M.

Subjects
DYSPNEA, INTERSTITIAL lung diseases, PULMONARY hypertension, CONNECTIVE tissue diseases, HEALTH status indicators
Abstract

Objective: This COnsensus-based Standards for the selection of health measurement INstruments (COSMIN)-based systematic review aims to identify and summarise the quality of measurement properties of dyspnoea-specific patient-reported outcome measures (PROMs) for patients with interstitial lung disease (ILD), pulmonary hypertension (PH) or connective tissue diseases (CTDs). Methods and results: Relevant articles in PubMed and Embase were screened. Based on COSMIN analysis and the Grading of Recommendations, Assessment, Development and Evaluation approach, overall rating and level of evidence were assessed to formulate recommendations. We identified 26 publications on 10 PROMs. For patients with ILD, including CTD-associated ILD, nine PROMs were evaluated, of which the Dyspnea-12 (D12), EXACT-Respiratory Symptoms Idiopathic Pulmonary Fibrosis Breathlessness subscale (ERS-IPF-B), King's Brief Interstitial Lung Disease Health Status Questionnaire breathlessness and activities subscale (KBILD-B) and the University of California San Diego Shortness of Breath Questionnaire (UCSD-SOBQ) had high-quality evidence for sufficient internal consistency, without high-quality evidence of insufficient measurement properties. We reached this same conclusion regarding the D12 for use in patients with PH, including CTD-associated PH. Most PROMs in this systematic review have moderate- or low-quality evidence on construct validity and responsiveness. Conclusion: Four dyspnoea-specific PROMs, D12, ERS-IPF-B, KBILD-B and UCSD-SOBQ, can be recommended for use in patients with ILD, including CTD-associated ILD. Of these four, the D12, despite the limited evidence and the lack of evidence on several important domains, is also suitable for use in patients with PH, including CTD-associated PH. [ABSTRACT FROM AUTHOR]

Published
2022
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38. Additional file 1 of Use and usability of the dr. Bart app and its relation with health care utilisation and clinical outcomes in people with knee and/or hip osteoarthritis

Author

Pelle, Tim, Van Der Palen, Job, De Graaf, Frank, Van Den Hoogen, Frank H. J., Bevers, Karen, and Van Den Ende, Cornelia H. M.

Subjects
surgical procedures, operative, bacterial infections and mycoses, neoplasms, digestive system, digestive system diseases
Abstract

Additional file 1: Appendix 1. Screenshots of the dr. Bart app. Appendix 2. Baseline characteristics of participants in the study per indicator of use and non-users. Appendix 3. The 5 most and least often read paragraphs. Appendix 4. Median and interquartile range of the number of cumulative completed goals over time of the active users (n = 151). Appendix 5. Median and interquartile range of the number of cumulative logins over time of the active users (n = 151). Appendix 6. The 5 relatively most and least often completed goals (i.e., times completed / times chosen). Appendix 7. The 5 relatively most and least often chosen goals (i.e., times chosen / times proposed). Appendix 8. Some responses to the free-text option of the SUS. Appendix 9. Regression coefficient and 95% confidence interval of the relation between baseline characteristics and different parameters of use. Appendix 10. Spearman rank correlation coefficients between different indicators of use and beliefs regarding 5 treatment modalities in knee/hip OA as measured with the treatment beliefs in osteoarthritis questionnaire (TOA) (relative difference between baseline and six month follow-up).

Published
2021
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42. Are Health Care Professionals’ Implicit and Explicit Attitudes Toward Conventional Disease‐Modifying Antirheumatic Drugs Associated With Those of Their Patients?

Author

van Heuckelum, Milou, primary, Hebing, Renske C. F., additional, Vandeberg, Lisa, additional, Linn, Annemiek J., additional, Flendrie, Marcel, additional, Nurmohamed, Mike T., additional, van Dulmen, Sandra, additional, van den Ende, Cornelia H. M., additional, and van den Bemt, Bart J. F., additional

Published
2021
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43. How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Author

MS Reumatologie/Immunologie/Infectie, Regenerative Medicine and Stem Cells, Infection & Immunity, Spierings, Julia, van den Ende, Cornelia H M, Schriemer, Rita M, Moens, Hein J Bernelot, van der Bijl, Egon A, Bonte-Mineur, Femke, de Buck, Marieke P D, de Kanter, Meeke A E, Knaapen-Hans, Hanneke K A, van Laar, Jacob M, Mulder, Udo D J, Potjewijd, Judith, de Pundert, Lian A J, Schoonbrood, Thea H M, Schouffoer, Anne A, Stel, Alja J, Vercoutere, Ward, Voskuyl, Alexandre E, de Vries-Bouwstra, Jeska K, Vonk, Madelon C, MS Reumatologie/Immunologie/Infectie, Regenerative Medicine and Stem Cells, Infection & Immunity, Spierings, Julia, van den Ende, Cornelia H M, Schriemer, Rita M, Moens, Hein J Bernelot, van der Bijl, Egon A, Bonte-Mineur, Femke, de Buck, Marieke P D, de Kanter, Meeke A E, Knaapen-Hans, Hanneke K A, van Laar, Jacob M, Mulder, Udo D J, Potjewijd, Judith, de Pundert, Lian A J, Schoonbrood, Thea H M, Schouffoer, Anne A, Stel, Alja J, Vercoutere, Ward, Voskuyl, Alexandre E, de Vries-Bouwstra, Jeska K, and Vonk, Madelon C

Published
2020

49. Effectiveness and cost‐effectiveness of longstanding exercise therapy versus usual care in patients with axial spondyloarthritis or rheumatoid arthritis and severe limitations: The protocols of two parallel randomized controlled trials.

Author

van Wissen, Maria. A. T., Teuwen, Max. M. H., van den Ende, Cornelia. H. M., Vliet Vlieland, Thea. P. M., den Broeder, Alfons. A., van den Hout, Wilbert. B., Peter, Wilfred. F., van Schaardenburg, Dirkjan., van Tubergen, Astrid. M., Gademan, Maaike. G. J., and van Weely, Salima. F. E.

Subjects
PHYSICAL therapy, HEALTH status indicators, TREATMENT effectiveness, RANDOMIZED controlled trials, FUNCTIONAL assessment, RHEUMATOID arthritis, COST effectiveness, EXERCISE therapy
Abstract

Objectives: Research on effectiveness and cost‐effectiveness of longstanding exercise therapy in patients with axial SpondyloArthritis (axSpA) or Rheumatoid Arthritis (RA) is scarce, and mainly concerned patients with a relatively favorable health status. We aim to evaluate the effectiveness and cost‐effectiveness of longstanding exercise therapy compared to usual care in the subgroup of patients with axSpA or RA and severe limitations in functioning. Methods: In two separate, parallel randomized controlled trials the effectiveness and cost‐effectiveness of longstanding, active exercise therapy (52 weeks) compared with usual care (1:1) will be evaluated. The longstanding, active exercise therapy will focus on improving individual limitations in daily activities and participation and will be given by a trained physical therapist in the vicinity of the participant. For each diagnosis, 215 patients with severe limitations in activities and participation will be included. Assessments are performed at baseline, 12, 26, and 52 weeks. The primary outcome measure of effectiveness is the individual level of functioning (activities and participation), as measured with the Patient‐Specific Complaints instrument at 52 weeks. For cost‐effectiveness analyses, the EuroQol (EQ‐5D‐5L) and questionnaires on healthcare use and productivity will be administered. The economic evaluation will be a cost‐utility analysis from a societal perspective. After 52 weeks, the patients in the usual care group are offered longstanding, active exercise therapy as well. Follow‐up assessments are done at 104, 156, and 208 weeks. Conclusion: The results of these studies will provide insights in the effectiveness and cost‐effectiveness of longstanding exercise therapy in the subgroup of axSpA and RA patients with severe functional limitations. [ABSTRACT FROM AUTHOR]

Published
2022
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