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8. The prevalence of non-accidental trauma among children with polytrauma: A nationwide level-I trauma centre study

Author

de Boer, Anne, Edelenbos, Esther, Goslings, J. Carel, van Sommeren, Lia P.G.W., Toor, Annelies, Affourtit, Marjo, van Ditshuizen, Jan C., Wijnen, Rene M.H., Kempink, Dagmar RJ., Bessems, Johannes HJM., Hagenaars, Tjebbe, den Hartog, Dennis, Jansen, M.A.C., Allema, J.H., Kanters, Floris E.P., Aalbers-Hiemstra, Annemieke, Mulder, Arnaud, Smiers, Frans, Hartendorf, Rina C., Fiddelers, Audrey A.A., Levelink, Birgit, Poeze, Martijn, de Blaauw, Ivo, Tromp, Tjarda N., Beuker, Benn, Reininga, Inge, Wendt, Klaus, Aspers-Wolters, Stasja J.G., van de Putte, Elise M., Loos, Marie-Louise H.J., van Rijn, Rick R., Krug, Egbert, Bloemers, Frank W., Ten Bosch, Jan A., Bossuyt, P.M.M., Edwards, Michael J.R., Greeven, Alexander P.A., Hulscher, Jan B.F., Keyzer-Dekker, Claudia M.G., de Ridder, Victor A., Spanjersberg, W. Richard, Teeuw, Arianne H., Theeuwes, Hilco P., de Vries, Selena, de Wit, Ralph, and Bakx, Roel

Published
2022
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10. Identifying disrupted biological factors and patient-tailored interventions for chronic fatigue in adolescents and young adults with Q-Fever Fatigue Syndrome, Chronic Fatigue Syndrome and Juvenile Idiopathic Arthritis (QFS-study): study protocol for a randomized controlled trial with single-subject experimental case series design

Author

Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., and Nijhof, Sanne L.

Published
2022
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11. Individual outcomes after tailored versus generic self‐management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition: A multiple single‐case study.

Author

Vroegindeweij, Anouk, Houtveen, Jan, Lucassen, Desiree A., Van De Putte, Elise M., Wulffraat, Nico M., Nijhof, Sanne L., and Swart, Joost F.

Subjects
FATIGUE (Physiology), YOUNG adults, BIOPSYCHOSOCIAL model, CROSSOVER trials, QUALITY of life
Abstract

Objective: To examine individual outcomes after tailored lifestyle (PROfeel) or generic dietary advice as self‐management intervention for persistent fatigue in adolescents and young adults with a chronic condition, to compare participants who did and did not benefit and to explore changes to factors in the biopsychosocial model of fatigue after PROfeel. Method: A multiple single‐case AB‐phase design was embedded in a randomized crossover trial (N = 45). Intensive longitudinal data (ILD) on outcomes 'fatigue severity', 'self‐efficacy' and 'quality of life' (QoL) were collected through weekly smartphone measurement for 20 weeks. ILD on biopsychosocial factors were collected through experience sampling methodology for 28 days pre‐post first intervention. Baseline characteristics were compared with t‐tests and chi‐square tests. Permutation distancing tests were used to assess change over time in all ILD. Results: Regarding weekly measurements, nineteen participants (42.22%) showed small to large positive outcomes (drange =.05 to 2.59), mostly after PROfeel. Eleven participants (24.44%) showed small to moderate negative outcomes (drange = −.02 to −2.46), mostly after dietary advice. Fatigue severity improved most, followed by self‐efficacy. Participants who benefitted showed higher QoL levels and lower fatigue and pain levels compared with others at baseline (all p <.02). When positive outcomes were observed after PROfeel, typically ≥1 biopsychosocial factor had been targeted successfully. Conclusion: Self‐management advice has more potential when tailored to individual characteristics, including the biopsychosocial model of fatigue. PROfeel appears particularly useful as fatigue intervention for individuals with relatively less severe symptoms. [ABSTRACT FROM AUTHOR]

Published
2024
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12. Targeting persistent fatigue with tailored versus generic self‐management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition: A randomized crossover trial.

Author

Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B. T., Lucassen, Desiree A., Swart, Joost F., and Nijhof, Sanne L.

Subjects
JUVENILE idiopathic arthritis, CHRONIC fatigue syndrome, Q fever, YOUNG adults, BEHAVIOR therapy
Abstract

Objectives: To evaluate the use of two self‐management intervention strategies for persistent fatigue in adolescents and young adults with a fatigue syndrome or rheumatic condition. Design: A randomized crossover trial administering tailored lifestyle advice and generic dietary advice, each 12 weeks, with a four‐week washout period between. Methods: Sixty participants (aged 12–29) were included. Tailoring was achieved through the PROfeel method. Dietary guidelines were conceptualized by the Netherlands Nutrition Centre. Questionnaires were used pre–post‐interventions to measure primary outcome 'fatigue severity' (Checklist Individual Strength‐8) and secondary outcomes 'self‐efficacy' (Self‐Efficacy Scale‐28) and 'quality of life' (QoL) (Paediatric Quality of Life Inventory 4.0). Feasibility and adherence were self‐rated on a scale of 1 to 10 (low to high). Linear mixed modelling was used to assess change over time, compare strategy effectiveness and study the impact of intervention order. Results: Fatigue severity, self‐efficacy and QoL regarding 'physical' and 'emotional' functioning improved significantly over time (all p <.015). The average improvement of the two QoL subscales was clinically relevant, as was the fatigue improvement in 20 out of 46 participants who completed the trial and 5 dropouts. The interventions were equally effective, and intervention order did not impact the improvement level (prange =.242–.984). The self‐management strategies received similar feasibility (M = 6.45, SD = 1.91) and adherence (M = 7.67, SD = 1.67) ratings. Conclusions: As small to clinically relevant improvements were observed, self‐management strategies might be particularly useful to bridge waiting time for guided treatments such as Cognitive Behavioural Therapy. [ABSTRACT FROM AUTHOR]

Published
2024
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15. A dyadic perspective on parent-child dyadic coping in children with a chronic condition

Author

Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Sociale pediatrie onderzoek 1, van der Wal, Reine C., Nijhof, Sanne L., Leisten, Luca M., van de Putte, Elise M., van der Ent, Cornelis K., Hindriks-Keegstra, Alinde W., Bodenmann, Guy, Finkenauer, Catrin, Nap-van der Vlist, Merel M., Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Sociale pediatrie onderzoek 1, van der Wal, Reine C., Nijhof, Sanne L., Leisten, Luca M., van de Putte, Elise M., van der Ent, Cornelis K., Hindriks-Keegstra, Alinde W., Bodenmann, Guy, Finkenauer, Catrin, and Nap-van der Vlist, Merel M.

Published
2024

16. The Permutation Distancing Test for dependent single-case observational AB-phase design data: A Monte Carlo simulation study

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Child Health, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Vroegindeweij, Anouk, Nijhof, Linde N, Onghena, Patrick, van de Putte, Elise M, Nijhof, Sanne L, Houtveen, Jan, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Child Health, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Vroegindeweij, Anouk, Nijhof, Linde N, Onghena, Patrick, van de Putte, Elise M, Nijhof, Sanne L, and Houtveen, Jan

Published
2024

19. Healthy play, better coping: The importance of play for the development of children in health and disease

Author

Nijhof, Sanne L., Vinkers, Christiaan H., van Geelen, Stefan M., Duijff, Sasja N., Achterberg, E.J. Marijke, van der Net, Janjaap, Veltkamp, Remco C., Grootenhuis, Martha A., van de Putte, Elise M., Hillegers, Manon H.J., van der Brug, Anneke W., Wierenga, Corette J., Benders, Manon J.N.L., Engels, Rutger C.M.E., van der Ent, C. Kors, Vanderschuren, Louk J.M.J., and Lesscher, Heidi M.B.

Published
2018
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25. Towards a more comprehensive understanding of PTSD and parenting

Author

Youth in Changing Cultural Contexts, Leerstoel Finkenauer, Leerstoel Dekovic, Development and Treatment of Psychosocial Problems, Leerstoel Boelen, Trauma and Grief, Meijer, Laurien, Franz, Molly R., Deković, Maja, van Ee, Elisa, Finkenauer, Catrin, Kleber, Rolf J., van de Putte, Elise M., Thomaes, Kathleen, Youth in Changing Cultural Contexts, Leerstoel Finkenauer, Leerstoel Dekovic, Development and Treatment of Psychosocial Problems, Leerstoel Boelen, Trauma and Grief, Meijer, Laurien, Franz, Molly R., Deković, Maja, van Ee, Elisa, Finkenauer, Catrin, Kleber, Rolf J., van de Putte, Elise M., and Thomaes, Kathleen

Published
2023

26. How to support children to develop and express their coping preferences around minor invasive medical procedures: children’s and parents’ perspectives

Author

Klinische zorg, Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Intensieve zorg, General Practice & Nursing Science, Verplegingswetenschap, Cancer, JC onderzoeksprogramma Methodologie, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Sociale pediatrie onderzoek 1, Neonatologie Zorg, Infection & Immunity, Segers, Elisabeth W., Ketelaar, Marjolijn, de Man, Marjorie A.C.P., Schoonhoven, Lisette, van de Putte, Elise M., van den Hoogen, Agnes, Klinische zorg, Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Intensieve zorg, General Practice & Nursing Science, Verplegingswetenschap, Cancer, JC onderzoeksprogramma Methodologie, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Sociale pediatrie onderzoek 1, Neonatologie Zorg, Infection & Immunity, Segers, Elisabeth W., Ketelaar, Marjolijn, de Man, Marjorie A.C.P., Schoonhoven, Lisette, van de Putte, Elise M., and van den Hoogen, Agnes

Published
2023

27. Towards a more comprehensive understanding of PTSD and parenting

Author

Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Meijer, Laurien, Franz, Molly R., Deković, Maja, van Ee, Elisa, Finkenauer, Catrin, Kleber, Rolf J., van de Putte, Elise M., Thomaes, Kathleen, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Meijer, Laurien, Franz, Molly R., Deković, Maja, van Ee, Elisa, Finkenauer, Catrin, Kleber, Rolf J., van de Putte, Elise M., and Thomaes, Kathleen

Published
2023

28. Internet-delivered cognitive behavioural therapy for chronic fatigue among adolescents with a chronic medical condition: a single case study

Author

Child Health, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Cluster B, Immuno/reuma patientenzorg, Infection & Immunity, Nijhof, Linde N, Nijhof, Sanne L, van de Putte, Elise M, Houtveen, Jan, van Montfrans, Joris M, Knoop, Hans, Child Health, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Cluster B, Immuno/reuma patientenzorg, Infection & Immunity, Nijhof, Linde N, Nijhof, Sanne L, van de Putte, Elise M, Houtveen, Jan, van Montfrans, Joris M, and Knoop, Hans

Published
2023

29. Paediatric short fatigue questionnaire, a 4-item fatigue questionnaire for children

Author

Sociale pediatrie onderzoek 1, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Speerpunt, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Immuno/reuma patientenzorg, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Nap-van der Vlist, Merel M., Vroegindeweij, Anouk, Hoefnagels, Johanna W., van der Ent, Cornelis K., Swart, Joost F., van de Putte, Elise M., Nijhof, Sanne L., Sociale pediatrie onderzoek 1, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Speerpunt, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Immuno/reuma patientenzorg, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Nap-van der Vlist, Merel M., Vroegindeweij, Anouk, Hoefnagels, Johanna W., van der Ent, Cornelis K., Swart, Joost F., van de Putte, Elise M., and Nijhof, Sanne L.

Published
2023

30. Dynamic modeling of experience sampling methodology data reveals large heterogeneity in biopsychosocial factors associated with persistent fatigue in young people living with a chronic condition: Dynamic biopsychosocial associations with fatigue

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, Van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, Nijhof, Sanne L, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, Van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, and Nijhof, Sanne L

Published
2023

31. Targeting persistent fatigue with tailored versus generic self-management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition : A randomized crossover trial

Author

Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., Nijhof, Sanne L., Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., and Nijhof, Sanne L.

Abstract

Objectives: To evaluate the use of two self-management intervention strategies for persistent fatigue in adolescents and young adults with a fatigue syndrome or rheumatic condition. Design: A randomized crossover trial administering tailored lifestyle advice and generic dietary advice, each 12 weeks, with a four-week washout period between. Methods: Sixty participants (aged 12–29) were included. Tailoring was achieved through the PROfeel method. Dietary guidelines were conceptualized by the Netherlands Nutrition Centre. Questionnaires were used pre–post-interventions to measure primary outcome ‘fatigue severity’ (Checklist Individual Strength-8) and secondary outcomes ‘self-efficacy’ (Self-Efficacy Scale-28) and ‘quality of life’ (QoL) (Paediatric Quality of Life Inventory 4.0). Feasibility and adherence were self-rated on a scale of 1 to 10 (low to high). Linear mixed modelling was used to assess change over time, compare strategy effectiveness and study the impact of intervention order. Results: Fatigue severity, self-efficacy and QoL regarding ‘physical’ and ‘emotional’ functioning improved significantly over time (all p <.015). The average improvement of the two QoL subscales was clinically relevant, as was the fatigue improvement in 20 out of 46 participants who completed the trial and 5 dropouts. The interventions were equally effective, and intervention order did not impact the improvement level (prange =.242–.984). The self-management strategies received similar feasibility (M = 6.45, SD = 1.91) and adherence (M = 7.67, SD = 1.67) ratings. Conclusions: As small to clinically relevant improvements were observed, self-management strategies might be particularly useful to bridge waiting time for guided treatments such as Cognitive Behavioural Therapy.

Published
2023

32. Paediatric Short Fatigue Questionnaire

Author

Nap-van der Vlist, Merel M., primary, Vroegindeweij, Anouk, additional, Hoefnagels, Johanna W., additional, van der Ent, Cornelis K., additional, Swart, Joost F., additional, van de Putte, Elise M., additional, and Nijhof, Sanne L., additional

Published
2023
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34. The prevalence of non-accidental trauma among children with polytrauma: A nationwide level-I trauma centre study

Author

Loos, Marie-Louise H.J., primary, van Rijn, Rick R., additional, Krug, Egbert, additional, Bloemers, Frank W., additional, Ten Bosch, Jan A., additional, Bossuyt, P.M.M., additional, Edwards, Michael J.R., additional, Greeven, Alexander P.A., additional, Hulscher, Jan B.F., additional, Keyzer-Dekker, Claudia M.G., additional, de Ridder, Victor A., additional, Spanjersberg, W. Richard, additional, Teeuw, Arianne H., additional, Theeuwes, Hilco P., additional, de Vries, Selena, additional, de Wit, Ralph, additional, Bakx, Roel, additional, de Boer, Anne, additional, Edelenbos, Esther, additional, Goslings, J. Carel, additional, van Sommeren, Lia P.G.W., additional, Toor, Annelies, additional, Affourtit, Marjo, additional, van Ditshuizen, Jan C., additional, Wijnen, Rene M.H., additional, Kempink, Dagmar RJ., additional, Bessems, Johannes HJM., additional, Hagenaars, Tjebbe, additional, den Hartog, Dennis, additional, Jansen, M.A.C., additional, Allema, J.H., additional, Kanters, Floris E.P., additional, Aalbers-Hiemstra, Annemieke, additional, Mulder, Arnaud, additional, Smiers, Frans, additional, Hartendorf, Rina C., additional, Fiddelers, Audrey A.A., additional, Levelink, Birgit, additional, Poeze, Martijn, additional, de Blaauw, Ivo, additional, Tromp, Tjarda N., additional, Beuker, Benn, additional, Reininga, Inge, additional, Wendt, Klaus, additional, Aspers-Wolters, Stasja J.G., additional, and van de Putte, Elise M., additional

Published
2022
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38. Psychosocial functioning in adolescents growing up with chronic disease: The Dutch HBSC study

Author

AISS Behaviour Neuroscience, dASS BW-1, Leerstoel Finkenauer, Youth in Changing Cultural Contexts, Berkelbach van der Sprenkel, Emma E., Nijhof, Sanne L., Dalmeijer, Geertje W., Onland-Moret, N. Charlotte, de Roos, Simone A., Lesscher, Heidi M. B., van de Putte, Elise M., van der Ent, Cornelis K., Finkenauer, Catrin, Stevens, Gonneke W. J. M., AISS Behaviour Neuroscience, dASS BW-1, Leerstoel Finkenauer, Youth in Changing Cultural Contexts, Berkelbach van der Sprenkel, Emma E., Nijhof, Sanne L., Dalmeijer, Geertje W., Onland-Moret, N. Charlotte, de Roos, Simone A., Lesscher, Heidi M. B., van de Putte, Elise M., van der Ent, Cornelis K., Finkenauer, Catrin, and Stevens, Gonneke W. J. M.

Published
2022

39. Identifying disrupted biological factors and patient-tailored interventions for chronic fatigue in adolescents and young adults with Q-Fever Fatigue Syndrome, Chronic Fatigue Syndrome and Juvenile Idiopathic Arthritis (QFS-study): study protocol for a randomized controlled trial with single-subject experimental case series design

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma patientenzorg, Child Health, CTI Eijkelkamp, Brain, Cancer, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Cluster B, Immuno/reuma ERN, Integrale & Alg. Kindergen Patientenzorg, Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., Nijhof, Sanne L., Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma patientenzorg, Child Health, CTI Eijkelkamp, Brain, Cancer, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Cluster B, Immuno/reuma ERN, Integrale & Alg. Kindergen Patientenzorg, Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., and Nijhof, Sanne L.

Published
2022

40. The PROactive cohort study: rationale, design, and study procedures

Author

Speerpunt, Public Health Epidemiologie, Sociale pediatrie onderzoek 1, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, der Vlist, Merel M.Nap van, Hoefnagels, Johanna W., Dalmeijer, Geertje W., Moopen, Neha, van der Ent, Cornelis K., Swart, Joost F., van de Putte, Elise M., Nijhof, Sanne L., Speerpunt, Public Health Epidemiologie, Sociale pediatrie onderzoek 1, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, der Vlist, Merel M.Nap van, Hoefnagels, Johanna W., Dalmeijer, Geertje W., Moopen, Neha, van der Ent, Cornelis K., Swart, Joost F., van de Putte, Elise M., and Nijhof, Sanne L.

Published
2022

41. Development of the My Positive Health dialogue tool for children: A qualitative study on children's views of health

Author

UMC Utrecht Holding, Palliatieve Zorg, Child Health, Cancer, JC onderzoeksprogramma Kanker, Longziekten onderzoek 1, Integrale & Alg. Kindergen Patientenzorg, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, De Jong-Witjes, Stacey, Kars, Marijke C., Van Vliet, Marja, Huber, MacHteld, Van Der Laan, Sabine E.I., Gelens, Eva N., Van Der Sprenkel, Emma E.Berkelbach, Nijhof, Sanne L., De Jonge, Maretha V., Rippen, Hester, Van De Putte, Elise M., UMC Utrecht Holding, Palliatieve Zorg, Child Health, Cancer, JC onderzoeksprogramma Kanker, Longziekten onderzoek 1, Integrale & Alg. Kindergen Patientenzorg, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, De Jong-Witjes, Stacey, Kars, Marijke C., Van Vliet, Marja, Huber, MacHteld, Van Der Laan, Sabine E.I., Gelens, Eva N., Van Der Sprenkel, Emma E.Berkelbach, Nijhof, Sanne L., De Jonge, Maretha V., Rippen, Hester, and Van De Putte, Elise M.

Published
2022

42. The Impact of the COVID-19 Outbreak on Mental Wellbeing in Children with a Chronic Condition Compared to Healthy Peers

Author

Longziekten onderzoek 1, Sociale pediatrie onderzoek 1, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Infection & Immunity, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Hoefnagels, Johanna W, Schoen, Annelieke B, van der Laan, Sabine E I, Rodijk, Lyan H, van der Ent, Cornelis K, van de Putte, Elise M, Dalmeijer, Geertje W, Nijhof, Sanne L, Longziekten onderzoek 1, Sociale pediatrie onderzoek 1, Longziekten patientenzorg, Speerpunt Child Health, Child Health, Infection & Immunity, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Hoefnagels, Johanna W, Schoen, Annelieke B, van der Laan, Sabine E I, Rodijk, Lyan H, van der Ent, Cornelis K, van de Putte, Elise M, Dalmeijer, Geertje W, and Nijhof, Sanne L

Published
2022

43. Psychosocial functioning in adolescents growing up with chronic disease: The Dutch HBSC study

Author

Integrale & Alg. Kindergen Patientenzorg, Child Health, Public Health Epidemiologie, Cardiovasculaire Epi Team 3, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, TN Onderwijs, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Berkelbach van der Sprenkel, Emma E., Nijhof, Sanne L., Dalmeijer, Geertje W., Onland-Moret, N. Charlotte, de Roos, S. A., Lesscher, Heidi M.B., van de Putte, Elise M., van der Ent, Cornelis K., Finkenauer, Catrin, Stevens, Gonneke W.J.M., Integrale & Alg. Kindergen Patientenzorg, Child Health, Public Health Epidemiologie, Cardiovasculaire Epi Team 3, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, TN Onderwijs, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Berkelbach van der Sprenkel, Emma E., Nijhof, Sanne L., Dalmeijer, Geertje W., Onland-Moret, N. Charlotte, de Roos, S. A., Lesscher, Heidi M.B., van de Putte, Elise M., van der Ent, Cornelis K., Finkenauer, Catrin, and Stevens, Gonneke W.J.M.

Published
2022

44. Exploring key elements of approaches that support childrens' preferences during painful and stressful medical procedures: A scoping review

Author

Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Verplegingswetenschap, JC onderzoeksprogramma Methodologie, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, MS Neonatologie, Infection & Immunity, Segers, Elisatbeth W, Ketelaar, Marjolijn, Taddio, Anna, de Man, Marjorie A C P, Schoonhoven, Lisette, van de Putte, Elise M, van den Hoogen, Agnes, Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Verplegingswetenschap, JC onderzoeksprogramma Methodologie, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, MS Neonatologie, Infection & Immunity, Segers, Elisatbeth W, Ketelaar, Marjolijn, Taddio, Anna, de Man, Marjorie A C P, Schoonhoven, Lisette, van de Putte, Elise M, and van den Hoogen, Agnes

Published
2022

47. Development of the My Positive Health dialogue tool for children: a qualitative study on children’s views of health

Author

de Jong-Witjes, Stacey, primary, Kars, Marijke C, additional, van Vliet, Marja, additional, Huber, Machteld, additional, van der Laan, Sabine E I, additional, Gelens, Eva N, additional, Berkelbach van der Sprenkel, Emma E, additional, Nijhof, Sanne L, additional, de Jonge, Maretha V, additional, Rippen, Hester, additional, and van de Putte, Elise M, additional

Published
2022
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49. Additional file 2 of Identifying disrupted biological factors and patient-tailored interventions for chronic fatigue in adolescents and young adults with Q-Fever Fatigue Syndrome, Chronic Fatigue Syndrome and Juvenile Idiopathic Arthritis (QFS-study): study protocol for a randomized controlled trial with single-subject experimental case series design

Author

Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., and Nijhof, Sanne L.

Abstract

Additional file 2: Figure 2. Dynamic between social factors and symptom severity. Note. Figure 2 shows a dynamic network as presented to the participant in the PROfeel report. The participant chose to monitor “being busy with what others think of me” and “feeling pressure to function” as his social factors throughout ESM measurement. Residual dynamic structural equation modelling showed that when presence of the two social factors increased, severity of symptoms (such as fatigue and pain) increased in the hours to follow.

Published
2022
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50. Additional file 1 of Identifying disrupted biological factors and patient-tailored interventions for chronic fatigue in adolescents and young adults with Q-Fever Fatigue Syndrome, Chronic Fatigue Syndrome and Juvenile Idiopathic Arthritis (QFS-study): study protocol for a randomized controlled trial with single-subject experimental case series design

Author

Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., and Nijhof, Sanne L.

Abstract

Additional file 1: Figure 1. Descriptive average build-up of fatigue during the day. Note. Figure 1 shows the average build-up of fatigue during the day as presented to the participant in the PROfeel report. The higher the bar, the more fatigue the participant generally experienced during this hour of day. Averages are based on the completed ESM surveys throughout the first 4 weeks of ESM measurement. In case participants receive dietary advices first and patient-tailored PROfeel lifestyle advices second, the averages are based on the completed ESM surveys throughout the first and second ESM measurement periods.

Published
2022
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