67 results on '"terminal patients"'
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2. ATUAÇÃO FISIOTERAPÊUTICA NOS CUIDADOS PALIATIVOS EM UNIDADE DE TERAPIA INTENSIVA.
- Author
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DAHMER, AMANDA EDUARDA GOLLMANN, ARAÚJO, MARIA ANDRESSA SOUZA, DA SILVA, JÉSSICA DIOGO PEREIRA, PEREIRA, DOUGLAS, PANTANO, GABRIELA TAMIRES BRITO, and MARSON, RENAN FAVA
- Abstract
Physiotherapeutic performance in palliative care in the ICU is essential to ensure an integrated and effective approach in the care of terminally ill patients. As a general objective of this research, we sought to analyze the performance of physiotherapy in palliative care in Intensive Care Units, considering its importance in the prevention, treatment of physical complications and relief of patient suffering. This research was carried out through a bibliographic review of works published between 2014 and 2022. The research results were bibliographic and descriptive, addressing works published in the last 10 years. The result of that research pointed out that the performance of physiotherapy in palliative care in intensive care units is of great importance to promote mobility and functionality of patients, improve quality of life and reduce morbidity and mortality. For this, it is necessary that the physiotherapy approach be individualized and humanized, considering the needs and limitations of each patient. [ABSTRACT FROM AUTHOR]
- Published
- 2023
3. Realizing the Wishes of Terminal Patients: Caregiving Transport Efforts for End of Life in the Kuji Area of Japan
- Author
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Mizunori Yaegashi, Koki Otsuka, Kasumi Nitta, Chihiro Tono, Yukihiro Minagawa, Toru Yoshida, and Hidenobu Kawamura
- Subjects
cardiopulmonary resuscitation ,do-not-attempt-resuscitation ,do not resuscitate orders ,instruction of physician ,terminal patients ,Medicine (General) ,R5-920 - Abstract
Background: There are some restrictions in Japan regarding end-of-life care. For example, only physicians can legally issue death certificates. By law, ambulance staff members perform cardiopulmonary resuscitation (CPR) for all patients with cardiopulmonary arrest (CPA). Therefore, it is difficult to transport patients to hospitals without CPR, even in cases of terminal patients with do-not-attempt-resuscitation (DNAR) order. Furthermore, there is no 24-hour home care nursing system in our area. Therefore, terminal patients are unable to spend their last moments at their home in the Kuji area. Objective: To design a system in which terminal patients who wish to spend their final moments at their home can be transported to the hospital without CPR after at-home CPA and a system to avoid confusion between ambulance staff and family members using instructions provided by the physician. Setting/Subjects: The subjects were terminal patients with DNAR order who wanted to stay at home. The instruction to not perform CPR after CPA was created as a document by physicians. Patient information was shared with the fire department; patients were transported to our hospital without CPR after at-home CPA. Results: In total, 26 patients died during the study period; eight received emergency transport to the hospital without CPR after CPA. CPR was not performed for any patient. Conclusion: A system transporting terminal patients without CPR after CPA was necessary in our area. This instruction allows terminal patients to spend their last moments where they wish and avoids unwanted CPR and troubles after CPA.
- Published
- 2021
- Full Text
- View/download PDF
4. Application of interdisciplinary collaborative hospice care for terminal geriatric cancer patients: a prospective randomized controlled study.
- Author
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Liu, Yong, Shen, Yin, Pan, Qinghua, He, Huasheng, Zou, Houwen, Huang, Zuochao, Liu, Zhiping, and Wang, Xiaomao
- Subjects
- *
HOSPICE care , *TERMINAL care , *INTEGRATED health care delivery , *MEDICAL care , *CANCER patients , *GERIATRIC assessment , *GERIATRIC psychiatry , *DISCIPLINE of children - Abstract
Background: Hospice care (HC) is specialized medical care for terminal patients who are nearing the end of life. Interdisciplinary collaborative hospice care (ICHC) is where experts from different disciplines and patients/caregivers form a treatment team to establish shared patient care goals. However, the ICHC efficacy has not been frequently studied in the terminal geriatric cancer patient (TGCP) population. This study aimed to gain insight into ICHC provided to TGCPs by an ICHC team and identify factors to ameliorate multidimensional HC. Methods: 166 TGCPs were randomized by a computer-generated random number table using an allocation ratio of 1:1. The patients were divided into the ICHC group and life-sustaining treatment (LST) group. The scores of these questionnaires, such as EORTC, QLQ-C30, Hamilton anxiety scale, the median survival time (MST), symptoms improvement, the median average daily cost of drugs (MADDC), the median total cost of drugs (MTDC) in the last 2 days, and medical care satisfaction were observed in both groups. Results: After treatment, the improvement of emotional function and symptoms in the ICHC group were statistically higher than those in the LST group (P < 0.05). The MADDC and the MTDC in the last 2 days were statistically lower in the ICHC group than those in the LSTs group (P < 0.01). In addition, the overall satisfaction situation and the cooperation ability in the ICHC group were statistically higher than those in the LST group (P < 0.01). Conclusion: The ICHC could provide TGCPs with coordinated, comfortable, high-quality, and humanistic care. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
5. How quarantine of covid-19 changed dignity in a nursing hospital
- Author
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Bučius, Žygimantas
- Subjects
palliative care ,dignified community ,covid-19 ,quarantine ,terminal patients ,nursing hospital ,Social Sciences - Abstract
The COVID-19 pandemic crisis poses a considerable challenge to terminally ill patients. In this paper the use of qualitative research methods and ethnography compares the dignity of everyday life in the nursing hospital and how dignity is achieved before COVID-19 quarantine and during it. The focus is on the main palliative medicine principles – community and support from relatives. Because of quarantine patients could no longer gather and could not communicate with their relatives. This research shows that because of quarantine patients lost their ability to die with dignity. The paper’s methodological basis consists of anthropological and social work research methods such as participant observation, semi-structured interviews, and informal interviews. The main material is from the 2018 Master’s thesis – “Dignity in a nursing hospital. Approaches and experiences of medical staff and patients”. It is updated with five semi-structural interviews from patients and four semi-structural interviews with the medical staff of the hospital conducted in June 2020. The COVID-19 pandemic crisis poses a considerable challenge to terminally ill patients. In this paper the use of qualitative research methods and ethnography compares the dignity of everyday life in the nursing hospital and how dignity is achieved before COVID-19 quarantine and during it. The focus is on the main palliative medicine principles – community and support from relatives. Because of quarantine patients could no longer gather and could not communicate with their relatives. This research shows that because of quarantine patients lost their ability to die with dignity. The paper’s methodological basis consists of anthropological and social work research methods such as participant observation, semi-structured interviews, and informal interviews. The main material is from the 2018 Master’s thesis – “Dignity in a nursing hospital. [...
- Published
- 2020
- Full Text
- View/download PDF
6. BARRIERS TO INFORMED REFUSAL IN KOREA.
- Author
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Kim, Claire Junga
- Subjects
- *
PATIENT refusal of treatment , *TERMINALLY ill , *HOSPICE patients , *TERMINAL care , *TERMINATION of treatment , *PATIENT decision making - Abstract
In South Korea, the legal and cultural environment keeps terminally ill patients from making an informed refusal to a treatment the discontinuation of which can cause death. Act on Decisions on Life-Sustaining Treatment for Patients in Hospice and Palliative Care or at the End of Life allows several forms of informed refusal, but it is not enough. There is no explicit guarantee, at least under this law, of the right to refuse a treatment given during a period that has not reached an endof-life process prescribed in the law. Dori, which the family of a terminal patient feels obligated to follow, makes them commit to doing what they believe is right as a family member without asking the patient's intention. Because it reduces the family's motivation to have a difficult talk about death and end-of-life with the patient, the patient is deprived of an opportunity to make a decision based on accurate information. In making a decision for the patient while patient is excluded, the family often ends up choosing a safe decision that puts physical survival first. In conclusion, the culture and the culturally influenced law are making it impractical for terminal patients to make an informed refusal. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
7. Grupo focal com residentes de um programa de residência multiprofissional: percepção sobre suas dificuldades e recursos para lidar com a morte na atuação em contexto hospitalar.
- Author
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Basilio Lupi, Jaqueline, Morgani de Almeida, Maria Helena, Juri Kojima, Helga, and Perez Batista, Marina Picazzio
- Abstract
Copyright of Journal of Occupational Therapy of University of São Paulo / Revista de Terapia Ocupacional da Universidade de São Paulo is the property of Revista de Terapia Ocupacional da USP and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2021
- Full Text
- View/download PDF
8. EVIDENCE OF MUSIC THERAPY IN THE MANAGEMENT OF INDIVIDUALS IN THE TERMINAL STAGE: A SYSTEMATIC REVIEW.
- Author
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Napoleão, Letícia de Siqueira, Marques, Claudia Mirian de Godoy, and Marques, Jefferson Luiz Brum
- Subjects
- *
PAIN management , *PSYCHOLOGY of the terminally ill , *MUSIC therapy , *DISEASE management , *CINAHL database , *CONFERENCES & conventions , *PSYCHOLOGICAL adaptation , *SYSTEMATIC reviews , *MEDLINE , *QUALITY of life , *MEDICAL databases , *TERMINAL care , *ONLINE information services , *HEALTH care teams - Abstract
Music therapy (MT) for terminally ill patients (PT) has been used as a complementary and multidisciplinary palliative treatment, and numerous repercussions may be present in the management of patient treatment. TM aims to relieve physical and emotional symptoms, including reducing pain and improving quality of life. In addition, it can bring support and help in communicating with family members in coping with grief. Being of great importance to individuals to be more comfortable at the end of life. to analyze the evidence in the literature of studies related to the use of music therapy in the management of terminally ill patients. to analyze the evidence in the literature of studies related to the use of music therapy in the management of terminally ill patients. A systematic review was carried out under the PRISMA guidelines, through the databases: PubMed, Cinahl and Cochrane Library CENTRAL and the descriptors found in the Medical Subject Headings (MeSH) and, in the Health Sciences Descriptors (DeCS). Studies containing the descriptors "Palliative care", "Music Therapy" and "Terminal patients" and their cognates were selected, with no restriction regarding languages. A total of 5,836 studies were identified, 12 of which were selected for the review, and only those that described the effects of TM on PT were recruited. In 6 studies it was demonstrated that TM was able to reduce pain, in 5 articles it was identified an increase in well-being. 5 studies identified improvement in QoL through the application of a questionnaire. One study used spirituality as a relevant factor in the effectiveness of TM. Four publications analyzed the effect of TM on pre- and post-intervention discomfort, showing a reduction in discomfort after the intervention. TM proves to be an intervention capable of generating positive responses that correspond to an increase in QoL, with effects on the clinical, physiological and psychological outcomes of individuals in the terminal phase. The use of TM in PT is a cheap and accessible approach, which can bring many benefits to individuals who are in the final stages of life, bringing greater comfort and general well-being. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
9. [Family Decision-Making Path for the Referral of Terminal Patients in Tertiary Hospitals].
- Author
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Zhang S, Zhang XT, Yue P, Yang J, and Yin Z
- Subjects
- Humans, Female, Male, Terminal Care psychology, Middle Aged, Social Support, Adult, Tertiary Care Centers, Family psychology, Referral and Consultation, Decision Making
- Abstract
Objective To gain an in-depth understanding of the motivations,patterns,and related factors in family decision-making regarding the referral of terminal patients in tertiary hospitals. Methods Using purposive sampling,terminal patients and their family members from three tertiary hospitals in Beijing were selected as subjects.Semi-structured interviews were conducted,and the interview data were subjected to thematic analysis. Results Following the saturation principle,a total of 11 patients and 15 family members were included.The interview data were organized and analyzed,yielding six major themes:decision premises,decision patterns,family support,support from the referring hospital's medical team,referral channel conditions,and involvement of volunteer teams and social support.Based on these findings,a flowchart illustrating the family decision-making process for the referral of terminal patients was constructed. Conclusions The study provides a comprehensive analysis of various factors influencing family decision-making in the referral of terminal patients in tertiary hospitals.The results underscore the significance of internal and external factors,emphasizing the integrated impact of decision patterns,family support,medical team support,referral channel conditions,and the involvement of volunteer teams and social support.The research offers profound insights into improving the referral process for terminal patients and enhancing the quality of family decision-making.It provides valuable recommendations for future improvements in medical services and decision support.
- Published
- 2024
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- View/download PDF
10. KAIP COVID-19 KARANTINAS PAKEITĖ ORIĄ KASDIENYBĘ SLAUGOS LIGONINĖJE.
- Author
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BUČIUS, ŽYGIMANTAS
- Subjects
COVID-19 pandemic ,MEDICAL personnel ,HOSPITAL medical staff ,SOCIAL work research ,TERMINALLY ill - Abstract
Copyright of Social Work. Experience & Methods / Socialinis Darbas: Patirtis ir Metodai is the property of Vytautas Magnus University, Faculty of Social Sciences and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2020
- Full Text
- View/download PDF
11. Grupo focal com residentes de um programa de residência multiprofissional: percepção sobre suas dificuldades e recursos para lidar com a morte na atuação em contexto hospitalar
- Author
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Lupi, Jaqueline Basilio, Almeida, Maria Helena Morgani de, Kojima, Helga Juri, and Batista, Marina Picazzio Perez
- Subjects
Death ,Hospital ,Pacientes terminais ,Terminal patients ,Profissionais de saúde ,Morte ,Health professionals - Abstract
Introduction: The difficulty of addressing death in the hospital context can bring suffering to the health professional. Objective: Comprehend the health residents' perspective on managing death in the hospital context in the practical performance in a Multiprofessional Resident's Program. Methodology: This is qualitative, descriptive, and exploratory research. Ten health residents participated in the survey. The data collection happens by conducting one focus group in two sessions. This was audio-recorded, transcribed, and analyzed in its database, through thematic analysis. Results: The thematic analysis found two categories: a) Residents suffering in the hospital performance with patients in the terminality and death process; b) Coping resources to deal with terminality and death - which were identified as much as in the list of resources already used by residents and in the suggestions given about resources to be implemented within the residence scope. Conclusions: The study has the potential to support residents' practice and favor the strategy implementations to enhance the residents' programs. Introdução: A dificuldade de falar sobre a morte no contexto hospitalar pode trazer sofrimento para o profissional de saúde. Objetivo: Conhecer a perspectiva de residentes sobre o lidar com a morte em contexto hospitalar em sua atuação prática em um Programa de Residência Multiprofissional. Metodologia: Pesquisa qualitativa, descritiva e exploratória. Dez residentes participaram da pesquisa. A coleta de dados ocorreu pela condução de um grupo focal com duas sessões. Este foi gravado em áudio, transcrito e analisado em seu conteúdo, por meio de análise temática. Resultados: A análise temática encontrou duas categorias: a) Sofrimento dos residentes na atuação hospitalar com pacientes no processo de terminalidade e morte; b) Recursos para lidar com o processo de terminalidade e morte - o que se identificou, tanto na relação dos recursos já utilizados pelos residentes, quanto de sugestões dadas por eles sobre recursos a serem implementados no âmbito da residência. Conclusões: O estudo tem potencial para auxiliar residentes em sua prática e favorecer a implementação de estratégias para aprimoramento de programas de residências.
- Published
- 2022
12. HETERO/AUTO/-NOMIJA U KONTEKSTU SAMO/ DETERMINIZMA BIOLOŠKIH OPORUKA.
- Author
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Vuletić, Suzana, Karačić, Silvana, and Pelčić, Gordana
- Abstract
A contemporary view of death is characterized by a sequence of uncertain and difficult questions arising from the clinical context, out of the legal and bioethical domains of taking difficult existential decisions related to the last moments of human life. This step requires a full rationality of free autonomy, which can be significantly disturbed by the loss of mental ability, conditioned by certain illnesses in certain moments. Therefore, patients should have a legislative opportunity to clearly state their wishes regarding the required treatment or the withdrawal in previously prepared guidelines of anticipated medical dispositions of the biological testaments for (non) treatment or the appointment of a surrogate representative of treatment choice at the terminal phase, in case of limited decision-making ability. The signed biological will could greatly contribute to a dignified mode of dying, consistent with the choice of autonomous patient's end-of-life care values, which can often enter into collision from a heteronomous perspective of a surrogate decision-maker. With the biological will we could overwhelmingly overcome the difficulties of the clinical dilemma of existential decisions: Physicians would be more reliant on choosing care in urgent health care plans in crisis situations, the patients could provide the assurance of their self-determination while the surrogate rulers could be largely released from the pressure of responsibility. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
13. Realizing the Wishes of Terminal Patients: Caregiving Transport Efforts for End of Life in the Kuji Area of Japan
- Author
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Toru Yoshida, Yukihiro Minagawa, Hidenobu Kawamura, Chihiro Tono, Mizunori Yaegashi, Kasumi Nitta, and Koki Otsuka
- Subjects
Emergency transport ,business.industry ,medicine.medical_treatment ,Brief Report ,education ,Home care nursing ,instruction of physician ,Do Not Resuscitate Order ,medicine.disease ,cardiopulmonary resuscitation ,do not resuscitate orders ,terminal patients ,Terminal (electronics) ,Patient information ,Medicine ,Cardiopulmonary resuscitation ,Medical emergency ,medicine.symptom ,business ,do-not-attempt-resuscitation ,health care economics and organizations ,Confusion - Abstract
Background: There are some restrictions in Japan regarding end-of-life care. For example, only physicians can legally issue death certificates. By law, ambulance staff members perform cardiopulmonary resuscitation (CPR) for all patients with cardiopulmonary arrest (CPA). Therefore, it is difficult to transport patients to hospitals without CPR, even in cases of terminal patients with do-not-attempt-resuscitation (DNAR) order. Furthermore, there is no 24-hour home care nursing system in our area. Therefore, terminal patients are unable to spend their last moments at their home in the Kuji area. Objective: To design a system in which terminal patients who wish to spend their final moments at their home can be transported to the hospital without CPR after at-home CPA and a system to avoid confusion between ambulance staff and family members using instructions provided by the physician. Setting/Subjects: The subjects were terminal patients with DNAR order who wanted to stay at home. The instruction to not perform CPR after CPA was created as a document by physicians. Patient information was shared with the fire department; patients were transported to our hospital without CPR after at-home CPA. Results: In total, 26 patients died during the study period; eight received emergency transport to the hospital without CPR after CPA. CPR was not performed for any patient. Conclusion: A system transporting terminal patients without CPR after CPA was necessary in our area. This instruction allows terminal patients to spend their last moments where they wish and avoids unwanted CPR and troubles after CPA.
- Published
- 2021
14. La mentira, una reivindicación moral. De cómo la mentira es útil en un paciente en etapa terminal.
- Author
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Duarte-Mote, J. and Sánchez-Rojas, G.
- Abstract
The lie is considered a moral flaw, always has a negative connotation. Nevertheless its use is very extended from the biological point of view as mechanism of survival and in the human being, even from the point of view of social integration. Self-deception, considered a supreme manifestation of the human use of lies, is closely related to the generation of optimism and hope, people with problems to integrate self-deception have more frequently pathological alterations in mood, especially depression. The advantages and disadvantages of the use of lying to promote self-deception in patients with terminal illness are analyzed from some ethical-philosophical points of view. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
15. ¿LA SEDACIÓN PALIATIVA ACORTA LA VIDA DE LOS PACIENTES?
- Author
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de la Luz Casas-Martínez, María and Mora-Magaña, Ignacio
- Abstract
Respect for human life is central to medicine. In terminal patients, refractory symptoms are a niche of palliative sedation. This paper identifies, based on scientific evidence, the survival in patients who received palliative sedation as compared to those who didn’t. We conducted a search for systematic reviews from 2000 to 2016, which were methodologically analyzed, and the results were then compared. For methodological reasons, meta-analysis could not be performed. It is concluded that terminal palliative sedation does not shorten patients’ lives. The implementation of the principle of double effect related to the possible shortening of life was reformulated; the unwanted evil is the loss of consciousness. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
16. Emociones y estrategias de afrontamiento del personal de salud ante los cuidados del final de la vida. Revisión Bibliográfica.
- Author
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Cepeda Placis, Eduard, Malet Martínez, Marta, Planas Mas, Joan, and Genís, Marcel Vicente
- Subjects
PSYCHOLOGICAL adaptation ,EMOTIONS ,JOB stress ,MEDICAL personnel ,MEDLINE ,ONLINE information services ,PROFESSIONS ,TERMINAL care ,SYSTEMATIC reviews ,PSYCHOLOGY - Abstract
Copyright of Agora de Enfermeria is the property of Agora de Enfermeria SRL and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2017
17. Problems and alarms of the patient’s relatives served in the bulgarian hospices
- Author
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S. S. Alexandrova and G. G. Grantcharova
- Subjects
bulgaria ,hospices ,terminal patients ,problems and alarms of relatives ,Medicine (General) ,R5-920 - Abstract
Purpose: The analysis of problems and alarms of the patient’s relatives served in hospices and the services rendered to it.Materials and Methods: Questioning of 190 members of the personnel, 216 relatives and the close patients who were in 29 hospices and 5 branches of the palliative help of Bulgaria in 2008.Results: There is no practice of granting conditions for stay of relatives and maintenance of contacts to relatives after death of the patient in the Bulgarian hospices. Relatives underline absence of free from work of a member of a family and impossibility of reception of long holiday for service of the patient as the basic problems. The basic alarms are connected with a condition of the patient and necessary measures for its service.Summary: Wide informing of the population on various forms hospice’s help and a special attention of the medical personnel to problems of health of relatives are necessary.
- Published
- 2010
18. Barriers to Informed Refusal in Korea
- Author
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Claire Junga Kim
- Subjects
terminal care ,medicine.medical_specialty ,Health (social science) ,Health Policy ,Family medicine ,treatment refusal ,medicine ,informed refusal ,Informed refusal ,Psychology ,terminal patients ,life-sustaining treatment - Abstract
In South Korea, the legal and cultural environment keeps terminally ill patients from making an informed refusal to a treatment the discontinuation of which can cause death. Act on Decisions on Life-Sustaining Treatment for Patients in Hospice and Palliative Care or at the End of Life allows several forms of informed refusal, but it is not enough. There is no explicit guarantee, at least under this law, of the right to refuse a treatment given during a period that has not reached an end-of-life process prescribed in the law. Dori, which the family of a terminal patient feels obligated to follow, makes them commit to doing what they believe is right as a family member without asking the patient’s intention. Because it reduces the family’s motivation to have a difficult talk about death and end-of-life with the patient, the patient is deprived of an opportunity to make a decision based on accurate information. In making a decision for the patient while patient is excluded, the family often ends up choosing a safe decision that puts physical survival first. In conclusion, the culture and the culturally influenced law are making it impractical for terminal patients to make an informed refusal.
- Published
- 2021
19. Terminal patients in Belgian nursing homes: a cost analysis.
- Author
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Simoens, Steven, Kutten, Betty, Keirse, Emmanuel, Berghe, Paul, Beguin, Claire, Desmedt, Marianne, Deveugele, Myriam, Léonard, Christian, Paulus, Dominique, and Menten, Johan
- Subjects
TERMINALLY ill ,NURSING care facilities ,COST analysis ,MEDICAL care costs ,RETROSPECTIVE studies - Abstract
Policy makers and health care payers are concerned about the costs of treating terminal patients. This study was done to measure the costs of treating terminal patients during the final month of life in a sample of Belgian nursing homes from the health care payer perspective. Also, this study compares the costs of palliative care with those of usual care. This multicenter, retrospective cohort study enrolled terminal patients from a representative sample of nursing homes. Health care costs included fixed nursing home costs, medical fees, pharmacy charges, other charges, and eventual hospitalization costs. Data sources consisted of accountancy and invoice data. The analysis calculated costs per patient during the final month of life at 2007/2008 prices. Nineteen nursing homes participated in the study, generating a total of 181 patients. Total mean nursing home costs amounted to 3,243 € per patient during the final month of life. Total mean nursing home costs per patient of 3,822 € for patients receiving usual care were higher than costs of 2,456 € for patients receiving palliative care ( p = 0.068). Higher costs of usual care were driven by higher hospitalization costs ( p < 0.001). This study suggests that palliative care models in nursing homes need to be supported because such care models appear to be less expensive than usual care and because such care models are likely to better reflect the needs of terminal patients. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
- View/download PDF
20. Perception and Attitude towards Breaking Bad News in the Saudi Population.
- Author
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Alrukban, Mohammed O., Bahnassy, Ahmad, Albadr, Badr O., Alshuil, Mussab, Aldebaib, Abulrahman, Algannam, Tamim, Alhafaf, Faisal, Almohanna, Abdulaziz, Alfifi, Tariq, Alshehri, Abdullah, and Alshahrani, Muhannad
- Subjects
- *
PATIENTS' attitudes , *SENSORY perception , *BAD news , *STATISTICAL sampling , *CHI-squared test - Abstract
Breaking bad news is considered one of a physician's most difficult duties. Discomfort and uncertainty associated with breaking bad news, along with a lack of proper training, may lead physicians to emotionally disengage from patients. The aims of this study were to evaluate he patients' beliefs of bad news and heir perception and attitude towards breaking bad news. A cross sectional community based survey was conducted in Riyadh city during the month of April, 2009. A representative sample was selected using a stratified random sampling technique. A validated self administrative questionnaire in Arabic language was designed and used for data collection. Chi Square test was used to find the association between two qualitative variables. P- Value was set to be < 0.05 throughout the study. The study included 1086 participants. Half of the samples were male and 46% of them were between 30-39 years old. Almost 75% of them defined bad news as related to the diseases that are highly fatal. Only 50% of the participants had a satisfactory experience in the method of breaking bad news. Around 81% of participants insist on being informed about any news related to their health. Educational level seems to be one of the influencing factors (p<0.001). Most of the participants (71.1%) want detailed information about the disease. Most of the patients (i.e. 88.2%) appreciates more those who tell them the truth. The study gave an overview of Saudi Citizens' perceptions towards breaking bad news. In general, participants had a good understanding of the situation and respect honesty. Medical professionals are urged to learn more about the importance and the techniques of breaking bad news to gain patient's satisfaction and build sound doctor-patient relationships. [ABSTRACT FROM AUTHOR]
- Published
- 2012
21. La metáfora raíz como categoría de análisis en las representaciones de los cuidados paliativos.
- Author
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Barragán Solís, Anabella
- Subjects
- *
PALLIATIVE treatment , *ALGOLOGISTS , *SUFFERING , *MENTAL imagery , *PAIN , *QUALITATIVE research - Abstract
Root metaphor analysis as a category of representations of palliative care. In December 2009, thirty four medical majors enrolled at the School of Medicine of the Instituto Politécnico Nacional (National Polytechnic Institute) were surveyed to find out about their mental images on palliative care. All of them were already attending classes on Medicine and Healthcare taught by an algologist working at the Clinic for pain and palliative care at the Hospital General de México. This article's intention is to underline the importance and necessity of using qualitative research methodology to gather in-depth understanding that leads to core medical beliefs regarding pain and suffering. This opens up the possibility of establishing metaphorical categories for analysis. The results show the need to develop appropriate strategies to educate both medical doctors and interns regarding their beliefs, thus providing new meanings to their mental representations so as to provide better treatment(s) to their terminal patients when dealing with suffering and pain. A strategy that could also be extended to the patients' next of kin. [ABSTRACT FROM AUTHOR]
- Published
- 2011
22. Influenza Vaccination for Terminally Ill Cancer Patients Receiving Palliative Care: A Preliminary Report
- Author
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Sasson, Menahem, Mandelboim, Michal, and Shvartzman, Pesach
- Subjects
- *
INFLUENZA vaccines , *TERMINALLY ill , *CANCER patients , *PALLIATIVE treatment , *CELLULAR immunity , *IMMUNE response - Abstract
Abstract: Context: Cancer patients have impaired humoral and cellular immunity, and are more susceptible to infections; their immunological response is expected to be less effective than that of healthy people. Objectives: To assess the immune response to influenza vaccine in terminally ill cancer patients in a home palliative care unit. Methods: During the fall of 2000–2001, 2005–2006, and 2006–2007, terminally ill cancer patients treated by our home palliative care unit were vaccinated against influenza with Vaxigrip®. Blood samples were taken before and four weeks after vaccination. Influenza immunological response parameters accepted in the literature were calculated. Results: Eighteen terminal cancer patients were vaccinated against influenza strains predicted for that year; 13 completed the study. The other five patients died within less than a month from the time of vaccination. The serum protection rate increased from 15.4% before to 61.5% after vaccination, and the serum response rate was 53.8% for all the three strains of vaccination. Mean-fold increase was 24.9 for influenza A-H1N1, 15.4 for influenza A-H3N2, and 2.8 for influenza B. Geometric mean titer was increased for influenza A-H3N2 from 8.3 before vaccination to 159.4 after vaccination; for influenza A-H1N1 from 5.2 to 124.3, and for influenza B from 5.7 to 44.6. Conclusion: The results indicate that influenza vaccination is probably effective and can be offered to terminally ill cancer patients with a life expectancy of about three months in a home care palliative care unit. [Copyright &y& Elsevier]
- Published
- 2011
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23. The Costs of Treating Terminal Patients
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Simoens, Steven, Kutten, Betty, Keirse, Emmanuel, Berghe, Paul Vanden, Beguin, Claire, Desmedt, Marianne, Deveugele, Myriam, Léonard, Christian, Paulus, Dominique, and Menten, Johan
- Subjects
- *
PALLIATIVE treatment , *MEDICAL care costs , *TERMINAL care , *LITERATURE reviews , *COMPARATIVE studies , *COST effectiveness - Abstract
Abstract: Context: In addition to the effectiveness of terminal care, policy makers and health care payers are concerned about the costs of treating terminal patients in a context of spiraling health care costs and limited resources. Objectives: This article aims to review the international literature on the costs of treating terminal patients. Methods: Studies were identified by searching PubMed, Centre for Reviews and Dissemination databases, Cochrane Database, and EconLit, up to April 2009. Studies were included that contrasted costs in different health care settings and that compared palliative care with alternative therapeutic approaches for terminal patients. Results: The few studies that focused on treatment of terminal patients across health care settings showed that hospitalization costs represent the principal component of palliative care costs. In the hospital setting, palliative care tends to be cheaper than usual care or care delivered in units other than the palliative care unit. Palliative care costs depend on patient characteristics, such as diagnosis, status of disease, and age. Also, different care models appear to target different patient groups and offer varied packages of services. Finally, there is some evidence pointing to cost advantages of palliative care at home as compared with alternative care models, although this needs to be corroborated by further research. Conclusion: Different approaches to deliver palliative care are not substitutes of each other and, thus, have different costs. From a cost perspective, hospitals need to pay attention to admitting patients to the palliative care unit at the right time. [Copyright &y& Elsevier]
- Published
- 2010
- Full Text
- View/download PDF
24. Una propuesta para la creacón de unidades de cuidados paliativos en México.
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Salazar, María de Lourdes Salomón, Cruz, Otón Gayosso, Reyes, Carlos Lenin Pleigo, Ruiz, Eduardo Zambrano, Escobedo, Patricia Pérez, and Velasco, Jorge Aldrete
- Subjects
- *
CHRONIC diseases , *QUALITY of life , *THERAPEUTICS , *PALLIATIVE treatment , *MEDICAL care , *PATIENTS - Abstract
In present days we face specific care requirements to patients with advanced, chronic-degenerative or terminal diseases. Its prevalence has increased in last two decades, mainly in geriatric population. Palliative care to patients in terminal phase concept fights for insert in public and private care systems. Independently of its clinical characteristics and care needs, its ubiquity in every area of every nation's health care system is one of its major aspects; if there aren't specific measures to respond, health care resources use (mostly in hospital) will increase, and economic, family and institutional costs will be so high without giving patients a better quality of life. These force health care systems to implement coverage and service programs to correctly give palliative care assistance to terminal patients. [ABSTRACT FROM AUTHOR]
- Published
- 2008
25. Taking care of terminally-ill patients at home -- the economic perspective revisited.
- Author
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Tamir, Oren, Singer, Yoram, and Shvartzman, Pesach
- Subjects
- *
TERMINAL care , *TERMINALLY ill , *LONG-term health care , *CRITICAL care medicine , *MEDICAL care , *CANCER patients - Abstract
End-of-life care can be delivered in a variety of settings, whereby the majority of terminally-ill cancer patients prefer to die at home. The aim of our study is to evaluate health services utilisation during the last year of life, and to compare terminally ill patients who have received home-specialised palliative care services (HSPCS) with patients who died receiving home non-specialised palliative care services. The study included 120 and 515 patients, respectively, who died between 1999-2000. Age and gender distribution were similar in both groups. During the last year of life, mean health services cost per person among the HSPCS group was lower by more then 30% ( P<0.005). The median cost per patient was as low as one-fifth in the last month. Men and the older age group of 65 and above, cost significantly less compared with women and younger patients, respectively, regardless of provider setting. The main differences in health services utilisation were in hospitalisations and oncology treatments ( P < 0.01 and P < 0.05, respectively). [ABSTRACT FROM AUTHOR]
- Published
- 2007
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- View/download PDF
26. TERMINAL SEDATION: BETWEEN PAIN RELIEF, WITHHOLDING TREATMENT AND EUTHANASIA.
- Author
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Gevers, J. K. M.
- Abstract
In the last five to ten years there has been increasing debate on terminal sedation, a medical practice that is difficult to place between other decisions at the end of life, like alleviating pain, withholding treatment, and (in jurisdictions where this is allowed) euthanasia or physician-assisted suicide. Terminal sedation is the administration of sedative drugs with the aim to reduce the consciousness of a terminal patient in order to relieve distress. It is frequently accompanied by the withdrawal (or withholding) of life-sustaining interventions, such as hydration and nutrition. It is typically a measure of the last resort, to be considered in situations where all other measures to reduce pain and suffering have failed. While similar to palliative measures as far as the sedation itself is concerned, withholding of hydration and nutrition brings terminal sedation into the realm of non treatment decisions. At the same time, to the extent that the combination of these two measures may shorten the patient's life, the practice may be easily associated with euthanasia. It is no surprise therefore, that terminal sedation has been called (and has been disqualified as) 'slow euthanasia' or 'backdoor euthanasia'. This paper addresses the question how terminal sedation may be looked upon from a legal point of view. Is it indeed a disguised form of euthanasia, or should it be considered as a practice in its own right? In the latter case, what does it imply in legal terms, and under which conditions and safeguards could it be legally justified? To answer these questions, I will look first at the different clinical realities that may be brought under the heading 'terminal sedation'. Then I will deal with its two components -- sedation on the one hand, and withholding artificial feeding on the other -- in a legal perspective. The paper ends with conclusions on terminal sedation as a whole. [ABSTRACT FROM AUTHOR]
- Published
- 2006
27. How People Die in Hospital General Wards: A Descriptive Study
- Author
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Toscani, Franco, Di Giulio, Paola, Brunelli, Cinzia, Miccinesi, Guido, and Laquintana, Dario
- Subjects
- *
HOSPICE care , *PALLIATIVE treatment , *RESPIRATORY diseases , *PAIN management - Abstract
Abstract: To describe how patients die in hospital, 370 patients (age >18 years; in hospital for>24 hours) who died on the general wards of 40 Italian hospitals were assessed. Differences between patients whose death was expected and patients whose death was unexpected were evaluated. Data on treatments and care in proximity of death were collected after interviewing the nurse responsible for the patient within 72 hours of the patient''s death, and from clinical and nursing records. For 58% of patients, death was highly expected. Symptom control was inadequate for the most severely ill patients: 75% experienced at least one “severe” symptom (42% pain and 45% dyspnea). Nurses tended to judge patients'' global care as “good” or “very good” (76%), in spite of the persistence of symptoms and the scant use of analgesics. Despite some encouraging signs of sensitivity to end-of-life problems, acute inpatient institutions in Italy still deal inadequately with the needs of dying persons. [Copyright &y& Elsevier]
- Published
- 2005
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28. Contribuições do cirurgião dentista na equipe de cuidados paliativos numa perspectiva interdisciplinar
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Souza, Ianderlei Andrade, Maia, Ana Carolina Delsarto Azevedo, and Silva, Rudval Souza da
- Subjects
InformationSystems_GENERAL ,Dentistry ,Palliative Care ,Terminal Patients ,MathematicsofComputing_GENERAL ,Pacientes Terminais ,Cuidados Paliativos ,Odontología ,Pacientes con Enfermedades Terminales ,Odontologia ,GeneralLiterature_MISCELLANEOUS - Abstract
Providing quality of life for patients with a disease that cannot be cured is a complex task that requires interdisciplinary planning with multiprofessional action. Objective: To describe the contributions of the dental surgeon to the palliative care team from an interdisciplinary perspective. Method: Search in the Virtual Health Library Brazil and selected the databases Medeline, LILACS, BBO and BDENF from 2013 to 2018. Results: In the search in the VHL were found 247 articles, after placing the filter of MEDLINE databases, LILACS, BDENF and BBO were obtained 232. When the filter of the year was placed, restricting the searches between 2013 and 2018, 69 articles were found. Conclusion: the findings underscored the importance of dentistry in the multidisciplinary palliative care team, considering that oral reactions that cause pain and difficulty feeding justify the participation of the dentist in the team for better patient comfort. Brindar calidad de vida a los pacientes con una enfermedad que no se puede curar es una tarea compleja que requiere una planificación interdisciplinaria con acción multiprofesional. Objetivo: Describir las contribuciones del cirujano dental al equipo de cuidados paliativos desde una perspectiva interdisciplinaria. Método: realizó una búsqueda en la Biblioteca Virtual de Salud de Brasil y seleccionó las bases de datos Medeline, LILACS, BBO y BDENF de 2013 a 2018. Resultados: En la búsqueda en la BVS se encontraron 247 artículos, luego de colocar el filtro de las bases de datos MEDLINE, LILACS, BDENF y BBO se obtuvieron 232. Cuando se colocó el filtro del año, restringiendo las búsquedas entre 2013 y 2018, se encontraron 69 artículos. Conclusión: los hallazgos subrayaron la importancia de la odontología en el equipo multidisciplinario de cuidados paliativos, considerando que las reacciones orales que causan dolor y dificultad para alimentarse justifican la participación del dentista en el equipo para una mejor comodidad del paciente. Proporcionar qualidade de vida ao paciente com uma doença fora de possibilidade de cura é uma tarefa complexa, que requer um planejamento interdisciplinar, com atuação multiprofissional. Objetivo: descrever contribuições do cirurgião dentista na equipe de cuidados paliativos numa perspectiva de atuação interdisciplinar. Método: Busca na Biblioteca Virtual em Saúde Brasil e selecionadas as bases de dados Medeline, LILACS, BBO e BDENF no período de 2013 a 2018. Resultados: Na busca na BVS foram encontrados 247 artigos, após colocar o filtro das bases de dados MEDLINE, LILACS, BDENF E BBO foi obtido 232. Quando se colocou o filtro do ano, restringindo as pesquisas entre 2013 a 2018 foram encontrados 69 artigos. Conclusão: os achados ressaltaram a importância da odontologia na equipe multidisciplinar de cuidados paliativos, considerando que as reações bucais que provocam dor e dificuldade de alimentação, justificam a participação do cirurgião dentista na equipe para melhor conforto do paciente.
- Published
- 2020
29. Inadequacies of care in far advanced cancer patients: a comparison between home and hospital in Italy.
- Author
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Toscani, Franco and Mancini, Claudio
- Abstract
A previous survey of patients treated by our palliative care service showed that most patients with advanced cancer wished to be cared for at home. This is in contrast with the fact that these patients were increasingly frequently hospitalized because of their belief that a hospital, in spite of its shortcomings, is the place where medical and nursing care are more advanced.A prospective survey was carried out on 120 advanced cancer patients under the palliative care service of the Cremona Hospital, Italy. The survey recorded all the inadequacies of their care from the time patients were seen until death occurred. Five times as many inadequacies occurred in hospital than at home (an average of 4.4 ± 5.0 every 100 days against 0.8 ± 2.0 every 100 days; p < 10E -6). The most frequent inadequacies of care at home were caused by both narcotic and drug misuse, and unjustified alterations in the therapy; in the hospital they were related to therapeutic regimes and failure to report new symptoms. These data support the view that general hospital care in Italy today does not necessarily provide the best solutions to the problems of the terminally ill patient. A palliative care programme should include the option of organized home care. [ABSTRACT FROM PUBLISHER]
- Published
- 1990
- Full Text
- View/download PDF
30. Afrontamiento de la muerte por parte del personal de enfermería
- Author
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Universidade da Coruña. Facultade de Enfermaría e Podoloxía, Bellón Lama, Andrea, Universidade da Coruña. Facultade de Enfermaría e Podoloxía, and Bellón Lama, Andrea
- Abstract
[Resumen] La muerte podría definirse como el fin de la vida. El desenlace de un cuerpo vivo que se había creado a partir del nacimiento. Las personas conviven con el miedo a la muerte, pero los profesionales sanitarios están continuamente enfrentados a la muerte de pacientes y en contacto continuo con ella. Una de las funciones de los profesionales de enfermería es velar por las necesidades de los pacientes en situación terminal. La muerte, como fenómeno inevitable, afecta a actitudes y comportamientos incidiendo en la calidad de los cuidados del profesional de enfermería. El afrontamiento del dolor y la muerte genera un gran impacto en el equipo de enfermería, produciendo impotencia, frustración y pena, que pueden llegar a causar el síndrome de Burnout y la fatiga de compasión. Por ello, es necesario, que los profesionales dispongan de recursos que les permitan afrontar óptimamente las situaciones de impacto emocional. El objetivo principal del presente estudio, es evaluar el nivel de afrontamiento del personal de enfermería ante la muerte, con el fin de mejorar la relación terapéutica y disminuir el estrés de los profesionales. Es una investigación cualitativa de carácter fenomenológico, ya que, se pretende recabar datos acerca de las experiencias vividas por el personal de enfermería con pacientes moribundos. La investigación se llevará a cabo en las unidades de Medicina Interna (MI) del EOXI de Ferrol. La recogida de datos será mediante entrevistas abiertas, hasta alcanzar la saturación., [Resumo] A morte podría definirse como o fin da vida. O desenlace dun corpo vivo creado a partir do nacemento.As persoas conviven co a norte, pero or profesionais sanitarios están continuamente enfrontados a morte dos seus pacientes, e en contacto contínuo con ela. Unha das función dos profesionais de enfermería é velar polas necesidades dos pacientes en situación terminal. A morte, como fenómeno inevitable, afecta a actitudes e comportamentos incidindo na calidade dos coidados do profesional de enfermería. O afrontamento da dor e a morte xera un gran impacto no equipo de enfermería, producindo impotencia, frustración e pena, que poden chegar a causar o síndrome de Burnout e a fatiga de compaixón. Por iso, é necesario, que os profesionais dispoñan de recursos que lles permitan afrontar óptimamente as situacións de impacto emocional. O obxectivo principal do presente estudo, é avaliar o nivel de afrontamento do persoal de enfermería ante a morte, co fin de mellorar a relación terapéutica e diminuír a tensión dos profesionais. É unha investigación cualitativa de carácter fenomenolóxico, xa que, preténdese solicitar datos acerca das experiencias vividas polo persoal de enfermería con pacientes moribundos. A investigación levarase a cabo nas unidades de Medicina Interna do EOXI de Ferrol. A recollida de datos será mediante entrevistas abertas, ata alcanzar a saturación., [Abstract] Death can be defined as the end of the life. The ending of a living body that had been created from the birth. People cope with the fear of death, but health care professionals face every day their patients’ death and are in contact with this situation. One of their roles is to look out for the needs of the patients in their terminal. Death, as an unavoidable phenomenon, concerns attitudes and behaviors and has an impact in the quality of health care professionals’ work. Confronting pain and death causes a great impact in nursing staff and brings about depression, frustration and sadness. These feelings could be at the origin of the Burnout syndrome and the compassion fatigue. For this reason, resources that shows them how to cope with emotional situations must be available for nursing staff must. The main objective of the present study is to assess the level of nursing staff’s confrontation faced with death, in order to improve the therapeutic relationship and to reduce the professionals stress. This is a qualitative research with a phenomenological nature, since it is pretended to collect data about the experiences lived by the nursing staff with patients in their terminal. The research will be carried out in the Internal Medicine service (MI) of the Ferrol EOXI. Data will be collected through open interviews until the saturation.
- Published
- 2018
31. HETERO/AUTO/-NOMIJA U KONTEKSTU SAMO/DETERMINIZMA BIOLOŠKIH OPORUKA
- Author
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Suzana Vuletić, Silvana Karačić, Gordana Pelčić, and Jurić, Hrvoje
- Subjects
pravo na samoodređenje ,terminalni bolesnici ,surogatni odlučitelji ,anticipirane medicinske naredbe/odredbe punomoći ,unaprijed izrečene smjernice za postupanje skrbi na kraju života ,biološke oporuke ,media_common.quotation_subject ,Context (language use) ,Rationality ,pre-established guidelines for end-of-life care ,Existentialism ,pravo na samoodređenje, terminalni bolesnici, surogat odlučitelji, anticipirane medicinske naredbe/odredbe punomoći, unaprijed izrečene smjernice za postupanje skrbi na kraju života, biološke oporuke ,terminal patients ,INTERDISCIPLINARNA PODRUČJA ZNANOSTI. Integrativna bioetika (prirodne, tehničke, biomedicina i zdravstvo, biotehničke, društvene, humanističke znanosti) ,INTERDISCIPLINARY AREAS OF KNOWLEDGE. Integrative Bioethics (Natural, Technical, Biomedical and Healthcare, Social and Humanistic Sciences) ,Health care ,anticipated medical provisions ,media_common ,business.industry ,Perspective (graphical) ,lcsh:Law ,Bioethics ,biological testaments/will ,right to self-determination ,surrogate decision-makers ,Dilemma ,Psychology ,business ,Social psychology ,Autonomy ,lcsh:K ,autonomija, heteronomija, pravo na samoodređenje, terminalni bolesnici, surogat odlučitelji, biološke oporuke, anticipirane medicinske odredbe, skrb na kraju života - Abstract
Suvremeni pogled na umiranje obilježen je nizom neizvjesnih i teških pitanja koja proizlaze iz kliničkoga konteksta, pravne i bioetičke domene donošenja teških egzistencijalnih odluka vezanih uz posljednje životne trenutke, a napose s obzirom na medicinske intervencije izbora “skrbi na kraju života”. Taj korak zahtijeva punu racionalnost slobodne autonomije, koja u određenim trenucima može biti znatno narušena gubitkom fizičkih i/li mentalnih sposobnosti, uvjetovanih pojedinim bolestima. Stoga bi bolesnici trebali imati zakonodavnu mogućnost jasno priopćiti svoje želje u vezi sa zahtijevanim tretmanom ili njegovim distanazijskim povlačenjem u unaprijed pripremljenim smjernicama anticipiranih medicinskih odredbi bioloških oporuka za (ne)postupanje ili imenovanje surogatnog opunomoćenika kao zastupnika u (ne)izboru liječenja u slučaju ograničene sposobnosti odlučivanja. Potpisana biološka oporuka mogla bi uvelike pridonijeti pozitivno dostojanstvenijom modusu samodeterminiranog načina umiranja, poštujući “kulturu života”, sukladnog onom koji je odabir autonomnih pacijentovih vrijednosti skrbi na kraju života, koji često mogu ući u koliziju iz heteronomne perspektive surogatnih odlučitelja. Biološkim bi se oporukama višestruko nadvladale i teškoće kliničkih dilema egzistencijalnih odluka: liječnicima bi se olakšao odabir skrbi u hitnim planovima zdravstvene njege u kriznim situacijama; pacijentima bi pružale jamstvo provedbe njihova samoodređenja; dok bi surogatne odlučitelje uvelike oslobodili pritiska odgovornosti., A contemporary view of death is characterized by a sequence of uncertain and difficult questions arising from the clinical context, out of the legal and bioethical domains of taking difficult existential decisions related to the last moments of human life. This step requires a full rationality of free autonomy, which can be significantly disturbed by the loss of mental ability, conditioned by certain illnesses in certain moments. Therefore, patients should have a legislative opportunity to clearly state their wishes regarding the required treatment or the withdrawal in previously prepared guidelines of anticipated medical dispositions of the biological testaments for (non) treatment or the appointment of a surrogate representative of treatment choice at the terminal phase, in case of limited decision-making ability. The signed biological will could greatly contribute to a dignified mode of dying, consistent with the choice of autonomous patient’s end-of-life care values, which can often enter into collision from a heteronomous perspective of a surrogate decision-maker. With the biological will we could overwhelmingly overcome the difficulties of the clinical dilemma of existential decisions: Physicians would be more reliant on choosing care in urgent health care plans in crisis situations, the patients could provide the assurance of their self-determination while the surrogate rulers could be largely released from the pressure of responsibility
- Published
- 2018
32. Afrontamiento de la muerte por parte del personal de enfermería
- Author
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Bellón Lama, Andrea, Darriba Rodríguez, Pilar, and Universidade da Coruña. Facultade de Enfermaría e Podoloxía
- Subjects
Death ,Pacientes terminais ,Muerte ,Terminal patients ,Afrontamento ,Morte ,Enfermería ,Nursing ,Pacientes terminales ,Afrontamiento - Abstract
[Resumen] La muerte podría definirse como el fin de la vida. El desenlace de un cuerpo vivo que se había creado a partir del nacimiento. Las personas conviven con el miedo a la muerte, pero los profesionales sanitarios están continuamente enfrentados a la muerte de pacientes y en contacto continuo con ella. Una de las funciones de los profesionales de enfermería es velar por las necesidades de los pacientes en situación terminal. La muerte, como fenómeno inevitable, afecta a actitudes y comportamientos incidiendo en la calidad de los cuidados del profesional de enfermería. El afrontamiento del dolor y la muerte genera un gran impacto en el equipo de enfermería, produciendo impotencia, frustración y pena, que pueden llegar a causar el síndrome de Burnout y la fatiga de compasión. Por ello, es necesario, que los profesionales dispongan de recursos que les permitan afrontar óptimamente las situaciones de impacto emocional. El objetivo principal del presente estudio, es evaluar el nivel de afrontamiento del personal de enfermería ante la muerte, con el fin de mejorar la relación terapéutica y disminuir el estrés de los profesionales. Es una investigación cualitativa de carácter fenomenológico, ya que, se pretende recabar datos acerca de las experiencias vividas por el personal de enfermería con pacientes moribundos. La investigación se llevará a cabo en las unidades de Medicina Interna (MI) del EOXI de Ferrol. La recogida de datos será mediante entrevistas abiertas, hasta alcanzar la saturación. [Resumo] A morte podría definirse como o fin da vida. O desenlace dun corpo vivo creado a partir do nacemento.As persoas conviven co a norte, pero or profesionais sanitarios están continuamente enfrontados a morte dos seus pacientes, e en contacto contínuo con ela. Unha das función dos profesionais de enfermería é velar polas necesidades dos pacientes en situación terminal. A morte, como fenómeno inevitable, afecta a actitudes e comportamentos incidindo na calidade dos coidados do profesional de enfermería. O afrontamento da dor e a morte xera un gran impacto no equipo de enfermería, producindo impotencia, frustración e pena, que poden chegar a causar o síndrome de Burnout e a fatiga de compaixón. Por iso, é necesario, que os profesionais dispoñan de recursos que lles permitan afrontar óptimamente as situacións de impacto emocional. O obxectivo principal do presente estudo, é avaliar o nivel de afrontamento do persoal de enfermería ante a morte, co fin de mellorar a relación terapéutica e diminuír a tensión dos profesionais. É unha investigación cualitativa de carácter fenomenolóxico, xa que, preténdese solicitar datos acerca das experiencias vividas polo persoal de enfermería con pacientes moribundos. A investigación levarase a cabo nas unidades de Medicina Interna do EOXI de Ferrol. A recollida de datos será mediante entrevistas abertas, ata alcanzar a saturación. [Abstract] Death can be defined as the end of the life. The ending of a living body that had been created from the birth. People cope with the fear of death, but health care professionals face every day their patients’ death and are in contact with this situation. One of their roles is to look out for the needs of the patients in their terminal. Death, as an unavoidable phenomenon, concerns attitudes and behaviors and has an impact in the quality of health care professionals’ work. Confronting pain and death causes a great impact in nursing staff and brings about depression, frustration and sadness. These feelings could be at the origin of the Burnout syndrome and the compassion fatigue. For this reason, resources that shows them how to cope with emotional situations must be available for nursing staff must. The main objective of the present study is to assess the level of nursing staff’s confrontation faced with death, in order to improve the therapeutic relationship and to reduce the professionals stress. This is a qualitative research with a phenomenological nature, since it is pretended to collect data about the experiences lived by the nursing staff with patients in their terminal. The research will be carried out in the Internal Medicine service (MI) of the Ferrol EOXI. Data will be collected through open interviews until the saturation. Traballo fin de grao (UDC.FEP). Enfermaría. Curso 2017/2018
- Published
- 2018
33. A sedação paliativa encurta a vida dos pacientes?
- Author
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Casas-Martínez, María de la Luz and Mora-Magaña, Ignacio
- Subjects
eutanasia ,Terminal patients ,pacientes terminales ,síntomas refractarios ,palliative sedation ,refractory symptoms ,euthanasia ,sedação paliativa ,quality of life ,sedación paliativa ,qualidade de vida ,calidad de vida ,eutanásia ,pacientes terminais ,sintomas refratários - Abstract
Resumen El respeto por la vida humana es central en el acto médico. En pacientes terminales, los síntomas refractarios son nicho de sedación paliativa. Este artículo identifica, a partir de evidencia científica, la sobrevida en pacientes con sedación paliativa en comparación con aquellos que no la recibieron. Se realizó búsqueda de revisiones sistemáticas de 2000 a 2016, se analizaron metodológicamente y se compararon los resultados. Por razones metodológicas no se pudo realizar meta-análisis. Se concluye que la sedación paliativa terminal no acorta la vida de los pacientes. Se reformula la aplicación del principio de doble efecto relacionado con el posible acortamiento de la vida; el mal no deseado es la pérdida de la conciencia. Abstract Respect for human life is central to medicine. In terminal patients, refractory symptoms are a niche of palliative sedation. This paper identifies, based on scientific evidence, the survival in patients who received palliative sedation as compared to those who didn’t. We conducted a search for systematic reviews from 2000 to 2016, which were methodologically analyzed, and the results were then compared. For methodological reasons, meta-analysis could not be performed. It is concluded that terminal palliative sedation does not shorten patients’ lives. The implementation of the principle of double effect related to the possible shortening of life was reformulated; the unwanted evil is the loss of consciousness. Resumo O respeito pela vida humana é primordial na atuação médica. Em pacientes terminais, os sintomas refratários são lugar de sedação paliativa. Este artigo identifica, a partir de evidência científica, a sobrevida em pacientes com sedação paliativa em comparação com aqueles que não a receberam. Foi realizada uma busca de revisões sistemáticas de 2000 a 2016, os resultados foram analisados metodologicamente e comparados. Por razões metodológicas, não foi possível realizar metanálise. Conclui-se que a sedação paliativa terminal não encurta a vida dos pacientes. A aplicação do princípio de duplo efeito relacionado com o possível encurtamento da vida é reformulada; o mal indesejado é a perda de consciência.
- Published
- 2017
34. Realizing the Wishes of Terminal Patients: Caregiving Transport Efforts for End of Life in the Kuji Area of Japan.
- Author
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Yaegashi M, Otsuka K, Nitta K, Tono C, Minagawa Y, Yoshida T, and Kawamura H
- Abstract
Background: There are some restrictions in Japan regarding end-of-life care. For example, only physicians can legally issue death certificates. By law, ambulance staff members perform cardiopulmonary resuscitation (CPR) for all patients with cardiopulmonary arrest (CPA). Therefore, it is difficult to transport patients to hospitals without CPR, even in cases of terminal patients with do-not-attempt-resuscitation (DNAR) order. Furthermore, there is no 24-hour home care nursing system in our area. Therefore, terminal patients are unable to spend their last moments at their home in the Kuji area. Objective: To design a system in which terminal patients who wish to spend their final moments at their home can be transported to the hospital without CPR after at-home CPA and a system to avoid confusion between ambulance staff and family members using instructions provided by the physician. Setting/Subjects: The subjects were terminal patients with DNAR order who wanted to stay at home. The instruction to not perform CPR after CPA was created as a document by physicians. Patient information was shared with the fire department; patients were transported to our hospital without CPR after at-home CPA. Results: In total, 26 patients died during the study period; eight received emergency transport to the hospital without CPR after CPA. CPR was not performed for any patient. Conclusion: A system transporting terminal patients without CPR after CPA was necessary in our area. This instruction allows terminal patients to spend their last moments where they wish and avoids unwanted CPR and troubles after CPA., Competing Interests: No competing financial or any other interests exist. This article has not been published and will not be submitted elsewhere for publication while being considered by the Journal of Palliative Medicine., (© Mizunori Yaegashi et al., 2021; Published by Mary Ann Liebert, Inc.)
- Published
- 2021
- Full Text
- View/download PDF
35. Perception of quality of life in terminal phase of life in condition of home and hospital care
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Vlaić, Anđela and Orlandini, Rahela
- Subjects
BIOMEDICINE AND HEALTHCARE. Clinical Medical Sciences ,Terminalni bolesnici ,Terminal patients ,quality of life ,BIOMEDICINA I ZDRAVSTVO. Kliničke medicinske znanosti ,kvaliteta života ,bolnička skrb ,home care ,kućna njega ,hospital care - Abstract
Cilj: Provedeno istraživanje imali je za cilj istražiti i usporediti kvalitetu života terminalnih bolesnika u bolničkoj skrbi u odnosu na bolesnike u kućnoj njezi, te uočiti čimbenike koji utječu na percepciju i kvalitetu života u terminalnom stadiju. Metode: Za istraživanje smo koristili jednokratno anketiranje terminalnih i kroničnih bolesnika Opće bolnice Knin i bolesnika u kućnoj njezi. U istraživanju je sudjelovalo 50 ispitanika. Istraživanje se provodilo od ožujka do lipnja 2016. god. na način jednokratnog anketiranja ispitanika o kvaliteti života. Za statističku analizu svi podaci su unijeti i obrađeni su u Microsoft Excel tablicama. Statistička analiza uključivala je distribuciju frekvencije. Za analizu podataka korištena je deskriptivna statistika. Rezultati: U kategoriji o kvaliteti života prema svakodnevnim aktivnostima ispitanici su se u znatnoj i najvećoj mjeri složili da u prethodna dva tjedna imaju znatno smanjenu aktivnost. Kroz kategoriju psihofizičkog doživljaja bolesti iz anketnih rezultata vidljivo je kako ispitanici obje skupine u umjerenoj i znatnoj mjeri smatraju kako njihov život nema smisla. Psihofizičke sposobnosti ispitanici su ocijenili kako u znatnoj i većoj mjeri nemaju energije kao prije pojave bolesti. Što se zadovoljstva različitim aspektima života tiče, ispitanici u bolničkoj skrbi u većem udjelu su zadovoljni pruženim medicinskim uslugama, ali su manje zadovoljni sobom i odnosima s bliskim osobama. Obe skupine se slažu u odgovorima kako se u znatnoj mjeri osjećaju potišteno i obeshrabreno glede budućnosti te nerijetko razvijaju negativne osjećaje. Zaključak: Anketiranjem terminalnih i kroničnih bolesnika i ispitujući čimbenike koji utječu na percepciju kvalitete života, a to su svakodnevne aktivnosti, zadovoljstvo različitim aspektima života te emotivni doživljaji, dobili smo podatke koje smo prethodno naveli u rezultatima. Cilj istraživačkog rada je istražiti kvalitetu života terminalnih i kroničnih bolesnika u bolničkoj skrbi i kućnoj njezi. Možemo zaključiti da je sa zdravstvene strane kvaliteta života bolja u bolničkoj skrbi (zadovoljstvo pruženim med. uslugama, liječenje poboljšava kvalitetu života), dok je emotivni život bolji u kućnoj njezi što se očituje većim zadovoljstvom ispitanika samim sobom i interakcijom s bliskim osobama. Research objectives: The research was aimed to investigate and compare the quality of life for terminal patients in hospital care compared to patients in the home care, and observe the factors that influence the perception of the quality of life in the terminal stage Methods: For the study we used a one-time survey of terminal and chronic patients in Knin General Hospital and patients in home care. The study included 50 patients. The survey was conducted from March to June 2016. in the way of one-time survey of respondents about the quality of life. For the statistical analysis all data is entered and processed in Microsoft Excel tables. Statistical analysis included the distribution of frequencies. For data analysis was used descriptive statistics. Results: In the category of quality of life according to the daily activities, respondents have substantial and largely agreed that in the past two weeks have significant reductions in activity. Through the category of psychological and physical experience of illness from the survey, results show that respondents in both groups moderate and largely believe that their life has no meaning. Psychophysical abilities respondents rated as significantly and increasingly have less energy than before the onset of disease. As satisfaction with various aspects of life are concerned, respondents in hospital care in greater proportion are satisfied with the medical services, but are less satisfied with their lives and relationships with loved ones. Both groups agree on the answers to be significantly depressed and discouraged about the future and often develop negative feelings. Conclusion: By polling terminal and chronic patients and examining the factors that influence the perception of quality of life, and these are: everyday activities, satisfaction of various aspects of life and emotional experiences, we got the information that we have previously stated in the results. The goal of research is to investigate the quality of life of terminal and chronic patients in hospital care and home care. We conclude that the medical side of the quality of life is better in hospital care (satisfaction with the med. services, treatment improves quality of life), while emotional life is better in home care which is reflected in higher satisfaction of respondents itself and interacting with loved ones.
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- 2016
36. Desires and future plans of terminal cancer patients: future a literature review
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Salazar, Viviane, Peruchi, Rafaela Campos, Garrido, Tahis, Ferreira, Vanessa, and Donelli, Tagma Marina Schneider
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vida ,future ,life ,planos ,futuro ,plans ,wishes ,desejos ,paciente terminal ,terminal patients - Abstract
Pacientes terminais têm percepção de proximidade da morte, causando ansiedade e tristeza. Contudo, essa fase pode oportunizar a ressignificação de sua vida. Portanto, este estudo visa investigar a produção científica nacional e internacional sobre desejos e planos de futuro de pacientes terminais. Realizou-se uma revisão da literatura científica nas bases de dados MEDLINE, SocINDEX With Full Text, Pubmed, BVS, PsycINFO, Web of Science e Scielo. Na primeira busca, foram utilizados os descritores “planos de futuro”, “paciente terminal” e “vida”, e, na seguinte, “paciente terminal”, “vida” e “desejos para o futuro”, utilizando também os descritores correspondentes em inglês. Os critérios de inclusão foram: artigos na íntegra, de 2000 a 2014, em inglês e português, com amostra de pacientes acometidos de doenças crônicas não transmissíveis, acima de 12 anos, e que abordassem seus desejos e planos de futuro. Os critérios de exclusão foram: casos não terminais, doenças mentais ou que provocaram algum tipo de demência e pesquisas cujo foco não fosse o paciente. Nas buscas, foram encontrados 3608 resultados e oito foram eleitos para análise, categorizando-se: participantes, metodologia do estudo e desejos/planos de futuro. A maioria dos estudos trouxe algum desejo ou plano dos pacientes, mas dois artigos relataram pacientes que não queriam pensar no futuro. Espera-se, com este estudo, que se desperte o interesse por compreender o sujeito em fase terminal, não só atentando ao seu processo de morte, mas também na vida que ainda possui, poisele é dotado de anseios e planos, os quais devem ser escutados e levados em consideração. Terminal patients have perceived proximity to death, causing anxiety and sadness. However, this phase can enhance the ressignification of their life. Therefore, this study aims to investigate the national and international scientific production on desires and future plans of terminal patients. A scientific literature review was held in the databases MEDLINE, SocINDEX With Full Text, Pubmed, PsycINFO, VHL, Scielo and Web of Science. In the first search, the descriptors were used "future plans", "terminal patient" and "life", and, in the following, "terminally-ill", "life" and "desires for the future", also using the corresponding descriptors in English. Inclusion criteria were: articles in their entirety, from 2000 to 2014, in English and Portuguese, with patients suffering from chronic non-communicable diseases, over 12 years, and that to cover your wishes and plans for the future. Exclusion criteria were: nonterminal cases, mental illness or causing some kind of dementia and research whose focus was not the patient. Searching, were found 3608 results and eight were elected for analysis, categorizing themselves: participants, study methodology and desires/plans for the future. Most studies brought some desire or plan of patients, but two articles reported patients who didn't want to think about the future. Hopefully, with this study, to awaken the interest in understanding the subject in terminal phase, not only paying attention to the process of death, but also in life that still has, because he is endowed with desires and plans, which should be listened to and taken into consideration.
- Published
- 2016
37. ¿La sedación paliativa acorta la vida de los pacientes?
- Author
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Casas Martínez, María de la Luz, Mora Magaña, Ignacio, Casas Martínez, María de la Luz, and Mora Magaña, Ignacio
- Abstract
Respect for human life is central to medicine. In terminal patients, refractory symptoms are a niche of palliative sedation. This paper identi es, based on scienti c evidence, the survival in patients who received palliative sedation as compared to those who didn’t. We conducted a search for systematic reviews from 2000 to 2016, which were methodologically analyzed, and the results were then compared. For methodological reasons, meta-analysis could not be performed. It is concluded that terminal palliative sedation does not shorten patients’ lives. The implementation of the principle of double effect related to the possible shortening of life was reformulated; the unwanted evil is the loss of consciousness., O respeito pela vida humana é primordial na atuação médica. Em pacientes terminais, os sintomas refratários são lugar de sedação paliativa. Este artigo identi ca, a partir de evidência cientí ca, a sobrevida em pacientes com sedação paliativa em comparação com aqueles que não a receberam. Foi realizada uma busca de revisões sistemáticas de 2000 a 2016, os resultados foram analisados me- todologicamente e comparados. Por razões metodológicas, não foi possível realizar metanálise. Conclui-se que a sedação paliativa terminal não encurta a vida dos pacientes. A aplicação do princípio de duplo efeito relacionado com o possível encurtamento da vida é reformulada; o mal indesejado é a perda de consciência., El respeto por la vida humana es central en el acto médico. En pacientes terminales, los síntomas refractarios son nicho de sedación paliativa. Este artículo identifica, a partir de evidencia científica, la sobrevida en pacientes con sedación paliativa en comparación con aquellos que no la recibieron. Se realizó́ búsqueda de revisiones sistemáticas de 2000 a 2016, se analizaron metodológicamente y se compararon los resultados. Por razones metodológicas no se pudo realizar meta-análisis. Se concluye que la sedación paliativa terminal no acorta la vida de los pacientes. Se reformula la aplicación del principio de doble efecto relacionado con el posible acortamiento de la vida; el mal no deseado es la pérdida de la conciencia.
- Published
- 2017
38. Terminal patients in Belgian nursing homes: a cost analysis
- Author
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Dominique Paulus, Marianne Desmedt, Steven Simoens, Paul Vanden Berghe, Claire Beguin, Betty Kutten, Emmanuel Keirse, Christian Léonard, Johan Menten, and Myriam Deveugele
- Subjects
medicine.medical_specialty ,Palliative care ,Economics, Econometrics and Finance (miscellaneous) ,Nursing homes ,Pharmacy ,Belgium ,Health care ,Medicine and Health Sciences ,medicine ,Homes for the Aged ,Humans ,health care economics and organizations ,Primary nursing ,Aged ,Retrospective Studies ,Terminal Care ,Health economics ,Terminal patients ,business.industry ,Health Policy ,Public health ,Palliative Care ,GOVERNMENT EXPENDITURES ,Retrospective cohort study ,SERVICES ,Costs ,Nursing Homes ,Family medicine ,Emergency medicine ,Costs and Cost Analysis ,Health Expenditures ,business ,RESIDENTS - Abstract
Policy makers and health care payers are concerned about the costs of treating terminal patients. This study was done to measure the costs of treating terminal patients during the final month of life in a sample of Belgian nursing homes from the health care payer perspective. Also, this study compares the costs of palliative care with those of usual care. This multicenter, retrospective cohort study enrolled terminal patients from a representative sample of nursing homes. Health care costs included fixed nursing home costs, medical fees, pharmacy charges, other charges, and eventual hospitalization costs. Data sources consisted of accountancy and invoice data. The analysis calculated costs per patient during the final month of life at 2007/2008 prices. Nineteen nursing homes participated in the study, generating a total of 181 patients. Total mean nursing home costs amounted to 3,243 a,not sign per patient during the final month of life. Total mean nursing home costs per patient of 3,822 a,not sign for patients receiving usual care were higher than costs of 2,456 a,not sign for patients receiving palliative care (p = 0.068). Higher costs of usual care were driven by higher hospitalization costs (p < 0.001). This study suggests that palliative care models in nursing homes need to be supported because such care models appear to be less expensive than usual care and because such care models are likely to better reflect the needs of terminal patients.
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- 2012
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39. Care for terminal patients: the experience of medical students
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Nelson Filice de Barros, Wania Maria Papile Galhardi, Universidade Estadual Paulista (Unesp), and Prefeitura de Monte Mor Unidade de Saúde da Família
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Paciente terminal ,Medical education ,medicine.medical_specialty ,Estudantes de medicina ,Health (social science) ,Terminal patients ,Traditional medicine ,business.industry ,lcsh:Public aspects of medicine ,Communication ,Public health ,Morte ,Attendance ,Alternative medicine ,lcsh:RA1-1270 ,Homeopathy ,Medical students ,Education ,Death ,Public health service ,Muerte ,Estudiantes de medicina ,Medicine ,business ,Qualitative research - Abstract
Submitted by Guilherme Lemeszenski (guilherme@nead.unesp.br) on 2013-08-22T19:04:37Z No. of bitstreams: 1 S1414-32832008000100002.pdf: 145433 bytes, checksum: fef956b7b291ba275c0dc0a9710d309c (MD5) Made available in DSpace on 2013-08-22T19:04:37Z (GMT). No. of bitstreams: 1 S1414-32832008000100002.pdf: 145433 bytes, checksum: fef956b7b291ba275c0dc0a9710d309c (MD5) Previous issue date: 2008-03-01 Made available in DSpace on 2013-09-30T18:20:00Z (GMT). No. of bitstreams: 2 S1414-32832008000100002.pdf: 145433 bytes, checksum: fef956b7b291ba275c0dc0a9710d309c (MD5) S1414-32832008000100002.pdf.txt: 53101 bytes, checksum: a057dca3ad5b50140ee20fc92bdfc7ed (MD5) Previous issue date: 2008-03-01 Submitted by Vitor Silverio Rodrigues (vitorsrodrigues@reitoria.unesp.br) on 2014-05-20T13:35:02Z No. of bitstreams: 2 S1414-32832008000100002.pdf: 145433 bytes, checksum: fef956b7b291ba275c0dc0a9710d309c (MD5) S1414-32832008000100002.pdf.txt: 53101 bytes, checksum: a057dca3ad5b50140ee20fc92bdfc7ed (MD5) Made available in DSpace on 2014-05-20T13:35:02Z (GMT). No. of bitstreams: 2 S1414-32832008000100002.pdf: 145433 bytes, checksum: fef956b7b291ba275c0dc0a9710d309c (MD5) S1414-32832008000100002.pdf.txt: 53101 bytes, checksum: a057dca3ad5b50140ee20fc92bdfc7ed (MD5) Previous issue date: 2008-03-01 O objetivo deste estudo foi compreender os significados que alunos de medicina atribuem à experiência de cuidar de pacientes em fase terminal. Os dados foram coletados mediante entrevistas individuais com vinte e quatro estudantes de medicina de uma universidade paulista. As convergências dos depoimentos dos participantes foram agrupadas em três categorias: a) deparando-se com o mundo da doença terminal/morte; b) relação com o paciente e sua família; c) reflexão sobre o cuidar do paciente terminal. Nos depoimentos, os estudantes expressam ansiedade ao cuidar deste tipo de paciente, assim como as dificuldades em lidar com os próprios sentimentos. Consideram-se pouco preparados para relacionar-se com esses pacientes, mas aprenderam com a experiência vivida. Os resultados do estudo apontam para a necessidade de se introduzirem, na formação médica, conteúdos visando desenvolver competências interpessoais e capacidade de reflexão sobre questões de ética e deontologia médica, envolvendo a terminalidade da vida. The aim of this study was to understand the meanings that medical students place on experiences of caring for terminal patients. Data were collected using individual interviews with 24 medical students at a university in the State of São Paulo. Convergent ideas within the statements from the participants were grouped into three categories: encountering the world of terminal illness/death; relationships with the patient and patient's family; and reflections on caring for terminal patients. In the students' statements, they expressed anxiety about caring for such patients, and difficulty in dealing with their own feelings. They considered themselves unprepared for relating to these patients, but learned through hands-on experience. The results from the study indicate the need to introduce material within medical training that is aimed at developing interpersonal skills and a capacity to reflect on ethical questions and medical deontology involving the terminality of life. El objetivo de este estudio ha sido comprender los significados que los alumnos de medicina atribuyen a la experiencia de cuidar de pacientes en fase terminal. Los datos se obtuvieran por medio de entrevistas individuales con 24 estudiantes de medicina de una universidad del estado de São Paulo, Brasil. Las convergencias de las declaraciones de los estudiantes se agruparon en tres categorías: a) afrontando el mundo de la enfermedad terminal; b) relación con el paciente y su familia; c) reflexión sobre el cuidado del paciente terminal. En sus manifestaciones los estudiantes expresan ansiedad al cuidar de este tipo de paciente así como las dificultades ante sus propios sentimientos. Se consideran poco preparados para relacionarse con este tipo de pacientes pero han aprendido con la experiencia vivida. Los resultados del estudio apuntan hacia la necesidad de que se introduzcan en la formación médica contenidos para desarrollar competencias interpersonales y capacidad de reflexión sobre cuestiones de ética y deontología médica, incorporando la terminación de la vida. Universidade Estadual Paulista Faculdade de Medicina de Botucatu Departamento de Enfermagem Prefeitura de Monte Mor Unidade de Saúde da Família Universidade Estadual Paulista Faculdade de Medicina de Botucatu Departamento de Enfermagem
- Published
- 2008
- Full Text
- View/download PDF
40. 'To Be Freed From the Infirmity of (the) Age': Subjectivity, Life-Sustaining Treatment, and Palliative Medicine
- Author
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Krakauer, Eric L., author
- Published
- 2007
- Full Text
- View/download PDF
41. Knowledge and practices about palliative care for psychologists active at public hospitals
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Alves, Railda Fernandes, Melo, Myriam, Andrade, Samkya, and Sousa, Valéria
- Subjects
humanização ,humanization ,Palliative care ,pacientes terminais ,Cuidados paliativos ,terminal patients - Abstract
A abordagem dos cuidados paliativos (CP) no Brasil, ainda não está consolidada. Somente em 2001 o Ministério da Saúde lançou o Programa Nacional de Humanização da Assistência Hospitalar para oficializar as assistências em CP (Brasil, 2001). O número de serviços dedicados aos CP não cobre as demandas do país e os profissionais de saúde, dentre eles o psicólogo, têm dificuldade em identificar as práticas relacionadas. O objetivo do estudo foi conhecer os saberes e as práticas sobre os CP dos psicólogos atuantes em dois hospitais públicos da cidade de Campina Grande-PB-Brasil. A abordagem foi quantiqualitativa e os instrumentos foram um questionário sócio demográfico e uma entrevista. A leitura dos dados orientou-se pela análise da enunciação e pela estatística descritiva e foi demonstrada através de árvores de associação de sentidos. A amostra foi formada por 21 psicólogos. Os resultados apontam uma amostra essencialmente feminina (90,5%) e 95% confirmaram ter contato com pacientes terminais. A análise dos discursos mostrou que as práticas estão voltadas para técnicas psicológicas, assistências ao paciente, à família e à equipe de saúde. Existem dificuldades no relacionamento com essa equipe. A formação acadêmica é deficitária. A importância da humanização é reconhecida, ainda que não seja praticada como deveria. Foi expressa a necessidade de se ter uma sistematização em CP como guia das ações. A conclusão indica fragilidade no preparo dos profissionais da saúde para o exercício desses cuidados. Fato que compromete as assistências aos pacientes terminais e leva ao aumento de um sofrimento que poderia ser evitado. The approach of palliative care (PC) in Brazil is still not consolidated. Only in 2001 the Ministry of Health launched the National Program for Humanization of Hospital Care to officiate assists in PC. The number of services dedicated to PC does not cover the demands in the country and health professionals, including psychologists, have difficulty identifying related practices. The objective of this study was to understand the knowledge and practices on the PC of active psychologists at two public hospitals in the city of Campina Grande-PB, Brazil. It was adopted a qualitative and quantitative approach and it was administered a demographic questionnaire and an interview. Reading data was guided by the analysis of enunciation and by descriptive statistics and was demonstrated through the association of meanings trees. The sample comprised 21 psychologists. The results point out an essentially female sample (90.5%), and 95% of the participants have confirmed to have contact with terminal patients. The discourse analysis showed that practice is characterized by the use of psychological techniques, and patient, family and healthcare team assistance. There are difficulties in the relationship with the team. Academic training is deficient. The importance of humanization is recognized, even if it is not practiced as it should. The need to have systematization in PC to guide actions was expressed. The conclusion indicates fragility in the preparation of health professionals to exercise such care. Factor that compromises the assistances of terminal patients and leads to increased suffering that could be avoided.
- Published
- 2014
42. Escaras de decúbito em adultos necropsiados com subnutrição - dados preliminares
- Author
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Selma Freire de Carvalho da Cunha, Maysa Silva Arruda, Vicente de Paula Antunes Teixeira, Daniel Ferreira da Cunha, and Ricardo Boggio Frota
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Adult ,Male ,medicine.medical_specialty ,Pressure sores ,Adolescent ,Síndrome da resposta de fase aguda ,Acute phase response ,Escaras de decúbito ,Protein-energy malnutrition ,Protein-Energy Malnutrition ,Body Mass Index ,Pacientes terminais ,Prevalence ,Humans ,Terminally Ill ,Medicine ,Necropsy ,Aged ,Retrospective Studies ,Aged, 80 and over ,Pressure Ulcer ,Gynecology ,Terminal patients ,Subnutrição protéico-energética ,business.industry ,nutritional and metabolic diseases ,General Medicine ,Middle Aged ,Necropsias ,Female ,Autopsy ,business - Abstract
Pressure sores are common among bedridden, elderly, or malnourished patients, and may occur in terminal ill patients because of impaired mobility, fecal or urinary incontinence, and decreased healing capacity. The aim of this study was to compare frequency of pressure sores between malnourished and non-malnourished necropsied adults. METHOD: All (n = 201) adults (age ³ 18 years) autopsied between 1986 and 1996 at the Teaching Hospital of Triangulo Mineiro Medical School (Uberaba) were eligible for the study. Gender, race, weight, height and main diagnoses were recorded. Ninety-six cases were excluded because of probable body water retention (congestive heart failure, hepatic insufficiency, nephrotic syndrome) or pressure sores secondary to peripheral vascular ischemia. Body mass index (BMI) was used to define malnourished (BMI < 18.5 kg/m²) and non-malnourished (BMI > 18.5kg/m²) groups. RESULTS: Except for weight (42.5kg; range: 28-57 vs. 60; 36-134.5kg) and BMI (16.9; range: 12.4-18.5 vs. 22.7; range: 18.5-54.6kg/m²), respectively, there were no statistical differences among 43 malnourished and 62 non-malnourished cases in relation to age (54.9 ± 20.4 vs. 52.9 ± 17.9 years), percentage of white persons (74.4 vs. 64.5%), male gender (76.7 vs. 69.3%) and main diagnoses. Five malnourished (11.6%) and 7 (11.5%) non-malnourished cases had pressure sores (p=0.89). CONCLUSION: Pressure sores were equally common findings in necropsied persons with protein-energy malnutrition, as assessed by body mass index. Escaras de decúbito são comuns em pacientes acamados, idosos e subnutridos e podem ocorrer em pacientes terminais devido à imobilidade, incontinência fecal e urinária e imunodepressão. Além disso, a contaminação das Escaras de decúbito aumentam o risco de sepsis e podem piorar o estado nutricional. O objetivo deste estudo foi comparar a freqüência de Escaras de decúbito entre adultos necropsiados com ou sem subnutrição. MÉTODO: Adultos (n=201) necropsiados no Hospital Escola da FMTM-Uberaba entre 1986 e 1996 foram inicialmente incluídos, sendo registrados os dados demográficos e diagnósticos principais, além de peso e altura corporais. Foram excluídos os casos (n=96) com edema (insuficiência cardíaca ou hepática, síndrome nefrótica) e com úlceras de origem vascular. O indice de massa corporal (IMC = kg/m²) foi utilizado para alocação dos casos em subnutridos (IMC < 18,5kg/m²) e não-subnutridos (IMC ³ 18,5kg/m²). RESULTADOS: Exceto pelo peso corporal (42,5; variação: 28-57 vs 60; 36-134,5kg) e IMC (16,9; variação: 12,4-18,5 vs 22,7; variação: 18,5-54,kg/m²), respectivamente, não houve diferença estatística entre subnutridos (n=43) e não-subnutridos (n=62) em relação à idade (54,9 ± 20,4 vs 52,9 ± 17,9 anos), percentagem de pessoas brancas (74,4 vs 64,5%), do sexo masculino (76,7 vs 69,3%) e diagnósticos principais. Escaras de decúbito ocorreram em freqüência similar entre subnutridos (11,6%) e não-subnutridos (11,5%). CONCLUSÃO: Escaras de decúbito foram igualmente comuns em adultos necropsiados com ou sem subnutrição energética crônica, conforme estimada pelo índice de massa corporal.
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- 2000
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43. Guía de cuidados del paciente oncológico terminal (cáncer de páncreas) en domicilio
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Pérez de Muniáin Sola, Leyre, Facultad de Ciencias de la Salud, Osasun Zientzien Fakultatea, García Orellán, Rosa, and García-Orellán, Rosa
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Cáncer de páncreas ,Actividades básicas de la vida cotidiana ,Terminal patients ,Formación de cuidadores ,Basic activities of daily life ,Palliative care ,Caregiver training ,Pancreatic cancer ,Pacientes terminales ,Cuidados paliativos - Abstract
El presente proyecto se centra en los cuidados básicos que requiere una persona en el estadio final de su enfermedad (cáncer de páncreas). El reciente contexto de recortes sociales y sanitarios da paso a alternativas como incidir en la formación de cuidadores no profesionales en domicilio supervisada por el personal sanitario, teniendo en cuenta que un entorno conocido por el paciente mejora el cuidado del enfermo. Se propone realizar una guía de cuidados a nivel no profesional y su aplicación práctica en talleres .Con estas acciones se afianza el papel de educadores para la salud de los profesionales sanitarios y se apuesta por la formación del cuidador no profesional para aumentar la calidad de los cuidados del paciente en domicilio, cuando el paciente paliativo decide pasar la etapa final de su vida en su propia casa. This project focuses on the basic care required by a person in the final stage of their disease (pancreatic cancer). The recent context of social and health cuts leads to alternatives such as the training of home caregivers supervised by health personnel, taking into account that a familiar environment improves patient care. A guide to non-professional care and practical application workshops are proposed. Through these actions the role of health educators and health professionals are committed to the training of non-professional caregiver is strengthened to increase the quality of patient care at home, when the palliative patient decides to spend the final stage of his life at home. Graduado o Graduada en Enfermería por la Universidad Pública de Navarra Erizaintzan Graduatua Nafarroako Unibertsitate Publikoan
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- 2014
44. A questão da espiritualidade na realidade hospitalar: o psicólogo e a dimensão espiritual do paciente
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Ana Catarina de Araújo Elias and Joel Sanes Giglio
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death symbolic pain ,palliative care ,spirituality ,hospital psychology ,terminal patients ,Psychology ,BF1-990 - Abstract
Visando minimizar o sofrimento psicológico de pacientes Fora de Possibilidade de Cura e promover Qualidade de Vida na Dor Simbólica da Morte, representada pela Dor Psíquica e Dor Espiritual, desenvolveu - se um método integrando - se as técnicas de Relaxamento Mental e Visualização de Imagens Mentais com o conceito de Espiritualidade, o qual foi estruturado a partir de pesquisas que descrevem os relatos de pacientes que passaram por uma Experiência de Quase Morte (E.Q.M.), e voltaram a viver normalmente. Neste artigo discorremos sobre os dados que estruturam o conceito de Espiritualidade na composição do método proposto, para re-significar a Dor Simbólica da Morte de pacientes terminais.
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45. Aconselhamento pastoral em meio a crises de doença e morte
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Schulz, Carmita, Streck, Gisela Isolde Waechter, Creutzberg, Marion, and Streck, Valburga Schmiedt
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Aconselhamento pastoral ,Death ,TEOLOGIA PRÁTICA ,Terminal patients ,Morte ,CIENCIAS HUMANAS::TEOLOGIA [CNPQ] ,Doentes terminais ,Pastoral counseling - Abstract
Made available in DSpace on 2016-07-25T15:13:44Z (GMT). No. of bitstreams: 1 schulz_c_tm209.pdf: 335771 bytes, checksum: 790f679ff87fa1cc4c565e8b301a9bcb (MD5) Previous issue date: 2009-09-29 In this work we present a study of Practical Theology s discipline, with the analysis of the pastoral counseling ahead of crises caused by illness that leads to the death. The first part treats the death, as the last stage of the life, searching to understand the cases of grave diseases; the death; the behavior of the human being together with its familiar ones; its attitudes; thoughts; the silence and the hope. And the human being s behavior during a grave illness until the death. The second part relates to the crisis generated by the terminal illness; the definition and the types of crises; how to deal with the crises. We speak, also, on the survival of the families after losses, especially, being a crisis that culminated in death, using it as growth factor. We analyze the pastoral relation, its objectives and methods of support in case of crises by the terminal illness. The third and last part brings a small record of the history of the pastoral counseling; some historical contributions; as counseling became and as it arrived until us. Some forms of boarding with dying and its families, and how this can be used with diseased in the threshold of the death. We verify that in almost all the situations with sick terminals and death, the human being needs some counseling. Neste trabalho nós apresentamos um estudo da disciplina Teologia Prática, com a análise do aconselhamento pastoral diante de crises ocasionadas por doença que leva à morte. A primeira parte aborda a morte, como o último estágio da vida, buscando compreender os casos de enfermidades graves: a morte; o comportamento do ser humano, juntamente com seus familiares; suas atitudes; pensamentos; silêncio e esperança. E o comportamento do ser humano durante uma doença grave até a morte. A segunda parte se refere à crise gerada pela doença terminal; definição e tipos de crises; como lidar com as crises. Falamos, também, sobre a sobrevivência das famílias após perdas, especialmente, sendo uma crise que culminou em morte, utilizando-a como fator de crescimento. Nós analisamos a relação pastoral, seus objetivos e métodos de apoio em caso de crises por doença terminal. A terceira e última parte, traz um pequeno relato da história do aconselhamento pastoral; algumas contribuições históricas; como se tornou aconselhamento e a forma que chegou até nós. Algumas formas de abordagem com moribundos e suas famílias, e da maneira que isso pode ser usado com doentes no limiar da morte. Nós verificamos que em quase todas as situações com doentes terminais e morte, o ser humano precisa de algum aconselhamento
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- 2009
46. Enfermería y el paciente en situación terminal
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Míguez Burgos, A. and Muñoz Simarro, D.
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Death ,Muerte ,Terminal patients ,quality of live ,Medidas terapéuticas ,Calidad de vida ,Therapeutic action ,Pain ,Nursing ,Process terminal ,Dolor ,Proceso terminal ,DUE - Abstract
El hecho de la muerte, de la no vida, ha sido en todas las sociedades, para todos los grupos humanos y para todos los individuos una situación que se ha afrontado de muy diversas formas. En general, a pesar de que la muerte es una parte, un fenómeno de la propia existencia, existe un rechazo hacia ella, hacia las personas que se hallan cercanas a la situación de muerte. En este artículo se presenta una reflexión sobre el proceso terminal, sus características, fases, influencia de nuestras actividades como D. U. E., etc. El objetivo de este artículo no es demostrar unas hipótesis, tampoco lo es establecer verdades absolutas e indiscutibles, ya que el tema se presta a un interminable debate donde siempre las conclusiones serán personales. Lo que pretendemos es invitar a la reflexión, personal o en grupo, para fomentar actitudes positivas en los profesionales de Enfermería de cara al cuidado de enfermos terminales. Estas actitudes se traducirán en una mejor calidad de la asistencia. Terminamos finalmente con una serie de recomendaciones prácticas para que, por medio del cambio de actitudes, mejoremos la asistencia prestada a pacientes terminales, en orden a un aumento en su calidad de vida. The fact of death, non-life, has been in all societies, for all groups and all individuals a situation that has been faced in many different ways. In general, despite the fact that death is a part, a phenomenon of existence, there is a rejection of it, by people who are close to the situation of death. This article presents a reflection of the terminal process, its features, phases, and influence over activities such as DUE etc. The aim of this paper is not to show assumptions, nor to establish absolute indisputable truths, because the topic lends itself to an endless debate in which the conclusions are always personal. What we want is to invite reflection, personal or group counseling to foster positive attitudes in nursing care for the terminally ill patients. These attitudes will translate into better quality of care. We end with a series of practical recommendations that, by changing attitudes, we should improve care provided to terminally ill patients in order to increase their quality of life.
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- 2009
47. Ciência e espiritualidade: conversas com pacientes terminais
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Silva, Maria Tereza Penha de Araújo, Gico, Vania de Vasconcelos, GICO, V. V., and Silva, Gustavo de Castro da
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Death ,Espiritualidade ,Pacientes terminais ,Terminal patients ,Science ,Morte ,Spirituality ,Doença ,CIENCIAS HUMANAS::CIENCIA POLITICA::COMPORTAMENTO POLITICO::CLASSES SOCIAIS E GRUPOS DE INTERESSE [CNPQ] ,Ciência ,Illness - Abstract
Conselho Nacional de Desenvolvimento Científico e Tecnológico It has been reflected on Science and spirituality having as focus the relation between them and the process lived by terminal patients after the confirmation of the finitude of their lives. It has searched with this research to excite discussions that corroborate the tematization of a possible dialogue between science and spirituality, signaling perspectives of debates and formation of an understanding of the problematic that involves these human constructs in the development of alternatives for the understanding of the life finitude. We point out the moment of split between science and spirituality through the cartesian paradigm from a historical approach and after focusing the illness and death as foundation for our discussion. We use as methodological strategy, focal talks with terminal patients having as guidance a guideline with five punctuations: the singular citizen, diagnosis impacts, indicators of science, spirituality marks and death fear that served of base for analysis and data interpretation in according to selected theoretical foundations. Thus, it was possible to perceive that science, although not to keep an explicit dialogue with spirituality, it has pointed through is representation forms to the process indicatives that will culminate with the death. And these indicators had shown that in this direction it is efficient. We believe that the confrontation of the death can happen through of a new science that dialogues with the spirituality, where does not have separation between reason and emotion on the part of science; as well as it does not have reason disdain on the part of the spirituality Reflete-se sobre a ciência e a espiritualidade tendo como foco a relação entre elas e o processo vivido por pacientes terminais após a confirmação da finitude de suas vidas. Busca-se com essa pesquisa suscitar discussões que corroborem a tematização de um possível diálogo entre a ciência e a espiritualidade, sinalizando perspectivas de debates e de formação de um entendimento sobre a problemática que envolve esses construtos humanos no desenvolvimento de alternativas para a compreensão da finitude da vida. Apontamos o momento de cisão entre e ciência e espiritualidade através do paradigma cartesiano dentro de um enfoque histórico para em seguida focalizar a doença e morte como aporte para nossa discussão. Utilizamos como estratégia metodológica conversas focais com pacientes terminais tendo como guia uma pauta com cinco pontuações: o sujeito singular, impactos do diagnóstico, indicadores da ciência, marcas da espiritualidade e medo da morte que serviram de base para a análise e a interpretação dos dados de acordo com os aportes teóricos selecionados. Assim, foi possível percebermos que a ciência, apesar de não manter um diálogo explícito com a espiritualidade, aponta através de suas formas de representação para os indicativos do processo que culminará com a morte. E esses indicadores mostraram que nesse sentido ela é eficiente. Acreditamos que o enfrentamento da morte pode acontecer por meio de uma ciência nova que dialogue com a espiritualidade e onde não haja disjunção entre razão e emoção, por parte da ciência; como também não haja desprezo da razão, por parte da espiritualidade
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- 2008
48. The Costs of Treating Terminal Patients
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UCL - Cliniques universitaires Saint-Luc, UCL, Simoens, Steven, Desmedt, Marianne, Kutten, Betty, Keirse, Emmanuel, Vanden Berghe, Paul, Beguin, Claire, Deveugele, Myriam, Leonard, Christian, Paulus, Dominique, Menten, Johan, UCL - Cliniques universitaires Saint-Luc, UCL, Simoens, Steven, Desmedt, Marianne, Kutten, Betty, Keirse, Emmanuel, Vanden Berghe, Paul, Beguin, Claire, Deveugele, Myriam, Leonard, Christian, Paulus, Dominique, and Menten, Johan
- Abstract
Context. In addition to the effectiveness of terminal care, policy makers and health care payers are concerned about the costs of treating terminal patients in a context of spiraling health care costs and limited resources. Objectives. This article aims to review the international literature on the costs of treating terminal patients. Methods. Studies were identified by searching PubMed, Centre for Reviews and Dissemination databases, Cochrane Database, and EconLit, up to April 2009. Studies were included that contrasted costs in different health care settings and that compared palliative care with alternative therapeutic approaches for terminal patients. Results. The few studies that focused on treatment of terminal patients across health care settings showed that hospitalization costs represent the principal component of palliative care costs. In the hospital setting, palliative care tends to be cheaper than usual care or care delivered in units other than the palliative care unit. Palliative care costs depend on patient characteristics, such as diagnosis, status of disease, and age. Also, different care models appear to target different patient groups and offer varied packages of services. Finally, there is some evidence pointing to cost advantages of palliative care at home as compared with alternative care models, although this needs to be corroborated by further research. Conclusion. Different approaches to deliver palliative care are not substitutes of each other and, thus, have different costs. From a cost perspective, hospitals need to pay attention to admitting patients to the palliative care unit at the right time. J Pain Symptom Manage 2010;40:436-448. (C) 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
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- 2010
49. Influencia de la formación de los cuidadores principales en la mejora de la asistencia a pacientes terminales en domicilio
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Guerra Arencibia, Víctor and Guerra Arencibia, Víctor
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The Palliative cares consist of the global attention of the patients whose disease does not respond to curativo treatment. Its aim is the profit of the best quality of life for the patients and their family. The patient as the relative must be informed and educated to be able to face the changes that take place in the course of the terminal disease. An educative program will improve the prevention of problems and will facilitate the correct accomplishment of well-taken care of on the part of the main caretaker. Objectives. To value the impact that the formation of the main caretakers has on the attention of the terminal oncológicos patients, controlled by the Unit of Palliative Cares of the General Hospital of Great Canary for the first time in the month of January of year 2003. Subjects and method. Studied 65 patients and their respective main caretakers.Descriptive, prospectivo, longitudinal Study. The project begins the 2 of January and finalizes the 15 of April of the 2003. The educative program for caretakers was centered in two symptoms: The pain and the dry mouth, following the protocols of the SECPAL and NATIONAL CANCER INSTITUTE. Valuing the difficulties and programming Interventions according to the protocol of the Nursing Interventions Classification, valuing itself the results at the beginning and the month of initiate the program. Results. Diminution in a 70% the difficulties presented/displayed in the performance before the pain. Diminution in a point at the moment for administering dose of rescue for control of the pain in Visual Analogic Scale. Diminution in a 30% of the patients who presented/displayed dry mouth. Increase of 30% in the patients whom buccal hygiene makes after each meals. Conclusions.In our study the formation of the caretakers improved the prevention of problems and facilitated the correct accomplishment of the cares., Los Cuidados Paliativos consisten en la atención global de los pacientes cuya enfermedad no responde a tratamiento curativo. Su fin es el logro de la mejor calidad de vida para los pacientes y su familia. El paciente como el familiar deben estar informados y educados para poder enfrentarse a los cambios que se produzcan en el curso de la enfermedad terminal. Un programa educativo mejorará la prevención de problemas y facilitará la realización correcta de cuidados por parte del cuidador principal. Objetivos. Valorar el impacto que la formación de los cuidadores principales tiene sobre la atención de los pacientes oncológicos terminales, controlados por la Unidad de Cuidados Paliativos del Hospital General de Gran Canaria por primera vez en el mes de enero del año 2003. Sujetos y método. Se estudiaron 65 pacientes y sus respectivos cuidadores principales. Estudio descriptivo, prospectivo, longitudinal. Se inicia el proyecto el 2 de enero y finaliza el 15 de abril del 2003. El programa formativo para cuidadores se centró en dos síntomas: El dolor y la boca seca, siguiendo los protocolos de la SECPAL y del NATIONAL CANCER INSTITUTE. Valorándose las dificultades y programando Intervenciones según el protocolo de La Nursing Interventions Classification, analizando los resultados al inicio y al mes de iniciado el programa.Resultados. Disminución en un 70% las dificultades presentadas en la actuación ante el dolor. Disminución en un punto en el momento de administrar dosis de rescate para control del dolor en Escala Visual Analógica ( EVA). Disminución en un 30% de los pacientes que presentaban boca seca. Aumento del 30% en los pacientes que realizan la higiene bucal después de cada comida. Conclusiones. En nuestro estudio la formación de los cuidadores mejoró la prevención de problemas y facilitó la realización correcta de los cuidados.
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- 2005
50. The psychologist and the patients' s spirituality in the hospital
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Ana Catarina de Araújo Elias and Joel Sanes Giglio
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palliative care ,lcsh:BF1-990 ,espiritualidade ,hospital psychology ,spirituality ,terminal patients ,death symbolic pain ,lcsh:Psychology ,dor simbólica da morte ,cuidados paliativos ,psicologia hospitalar ,pacientes terminais ,General Psychology - Abstract
Visando minimizar o sofrimento psicológico de pacientes Fora de Possibilidade de Cura e promover Qualidade de Vida na Dor Simbólica da Morte, representada pela Dor Psíquica e Dor Espiritual, desenvolveu - se um método integrando - se as técnicas de Relaxamento Mental e Visualização de Imagens Mentais com o conceito de Espiritualidade, o qual foi estruturado a partir de pesquisas que descrevem os relatos de pacientes que passaram por uma Experiência de Quase Morte (E.Q.M.), e voltaram a viver normalmente. Neste artigo discorremos sobre os dados que estruturam o conceito de Espiritualidade na composição do método proposto, para re-significar a Dor Simbólica da Morte de pacientes terminais. This paper describes the elements of Spirituality's conception, which integrates the techniques of Mental Relaxation and Mental Images. This method is intended to promote Quality of Life in the Death Symbolic Pain, what is represented by the Psychic Pain and Spiritual Pain, in the care of terminal patients. The elements of Spirituality' s conception are based in psychiatric research on the report of patients that experienced a Near Death Experience and come back to the normal life.
- Published
- 2001
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