2,283 results on '"recall bias"'
Search Results
2. Validiteit en betrouwbaarheid
- Author
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Bouter, L. M., Zeegers, M. P. A., van Kuijk, S. M. J., Bouter, L.M., Zeegers, M.P.A., and van Kuijk, S.M.J.
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- 2024
- Full Text
- View/download PDF
3. Analyzing the reporting error of public transport trips in the Danish national travel survey using smart card data
- Author
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Sfeir, Georges, Rodrigues, Filipe, Abou-Zeid, Maya, and Pereira, Francisco Camara
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- 2024
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4. Evaluation of measurement errors in the Patient‐Oriented Eczema Measure (POEM) outcome.
- Author
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Duverdier, Ariane, Hurault, Guillem, Thomas, Kim S., Custovic, Adnan, and Tanaka, Reiko J.
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MEASUREMENT errors , *SLEEP interruptions , *MEMORY bias , *ECZEMA , *ATOPIC dermatitis , *ITCHING - Abstract
Background: The Patient‐Oriented Eczema Measure (POEM) is the recommended core outcome instrument for atopic dermatitis (AD) symptoms. POEM is reported by recalling the presence/absence of seven symptoms in the last 7 days. Objective: To evaluate measurement errors in POEM recordings due to imperfect recall. Methods: Using data from a clinical trial of 247 AD patients aged 12–65 years, we analysed the reported POEM score (r‐POEM) and the POEM derived from the corresponding daily scores for the same seven symptoms without weekly recall (d‐POEM). We quantified recall error by comparing the r‐POEM and d‐POEM for 777 patient‐weeks collected from 207 patients, and estimated two components of recall error: (1) recall bias due to systematic errors in measurements and (2) recall noise due to random errors in measurements, using a bespoke statistical model. Results: POEM scores have a relatively low recall bias, but a high recall noise. Recall bias was estimated at 1.2 points lower for the r‐POEM on average than the d‐POEM, with a recall noise of 5.7 points. For example, a patient with a recall‐free POEM of 11 (moderate) could report their POEM score anywhere from 5 to 14 (with 95% probability) because of recall error. Model estimates suggested that patients tend to recall itch and dryness more often than experienced (positive bias of less than 1 day), but less often for the other symptoms (bleeding, cracking, flaking, oozing/weeping and sleep disturbance; negative bias ranging 1–4 days). Conclusions: In this clinical trial data set, we found that patients tended to slightly underestimate their symptoms when reporting POEM, with significant variation in how well they were able to recall the frequency of their symptoms every time they reported POEM. A large recall noise should be taken into consideration when interpreting POEM scores. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Minimum Dietary Diversity for Women: Partitioning Misclassifications by Proxy Data Collection Methods using Weighed Food Records as the Reference in Ethiopia
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Giles T Hanley-Cook, Sara Hoogerwerf, Juan Pablo Parraguez, Simone M Gie, and Bridget A Holmes
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noninferiority ,measurement agreement ,food groups ,list-based recall ,24-h recall ,recall bias ,Nutrition. Foods and food supply ,TX341-641 ,Nutritional diseases. Deficiency diseases ,RC620-627 - Abstract
Background: Nonquantitative list-based or open 24-h recalls (24-HRs) have been shown to overestimate the prevalence of Minimum Dietary Diversity for Women (MDD-W), as compared with direct quantitative observations. However, the main sources of error are unknown. Objectives: To assess the measurement agreement of proxy data collection methods for MDD-W, as compared with weighed food records (WFRs). Methods: Applying a noninferiority design, data were collected from 431 nonpregnant females in Ethiopia. MDD-W estimates from both proxy data collection methods were compared with the WFR prevalence by McNemar’s chi-square tests, Cohen’s Kappa, and receiver operator characteristic analyses. Ten-point food group diversity scores (FGDS) were compared by Bland–Altman plots, Wilcoxon matched-pairs tests, and weighted Kappa. Food group misclassifications were partitioned into errors related to respondent biases or the questionnaire development. Results: List-based and open 24-HRs overreported MDD-W by 8 and 4 percentage points, respectively, as compared with WFR (objective MDD-W prevalence: 8%). Furthermore, list-based 24-HRs overestimated FGDS by 0.4 points (limits of agreement [LOA]: −1.1, 2.0), whereas open 24-HRs led to a 0.3 point (LOA: −1.2, 1.7) overestimate. Food groups most likely to be misreported using proxy data collection methods were “pulses,” “nuts and seeds,” “dairy products,” and “other fruits.” Underreporting of consumption occurred among
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- 2024
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6. Observational Studies
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Palmas, Walter R. and Palmas, Walter R.
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- 2023
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7. Recall Bias in the Assessment of Cough for Patients Discharged from Lung Surgery
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Su X, Huang Y, Dai W, Zhang Y, Zhang L, Zhang J, Gong R, Yu J, Kang D, Xiang R, Chen J, and Shi Q
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patient-reported outcome ,lung surgery ,cough measurement ,recall bias ,Medicine (General) ,R5-920 - Abstract
Xueyao Su,1,* Yanyan Huang,1,* Wei Dai,2 Yubo Zhang,3 Lijun Zhang,1 Jiayuan Zhang,3 Ruoyan Gong,1 Jingwen Yu,3 Dan Kang,1 Rumei Xiang,1 Jiaojiao Chen,1 Qiuling Shi1– 3 1School of Public Health, Chongqing Medical University, Chongqing, People’s Republic of China; 2Department of Thoracic Surgery, Sichuan Cancer Hospital & Institute, Sichuan Cancer Center, University of Electronic Science and Technology of China, Chengdu, Sichuan, People’s Republic of China; 3State Key Laboratory of Ultrasound in Medicine and Engineering, College of Biomedical Engineering, Chongqing Medical University, Chongqing, People’s Republic of China*These authors contributed equally to this workCorrespondence: Qiuling Shi, School of Public Health, Chongqing Medical University, No. 1, Yixueyuan Road, Yuzhong District, Chongqing, 400016, People’s Republic of China, Tel +86-18290585397, Fax +86-28-85420116, Email qshi@cqmu.edu.cnPurpose: This study aimed to evaluate the presence of recall bias when patients retrospectively report cough scores.Patients and Methods: Patients who underwent lung surgery between July 2021 and November 2021 were recruited for this study. We retrospectively assessed the severity of cough within the past 24 hours and the past 7 days using a 0– 10 numerical rating scale. Recall bias was defined as the difference between the scores reported on the two assessments. Patients were grouped based on the longitudinal change in cough scores from pre-operation to 4 weeks after discharge using group-based trajectory models. Using generalized estimating equation to explore the factors influencing recall bias.Results: Overall, 199 patients were analyzed and demonstrated the three distinct trajectories of post-discharge cough: high (21.1%), medium (58.3%), and low (20.6%). Significant recall bias was found in week 2 for the high-trajectory patients (6.26 vs 5.10, P< 0.01) and in week 3 for the medium-trajectory patients (2.88 vs 2.60, P=0.01). Among all recall bias, 41.8% were of underestimation, and 21.7% of overestimation. The high trajectory group (β=1.14, P< 0.01) and measurement interval (β=0.36, P< 0.01) were risk factors for underestimation, while post-discharge time (β=− 0.57, P< 0.01) and measurement interval (β=− 0.13, P=0.02) were protective factors for overestimation.Conclusion: Retrospective assessment of post-discharge cough in patients who underwent lung surgery will introduce recall bias, with a tendency of underestimation. The high-trajectory group, interval time and post-discharge time are influencing factors of recall bias. For patients with severe cough at discharge, a shorter recall periods should be employed for monitoring, due to the large bias that results from a longer recall period.Keywords: patient-reported outcome, lung surgery, cough measurement, recall bias
- Published
- 2023
8. Learning from the past? How biased memories of the pandemic endanger preparation for future crises
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Philipp Sprengholz, Luca Henkel, Robert Böhm, and Cornelia Betsch
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pandemic preparedness ,recall bias ,Medicine (General) ,R5-920 - Published
- 2023
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9. Oncofertility research pitfall? Recall bias in young adult cancer survivors
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Esther H. Chung, M.D., Sloane Mebane, M.D., Benjamin S. Harris, M.D., M.P.H., Erin White, M.S., and Kelly S. Acharya, M.D.
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fertility preservation ,counseling ,oncofertility ,cancer ,recall bias ,Diseases of the genitourinary system. Urology ,RC870-923 ,Gynecology and obstetrics ,RG1-991 - Abstract
Objective: To assess recall bias by evaluating how well female cancer survivors remember details regarding their cancer diagnosis, treatment, and fertility preservation (FP) counseling.Oncofertility literature cites recall bias as a pitfall of retrospective surveys, but limited data exist to quantify this bias. Design: Retrospective secondary analysis of cross-sectional survey data. Setting: Single academic medical center. Patient(s): Female oncology patients of reproductive age, 18–44 years old, at least 6 months past their last chemotherapy treatment. Intervention(s): Not applicable. Main Outcome Measure(s): Recall of details surrounding cancer diagnosis and chemotherapy regimens, recall of FP counseling and ovarian reserve testing, and rates of chart-documented FP counseling. Result(s): In total, 117 patients completed the survey, with 112 verified via chart review. When asked to report the chemotherapy regimen, 57% (64 of the 112) marked “I don’t know/prefer not to say.” Regarding FP, 80% (90 of the 112) denied being offered counseling. Of the 37 (33%) who had documented FP conversations, 13 (35%) did not recall mention of fertility. Only 2 of 8 patients with ovarian reserve testing recalled this being performed at their initial visit. Multivariable logistic regression revealed older age was significantly associated with not being offered FP (odds ratio [OR] 0.87). Conclusion(s): Our results confirm that the accuracy of oncology patients’ reporting is limited by a poor recall, particularly regarding their specific chemotherapy regimen. More than 1 in 3 patients documented to have been offered FP counseling do not recall this discussion. Importantly, only one-third of cancer survivors had chart-documented FP counseling. Increased efforts are needed to ensure adequate follow-up beyond the initial visit.
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- 2023
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10. Learning from the past? How biased memories of the pandemic endanger preparation for future crises.
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Sprengholz, Philipp, Henkel, Luca, Böhm, Robert, and Betsch, Cornelia
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VACCINATION status , *POLARIZATION (Social sciences) , *PANDEMICS , *POLITICAL trust (in government) , *COVID-19 pandemic - Abstract
A recently published study highlights the issue of distorted recall of the COVID-19 pandemic, which is fueling societal conflict and hindering preparation for future crises. The study found that vaccinated and unvaccinated individuals tend to overestimate or underestimate their past risk perceptions and trust in government and science, depending on their vaccination status. This distortion of recall is associated with more extreme evaluations of political action and decreased intention to follow future pandemic regulations. Clinicians should be aware of these recall distortions and their potential effects on perceptions and actions in upcoming health crises, and should work towards reducing societal polarization by reframing vaccination as a health decision rather than a matter of identity or group membership. [Extracted from the article]
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- 2023
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11. Recall bias of students' affective experiences in adolescence: The role of personality and internalizing behavior.
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Schmidt, Philipp, Jendryczko, David, Zurbriggen, Carmen L. A., and Nussbeck, Fridtjof W.
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MEMORY bias , *INTERNALIZING behavior , *ADOLESCENT psychology , *AFFECT (Psychology) , *COGNITIVE bias , *PERSONALITY - Abstract
Introduction: Adolescence is characterized by multiple biopsychosocial changes, associated with a high intraindividual variability of emotional experiences. Previous findings suggest that this intraindividual variability is reflected in a recall bias of adolescents' emotion reports. However, corresponding findings are scarce and inconclusive. Studies on predictors of recall bias in adulthood indicate that personality traits, especially neuroticism and extraversion, as well as specific internalizing disorders might affect recall bias of emotion reports. Methods: The sample consists of 118 Swiss adolescent students in grade 8 and 9 (Mage = 15.15, SDage = 0.89). The students' momentary affective experience was recorded using smartphones over seven consecutive days in situ at 42 randomly generated occasions (six per day), with a total of 1059 protocols on current events. At the end of the experience‐sampling phase, students filled out an online questionnaire, providing information about their personality and typical behavior as well as their retrospective affective experience. In addition, the students' behavior was evaluated by their teachers. We applied two‐level structural equation modeling with latent difference variables. Results: Adolescents high in extraversion showed retrospective overestimation of positive affective experiences and underestimation of negative affective experiences. Adolescents with high neuroticism tended to overestimate negative affect retrospectively, showing no significant effects for positive affect. However, internalizing behavior did not predict a negative recall bias in adolescents' affective experience. Conclusions: Retrospective self‐reports about adolescents' affective experience are biased by relatively stable individual factors, whereas less stable individual factors did not seem to have any influence. [ABSTRACT FROM AUTHOR]
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- 2023
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12. Social value orientation modulates behavioral and neural responses to social influence.
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Qi, Yanyan, Liu, Zhihui, Cao, Siqi, Han, Yixin, Wang, Qiong, Liu, Xun, and Wu, Haiyan
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SOCIAL influence , *VALUE orientations , *SOCIAL values , *SOCIETAL reaction , *EVOKED potentials (Electrophysiology) - Abstract
Substantial studies have investigated the social influence effect; however, how individuals with different social value orientations (SVOs), prosocials and proselfs, respond to different social influences remains unknown. This study examines the impact of positive and negative social information on the responses of people with different SVOs. A face‐attractiveness assessment task was employed to investigate the relationships between influence probability, memory, and event‐related potentials of social influence. A significant interactional effect suggested that prosocials and proselfs reacted differently to positive (group rating was more attractive) and negative (group rating was less attractive) social influences. Specifically, proselfs demonstrated significantly higher influence probability, marginally better recall performance, smaller N400, and larger late positive potential on receiving negative influence information than on receiving positive influence information, while prosocials showed no significant differences. Overall, correlations between N400/LPP, influence probability, and recall performance were significant. The above results indicate the modulating role of SVO when responding to social influence. These findings have important implications for understanding how people conform and how prosocial behavior occurs. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Health Change Awareness and Its Association With Weight Loss Following Bariatric Surgery.
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Wolfe, Michael B., Williams, Todd J., Dewey, Elizabeth N., Mitchell, James E., Pomp, Alfons, and Wolfe, Bruce M.
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Objective: Patients' ability to judge health change over time has important clinical implications for treatment, but is understudied in longitudinal contexts with meaningful health change. We assess patients' awareness of health change for 5 years following bariatric surgery, and its association with weight loss. Method: Participants were part of the Longitudinal Assessment of Bariatric Surgery (N =2,027). Perceived health change for each year was assessed by comparing it to self-reports of health on the SF-36 health survey. Participants were categorized as concordant when perceived and actual self-reported health change corresponded, and as discordant when they did not correspond. Results: Year-to-year concordance between perceived and actual self-reported health change occurred less than 50% of the time. Discordance between perceived and actual health was associated with weight loss following surgery. Discordant-positive participants who perceived their health change as more positive than was warranted lost more weight postsurgery and thus had lower body mass index scores than concordant participants. Conversely, discordantnegative participants who perceived their health as worse than what was warranted lost less weight post-surgery and thus had higher body mass index scores. Conclusions: These results suggest that recollection of past health is generally poor and can be biased by salient factors during recall. Clinicians are advised to use caution when retrospective judgments of health are utilized. [ABSTRACT FROM AUTHOR]
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- 2023
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14. Exploring visual pain trajectories in neck pain patients, using clinical course, SMS-based patterns, and patient characteristics: a cohort study
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Pernille Irgens, Birgitte Lawaetz Myhrvold, Alice Kongsted, Bård Natvig, Nina Køpke Vøllestad, and Hilde Stendal Robinson
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Visual trajectories ,Longitudinal ,Subgrouping ,Recall bias ,Chiropractic ,SMS ,RZ201-275 ,Diseases of the musculoskeletal system ,RC925-935 - Abstract
Abstract Background The dynamic nature of neck pain has so far been identified through longitudinal studies with frequent measures, a method which is time-consuming and impractical. Pictures illustrating different courses of pain may be an alternative solution, usable in both clinical work and research, but it is unknown how well they capture the clinical course. The aim of this study was to explore and describe self-reported visual trajectories in terms of details of patients’ prospectively reported clinical course, their SMS-based pattern classification of neck pain, and patient’s characteristics. Methods Prospective cohort study including 888 neck pain patients from chiropractic practice, responding to weekly SMS-questions about pain intensity for 1 year from 2015 to 2017. Patients were classified into one of three clinical course patterns using definitions based on previously published descriptors. At 1-year follow-up, patients selected a visual trajectory that best represented their retrospective 1-year course of pain: single episode, episodic, mild ongoing, fluctuating and severe ongoing. Results The visual trajectories generally resembled the 1-year clinical course characteristics on group level, but there were large individual variations. Patients selecting Episodic and Mild ongoing visual trajectories were similar on most parameters. The visual trajectories generally resembled more the clinical course of the last quarter. Discussion The visual trajectories reflected the descriptors of the clinical course of pain captured by weekly SMS measures on a group level and formed groups of patients that differed on symptoms and characteristics. However, there were large variations in symptoms and characteristics within, as well as overlap between, each visual trajectory. In particular, patients with mild pain seemed predisposed to recall bias. Although the visual trajectories and SMS-based classifications appear related, visual trajectories likely capture more elements of the pain experience than just the course of pain. Therefore, they cannot be seen as a proxy for SMS-tracking of pain over 1 year.
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- 2022
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15. Wide Awake Local Anesthesia No Tourniquet Surgery of Carpal Tunnel Syndrome: Patients' Experience and Recall Bias in a Day-Care Setting.
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Knystautas, Saulius, Braziulis, Kęstutis, Zacharevskij, Ernest, Varkalys, Karolis, Šimatonienė, Violeta, and Pilipaitytė, Loreta
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PATIENTS' attitudes ,TOURNIQUETS ,LOCAL anesthesia ,CARPAL tunnel syndrome ,MEMORY bias ,POSTOPERATIVE pain treatment ,PATIENT satisfaction - Abstract
Background and Objective: Wide-Awake Local Anesthesia No Tourniquet (WALANT) is a technique of local anesthesia commonly used in the surgical treatment of a wide variety of conditions affecting the upper extremity, including Carpal Tunnel Syndrome (CTS). The recent retrospective studies investigated patient experiences in a wide variety of hand disorder-related cases. The aim of our study is to evaluate patient satisfaction regarding open surgical treatment for CTS using the WALANT technique. Material and Methods: we enrolled 82 patients with CTS without medical record of surgical treatment for CTS. For WALANT, a hand surgeon used a combination of 1:200,000 epinephrine, 1% lidocaine, and 1 mL 8.4% sodium bicarbonate solution without tourniquet application and sedating the patient. All patients were treated in a day-care setting. For assessment of patient experience, Lalonde's questionnaire was adapted. Participants completed survey twice: one month and six months after the surgical treatment was performed. Results: the median pre-operative pain score for all patients was 4 (range 0–8) after one month and 3 (range 1–8) after six months. The median intraoperative pain score for all patients was 1 (range 0–8) after one month and 1 (range 1–7) after six months. The median post-operative pain score for all patients was 3 (range 0–9) after one month and 1 (range 0–8) after six months. More than half (61% after one month and 73% after six months) of the patients responded by stating that their real experience of WALANT was better than their initial expectations. An absolute majority of patients (95% after one month and 90% after six months) would recommend WALANT treatment to their relatives. Conclusions: overall, patient satisfaction with treatment for CTS using WALANT is high. Furthermore, complications related to the performed treatment and persistent post-operative pain could be associated with more reliable patient recall of this healthcare intervention. A longer period of time between intervention and assessment of patient experience could possibly be a reason for recall bias. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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16. More than blood: app-tracking reveals variability in heavy menstrual bleeding construct.
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Shea, Amanda A., Wever, Fiorella, Ventola, Cécile, Thornburg, Jonathan, and Vitzthum, Virginia J.
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MENORRHAGIA , *MEMORY bias , *MENSTRUATION , *MOBILE apps , *DATA recorders & recording , *QUALITY of life - Abstract
Background: Heavy menstrual bleeding (HMB) is associated with impaired quality of life and may signal serious health problems. Unresolved challenges in measuring menstrual bleeding and identifying HMB have hampered research and clinical care. Self-reported bleeding histories are commonly used but these may be influenced by recall bias, personal beliefs regarding "normal" flow volume, and the experience of other physical symptoms or disruptions to daily life. The potential usefulness of menstrual-tracking mobile applications, which allow real-time user-entered data recording, for assessing HMB has not been studied. We evaluated recall bias in reported period duration, the relationship of tracked period duration and daily flow volume to subsequently reported period heaviness, variation in quality of life associated with increasing period heaviness, and the advantages and limitations of using app-tracked data for clinical and research purposes. Methods: An online questionnaire was distributed to current users of Clue, a commercially available menstrual health tracking app, asking them to characterize their last period. We compared responses to the user's corresponding Clue app-tracked data. The study sample comprised 6546 U.S.-based users (aged 18–45 years). Results: Increasing reported heaviness was associated with increasing app-tracked period length and days of heavy flow, impaired quality-of-life (especially body pain severity), and disrupted activities. Of those reporting having had a heavy/very heavy period, ~ 18% had not tracked any heavy flow, but their period length and quality-of-life indicators were similar to those who had tracked heavy flow. Sexual/romantic activities were the most affected across all flow volumes. Compared to app-tracked data, 44% recalled their exact period length; 83% recalled within ± 1 day. Overestimation was more common than underestimation. However, those with longer app-tracked periods were more likely to underestimate period length by ≥ 2 days, a pattern which could contribute to under-diagnosis of HMB. Conclusion: Period heaviness is a complex construct that encapsulates flow volume and, for many, several other bleeding-associated experiences (period length, bodily impairments, disruptions of daily activities). Even very precise flow volume assessments cannot capture the multi-faceted nature of HMB as experienced by the individual. Real-time app-tracking facilitates quick daily recording of several aspects of bleeding-associated experiences. This more reliable and detailed characterization of bleeding patterns and experiences can potentially increase understanding of menstrual bleeding variability and, if needed, help to guide treatment. [ABSTRACT FROM AUTHOR]
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- 2023
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17. Dialectical materialism and teaching by words and deeds applied to the education of clinical medical students
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Meng Li and Ali Sorayyaei Azar
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empathy ,materialistic dialectics ,recall bias ,training clinicians ,training model ,Medicine (General) ,R5-920 - Published
- 2023
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18. Addressing recall bias in (post-)conflict data collection and analysis: lessons from a large-scale health survey in Colombia
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Rodrigo Moreno-Serra, Misael Anaya-Montes, Sebastián León-Giraldo, and Oscar Bernal
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Conflict ,Health ,Household surveys ,Recall bias ,Causal effects ,Survey data ,Special situations and conditions ,RC952-1245 ,Medical emergencies. Critical care. Intensive care. First aid ,RC86-88.9 - Abstract
Abstract Background Much applied research on the consequences of conflicts for health suffers from data limitations, particularly the absence of longitudinal data spanning pre-, during- and post-conflict periods for affected individuals. Such limitations often hinder reliable measurement of the causal effects of conflict and their pathways, hampering also the design of effective post-conflict health policies. Researchers have sought to overcome these data limitations by conducting ex-post surveys, asking participants to recall their health and living standards before (or during) conflict. These questions may introduce important analytical biases due to recall error and misreporting. Methods We investigate how to implement ex-post health surveys that collect recall data, for conflict-affected populations, which is reliable for empirical analysis via standard quantitative methods. We propose two complementary strategies based on methods developed in the psychology and psychometric literatures—the Flashbulb and test-retest approaches—to identify and address recall bias in ex-post health survey data. We apply these strategies to the case study of a large-scale health survey which we implemented in Colombia in the post-peace agreement period, but that included recall questions referring to the conflict period. Results We demonstrate how adapted versions of the Flashbulb and test-retest strategies can be used to test for recall bias in (post-)conflict survey responses. We also show how these test strategies can be incorporated into post-conflict health surveys in their design phase, accompanied by further ex-ante mitigation strategies for recall bias, to increase the reliability of survey data analysis—including by identifying the survey modules, and sub-populations, for which empirical analysis is likely to yield more reliable causal inference about the health consequences of conflict. Conclusions Our study makes a novel contribution to the field of applied health research in humanitarian settings, by providing practical methodological guidance for the implementation of data collection efforts in humanitarian contexts where recall information, collected from primary surveys, is required to allow assessments of changes in health and wellbeing. Key lessons include the importance of embedding appropriate strategies to test and address recall bias into the design of any relevant data collection tools in post-conflict or humanitarian contexts.
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- 2022
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19. How does recall bias in farm labor impact separability tests?
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Peterson-Wilhelm, Bailey and Schwab, Benjamin
- Subjects
- *
HOUSEKEEPING , *CONSUMPTION (Economics) , *GROWING season , *AGRICULTURE , *AGRICULTURAL laborers - Abstract
In the agricultural household literature, empirical tests of separability between production and consumption decisions commonly exploit theoretical predictions of household labor allocation. Many of these studies rely on data that asks respondents to recall labor usage over the entire growing season. Two recent field experiments in Tanzania and Ghana show that such labor use data, collected at the end of the growing season, is a systematically unreliable measure of actual labor allocation. In this study, we examine how inaccurate measures of labor influence the reliability of market failure tests based on separability. In Ghana, we find no statistical evidence that recall bias influences the reliability of the separability test. In Tanzania, we find that recall bias increases the probability that such tests fail to reject separability. Thus, we find partial evidence that classic tests based on typical household survey labor data may erroneously conclude that markets are adequately functioning. • Tests of separation rely on recalled labor data from agricultural households. • Two experiments find bias in household labor data from end-of-season surveys. • Hired labor data is biased when hired labor is rare (Tanzania) and unaffected when hiring is common (Ghana). • In Ghana, no evidence recall bias influences the reliability of separability tests. • In Tanzania, recall bias causes overestimation of market completeness. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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20. Patiënt-controleonderzoek
- Author
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van Stralen, K. J., Euser, S. M., Eskes, Anne M., editor, and van Oostveen, Catharina J., editor
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- 2021
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21. Exploring visual pain trajectories in neck pain patients, using clinical course, SMS-based patterns, and patient characteristics: a cohort study.
- Author
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Irgens, Pernille, Myhrvold, Birgitte Lawaetz, Kongsted, Alice, Natvig, Bård, Vøllestad, Nina Køpke, and Robinson, Hilde Stendal
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NECK pain ,PAIN measurement ,SELF-evaluation ,CHIROPRACTIC ,RETROSPECTIVE studies ,ACQUISITION of data ,MEMORY bias ,RESEARCH funding ,MEDICAL records ,TEXT messages ,LONGITUDINAL method ,SECONDARY analysis - Abstract
Background: The dynamic nature of neck pain has so far been identified through longitudinal studies with frequent measures, a method which is time-consuming and impractical. Pictures illustrating different courses of pain may be an alternative solution, usable in both clinical work and research, but it is unknown how well they capture the clinical course. The aim of this study was to explore and describe self-reported visual trajectories in terms of details of patients' prospectively reported clinical course, their SMS-based pattern classification of neck pain, and patient's characteristics. Methods: Prospective cohort study including 888 neck pain patients from chiropractic practice, responding to weekly SMS-questions about pain intensity for 1 year from 2015 to 2017. Patients were classified into one of three clinical course patterns using definitions based on previously published descriptors. At 1-year follow-up, patients selected a visual trajectory that best represented their retrospective 1-year course of pain: single episode, episodic, mild ongoing, fluctuating and severe ongoing. Results: The visual trajectories generally resembled the 1-year clinical course characteristics on group level, but there were large individual variations. Patients selecting Episodic and Mild ongoing visual trajectories were similar on most parameters. The visual trajectories generally resembled more the clinical course of the last quarter. Discussion: The visual trajectories reflected the descriptors of the clinical course of pain captured by weekly SMS measures on a group level and formed groups of patients that differed on symptoms and characteristics. However, there were large variations in symptoms and characteristics within, as well as overlap between, each visual trajectory. In particular, patients with mild pain seemed predisposed to recall bias. Although the visual trajectories and SMS-based classifications appear related, visual trajectories likely capture more elements of the pain experience than just the course of pain. Therefore, they cannot be seen as a proxy for SMS-tracking of pain over 1 year. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
22. Trajectory and determinants of agreement between parental and physicians' reports of childhood atopic dermatitis.
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Peng, Zhuoxin, Braig, Stefanie, Kurz, Deborah, Weiss, Johannes M., Weidinger, Stephan, Brenner, Hermann, Rothenbacher, Dietrich, and Genuneit, Jon
- Subjects
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ATOPIC dermatitis , *GENERALIZED estimating equations , *PHYSICIANS , *PANEL analysis , *AGE of onset - Abstract
Background: Parent self‐administered reports are commonly used in studies on childhood atopic dermatitis (AD) but data on its validity are sparse. We aimed to examine the agreement between parent‐ and physician‐reported measures of childhood AD throughout early life and identify the determinants. Methods: In this prospective cohort study, we used data of 449 infants and their mothers recruited in the Ulm SPATZ Health Study in Germany. Longitudinal data of parental and children's caring physicians' reports were used to assess the point and cumulative agreement of parent‐ and physician‐reported AD diagnoses, AD onset age, and trend of agreement at child ages between 1 and 6 years overall and by child and parent demographics and health conditions. A Generalized Estimating Equation model was fitted to identify factors associated with the sensitivity of parent reports. Results: The point agreement between parent‐ and physician‐reported AD was substantial at the age of 1 (kappa = 0.63, 95% CI: 0.51–0.75) but declined with age and became fair after the age of 3 (kappa < 0.40). The cumulative agreement remained moderate at the age of 6 (kappa = 0.51, 95% CI: 0.43–0.60). Parents had a bias towards delayed reporting of the AD onset age. The AD severity was the only strong determinant for the agreement of AD diagnoses and largely explained the variance of the sensitivity of parent reports. Conclusion: The disagreement between parent‐ and physician‐reported AD increases with child age, likely due to the change of AD severity. Using parent‐reported data might miss a substantial portion of mild childhood AD cases. [ABSTRACT FROM AUTHOR]
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- 2022
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23. Validation of mobile phone use recall in the multinational MOBI-kids study.
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van Wel L, Huss A, Kromhout H, Momoli F, Krewski D, Langer CE, Castaño-Vinyals G, Kundi M, Maule M, Miligi L, Sadetzki S, Albert A, Alguacil J, Aragones N, Badia F, Bruchim R, Goedhart G, de Llobet P, Kiyohara K, Kojimahara N, Lacour B, Morales-Suarez-Varela M, Radon K, Remen T, Weinmann T, Vrijheid M, Cardis E, and Vermeulen R
- Subjects
- Humans, Male, Female, Child, Adolescent, Young Adult, Case-Control Studies, Self Report, Cell Phone Use statistics & numerical data, Cell Phone statistics & numerical data, Adult, Mental Recall
- Abstract
Potential differential and non-differential recall error in mobile phone use (MPU) in the multinational MOBI-Kids case-control study were evaluated. We compared self-reported MPU with network operator billing record data up to 3 months, 1 year, and 2 years before the interview date from 702 subjects aged between 10 and 24 years in eight countries. Spearman rank correlations, Kappa coefficients and geometric mean ratios (GMRs) were used. No material differences in MPU recall estimates between cases and controls were observed. The Spearman rank correlation coefficients between self-reported and recorded MPU in the most recent 3 months were 0.57 and 0.59 for call number and for call duration, respectively. The number of calls was on average underestimated by the participants (GMR = 0.69), while the duration of calls was overestimated (GMR = 1.59). Country, years since start of using a mobile phone, age at time of interview, and sex did not appear to influence recall accuracy for either call number or call duration. A trend in recall error was seen with level of self-reported MPU, with underestimation of use at lower levels and overestimation of use at higher levels for both number and duration of calls. Although both systematic and random errors in self-reported MPU among participants were observed, there was no evidence of differential recall error between cases and controls. Nonetheless, these sources of exposure measurement error warrant consideration in interpretation of the MOBI-Kids case-control study results on the association between children's use of mobile phones and potential brain cancer risk., (© 2024 The Author(s). Bioelectromagnetics published by Wiley Periodicals LLC on behalf of Bioelectromagnetics Society.)
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- 2024
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24. Statistical analysis of self-reported health conditions in cohort studies: handling of missing onset age.
- Author
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Mirzaei S, Martínez JM, Izumi S, Mori M, Armstrong GT, and Yasui Y
- Subjects
- Humans, Cohort Studies, Bias, Chronic Disease epidemiology, Female, Child, Male, Cancer Survivors statistics & numerical data, Adult, Neoplasms epidemiology, Data Interpretation, Statistical, Self Report, Age of Onset
- Abstract
Objectives: This paper discusses methodological challenges in epidemiological association analysis of a time-to-event outcome and hypothesized risk factors, where age/time at the onset of the outcome may be missing in some cases, a condition commonly encountered when the outcome is self-reported., Study Design and Setting: A cohort study with long-term follow-up for outcome ascertainment such as the Childhood Cancer Survivor Study (CCSS), a large cohort study of 5-year survivors of childhood cancer diagnosed in 1970-1999 in which occurrences and age at onset of various chronic health conditions (CHCs) are self-reported in surveys. Simple methods for handling missing onset age and their potential bias in the exposure-outcome association inference are discussed. The interval-censored method is discussed as a remedy for handling this problem. The finite sample performance of these approaches is compared through Monte Carlo simulations. Examples from the CCSS include four CHCs (diabetes, myocardial infarction, osteoporosis/osteopenia, and growth hormone deficiency)., Results: The interval-censored method is useable in practice using the standard statistical software. The simulation study showed that the regression coefficient estimates from the 'Interval censored' method consistently displayed reduced bias and, in most cases, smaller standard deviations, resulting in smaller mean square errors, compared to those from the simple approaches, regardless of the proportion of subjects with an event of interest, the proportion of missing onset age, and the sample size., Conclusion: The interval-censored method is a statistically valid and practical approach to the association analysis of self-reported time-to-event data when onset age may be missing. While the simpler approaches that force such data into complete data may enable the standard analytic methods to be applicable, there is considerable loss in both accuracy and precision relative to the interval-censored method., Competing Interests: Declaration of competing interest There are no competing interests for any author., (Copyright © 2024 Elsevier Inc. All rights reserved.)
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- 2024
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25. Adult retrospective report of child abuse and prospective indicators of childhood harm: a population birth cohort study
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Snehal M. Pinto Pereira, Nina T. Rogers, and Christine Power
- Subjects
Epidemiology ,Child abuse ,Longitudinal ,Recall bias ,Medicine - Abstract
Abstract Background We aim to determine whether adult retrospective report of child abuse is associated with greater risk of prospectively assessed harmful environments in childhood. We assessed possible recall basis by adult depression status. Methods At 45 years, participants of the 1958 British birth cohort (N = 9308) reported a range of abuse types (by 16 years). Prospective data, ages 7–16 years, were obtained for impoverished upbringing, hazardous conditions, anti-social behaviours and 16 years poor parent-child relationships. We estimated associations between retrospective report of child abuse and prospectively measured harm using (i) odds ratios (ORs, 95% confidence intervals) and (ii) positive predictive values (PPVs). PPVs were calculated stratified by adult depression status. Results Prevalence of retrospectively reported abuse ranged from 10.7% (psychological) to 1.60% (sexual) and 14.8% reported ≥ 1 type; prospectively recorded harm ranged from 10% (hazardous conditions/poor parent-child relationships) to 20% (anti-social behaviours). Adults retrospectively reporting abuse were more likely to have had harmful childhood environments: 52.4% had ≥ 1 indicator of harm (vs. 35.6% among others); OR sex-adjusted for poor relationships with parents was 2.98 (2.50, 3.54). For retrospectively reported (vs. none) abuse, there was a trend of increasing relative risk ratio with number of harms, from 1.75 (1.50, 2.03) for 1 to 4.68 (3.39, 6.45) for 3/4 childhood harms. The PPV of ≥ 1 prospectively recorded harm did not differ between depressed (0.58 (0.52, 0.64)) and non-depressed (0.58 (0.55, 0.61)) groups. Conclusions In a population cohort, adult retrospective report of child abuse was associated with several harms, prospectively measured from childhood to adolescence, providing support for the validity of retrospective report-based research. Findings suggest retrospectively reported child abuse is not biased by depression in adulthood.
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- 2021
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26. Women's Life Experiences and Shifting Reports of Pregnancy Planning.
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Chamberlin, Stephanie, Njerenga, Synab, Smith-Greenaway, Emily, and Yeatman, Sara
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- *
LIFE change events , *FAMILY planning , *SHIFT systems , *WOMEN , *INTERVIEWING , *RETROSPECTIVE studies , *PREGNANCY outcomes , *QUALITATIVE research , *PARENTING , *SOCIOECONOMIC factors , *MEDICAL records , *QUESTIONNAIRES , *THEMATIC analysis , *FAMILY relations , *UNPLANNED pregnancy , *LONGITUDINAL method - Abstract
Background: Unplanned pregnancy is associated with adverse consequences for women. Yet, these associations are typically based on women's reports of pregnancy planning provided post birth. Therefore, women's recollection of their pregnancy planning may be influenced by their adverse life circumstances following the pregnancy, artificially driving these associations. Methods: To understand how post-birth experiences pattern women's recall of their pregnancy planning, we conducted 17 in-depth interviews with young women (24–34 years old) enrolled in a longitudinal study in southern Malawi. Respondents who were pregnant at the time of data collection in 2015 answered close-ended questions about the planning of their pregnancy. During in-depth interviews three years later, women discussed their life experiences since the pregnancy and were re-asked a subset of the same questions about the planning of the 2015 pregnancy. We thematically coded respondents' narratives about their relationships, parenting, and economic situations in the three years following their pregnancy and mapped these onto changes in women's pre- and post-birth reports of their pregnancy planning. Results: More than one-half of respondents recalled their pregnancy planning differently than they did pre-birth—some as more planned, others as less planned. The presence and direction of women's changing reports were patterned by the quality of their relationship with the child's father, the father's involvement as a partner and parent, and their economic situation. Conclusions: Women's life experiences following a birth correspond with changes in their pregnancy planning reports, emphasizing the limitations of using retrospective measures to study the consequences of unplanned fertility. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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27. Past and Present Subjective Well-being: the Role of Contrast and Memory.
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Kollamparambil, Umakrishnan
- Abstract
This study is an attempt to analyse the interrelationships between current, past and expected future subjective well-being (SWB) through the intermediating role of memory using the National Income Dynamics Study panel dataset for South Africa. The contribution of this study is in exploring the role of contrast (intertemporal and social) in determining (a) the current levels of SWB and (b) the drivers of recall bias, within a causal framework in the context of a country with low average SWB and high SWB inequality. The results indicate significant presence of hedonic adaptation and reveals past and future contrast as important correlates of current subjective well-being. In addition, a perceived improvement in current happiness from the past is associated with higher levels of current SWB, highlighting the intermediating role of memory. Memory, however, is observed to be biased with only 42% accuracy. Higher levels of current subjective well-being are found to enhance the probability of correct recall of the past. An overall improvement bias is evident among those in the lower segment of the SWB distribution. The results reinforce the hypothesised simultaneous relationships between current SWB, intertemporal contrast and recall behaviour. Furthermore, the differences in our findings from European studies emphasize the relevance of context in driving these relationships. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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28. Wide Awake Local Anesthesia No Tourniquet Surgery of Carpal Tunnel Syndrome: Patients’ Experience and Recall Bias in a Day-Care Setting
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Saulius Knystautas, Kęstutis Braziulis, Ernest Zacharevskij, Karolis Varkalys, Violeta Šimatonienė, and Loreta Pilipaitytė
- Subjects
Wide-Awake Local Anesthesia No Tourniquet ,patient satisfaction ,recall bias ,Carpal Tunnel Syndrome ,Medicine (General) ,R5-920 - Abstract
Background and Objective: Wide-Awake Local Anesthesia No Tourniquet (WALANT) is a technique of local anesthesia commonly used in the surgical treatment of a wide variety of conditions affecting the upper extremity, including Carpal Tunnel Syndrome (CTS). The recent retrospective studies investigated patient experiences in a wide variety of hand disorder-related cases. The aim of our study is to evaluate patient satisfaction regarding open surgical treatment for CTS using the WALANT technique. Material and Methods: we enrolled 82 patients with CTS without medical record of surgical treatment for CTS. For WALANT, a hand surgeon used a combination of 1:200,000 epinephrine, 1% lidocaine, and 1 mL 8.4% sodium bicarbonate solution without tourniquet application and sedating the patient. All patients were treated in a day-care setting. For assessment of patient experience, Lalonde’s questionnaire was adapted. Participants completed survey twice: one month and six months after the surgical treatment was performed. Results: the median pre-operative pain score for all patients was 4 (range 0–8) after one month and 3 (range 1–8) after six months. The median intraoperative pain score for all patients was 1 (range 0–8) after one month and 1 (range 1–7) after six months. The median post-operative pain score for all patients was 3 (range 0–9) after one month and 1 (range 0–8) after six months. More than half (61% after one month and 73% after six months) of the patients responded by stating that their real experience of WALANT was better than their initial expectations. An absolute majority of patients (95% after one month and 90% after six months) would recommend WALANT treatment to their relatives. Conclusions: overall, patient satisfaction with treatment for CTS using WALANT is high. Furthermore, complications related to the performed treatment and persistent post-operative pain could be associated with more reliable patient recall of this healthcare intervention. A longer period of time between intervention and assessment of patient experience could possibly be a reason for recall bias.
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- 2023
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29. Addressing recall bias in (post-)conflict data collection and analysis: lessons from a large-scale health survey in Colombia.
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Moreno-Serra, Rodrigo, Anaya-Montes, Misael, León-Giraldo, Sebastián, and Bernal, Oscar
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- *
MEMORY bias , *HEALTH surveys , *ACQUISITION of data , *DATA analysis , *PSYCHOLOGICAL literature - Abstract
Background: Much applied research on the consequences of conflicts for health suffers from data limitations, particularly the absence of longitudinal data spanning pre-, during- and post-conflict periods for affected individuals. Such limitations often hinder reliable measurement of the causal effects of conflict and their pathways, hampering also the design of effective post-conflict health policies. Researchers have sought to overcome these data limitations by conducting ex-post surveys, asking participants to recall their health and living standards before (or during) conflict. These questions may introduce important analytical biases due to recall error and misreporting. Methods: We investigate how to implement ex-post health surveys that collect recall data, for conflict-affected populations, which is reliable for empirical analysis via standard quantitative methods. We propose two complementary strategies based on methods developed in the psychology and psychometric literatures—the Flashbulb and test-retest approaches—to identify and address recall bias in ex-post health survey data. We apply these strategies to the case study of a large-scale health survey which we implemented in Colombia in the post-peace agreement period, but that included recall questions referring to the conflict period. Results: We demonstrate how adapted versions of the Flashbulb and test-retest strategies can be used to test for recall bias in (post-)conflict survey responses. We also show how these test strategies can be incorporated into post-conflict health surveys in their design phase, accompanied by further ex-ante mitigation strategies for recall bias, to increase the reliability of survey data analysis—including by identifying the survey modules, and sub-populations, for which empirical analysis is likely to yield more reliable causal inference about the health consequences of conflict. Conclusions: Our study makes a novel contribution to the field of applied health research in humanitarian settings, by providing practical methodological guidance for the implementation of data collection efforts in humanitarian contexts where recall information, collected from primary surveys, is required to allow assessments of changes in health and wellbeing. Key lessons include the importance of embedding appropriate strategies to test and address recall bias into the design of any relevant data collection tools in post-conflict or humanitarian contexts. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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30. Exploring Affect Recall Bias and the Impact of Mild Depressive Symptoms: An Ecological Momentary Study
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Colombo, Desirée, Suso-Ribera, Carlos, Fernandez-Álvarez, Javier, Felipe, Isabel Fernandez, Cipresso, Pietro, Palacios, Azucena Garcia, Riva, Giuseppe, Botella, Cristina, Akan, Ozgur, Editorial Board Member, Bellavista, Paolo, Editorial Board Member, Cao, Jiannong, Editorial Board Member, Coulson, Geoffrey, Editorial Board Member, Dressler, Falko, Editorial Board Member, Ferrari, Domenico, Editorial Board Member, Gerla, Mario, Editorial Board Member, Kobayashi, Hisashi, Editorial Board Member, Palazzo, Sergio, Editorial Board Member, Sahni, Sartaj, Editorial Board Member, Shen, Xuemin (Sherman), Editorial Board Member, Stan, Mircea, Editorial Board Member, Xiaohua, Jia, Editorial Board Member, Zomaya, Albert Y., Editorial Board Member, Cipresso, Pietro, editor, Serino, Silvia, editor, and Villani, Daniela, editor
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- 2019
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31. Factors influencing specialty choice and the effect of recall bias on findings from Irish medical graduates: a cross-sectional, longitudinal study
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Frances M. Cronin, Nicholas Clarke, Louise Hendrick, Ronan Conroy, and Ruairi Brugha
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Specialty choice ,Medical ,Doctor ,Recall bias ,Medical graduates ,Medical training ,Special aspects of education ,LC8-6691 ,Medicine - Abstract
Abstract Background Despite being a vital part of medical workforce planning and development, how medical students and graduates choose their career specialty is still not well understood. This study aimed to identify the factors medical graduates consider important influences in their choice of specialty after their first year of practice, and to test the validity of relying on respondent recall to measure changes in specialty choice. Methods The baseline survey was administered online to all final year students in Ireland’s six medical schools. Those who consented to follow-up (n = 483) were surveyed 18 months later (June 2018), during the final month of first year of practice. Results The baseline survey had a 67% (n = 483) response rate. At the follow-up survey, (n = 232, 48% response rate) the top specialty choices were: Medicine, n = 54 (26%); Surgery, n = 34 (16%); General Practice, n = 28 (13%); Anaesthesia, n = 16 (8%) and Paediatrics, n = 14 (7%). Of the 49 respondents (28%) reporting a change of specialty since baseline, 13 (27%) selected the same specialty in both surveys; of the 121 (69%) reporting no change, 22 (18%) selected a different specialty at follow-up. Over 90% of respondents rated as ‘important or ‘very important’: ‘Own aptitude’, ‘Work-life balance’ and ‘What I really want to do’. Over 75% rated as ‘not at all’, or ‘not very important’ ‘Current financial debt’ and ‘Inclinations before medical school’. When adjusted for sex and age, compared with Medicine, General Practice rated as more important: continuity of patient care (RRR 3.20 CI(1.59–6.41), p = 0.001); working hours/conditions (RRR 4.61 CI(1.03–20.60), p = 0.045) and a career that fit their domestic circumstances (RRR 3.19 CI(1.27–8.02), p = 0.014). Those choosing Surgery rated as less important: patient contact (RRR 0.56 CI(0.33–0.95), p = 0.033) and working hours/conditions (RRR 0.55 CI(0.31–0.96), p = 0.035). Conclusions The different demographic and motivational profiles by specialty choice are consistent with other studies suggesting a distinct profile for doctors intending to enter General Practice. In addition, our results suggest longitudinal study designs guard against recall bias and so provide more robust medical workforce models to inform and direct recruitment drives and interventions in future medical workforce planning.
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- 2020
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32. Relationships Between Self-Rated Health at Three Time Points: Past, Present, Future.
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Hinz, Andreas, Friedrich, Michael, Luck, Tobias, Riedel-Heller, Steffi G., Mehnert-Theuerkauf, Anja, and Petrowski, Katja
- Subjects
AGE groups ,MENTAL health ,MEMORY bias ,OPTIMISM - Abstract
Background: Multiple studies have shown that people who have experienced a serious health problem such as an injury tend to overrate the quality of health they had before that event. The main objective of this study was to test whether the phenomenon of respondents overrating their past health can also be observed in people from the general population. A second aim was to test whether habitual optimism is indeed focused on events in the future. Method: A representatively selected community sample from Leipzig, Germany (n = 2282, age range: 40–75 years) was examined. Respondents were asked to assess their current health, their past health (5 years before), and their expected future health (in 5 years) on a 0–100 scale. In addition, the study participants completed several questionnaires on specific aspects of physical and mental health. Results: Respondents of all age groups assessed their health as having been better in the past than it was at present. Moreover, they also assessed their earlier state of health more positively than people 5 years younger did their current state. Habitual optimism was associated with respondents having more positive expectations of how healthy they will be in 5 years time (r = 0.37), but the correlation with their assessments of their current health was nearly as high (r = 0.36). Conclusion: Highly positive scores of retrospectively assessed health among people who have experienced a health problem cannot totally be accounted for by a response to that health problem. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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33. Validity of maternal recall for estimating childhood vaccination coverage – Evidence from Nigeria.
- Author
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Eze, Paul, Aniebo, Chioma Lynda, Agu, Ujunwa Justina, Agu, Sergius Alex, and Acharya, Yubraj
- Subjects
- *
VACCINATION of children , *VACCINATION , *MEMORY bias , *YELLOW fever , *SENSITIVITY & specificity (Statistics) - Abstract
Vaccination coverage surveys in low- and middle-income countries typically estimate vaccination coverage using data from vaccination cards, parental recall, or a combination of the two. However, these surveys are often complicated by the pervasive absence of vaccination cards, forcing researchers to rely on parental recall. We assessed the validity of mothers' recall against home-based vaccination cards using data from a community-based household survey in Nigeria. A cross-sectional survey of 1,254 mothers of children aged 12–23 months was performed in Enugu State, Nigeria in July 2020. Data on vaccination status for BCG, OPV, DPT, Measles, Yellow fever, and Vitamin A supplement were collected using two data sources: home-based vaccination cards and mothers' recall. We evaluated the level of agreement between the two data sources; estimated the sensitivity and specificity of mothers' recalls; and computed multivariable regression models to identify socio-demographic factors associated with mothers' recall bias. Out of 1,254 mothers interviewed, 578 (46.1%) mothers with vaccination cards were included in this analysis. Vaccination coverage levels were generally similar across data sources, though recall-based data generally underestimated the coverage. The level of agreement between the two data sources was high (≥91.0% for all vaccine types) with recall bias due to under-reporting generally higher than recall bias due to over-reporting. The sensitivity of parental recalls was high for all vaccine types, while the specificity was low across vaccine types. Across all vaccines, mothers recall bias was significantly associated with the rural residence and not receiving postnatal care. In the absence of vaccination cards, mothers' recall of their children' vaccination status for BCG, OPV, DPT, Measles, Yellow fever and Vitamin A is a valid instrument for estimating childhood vaccination coverage in this setting in Nigeria. However, additional research is needed to confirm these findings at higher sub-national and national levels. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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34. DIP: Natural history model for major depression with incidence and prevalence.
- Author
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Yildirim, Melike, Gaynes, Bradley N, Keskinocak, Pinar, Pence, Brian W, and Swann, Julie
- Subjects
- *
MENTAL depression , *NATURAL history , *MEMORY bias , *LINEAR equations , *MARKOV processes - Abstract
Background: Major depression is a treatable disease, and untreated depression can lead to serious health complications. Therefore, prevention, early identification, and treatment efforts are essential. Natural history models can be utilized to make informed decisions about interventions and treatments of major depression.Methods: We propose a natural history model of major depression. We use steady-state analysis to study the discrete-time Markov chain model. For this purpose, we solved the system of linear equations and tested the parameter and transition probabilities empirically.Results: We showed that bias in parameters might collectively cause a significant mismatch in a model. If incidence is correct, then lifetime prevalence is 33.2% for females and 20.5% for males, which is higher than reported values. If prevalence is correct, then incidence is .0008 for females and .00065 for males, which is lower than reported values. The model can achieve feasibility if incidence is at low levels and recall bias of the lifetime prevalence is quantified to be 31.9% for females and 16.3% for males.Limitations: This model is limited to major depression, and patients who have other types of depression are assumed healthy. We assume that transition probabilities (except incidence rates) are correct.Conclusion: We constructed a preliminary model for the natural history of major depression. We determined the lifetime prevalences are underestimated and the average incidence rates may be underestimated for males. We conclude that recall bias needs to be accounted for in modeling or burden estimates, where the recall bias should increase with age. [ABSTRACT FROM AUTHOR]- Published
- 2022
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- View/download PDF
35. Relationships Between Self-Rated Health at Three Time Points: Past, Present, Future
- Author
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Andreas Hinz, Michael Friedrich, Tobias Luck, Steffi G. Riedel-Heller, Anja Mehnert-Theuerkauf, and Katja Petrowski
- Subjects
retrospective assessment ,health ,recall bias ,optimism ,response shift bias ,Psychology ,BF1-990 - Abstract
Background: Multiple studies have shown that people who have experienced a serious health problem such as an injury tend to overrate the quality of health they had before that event. The main objective of this study was to test whether the phenomenon of respondents overrating their past health can also be observed in people from the general population. A second aim was to test whether habitual optimism is indeed focused on events in the future.Method: A representatively selected community sample from Leipzig, Germany (n = 2282, age range: 40–75 years) was examined. Respondents were asked to assess their current health, their past health (5 years before), and their expected future health (in 5 years) on a 0–100 scale. In addition, the study participants completed several questionnaires on specific aspects of physical and mental health.Results: Respondents of all age groups assessed their health as having been better in the past than it was at present. Moreover, they also assessed their earlier state of health more positively than people 5 years younger did their current state. Habitual optimism was associated with respondents having more positive expectations of how healthy they will be in 5 years time (r = 0.37), but the correlation with their assessments of their current health was nearly as high (r = 0.36).Conclusion: Highly positive scores of retrospectively assessed health among people who have experienced a health problem cannot totally be accounted for by a response to that health problem.
- Published
- 2022
- Full Text
- View/download PDF
36. A review of the peak-end rule in mental health contexts.
- Author
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Horwitz AG, McCarthy K, and Sen S
- Subjects
- Humans, Mental Recall, Mental Health, Emotions, Mental Disorders therapy
- Abstract
The peak-end rule, a memory heuristic in which the most emotionally salient part of an experience (i.e., peak) and conclusion of an experience (i.e., end) are weighted more heavily in summary evaluations, has been understudied in mental health contexts. The recent growth of intensive longitudinal methods has provided new opportunities for examining the peak-end rule in the retrospective recall of mental health symptoms, including measures often used in measurement-based care initiatives. Additionally, principles of the peak-end rule have significant potential to be applied to exposure-based therapy procedures. Additional research is needed to better understand the contexts in which, and persons for whom, the peak-end rule presents a greater risk of bias, to ultimately improve assessment strategies and clinical care., Competing Interests: Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper., (Copyright © 2024 Elsevier Ltd. All rights reserved.)
- Published
- 2024
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37. Minimum Dietary Diversity for Women: Partitioning Misclassifications by Proxy Data Collection Methods using Weighed Food Records as the Reference in Ethiopia.
- Author
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Hanley-Cook GT, Hoogerwerf S, Parraguez JP, Gie SM, and Holmes BA
- Abstract
Background: Nonquantitative list-based or open 24-h recalls (24-HRs) have been shown to overestimate the prevalence of Minimum Dietary Diversity for Women (MDD-W), as compared with direct quantitative observations. However, the main sources of error are unknown., Objectives: To assess the measurement agreement of proxy data collection methods for MDD-W, as compared with weighed food records (WFRs)., Methods: Applying a noninferiority design, data were collected from 431 nonpregnant females in Ethiopia. MDD-W estimates from both proxy data collection methods were compared with the WFR prevalence by McNemar's chi-square tests, Cohen's Kappa, and receiver operator characteristic analyses. Ten-point food group diversity scores (FGDS) were compared by Bland-Altman plots, Wilcoxon matched-pairs tests, and weighted Kappa. Food group misclassifications were partitioned into errors related to respondent biases or the questionnaire development., Results: List-based and open 24-HRs overreported MDD-W by 8 and 4 percentage points, respectively, as compared with WFR (objective MDD-W prevalence: 8%). Furthermore, list-based 24-HRs overestimated FGDS by 0.4 points (limits of agreement [LOA]: -1.1, 2.0), whereas open 24-HRs led to a 0.3 point (LOA: -1.2, 1.7) overestimate. Food groups most likely to be misreported using proxy data collection methods were "pulses," "nuts and seeds," "dairy products," and "other fruits." Underreporting of consumption occurred among <4% of females for all food groups. Furthermore, respondent biases were the predominant cause of food group overreporting, except for the "pulses" and "other vegetables" food groups, where food items incorrectly included on the food list were the main source of errors., Conclusions: Food group consumption misclassifications by proxy data collection methods were mainly attributable to females overreporting consumption because of respondent biases or the criterion for foods to be counted, rather than the suboptimal development of the food list in Ethiopia. To obtain precise and accurate MDD-W estimates at the (sub)national level, rigorous context-specific food list development, questionnaire pilot testing, and enumerator training are recommended to mitigate identified biases., (© 2024 Food and Agriculture Organization of the United Nations.)
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- 2024
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38. Correspondence on Rising prevalence of food allergies in Taiwan: An epidemiology study.
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Wu, Patrick, Yong, Su‐Boon, and Yii, Chin‐Yuan
- Subjects
- *
FOOD allergy , *EPIDEMIOLOGY , *AIR pollution potential , *TAIWANESE people , *COVID-19 pandemic - Published
- 2024
- Full Text
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39. Adult retrospective report of child abuse and prospective indicators of childhood harm: a population birth cohort study.
- Author
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Pinto Pereira, Snehal M., Rogers, Nina T., and Power, Christine
- Subjects
- *
REPORTING of child abuse , *COHORT analysis , *PSYCHOLOGICAL child abuse , *PARENT-child relationships , *ADULTS , *CHILD abuse - Abstract
Background: We aim to determine whether adult retrospective report of child abuse is associated with greater risk of prospectively assessed harmful environments in childhood. We assessed possible recall basis by adult depression status.Methods: At 45 years, participants of the 1958 British birth cohort (N = 9308) reported a range of abuse types (by 16 years). Prospective data, ages 7-16 years, were obtained for impoverished upbringing, hazardous conditions, anti-social behaviours and 16 years poor parent-child relationships. We estimated associations between retrospective report of child abuse and prospectively measured harm using (i) odds ratios (ORs, 95% confidence intervals) and (ii) positive predictive values (PPVs). PPVs were calculated stratified by adult depression status.Results: Prevalence of retrospectively reported abuse ranged from 10.7% (psychological) to 1.60% (sexual) and 14.8% reported ≥ 1 type; prospectively recorded harm ranged from 10% (hazardous conditions/poor parent-child relationships) to 20% (anti-social behaviours). Adults retrospectively reporting abuse were more likely to have had harmful childhood environments: 52.4% had ≥ 1 indicator of harm (vs. 35.6% among others); ORsex-adjusted for poor relationships with parents was 2.98 (2.50, 3.54). For retrospectively reported (vs. none) abuse, there was a trend of increasing relative risk ratio with number of harms, from 1.75 (1.50, 2.03) for 1 to 4.68 (3.39, 6.45) for 3/4 childhood harms. The PPV of ≥ 1 prospectively recorded harm did not differ between depressed (0.58 (0.52, 0.64)) and non-depressed (0.58 (0.55, 0.61)) groups.Conclusions: In a population cohort, adult retrospective report of child abuse was associated with several harms, prospectively measured from childhood to adolescence, providing support for the validity of retrospective report-based research. Findings suggest retrospectively reported child abuse is not biased by depression in adulthood. [ABSTRACT FROM AUTHOR]- Published
- 2021
- Full Text
- View/download PDF
40. Measuring Farm Labor: Survey Experimental Evidence from Ghana.
- Author
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Gaddis, Isis, Oseni, Gbemisola, Palacios-Lopez, Amparo, and Pieters, Janneke
- Subjects
AGRICULTURAL laborers ,LABOR productivity ,MEMORY bias ,HOUSEHOLD employees ,WORKING hours ,HOUSEHOLDS - Abstract
This study examines recall bias in farm labor through a randomized survey experiment in Ghana, comparing farm labor estimates from an end-of-season recall survey with data collected weekly throughout the agricultural season. Recall households report 10 percent more farm labor per person-plot, which can be explained by recall households' underreporting of "marginal" plots and household workers. This "selective" omission by recall households, denoted as listing bias, alters the composition of plots and workers across treatment arms and inflates average farm labor hours per person-plot in the recall group. Since listing bias, in this setting, dominates other forms of recall bias at higher levels of aggregation (i.e. when farm labor per person-plot is summed at the plot, person, or household level), farm labor productivity is overestimated for recall households. Consistent with the notion that recall bias is linked to the cognitive burden of reporting on past events, there is no recall bias among more educated households. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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41. Confounding, Mediation, or Independent Effect? Childhood Psychological Abuse, Mental Health, Mood/Psychological State, COPD, and Migraine.
- Author
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Sheikh, Mashhood Ahmed
- Subjects
- *
RELATIVE medical risk , *AFFECT (Psychology) , *CONFIDENCE intervals , *CHILD abuse , *NEGOTIATION , *CROSS-sectional method , *MENTAL health , *REGRESSION analysis , *RISK assessment , *OBSTRUCTIVE lung diseases , *DESCRIPTIVE statistics , *DATA analysis software , *ODDS ratio , *POISSON distribution , *LONGITUDINAL method , *DISEASE risk factors , *ADULTS ,MIGRAINE risk factors - Abstract
In some settings, it may be difficult to differentiate between a confounder and a mediator. For instance, the observed association of self-reported childhood psychological abuse (CPA) with onset of chronic obstructive pulmonary disease (COPD) and migraine may be confounded by current mood/psychological state (e.g., the subjective evaluation of one's own affective state), as well as mediated by an individual's psychopathological symptoms. In this study, we propose the "independence hypothesis," which could prove meaningful to explore in data that lack prospective or objective indices of CPA. We used cross-sectional data from wave VI (2007-2008) of the Tromsø Study, Norway (N = 12,981). The associations between CPA and COPD and migraine were assessed with Poisson regression models. CPA was associated with a 46% increased risk of COPD (relative risk [RR] = 1.46, 95% confidence interval [CI]: [1.02, 1.90]) and a 28% increased risk of migraine in adulthood (RR = 1.28, 95% CI: [1.04, 1.53]), independent of age, sex, parental history of psychiatric problems/asthma/dementia, smoking, respondent's mood/psychological state, and mental health. These findings suggest that the association between retrospectively reported CPA and COPD and migraine is not driven entirely by respondent's mood/psychological state and mental health. Assessing the independent effect of self-reported CPA on COPD and migraine in retrospective studies may prove more meaningful than exploring the mediating role of mental health. Here, we provide the analytical rationale for assessing the independent effect in settings where it is difficult to differentiate between a confounder and a mediator. Moreover, we provide a theoretical rationale for assessing the independent effect of retrospectively reported childhood adversity on health and well-being. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
42. An investigation of methods to improve recall for the patient-reported outcome measurement in COPD patients: a pilot randomised control trial and feasibility study protocol
- Author
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Sheree M. S. Smith, Stephen Jan, Joseph Descallar, and Guy B. Marks
- Subjects
Patient-reported outcomes ,Recall bias ,Patient-reported outcome measurement ,Medicine (General) ,R5-920 - Abstract
Abstract Background Patient-reported outcomes (PRO) are used to measure the effectiveness of interventions for management of chronic conditions such as chronic obstructive pulmonary disease. Many of these instruments require respondents to describe the change in their health status from baseline to a follow-up assessment and poor recall of previous health status often limits the usefulness and validity of these PRO measures. The use of technology has recently increased in PRO measurement. This study aims to mitigate the problems of poor recall by evaluating different strategies as a way to improve the validity of recall of health status among adults with COPD. Methods A pilot randomised controlled trial of three strategies to improve patient recall will be tested in an acute care clinical environment. The first strategy is the use of tablet computer technology’s audio-visual facility, the second strategy is the provision of base line PRO responses prior to patients completing their follow-up questionnaires and third is standard practice of completing a questionnaire independently of previous responses. The feasibility of conducting this study in a busy clinical environment will be ascertained using the NIHR criteria for assessing feasibility. Discussion There is variability in a person’s ability to recall past events. With studies utilising patient-reported outcome measurement, it has become critically important to develop strategies and ways of supporting the patient to be more accurate recalling their health status. The adaptation of various technological features within mobile devices may provide an opportunity in clinical research studies to improve patient recall of their health status. Trial registration ANZCTR12618001605280.
- Published
- 2019
- Full Text
- View/download PDF
43. Agreement between retrospectively assessed health-related quality of life collected 1 week and 12 months post-injury: an observational follow-up study
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Juanita Haagsma, Gouke Bonsel, Mariska de Jongh, and Suzanne Polinder
- Subjects
Health-related quality of life ,EQ-5D ,Recall bias ,Trauma population ,Computer applications to medicine. Medical informatics ,R858-859.7 - Abstract
Abstract Background Retrospective assessment of pre-injury health-related quality of life (HRQL) is frequently used to measure change from pre- to post-injury HRQL. However, retrospective measurement may be confounded by recall bias. It is assumed that presence of recall bias is influenced by several factors, such as the measurement scale or the instrument that is used, the measurement schedule, and the presence of a substantial health event during the follow up period. This study empirically tests these assumptions by comparing pre-injury EQ-5D summary scores, EQ-5D profiles and visual analogue scale (EQ-VAS) scores of trauma patients, as recorded 1 week and 12 months post-injury, respectively. Methods A sample of 5371 adult trauma patients who attended the Emergency Department (ED) followed by hospital admission, received postal questionnaires 1 week (T1) and 12 months (T2) post-injury. The questionnaires contained items on pre-injury health, in terms of EQ-5D3L and EQ-VAS. Results One thousand one hundred sixty-six completed data pairs with T1 and T2 pre-injury data were available. Mean pre-injury EQ-5D summary scores were 0.906 (T1) and 0.905 (T2), respectively, with moderate intertemporal agreement (intraclass correlation coefficient (ICC) T1T2 = 0.595). In absolute terms, 442 (37.9%) respondents reported a different pre-injury EQ-5D profile at T2 compared to T1. The least stable EQ-5D dimension was pain/discomfort (20.2% reported a change). Mean T2 pre-injury EQ-VAS score was significantly higher than mean T1 pre-injury EQ-VAS score (T2 84.6 versus T1 83.3). Multivariable logistic regression analysis indicated that lower educational level, comorbid disease and having PTSD symptoms were independent predictors of change of pre-injury EQ-5D profile. Conclusions Despite one third of respondents reported a different pre-injury health level, if asked for on two interview occasions separated by 1 year, on the group level this difference was nil (EQ-5D summary score) to small (EQ-VAS). The consistent symmetrical pattern of change suggests random error to play the largest role. Intertemporal reliability was the same in EQ-5D profiles vs. EQ-VAS scores, ruling out scale effects. Particularly certain trauma subgroups showed highest distortion. While group comparisons may be trusted, in pre-post analysis and repeated measure analysis the individual injury impact and recovery pattern may be wrongly estimated.
- Published
- 2019
- Full Text
- View/download PDF
44. Hochrechnung aus den Individualdaten
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Küchenhoff, Helmut, Shao, Shuai, Alkaya, Levent, Klima, André, editor, Küchenhoff, Helmut, editor, Selzer, Mirjam, editor, and Thurner, Paul W., editor
- Published
- 2017
- Full Text
- View/download PDF
45. Improving reports of health risks: Life history calendars and measurement of potentially traumatic experiences.
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Axinn, William G. and Chardoul, Stephanie
- Subjects
- *
LIFE history interviews , *MEMORY bias , *CALENDAR , *DEMOGRAPHIC surveys - Abstract
Objectives: Recall error biases reporting of earlier life experiences, even potentially traumatic experiences (PTEs). Better tools for accurate retrospective reporting of PTEs and other health risk factors have the potential for broad scientific and health intervention benefits. Methods: We designed a life history calendar (LHC) to support this task and randomized more than 1000 individuals to each arm of a retrospective diagnostic interview, including detailed measures of PTEs, with and without the LHC. This is one of the largest experiments ever done to assess the benefit of an LHC approach and the only large‐scale experiment done in a poor, agrarian, non‐Western setting (rural Nepal). Results: Results demonstrate use of an LHC in retrospective measurement can significantly increase lifetime reports of PTEs, especially reports of two or more PTEs. The LHC increases PTE reporting more for men and those with less education. Conclusions: The LHC approach is practical for many uses ranging from large surveys of the general population to clinical intake of new patients. It significantly increases reporting of health risk factors. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
46. Recall bias during adolescence: Gender differences and associations with depressive symptoms.
- Author
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Bone, Jessica K., Lewis, Gemma, Roiser, Jonathan P., Blakemore, Sarah-Jayne, and Lewis, Glyn
- Subjects
- *
MEMORY bias , *MENTAL depression , *AGE differences , *GENDER , *ADOLESCENCE - Abstract
Background: There is a sharp increase in depression in females in mid-adolescence, but we do not understand why. Cognitive theories suggest that people with depression have negative biases in recalling self-referential information. We tested whether recall biases were more negative in girls in early and mid-adolescence and were associated with depressive symptoms.Methods: 315 young and 263 mid-adolescents (11-12 and 13-15 years) completed a surprise test, assessing recall of social evaluation about the self (self-referential) or another person (other-referential). The short Mood and Feelings Questionnaire measured depressive symptoms. We tested the effects of condition (self-referential/other-referential), valence (positive/negative), gender, and age group on correct recall (hits) and associations with depressive symptoms.Results: There was no evidence for gender or age differences in positive or negative self-referential recall. Self-referential positive hits were negatively associated with depressive symptoms (adjusted coefficient=-0.38, 95% CI=-0.69-0.08, p=0.01). Self-referential negative hits were positively associated with depressive symptoms (adjusted coefficient=0.45, 95% CI=0.15-0.75, p=0.003), and this association was stronger in females (adjusted interaction p=0.04).Limitations: The reliability and validity of the recall task are unknown. We cannot provide evidence of a causal effect of recall on depressive symptoms in this cross-sectional study.Conclusions: Adolescents who recalled more self-referential negative and fewer self-referential positive words had more severe depressive symptoms. Females did not demonstrate more recall biases, but the association between self-referential negative hits and depressive symptoms was stronger in females. Negative self-referential recall may be a risk factor for depressive symptoms and is a good candidate for longitudinal studies. [ABSTRACT FROM AUTHOR]- Published
- 2021
- Full Text
- View/download PDF
47. Are Mothers Certain About Their Perceptions of Recalled Infant Feeding History?
- Author
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Sorce, Lauren R., Schoeny, Michael E., Curley, Martha A.Q., and Meier, Paula P.
- Abstract
Maternal recall of infant feeding, a potential measurement bias, is used to identify the relationship between mothers' own milk (MOM) feeding and subsequent health outcomes. This study describes maternal recall certainty of MOM feedings at four time periods. In this secondary analysis, mothers of children ages 4-36 months describe infants' MOM feeding and rate certainty of their recall. MOM was the first feeding for 78.5% of infants and received by 83% the first week, 85% the first month, and 62% the fourth month. Ratings of recall certainty were > 95% for each time period. Recall certainty was significantly different for four time periods (χ
2 = 9.67, p = 0.02), with no two periods significantly different in post hoc analyses. Maternal recall certainty of infant feeding was high regardless of elapsed time. Measuring maternal recall certainty may be useful in clinical practice and studies linking MOM exposure to subsequent health outcomes. [ABSTRACT FROM AUTHOR]- Published
- 2021
- Full Text
- View/download PDF
48. When Hindsight Is Not 20/20: Ecological Momentary Assessment of PTSD Symptoms Versus Retrospective Report.
- Author
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Schuler, Keke, Ruggero, Camilo J., Mahaffey, Brittain, Gonzalez, Adam, L. Callahan, Jennifer, Boals, Adriel, Waszczuk, Monika A., Luft, Benjamin J., and Kotov, Roman
- Subjects
- *
DIAGNOSIS of post-traumatic stress disorder , *MEDICAL needs assessment , *POST-traumatic stress disorder , *STATISTICAL sampling , *SELF-evaluation , *RETROSPECTIVE studies , *SEVERITY of illness index , *MEMORY bias - Abstract
Assessment of posttraumatic stress disorder (PTSD) has relied almost exclusively on retrospective memory of symptoms, sometimes over long intervals. This approach creates potential for recall bias and obscures the extent to which symptoms fluctuate. The aim of the present study was to examine the discrepancy between retrospective self-reporting of PTSD symptoms and ecological momentary assessment (EMA), which captures symptoms closer to when they occur. The study also sought to estimate the degree to which PTSD symptoms vary or are stable in the short-term. World Trade Center responders (N = 202) oversampled for current PTSD (19.3% met criteria in past month) were assessed three times a day for 7 consecutive days. Retrospective assessment of past week symptoms at the end of the reporting period were compared with daily EMA reports. There was correspondence between two approaches, but retrospective reports most closely reflected symptom severity on the worst day of the reporting period rather than average severity across the week. Symptoms varied significantly, even within the span of hours. Findings support intervention research efforts focused on exploiting significant, short-term variability of PTSD symptoms, and suggest that traditional assessments most reflect the worst day of symptoms over a given period of recall. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
49. Do Patients Accurately Recall Pain Levels Following Sacroiliac Joint Steroid Injection? A Cohort Study of Recall Bias in Patient-reported Outcomes.
- Author
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Gong DC, Muralidharan A, Butt BB, Wasserman R, Piche JD, Patel RD, and Aleem I
- Subjects
- Humans, Female, Aged, Male, Cohort Studies, Prospective Studies, Patient Reported Outcome Measures, Sacroiliac Joint, Steroids therapeutic use
- Abstract
Background: Sacroiliac joint (SIJ) injections are crucial in the diagnostic toolkit for evaluating SIJ pathology. Recall bias is an important component in patient-reported outcomes that has not been well studied in SIJ injection., Objective: The purpose of this study was to characterize the accuracy, direction, and magnitude of pain level recall bias following SIJ steroid injection and study the factors that affect patient recollection., Study Design: Prospective cohort study., Setting: Level 1 academic medical center., Methods: Using standardized questionnaires, baseline Numeric Rating Scale (NRS-11) scores were recorded for patients undergoing SIJ steroid injections at preinjection, at 4 hours postinjection, and at 24 hours postinjection. At a minimum of 2 weeks postinjection, patients were asked to recall their preinjection, 4-hour, and 24-hour postinjection NRS-11 scores. Actual and recalled NRS-11 scores were compared using paired t tests for each time interval. Multivariable linear regression was used to identify factors that correlated with consistent recall., Results: Sixty patients with a mean age of 66 years (65% women) were included. Compared to their preinjection pain score, patients showed considerable improvement at both 4 hours (mean difference [MD] = 3.28; 95% CI, 2.68 - 3.89), and 24 hours (MD = 3.23; 95% CI, 2.44 - 4.03) postinjection. Patient recollection of preinjection symptoms was more severe than actual (MD = 0.65; 95% CI, 0.31 - 0.99). Patient recollection of symptoms was also more severe than actual at 4 hours (MD = 0.50; 95% CI .04 - 1.04) as well as at 24 hours postinjection (MD = 0.80; 95% CI, 0.16 - 1.44). The magnitude of recall bias was mild and did not exceed the minimal clinically important difference. There was a moderate correlation between actual and recalled pain levels when comparing preinjection with the 4-hour postinjection NRS-11 score (correlation coefficient [r] =0.64; P < 0.001) and moderate correlation when comparing preinjection with the 24-hour postinjection NRS-11 score (r = 0.62; P < 0.001). Linear regression models showed that at preinjection, patients with a lower body mass index and the presence of coexisting psychiatric diagnoses were better at recalling their pain (P < 0.05). Patients with a higher body mass index also experienced less pain relief when comparing preinjection with the 4-hour postinjection NRS-11 score (P < 0.05)., Limitations: Recall pain scores were obtained via telephone surveys, which can lead to interview bias. One patient died, and 3 were lost to follow-up. We did not control for patient use of adjunctive pain relief modalities, which may modulate the overall response to injection. SIJ injections can also be diagnostic, so some patients may not have shared the same indication for injection or pain-generating diagnosis., Conclusions: Patients had favorable pain level responses to their SIJ steroid injection for both actual and recall surveys. Although patients demonstrated poor recall of absolute pain scores at preinjection, 4-hour postinjection, and 24-hour postinjection, they demonstrated robust recall of their net pain score improvement at both 4- and 24-hours postinjection. These findings suggest that there is utility in using patient recollection to describe the magnitude of pain relief following treatment for sacroiliac joint dysfunction.
- Published
- 2024
50. The Role of Chronic Stress in Normal Visceroception: Insights From an Experimental Visceral Pain Study in Healthy Volunteers
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Adriane Icenhour, Franziska Labrenz, Till Roderigo, Sven Benson, and Sigrid Elsenbruch
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chronic stress ,visceroception ,gut-brain axis ,visceral pain ,urgency ,recall bias ,Psychiatry ,RC435-571 - Abstract
Visceroception is a complex phenomenon comprising the sensation, interpretation, and integration of sensations along the gut-brain axis, including pain or defecatory urgency. Stress is considered a crucial risk factor for the development and maintenance of disorders of gut-brain signaling, which are characterized by altered visceroception. Although the broad role of stress and stress mediators in disturbed visceroception is widely acknowledged, the putative contribution of chronic stress to variations in normal visceroception remains incompletely understood. We aimed to elucidate the role of chronic stress in shaping different facets of visceroception. From a well-characterized, large sample of healthy men and women (N = 180, 50% female), volunteers presenting with low (n = 57) and elevated (n = 61) perceived chronic stress were identified based on the validated Trier Inventory for Chronic Stress (TICS). Visceral sensitivity together with perceived and recalled intensity and defecatory urgency induced by repeated rectal distensions was experimentally assessed, and compared between low and elevated stress groups. Subgroups were compared regarding state anxiety and salivary cortisol concentrations across experimental phases and with respect to psychological measures. Finally, in the full sample and in chronic stress subgroups, a recall bias in terms of a discrepancy between the perception of experimentally-induced symptoms and their recall was tested. Participants with elevated chronic stress presented with increased state anxiety and higher cortisol concentrations throughout the experimental phases compared to the group with low chronic stress. Group differences in visceral sensitivity were not evident. The elevated stress group perceived significantly higher urgency during the stimulation phase, and recalled substantially higher feelings of urgency induced by rectal distensions, while perceived and recalled intensity were comparable between groups. Volunteers with elevated stress exhibited a recall bias in terms of a higher recall relative to mean perception of urgency, whereas no such bias was observed for the intensity of experimental visceral stimulation. Our findings in healthy men and women provide first evidence that the troublesome symptom of urgency might be particularly modifiable by chronic stress and support the relevance of memory biases in visceroception. These results may help to disentangle the impact of chronic stress on altered visceroception in disturbances of gut-brain communication.
- Published
- 2020
- Full Text
- View/download PDF
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