1. Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries
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Anna L Rich, Robert Milroy, Inmaculada Alfageme, Arnaud Scherpereel, Assia Konsoulova, Thierry Berghmans, Riitta Mäkitaro, Paul Martin Putora, Steinn Jonsson, Torsten Blum, Mina Gaga, Jean-Paul Sculier, Erik Jakobsen, Renato Sotto-Mayor, Otto C. Burghuber, E. Kavcová, Dragana Jovanovic, Edvardas Danila, Marianne Paesmans, Stefano Elia, Tanel Laisaar, Tanja Cufer, Bakir Mehić, Gunnar Hillerdal, Bogdan Grigoriu, Trond Eirik Strand, Ross K. Morgan, Tuncay Göksel, Paul Van Schil, David R Baldwin, Stephen Brincat, Milda Nanushi, Marc Schlesser, Alexandru Corlateanu, Ronald A. M. Damhuis, Jana Skrickova, Judit Moldvay, Joanna Domagała-Kulawik, Rudolf M. Huber, Miroslav Samarzija, Paul Beckett, Ege Üniversitesi, Faculty of Medicine (UI), Læknadeild (HÍ), Heilbrigðisvísindasvið (HÍ), School of Health Sciences (UI), Háskóli Íslands (HÍ), University of Iceland (UI), and Universidad de Sevilla. Departamento de Medicina
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Cancer Research ,Lung Neoplasms ,Databases, Factual ,Settore MED/06 - Oncologia Medica ,Epidemiology ,Settore MED/21 - Chirurgia Toracica ,Medical Oncology ,0302 clinical medicine ,lung cancer ,epidemiology ,data collection ,audit ,datasets ,Data reporting ,Audit ,Data collection ,Datasets ,Lung Cancer ,610 Medicine & health ,VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin, sosialmedisin: 801 ,International comparisons ,pljučne novotvorbe -- epidemiologija -- Evropa ,Census ,Sciences bio-médicales et agricoles ,lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens ,Europe ,Oncology ,030220 oncology & carcinogenesis ,Research Article ,medicine.medical_specialty ,pljučni rak ,lcsh:RC254-282 ,Set (abstract data type) ,03 medical and health sciences ,Krabbameinsrannsóknir ,Genetics ,medicine ,Humans ,raziskave ,lung neoplasms -- epidemiology -- Europe ,udc:616-006 ,Faraldsfræði ,studies ,030228 respiratory system ,Lungnakrabbamein ,Family medicine ,Data quality ,Human medicine ,VDP::Medical disciplines: 700::Health sciences: 800::Community medicine, Social medicine: 801 - Abstract
Publisher’s Note: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations., Background: A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. Methods: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. Results: Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, BosniaHerzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. Conclusion: Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a welldesigned dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research., No research funding was received.
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- 2018
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