26 results on '"infant loss"'
Search Results
2. Stillbirth Grief, Eco-grief and Corona Grief: Reflections on Denialism
- Author
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Hron, Madelaine, Vakoch, Douglas A., editor, and Mickey, Sam, editor
- Published
- 2022
- Full Text
- View/download PDF
3. Racial and ethnic differences in the relationship between infant loss after prior live birth and hypertensive disorders in pregnancy.
- Author
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Wagstaff, Kathryn, Williams, Joni S., Garacci, Emma, Shour, Abdul R., Palatnik, Anna, and Egede, Leonard E.
- Subjects
- *
ETHNIC differences , *RACIAL differences , *INFANTS , *RACE , *HYPERTENSION - Abstract
Background: Race and ethnicity influence the distribution and severity of hypertensive disorders of pregnancy (HDP) in the U.S. population, although the impact of prior infant loss on this relationship requires further investigation. Objectives: The aim of this study was to assess the relationship between history of infant loss and the risk of HDP by maternal race and ethnicity. Methods: For this large cross-sectional study, data were analyzed from the National Center for Health Statistics Vital Statistics Natality Birth Data, 2014–2017. The primary outcome was HDP, and the primary predictor was infant loss after prior live birth. Maternal race/ethnicity was the secondary predictor categorized as Non-Hispanic White (NHW), Non-Hispanic Black (NHB), Hispanic, Asian, or Other. Multiple logistic regression was used to assess the association between history of infant loss and HDP by race and ethnicity. Results: The 9,439,520 women included in this sample were 51% NHW, 15% NHB, 25% Hispanic, 6% Asian, and 3% Other with a mean age of 29.8 ± 5.3 years. In adjusted analyses, infant loss after prior live birth was significantly associated with an 11% odds of HDP (OR 1.11, 95% CI 1.08, 1.13). Stratified by race, NHB (OR 1.28; 95% CI 1.21, 1.36) women had significantly higher odds of HDP, and Hispanic (OR 0.84, 95% CI 0.79, 0.90) and Asian (OR 0.85, 95% CI 0.75, 0.97) women had significantly lower odds compared to NHW women. Within races, all women with infant loss after prior live birth had significantly higher odds of HDP (p< .001), except Other women (p= .632). Conclusions: Infant loss after prior live birth was significantly associated with higher odds of HDP among NHB women after adjusting for covariates. Further research is warranted to assess underlying mechanisms associated with higher odds of HDP in NHB women. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
4. Stillborn Dreams: Infant Loss and Maternal Identity in Martín Gaite's "Lo que queda enterrado".
- Author
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Ames, Debra C.
- Subjects
STILLBIRTH ,DEPERSONALIZATION ,FAMILY size ,HUMAN behavior ,CHILDLESSNESS ,HUMAN reproduction - Abstract
The developing field of motherhood studies has led scholars to re-examine the complex nature of maternal identity, yet only recently has attention turned to the figure of the childless mother--the woman who has experienced pregnancy and perhaps childbirth but who has no living children. The silence surrounding infant loss has greatly limited representa
- Published
- 2020
5. The trauma of infant loss.
- Author
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Christiansen, Dorte M.
- Subjects
STILLBIRTH ,POST-traumatic stress disorder ,DISEASE prevalence - Abstract
Infant loss occurring prior to, during, or up to one year after birth, is a relatively common event that often affects mothers and fathers deeply. Although infant loss is most commonly characterised as a loss event, it can also be highly traumatic and lead to posttraumatic stress disorder (PTSD) with prevalence rates falling in the moderate-to-severe range compared to other traumatic events. Pre- and post-loss risk factors associated with PTSD following other types of trauma also predict PTSD following infant loss. Early identification of PTSD is extremely important, as the disorder is severely under-diagnosed in the parent population and may have a high number of adverse effects for the bereaved parent as well as his/her family, including children born subsequent to the loss. [ABSTRACT FROM AUTHOR]
- Published
- 2019
6. Bittersweet: a qualitative exploration of mothers' experiences of raising a single surviving twin.
- Author
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Jordan, Abbie, Smith, Paula, and Rodham, Karen
- Subjects
- *
PSYCHOLOGICAL adaptation , *ATTITUDE (Psychology) , *BEREAVEMENT , *CONCEPTUAL structures , *FAMILIES , *GRIEF , *GROUP identity , *MOTHERHOOD , *MULTIPLE birth , *PARENTING , *SELF-perception , *SURVEYS , *TWINS , *QUALITATIVE research , *SOCIAL support , *NARRATIVES , *THEMATIC analysis , *ATTITUDES of mothers - Abstract
Loss of a child from a multiple birth pregnancy is not uncommon yet the idiographic experience of parents who have lost a single twin from a multiple birth pregnancy is underexplored. This novel study sought to explore the experiences of mothers bereaved after loss of a twin from a multiple birth pregnancy, focusing on the dual challenges of parenting and grieving. Eighteen mothers at least 12 months post loss were recruited from a private UK based Facebook page dedicated to supporting parents after loss from a multiple birth. Eligible mothers completed an independent qualitative open-ended survey to explore maternal experiences of loss. Data were analysed using Thematic Analysis. Findings represented a sense of duality for participants, with mothers experiencing conflict between roles and identities as well as the nature of their loss. Key themes identified include 'Narrating a story of family and loss', 'Finding a place for the twins within the family' and 'A changing sense of self'. Findings fit with theoretical conceptualisations of bereavement that acknowledge retaining relationships with the deceased. Practically, suggestions for supporting mothers to identify stock answers to often asked questions about family make up were suggested. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
7. "They Say I Should not Think About It:" A Qualitative Study Exploring the Experience of Infant Loss for Bereaved Mothers in Kumasi, Ghana.
- Author
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Meyer, Anna C., Opoku, Constance, and Gold, Katherine J.
- Subjects
- *
BEREAVEMENT , *INFANT death , *RESEARCH funding , *QUALITATIVE research , *SOCIAL support , *THEMATIC analysis , *ATTITUDES of mothers , *DATA analysis software , *DESCRIPTIVE statistics - Abstract
Despite the high rate of infant mortality in Ghana, few studies have explored the maternal experience of infant loss and the perinatal grieving process. As part of a larger study that interviewed 153 mothers with a sick infant, this 1-year follow-up study reinterviewed eight mothers from the original cohort whose infant died since the study began. Mothers were queried about mental health, coping, and cultural issues related to the loss. Mothers were often discouraged from speaking or thinking about the death due to fear of psychological harm and impact on fertility. Primary coping mechanisms involved seeking support within the community and accepting the loss as God's will. Mothers desired more communication from health-care providers at the time of death. Despite the cultural norm of silent acceptance in the face of perinatal loss, intense maternal grief and desire to mourn may allow more opportunities for health-care workers to support bereaved mothers. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
8. Transitional Objects to Faciliate Grieving Following Perinatal Loss.
- Author
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LeDuff III, Lawrence D., Bradshaw, Wanda T., Blake, Stephanie M., and LeDuff, Lawrence D 3rd
- Subjects
BEREAVEMENT ,GRIEF ,PSYCHOLOGY of parents ,PERINATAL death ,QUESTIONNAIRES ,NEONATAL nursing - Abstract
Background: Parents who experience a perinatal loss often leave the hospital with empty arms and no tangible mementos to validate the parenting experience. Opportunities to create parenting experiences with transitional objects exist following the infant's death.Purpose: This article offers suggestions for staff in units where infant loss is possible to best assist parents in optimal grieving through the offering of transitional bereavement objects.Methods/search Strategy: CINAHL Complete, MEDLINE, and the Cochrane Database of Systematic Reviews were searched using the following key words-perinatal bereavement, grief, perinatal loss, transitional objects, bereavement photography-and the search was limited to 5 years and the English language.Findings/results: Recommendations exist and are well supported by leading neonatal and perinatal nursing and medicine organizations for the use of transitional objects to facilitate healthy grieving when parents experience perinatal loss. Transitional objects are mementos that validate the meaning of parenthood-even if the physical act of parenting was brief. Nursing and medical staff have significant roles in guiding parents to a healthy state of bereavement and ultimately managing long-term grief.Implications For Practice: Transitional objects can be provided by staff that are low-cost or free, such as taking photographs for parents, or they can involve purchased products from perinatal bereavement programs. In the latter case, funding needs are a consideration for budgeting decisions.Implications For Research: Immediately following a loss, parents experience a brief sense of healing after receiving mementos of their infant. However, further research is needed to assess long-term effects of receiving transitional objects following perinatal loss. [ABSTRACT FROM AUTHOR]- Published
- 2017
- Full Text
- View/download PDF
9. The brain oxytocin and corticotropin-releasing factor systems in grieving mothers: What we know and what we need to learn
- Author
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Oliver J. Bosch, Luisa Demarchi, Jodi L. Pawluski, University of Regensburg, École des Hautes Études en Santé Publique [EHESP] (EHESP), Institut de recherche en santé, environnement et travail (Irset), Université d'Angers (UA)-Université de Rennes 1 (UR1), Université de Rennes (UNIV-RENNES)-Université de Rennes (UNIV-RENNES)-École des Hautes Études en Santé Publique [EHESP] (EHESP)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Structure Fédérative de Recherche en Biologie et Santé de Rennes ( Biosit : Biologie - Santé - Innovation Technologique ), This study was supported by the Deutsche Forschungsgemeinschaft (DFG, Neuroscience Graduate Programme 'Neurobiology of Emotion Dysfunctions' GRK2174 to OJB, BO1958/8-2 to OJB)., Université d'Angers (UA)-Université de Rennes (UR)-École des Hautes Études en Santé Publique [EHESP] (EHESP)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Structure Fédérative de Recherche en Biologie et Santé de Rennes ( Biosit : Biologie - Santé - Innovation Technologique ), and Jonchère, Laurent
- Subjects
Physiology ,Corticotropin-Releasing Hormone ,media_common.quotation_subject ,[SDV]Life Sciences [q-bio] ,Mothers ,030209 endocrinology & metabolism ,Oxytocin ,Stress ,Biochemistry ,Developmental psychology ,Fight-or-flight response ,Prolonged grief disorder ,03 medical and health sciences ,Cellular and Molecular Neuroscience ,0302 clinical medicine ,Endocrinology ,Grieving mothers ,medicine ,Neural system ,Animals ,Humans ,Maternal Behavior ,media_common ,Pregnancy ,Life events ,Brain ,CRF ,medicine.disease ,Mental health ,Prolonged Grief Disorder ,3. Good health ,[SDV] Life Sciences [q-bio] ,Infant loss ,Grief ,Female ,Psychology ,030217 neurology & neurosurgery ,medicine.drug - Abstract
No Supp info; International audience; The bond between a mother and her child is the strongest bond in nature. Consequently, the loss of a child is one of the most stressful and traumatic life events that causes Prolonged Grief Disorder in up to 94 % of bereaved parents. While both parents are affected, mothers are of higher risk to develop mental health complications; yet, very little research has been done to understand the impact of the loss of a child, stillbirth and pregnancy loss on key neurobiological systems. The emotional impact of losing a child, e.g., Prolonged Grief Disorder, is likely accompanied by dysregulations in neural systems important for mental health. Among those are the neuropeptides contributing to attachment and stress processing. In this review, we present evidence for the involvement of the brain oxytocin (OXT) and corticotropin-releasing factor (CRF) systems, which both play a role in maternal behavior and the stress response, in the neurobiology of grief in mothers from a behavioral and molecular point of view. We will draw conclusions from reviewing relevant animal and human studies. However, the paucity of research on the tragic end to an integral bond in a female’s life calls for the need and responsibility to conduct further studies on mothers experiencing the loss of a child both in the clinic and in appropriate animal models.
- Published
- 2021
10. Issues in the Disclosure of Perinatal Death
- Author
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Peddicord, Douglas J., Stricker, George, editor, and Fisher, Martin, editor
- Published
- 1990
- Full Text
- View/download PDF
11. The psychological experience of women who survived HELLP syndrome in Cape Town, South Africa
- Author
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Rizwana Roomaney, Michelle G. Andipatin, and Anika Naidoo
- Subjects
high-risk pregnancy ,HELLP syndrome ,infant loss ,maternal experience ,psychological experience ,Public aspects of medicine ,RA1-1270 - Abstract
Background: Haemolysis, elevated liver enzymes and low platelet count (HELLP syndrome) is a high-risk pregnancy condition that could be fatal to mother and/or baby. It is characterised, as the acronym indicates, by haemolysis, elevated liver enzymes and low blood platelets. Objective: This study explored women in Cape Town’s psychological experience of HELLP syndrome. Method: Six participants who previously experienced HELLP syndrome were interviewed. Using a grounded theory approach, themes emerged and a model illlustrating the psychological experience of HELLP syndrome was constructed. Results: The major themes that emerged were the perceived lack of information, a need to assign blame and a shift in focus. Themes of not knowing and trance and/or surreal experience underpin the cognitive aspects of the HELLP syndrome experience. Themes that expressed feelings of an inability to control, whirlwind and/or rapid pace and support acted together to bind the experience. Finally, emotions such as anger, ambivalence, disbelief, anxiety, guilt, loneliness and fear were present throughout the experience. Conclusion: This study developed an initial exploratory model representing the psychological experience of HELLP syndrome in a sample of South African women. Underlying this entire experience was a perceived lack of information which had a profound effect on numerous aspects of the experience ranging from where to locate blame to the varied emotions experienced. Agtergrond: Die HELLP sindroom is ‘n hoë-risiko swangerskap toestand wat kan dodelik vir moeder en/of baba wees. Dit word gekenmerk deur hemolise, verhoogde lewerensieme en lae bloedplaatjies. Doelwit: Hierdie studie het Suid-Afrikaanse vroue se sielkundige ervaring van die HELLP sindroom ondersoek. Metode: Ses deelnemers wat voorheen HELLP sindroom ervaar het is ondervra. Met die gebuik van gefundeerde teorie as ‘n teoretiese raamwerk en ontleding het temas na vore gekom en ‘n model wat die sielkundige ervaring van HELLP sindroom illustreer, is gebou. Resultate: Die vernaamste temas wat na vore gekom het was die oënskynlike gebrek aan inligting, ‘n behoefte om skuld toe te skryf en ‘n verskuiwing in fokus. Die tema van nie weet en beswyming en/of surrealistiese ervaring ondersteun die kognitiewe aspekte van die HELLP sindroom. Temas wat gevoelens van geen beheer, warrelwind en/of vinnige tempo en ondersteuning uitgesprek het, het saam opgetree om die ervaring te bind. Ten slotte, emosies soos woede, teenstrydigheid, ongeloof, angs, skuldgevoelens, eensaamheid en vrees was teenwoordig in die hele ervaring. Gevolgtrekking: Hierdie studie het van’n aanvanklike ondersoekende model van die sielkundige ervaring van HELLP sindroom tot ‘n steekproef van die Suid-Afrikaanse vroue ontwikkel. Onderliggend aan hierdie hele ervaring was ‘n oënskynlike gebrek aan inligting wat ‘n diepgaande uitwerking gehad het op talle aspekte van die ervaring wat gewissel het van waar om die blaam te plaas tot die uiteenlopende ervaarde emosies.
- Published
- 2014
- Full Text
- View/download PDF
12. Pregnancy and parenting after loss: different baby, different story
- Author
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O'Leary, Joann, Parker, Lynnda, Murphy, Margaret M, and Warland, Jane
- Subjects
mental health professionals ,pregnancy after loss ,infant loss - Abstract
Pregnancy after prenatal or infant loss can be a lonely and frightening time, but through stories of both pain and healing, the authors show how to navigate the exciting but choppy waters of a subsequent pregnancy. The loss of a pregnancy or newborn infant changes the meaning of pregnancy, birth, and parenting forever. Increased parental fear and anxiety, and continuing grief for the deceased baby, can impact subsequent pregnancies in unexpected ways. Parents who are unsupported in pregnancy after loss are may be more at risk of experiencing anxiety, depression, Post-Traumatic Stress Disorder, and difficulty in attaching to a new baby. Different Baby Different Story explores the range of emotions, thoughts, and physical experiences of parents who have gone on to subsequent pregnancies. Including stories from mothers, fathers, other children, and extended family members, this poignant and moving work will help readers through their own feelings and give voice to those who may have felt unheard or unsupported in the past. With practical advice on self-advocacy, the book helps expectant parents gain insights as to how others learned to work with health care professionals, mental health professionals, and their own families and friends and coworkers. For expectant mothers, their partners, their families and their friends, this work supports the range of experiences and encourages readers on a path to healing.
- Published
- 2021
13. Bereaved Parents’ Perception of the Grandparents’ Reactions to Perinatal Loss and the Pregnancy That Follows.
- Author
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O’Leary, Joann, Warland, Jane, and Parker, Lynnda
- Subjects
- *
PERINATAL death & psychology , *ATTITUDE (Psychology) , *BEREAVEMENT , *GRANDPARENTS , *INTERGENERATIONAL relations , *INTERVIEWING , *PHENOMENOLOGY , *PARENT-child relationships , *PREGNANCY , *STATISTICAL sampling , *SOUND recordings , *SECONDARY analysis , *SOCIAL support , *THEMATIC analysis , *PARENT attitudes , *PSYCHOLOGY - Abstract
This article presents bereaved parents’ perceptions of their parents’ (the grandparents) reactions at the time of loss and in the pregnancy that follows. Data originated from two phenomenological studies conducted to understand bereaved parents’ experiences during their loss and subsequent pregnancy. However, this article reports a secondary thematic analysis focused on bereaved parents perceptions of the grandparents’ support (or lack of) at the time of loss and during the pregnancy following loss. Our findings illustrate some families found the means to share their grief at the time of loss in a constructive manner, while in others the intergenerational relationship was strained. Most important to parents was intergenerational acknowledgment of the ongoing relationship to the deceased child as an important, though absent family member, especially during the pregnancy that followed. Those supporting bereaved families can play an important role in helping intergenerational communication around perinatal loss and the subsequent pregnancy. [ABSTRACT FROM PUBLISHER]
- Published
- 2011
- Full Text
- View/download PDF
14. Male takeover, infanticide, and female countertactics in white-headed leaf monkeys ( Trachypithecus leucocephalus).
- Author
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Zhao, Qing, Borries, Carola, and Pan, Wenshi
- Subjects
INFANTICIDE in animals ,PRESBYTIS ,PRIMATES ,ANIMAL paternity ,PHILOPATRY ,INFANT weaning ,LACTATION ,REPRODUCTION - Abstract
Infanticide by males is common in mammalian species such as primates in which lactation lasts much longer than gestation. It frequently occurs in one-male groups following male takeovers and is likely a male reproductive strategy. Reported female countertactics include abrupt weaning of infants, dispersal, or paternity confusion. Here, we estimated costs of female countertactics in terms of weaning ages and interbirth intervals. We observed a population of white-headed leaf monkeys ( Trachypithecus leucocephalus) in Nongguan Nature Reserve, China (1995-2006) mainly composed of one-male groups. Takeovers ( N = 11) coincided with the peak conception period. Detailed data are presented for five takeovers (34 females, 29 infants, and 47 group-years) leading to six infant disappearances (42.9% of infant mortality). All presumed infanticides were in accordance with the sexual selection hypothesis. Following a takeover, females without infants or with old infants stayed with the new males, incurring no or low costs (via abrupt weaning). Females with young infants dispersing with the old males also experienced low costs. High costs (due to infant loss) were incurred by pregnant females and those with young infants who stayed with the new males indicating that paternity was not confused. Costs in terms of long interbirth intervals were also high for females leaving with the old males to later join the new males, despite infant survival. Female countertactics reflected female philopatry mediated by infant age. Presumably due to the seasonal timing of takeovers, most countertactics seemed successful given that 32.3% of females apparently incurred no costs and 41.2% incurred only low costs. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
15. Social monogamy and the threat of infanticide in larger mammals.
- Author
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Borries, Carola, Savini, Tommaso, and Koenig, Andreas
- Subjects
ANIMAL social behavior ,INFANTICIDE in animals ,MONOGAMOUS relationships ,BIOLOGICAL evolution ,MAMMAL behavior ,PREGNANCY in animals ,ANIMAL migration ,POLYANDRY ,GIBBONS - Abstract
The evolution of social monogamy in larger mammals is difficult to explain because males usually do not invest much in direct offspring care and might achieve greater fitness by deserting a pregnant female to reproduce with additional females elsewhere. It has been hypothesized that socially monogamous males remain with the female year-round to protect their offspring from infanticide by new immigrant males. We investigated this idea by analyzing all cases of infant loss in a wild population of white-handed gibbons ( Hylobates lar; Primates), in which most groups were socially monogamous and some polyandrous (137.5 group years). We examined the influence of (a) male intruder pressure on male immigration rates and (b) the presence of a new male in the group on infant loss. We found no relation between intruder pressure and male immigration rates. Infant loss was lowest (4.5%) for stable monogamy (probable father stayed from conception through infancy) and intermediate (25.0%; p = 0.166) for stable polyandry. If a new male immigrated after conception, however, the infant was lost in all cases ( p < 0.01) independent of the presumed father's presence. Overall, 83.3% of infant losses were associated with the presence of a presumably unrelated male. Although the sample size is small, our results provide the first true support for the idea that the risk of infanticide is an important factor in the evolution of social monogamy in larger mammals. [ABSTRACT FROM AUTHOR]
- Published
- 2011
- Full Text
- View/download PDF
16. The brain oxytocin and corticotropin-releasing factor systems in grieving mothers: What we know and what we need to learn.
- Author
-
Demarchi, Luisa, Pawluski, Jodi L., and Bosch, Oliver J.
- Subjects
- *
CORTICOTROPIN releasing hormone , *COMPLICATED grief , *CHILD death , *OXYTOCIN - Abstract
Graphic representation of infant loss-mediated impact on emotionality and neuropeptide systems – what is known in women and rodents. Illustration by Carola Demarchi. [Display omitted] • The mother-child bond is the most enduring bond in life. • Losing a child is devastating, increasing the susceptibility for grief disorders. • We provide evidence for potential roles of OXT and CRF systems in grieving mothers. • These neuropeptide systems are involved in maternal behavior and stress response. • Future research is needed to understand the neurobiology of grief in motherhood. The bond between a mother and her child is the strongest bond in nature. Consequently, the loss of a child is one of the most stressful and traumatic life events that causes Prolonged Grief Disorder in up to 94 % of bereaved parents. While both parents are affected, mothers are of higher risk to develop mental health complications; yet, very little research has been done to understand the impact of the loss of a child, stillbirth and pregnancy loss on key neurobiological systems. The emotional impact of losing a child, e.g., Prolonged Grief Disorder, is likely accompanied by dysregulations in neural systems important for mental health. Among those are the neuropeptides contributing to attachment and stress processing. In this review, we present evidence for the involvement of the brain oxytocin (OXT) and corticotropin-releasing factor (CRF) systems, which both play a role in maternal behavior and the stress response, in the neurobiology of grief in mothers from a behavioral and molecular point of view. We will draw conclusions from reviewing relevant animal and human studies. However, the paucity of research on the tragic end to an integral bond in a female's life calls for the need and responsibility to conduct further studies on mothers experiencing the loss of a child both in the clinic and in appropriate animal models. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
17. Consulting with the Bereaved Mother.
- Author
-
Pugmire, Linda
- Abstract
This paper describes approaches that may be used in consulting with the bereaved mother about engorgement and involution. The physical and emotional facets of this experience are intricately interwoven and lactation consultants should be aware that mothers may need a number of health care professionals to meet their needs. Suggestions for milk suppression, communication enhancement, and emotional support are offered. [ABSTRACT FROM PUBLISHER]
- Published
- 1999
- Full Text
- View/download PDF
18. Bittersweet: a qualitative exploration of mothers' experiences of raising a single surviving twin
- Author
-
Abbie Jordan, Karen Rodham, and Paula Smith
- Subjects
Adult ,Parents ,Perinatal Death ,Psychology of self ,Twins ,Mothers ,infant loss ,Infant Death ,Developmental psychology ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,SDG 3 - Good Health and Well-being ,Pregnancy ,030225 pediatrics ,parenting ,Surveys and Questionnaires ,medicine ,Humans ,identity ,Applied Psychology ,Qualitative Research ,Nomothetic and idiographic ,030219 obstetrics & reproductive medicine ,Parenting ,Infant, Newborn ,Parturition ,bereavement ,Infant ,Middle Aged ,medicine.disease ,Self Concept ,Clinical Psychology ,Psychiatry and Mental health ,multiple birth ,Multiple birth ,Female ,Grief ,Thematic analysis ,Psychology ,Twin loss ,Bereavement - Abstract
Loss of a child from a multiple birth pregnancy is not uncommon yet the idiographic experience of parents who have lost a single twin from a multiple birth pregnancy is underexplored. This novel study sought to explore the experiences of mothers bereaved after loss of a twin from a multiple birth pregnancy, focusing on the dual challenges of parenting and grieving. Eighteen mothers at least 12 months post loss were recruited from a private UK based Facebook page dedicated to supporting parents after loss from a multiple birth. Eligible mothers completed an independent qualitative open-ended survey to explore maternal experiences of loss. Data were analysed using Thematic Analysis. Findings represented a sense of duality for participants, with mothers experiencing conflict between roles and identities as well as the nature of their loss. Key themes identified include ‘Narrating a story of family and loss’, ‘Finding a place for the twins within the family’ and ‘A changing sense of self’. Findings fit with theoretical conceptualisations of bereavement that acknowledge retaining relationships with the deceased. Practically, suggestions for supporting mothers to identify stock answers to often asked questions about family make up were suggested.
- Published
- 2018
19. Texting Condolences: Adapting mHealth Programs After Unexpected Pregnancy and Infant Outcomes
- Author
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Unger, Jennifer A, Kinuthia, John, and John-Stewart, Grace
- Subjects
medicine.medical_specialty ,miscarriage ,Condolences ,Psychological intervention ,infant loss ,Health Informatics ,Information technology ,Miscarriage ,03 medical and health sciences ,Viewpoint ,0302 clinical medicine ,Medicine ,030212 general & internal medicine ,mHealth ,Pregnancy ,030219 obstetrics & reproductive medicine ,business.industry ,Infant Care ,Unexpected pregnancy ,medicine.disease ,T58.5-58.64 ,Infant mortality ,Family medicine ,Public aspects of medicine ,RA1-1270 ,business - Abstract
Mobile health (mHealth) short message system (SMS) interventions for maternal and child health (MCH) are being implemented globally. In many low- and middle-income settings in which these mHealth interventions are being rolled out, stillbirths and neonatal and infant deaths are common. It is important that mHealth solutions do not exacerbate emotional stress and pain by continuing with routine messaging for pregnancy or infant care when someone has experienced loss. In this brief viewpoint paper, we argue that SMS programs for maternal and child health need to adapt and make available messaging for miscarriage, stillbirth, and infant loss.
- Published
- 2017
20. The psychological experience of women who survived HELLP syndrome in Cape Town, South Africa
- Author
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Michelle Andipatin, Rizwana Roomaney, and Anika D. Naidoo
- Subjects
Low platelet count ,HELLP syndrome ,lcsh:Public aspects of medicine ,Health Policy ,Public Health, Environmental and Occupational Health ,Elevated liver enzymes ,high-risk pregnancy ,infant loss ,lcsh:RA1-1270 ,medicine.disease ,Haemolysis ,psychological experience ,Developmental psychology ,medicine ,maternal experience ,Theology ,Psychology ,High risk pregnancy - Abstract
Background: Haemolysis, elevated liver enzymes and low platelet count (HELLP syndrome) is a high-risk pregnancy condition that could be fatal to mother and/or baby. It is characterised, as the acronym indicates, by haemolysis, elevated liver enzymes and low blood platelets.Objective: This study explored women in Cape Town’s psychological experience of HELLP syndrome.Method: Six participants who previously experienced HELLP syndrome were interviewed. Using a grounded theory approach, themes emerged and a model illlustrating the psychological experience of HELLP syndrome was constructed.Results: The major themes that emerged were the perceived lack of information, a need to assign blame and a shift in focus. Themes of not knowing and trance and/or surreal experience underpin the cognitive aspects of the HELLP syndrome experience. Themes that expressed feelings of an inability to control, whirlwind and/or rapid pace and support acted together to bind the experience. Finally, emotions such as anger, ambivalence, disbelief, anxiety, guilt, loneliness and fear were present throughout the experience.Conclusion: This study developed an initial exploratory model representing the psychological experience of HELLP syndrome in a sample of South African women. Underlying this entire experience was a perceived lack of information which had a profound effect on numerous aspects of the experience ranging from where to locate blame to the varied emotionsexperienced. Agtergrond: Die HELLP sindroom is ‘n hoë-risiko swangerskap toestand wat kan dodelik vir moeder en/of baba wees. Dit word gekenmerk deur hemolise, verhoogde lewerensieme en lae bloedplaatjies.Doelwit: Hierdie studie het Suid-Afrikaanse vroue se sielkundige ervaring van die HELLP sindroom ondersoek.Metode: Ses deelnemers wat voorheen HELLP sindroom ervaar het is ondervra. Met die gebuik van gefundeerde teorie as ‘n teoretiese raamwerk en ontleding het temas na vore gekom en ‘n model wat die sielkundige ervaring van HELLP sindroom illustreer, is gebou.Resultate: Die vernaamste temas wat na vore gekom het was die oënskynlike gebrek aan inligting, ‘n behoefte om skuld toe te skryf en ‘n verskuiwing in fokus. Die tema van nie weet en beswyming en/of surrealistiese ervaring ondersteun die kognitiewe aspekte van die HELLP sindroom. Temas wat gevoelens van geen beheer, warrelwind en/of vinnige tempoen ondersteuning uitgesprek het, het saam opgetree om die ervaring te bind. Ten slotte,emosies soos woede, teenstrydigheid, ongeloof, angs, skuldgevoelens, eensaamheid en vrees was teenwoordig in die hele ervaring.Gevolgtrekking: Hierdie studie het van’n aanvanklike ondersoekende model van die sielkundige ervaring van HELLP sindroom tot ‘n steekproef van die Suid-Afrikaanse vroue ontwikkel. Onderliggend aan hierdie hele ervaring was ‘n oënskynlike gebrek aan inligting wat ‘n diepgaande uitwerking gehad het op talle aspekte van die ervaring wat gewissel hetvan waar om die blaam te plaas tot die uiteenlopende ervaarde emosies. Agtergrond: Die HELLP sindroom is ‘n hoë-risiko swangerskap toestand wat kan dodelik vir moeder en/of baba wees. Dit word gekenmerk deur hemolise, verhoogde lewerensieme en lae bloedplaatjies.Doelwit: Hierdie studie het Suid-Afrikaanse vroue se sielkundige ervaring van die HELLP sindroom ondersoek.Metode: Ses deelnemers wat voorheen HELLP sindroom ervaar het is ondervra. Met die gebuik van gefundeerde teorie as ‘n teoretiese raamwerk en ontleding het temas na vore gekom en ‘n model wat die sielkundige ervaring van HELLP sindroom illustreer, is gebou.Resultate: Die vernaamste temas wat na vore gekom het was die oënskynlike gebrek aan inligting, ‘n behoefte om skuld toe te skryf en ‘n verskuiwing in fokus. Die tema van nie weet en beswyming en/of surrealistiese ervaring ondersteun die kognitiewe aspekte van die HELLP sindroom. Temas wat gevoelens van geen beheer, warrelwind en/of vinnige tempo en ondersteuning uitgesprek het, het saam opgetree om die ervaring te bind. Ten slotte, emosies soos woede, teenstrydigheid, ongeloof, angs, skuldgevoelens, eensaamheid en vrees was teenwoordig in die hele ervaring.Gevolgtrekking: Hierdie studie het van’n aanvanklike ondersoekende model van die sielkundige ervaring van HELLP sindroom tot ‘n steekproef van die Suid-Afrikaanse vroue ontwikkel. Onderliggend aan hierdie hele ervaring was ‘n oënskynlike gebrek aan inligting wat ‘n diepgaande uitwerking gehad het op talle aspekte van die ervaring wat gewissel hetvan waar om die blaam te plaas tot die uiteenlopende ervaarde emosies.
- Published
- 2014
21. Texting Condolences: Adapting mHealth Programs After Unexpected Pregnancy and Infant Outcomes.
- Author
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John-Stewart, Grace, Unger, Jennifer A, and Kinuthia, John
- Abstract
Mobile health (mHealth) short message system (SMS) interventions for maternal and child health (MCH) are being implemented globally. In many low- and middle-income settings in which these mHealth interventions are being rolled out, stillbirths and neonatal and infant deaths are common. It is important that mHealth solutions do not exacerbate emotional stress and pain by continuing with routine messaging for pregnancy or infant care when someone has experienced loss. In this brief viewpoint paper, we argue that SMS programs for maternal and child health need to adapt and make available messaging for miscarriage, stillbirth, and infant loss. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
22. Untold stories of infant loss: the importance of contact with the baby for bereaved parents
- Author
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Jane Warland, Joann M O'Leary, O'Leary, Joann, and Warland, Jane
- Subjects
Male ,Parents ,media_common.quotation_subject ,infant loss ,elderly parents ,Developmental psychology ,Life Change Events ,Social support ,Argument ,Secondary analysis ,Health care ,Adaptation, Psychological ,Medicine ,Humans ,Narrative ,Qualitative Research ,media_common ,Aged ,Community and Home Care ,Aged, 80 and over ,Narration ,support after loss ,business.industry ,Siblings ,Infant, Newborn ,Social Support ,Middle Aged ,Stillbirth ,subsequent child ,Grief ,Female ,Elderly parents ,Family Practice ,business ,Qualitative research ,Bereavement - Abstract
This article presents secondary analysis of data from parents who, 50 to 70 years ago, birthed stillborn babies or babies with lethal anomalies and from adult children born after these losses. The stories reflect a time in history when parents were "protected" from seeing or holding their babies and mothers were unable to attend the funeral. There was no understanding by society or caregivers for parents' need to process the loss or resources to build memories. They provide a strong argument for health care providers to offer such resources to parents today and offer grief support. Refereed/Peer-reviewed
- Published
- 2013
23. Bereaved parents' perception of the grandparents' reactions to perinatal loss and the pregnancy that follows
- Author
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Joann M O'Leary, Lynnda Parker, Jane Warland, O'Leary, Joann, Warland, Jane, and Parker, Lynnda
- Subjects
Adult ,Male ,Parents ,intergenerational grief ,Attitude to Death ,media_common.quotation_subject ,infant loss ,grandparents ,Developmental psychology ,Interviews as Topic ,Perinatal loss ,Pregnancy ,Perception ,medicine ,Humans ,media_common ,Community and Home Care ,bereaved parent's perception ,Infant, Newborn ,Pregnancy Outcome ,Grandparent ,Stillbirth ,medicine.disease ,Family member ,Intergenerational Relations ,Grief ,Female ,pregnancy after loss ,Thematic analysis ,Subsequent pregnancy ,secondary analysis ,Family Practice ,Psychology ,Clinical psychology ,Bereavement - Abstract
This article presents bereaved parents' perceptions of their parents' (the grandparents) reactions at the time of loss and in the pregnancy that follows. Data originated from two phenomenological studies conducted to understand bereaved parents' experiences during their loss and subsequent pregnancy. However, this article reports a secondary thematic analysis focused on bereaved parents perceptions of the grandparents' support (or lack of) at the time of loss and during the pregnancy following loss. Our findings illustrate some families found the means to share their grief at the time of loss in a constructive manner, while in others the intergenerational relationship was strained. Most important to parents was intergenerational acknowledgment of the ongoing relationship to the deceased child as an important, though absent family member, especially during the pregnancy that followed. Those supporting bereaved families can play an important role in helping intergenerational communication around perinatal loss and the subsequent pregnancy. Refereed/Peer-reviewed
- Published
- 2011
24. Care Experiences of Women Who Used Opioids and Experienced Fetal or Infant Loss.
- Author
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Scott LF, Shieh C, Umoren RA, and Conard T
- Subjects
- Adaptation, Psychological, Analgesics, Opioid administration & dosage, Confusion, Female, Guilt, Humans, Infant, Newborn, Pregnancy, Prenatal Care methods, Qualitative Research, Analgesics, Opioid adverse effects, Fetal Death, Object Attachment, Stillbirth psychology
- Abstract
Objective: To explore care experiences of women who used prescription or illicit opioids and experienced fetal or infant loss., Design: A qualitative, descriptive design with secondary data analysis., Setting: The Fetal and Infant Mortality Review program in an urban Midwestern county in the United States., Participants: Eleven women with histories of prescription or illicit opioid use who experienced fetal or infant loss participated in the semistructured telephone or in-person interview portion of the mortality case review., Methods: We used thematic analysis to analyze interview data., Results: Five themes were identified related to the care experiences of participants throughout pregnancy and fetal/infant loss: Frustration and anger related to not being heard, feeling minimalized; Being overwhelmed with attempts to process and understand medical complications and outcomes; Profound sense of grief and coping with loss; Need to understand why and make difficult decisions; and Placing blame and guilt over death., Conclusion: Our findings suggest that women who use opioids and experience fetal or infant loss have complex care, educational, and emotional needs. In the development of interventions for these women, it is important to address their unique and complex circumstances., (Copyright © 2017 AWHONN, the Association of Women's Health, Obstetric and Neonatal Nurses. Published by Elsevier Inc. All rights reserved.)
- Published
- 2017
- Full Text
- View/download PDF
25. Drawing Close to the Brokenhearted: Pastoral Responses to Parents Grieving Stillbirth.
- Author
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Petro SJ
- Subjects
- Adult, Attitude to Death, Female, Humans, Infant, Newborn, Male, Postpartum Period psychology, Religion and Psychology, Spirituality, Young Adult, Chaplaincy Service, Hospital methods, Clergy psychology, Grief, Parents psychology, Pastoral Care methods, Professional-Patient Relations, Stillbirth psychology
- Abstract
Despite its prevalence worldwide, stillbirth is poorly understood and rarely discussed. Accordingly, ministers and other pastoral caregivers are seldom prepared to counsel and console parents suffering from this type of infant loss and to effectively design, propose, and lead ministries within their faith communities for this grieving population. This article addresses the immediate pastoral needs of bereaved parents and proposes first and second order responses that ministers and faith communities can employ to compassionately and effectively care for parents suffering from the trauma of stillbirth., (© The Author(s) 2015 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.)
- Published
- 2015
- Full Text
- View/download PDF
26. Untold stories of infant loss: the importance of contact with the baby for bereaved parents.
- Author
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O'Leary J and Warland J
- Subjects
- Adaptation, Psychological, Aged, Aged, 80 and over, Female, Humans, Infant, Newborn, Male, Middle Aged, Narration, Qualitative Research, Siblings psychology, Social Support, Bereavement, Life Change Events, Parents psychology, Stillbirth psychology
- Abstract
This article presents secondary analysis of data from parents who, 50 to 70 years ago, birthed stillborn babies or babies with lethal anomalies and from adult children born after these losses. The stories reflect a time in history when parents were "protected" from seeing or holding their babies and mothers were unable to attend the funeral. There was no understanding by society or caregivers for parents' need to process the loss or resources to build memories. They provide a strong argument for health care providers to offer such resources to parents today and offer grief support.
- Published
- 2013
- Full Text
- View/download PDF
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