1. Preferences regarding Disclosure of Risk for Parkinson's Disease in a Population‐based Study.
- Author
-
Mahlknecht, Philipp, Leiter, Simon, Horlings, Corinne, Schwarzová, Katarína, Egner, Iris, Stockner, Heike, Marini, Kathrin, Theyer, Christoph, Zamarian, Laura, Djamshidian, Atbin, Seppi, Klaus, Farfan, Fernanda, Garrido, Alicia, Ghosh, Soumyabrata, Krüger, Rejko, McIntyre, Deborah, Mollenhauer, Brit, Noyce, Alastair, Pauly, Claire, and Pilco‐Janeta, Daniel F.
- Abstract
Background Objectives Methods Results Conclusions Preferences for risk disclosure in population‐based studies assessing Parkinson's disease (PD) risk have not been assessed so far.To examine preferences for risk disclosure in a subset of the European Healthy Brain Aging (HeBA) multicenter study.After a remote PD risk assessment, a structured pilot‐questionnaire on risk disclosure was first presented to participants (≥50 years, without neurodegenerative diseases) during in‐person visits at the Innsbruck study site.From the included 81 participants (63% females, median age 65 years), 79% expressed an unconditional desire to be informed about their PD risk. Confronted with a hypothetical scenario of a positive, specific PD test, most would try to live a healthier lifestyle. Regarding future placebo‐controlled disease‐modification trials, 66% stated they would probably or definitely participate.This pilot‐study shows an open‐minded view of participants towards disclosure of risk for future PD and a proactive attitude regarding dealing with one's risk. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF