72 results on '"conspiracy of silence"'
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2. What is Mother Earth? A Name, A Meme, A Conspiracy.
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Gill, Sam
- Subjects
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MEMES , *ABORIGINAL Australians , *IDENTITY (Psychology) , *MOTHERS , *NATIVE Americans - Abstract
A rich appreciation of Mother Earth--in the entwined contexts of Native American, Australian Aboriginal, Western intellectual, and contemporary ecological movements--is accomplished in this paper using new perspectives and strategies: Mother Earth as name, meme, and conspiracy. This approach is developed and illustrated to offer insight into the dynamics of identity formation of individual cultures, amalgams of cultures, academic approaches, and ecological movements that span the globe, always occurring in the context of threatening, yet creative, encounters. Projecting beyond the Mother Earth example, the paper proposes a vision of the academic study of cultures and religions that focuses on gesture and repetition demonstrating that conditions of coherence, in the presence of the constant threat of incoherence, may be more valuable than discerning meaning. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Do Elefante na Sala à Quebra dos Silêncios: Mudanças na Dinâmica de Visibilidade da Operação Lava Jato.
- Author
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Pimenta, Laura Nayara and Henriques, Márcio Simeone
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PUBLIC opinion , *STRATEGIC communication , *PUBLIC prosecutors , *SUPERIOR courts , *JUDGES , *MONEY laundering - Abstract
Public relations is an activity that deals with two central dynamics: that of understanding the phenomena of public opinion from a reading of the publics that are formed due to controversial and relevant issues at the collective level, and that of managing the public visibility of organizations and of people. The configuration of a strategic communication goes through a process of tension and permanent dispute between institutions, organizations, public persons and publics for what appears or does not appear, for what is or is not visible and for what is or is not discussed, as well as for what is likely to appear, be seen and discussed. Our special interest lies in the vulnerabilities of publics to factors that silence them, but also it is important to connect this issue to deliberate silences, to processes of institutional concealment, that is, of what is withdrawn from the public's view or from the which impels them to ignore reality. This is a complex and nuanced process. One that calls our attention is described by Zerubavel (2006). When dealing with these dynamics, he focuses on a phenomenon metaphorically postulated as "the elephant in the room", to talk about something that, despite being in plain sight, is ignored and not discussed. It is a very complex phenomenon, which involves, on a collective level, what he calls "conspiracies of silence" and a discrepancy between what we experience in reality and what we end up publicly recognizing, that is, in the public's perception. Therefore, in this work we focus on two important aspects that are raised by the author: indisputability and the emergence of "silence breakers". To do so, we take Operation Lava Jato as an empirical case, especially the Curitiba nucleus. Launched in March 2014, with the aim of dismantling criminal organizations that operated in money laundering in several Brazilian states, the Operation consisted of a set of investigations and their consequent lawsuits, involving the Federal Police, the Federal Public Ministry and the Federal Justice in Curitiba, São Paulo, Rio de Janeiro and Brasília, in addition to superior courts and other control bodies. The most famous nucleus, however, is that of Curitiba, which brought together, from the beginning, the then Public Prosecutor Deltan Dallagnol and the then judge Sergio Moro. In 2023, the media and the political scene are moved by denunciations regarding Lava Jato maneuvers and abuses. Former deputy and Operation whistleblower, Tony Garcia, went to the media to reveal the coercion, extortion and persecution suffered during the years of Lava Jato. In this episode, we can more clearly identify what Zerubavel calls "breaking the conspiracy of silence", as it is the appearance of people in the role of breakers who will consistently offer testimonies and evidence and who will in fact point out, with the force of denunciation, the existence of the "elephant in the room" in a complete and irrefutable way. Thus, we will dwell here on analyzing the appearance, in the public scene, of Tony Garcia's media speeches. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Psychosocial Stressors for Children of Incarcerated Parents: Conspiracy of Silence and Ambiguous Loss
- Author
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Morgan-Mullane, Anna, Tosone, Carol, Series Editor, and Morgan-Mullane, Anna
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- 2023
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5. Why Criminal Justice Is Relevant to All Clinical Practitioners
- Author
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Morgan-Mullane, Anna, Tosone, Carol, Series Editor, and Morgan-Mullane, Anna
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- 2023
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6. WHAT DOES SILENCE TELL? TRAUMAS AND MEMORIAL CONFLICTS IN THE ANTHROPOLOGICAL RESEARCH OF ISTRIAN EXODUS AND A NATIONAL "HERO".
- Author
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HROBAT VIRLOGET, Katja
- Subjects
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ETHNOLOGY research , *MEMORIALS , *WORLD War II , *HEROES - Abstract
The article reflects on the meanings of silence which was encountered in the ethnographic research of memories on the Istrian exodus and a WWII national "hero" in the Primorska (littoral) region of Slovenia. Different kinds of silence are discussed, from the one deriving from the conflict of memories and power relations, violence and fear, to Freudian ideas of repression and trauma, denial and others. From the methodological point of view the question is raised of how to detect silence when filled with words or embodied. A reflection is made on the impact of research on the silenced communities. [ABSTRACT FROM AUTHOR]
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- 2023
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7. Историята на една мистификация.
- Author
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Димитров, Емил
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SONGS ,ARGUMENT ,MANUSCRIPTS ,TOPOGRAPHY ,AUTHORS ,PROLOGUES & epilogues - Abstract
The article presents for the first time the thesis that the so-called “Epilogue” of Pencho Slaveykov’s “Bloody Song” is a literary mystification. Based on the author’s historical and documentary research in recent years, it has been concluded that the real author of the text is Mara Belcheva, and the literary mystification was carried out by Boyan Penev. A series of arguments in defense of the thesis are formulated, and both the original manuscript of M. Belcheva and a facsimile of the mystification of B. Penev are published for the first time as appendix. [ABSTRACT FROM AUTHOR]
- Published
- 2023
8. Early Gulag Studies Between Ostracism And Forgetfulness
- Subjects
gulag studies ,elsewhereness ,liminality ,exilic-utopian imagination ,permanent liminality ,ivan solonevich ,mikhail nikonov-smorodin ,mikhail heller ,conspiracy of silence ,Philology. Linguistics ,P1-1091 - Abstract
This article is devoted to a group of closely related people who, having fought Bolsheviks, remained in Soviet Russia, adopting survivalist conformism, yet did not avoid arrest, prison, exile and camp; who escaped from the country to save their lives and speak analytically about the USSR; who fell into the trap of a “conspiracy of silence” which still lasts. Firstly, the notion of ‘elsewhereness’ is applied to their life-time peripeties. Secondly, ‘liminality’ the unity of those peripeties with a posthumous sequel, considering them part of the group’s interaction with a hegemonising agency, showing the correlativity between ‘elsewhereness’ and ‘liminality’, and applying theoretic perspectives on ‘liminality’ by Spariosu and Szakolczai. Put differently, I view the condition of enduring a “conspiracy of silence” is viewed as an aspect of ‘elsewhereness’, and the policy of “silencing” the group as ‘liminalisation’, yet recognising that the ‘agents’ of “silencing” are themselves inscribed in a liminal situation. Thirdly, the non-personal object of “silencing” is identified – the set of accounts and ideas ignored due to their unpleasantness or to reservations about their source: the pre-Solzhenitsyn accounts and ideas about Gulag, at which anglophone scholarship arrives only recently as if at its own discoveries, while selectively ignoring the precedents. Fourthly, that set is related to ‘elsewhereness’ and ‘liminality’, viewing concentration camp experience as one both of ‘being-elsewhere’ and ‘liminal’, and the venture to create those camps as ‘liminal’. Alongside with this, the heurism of generalisations by I. Solonevich, one of the members of the aforementioned group, and by some people who, in different times, followed the Solonevichs beyond the state border of the USSR (M. Nikonov-Smorodin, M. Heller), is demonstrated.
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- 2021
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9. Conclusion
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Fordham, Helen, Bell, Bill, Series Editor, Kaul, Chandrika, Series Editor, Wilkinson, Alexander S., Series Editor, and Fordham, Helen
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- 2019
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10. René Maran - André Gide : un soupçon de proximité
- Author
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Nimrod
- Subjects
negritude ,conspiracy of silence ,moral posture ,cultural alienation ,Pierre Herbart ,Marcel de Coppet ,Language and Literature - Abstract
René Maran admired André Gide unconditionnally until the publication of Gide’s travel narratives, Voyage au Congo (1927) and Le Retour du Tchad (1928), at which point he grew equally distrustful. René Maran then attacked André Gide’s posture as écrivain engagé and launched a controversy that has largely remained unnoticed inspite of the research devoted to it by Netherlands academic Ieme Van der Poel. The latter’s publication, Congo-Océan, un chemin de fer controversé (L’Harmattan, 2016), confronts us with what I call « the conspiracy of silence », for Gide makes no mention of René Maran in his Journal, and the specialists are equally silent. Yet, from November 1925 to July 1934, the winner of the Goncourt 1921 devoted many an article to Gide’s trip in French Equatorial Africa (AEF) in Le Journal du peuple. I analyze this strange silence in an attempt to unearth its links with political, literary or moral interests of the times, while underlining the egotism of both figures, their competing with each other, their media strategies and, of course, the limits derived from those aspects.
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- 2021
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11. Gum yan asing Kaangas giidaay han hll guudang gas ga. I Will Never Again Feel That I Am Less Than: Indigenous Health Care Providers' Perspectives on Ending Racism in Health Care.
- Author
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Stout, Madeleine Kétéskwēw Dion, Wieman, Cornelia (Nel), Bearskin, Lisa Bourque, Palmer, Becky C., Brown, Lauren, Brown, Monica, and Marsden, Namaste
- Subjects
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MEDICAL personnel , *RACISM , *TRADITIONAL knowledge , *MEDICAL care , *SOCIAL injustice - Abstract
Racism toward Indigenous Peoples continues to permeate the health care system, a reality the authors know all too well in their shared and yet unique personal and professional experiences. Although acknowledging and speaking up against racial injustice is daunting, and is often met with disregard or inaction, the authors contend that this is a necessary undertaking to redress the ongoing harms of colonialism. Correspondingly, those who do speak up must not have their voices silenced. Instead, the perspectives that Indigenous Peoples have regarding their own experiences of racism must be heeded seriously and produce real and tangible solutions. In narrating their own encounters confronting and challenging racism, the authors juxtapose activism and resistance with the preservation of Indigenous Knowledge as a catalyst for propelling the necessary changes forward within health care to end racism. To truly have an impact, all efforts taken to address racism must occur alongside advancing equity of care and human rights for and by Indigenous Peoples at individual, community, and systemic levels. Changes are not needed after more evidence. The time to act is now. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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12. TOLSTOY'S MORAL PHILOSOPHY: TOWARDS AN ETHICS OF TRUTHFULNESS IN CLINICAL PRACTICE.
- Author
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Busquets Alibés, Ester and Maestre, Begoña Román
- Subjects
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ETHICS , *PATERNALISM , *TRUTHFULNESS & falsehood , *BIOETHICS , *AUTONOMY (Psychology) , *MEDICAL practice - Abstract
In this article we would like to bring to light the importance of Tolstoy as a moral thinker, in view of the brilliance of his literary work has always eclipsed his more philosophical work. Tolstoy, bewildered by the desperation of death and lack of meaning, built a philosophy of love in which he associates one's own happiness with the happiness of others. For the Russian moralist, people who live for themselves can never achieve happiness and will not live. In contrast, people who choose the path of love and the happiness of others will be happy and will truly live, because this is the reason for living, the meaning of life. The person who lives in love lives an authentic life, far away from falsehood. The ideas of Tolstoy have a practical application in clinical practice. Through an analysis of the novel The Death of Ivan Ilyich, where we can find condensed the whole of Tolstoy's moral thought, we will discover the negative consequences that are generated by falsehood when taking care of the sick, and above all of those who are dying. And we will see how the Russian author, without having lived through the crisis of medical paternalism, and even less the appearance of the declaration of the rights of patients that emphasise above all the autonomy of the patient, promoted a model of respectful relationship with the wish of the patient to receive information and know the truth. Through the analysis of a fictional tale, this article aims to invite reflection on the virtue of truthfulness in the clinical relationship. [ABSTRACT FROM AUTHOR]
- Published
- 2019
13. Conspiración de silencio: ¿ayuda o agonía?
- Author
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Manjón Tortolero, Noelia
- Subjects
- *
AGGRESSION (Psychology) , *ETHICS , *PATIENT-family relations , *PATIENT-professional relations , *TERMINAL care , *PSYCHOLOGY of the terminally ill , *DISCLOSURE - Abstract
The conspiracy of silence or pact of silence, defined as "the implicit or explicit agreement by part of relatives, friends and/or medical team, of altering the information given to the patient in order to hide the diagnosis and/or prognosis and/or seriousness of the situation", is presented as a possibility for those people who live a moment of imminent death among one of their beloved ones. The ill patient can be conscious and accept concealment with his/her full powers, adaptive conspiracy, or, on the contrary, the conspiracy of silence can go against his/her will, maladaptive conspiracy. This last case is the one which arouses great commotion and diversity of opinions regarding morality and legitimacy of carrying out maladaptive conspiracy. The text aims to reveal the reality behind the conspiracy of silence, with the target of explaining the drawbacks that this pact causes in the three stages of the affected triangle: patient, family members and/or friends, and medical team. With effects such as anxiety, fear, uncertainty, mistrust and isolation, the conspiracy of silence tends to suppose more an agony than an aid when facing a situation of terminal illness. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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14. A psychohistorical analysis. Gulag and the Romanian Revolution of 1989
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Dumitru-Cătălin Rogojanu
- Subjects
psychohistory ,Gulag ,Romanian Revolution of 1989 ,conspiracy of silence ,paternal authority ,crowd psychology ,Political science ,Political science (General) ,JA1-92 - Abstract
The direction of the current study is the analysis of the Gulag and Romanian Revolution of 1989 using a psychohistorical investigation, which attempts to provide a plausible psychological explanation of these two events.The relationship between the communist prison space and the situation in '89 can be exploited from other perspectives that emphasize different and nuanced interpretations which can radically change the old historical vision, which focused on documents (archives) justifying the official history of power. The conspiratorial silence of prisoners, meaning that inability to confess the suffering in the period before 1989, „exploded“ in the revolution through aggressive manifestations in Timișoara, Bucharest and other cities in the country. In the end we can say that the Revolution was that long-expected time for Romanians to express their negative energies, anguish, disappointment in the paternal authority represented by Nicolae Ceaușescu. In 1989, the soul of the crowd (Gustave Le Bon) broke loose after a long period of obedience and humiliation in communist prisons, but also in the huge camp: Romania.
- Published
- 2014
15. From Countermemory to Collective Memory
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Whitlinger, Claire, author
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- 2020
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16. Factors Affecting Family Members' Decisions to Reveal Cancer Diagnoses to Patients: A Qualitative Study.
- Author
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Pinyopornpanish, Kanokporn, Angkurawaranon, Chaisiri, Gomutbutra, Patama, and Pinyopornpanish, Manee
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CANCER diagnosis ,FAMILIES ,MEDICAL decision making ,CANCER patients ,DISCLOSURE - Abstract
Objective: To explore the factors affecting the family members' decisions on telling the diagnosis to cancer patients. Material and Method: A qualitative study was conducted using semi-structured, face-to-face interview with 25 close relatives of cancer patients. Content analysis was performed by two independent physicians who then collaborated to reach the conclusions. Results: Relatives primarily preferred the patient not knowing the diagnosis before the disclosure was made, to prevent the patient from getting worse. Factors associated with this preference included personal experience with cancer patients, the patient's personal characteristics, impact of the disease on the patient's future, the prognosis of the disease, and supporting ideas from other relatives. Once the diagnosis had been disclosed, more participants agreed with the disclosure because of the advantages to the patient and themselves. There were only two who found the advantages but still did not agree with the disclosure. Conclusion: Many factors were associated with willingness of relatives to disclose the diagnosis to the cancer patients. However, after disclosure, relatives saw advantages in terms of health care for the patients. Most family members changed their attitudes to a more positive and supportive view of disclosure. [ABSTRACT FROM AUTHOR]
- Published
- 2017
17. Selecting, disentitling, or investing? Exploring party and voter responses to immigrant welfare dependence in 15 West European welfare states.
- Author
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Koning, Edward
- Subjects
EMIGRATION & immigration ,WELFARE state ,VOTERS - Abstract
Academics have long predicted the tension between immigration and welfare to lead to the erosion of redistributive institutions, but empirical studies have found little evidence for that prediction. This paper argues that concerns about immigrant welfare dependence are more likely to lead to one or more of the following three responses: (1) changes to admission policies aimed at attracting those immigrants who are least likely to turn to the state for financial support; (2) restrictions on immigrants' access to social programmes and benefits; and (3) extensive integration services and immigrant-targeted labour market programmes. Combining a content analysis of party manifestoes and secondary analysis of cross-national survey data, this paper maps the views of parties and voters on these possible strategies in 15 Western European welfare states. The analysis reaches three main conclusions. First, the currency these responses enjoy differs strikingly from one country to another. Second, ideological affiliation helps to explain some of the variation within countries. Third, by and large the views of voters and the position of political parties seem to be in line with each other, albeit with important exceptions. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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18. Early Gulag studies between ostracism and forgetfulness
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Yordan Lyutskanov
- Subjects
PERMANENT LIMINALITY ,СТАЛИНИЗМ ,ПОЛИТИЧЕСКАЯ БОРЬБА ,ПОЛИТИЧЕСКИЕ РЕПРЕССИИ ,GULAG STUDIES ,ЗАБЫВЧИВОСТЬ ,ПОЛИТИЧЕСКИЕ РЕЖИМЫ ,ЗАГОВОР МОЛЧАНИЯ ,СТАЛИНСКИЕ ЛАГЕРЯ ,ЛИТЕРАТУРНЫЕ СЮЖЕТЫ ,КОНФОРМИЗМ ,CONSPIRACY OF SILENCE ,ГУЛАГ ,СОВЕТСКИЙ ПЕРИОД ,ИНОНАХОДИМОСТЬ ,ЛИТЕРАТУРНЫЕ ЖАНРЫ ,ЛИТЕРАТУРОВЕДЕНИЕ ,БОЛЬШЕВИЗМ ,СОЛОНЕВИЧ ИВАН ЛУКЬЯНОВИЧ ,БОРЬБА С БОЛЬШЕВИЗМОМ ,ССЫЛКИ ,ГЕЛЛЕР МИХАИЛ ЯКОВЛЕВИЧ ,ELSEWHERENESS ,АРЕСТЫ ,РУССКАЯ ЛИТЕРАТУРА XX В. — СССР — СОЮЗ СОВЕТСКИХ СОЦИАЛИСТИЧЕСКИХ РЕСПУБЛИК — РОССИЯ ,ТЮРЬМЫ ,ГУЛАГОВЕДЕНИЕ ,ГЛАВНОЕ УПРАВЛЕНИЕ ЛАГЕРЕЙ ,СТАЛИНСКИЙ РЕЖИМ ,ЕДИНОМЫШЛЕННИКИ ,ОСТРАКИЗМ ,РУССКИЕ ПИСАТЕЛИ ,ЛИТЕРАТУРНОЕ ТВОРЧЕСТВО ,ПОЛИТИЧЕСКАЯ ИДЕОЛОГИЯ ,ПЕРМАНЕНТНАЯ ЛИМИНАЛЬНОСТЬ ,НИКОНОВ-СМОРОДИН МИХАИЛ ЗАХАРОВИЧ ,ЛИТЕРАТУРНЫЕ ОБРАЗЫ ,СОВЕТСКОЕ ГОСУДАРСТВО - Abstract
Статья посвящена размышлениям об опыте группы близких между собой людей, воевавших против большевиков, оставшихся по собственной воле в СССР, но не избежавших ареста, ссылки и лагеря. This article is devoted to a group of closely related people who, having fought Bolsheviks, remained in Soviet Russia, adopting survivalist conformism, yet did not avoid arrest, prison, exile and camp.
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- 2021
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19. Understanding the Conspiracy of Silence.
- Author
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Chui, Wing Hong and Yeung, Andrew Yue
- Subjects
- *
PARENT imprisonment , *CHILD care , *CAREGIVERS , *DISCLOSURE , *CONSPIRACY - Abstract
Although the negative impacts of parental incarceration on families are generally well established, less attention has been paid to the dilemma of how caregivers communicate with their children regarding parental incarceration. This study provides an understanding of the factors associated with caregivers’ choice to disclose or conceal the incarceration of a father. The results suggested that religious or married caregivers were less likely to inform their children, with the young age of children also being a determinant in information remaining concealed. The conviction types of the incarcerated father and his relationships with caregivers and children did not play any role in disclosure likelihood. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
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20. Dialéctica de la esperanza en pacientes con pronóstico de vida limitado: aspectos éticos y narrativos
- Author
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Vergara, Óscar and Vergara, Óscar
- Abstract
[Resumen]: El derecho del paciente a conocer su información clínica se corresponde con el deber del profesional sanitario, en especial del médico responsable de su atención, a proporcionárselo. Sin embargo, en el caso de los enfermos cuyo pronóstico de vida es limitado, esto presenta varias dificultades. Determinar el contenido de este derecho es complicado, porque depende de las circunstancias. Esto favorece la conspiración de silencio, cuya causa principal puede cifrarse en el mantenimiento de la esperanza del paciente. Ahora bien, condenar al paciente a una falsa esperanza impide que éste elabore un proceso de duelo, que exige renunciar a aquélla y abrirse a otra esperanza indeterminada de contenido abierto. En este trabajo tratamos de bosquejar la estructura de este proceso dialéctico, que puede explicarse, en términos narrativos, a través de la estructura del mito heroico, que resulta operativo aun cuando falte la estructura energética del carácter moral y que es graduable a la medida de cada persona., [Abstract]: The patient’s right to know his/her clinical information corresponds with the duty of the health care professional, especially the physician responsible for his/her care, to provide it. However, in the case of patients whose life prognosis is limited, this presents several difficulties. Determining the content of this right is complicated because it depends on the circumstances. This favors the conspiracy of silence, the main cause of which can be found in the maintenance of the patient’s hope. However, condemning the patient to a false hope prevents him/her from developing a grieving process, that requires renouncing that hope and embracing another undetermined hope of open content. In this work we try to outline the structure of this dialectical process, which can be explained, in narrative terms, through the structure of the heroic myth, which is functional even when the energetic structure of the moral character is missing and which is adjustable for each person.
- Published
- 2021
21. Pacto de silencio y derecho a la información en pacientes gravemente enfermos. Escribiendo el último capítulo de la vida
- Author
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Vergara, Óscar and Vergara, Óscar
- Abstract
[Resumen] Hoy nadie duda, al menos en los países de tradición occidental, de que el titular del derecho a la información clínica es el paciente sobre cuya salud versa dicha información, como ha sido institucionalmente reconocido en distintas leyes e instrumentos internacionales. Sin embargo, es todavía posible constatar ciertas prácticas que van en sentido contrario a este común asenso; señaladamente, aquella que, con un sesgo paternalista, omite la obligación de informar adecuadamente al enfermo al que se le ha diagnosticado una enfermedad grave con un pronóstico de vida limitado. Aunque son variadas las razones habitualmente invocadas para justificar esta reticencia, se puede afirmar que, en el fondo, todas concurren al objetivo de que el paciente no pierda la esperanza de recobrar la salud. En este estudio tratamos de poner de manifiestoque este objetivo priva al paciente de la oportunidad de escribir con sentido el último capítulo de su vida y de sentir el aliento de una esperanza nueva y verdaderamente libre, ocasionándole un perjuicio mayor que el que se le trata de evitar., [Abstract] Today no one doubts, at least in Western countries, that the holder of the right to clinical information is the patient whose health as has been institutionally recognized in several laws and international instruments. However, it is still possible to observe certain practices that go against this common assumption; particularly those that, with a paternalistic bias, omit the ob-ligation to provide adequate information to the patient who has been diagnosed with a serious illness with a limited life prognosis. Although the reasons usually invoked to justify this reti-cence are varied, it can be affirmed that, in the end, theyall concur with the objective that the patient should not lose hope of recovering his or her health. The aim of this paper is to show that this objective deprives the patient of the opportunity to write meaningfully the last chap-ter of his or her life and to find the strength of a fresh and truly free hope, thus causing a greater harm than the one it is intended to prevent., [Resum] Avui ningú dubte, almenys als països de tradició occidental, que el titular del dret a la informació clínica és el pacient sobre la salut del qual versa aquesta informació, com ha estat institucionalment reconegut en diferents lleis i instruments internacionals. No obstant això, és encara possible constatar certes pràctiques que van en sentit contrari a aquest comú consens; senyaladament, aquella que, amb un biaix paternalista, omet l'obligació d'informar adequadament el malalt al qual se li ha diagnosticat una malaltia greu amb un pronòstic de vida limitat. Encara que són variades les raons habitualment invocades per a justificar aquesta reticència, es pot afirmar que, en el fons, totes concorren a l'objectiu que el pacient no perdi l'esperança de recobrar la salut. En aquest estudi tractem de posar de manifest que aquest objectiu priva al pacient de l'oportunitat d'escriure amb sentit l'últim capítol de la seva vida i de sentir l'alè d'una esperança nova i veritablement lliure, ocasionant-li un perjudici major que el que se li tractad'evita
- Published
- 2021
22. Conspiración del silencio.
- Author
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Rodríguez-Castillo, Cristina
- Abstract
The conspiracy of silence is 'the implicit or explicit agreement made by relatives, friends or professional people to alter the information given to the patient in order to hide the diagnosis, prognosis or seriousness of his/her situation'. The aim of this research is to clarify the 'Conspiracy of silence' phenomenon and to identify some of the protocols used to communicate bad news. This is based on a bibliographic revision of publications which were created between 1998 and 2014. Among the 14 articles selected, 2 of them were written by psychologists, 2 by doctors, 2 by psychooncologists, 4 by nurses, 3 by a palliative care team and 1 by a theologian. In relation to the type of research, we distinguish 6 systematic revisions, 7 quantitative researches, and 1 qualitative study. According to the results found, there are generally more studies based on medicine and psychologist databases than on nursery. Furthermore, there are more articles published on international databases than in Spanish ones alluding to this phenomenon. The 'conspiracy of silence' is an universal phenomenon with such a high prevalence. The most important and influent reasons to hide the truth are the fear of the possible emotional repercussion on the patient and the desire to protect him/her. The concealment of clinical information has not only ethical implications but influences the care practices, therefore producing consequences on the patient, the family, the health professionals and maybe on the healthcare system. Nowadays the most used protocol in order to give bad news is the 'SPIKES'. It exists a void of specified communication formation and it is necessary to develop communication skills which would allow us to face and to deal with this kind of circumstances in an assertive way. [ABSTRACT FROM AUTHOR]
- Published
- 2015
23. The Structures of Denial.
- Author
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Zerubavel, Eviatar
- Subjects
SILENCE ,DENIAL (Psychology) ,SOCIAL facts ,COLLECTIVE action ,HEARING ,DEFENSE mechanisms (Psychology) - Abstract
The article examines the actual structure and dynamics of conspiracies of silence and denial. The article will also focus on main factors that make the silence heavier and more prohibitive. Co-denial is a distinctly social phenomenon involving social systems rather than individuals. It has been observed that silence always involves a collaborative effort on the part of both the potential generators and recipients of certain information to stay away from it. Silence itself is rarely discussed by those who practice it. It was found that silence tends to become heavier when there are more rather than less people who conspire to jointly maintain it.
- Published
- 2005
24. Avoidant coping of the decision-making process on the location of care in old age: A possible conspiracy of silence?
- Author
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Adriana Raquel Neves Coelho, Isabel Gil, RAFAEL SERRANO-DEL-ROSAL, and Gema Serrano-Gemes
- Subjects
conspiracy of silence ,pact of silence ,decision-making ,older people ,location of care ,qualitative ,Health, Toxicology and Mutagenesis ,Decision Making ,Palliative Care ,Public Health, Environmental and Occupational Health ,Article ,Caregivers ,Adaptation, Psychological ,Humans ,Medicine ,Qualitative Research ,Aged - Abstract
The conspiracy of silence is extremely important due to both its high incidence and its consequences. This process usually occurs in situations of palliative care, or death; however, this concept is also mentioned in the literature linked to other contexts. Therefore, our objective was to study whether the conspiracy of silence may be extrapolated to the context of decision-making on the location of care in old age. To this end, we first analyzed the in-depth semi structured qualitative interviews conducted with older people, caregivers, and professionals, about decision-making on the location of care in old age. Subsequently, a comparative analysis was performed between the basic elements of the conspiracy of silence and this decision-making. Our findings revealed an avoidance process developed by all three groups. Furthermore, this decision-making presents similarities with the conspiracy of silence in the process of avoidance coping and denial that is developed. However, there are significant differences, as information is not withheld from the older person, who has an active attitude in the process of avoidance. Decision-making on the location of care in old age does not exactly match the conspiracy of silence process, but it does seem to correspond to a pact of silence.
- Published
- 2021
25. Psychiatrie und NS-Euthanasie.
- Author
-
Oberlerchner, H. and Stromberger, H.
- Subjects
- *
NATIONAL socialism , *GENETIC research , *EUTHANASIA , *PUBLIC works ,PSYCHIATRIC research - Abstract
Objective: This article describes the current state of research concerning the fate of mentally ill people in the psychiatric hospital of Klagenfurt am Wörthersee during the era of National Socialism (NS). Sterilization based on the 'Erbgesundheitsgesetz' (genetic health law) deportation to the Castle of Hartheim near Linz, transport to Klagenfurt and killing in the departments of the hospital are documented. This knowledge is to be given to the relatives. Method: Encouraged by diverse public work activities relatives of victims of NS euthanasia sought contact with the department to discover the fate of relatives. Touching meetings with the relatives took place. Results: Since January 2011 the contacting relatives, their motives and the meetings have been protocolled and in this study an attempt is made to give an initial characterization of these people. Conclusion: This approach of a reconstructive biographical work together with relatives of the victims is presented as a proactive duty of psychiatric institutions. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
26. O analiză psihoistorică. Gulagul și Revoluţia română din 1989.
- Author
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ROGOJANU, DUMITRU-CĂTĂLIN
- Abstract
The direction of the current study is the analysis of the Gulag and Romanian Revolution of '1989 using a psychohistorical investigation, which attempts to provide a plausible psychological explanation of these two events. The relationship between the communist prison space and the situation in ,89 can be exploited from other perspectives that emphasize different and nuanced interpretations which can radically change the old historical vision, which focused on documents (archives) justifying the official history of power. The conspiratorial silence of prisoners, meaning that inability to confess the suffering in the period before 1989, „exploded“ in the revolution through aggressive manifestations in Timișoara, Bucharest and other cities in the country. In the end we can say that the Revolution was that long-expected time for Romanians to express their negative energies, anguish, disappointment in the paternal authority represented by Nicolae Ceaușescu. In 1989, the soul of the crowd (Gustave Le Bon) broke loose after a long period of obedience and humiliation in communist prisons, but also in the huge camp : Romania. [ABSTRACT FROM AUTHOR]
- Published
- 2014
27. El proceso de morir: destino y significación del diagnóstico de muerte inminente.
- Author
-
Díaz Facio Lince, Victoria, Alberto Ruiz Osorio, Mario, Flórez Ruiz, Carla, Urrea Cosme, Yenny, Córdoba Sánchez, Verónica, Camilo Arbeláez, Cristian, and Rodríguez Zabala, David
- Subjects
QUALITATIVE research ,CANCER patients ,COMPASSION ,EMOTIONS ,MEDICAL care - Abstract
Copyright of Revista Virtual Universidad Católica del Norte is the property of Revista Virtual Universidad Catolica del Norte and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2013
28. CONSPIRACIÓN DE SILENCIO Y MALESTAR EMOCIONAL EN PACIENTES DIAGNÓSTICADOS DE GLIOBLASTOMA MULTIFORME.
- Author
-
Díaz-Cordobés, José Luis, Barcia, Juan Antonio, Gallego-Sánchez, José María, and Barreto, Pilar
- Abstract
Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2013
- Full Text
- View/download PDF
29. CONSPIRACIÓN DE SILENCIO Y MALESTAR EMOCIONAL EN PACIENTES DIAGNÓSTICADOS DE GLIOBLASTOMA MULTIFORME.
- Author
-
Díaz-Cordobés, José Luis, Barcia, Juan Antonio, Gallego-Sánchez, José María, and Barreto, Pilar
- Abstract
Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2012
- Full Text
- View/download PDF
30. A Century of Silence.
- Author
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Danielian, Jack
- Subjects
- *
GENOCIDE , *CRIME , *PSYCHODYNAMICS , *ARMENIAN massacres , *LAWYERS - Abstract
This paper addresses how crimes of genocide go beyond a need for naked power, economic aggrandizement, or territorial conquest. Such crimes involve psychogenic and psychodynamic underpinnings that can be terrifying to contemplate. Yet their psychological study is essential. The Armenian genocide has been taken as a point of reference. Because the Armenian genocide has resulted in nearly a century-long effort of perpetrator denial, it can provide an important case study of how long-standing trauma and denial reinforce each other and illuminate each other. As a result, this genocide has aptly been called the “secret genocide,” the “unremembered genocide,” and a “crime without a name.” The author holds that genocidal trauma (and trauma in general) is contagious and the contagion is likely to be insidious. All who come in contact with it can come away marked, including victim, victim families and progeny, observers, advocates, researchers, and yes, perpetrators. [ABSTRACT FROM AUTHOR]
- Published
- 2010
- Full Text
- View/download PDF
31. "SECRETS AND LIES": (NOT) TELLING BAD NEWS IN ITALIAN ONCOLOGY.
- Author
-
Marzano, Marco
- Subjects
- *
HOSPICE care , *PALLIATIVE treatment , *ONCOLOGY , *PHYSICIAN-patient relations , *CUSTOMER relations - Abstract
The problem that I treat in this paper is about the fact that people who are about to die in hospital are not usually informed about the fate awaiting them. In Italy, this attitude has remained intact over time despite the extraordinary changes which have taken place in clinical techniques and therapies, and despite the spread of hospices and palliative care wards. In this paper I shall describe the strategies adopted by Italian oncologists to prevent the dying from knowing their fate, the exceptions to this rule, and some of the structural and organizational factors which make changing the situation difficult. The discussion conducted in this paper is based on an ethnographical research carried out by the author in a large hospital in northern Italy. [ABSTRACT FROM AUTHOR]
- Published
- 2009
32. EL PACTO DE SILENCIO EN LOS FAMILIARES DE LOS PACIENTES ONCOLÓGICOS TERMINALES.
- Author
-
De Lugo, Ma de los Ángeles Ruiz-Benítez and Coca, Ma Cristina
- Abstract
Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2008
33. La conspiración del silencio: el derecho a la información y a la autonomía al final de la vida en pacientes terminales
- Author
-
Salas Gómez, Andrea, Silió García, Tamara, and Universidad de Cantabria
- Subjects
Conspiración del silencio ,Conspiracy of silence ,Autonomía ,Terminal patient ,Information ,Derechos del paciente ,Patient´s rights ,Autonomy ,Enfermo terminal ,Información - Abstract
RESUMEN: Este trabajo expone la conspiración del silencio, tema que suscita controversia dentro de la bioética en la actualidad y que genera debate en la etapa final de la vida de los enfermos terminales. Este tema es importante porque ocultar información o no tener en cuenta la autonomía de un enfermo puede suponer la vulneración de los derechos del paciente. El principal objetivo de esta revisión es identificar los problemas bioéticos que suscita la conspiración del silencio en los pacientes terminales. También se intenta conocer el proceso comunicativo entre los enfermos terminales y el personal sanitario. Igualmente, se muestran cronológicamente las leyes que han regulado el derecho a la información y autonomía de los pacientes, así como la evolución de los derechos de los mismos. En España, estos derechos están amparados por la Ley 41/2002 básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. Dentro del ámbito sanitario, concretamente en enfermería, se señala la importancia que tiene el papel de las/os enfermeras/os al final de la vida de los enfermos terminales, cuyo objetivo es intentar mejorar su calidad de vida y evitar un sufrimiento innecesario. ABSTRACT: This project disclose the conspiracy of silence, which is a controversial topic in bioethics nowadays. Conspiracy of silence is a subject that generates debate, especially in the final stage of life in terminal patients. This topic is important because hiding information or not taking into account the autonomy of a patient could implie a violation of patient´s rights. The principal aim of this project is to identify the bioethical problems caused by the conspiracy of silence on terminal patients. It also tries to get to know the comunicative process between terminal patients and healthcare professionals. In the same way, it chronologically shows the laws that have regulated the right to information and autonomy of patients, just as the evolution of patients´ rights. In Spain, these rights are covered by Law 41/2002 basic regulatory of patient´s autonomy and rights and obligations in the field of information and clinical documentation. Inside health’s field, particularly in nursing, it is shown the importance of nurses´ role in the final stage of life of terminal patients. In these circumstances, the main objective of their occupation is trying to improve the quality of life and avoid an unnecessary suffering of these patients. Grado en Enfermería
- Published
- 2020
34. Impacto emocional de los familiares tras la muerte del paciente oncológico en domicilio y en hospital [Recurso electrónico]
- Author
-
Barranco González, Amanda (1997-), Cuevas Allende, Teresa de las., and Universidad Antonio de Nebrija. Centro Universitario de Ciencias de la Salud San Rafael-Nebrija. Departamento de Enfermería.
- Subjects
Conspiración de silencio ,Palliative Care ,Actitud frente a la muerte ,Duelo ,Emotional impact ,Sedación paliativa ,Death ,Palliative sedation ,Conspiracy of silence ,Muerte ,Impacto emocional ,Familia ,Cuidados Paliativos ,Family ,Grief ,Investigación Cualitativa ,Qualitative Investigation ,Attitude to death - Abstract
Trabajo fin de grado. Defendido en junio de 2020. Diversos estudios explican que el impacto emocional es diferente y se desarrolla de maneras distintas, influido por el lugar del fallecimiento, es decir, que haya sucedido en el Hospital o, en contraposición, en el domicilio. Sin embargo, existe un gran vacío de conocimiento en cuanto a las experiencias propias de los familiares durante y tras el proceso de la muerte. Por esta razón el objetivo de este proyecto es comprender el impacto emocional que experimentan los familiares durante el proceso de morir del paciente cuando sucede en el domicilio frente a la vivencia del proceso si ocurre en un hospital. Estudio cualitativo fenomenológico basada en la filosofía de Husserl. Abstract: Various studies explain that the emotional impact is different and develops in different ways, influenced by the place of death, in the Hospital or, in contrast, at home. However, there is a great knowledge gap regarding the experiences of family members during and after the death process. For this reason, the objective of this project is to understand the emotional impact that family members feel during the patient's dying process when it happens at home compared to experiencing the process if it happens in a hospital. A qualitative phenomenological study was carried out based on Husserl's philosophy. Ordenador con navegador de Internet; Adobe Acrobat Reader 44 p. (Según el contador de la aplicación)
- Published
- 2020
35. The conspiracy of silence: the right to information and autonomy at the end of life in terminal patients
- Author
-
Salas Gómez, Andrea, Silió García, Tamara, and Universidad de Cantabria
- Subjects
Conspiración del silencio ,Conspiracy of silence ,Autonomía ,Terminal patient ,Information ,Derechos del paciente ,Patient´s rights ,Autonomy ,Enfermo terminal ,Información - Abstract
RESUMEN: Este trabajo expone la conspiración del silencio, tema que suscita controversia dentro de la bioética en la actualidad y que genera debate en la etapa final de la vida de los enfermos terminales. Este tema es importante porque ocultar información o no tener en cuenta la autonomía de un enfermo puede suponer la vulneración de los derechos del paciente. El principal objetivo de esta revisión es identificar los problemas bioéticos que suscita la conspiración del silencio en los pacientes terminales. También se intenta conocer el proceso comunicativo entre los enfermos terminales y el personal sanitario. Igualmente, se muestran cronológicamente las leyes que han regulado el derecho a la información y autonomía de los pacientes, así como la evolución de los derechos de los mismos. En España, estos derechos están amparados por la Ley 41/2002 básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. Dentro del ámbito sanitario, concretamente en enfermería, se señala la importancia que tiene el papel de las/os enfermeras/os al final de la vida de los enfermos terminales, cuyo objetivo es intentar mejorar su calidad de vida y evitar un sufrimiento innecesario. ABSTRACT: This project disclose the conspiracy of silence, which is a controversial topic in bioethics nowadays. Conspiracy of silence is a subject that generates debate, especially in the final stage of life in terminal patients. This topic is important because hiding information or not taking into account the autonomy of a patient could implie a violation of patient´s rights. The principal aim of this project is to identify the bioethical problems caused by the conspiracy of silence on terminal patients. It also tries to get to know the comunicative process between terminal patients and healthcare professionals. In the same way, it chronologically shows the laws that have regulated the right to information and autonomy of patients, just as the evolution of patients´ rights. In Spain, these rights are covered by Law 41/2002 basic regulatory of patient´s autonomy and rights and obligations in the field of information and clinical documentation. Inside health’s field, particularly in nursing, it is shown the importance of nurses´ role in the final stage of life of terminal patients. In these circumstances, the main objective of their occupation is trying to improve the quality of life and avoid an unnecessary suffering of these patients. Grado en Enfermería
- Published
- 2020
36. We're Listening, But Can We Hear? Psychotherapy with Holocaust Survivors and the Second Generation in Israel, Under (Threat of) Conditions of Armed Conflict.
- Author
-
Tauber, MA, Yvonne
- Abstract
Exploring Israeli psychotherapists' experiences working with Holocaust survivors and second generation a few months into the violence that erupted September 2000, the author encountered instances of inhibited listening resulting from acute personal stress and danger. This led her to rethink the concept of conspiracy of silence in the context of a priori countertransference. Some historical processes underlying this conspiracy of silence (related to Holocaust traumas) are reviewed with a focus on Israel. Suggestions are made to ensure clients optimal listening. [ABSTRACT FROM PUBLISHER]
- Published
- 2003
- Full Text
- View/download PDF
37. Conspiracy of silence versus moral freedom : applying the concept of structure of sin to the phenomenon of whistleblowing
- Author
-
Jacquinot, Philippe, Pellissier-Tanon, Arnaud, Laboratoire en Innovation, Technologies, Economie et Management (EA 7363) (LITEM), Université d'Évry-Val-d'Essonne (UEVE)-Institut Mines-Télécom Business School (IMT-BS), Institut Mines-Télécom [Paris] (IMT)-Institut Mines-Télécom [Paris] (IMT), Université d'Évry-Val-d'Essonne (UEVE), Pôle de recherche interdisciplinaire en sciences du management (PRISM Sorbonne), Université Paris 1 Panthéon-Sorbonne (UP1), LITEM-NPR, Jacquinot, Philippe, and Pôle de recherche interdisciplinaire en sciences du management (PRISM)
- Subjects
Conspiracy of silence ,JEL: M - Business Administration and Business Economics • Marketing • Accounting • Personnel Economics ,Structure of sin ,Whistleblowing ,Moral freedom ,[SHS.GESTION]Humanities and Social Sciences/Business administration ,[SHS.GESTION] Humanities and Social Sciences/Business administration ,Conditioning - Abstract
International audience; When Pope John Paul II constructed the concept of structure of sin, he introduced a term to the field of moral and political theology to refer to the conditioning by which social groups predispose their members toward vice. This concept mainly concerns the collective dynamics through which the agent fails to fulfill his duty, and it draws particular attention to the conspiracy of silence that is instituted due to the complacency of certain agents and the indifference of others. It raises the question of the agent’s moral freedom and, more specifically, the act of intelligence through which the agent calls into question those practices that seem to cause such conditioning. This article examines the collective dynamics at work in business settings and the moral freedom of employees through a closer examination of whistleblowing, a phenomenon in which these dynamics are of particular importance.
- Published
- 2019
38. Avoidant Coping of the Decision-Making Process on the Location of Care in Old Age: A Possible Conspiracy of Silence?
- Author
-
Serrano-Gemes G, Gil I, Coelho A, and Serrano-Del-Rosal R
- Subjects
- Adaptation, Psychological, Aged, Caregivers, Humans, Qualitative Research, Decision Making, Palliative Care
- Abstract
The conspiracy of silence is extremely important due to both its high incidence and its consequences. This process usually occurs in situations of palliative care, or death; however, this concept is also mentioned in the literature linked to other contexts. Therefore, our objective was to study whether the conspiracy of silence may be extrapolated to the context of decision-making on the location of care in old age. To this end, we first analyzed the in-depth semi structured qualitative interviews conducted with older people, caregivers, and professionals, about decision-making on the location of care in old age. Subsequently, a comparative analysis was performed between the basic elements of the conspiracy of silence and this decision-making. Our findings revealed an avoidance process developed by all three groups. Furthermore, this decision-making presents similarities with the conspiracy of silence in the process of avoidance coping and denial that is developed. However, there are significant differences, as information is not withheld from the older person, who has an active attitude in the process of avoidance. Decision-making on the location of care in old age does not exactly match the conspiracy of silence process, but it does seem to correspond to a pact of silence.
- Published
- 2021
- Full Text
- View/download PDF
39. Decisiones al final de la vida en el paciente oncológico terminal. La conspiración del silencio
- Author
-
Jumbo Romero, Guissela Vanessa, Facultad de Ciencias de la Salud, Osasun Zientzien Fakultatea, and Blázquez Ruiz, Francisco Javier
- Subjects
Conspiración del silencio ,Bad news ,Malas noticias ,Conspiracy of silence ,Communication ,Palliative care ,Truth telling ,Comunicación ,Cuidados paliativos - Abstract
El paciente oncológico terminal puede encontrarse en la situación en la que sus familiares y profesionales sanitarios le oculten su diagnóstico y/o pronóstico. A esta forma de proceder se conoce como “conspiración del silencio”. Un fenómeno cuya elevada prevalencia está demostrada en el medio sanitario y que surge como un déficit en el proceso comunicativo al final de la vida. El objetivo principal de este Trabajo de Fin de Grado es analizar la complejidad de este fenómeno en un escenario de toma de decisiones. Y para ello se realiza una búsqueda bibliográfica sistematizada en bases de datos y páginas web de sociedades de oncología, así como libros relacionados con los cuidados paliativos. Este trabajo incluye una propuesta específica. Consistirá en un taller dirigido al profesional de enfermería del servicio de cuidados paliativos para lograr concienciar sobre este fenómeno y ofrecer unas pautas para el manejo de esta situación. Terminal cancer patients can be found in a situation where their family and healthcare professionals avoid to communicate them the clinical information. This situation is known as “conspiracy of silence”. Many studies have confirmed that this event happens frecuently in the situation where the patient have to take decisions. This study aims to analyze the causes and consequences of the conspiracy of silence. To achieve the main objective, a literatura review was done in specialized databases, websites of oncology and some books of paliative care. This proyect incorporates a practical proposal. It is a education workshop for nurses who are in palliative service. The objective of the practical porposal is to raise awaraness about this problem and also to provide guidelines to face the conspiracy of silence. Graduado o Graduada en Enfermería por la Universidad Pública de Navarra Erizaintzan Graduatua Nafarroako Unibertsitate Publikoan
- Published
- 2018
40. Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme
- Author
-
Díaz Cordobés, José Luis, Barcia Albacar, Juan Antonio, Gallego Sánchez, Jose María, and Barreto Martín, Pilar
- Subjects
conspiracy of silence ,lcsh:Psychology ,depression ,lcsh:BF1-990 ,depresión ,glioblastoma multiforme ,ansiedad ,Anxiety ,conspiración de silencio ,lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens ,lcsh:RC254-282 - Abstract
Aim: For those patients suffering serious illnesses with a poor prognosis, there continues to be a significant percentage of well-meaning family members who, out of a desire to protect the patient, decide to hide the truth, even if the patient wishes to know what the real situation is. Methods: To measure the incidence of conspiracies of silence within families and their repercussions on levels of anxiety and depression of patients diagnosed Glioblastoma Multiforme (GBM). Findings: 19.3 % of the families taking part thought that it would not be appropriate to give the patient information about their disease, despite the patient stating that he or she would like to know more about their disease. This conspiracy had an impact on the anxiety levels of the patient even a month after the discharge from hospital. At this point in the disease process, those patients where there was a conspiracy of silence demonstrated psychopathological levels of anxiety (12.71±2.28), whereas the levels of anxiety for those patients who were allowed more open communication showed levels which were below clinical significance (7.00±3.27). Conclusions: The needs for information of family members and patients with GBM are different and their repercussions on emotional distress in patients can continue during a prolonged period of time. Objetivo: En el ámbito de enfermedades muy graves y de mal pronóstico, continúa existiendo un importante porcentaje de familiares que, por motivos beneficentes y de protección, deciden ocultar la verdad a los enfermos que desean conocer lo que les ocurre. El objetivo es identificar la incidencia de conspiración de silencio familiar y su repercusión en los niveles de ansiedad y depresión del paciente diagnosticado de glioblastoma multiforme (GBM). Método: Los niveles de ansiedad y depresión fueron recogidos en cinco momentos del proceso de enfermedad: ingreso, después de la comunicación del diagnóstico, en el alta hospitalaria, un mes después del alta y seis meses después del alta. Las necesidades de información fueron recogidas en el momento del ingreso. Resultados: El 19,3 % de las familias, consideró que no sería conveniente comunicar al paciente lo que le ocurría a pesar de que éste quería conocer aspectos relacionados con su enfermedad. Esta conspiración repercute en los niveles de ansiedad del paciente hasta incluso un mes después del alta hospitalaria. En este momento de la enfermedad, en los pacientes donde existía pacto de silencio presentaban unos niveles psicopatológicos de ansiedad (12,71±2,28), mientras que los niveles de ansiedad de los pacientes a los que se les permitió una comunicación abierta estaban por debajo de la significación clínica (7,00±3,27). Conclusiones: Existe una alta incidencia de pacto de silencio en pacientes con GBM y su repercusión sobre el malestar emocional de los enfermos se mantiene durante un largo periodo de tiempo.
- Published
- 2012
41. 'Secrets and Lies': (Not) Telling Bad News in Italian Oncology
- Author
-
Marco Marzano
- Subjects
“No tell” policy ,lcsh:Social Sciences ,lcsh:H ,Conspiracy of silence ,Imminent death ,lcsh:Law ,lcsh:H1-99 ,lcsh:Social sciences (General) ,Communicative strategy ,lcsh:K - Abstract
The problem that I treat in this paper is about the fact that people who are about to die in hospital are not usually informed about the fate awaiting them. In Italy, this attitude has remained intact over time despite the extraordinary changes which have taken place in clinical techniques and therapies, and despite the spread of hospices and palliative care wards. In this paper I shall describe the strategies adopted by Italian oncologists to prevent the dying from knowing their fate, the exceptions to this rule, and some of the structural and organizational factors which make changing the situation difficult. The discussion conducted in this paper is based on an ethnographical research carried out by the author in a large hospital in northern Italy.
- Published
- 2009
42. Estudio de la influencia del funcionamiento familiar en situaciones de conspiración de silencio en pacientes terminales
- Author
-
Rodríguez Lago, Tania, Varela Feal, Nuria, Aznar Alarcón, Francisco Javier, and Universidade da Coruña. Facultade de Enfermaría e Podoloxía
- Subjects
Conspiración de silencio ,Conspiracy of silence ,Terminal patient ,Enfermo terminal - Abstract
[Resumen] El diagnóstico de una enfermedad terminal está rodeado de mucho sufrimiento, estrés y retos para el paciente y sus seres queridos. Existen diferencias en cuanto como comunicar las malas noticias, afrontamiento, implicación de los familiares y toma de decisiones. La conspiración de silencio es un acuerdo para ocultar la información entre los familiares, profesionales sanitarios y/o amigos, que puede ser total o parcial e impide al paciente conocer su estado de salud real y que no se tenga en cuenta sus deseos de saber la verdad, a la cual además tiene derecho por ley. Se crea de esta forma una barrera para la comunicación familia-enfermo y se toman decisiones en su nombre. Todo esto conlleva a un peor afrontamiento de la enfermedad y de la muerte. Este estudio se llevará a cabo desde un enfoque y perspectiva cualitativa. Se pretende no sólo conocer por qué se produce la conspiración de silencio sino además averiguar si el funcionamiento familiar y el apego guardan relación con ello. El funcionamiento familiar es relevante en relación con las herramientas que la familia utiliza para afrontar la enfermedad y los estilos de apego definen la forma en que la gente relaciona el sufrimiento y la expectativa de una pérdida. [Abstract] The diagnosis of a terminal illness is surrounded by suffering, stress and challenges for patients and their loved ones. There are differences in how to communicate bad news, the coping strategies, the involvement of relatives and the decision making. Conspiracy of silence is an agreement to hide information among relatives, health professionals and/or friends. It can be total or partial and it prevents the patients from knowing their real heath status. This can lead to not consider their desires to know the truth, which is entitled by law. A barrier for the family-patient information is created and decisions are made in their behalf. This causes a worse coping with the disease and death. This study will be conducted from a qualitative approach and perspective. The aim of the study is not only to know why the conspiracy of silence happens, but to know if family functioning and attachment are related to it. Family functioning is relevant with the tools that the family uses to cope with the illness and attachment styles define the way the people relate the suffering and the perspective of a loss. Traballo fin de grao (UDC.FEP). Enfermaría. Curso 2015/2016
- Published
- 2016
43. Estudio de la influencia del funcionamiento familiar en situaciones de conspiración de silencio en pacientes terminales
- Author
-
Aznar Alarcón, Francisco Javier, Universidade da Coruña. Facultade de Enfermaría e Podoloxía, Rodríguez Lago, Tania, Aznar Alarcón, Francisco Javier, Universidade da Coruña. Facultade de Enfermaría e Podoloxía, and Rodríguez Lago, Tania
- Abstract
[Resumen] El diagnóstico de una enfermedad terminal está rodeado de mucho sufrimiento, estrés y retos para el paciente y sus seres queridos. Existen diferencias en cuanto como comunicar las malas noticias, afrontamiento, implicación de los familiares y toma de decisiones. La conspiración de silencio es un acuerdo para ocultar la información entre los familiares, profesionales sanitarios y/o amigos, que puede ser total o parcial e impide al paciente conocer su estado de salud real y que no se tenga en cuenta sus deseos de saber la verdad, a la cual además tiene derecho por ley. Se crea de esta forma una barrera para la comunicación familia-enfermo y se toman decisiones en su nombre. Todo esto conlleva a un peor afrontamiento de la enfermedad y de la muerte. Este estudio se llevará a cabo desde un enfoque y perspectiva cualitativa. Se pretende no sólo conocer por qué se produce la conspiración de silencio sino además averiguar si el funcionamiento familiar y el apego guardan relación con ello. El funcionamiento familiar es relevante en relación con las herramientas que la familia utiliza para afrontar la enfermedad y los estilos de apego definen la forma en que la gente relaciona el sufrimiento y la expectativa de una pérdida., [Abstract] The diagnosis of a terminal illness is surrounded by suffering, stress and challenges for patients and their loved ones. There are differences in how to communicate bad news, the coping strategies, the involvement of relatives and the decision making. Conspiracy of silence is an agreement to hide information among relatives, health professionals and/or friends. It can be total or partial and it prevents the patients from knowing their real heath status. This can lead to not consider their desires to know the truth, which is entitled by law. A barrier for the family-patient information is created and decisions are made in their behalf. This causes a worse coping with the disease and death. This study will be conducted from a qualitative approach and perspective. The aim of the study is not only to know why the conspiracy of silence happens, but to know if family functioning and attachment are related to it. Family functioning is relevant with the tools that the family uses to cope with the illness and attachment styles define the way the people relate the suffering and the perspective of a loss.
- Published
- 2016
44. Proceso de toma de decisiones al final de la vida
- Author
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Ibrahimova Bashchobanova, Atidzhe, Facultad de Ciencias de la Salud, Osasun Zientzien Fakultatea, and Blázquez Ruiz, Francisco Javier
- Subjects
Decisiones al final de la vida ,Conspiración del silencio ,Eutanasia ,Conspiracy of silence ,Autonomía ,Euthanasia ,Decisions at the end of life ,Good death ,Buena muerte ,Autonomy - Abstract
A pesar de los grandes avances científicos, el hombre no debe olvidarse de su condición mortal, de su naturaleza finita. Sabemos que antes o después nos enfrentaremos a la muerte, a esa inminente realidad que no puede ser descrita por los múltiples eufemismos y metáforas que la rodean. Y cuando esto suceda, sólo podemos aspirar a tener una “buena muerte”, sin dolor ni sufrimiento, rodeados de nuestros seres queridos, y atendidos por un personal sanitario que respete nuestra autonomía y dignidad. Vivimos en una sociedad abierta y plural, cuya legislación debe ser capaz de satisfacer las necesidades al final de la vida de todos sus miembros, para poder ser considerada una sociedad incluyente. Con el presente trabajo, pretendemos aportar una visión global de la complejidad del proceso de toma de decisiones al final de la vida, aclarar el significado de conceptos de candente actualidad como cuidados paliativos, suicidio racional, suicidio asistido, eutanasia,…, y verter reflexión tanto para los ciudadanos como para el profesional sanitario In spite of the great scientific advances, people must not forget their mortal condition, their finite nature. We know that sooner or later we will face death, to that impending reality that can not be described by the many euphemisms and metaphors that surround it. And when this happens, we can only aspire to have a "good death", without pain or suffering, surrounded by our loved ones, and cared by a sanitary staff that respects our autonomy and dignity. We live in an open and plural society, whose legislation must be able to satisfy the requirements by the end of the life of all its members, in order to be considered an enclosing society. With the present work, we try to provide an overview of the complexity of the decision-making process at the end of life, to clarify the meaning of concepts of topical as palliative care, rational suicide, assisted suicide, euthanasia,… and to spill reflection both for the citizens and for the sanitary professional Graduado o Graduada en Enfermería por la Universidad Pública de Navarra Erizaintzan Graduatua Nafarroako Unibertsitate Publikoan
- Published
- 2015
45. Maus
- Author
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Nared, Katja and Debeljak, Aleš
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conspiracy of silence ,udc:316.7:084.11(043.2) ,zarota molka - Published
- 2014
46. Cross-Border Feminist Solidarities
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Fregoso, Rosa Linda, author
- Published
- 2003
- Full Text
- View/download PDF
47. Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme
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Juan Antonio Barcia Albacar, Jose María Gallego Sánchez, Pilar Barreto Martín, and José Luis Díaz Cordobés
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medicine.medical_specialty ,Incidence (epidemiology) ,depresión ,ansiedad ,Disease ,Anxiety ,conspiración de silencio ,medicine.disease ,Silence ,conspiracy of silence ,Clinical Psychology ,Oncology ,depression ,glioblastoma multiforme ,medicine ,Clinical significance ,medicine.symptom ,Psychiatry ,Psychology ,Depression (differential diagnoses) ,Psychopathology ,Glioblastoma - Abstract
Objetivo: En el ámbito de enfermedades muy graves y de mal pronóstico, continúa existiendo un importante porcentaje de familiares que, por motivos beneficentes y de protección, deciden ocultar la verdad a los enfermos que desean conocer lo que les ocurre. El objetivo es identificar la incidencia de conspiración de silencio familiar y su repercusión en los niveles de ansiedad y depresión del paciente diagnosticado de glioblastoma multiforme (GBM). Método: Los niveles de ansiedad y depresión fueron recogidos en cinco momentos del proceso de enfermedad: ingreso, después de la comunicación del diagnóstico, en el alta hospitalaria, un mes después del alta y seis meses después del alta. Las necesidades de información fueron recogidas en el momento del ingreso. Resultados: El 19,3 % de las familias, consideró que no sería conveniente comunicar al paciente lo que le ocurría a pesar de que éste quería conocer aspectos relacionados con su enfermedad. Esta conspiración repercute en los niveles de ansiedad del paciente hasta incluso un mes después del alta hospitalaria. En este momento de la enfermedad, en los pacientes donde existía pacto de silencio presentaban unos niveles psicopatológicos de ansiedad (12,71±2,28), mientras que los niveles de ansiedad de los pacientes a los que se les permitió una comunicación abierta estaban por debajo de la significación clínica (7,00±3,27). Conclusiones: Existe una alta incidencia de pacto de silencio en pacientes con GBM y su repercusión sobre el malestar emocional de los enfermos se mantiene durante un largo periodo de tiempo. Aim: For those patients suffering serious illnesses with a poor prognosis, there continues to be a significant percentage of well-meaning family members who, out of a desire to protect the patient, decide to hide the truth, even if the patient wishes to know what the real situation is. Methods: To measure the incidence of conspiracies of silence within families and their repercussions on levels of anxiety and depression of patients diagnosed Glioblastoma Multiforme (GBM). Findings: 19.3 % of the families taking part thought that it would not be appropriate to give the patient information about their disease, despite the patient stating that he or she would like to know more about their disease. This conspiracy had an impact on the anxiety levels of the patient even a month after the discharge from hospital. At this point in the disease process, those patients where there was a conspiracy of silence demonstrated psychopathological levels of anxiety (12.71±2.28), whereas the levels of anxiety for those patients who were allowed more open communication showed levels which were below clinical significance (7.00±3.27). Conclusions: The needs for information of family members and patients with GBM are different and their repercussions on emotional distress in patients can continue during a prolonged period of time.
- Published
- 2012
- Full Text
- View/download PDF
48. A conspiração do silêncio em cuidados paliativos : os actores, contextos e práticas na perspectiva da equipa multidisciplinar
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Mendes, Tânia Sofia Reis and Martins, José Carlos Amado
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Doente ,Patient ,Conspiração do silêncio ,Communication ,Strategies and consequences ,Multidisciplinary team ,Causes ,Contextos ,Grounded theory ,Cuidados paliativos ,Causas ,Estratégias e consequências ,Comunicação ,Conspiracy of silence ,Information ,Contexts ,Palliative care ,Família ,Family ,Equipa multidisciplinar ,Informação - Abstract
Submitted by Isabel Gomes (itg@lisboa.ucp.pt) on 2010-11-24T10:07:08Z No. of bitstreams: 1 Temporario.pdf: 9512 bytes, checksum: 71767ca7886bf32eb705a27583eca52b (MD5) Made available in DSpace on 2010-11-24T10:07:18Z (GMT). No. of bitstreams: 1 Temporario.pdf: 9512 bytes, checksum: 71767ca7886bf32eb705a27583eca52b (MD5)
- Published
- 2009
49. A la sombra del otro: sobre los vínculos al final dela vida
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Ruiz Osorio, Mario Alberto and Ruiz Osorio, Mario Alberto
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En la experiencia de morir, el enfermo vivencia algunas situaciones que están determinadas por el sufrimiento producido por la enfermedad y la proximidad del final de su vida. Particularmente, los vínculos con el otro se transforman en razón de la dificultad de aceptar la condición de mortal que le impone la enfermedad avanzada. La mentira, la conspiración del silencio, la agresividad, son entre otras, las expresiones de un proceso que exige al psiquismo del enfermo una gran cuota de padecimiento. Como producto de una investigación cualitativa con enfermos al final de la vida, y la lectura de textos literarios de apoyo, se ofrecen algunos hallazgos en el presente artículo con el fin de ilustrar, en algo, la fenomenología, de la experiencia de morir., In the experience of dying, the patient experiences some situations that are determined by the suffering produced by the disease and the proximity of the end of his life. Particularly, the links with other one transform in reason of the difficulty of accepting the condition of mortally that imposes the advanced disease on him. The lie, the conspiracy of the silence, the aggressiveness, are between others, the expressions of a process that demands a great quota of suffering from the psychism of the patient. As product of a qualitative investigation with patients at the end of the life and the reading of literary texts of support, some reflections offer in the present article in order to illustrate, in something, the phenomenology, of the experience of dying.
- Published
- 2011
50. El derecho del paciente a la información: el arte de comunicar
- Author
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Barbero, J.
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Ethics ,Conspiracy of silence ,ética ,Information ,Communication ,Deliberation ,comunicación ,conspiración del silencio ,Información ,deliberación - Abstract
Se comienza analizando el concepto de verdad, con sus múltiples acepciones, para pasar a la descripción de las justificaciones habituales para no decir la verdad a los pacientes. Desde ahí se plantea qué significa ser fieles a la verdad, destacando dos criterios: decirle "todo" lo que quiere saber y "sólo" lo que quiere saber, utilizando las técnicas comunicativas pertinentes y ofertarle una "garantía de soporte" adecuada ante la fragilidad que supone su enfermedad. Se trata de huir de dos extremos: el paternalismo clásico (le evito información sistemáticamente, dada su fragilidad) y el encarnizamiento informativo. Posteriormente se exponen las condiciones que justificarían excepcionalmente no informar a un paciente concreto y se ofrecen orientaciones para facilitar el proceso comunicativo adecuado (congruencia informativa, ambiente de verdad, etc.). Por último, se trabaja la denominada "conspiración del silencio", desde la perspectiva técnica y ética y se reflexiona sobre cómo dimensionar la información dentro de las estrategias de comunicación y deliberación. The article starts by analysing the concept of truth, with its numerous accepted meanings, and then goes on to describe the normal justifications for not telling the truth to patients. This serves as a basis to pose the meaning of being faithful to the truth, with two criteria emphasised: telling the patient "everything" he wants to know, and "only" what he wants to know, using the relevant communication techniques and offering him an adequate "guarantee of support" facing the fragility brought on by his disease. Two extremes are avoided: classical paternalism (systematic avoidance of information given his fragile state) and informational ferocity. Subsequently, the conditions are set out that would exceptionally justify not informing a specific patient, and guidelines are offered to facilitate the suitable communicative process (informational coherence, atmosphere of truth, etc.). Finally, the so-called "conspiracy of silence" is dealt with from an ethical and technical perspective, and there is a reflection on how to measure information within the strategies of communication and deliberation.
- Published
- 2006
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