1. Physician's Communication in Code Status Discussions for Terminally Ill Cancer Patients in Inpatient Hospice/Palliative Care Units in Japan: A Nationwide Post-Bereavement Survey.
- Author
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Kizawa, Yoshiyuki, Yamaguchi, Takashi, Sakashita, Akihiro, Aoyama, Maho, Morita, Tatsuya, Tsuneto, Satoru, Shima, Yasuo, and Miyashita, Mitsunori
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TERMINALLY ill , *PALLIATIVE treatment , *HOSPICE patients , *HOSPICE nurses , *PHYSICIANS , *LOGISTIC regression analysis , *CANCER patient care , *TUMOR treatment , *HOSPICE care , *RESEARCH , *TERMINAL care , *RESEARCH methodology , *ARTHRITIS Impact Measurement Scales , *FAMILIES , *MEDICAL cooperation , *EVALUATION research , *COMPARATIVE studies , *COMMUNICATION , *BEREAVEMENT - Abstract
Context: Cardiopulmonary resuscitation is one of the most important end-of-life care decisions. However, the experience of bereaved families during code status discussions is not well documented.Objective: The aims of this study were to describe the degree of emotional distress of bereaved families when discussing code status, identify their perceived areas for improvement and determine associated factors.Methods: This study is part of a nationwide post-bereavement survey, the Japan Hospice and Palliative care Evaluation 3 (J-HOPE3) study. Questionnaires were sent to the relatives of cancer patients who had died in palliative care units in Japan in 2014.Results: From an analysis of 338 questionnaires, 37% of families reported high emotional distress during code status discussions and 32% reported a need for improvement. Multiple logistic regression analyses revealed the following were associated with high-level distress: the family had hoped for the miraculous and spontaneous recovery of the patient (odds ratio [OR] 2.4, 95% confidence interval [CI] 1.31-4.43, P = 0.0049), the family felt they could not voice their opinion about Cardiopulmonary resuscitation (OR 2.07, CI 1.12-3.81, P = 0.02), or the physician failed to adapt the explanation to the family's preparation level (OR 0.36, CI 0.18-0.68, P = 0.0015). Factors identified for improvement were: holding discussions in a relaxing atmosphere conducive to questioning (OR 0.36, CI 0.16-0.80, P = 0.012), and ensuring the physician adapted the explanation to the family's preparation level (OR 0.47, CI 0.23-0.96, P = 0.037).Conclusion: We recommend the development of educational programs for code status discussions to improve the experience of bereaved family members. [ABSTRACT FROM AUTHOR]- Published
- 2021
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