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2. Views and opinions of the general public about the reimbursement of expensive medicines in the Netherlands.

Author

Scheijmans, Féline E. V., van der Wal, Roosmarijn, Zomers, Margot L., van Delden, Johannes J. M., van der Pol, W. Ludo, and van Thiel, Ghislaine J. M. W.

Subjects
DUTCH people, PRICES, PUBLIC opinion, PUBLIC support, QUALITY of life
Abstract

Objectives: Solidarity-based healthcare systems are being challenged by the incremental costs of new and expensive medicines for cancer and rare diseases. To regulate reimbursement of such drugs, the Dutch government introduced a policy instrument known as the Coverage Lock (CL) in 2015. Little is known about the public opinion regarding such policy instruments and their consequences, i.e., reimbursement of some, but not all, expensive medicines. We aimed to identify the preferences of Dutch citizens regarding the reimbursement of expensive medicines, and to investigate the views of the public on the use of the CL as a healthcare policy instrument and their input for improvement. Methods: Web-based survey of a representative sample of 1999 Dutch citizens aged 18 years and older (panel of research company Kantar Public). Potential respondents were approached via e-mail. Several policy measures, real-life cases and statements related to the CL were presented in the survey to respondents. Their responses were analysed by tabulating descriptive statistics (proportions and percentages). Results: 1179 individuals (response rate 59%) filled in the questionnaire. Although a majority considered the CL policy unjustified, they preferred it to the alternative policy measures that were presented. In four real-life case descriptions of patients in need of expensive medicines, respondents most often indicated effectiveness, lack of availability of alternative treatment and improved quality of life due to treatment as reasons for a positive reimbursement decision. An unfavourable cost-benefit ratio was their main reason to be against reimbursement. Some argued that withholding reimbursement was a way of informing manufacturers that extremely high prices are unacceptable. Conclusion: There is public support for patients in need of expensive medicine. Many respondents supported the CL as a reimbursement policy. However, there is a wish to optimize the interpretation of the assessment criteria and the weight these are attributed in decision making about reimbursement of expensive innovative medicine for patients. [ABSTRACT FROM AUTHOR]

Published
2025
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5. Questioning the value of present life: The lived experience of older people who see no future for themselves

Author

Medical Humanities Onderzoek Team 1, Regenerative Medicine and Stem Cells, JC onderzoeksprogramma Methodology, van den Berg, Vera E, Thölking, Thessa W, Leget, Carlo J W, Hartog, Iris D, Zomers, Margot L, van Delden, Johannes J M, van Wijngaarden, Els J, Medical Humanities Onderzoek Team 1, Regenerative Medicine and Stem Cells, JC onderzoeksprogramma Methodology, van den Berg, Vera E, Thölking, Thessa W, Leget, Carlo J W, Hartog, Iris D, Zomers, Margot L, van Delden, Johannes J M, and van Wijngaarden, Els J

Published
2023

6. Questioning the value of present life: The lived experience of older people who see no future for themselves.

Author

van den Berg, Vera E., Thölking, Thessa W., Leget, Carlo J. W., Hartog, Iris D., Zomers, Margot L., van Delden, Johannes J. M., and van Wijngaarden, Els J.

Subjects
LIFE course approach, ATTITUDE (Psychology), INTERVIEWING, LIFE, EXPERIENCE, PHENOMENOLOGY, AGING, LONELINESS, RESEARCH funding
Abstract

To describe the lived experience of older people who see no future for oneself in the context of aging and the possible development of a wish to die. Data were collected from 34 interviews with people of 55-92 years. A phenomenological hermeneutical analysis was performed using crafted stories as an analytical device. Four intertwined constituents together with the essence of the phenomenon provide a layered description of what it means to see no future for oneself. In all constituents: 1) not sharing everyday life, 2) looking for new commitments, 3) facing present losses and future fears and 4) imagining not waking up in the morning, the essence losing zest for life seeped through their daily experiences. As their horizon of future possibilities is shrinking, older people in our study experience a loss of zest for life and start to questioning the value of their present lives. And although a certain languishing mood can be discovered, the phenomenon 'seeing no future for oneself' does not entail a wish to die. [ABSTRACT FROM AUTHOR]

Published
2023
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7. The reimbursement for expensive medicines: stakeholder perspectives on the SMA medicine nusinersen and the Dutch Coverage Lock policy

Author

Global Public Health & Bioethics, Opleiding Neurologie, Medical Humanities Onderzoek Team 1, Lab Reumatologie/Klinische Immunologie, Infection & Immunity, Bioethics & Health Humanities, Child Health, Circulatory Health, JC onderzoeksprogramma Methodology, Regenerative Medicine and Stem Cells, Neurologen, Brain, Scheijmans, Féline E.V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J.M.van, van der Pol, W. Ludo, van Thiel, Ghislaine J.M.W., Global Public Health & Bioethics, Opleiding Neurologie, Medical Humanities Onderzoek Team 1, Lab Reumatologie/Klinische Immunologie, Infection & Immunity, Bioethics & Health Humanities, Child Health, Circulatory Health, JC onderzoeksprogramma Methodology, Regenerative Medicine and Stem Cells, Neurologen, Brain, Scheijmans, Féline E.V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J.M.van, van der Pol, W. Ludo, and van Thiel, Ghislaine J.M.W.

Published
2022

8. Requests for euthanasia or assisted suicide of people without (severe) illness

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, van den Berg, Vera E, Zomers, Margot L, van Thiel, Ghislaine Jmw, Leget, Carlo Jw, van Delden, Johannes Jm, van Wijngaarden, Els J, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, van den Berg, Vera E, Zomers, Margot L, van Thiel, Ghislaine Jmw, Leget, Carlo Jw, van Delden, Johannes Jm, and van Wijngaarden, Els J

Published
2022

9. Additional file 1 of The reimbursement for expensive medicines: stakeholder perspectives on the SMA medicine nusinersen and the Dutch Coverage Lock policy

Author

Scheijmans, Féline E. V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J. M. van, van der Pol, W. Ludo, and van Thiel, Ghislaine J. M. W.

Abstract

Additional file 1:Supplementary file 1. Interviewguide in Dutch. Supplementary 2. Interview guide translated from Dutch to English.

Published
2022
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14. Prevalence and characteristics of older adults with a persistent death wish without severe illness: a large cross-sectional survey

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Hartog, Iris D, Zomers, Margot L, van Thiel, Ghislaine J M W, Leget, Carlo, Sachs, Alfred P E, Uiterwaal, Cuno S P M, van den Berg, Vera, van Wijngaarden, Els, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Hartog, Iris D, Zomers, Margot L, van Thiel, Ghislaine J M W, Leget, Carlo, Sachs, Alfred P E, Uiterwaal, Cuno S P M, van den Berg, Vera, and van Wijngaarden, Els

Published
2020

17. Characterizing Adult Sleep Behavior Over 20 Years-The Population-Based Doetinchem Cohort Study

Author

Public Health Epidemiologie, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot L, Hulsegge, Gerben, van Oostrom, Sandra H, Proper, Karin I., Verschuren, W M Monique, Picavet, H. Susan J, Public Health Epidemiologie, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot L, Hulsegge, Gerben, van Oostrom, Sandra H, Proper, Karin I., Verschuren, W M Monique, and Picavet, H. Susan J

Published
2017

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