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8. Questioning the value of present life: The lived experience of older people who see no future for themselves.

Author

van den Berg, Vera E., Thölking, Thessa W., Leget, Carlo J. W., Hartog, Iris D., Zomers, Margot L., van Delden, Johannes J. M., and van Wijngaarden, Els J.

Subjects
LIFE course approach, ATTITUDE (Psychology), INTERVIEWING, LIFE, EXPERIENCE, PHENOMENOLOGY, AGING, LONELINESS, RESEARCH funding
Abstract

To describe the lived experience of older people who see no future for oneself in the context of aging and the possible development of a wish to die. Data were collected from 34 interviews with people of 55-92 years. A phenomenological hermeneutical analysis was performed using crafted stories as an analytical device. Four intertwined constituents together with the essence of the phenomenon provide a layered description of what it means to see no future for oneself. In all constituents: 1) not sharing everyday life, 2) looking for new commitments, 3) facing present losses and future fears and 4) imagining not waking up in the morning, the essence losing zest for life seeped through their daily experiences. As their horizon of future possibilities is shrinking, older people in our study experience a loss of zest for life and start to questioning the value of their present lives. And although a certain languishing mood can be discovered, the phenomenon 'seeing no future for oneself' does not entail a wish to die. [ABSTRACT FROM AUTHOR]

Published
2023
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9. Questioning the value of present life: The lived experience of older people who see no future for themselves

Author

Medical Humanities Onderzoek Team 1, Regenerative Medicine and Stem Cells, JC onderzoeksprogramma Methodologie, van den Berg, Vera E, Thölking, Thessa W, Leget, Carlo J W, Hartog, Iris D, Zomers, Margot L, van Delden, Johannes J M, van Wijngaarden, Els J, Medical Humanities Onderzoek Team 1, Regenerative Medicine and Stem Cells, JC onderzoeksprogramma Methodologie, van den Berg, Vera E, Thölking, Thessa W, Leget, Carlo J W, Hartog, Iris D, Zomers, Margot L, van Delden, Johannes J M, and van Wijngaarden, Els J

Published
2023

11. Versterkende factoren bij ouderen met een doodswens

Author

Pluim, I., Zomers, Margot, Wijngaarden, E.J. Van, Sachs, A., Damoiseaux, R., Thiel, Ghislaine van, Pluim, I., Zomers, Margot, Wijngaarden, E.J. Van, Sachs, A., Damoiseaux, R., and Thiel, Ghislaine van

Abstract

Item does not contain fulltext

Published
2022

12. The reimbursement for expensive medicines: stakeholder perspectives on the SMA medicine nusinersen and the Dutch Coverage Lock policy

Author

Global Public Health & Bioethics, Opleiding Neurologie, Medical Humanities Onderzoek Team 1, Lab Reumatologie/Klinische Immunologie, Infection & Immunity, Bioethics & Health Humanities, Child Health, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, Neurologen, Brain, Scheijmans, Féline E.V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J.M.van, van der Pol, W. Ludo, van Thiel, Ghislaine J.M.W., Global Public Health & Bioethics, Opleiding Neurologie, Medical Humanities Onderzoek Team 1, Lab Reumatologie/Klinische Immunologie, Infection & Immunity, Bioethics & Health Humanities, Child Health, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, Neurologen, Brain, Scheijmans, Féline E.V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J.M.van, van der Pol, W. Ludo, and van Thiel, Ghislaine J.M.W.

Published
2022

13. Lifelong versus not lifelong death wishes in older adults without severe illness: a cross-sectional survey

Author

Medical Humanities Onderzoek Team 1, AIOS Psychiatrie, Circulatory Health, JC onderzoeksprogramma Methodologie, Elzinga, Elke, Zomers, Margot, van der Burg, Kiki, van Veen, Sisco, Schweren, Lizanne, van Thiel, Ghislaine, van Wijngaarden, Els, Medical Humanities Onderzoek Team 1, AIOS Psychiatrie, Circulatory Health, JC onderzoeksprogramma Methodologie, Elzinga, Elke, Zomers, Margot, van der Burg, Kiki, van Veen, Sisco, Schweren, Lizanne, van Thiel, Ghislaine, and van Wijngaarden, Els

Published
2022

14. Requests for euthanasia or assisted suicide of people without (severe) illness

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, van den Berg, Vera E, Zomers, Margot L, van Thiel, Ghislaine Jmw, Leget, Carlo Jw, van Delden, Johannes Jm, van Wijngaarden, Els J, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Regenerative Medicine and Stem Cells, van den Berg, Vera E, Zomers, Margot L, van Thiel, Ghislaine Jmw, Leget, Carlo Jw, van Delden, Johannes Jm, and van Wijngaarden, Els J

Published
2022

15. Versterkende factoren bij ouderen met een doodswens

Author

Medical Humanities Onderzoek Team 1, Epi Curriculair Onderwijs, Other research (not in main researchprogram), Huisartsopleiding, Child Health, Infection & Immunity, Circulatory Health, JC onderzoeksprogramma Methodologie, Pluim, Ilse, Zomers, Margot, van Wijngaarden, Els, Sachs, Alfred, Damoiseaux, Roger, van Thiel, Ghislaine, Medical Humanities Onderzoek Team 1, Epi Curriculair Onderwijs, Other research (not in main researchprogram), Huisartsopleiding, Child Health, Infection & Immunity, Circulatory Health, JC onderzoeksprogramma Methodologie, Pluim, Ilse, Zomers, Margot, van Wijngaarden, Els, Sachs, Alfred, Damoiseaux, Roger, and van Thiel, Ghislaine

Published
2022

20. Additional file 1 of The reimbursement for expensive medicines: stakeholder perspectives on the SMA medicine nusinersen and the Dutch Coverage Lock policy

Author

Scheijmans, Féline E. V., Zomers, Margot L., Fadaei, Sina, Onrust, Marthe R., van der Graaf, Rieke, Delden, Johannes J. M. van, van der Pol, W. Ludo, and van Thiel, Ghislaine J. M. W.

Abstract

Additional file 1:Supplementary file 1. Interviewguide in Dutch. Supplementary 2. Interview guide translated from Dutch to English.

Published
2022
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24. 75-plussers met een doodswens zonder dat ze ernstig ziek zijn

Author

Zomers, Margot, van Thiel, Ghislaine, Hartog, Iris, van den Berg, Vera, Leget, Carlo, Sachs, Alfred, Uiterwaal, Cuno, van Wijngaarden, Els, AGEM - Amsterdam Gastroenterology Endocrinology Metabolism, and Graduate School

Published
2021

27. 75-plussers met een doodswens zonder dat ze ernstig ziek zijn

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Epi Curriculair Onderwijs, Other research (not in main researchprogram), JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot, van Thiel, Ghislaine, Hartog, Iris, Van Den Berg, Vera, Leget, Carlo, Sachs, Alfred, Uiterwaal, Cuno, van Wijngaarden, Els, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Epi Curriculair Onderwijs, Other research (not in main researchprogram), JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot, van Thiel, Ghislaine, Hartog, Iris, Van Den Berg, Vera, Leget, Carlo, Sachs, Alfred, Uiterwaal, Cuno, and van Wijngaarden, Els

Published
2021

28. Euthanasia and Physician-Assisted Suicide in Patients With Multiple Geriatric Syndromes

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, van den Berg, Vera, van Thiel, Ghislaine, Zomers, Margot, Hartog, Iris, Leget, Carlo, Sachs, Alfred, Uiterwaal, Cuno, van Wijngaarden, Els, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, van den Berg, Vera, van Thiel, Ghislaine, Zomers, Margot, Hartog, Iris, Leget, Carlo, Sachs, Alfred, Uiterwaal, Cuno, and van Wijngaarden, Els

Published
2021

33. Prevalence and characteristics of older adults with a persistent death wish without severe illness: a large cross-sectional survey

Author

Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Hartog, Iris D, Zomers, Margot L, van Thiel, Ghislaine J M W, Leget, Carlo, Sachs, Alfred P E, Uiterwaal, Cuno S P M, van den Berg, Vera, van Wijngaarden, Els, Medical Humanities Onderzoek Team 1, Circulatory Health, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Cardiovasculaire Epi Team 1, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Hartog, Iris D, Zomers, Margot L, van Thiel, Ghislaine J M W, Leget, Carlo, Sachs, Alfred P E, Uiterwaal, Cuno S P M, van den Berg, Vera, and van Wijngaarden, Els

Published
2020

35. Characterizing Adult Sleep Behavior Over 20 Years-The Population-Based Doetinchem Cohort Study

Author

Public Health Epidemiologie, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot L, Hulsegge, Gerben, van Oostrom, Sandra H, Proper, Karin I., Verschuren, W M Monique, Picavet, H. Susan J, Public Health Epidemiologie, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zomers, Margot L, Hulsegge, Gerben, van Oostrom, Sandra H, Proper, Karin I., Verschuren, W M Monique, and Picavet, H. Susan J

Published
2017

37. [Persons aged 75 and above who have a death wish while not being seriously ill: who are these people?]

Author

Zomers M, van Thiel G, Hartog I, van den Berg V, Leget C, Sachs A, Uiterwaal C, and van Wijngaarden E

Subjects
Aged, Aged, 80 and over, Educational Status, Humans, Netherlands, Prevalence, Surveys and Questionnaires, Cross-Sectional Studies
Abstract

Objective: To provide insight into the prevalence of persistent death wishes without being severely ill among Dutch older persons aged 75 and above; to describe the characteristics and circumstances of this group; to improve knowledge on the nature of their death wishes., Design: Cross-sectional study., Method: In 2019 we conducted a large survey among a representative sample of 32,477 Dutch citizens aged 55 and above from the TNS-NIPObase. The questionnaire was completed by 21,294 respondents in April 2019 (response rate 65.6%). This article comprises a subanalysis of the respondents aged 75 and above., Results: Of all 3,141 respondents aged 75 and above, 56 were identified as having a persistent death wish and no severe illness (PDW-NSI). The weighted percentage representing the Dutch population indicates PDW-NSI among 2.07% of all older persons aged 75 and above in the Netherlands. Respondents with PDW-NSI had a lower level of education, were of lower social class and lived in highly urbanized areas more often. Important aspects enhancing the death wish were dependence on others, worrying, physical or mental deterioration, health problems and loneliness. The death wish was subject to change and the intensity varied over time., Conclusion: Of older persons aged 75 and above with PDW-NSI, a considerable part stays out of sight of healthcare professionals because they do not communicate about their death wish. This may challenge timely support. Carefully questioning the meaning and nature of the death wish is essential to understand the background and underlying needs of the persons concerned.

Published
2021

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