1. Impact of "early intervention" parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study.
- Author
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Miller, L., Imms, C., Cross, A., Pozniak, K., O'Connor, B., Martens, R., Cavalieros, V., Babic, R., Novak-Pavlic, M., Rodrigues, M., Balram, A., Hughes, D., Ziviani, J., and Rosenbaum, P.
- Subjects
MOTHERS ,CAREGIVER attitudes ,WELL-being ,PSYCHOLOGY of children with disabilities ,CAREGIVERS ,CONFIDENCE ,SELF-evaluation ,RESEARCH methodology ,QUANTITATIVE research ,INTERVIEWING ,FATHERS ,MEDICAL personnel ,GENETIC disorders ,QUALITATIVE research ,SELF-efficacy ,FAMILY-centered care ,PATIENTS' families ,CHILD psychopathology ,RESEARCH funding ,DESCRIPTIVE statistics ,INTERPROFESSIONAL relations ,QUESTIONNAIRES ,AUTISM ,CEREBRAL palsy ,EARLY medical intervention ,ADULT education workshops - Abstract
This study explored the feasibility, impact and parent experiences of ENVISAGE (ENabling VISions And Growing Expectations)-Families, a parent-researcher co-designed and co-led program for parents/caregivers raising children with early-onset neurodisabilities. Parents/caregivers of a child with a neurodisability aged ≤6 years, recruited in Australia and Canada, participated in five weekly online workshops with other parents. Self-report measures were collected at baseline, immediately after, and 3 months post-ENVISAGE-Families; interviews were done following program completion. Quantitative data were analyzed with generalized estimating equations and qualitative data using interpretive description methodology. Sixty-five parents (86% mothers) were recruited and 60 (92%) completed the program. Strong evidence was found of effects on family empowerment and parent confidence (all p ≤ 0.05 after the program and maintained at 3-month follow-up). The ENVISAGE-Families program was relevant to parents' needs for: information, connection, support, wellbeing, and preparing for the future. Participants experienced opportunities to reflect on and/or validate their perspectives of disability and development, and how these perspectives related to themselves, their children and family, and their service providers. ENVISAGE was feasible and acceptable for parent/caregivers. The program inspired parents to think, feel and do things differently with their child, family and the people who work with them. ENVISAGE (ENabling VISions And Growing Expectations)-Families is a co-designed, validated parent/researcher "early intervention and orientation" program for caregivers raising a child with neurodevelopmental disabilities (NDDs). ENVISAGE-Families empowered parents' strengths-based approaches to their child, family, disability, and parenting. ENVISAGE-Families increased caregivers' confidence in parenting children with NDD's and provided them tools to support connection, collaboration, and wellbeing. Raising children with NDD can have a profound impact on caregivers, who can benefit from strengths-based, future focused supports early in their parenting experience. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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