Search

Abstract: This paper contributes to the literature on the geographies of care and caregiving by examining the implications of weather for providing home and community care for children and older adults. Integrating research from two previous qualitative studies of formal and informal care provisioning in Ontario, Canada, the authors re-analyzed semi-structured interviews with 83 directors, managers, paid staff, volunteers and family members to examine the challenges they faced when providing care during the winter season. Similar to other settings where winter conditions like snow, ice and cold temperatures are commonplace, the studies were set within a health policy context in which there is not enough recognition of the difficulties of weather for coordinating, managing and providing care to disabled, injured, chronically ill and frail individuals. The re-analysis focused on how winter conditions translate into geographical, administrative, economic, operational, physical, social and psychological barriers within and across different ‘scales of care’. The findings indicate that the problems posed by weather are crucial yet often underestimated aspects of home and community care provided by formal and informal caregivers. The analysis of weather-related challenges for care provisioning needs to be extended to other seasonal conditions (e.g., the challenges of delivering care in extreme heat), to the developing world and even to the burgeoning debates on the health implications of global environmental change. [Copyright &y& Elsevier]

Home as a place of caring is theorized using the literature from geography, sociology, housing and feminist studies. To support our theorization, grounded theory is used to capture and interpret the experiences of women caring for children with long-term care needs in the home. Eleven semi-structured interviews conducted with women in Ontario, Canada uncovered differences in the way the women perceived their homes and highlighted their multiple and complex experiences. The findings revealed three key issues. First, women do not want their homes to be completely defined by long-term care activities as many other types of activities are situated in their homes. Second, long-term care activities and schedules are not segregated but become deeply embedded and enmeshed within the spatial and temporal practices and processes of family life. Third, the meanings, characteristics and ideal of 'home' portrayed in popular culture and the academic literature often clashed with what the women experienced on a daily basis. Analysis revealed the tensions surrounding 'reconstructing spaces in the home' and 'the home as a private and public place' which are indicative of the women's struggles with the disjuncture between the ideal and lived home. The women's experiences challenge us to consider new ways of theorizing the home, and the home when it is a place where long-term care is provided. [ABSTRACT FROM AUTHOR]

In most industrialised countries, the care needs of those who are sick, disabled and frail are increasingly met in peoples’ homes. One of the implications of this shift in the site of care is that individuals with long-term care needs and their family care providers experience social and spatial isolation. Many are housebound and most face considerable challenges in getting out of the house. This paper illuminates these challenges as they are experienced by mothers of children with long-term care needs, and the resulting isolation and disconnection that they experience. Eleven semistructured interviews were conducted in two regions of Ontario, Canada. Grounded theory informed the analysis of the mothers’ accounts of their experiences of getting out of the house. The present findings are derived from a larger investigation of the meanings and experiences of the home as a place of caring for families with children who have long-term care needs. Secondary analysis of the data found that three main challenges restricted the mothers’ abilities to leave their houses. Mothers experienced difficulties getting out of the house when they attempted to leave with the child, and when the child was left with an alternative care provider. Physical challenges were associated with the work and planning required in moving the child's equipment and supplies, meticulous planning of the outing within the daily schedule, and navigating barriers in the built and natural environments. Social challenges reflected the lack of people within the mothers’ social network of family and friends who have the knowledge and expertise to care for the child. Service challenges resulted from the gaps between the policies and practices of paid respite, and the conditions that must be satisfied in order for mothers to be able and/or willing to leave the house. The authors also examined the reasons why some of the mothers worked from home, and the strategies that they used to get out of the house for employment. In this paper, the authors discuss each challenge, and how it contributes to the mothers’ social and spatial isolation. The mothers’ experiences elucidate the differences between living in a community and being part of a community. The consequences of the isolation on mothers’ daily lives are not recognised in home and community care policy. The suggestions that are put forward concerning paid respite have relevance for home and community care policy and practice. [ABSTRACT FROM AUTHOR]

Background Our aim in this paper is to build upon the experience of family adaptation and to describe one unique stressor experienced by adoptive parents of children with fetal alcohol spectrum disorder (FASD) that may hinder successful family adaptation. Method Fifty-one adoptive parents of children with FASD from 36 families in Ontario, Canada, participated in a mixed methods study. Parents completed 2 questionnaires, the Family Crisis Oriented Personal Scales and the Questionnaire on Resources and Stress - Friedrich’s Short Form, and participated in in-depth, semistructured interviews, which were analysed using interpretative phenomenological analysis. Results Parents expressed that improved knowledge and awareness of FASD from healthcare professionals, teachers, and society as a whole would help in their adaptation to raising their children with FASD. Specifically, parents discussed the lack of recognition of the symptoms of FASD, the lack of understanding about what a diagnosis of FASD means, and the need to promote better messages of prevention. Conclusions Our findings display a clear need for more supports for families, particularly in the area of increasing public and professional knowledge about the realities of raising a child with FASD. [ABSTRACT FROM AUTHOR]

Abstract: This paper addresses the gap in health services and policy research about the implications of everyday weather for health care work. Building on previous research on the weather-related challenges of caregiving in homes and communities, it examines the experiences of ‘seasonal bad weather’ for health care workers in long-term care institutions. It features a hermeneutic phenomenology analysis of six transcripts from interviews with nurses and personal support workers from a qualitative study of institutional long-term care work in rural Canada. Focussing on van Manen's existential themes of lived experience (body, relations, space, time), the analysis reveals important contradictions between the lived experiences of health care workers coping with bad weather and long-term care policies and practices that mitigate weather-related risk and vulnerability. The findings contribute to the growing concern for rural health issues particularly the neglected experiences of rural health providers and, in doing so, offer insight into the recent call for greater attention to the geographies of health care work. [Copyright &y& Elsevier]

Background There is limited research investigating the lived experiences of parents raising children with fetal alcohol spectrum disorder (FASD). The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with FASD. Method Eighty-four parents and caregivers of children with FASD in Ontario, Canada, participated in in-depth, semistructured interviews employing a basic interpretive approach. Results Parents of children with FASD report a number of strategies, supports, and transformational outcomes. Using interpretative phenomenological analysis, 5 themes were identified: understanding FASD and advocating on their child's behalf, day-to-day adaptation, transformational outcomes, as well as the importance of informal and formal supports. Conclusions Understanding what families do in order to facilitate adaptation is important when assisting families who may not be adapting as successfully. Continued research looking at the family experience of raising a child with a developmental disability, such as FASD, is necessary. [ABSTRACT FROM AUTHOR]