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5. Humoral and cellular immunogenicity, effectiveness and safety of COVID-19 mRNA vaccination in patients with pediatric rheumatic diseases: A prospective cohort study

Author

Hamad Saied, Mohamad, van Straalen, Joeri W., de Roock, Sytze, Verduyn Lunel, Frans M., de Wit, Jelle, de Rond, Lia G.H., Van Nieuwenhove, Erika, Vastert, Bas J., van Montfrans, Joris M., van Royen-Kerkhof, Annet, de Joode-Smink, Gerrie C.J., Swart, Joost F., Wulffraat, Nico M., and Jansen, Marc H.A.

Published
2024
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8. Juvenile idiopathic arthritis patients with positive family history of autoimmune thyroid disease might benefit from serological screening: analysis of the international Pharmachild registry

Author

van Straalen, Joeri W., Baas, Laurie, Giancane, Gabriella, Grebenkina, Lyudmila, Brunner, Jurgen, Vega-Cornejo, Gabriel, Chasnyk, Vyacheslav G., Harel, Liora, Appenzeller, Simone, Gervais, Elisabeth, de Roock, Sytze, Wulffraat, Nico M., Ruperto, Nicolino, and Swart, Joost F.

Published
2023
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9. Meningococcal ACWY conjugate vaccine immunogenicity and safety in adolescents with juvenile idiopathic arthritis and inflammatory bowel disease: A prospective observational cohort study

Author

Ohm, Milou, van Straalen, Joeri W., Zijlstra, Marieke, de Joode-Smink, Gerrie, Sellies, Anne Jasmijn, Swart, Joost F., Vastert, Sebastiaan J., van Montfrans, Joris M., Bartels, Marije, van Royen-Kerkhof, Annet, Wildenbeest, Joanne G., Lindemans, Caroline A., Wolters, Victorien M., Wennink, Roos A.W., de Boer, Joke H., Knol, Mirjam J., Heijstek, Marloes W., Sanders, Elisabeth A.M., Verduyn-Lunel, Frans M., Berbers, Guy A.M., Wulffraat, Nico M., and Jansen, Marc H.A.

Published
2023
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14. Reliability of mandibular range of motion measurements in healthy children.

Author

de Sonnaville, Willemijn F. C., Steenks, Michel H., Verkouteren, Daan R. C., Zuithoff, Nicolaas P. A., Wulffraat, Nico M., Rosenberg, Antoine J. W. P., and Speksnijder, Caroline M.

Subjects
CROSS-sectional method, TEMPOROMANDIBULAR joint, RESEARCH evaluation, QUESTIONNAIRES, MOUTH physiology, INTRACLASS correlation, MANDIBLE, RANGE of motion of joints, CHILDREN
Abstract

Background: Mandibular range of motion (MROM) variables are widely used to evaluate oral function. Objective: The aim of this study was to establish the reliability of MROM variables in healthy children. Methods: In this cross‐sectional study, healthy children were examined 2 weeks apart. The following MROM variables were established: active maximum interincisal opening (AMIO), passive maximum interincisal opening (PMIO), protrusion and left and right laterotrusion. The reliability of the MROM measurements was determined by analysing the intra‐class correlation coefficient (ICC), standard error of measurement (SEM), smallest detectable change (SDC) and limits of agreement (LoA). Results: A total of 167 healthy children were examined. The ICC indicated good reliability for AMIO (0.885); excellent reliability for PMIO (0.925); and moderate reliability for protrusion (0.578), laterotrusion left (0.601) and laterotrusion right (0.634). The SDC was 0.9 mm for AMIO, 0.4 mm for PMIO, 2.2 mm for protrusion, 1.6 mm for laterotrusion left and 1.4 mm for laterotrusion right. The LoA was −5.67 to 5.82 for AMIO, −3.90 to 3.57 for PMIO, −3.89 to 3.55 for protrusion, −2.99 to 2.77 for laterotrusion left, and − 2.71 to 2.77 for laterotrusion right. Conclusions: AMIO and PMIO measurements are both highly reliable in healthy children. The low SDC indicate that AMIO and PMIO are promising longitudinal measurements. Protrusion and laterotrusion measurements had moderate reliability. These results support our clinical recommendation to measure AMIO rather than PMIO, as PMIO is more difficult and more time‐consuming to perform than AMIO. [ABSTRACT FROM AUTHOR]

Published
2024
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18. Identifying disrupted biological factors and patient-tailored interventions for chronic fatigue in adolescents and young adults with Q-Fever Fatigue Syndrome, Chronic Fatigue Syndrome and Juvenile Idiopathic Arthritis (QFS-study): study protocol for a randomized controlled trial with single-subject experimental case series design

Author

Vroegindeweij, Anouk, Swart, Joost F., Houtveen, Jan, Eijkelkamp, Niels, van de Putte, Elise M., Wulffraat, Nico M., and Nijhof, Sanne L.

Published
2022
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19. Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study

Author

van Straalen, Joeri W., de Roock, Sytze, Giancane, Gabriella, Consolaro, Alessandro, Rygg, Marite, Nordal, Ellen B., Rubio-Pérez, Nadina, Jelusic, Marija, De Inocencio, Jaime, Vojinovic, Jelena, Wulffraat, Nico M., Bruijning-Verhagen, Patricia C. J., Ruperto, Nicolino, and Swart, Joost F.

Published
2022
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22. Lower hair cortisol concentration in adolescent and young adult patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Q-Fever Fatigue Syndrome compared to controls

Author

Sociale pediatrie onderzoek 2, Infection & Immunity, CTI Eijkelkamp, Brain, Cancer, Child Health, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Eijkelkamp, Niels, van den Berg, Sjoerd A A, van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, Nijhof, Sanne L, Sociale pediatrie onderzoek 2, Infection & Immunity, CTI Eijkelkamp, Brain, Cancer, Child Health, Sociale Pediatrie patientenzorg, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Eijkelkamp, Niels, van den Berg, Sjoerd A A, van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, and Nijhof, Sanne L

Published
2024

23. Targeting persistent fatigue with tailored versus generic self-management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition: A randomized crossover trial

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma ERN, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Sociale pediatrie onderzoek 1, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., Nijhof, Sanne L., Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma ERN, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Sociale pediatrie onderzoek 1, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., and Nijhof, Sanne L.

Published
2024

24. Individual outcomes after tailored versus generic self-management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition: A multiple single-case study

Author

Sociale pediatrie onderzoek 2, Infection & Immunity, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Houtveen, Jan, Lucassen, Desiree A, Van De Putte, Elise M, Wulffraat, Nico M, Nijhof, Sanne L, Swart, Joost F, Sociale pediatrie onderzoek 2, Infection & Immunity, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Houtveen, Jan, Lucassen, Desiree A, Van De Putte, Elise M, Wulffraat, Nico M, Nijhof, Sanne L, and Swart, Joost F

Published
2024

25. The outcomes of children born to mothers with autoimmune rheumatic diseases

Author

Immuno/reuma ERN, Andreoli, Laura, Andersen, Jeanette, Avcin, Tadej, Chambers, Christina D., Fazzi, Elisa M., Marlow, Neil, Wulffraat, Nico M., Tincani, Angela, Immuno/reuma ERN, Andreoli, Laura, Andersen, Jeanette, Avcin, Tadej, Chambers, Christina D., Fazzi, Elisa M., Marlow, Neil, Wulffraat, Nico M., and Tincani, Angela

Published
2024

26. Humoral and cellular immunogenicity, effectiveness and safety of COVID-19 mRNA vaccination in patients with pediatric rheumatic diseases: A prospective cohort study

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, MMB Medische Staf, Immuno/reuma patientenzorg, CTI Van Loosdregt, Immunologie/Reumatologie, Cluster B, Geneeskunde, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, Verduyn Lunel, Frans M, de Wit, Jelle, de Rond, Lia G H, Van Nieuwenhove, Erika, Vastert, Bas J, van Montfrans, Joris M, van Royen-Kerkhof, Annet, de Joode-Smink, Gerrie C J, Swart, Joost F, Wulffraat, Nico M, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, MMB Medische Staf, Immuno/reuma patientenzorg, CTI Van Loosdregt, Immunologie/Reumatologie, Cluster B, Geneeskunde, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, Verduyn Lunel, Frans M, de Wit, Jelle, de Rond, Lia G H, Van Nieuwenhove, Erika, Vastert, Bas J, van Montfrans, Joris M, van Royen-Kerkhof, Annet, de Joode-Smink, Gerrie C J, Swart, Joost F, Wulffraat, Nico M, and Jansen, Marc H A

Published
2024

27. Targeting persistent fatigue with tailored versus generic self-management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition : A randomized crossover trial

Author

Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., Nijhof, Sanne L., Vroegindeweij, Anouk, Wulffraat, Nico M., Van De Putte, Elise M., De Jong, Hanne B.T., Lucassen, Desiree A., Swart, Joost F., and Nijhof, Sanne L.

Abstract

Objectives: To evaluate the use of two self-management intervention strategies for persistent fatigue in adolescents and young adults with a fatigue syndrome or rheumatic condition. Design: A randomized crossover trial administering tailored lifestyle advice and generic dietary advice, each 12 weeks, with a four-week washout period between. Methods: Sixty participants (aged 12–29) were included. Tailoring was achieved through the PROfeel method. Dietary guidelines were conceptualized by the Netherlands Nutrition Centre. Questionnaires were used pre–post-interventions to measure primary outcome ‘fatigue severity’ (Checklist Individual Strength-8) and secondary outcomes ‘self-efficacy’ (Self-Efficacy Scale-28) and ‘quality of life’ (QoL) (Paediatric Quality of Life Inventory 4.0). Feasibility and adherence were self-rated on a scale of 1 to 10 (low to high). Linear mixed modelling was used to assess change over time, compare strategy effectiveness and study the impact of intervention order. Results: Fatigue severity, self-efficacy and QoL regarding ‘physical’ and ‘emotional’ functioning improved significantly over time (all p <.015). The average improvement of the two QoL subscales was clinically relevant, as was the fatigue improvement in 20 out of 46 participants who completed the trial and 5 dropouts. The interventions were equally effective, and intervention order did not impact the improvement level (prange =.242–.984). The self-management strategies received similar feasibility (M = 6.45, SD = 1.91) and adherence (M = 7.67, SD = 1.67) ratings. Conclusions: As small to clinically relevant improvements were observed, self-management strategies might be particularly useful to bridge waiting time for guided treatments such as Cognitive Behavioural Therapy.

Published
2024

28. Individual outcomes after tailored versus generic self-management strategies for persistent fatigue in youth with a fatigue syndrome or rheumatic condition : A multiple single-case study

Author

Vroegindeweij, Anouk, Houtveen, Jan, Lucassen, Desiree A., Van De Putte, Elise M., Wulffraat, Nico M., Nijhof, Sanne L., Swart, Joost F., Vroegindeweij, Anouk, Houtveen, Jan, Lucassen, Desiree A., Van De Putte, Elise M., Wulffraat, Nico M., Nijhof, Sanne L., and Swart, Joost F.

Abstract

Objective: To examine individual outcomes after tailored lifestyle (PROfeel) or generic dietary advice as self-management intervention for persistent fatigue in adolescents and young adults with a chronic condition, to compare participants who did and did not benefit and to explore changes to factors in the biopsychosocial model of fatigue after PROfeel. Method: A multiple single-case AB-phase design was embedded in a randomized crossover trial (N = 45). Intensive longitudinal data (ILD) on outcomes ‘fatigue severity’, ‘self-efficacy’ and ‘quality of life’ (QoL) were collected through weekly smartphone measurement for 20 weeks. ILD on biopsychosocial factors were collected through experience sampling methodology for 28 days pre-post first intervention. Baseline characteristics were compared with t-tests and chi-square tests. Permutation distancing tests were used to assess change over time in all ILD. Results: Regarding weekly measurements, nineteen participants (42.22%) showed small to large positive outcomes (drange =.05 to 2.59), mostly after PROfeel. Eleven participants (24.44%) showed small to moderate negative outcomes (drange = −.02 to −2.46), mostly after dietary advice. Fatigue severity improved most, followed by self-efficacy. Participants who benefitted showed higher QoL levels and lower fatigue and pain levels compared with others at baseline (all p <.02). When positive outcomes were observed after PROfeel, typically ≥1 biopsychosocial factor had been targeted successfully. Conclusion: Self-management advice has more potential when tailored to individual characteristics, including the biopsychosocial model of fatigue. PROfeel appears particularly useful as fatigue intervention for individuals with relatively less severe symptoms.

Published
2024

29. Quantifying hospital-associated costs, and accompanying travel costs and productivity losses, before and after withdrawing TNF-α inhibitors in juvenile idiopathic arthritis.

Author

Florax, Anna A, Doeleman, Martijn J H, Roock, Sytze de, van der Linden, Naomi, Schatorjé, Ellen, Currie, Gillian, Marshall, Deborah A, Jzerman, Maarten J I, Yeung, Rae S M, Benseler, Susanne M, Vastert, Sebastiaan J, Wulffraat, Nico M, Swart, Joost F, Kip, Michelle M A, and Consortia, for UCAN-CAN DU and UCAN CURE

Subjects
ANTI-inflammatory agents, JUVENILE idiopathic arthritis, HOSPITAL charges, RESEARCH funding, TERMINATION of treatment, RETROSPECTIVE studies, LONGITUDINAL method, MEDICAL records, ACQUISITION of data, ELECTRONIC health records
Abstract

Objective To quantify differences in hospital-associated costs, and accompanying travel costs and productivity losses, before and after withdrawing TNF-α inhibitors (TNFi) in JIA patients. Methods This was a retrospective analysis of prospectively collected data from electronic medical records of paediatric JIA patients treated with TNFi, which were immediately discontinued, spaced (increased treatment interval) or tapered (reduced subsequent doses). Costs of hospital-associated resource use (consultations, medication, radiology procedures, laboratory testing, procedures under general anaesthesia, hospitalization) and associated travel costs and productivity losses were quantified during clinically inactive disease until TNFi withdrawal (pre-withdrawal period) and compared with costs during the first and second year after withdrawal initiation (first and second year post-withdrawal). Results Fifty-six patients were included of whom 26 immediately discontinued TNFi, 30 spaced and zero tapered. Mean annual costs were €9165/patient on active treatment (pre-withdrawal) and decreased significantly to €5063/patient (−44.8%) and €6569/patient (−28.3%) in the first and second year post-withdrawal, respectively (P  < 0.05). Of these total annual costs, travel costs plus productivity losses were €834/patient, €1180/patient, and €1320/patient in the three periods respectively. Medication comprised 80.7%, 61.5% and 72.4% of total annual costs in the pre-withdrawal, first and second year post-withdrawal period, respectively. Conclusion In the first two years after initiating withdrawal, the total annual costs were decreased compared with the pre-withdrawal period. However, cost reductions were lower in the second year compared with the first year post-withdrawal, primarily due to restarting or intensifying biologics. To support biologic withdrawal decisions, future research should assess the full long-term societal cost impacts, and include all biologics. [ABSTRACT FROM AUTHOR]

Published
2024
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33. Reticular dysgenesis: international survey on clinical presentation, transplantation, and outcome

Author

Hoenig, Manfred, Lagresle-Peyrou, Chantal, Pannicke, Ulrich, Notarangelo, Luigi D., Porta, Fulvio, Gennery, Andrew R., Slatter, Mary, Cowan, Morton J., Stepensky, Polina, Al-Mousa, Hamoud, Al-Zahrani, Daifulah, Pai, Sung-Yun, Al Herz, Waleed, Gaspar, Hubert B., Veys, Paul, Oshima, Koichi, Imai, Kohsuke, Yabe, Hiromasa, Noroski, Lenora M., Wulffraat, Nico M., Sykora, Karl-Walter, Soler-Palacin, Pere, Muramatsu, Hideki, Al Hilali, Mariam, Moshous, Despina, Debatin, Klaus-Michael, Schuetz, Catharina, Jacobsen, Eva-Maria, Schulz, Ansgar S., Schwarz, Klaus, Fischer, Alain, Friedrich, Wilhelm, and Cavazzana, Marina

Published
2017
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37. Dynamic modeling of experience sampling methodology data reveals large heterogeneity in biopsychosocial factors associated with persistent fatigue in young people living with a chronic condition

Author

Experimental Psychology (onderzoeksprogramma PF), Helmholtz Institute, Leerstoel Smagt, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, de Putte, Elise M van, Wulffraat, Nico M, Swart, Joost F, Nijhof, Sanne L, Experimental Psychology (onderzoeksprogramma PF), Helmholtz Institute, Leerstoel Smagt, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, de Putte, Elise M van, Wulffraat, Nico M, Swart, Joost F, and Nijhof, Sanne L

Published
2023

38. The protective effect of COVID-19 vaccines on developing multisystem inflammatory syndrome in children (MIS-C): a systematic literature review and meta-analysis

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma ERN, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Child Health, Immuno/reuma patientenzorg, Hamad Saied, Mohamad, van der Griend, Laura, van Straalen, Joeri W, Wulffraat, Nico M, Vastert, Sebastiaan, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma ERN, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Child Health, Immuno/reuma patientenzorg, Hamad Saied, Mohamad, van der Griend, Laura, van Straalen, Joeri W, Wulffraat, Nico M, Vastert, Sebastiaan, and Jansen, Marc H A

Published
2023

39. Clinically Established Temporomandibular Involvement in Adults With Juvenile Idiopathic Arthritis

Author

MKA/BT Onderzoek, MS Hoofd-Hals Chirurgische Oncologie, Cancer, JC onderzoeksprogramma Kanker, Biostatistiek Onderzoek, Other research (not in main researchprogram), MS Reumatologie/Immunologie/Infectie, Infection & Immunity, Immuno/reuma ERN, de Sonnaville, Willemijn F C, Speksnijder, Caroline M, Zuithoff, Nicolaas P A, Heijstek, Marloes W, Wulffraat, Nico M, Steenks, Michel H, Rosenberg, Antoine J W P, MKA/BT Onderzoek, MS Hoofd-Hals Chirurgische Oncologie, Cancer, JC onderzoeksprogramma Kanker, Biostatistiek Onderzoek, Other research (not in main researchprogram), MS Reumatologie/Immunologie/Infectie, Infection & Immunity, Immuno/reuma ERN, de Sonnaville, Willemijn F C, Speksnijder, Caroline M, Zuithoff, Nicolaas P A, Heijstek, Marloes W, Wulffraat, Nico M, Steenks, Michel H, and Rosenberg, Antoine J W P

Published
2023

40. Meningococcal ACWY conjugate vaccine immunogenicity in adolescents with primary or secondary immune deficiencies, a prospective observational cohort study

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Cluster B, Immuno/reuma patientenzorg, Child Health, Haematologie patientenzorg, Poli Van Creveldkliniek Medisch, SCT patientenzorg, Regenerative Medicine and Stem Cells, MS Oogheelkunde, Onderzoek, MMB Medische Staf, Immuno/reuma ERN, Ohm, Milou, van Straalen, Joeri W, de Joode-Smink, Gerrie, van Montfrans, Joris, Bartels, Marije, van Wildenbeest, Joanne G, Lindemans, Caroline A, Wennink, Roos Aw, de Boer, Joke H, Sanders, Elisabeth Am, Verduyn-Lunel, Frans M, Berbers, Guy Am, Wulffraat, Nico M, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Cluster B, Immuno/reuma patientenzorg, Child Health, Haematologie patientenzorg, Poli Van Creveldkliniek Medisch, SCT patientenzorg, Regenerative Medicine and Stem Cells, MS Oogheelkunde, Onderzoek, MMB Medische Staf, Immuno/reuma ERN, Ohm, Milou, van Straalen, Joeri W, de Joode-Smink, Gerrie, van Montfrans, Joris, Bartels, Marije, van Wildenbeest, Joanne G, Lindemans, Caroline A, Wennink, Roos Aw, de Boer, Joke H, Sanders, Elisabeth Am, Verduyn-Lunel, Frans M, Berbers, Guy Am, Wulffraat, Nico M, and Jansen, Marc H A

Published
2023

41. Cross-Cultural Adaptation and Validation of the Methotrexate Intolerance Severity Score Questionnaire in Portuguese (Brazil) for Children and Adolescents with Juvenile Idiopathic Arthritis

Author

Immuno/reuma ERN, Londe, Ana Carolina, de Amorim, Jaqueline Cristina, Julio, Paulo Rogério, Wulffraat, Nico M., Marini, Roberto, Appenzeller, Simone, Immuno/reuma ERN, Londe, Ana Carolina, de Amorim, Jaqueline Cristina, Julio, Paulo Rogério, Wulffraat, Nico M., Marini, Roberto, and Appenzeller, Simone

Published
2023

42. Meningococcal ACWY conjugate vaccine immunogenicity and safety in adolescents with juvenile idiopathic arthritis and inflammatory bowel disease: A prospective observational cohort study

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Arts-assistenten Kinderen, Immuno/reuma patientenzorg, Child Health, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Cluster B, Haematologie patientenzorg, Poli Van Creveldkliniek Medisch, Infectieziekten onderzoek2 (Wildenbeest), Infectieziekten patientenzorg, SCT patientenzorg, Regenerative Medicine and Stem Cells, MDL, MS Oogheelkunde, MS Reumatologie/Immunologie/Infectie, Onderzoek, MMB Medische Staf, Immuno/reuma ERN, Ohm, Milou, van Straalen, Joeri W, Zijlstra, Marieke, de Joode-Smink, Gerrie, Jasmijn Sellies, Anne, Swart, Joost F, Vastert, Sebastiaan J, van Montfrans, Joris M, Bartels, Marije, van Royen-Kerkhof, Annet, Wildenbeest, Joanne G, Lindemans, Caroline A, Wolters, Victorien, Wennink, Roos A W, de Boer, Joke H, Knol, Mirjam J, Heijstek, Marloes W, Sanders, Elisabeth A M, Verduyn-Lunel, Frans M, Berbers, Guy A M, Wulffraat, Nico M, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Arts-assistenten Kinderen, Immuno/reuma patientenzorg, Child Health, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Cluster B, Haematologie patientenzorg, Poli Van Creveldkliniek Medisch, Infectieziekten onderzoek2 (Wildenbeest), Infectieziekten patientenzorg, SCT patientenzorg, Regenerative Medicine and Stem Cells, MDL, MS Oogheelkunde, MS Reumatologie/Immunologie/Infectie, Onderzoek, MMB Medische Staf, Immuno/reuma ERN, Ohm, Milou, van Straalen, Joeri W, Zijlstra, Marieke, de Joode-Smink, Gerrie, Jasmijn Sellies, Anne, Swart, Joost F, Vastert, Sebastiaan J, van Montfrans, Joris M, Bartels, Marije, van Royen-Kerkhof, Annet, Wildenbeest, Joanne G, Lindemans, Caroline A, Wolters, Victorien, Wennink, Roos A W, de Boer, Joke H, Knol, Mirjam J, Heijstek, Marloes W, Sanders, Elisabeth A M, Verduyn-Lunel, Frans M, Berbers, Guy A M, Wulffraat, Nico M, and Jansen, Marc H A

Published
2023

43. What matters most to pediatric rheumatologists in deciding whether to discontinue biologics in a child with juvenile idiopathic arthritis?: A best-worst scaling survey

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma patientenzorg, Child Health, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Immuno/reuma ERN, Currie, Gillian R, Groothuis-Oudshoorn, Catherina G M, Twilt, Marinka, Kip, Michelle M A, IJzerman, Maarten J, Benseler, Susanne M, Swart, Joost F, Vastert, Sebastiaan J, Wulffraat, Nico M, Yeung, Rae, Marshall, Deborah A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma patientenzorg, Child Health, CTI Van Loosdregt, Immuno/reuma onderzoek 1 (Vastert), Immunologie/Reumatologie, Immuno/reuma ERN, Currie, Gillian R, Groothuis-Oudshoorn, Catherina G M, Twilt, Marinka, Kip, Michelle M A, IJzerman, Maarten J, Benseler, Susanne M, Swart, Joost F, Vastert, Sebastiaan J, Wulffraat, Nico M, Yeung, Rae, and Marshall, Deborah A

Published
2023

44. Long-term immunoprotection after live attenuated measles-mumps-rubella booster vaccination in children with juvenile idiopathic arthritis

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, MMB Medische Staf, Immuno/reuma patientenzorg, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, de Joode-Smink, Gerrie C J, Verduyn Lunel, Frans M, Swart, Joost F, Wulffraat, Nico M, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, MMB Medische Staf, Immuno/reuma patientenzorg, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, de Joode-Smink, Gerrie C J, Verduyn Lunel, Frans M, Swart, Joost F, Wulffraat, Nico M, and Jansen, Marc H A

Published
2023

45. Reliability and measurement error of anterior maximum voluntary bite force in children with juvenile idiopathic arthritis and healthy children

Author

MKA/BT Onderzoek, Other research (not in main researchprogram), Biostatistiek Onderzoek, Immuno/reuma ERN, Zorgeenheid MKA/BT Medisch, MS Hoofd-Hals Chirurgische Oncologie, Cancer, JC onderzoeksprogramma Kanker, de Sonnaville, Willemijn F.C., Steenks, Michel H., Zuithoff, Nicolaas P.A., Wulffraat, Nico M., Rosenberg, Antoine J.W.P., Speksnijder, Caroline M., MKA/BT Onderzoek, Other research (not in main researchprogram), Biostatistiek Onderzoek, Immuno/reuma ERN, Zorgeenheid MKA/BT Medisch, MS Hoofd-Hals Chirurgische Oncologie, Cancer, JC onderzoeksprogramma Kanker, de Sonnaville, Willemijn F.C., Steenks, Michel H., Zuithoff, Nicolaas P.A., Wulffraat, Nico M., Rosenberg, Antoine J.W.P., and Speksnijder, Caroline M.

Published
2023

46. Safety of Measles-Mumps-Rubella booster vaccination in patients with juvenile idiopathic arthritis: A long-term follow-up study

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, Immuno/reuma patientenzorg, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, de Joode-Smink, Gerrie C J, Swart, Joost F, Wulffraat, Nico M, Jansen, Marc H A, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Immuno/reuma onderzoek 1 (Vastert), Child Health, Immuno/reuma patientenzorg, Immuno/reuma ERN, Hamad Saied, Mohamad, van Straalen, Joeri W, de Roock, Sytze, de Joode-Smink, Gerrie C J, Swart, Joost F, Wulffraat, Nico M, and Jansen, Marc H A

Published
2023

47. Methotrexate therapy associated with a reduced rate of new-onset uveitis in patients with biological-naïve juvenile idiopathic arthritis

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Oogheelkunde Onderzoek, Immuno/reuma onderzoek 1 (Vastert), Child Health, MS Oogheelkunde, Immuno/reuma ERN, Immuno/reuma patientenzorg, van Straalen, Joeri W, Akay, Görkem, Kouwenberg, Carlyn V, de Roock, Sytze, Kalinina Ayuso, Viera, Wulffraat, Nico M, de Boer, Joke, Swart, Joost F, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Oogheelkunde Onderzoek, Immuno/reuma onderzoek 1 (Vastert), Child Health, MS Oogheelkunde, Immuno/reuma ERN, Immuno/reuma patientenzorg, van Straalen, Joeri W, Akay, Görkem, Kouwenberg, Carlyn V, de Roock, Sytze, Kalinina Ayuso, Viera, Wulffraat, Nico M, de Boer, Joke, and Swart, Joost F

Published
2023

48. Dynamic modeling of experience sampling methodology data reveals large heterogeneity in biopsychosocial factors associated with persistent fatigue in young people living with a chronic condition: Dynamic biopsychosocial associations with fatigue

Author

Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, Van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, Nijhof, Sanne L, Immuno/reuma onderzoek 7 (Swart), Infection & Immunity, Sociale pediatrie onderzoek 1, Sociale Pediatrie patientenzorg, Child Health, Regenerative Medicine and Stem Cells, Immuno/reuma ERN, Immuno/reuma patientenzorg, Vroegindeweij, Anouk, Levelt, Lisa, Houtveen, Jan, Van de Putte, Elise M, Wulffraat, Nico M, Swart, Joost F, and Nijhof, Sanne L

Published
2023

49. Patients' and parents' satisfaction to improve patient care in JIA: factors determining acceptable symptom state measured with JAMAR

Author

Reumatologie patientenzorg, Immuno/reuma onderzoek 1 (Vastert), Child Health, Infection & Immunity, CTI Van Loosdregt, Immunologie/Reumatologie, Immuno/reuma ERN, Immuno/reuma patientenzorg, Del Giudice, Emanuela, de Roock, Sytze, Vastert, Sebastiaan J, Wulffraat, Nico M, Swart, Joost F, van Dijkhuizen, Evert H P, Reumatologie patientenzorg, Immuno/reuma onderzoek 1 (Vastert), Child Health, Infection & Immunity, CTI Van Loosdregt, Immunologie/Reumatologie, Immuno/reuma ERN, Immuno/reuma patientenzorg, Del Giudice, Emanuela, de Roock, Sytze, Vastert, Sebastiaan J, Wulffraat, Nico M, Swart, Joost F, and van Dijkhuizen, Evert H P

Published
2023

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