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1. Novel Use of a Social-Media-Based Survey to Detect Regional Differences in Management of Monochorionic-Diamniotic Twins.

Author

Pluym, Ilina D, Paek, Bettina, Walker, Martin, Liu, Hui, Kwan, Lorna, Rao, Rashmi, Scibetta, Emily, Afshar, Yalda, Holliman, Kerry, Wong, Thalia, Platt, Lawrence D, and Han, Christina S

Subjects
Humans, Fetofetal Transfusion, Cross-Sectional Studies, Perinatology, Pregnancy, Internationality, Adolescent, Adult, Middle Aged, Guideline Adherence, Female, Young Adult, Pregnancy, Twin, Social Media, Surveys and Questionnaires, Clinical Research, Behavioral and Social Science, Pediatric, Good Health and Well Being, Facebook, monochorionic diamniotic, social media, survey, web-based research, twins, Clinical Sciences, Paediatrics and Reproductive Medicine, Obstetrics & Reproductive Medicine
Abstract

ObjectiveThis study aims to evaluate the utility of social media to distribute a patient survey on differences in management and outcomes of monochorionic-diamniotic (MCDA) pregnancies.Study designA cross-sectional survey was posted to an English-language MCDA twins patient-centered support group within the social media site, Facebook from April 2, 2018 to June 26, 2018. Subjects were recruited through a technique called "snowballing," whereby individuals shared the survey to assist with recruiting. Patient reported data were analyzed using Chi-square and Kruskal-Wallis's tests to explore characteristics associated with surveillance and outcomes as related to region and provider type.ResultsOver 3 months, the post "reached" 14,288 Facebook users, among which 5,653 (40%) clicked on the post. A total of 2,357 respondents with MCDA pregnancies completed the survey. Total 1,928 (82%) were from the United States (US) and 419 (18%) from other countries. Total 85% of patients had co-management with maternal-fetal medicine (MFM), more in the US compared with the rest of the world (87 vs. 74%, p

Published
2020

3. Growth Failure Prevalence in Neonates with Gastroschisis : A Statewide Cohort Study

Author

Boe, Nina, Brown, Erin, Farmer, Diana, Field, Nancy, Hedriana, Herman, Hirose, Shinjiro, James, Gina, Love, Elyse, McLennan, Amelia, Poulain, Francis, Powne, Amy, Morris, Laila Rhee, Rottkamp, Catherine, Saadai, Payam, Sunderji, Sherzana, Tache, Veronique, Yeh, Jay, Allaf, M. Baraa, Bacca, Katie, Carroll, Lisa, Crosland, Brian, Day, Robert, Duffy, Jennifer, Gibbs, David, Hameed, Afshan, Hatfield, Tamara, Iacob, Alexandra, Jolley, Jennifer, Kabeer, Mustafa, Kiciman, Nafiz, Lee, Nancy, Major, Carol, Makhoul, Joshua, Nicolau, Yona, Porto, Manuel, Post, Rebecca, Rumney, Pamela, Spiers, Lizette, Uy, Cherry, Yu, Peter, Ahmad, Irfan, Doshi, Nita, Guner, Yigit, Lai, Wyman, Renella, Pierangelo, Afshar, Yalda, Calkins, Kara, Pluym, Ilina, DeUgarte, Daniel, Devaskar, Uday, Deville, Jaime, Fajardo, Viviana, Garg, Meena, Han, Christina, Holliman, Kerry, Janzen, Carla, Jen, Howard, Kallapur, Suhas, Lee, Steven, Lerman, Steven, Murphy, Aisling, Nguyen, Tina, Rao, Rashmi, Sabnis, Animesh, Satou, Gary, Sklansky, Mark, Strobel, Katie, Sturm, Renea, Tabsh, Khalil, Wong, Thalia, Adami, Rebecca, Anton, Tracy, Ballas, Jerasimos, Bickler, Stephen, Fernandez, Erika, Hull, Andrew, Jacobs, Marni, Johnson, Diana, Kling, Karen, Lamale-Smith, Leah, Lazar, Sarah, Laurent, Louise, Liu, Tzu-Ning, Magallanes, Celestine, Melber, Dora, Parast, Mana, Perez, Mishella, Pretorius, Dolores, Ramos, Sandy, Tarsa, Maryam, Woelkers, Douglas, Zhang-Rutledge, Kathy, Golding, Ian Fraser, Moyer, Laurel, Sun, Heather, Archbold, Katie, Arcilla, Lisa, Bennet, Stacie, Brakeman, Paul, Catenacci, Melissa, Chetty, Shilpa, Copp, Hillary, Corbett, Erin, Dougherty, Valerie, Downum, Sarah, Feldstein, Vickie, Ghaffari, Neda, Goldstein, Ruth, Gonzalez-Velez, Juan, Gonzalez, Veronica, Gosnell, Kristen, Gras, Joanne, Harrison, Michael, Hogan, Whitnee, Hutchinson, Romobia, Irani, Roxanna, Jha, Priyanka, Josiah-Davis, Erna, Keller, Roberta, Kramer, Katelin, Lee, Hanmin, Lianoglou, Billie, Lucero, Jennifer, Lusk, Leslie, MacKenzie, Tippi, Mardy, Anne, Matsuda, Erin, Moon-Grady, Anita, Morgan, Tara, Murtha, Amy, Norton, Mary, Oman, Natalie, Padilla, Benjamin, Patel, Sachi, Peyandi, Shabnam, Phelps, Andrew, Poder, Liina, Post, Annalisa, Rand, Larry, Robles, Diana, Rocha, Frederico, Rosenfeld, Howard, Rosenstein, Melissa, Scudmore, Janice, Shum, Dorothy, Sobhani, Nasim, Sparks, Teresa, Swanson, Katherine, Tesfalul, Martha, Valderramos, Stephanie, Vu, Lan, Yeaton-Massey, Amanda, Strobel, Katie M., Romero, Tahmineh, Kim, Jae H., DeUgarte, Daniel A., and Calkins, Kara L.

Published
2021
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9. Growth Failure Prevalence in Neonates with Gastroschisis : A Statewide Cohort Study

Author

Strobel, Katie M., primary, Romero, Tahmineh, additional, Kramer, Katelin, additional, Fernandez, Erika, additional, Rottkamp, Catherine, additional, Uy, Cherry, additional, Keller, Roberta, additional, Moyer, Laurel, additional, Poulain, Francis, additional, Kim, Jae H., additional, DeUgarte, Daniel A., additional, Calkins, Kara L., additional, Boe, Nina, additional, Brown, Erin, additional, Farmer, Diana, additional, Field, Nancy, additional, Hedriana, Herman, additional, Hirose, Shinjiro, additional, James, Gina, additional, Love, Elyse, additional, McLennan, Amelia, additional, Powne, Amy, additional, Morris, Laila Rhee, additional, Saadai, Payam, additional, Sunderji, Sherzana, additional, Tache, Veronique, additional, Yeh, Jay, additional, Allaf, M. Baraa, additional, Bacca, Katie, additional, Carroll, Lisa, additional, Crosland, Brian, additional, Day, Robert, additional, Duffy, Jennifer, additional, Gibbs, David, additional, Hameed, Afshan, additional, Hatfield, Tamara, additional, Iacob, Alexandra, additional, Jolley, Jennifer, additional, Kabeer, Mustafa, additional, Kiciman, Nafiz, additional, Lee, Nancy, additional, Major, Carol, additional, Makhoul, Joshua, additional, Nicolau, Yona, additional, Porto, Manuel, additional, Post, Rebecca, additional, Rumney, Pamela, additional, Spiers, Lizette, additional, Yu, Peter, additional, Ahmad, Irfan, additional, Doshi, Nita, additional, Guner, Yigit, additional, Lai, Wyman, additional, Renella, Pierangelo, additional, Afshar, Yalda, additional, Calkins, Kara, additional, Pluym, Ilina, additional, DeUgarte, Daniel, additional, Devaskar, Uday, additional, Deville, Jaime, additional, Fajardo, Viviana, additional, Garg, Meena, additional, Han, Christina, additional, Holliman, Kerry, additional, Janzen, Carla, additional, Jen, Howard, additional, Kallapur, Suhas, additional, Lee, Steven, additional, Lerman, Steven, additional, Murphy, Aisling, additional, Nguyen, Tina, additional, Rao, Rashmi, additional, Sabnis, Animesh, additional, Satou, Gary, additional, Sklansky, Mark, additional, Strobel, Katie, additional, Sturm, Renea, additional, Tabsh, Khalil, additional, Wong, Thalia, additional, Adami, Rebecca, additional, Anton, Tracy, additional, Ballas, Jerasimos, additional, Bickler, Stephen, additional, Hull, Andrew, additional, Jacobs, Marni, additional, Johnson, Diana, additional, Kling, Karen, additional, Lamale-Smith, Leah, additional, Lazar, Sarah, additional, Laurent, Louise, additional, Liu, Tzu-Ning, additional, Magallanes, Celestine, additional, Melber, Dora, additional, Parast, Mana, additional, Perez, Mishella, additional, Pretorius, Dolores, additional, Ramos, Sandy, additional, Tarsa, Maryam, additional, Woelkers, Douglas, additional, Zhang-Rutledge, Kathy, additional, Golding, Ian Fraser, additional, Sun, Heather, additional, Archbold, Katie, additional, Arcilla, Lisa, additional, Bennet, Stacie, additional, Brakeman, Paul, additional, Catenacci, Melissa, additional, Chetty, Shilpa, additional, Copp, Hillary, additional, Corbett, Erin, additional, Dougherty, Valerie, additional, Downum, Sarah, additional, Feldstein, Vickie, additional, Ghaffari, Neda, additional, Goldstein, Ruth, additional, Gonzalez-Velez, Juan, additional, Gonzalez, Veronica, additional, Gosnell, Kristen, additional, Gras, Joanne, additional, Harrison, Michael, additional, Hogan, Whitnee, additional, Hutchinson, Romobia, additional, Irani, Roxanna, additional, Jha, Priyanka, additional, Josiah-Davis, Erna, additional, Lee, Hanmin, additional, Lianoglou, Billie, additional, Lucero, Jennifer, additional, Lusk, Leslie, additional, MacKenzie, Tippi, additional, Mardy, Anne, additional, Matsuda, Erin, additional, Moon-Grady, Anita, additional, Morgan, Tara, additional, Murtha, Amy, additional, Norton, Mary, additional, Oman, Natalie, additional, Padilla, Benjamin, additional, Patel, Sachi, additional, Peyandi, Shabnam, additional, Phelps, Andrew, additional, Poder, Liina, additional, Post, Annalisa, additional, Rand, Larry, additional, Robles, Diana, additional, Rocha, Frederico, additional, Rosenfeld, Howard, additional, Rosenstein, Melissa, additional, Scudmore, Janice, additional, Shum, Dorothy, additional, Sobhani, Nasim, additional, Sparks, Teresa, additional, Swanson, Katherine, additional, Tesfalul, Martha, additional, Valderramos, Stephanie, additional, Vu, Lan, additional, and Yeaton-Massey, Amanda, additional

Published
2021
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27. Acute changes in blood pressure in patients with neuroblastoma treated with ¹³¹I-metaiodobenzylguanidine (MIBG).

Author

Wong T, Matthay KK, Boscardin WJ, Hawkins RA, Brakeman PR, and DuBois SG

Subjects
Adolescent, Age Factors, Child, Child, Preschool, Female, Humans, Hypertension chemically induced, Hypertension drug therapy, Hypertension physiopathology, Infant, Male, Nifedipine administration & dosage, Retrospective Studies, Time Factors, Vasodilator Agents administration & dosage, 3-Iodobenzylguanidine administration & dosage, 3-Iodobenzylguanidine adverse effects, Blood Pressure drug effects, Neuroblastoma drug therapy, Neuroblastoma physiopathology, Radiopharmaceuticals administration & dosage, Radiopharmaceuticals adverse effects
Abstract

Background: Iodine-131-metaiodobenzylguanidine ((131)I-MIBG) provides targeted radiotherapy for children with neuroblastoma. The aim of our study was to evaluate systematically the acute effects of (131)I-MIBG on blood pressure in patients with neuroblastoma and to identify possible predictors of hypertension., Procedure: We conducted a retrospective chart review of neuroblastoma patients who were treated with (131)I-MIBG between January 1, 1999 and June 1, 2012 at the University of California, San Francisco. Clinical data for 172 patients with neuroblastoma, receiving 218 administrations of (131)I-MIBG, were collected. The primary endpoint was development of systolic blood pressure above the 95th percentile for age. Logistic regression with generalized estimating equations to account for multiple administrations in some subjects was used to identify bivariate and multivariate predictors of hypertension., Results: Of the 218 administrations of (131)I-MIBG, 112 (51.3%) were associated with at least one episode of systolic hypertension during or after the (131)I-MIBG infusion. The majority of these acute elevations in blood pressure resolved within 48 hours of the infusion. Only six administrations in five patients required nifedipine administration to lower blood pressure. Younger age (P = 0.012), lower eGFR (P = 0.047), and elevated blood pressure measurements immediately before infusion began (P = 0.010) were all independently associated with risk of treatment-associated hypertension., Conclusions: Acute elevations in blood pressure are common after therapeutic doses of (131) I-MIBG. Elevations in blood pressure typically occur only within the first 48 hours after (131)I-MIBG administration. Blood pressure monitoring during this period of risk is recommended., (Copyright © 2013 Wiley Periodicals, Inc.)

Published
2013
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