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5. Impact of the health insurance portability and accountability act on participant recruitment and retention

Author

Wipke-Tevis, Deidre D. and Pickett, Melissa A.

Subjects
Health insurance industry -- Laws, regulations and rules, Insurance law -- Influence, Medical research -- Human resource management, Medicine, Experimental -- Human resource management, Government regulation, Company personnel management, Health, Health care industry, Health Insurance Portability and Accountability Act of 1996
Abstract

Recruiting and retaining an adequate sample is critical to the success of any research project involving humans. Recent reports indicate that the Health Insurance Portability and Accountability Act (HIPAA) privacy rule has adversely affected research. Few resources are available to help researchers navigate the challenges to recruitment and retention after HIPAA privacy rule implementation. This article addresses obstacles to recruitment in prospective clinical research studies related to the HIPAA privacy rule, as well as HIPAA-compliant strategies to enhance recruitment and retention. Recruitment challenges discussed include evolving interpretations of the HIPAA regulations, inability to directly contact potential participants, complexity of HIPAA-required documents, increased costs of recruitment, and an expanding administrative burden. Among the strategies addressed are preparatory research reviews, using clinical collaborators and staff liaisons, prescreening potential participants, minimizing participant burden during the consent process, enhancing participant follow-up, facilitating recruitment for future studies, and streamlining compliance training for staff. Keywords: HIPAA, privacy rule; participant recruitment; participant retention

Published
2008

19. Foot Care Self-Management in Non-Diabetic Older Adults: A Pilot Controlled Trial.

Author

O'Connor, Jennifer J., Deroche, Chelsea B., and Wipke-Tevis, Deidre D.

Subjects
PILOT projects, EXPERIMENTAL design, PAIN, SAMPLE size (Statistics), ANALYSIS of variance, SELF-management (Psychology), TIME, INDEPENDENT variables, EFFECT sizes (Statistics), FOOT care, HEALTH outcome assessment, FISHER exact test, NURSING care facilities, HEALTH literacy, SELF-efficacy, MATHEMATICAL variables, INDEPENDENT living, HEALTH behavior, QUESTIONNAIRES, DESCRIPTIVE statistics, CHI-squared test, REPEATED measures design, RESEARCH funding, STATISTICAL sampling, BODY mass index, NURSING interventions, HEALTH promotion
Abstract

Self-management can mitigate common foot problems; however, community-dwelling older adults without diabetes rarely receive foot care self-management training. This two-group pilot study examined feasibility and preliminary efficacy of the novel, nurse-led 2 Feet 4 Life intervention. Twenty-nine adults (M age 76 years ± 6.6 years) from two senior centers completed the study (90.6% retention rate). Intervention dosage was one hour/week for four consecutive weeks. Study procedures were safe and feasible. Intervention group participants found the intervention acceptable and valuable. Observed between-group effect sizes were the following: knowledge (4.339), self-efficacy (3.652), behaviors (3.403), pain (0.375) and foot health (0.376). Large effect sizes were observed within-groups and within their interaction for knowledge (1.316), behaviors (8.430), pain (9.796), and foot health (3.778). Effect sizes suggest the intervention impacted foot care outcomes between groups and within individuals over seven months' time. Fully powered studies are indicated to test the intervention in diverse samples with more complex foot problems. [ABSTRACT FROM AUTHOR]

Published
2021
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22. 1146

Author

Prentice, Donna, primary, Wipke-Tevis, Deidre, additional, and DeRoche, Chelsea, additional

Published
2019
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24. Contributors

Author

Aitken, Robyn L, Alexander, Kimberly, Barr, Jeanne, Bonner, Ann, Brown, Di, Breaden, Katrina, Buckley, Thomas, Chan, Raymond Javan, Clark, Samantha Jane, Duff, Jed, Edwards, Helen, Ferguson, Caleb, Finlayson, Kathleen, Firth, Rochelle, Fong, Jacqueline, Foran, Paula, Framp, Ann, Gallagher, Robyn, Gordon, Christopher James, Hambrecht, Ken, Harrington, Ann, Kucia, Angela, Lenthall, Sue, Lin, Frances, Mackay, Bev, Matiuk, Sonia, McLiesh, Paul, McPherson, Brighid, Newman, Fiona, Nahidi, Shizar, O'Brien, Elizabeth Mary, Parker, Christina, Poole, Julia L, Potter, Julie Elizabeth, Ramanathan, Vijayasarathi, Rolley, John Xavier, Rowe, Sharon, Rückholdt, Monica, Sawleshwarkar, Shailendra, Soars, Linda, Schoenwald, Anthony, Shaban, Ramon Z, Smith, Sheree, Sotomayor-Castillo, Cristina, Straiton, Nicola, Strong, Marion, Stulz, Virginia, Team, Victoria, Tilley, Donna, Twyford, Karen, Van Kuilenburg, Rosita, Verschoor, Marie, Waird, Allyson, Weller, Carolina Dragica, West, Roianne Fay, Whitbread, Cherie, Wilson, Denise, Yates, Patsy, Arbour, Richard B, Bargad, Adena, Buchanan, Diana Taibi, Burbage, Darcy, Choma, Kim K, Collazo, Susan, Cox-North, Paula P, Dennison, Hazel A, Dickinson, Jane K, DiMaria-Ghalili, Rose Ann, Fillman, Mechele, Gallagher, Diana L, Greenberg, Sherry A, Herman, Angela DiSabatino, Hoch, Christine R, Horner, David M, Hutchinson, Melissa L, Kelly, Katherine A, Knighton, Judy, Kupper, Nancy, Lenart, Janet, Littlejohns, Linda, McKeever, Amy, Mitchell, De Ann F, Moffa, Carolyn, Mondor, Eugene E, Neil, Janice A, Parsell, Suzanne Teresa, Plueger, Madona Dawn, Polek, Carolee, Polomano, Rosemary C, Price, Matthew C, Quallich, Susanne A, Rich, Kathleen A, Rome, Sandra Irene, Saylor, Jennifer, Seckel, Maureen A, Shaffer, Rose, Shoup, Anita Jo, Sullivan, Cindy M, Upchurch, Linda AL, Wipke-Tevis, Deidre D, Wollan, Mary K, Wu, Kathy H, Zomorodi, Meg, and Zychowicz, Michael E

Published
2020
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26. Randomized Clinical Trial of a Quality Improvement Intervention in Nursing Homes

Author

Rantz, Marilyn J., Popejoy, Lori, Petroski, Gregory F., Madsen, Richard W., Mehr, David R., Zwygart-Stauffacher, Mary, Hicks, Lanis L., Grando, Victoria, Wipke-Tevis, Deidre D., Bostick, Jane, Porter, Rose, Conn, Vicki S., and Maas, Meridean

Subjects
Nursing home care -- Quality management, Nursing home patients -- Care and treatment, Health, Seniors
Abstract

Purpose: The purpose of the study was to determine if simply providing nursing facilities with comparative quality performance information and education about quality improvement would improve clinical practices and subsequently improve resident outcomes, or if a stronger intervention, expert clinical consultation with nursing facility staff, is needed. Design and Methods: Nursing facilities (n = 113) were randomly assigned to one of three groups: workshop and feedback reports only, workshop and feedback reports with clinical consultation, and control. Minimum Data Set (MDS) Quality Indicator (QI) feedback reports were prepared and sent quarterly to each facility in intervention groups for a year. Clinical consultation by a gerontological clinical nurse specialist (GCNS) was offered to those in the second group. Results: With the exception of MDS QI 27 (little or no activity), no significant differences in resident assessment measures were detected between the groups of facilities. However, outcomes of residents in nursing homes that actually took advantage of the clinical consultation of the GCNS demonstrated trends in improvements in QIs measuring falls, behavioral symptoms, little or no activity, and pressure ulcers (overall and for low-risk residents). Implications: Simply providing comparative performance feedback is not enough to improve resident outcomes. It appears that only those nursing homes that sought the additional intensive support of the GCNS were able to effect enough change in clinical practice to improve resident outcomes significantly. Key Words: MDS data, Nursing homes, Outcomes

Published
2001

35. Contributors

Author

Alexander, Kimberly, Alford, Jan, Athanasos, Peter, Baker, Jacqueline, Barr, Jeanne, Bonner, Ann, Broadbent, Heather, Brown, Anna, Brown, Di, Buckley, Thomas, Cashin, Andrew, Cheetham, Valerie, Clarke, Jane, Douglas, Clint, Edwards, Helen, Finlayson, Kathleen, Fong, Jacqueline, Fong, Joy, Framp, Ann, Gallagher, Robyn, Gordon, Christopher, Hamlin, Lois, Hammond, Catherine, Hargraves, Maryanne, Harrington, Ann, Hegney, Desley, Hopper, Beverley-Anne, Hughes, Frances, Kent, Bridie, Kildea, Sue, Knight, Sabina, Kruske, Sue, Lenthall, Sue, Leonard, Elizabeth, Lin, Frances, Mackay, Bev, McPherson, Brighid, Matuik, Sonia, Neild, Rose, O’Brien, Elizabeth, Parry, Julie, Poole, Julia, Rolley, John Xavier, Seaton, Lesley, Soars, Linda, Strong, Marion, Twyford, Karen, Verschoor, Marie, Yates, Patsy, Arbour, Richard, Baker, Margaret, Bradley, Elisabeth G, Bradley-Springer, Lucy, Bucher, Linda, Cady, Jormain, Cox-North, Paula, Croghan, Anne, Czarapata, Betty Jean Reid, Daniels, Judi, DiMaria-Ghalili, Rose, Dirksen, Shannon Ruff, DiSabatino, Angela, Dulski, Laura, Eisel, Susan J, Hamolsky, Deborah, Harding, Mariann M, Harvey, Jerry, Headley, Carol, Heitkemper, Margaret McLean, Hills, Teresa E, Hoch, Christine, Horner, David M, Jackowski, Joyce, Jarrell, Kay, Johnson, Sharmila, Kaufman, Jane Steinman, Kelly, Katherine A, Kindler, Lindsay L, Knighton, Judy, Kolis, Mary Ann, Kotecki, Catherine N, Kupper, Nancy, Kwong, Jeffrey, Landis, Carol A, Landis, Susan C, Lazear, Janice, Lein, Catherine (Kate), Lenart, Janet, Lewis, Sharon L, MacMullen, Nancy, Mathers, Dorothy (Dottie) M, Mitchell, De Ann F, Moffa, Carolyn, Neil, Janice, Olson, DaiWai, Polomano, Rosemary C, Rich, Kathleen A, Roberts, Dottie, Rome, Sandra Irene, Saylor, Jennifer, Schmelzer, Marilee, Seckel, Maureen A, Shaw, Virginia (Jennie), Shoup, Anita Jo, Wipke-Tevis, Deidre D, Wollan, Mary, Zomorodi, Meg, and Zsiros, Damien

Published
2015
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48. Observable Indicators of Nursing Home Care Quality

Author

Rantz, Marilyn J., primary, Mehr, David R., additional, Petroski, Gregory F., additional, Madsen, Richard W., additional, Popejoy, Lori L., additional, Hicks, Lanis L., additional, Conn, Vicki S., additional, Grando, Victoria T., additional, Wipke-Tevis, Deidre D., additional, Bostick, Jane, additional, Porter, Rose, additional, Zwygart-Stauffacher, Mary, additional, and Maas, Meridean, additional

Published
2000
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