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1. Coproduction and Usability of a Smartphone App for Falls Reporting in Parkinson Disease

Author

Wales, Jill, Moore, Jason, Naisby, Jenni, Ratcliffe, Natasha, Barry, Gill, Amjad, Annee, Godfrey, Alan, Standerline, Gerry, Webster, Elaine, and Morris, Rosie

Subjects
Falls (Accidents) -- Health aspects -- Causes of, Aged patients -- Care and treatment, Mobile applications -- Usage -- Health aspects, Parkinson's disease -- Complications and side effects
Abstract

Objective. The purpose of this study was to coproduce a smart-phone application for digital falls reporting in people with Parkinson disease (PD) and to determine usability using an explanatory mixed-methods approach. Methods. This study was undertaken in 3 phases. Phase 1 was the development phase, in which people with PD were recruited as co-researchers to the project. The researchers, alongside a project advisory group, coproduced the app over 6 months. Phase 2 was the implementation phase, in which 15 people with PD were invited to test the usability of the app. Phase 3 was the evaluation phase, in which usability was assessed using the systems usability scale by 2 focus groups with 10 people with PD from phase 2. Results. A prototype was successfully developed by researchers and the project advisory group. The usability of the app was determined as good (75.8%) by people with PD when rating using the systems usability scale. Two focus groups (n = 5 per group) identified themes of 1) usability, 2) enhancing and understanding management of falls, and 3) recommendations and future developments. Conclusions. A successful prototype of the iFall app was developed and deemed easy to use by people with PD. The iFall app has potential use as a self-management tool for people with PD alongside integration into clinical care and research studies. Impact. This is the first digital outcome tool to offer reporting of falls and near-miss fall events. The app may benefit people with PD by supporting self-management, aiding clinical decisions in practice, and providing an accurate and reliable outcome measure for future research. Lay Summary. A smartphone application designed in collaboration with people who have PD to record their falls was acceptable and easy to use by people with PD. Keywords: Accidental Falls, App, Co-Production, Digital Measurement Tool, Parkinson Disease, Usability, Introduction Parkinson disease (PD) is a common neurodegenerative disorder that presents with both motor and nonmotor impairments. Falls are common in people with PD, who are 2 to 4 times [...]

Published
2024
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3. Meanings that extra care tenants attribute to using the internet for social contact : a phenomenological study

Author

Wales, Jill Rosemary, Cook, Glenda, and Bailey, Catherine

Subjects
302.3, L700 Human and Social Geography, L900 Others in Social studies
Abstract

Social connectedness is one of the key determinants of quality of life in later years, with good social networks enhancing resilience to challenging life events. Older adults may respond to health concerns and changing circumstances, by relocating from life in the community, to an extra care housing scheme. A life transition, such as a housing relocation, may lead to the disruption of social networks, with the attendant risk of loneliness, social isolation and health detriments. With the ubiquity of digital devices, online social contact may enable extra care tenants to maintain their social networks, after a transition from life in the community. However, little is known about extra care tenants’ lived experience of social internet use. This interpretative, hermeneutic, phenomenological inquiry explored the experiences of ten extra care tenants, adopting online social contact, in two extra care housing schemes in north east England. Data collection involved participants in a series of three semi-structured interviews, over a period of eight months. This was supplemented by solicited diaries, kept for two weeks, with participants recording their use of technology for social contact. The longitudinal design of the study enabled a prolonged engagement with the participants and captured their evolving experience of online social contact. Participants found that social internet use supported their offline social relationships, enabling them to maintain their familial roles and long term friendships, after a transition to extra care housing. Additionally, dormant friendships were rekindled online and some new friendships developed. Participants found that their social internet use enabled them to re-establish a continuous sense of their own biography and regain some skills from their earlier years. Drawing on theories of ageing and adaptation, to illuminate the participants’ experience, existing theory was extended and repurposed, for application in the internet age.

Published
2020

5. Use of a mobile app by people with Parkinson's disease to improve self-management.

Author

Hand, Annette, Wales, Jill, Cook, Glenda, and Kirton, Alexandra

Abstract

Background: Parkinson's disease is a complex neurodegenerative condition. Due to the heterogeneity of symptoms that may be experienced, individualised treatment plans are essential. Hear Me Now (HMN) is an app developed for individuals with learning disabilities. Anecdotal evidence suggested people with chronic conditions, such as Parkinson's disease, might also benefit from using HMN in managing their complex health condition. Aims: This feasibility study sought to explore whether HMN was suitable for use in people with Parkinson's disease. Methods: A purposive sample of 4 people with Parkinson's were recruited. Following training, participants used the HMN app at home over 3 months. Interviews were used to explore their use of functions within the app; ease of use; any impact it had on their daily life; any barriers or facilitators to using the app. Findings: Most participants found HMN beneficial in managing their health condition. Conclusion: The HMN app merits further research for use in patient self-management. [ABSTRACT FROM AUTHOR]

Published
2024
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8. Meanings that extra care tenants attribute to using the internet for social contact: a phenomenological study

Author

Wales, Jill Rosemary, Cook, Glenda, and Bailey, Catherine

Subjects
L700, L900
Abstract

Social connectedness is one of the key determinants of quality of life in later years, with good social networks enhancing resilience to challenging life events. Older adults may respond to health concerns and changing circumstances, by relocating from life in the community, to an extra care housing scheme. A life transition, such as a housing relocation, may lead to the disruption of social networks, with the attendant risk of loneliness, social isolation and health detriments. With the ubiquity of digital devices, online social contact may enable extra care tenants to maintain their social networks, after a transition from life in the community. However, little is known about extra care tenants’ lived experience of social internet use. This interpretative, hermeneutic, phenomenological inquiry explored the experiences of ten extra care tenants, adopting online social contact, in two extra care housing schemes in north east England. Data collection involved participants in a series of three semi-structured interviews, over a period of eight months. This was supplemented by solicited diaries, kept for two weeks, with participants recording their use of technology for social contact. The longitudinal design of the study enabled a prolonged engagement with the participants and captured their evolving experience of online social contact. Participants found that social internet use supported their offline social relationships, enabling them to maintain their familial roles and long term friendships, after a transition to extra care housing. Additionally, dormant friendships were rekindled online and some new friendships developed. Participants found that their social internet use enabled them to re-establish a continuous sense of their own biography and regain some skills from their earlier years. Drawing on theories of ageing and adaptation, to illuminate the participants’ experience, existing theory was extended and repurposed, for application in the internet age.

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