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1. Sexual health—a topic for cancer patients receiving oncological treatment with palliative intent

Author

Schmalz, Claudia, Oberguggenberger, Anne S., Nagele, Eva, Bliem, Brigitte, Lanceley, Anne, Nordin, Andy, Kuljanic, Karin, Jensen, Pernille T., Bjelic-Radisic, Vesna, Fabian, Alexander, Arraras, Juan I., Wei-Chu, Chie, Creutzberg, Carien L., Galalae, Razvan, Toelen, Hilde, Zimmermann, Kristin, Costantini, Anna, Almont, Thierry, Serpentini, Samantha, Frøding, Ligita Paskeviciute, Vistad, Ingvild, Tomaszewski, Krzysztof A., Inwald, Elisabeth, and Greimel, Elfriede

Published
2024
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2. Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire

Author

van Leeuwen, Marieke, Kieffer, Jacobien M., Young, Teresa E., Annunziata, Maria Antonietta, Arndt, Volker, Arraras, Juan Ignacio, Autran, Didier, Hani, Hira Bani, Chakrabarti, Manas, Chinot, Olivier, Cho, Juhee, da Costa Vieira, Rene Aloisio, Darlington, Anne-Sophie, Debruyne, Philip R., Dirven, Linda, Doege, Daniela, Eller, Yannick, Eichler, Martin, Fridriksdottir, Nanna, Gioulbasanis, Ioannis, Hammerlid, Eva, van Hemelrijck, Mieke, Hermann, Silke, Husson, Olga, Jefford, Michael, Johansen, Christoffer, Kjaer, Trille Kristina, Kontogianni, Meropi, Lagergren, Pernilla, Lidington, Emma, Lisy, Karolina, Morag, Ofir, Nordin, Andy, Al Omari, Amal S.H., Pace, Andrea, De Padova, Silvia, Petranovia, Duska, Pinto, Monica, Ramage, John, Rammant, Elke, Reijneveld, Jaap, Serpentini, Samantha, Sodergren, Sam, Vassiliou, Vassilios, Leeuw, Irma Verdonck-de, Vistad, Ingvild, Young, Teresa, Aaronson, Neil K., and van de Poll-Franse, Lonneke V.

Published
2023
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4. Psychometric validation of the European Organisation for Research and Treatment of Cancer–Quality of Life Questionnaire Sexual Health (EORTC QLQ-SH22)

Author

Greimel, Elfriede, Nagele, Eva, Lanceley, Anne, Oberguggenberger, Anne S., Nordin, Andy, Kuljanic, Karin, Arraras, Juan I., Wei-Chu, Chie, Jensen, Pernille T., Tomaszewski, Krzysztof A., Creutzberg, Carien L., Galalae, Razvan, Toelen, Hilde, Zimmermann, Kristin, Bjelic-Radisic, Vesna, Costantini, Anna, Almont, Thierry, Serpentini, Samantha, Paskeviciute Frøding, Ligita, Vistad, Ingvild, and Schmalz, Claudia

Published
2021
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5. Dropout from exercise trials among cancer survivors—An individual patient data meta-analysis from the POLARIS study

Author

Western, Benedikte, Ivarsson, Andreas, Vistad, Ingvild, Demmelmaier, Ingrid, Aaronson, Neil K., Radcliffe, Gillian, van Beurden, Marc, Bohus, Martin, Courneya, Kerry S., Daley, Amanda J., Galvão, Daniel A., Garrod, Rachel, Goedendorp, Martine M., Griffith, Kathleen A., van Harten, Wim H., Hayes, Sandi C., Herrero-Roman, Fernando, Hiensch, Anouk E., Irwin, Melinda L., James, Erica, Kenkhuis, Marlou Floor, Kersten, Marie José, Knoop, Hans, Lucia, Alejandro, May, Anne M., McConnachie, Alex, van Mechelen, Willem, Mutrie, Nanette, Newton, Robert U., Nollet, Frans, Oldenburg, Hester S., Plotnikoff, Ron, Schmidt, Martina E., Schmitz, Katie H., Schulz, Karl Heinz, Short, Camille E., Sonke, Gabe S., Steindorf, Karen, Stuiver, Martijn M., Taaffe, Dennis R., Thorsen, Lene, Velthuis, Miranda J., Wenzel, Jennifer, Winters-Stone, Kerri M., Wiskemann, Joachim, Berntsen, Sveinung, Buffart, Laurien M., Western, Benedikte, Ivarsson, Andreas, Vistad, Ingvild, Demmelmaier, Ingrid, Aaronson, Neil K., Radcliffe, Gillian, van Beurden, Marc, Bohus, Martin, Courneya, Kerry S., Daley, Amanda J., Galvão, Daniel A., Garrod, Rachel, Goedendorp, Martine M., Griffith, Kathleen A., van Harten, Wim H., Hayes, Sandi C., Herrero-Roman, Fernando, Hiensch, Anouk E., Irwin, Melinda L., James, Erica, Kenkhuis, Marlou Floor, Kersten, Marie José, Knoop, Hans, Lucia, Alejandro, May, Anne M., McConnachie, Alex, van Mechelen, Willem, Mutrie, Nanette, Newton, Robert U., Nollet, Frans, Oldenburg, Hester S., Plotnikoff, Ron, Schmidt, Martina E., Schmitz, Katie H., Schulz, Karl Heinz, Short, Camille E., Sonke, Gabe S., Steindorf, Karen, Stuiver, Martijn M., Taaffe, Dennis R., Thorsen, Lene, Velthuis, Miranda J., Wenzel, Jennifer, Winters-Stone, Kerri M., Wiskemann, Joachim, Berntsen, Sveinung, and Buffart, Laurien M.

Abstract

Introduction: The number of randomized controlled trials (RCTs) investigating the effects of exercise among cancer survivors has increased in recent years; however, participants dropping out of the trials are rarely described. The objective of the present study was to assess which combinations of participant and exercise program characteristics were associated with dropout from the exercise arms of RCTs among cancer survivors. Methods: This study used data collected in the Predicting OptimaL cAncer RehabIlitation and Supportive care (POLARIS) study, an international database of RCTs investigating the effects of exercise among cancer survivors. Thirty-four exercise trials, with a total of 2467 patients without metastatic disease randomized to an exercise arm were included. Harmonized studies included a pre and a posttest, and participants were classified as dropouts when missing all assessments at the post-intervention test. Subgroups were identified with a conditional inference tree. Results: Overall, 9.6% of the participants dropped out. Five subgroups were identified in the conditional inference tree based on four significant associations with dropout. Most dropout was observed for participants with BMI >28.4 kg/m2, performing supervised resistance or unsupervised mixed exercise (19.8% dropout) or had low-medium education and performed aerobic or supervised mixed exercise (13.5%). The lowest dropout was found for participants with BMI >28.4 kg/m2 and high education performing aerobic or supervised mixed exercise (5.1%), and participants with BMI ≤28.4 kg/m2 exercising during (5.2%) or post (9.5%) treatment. Conclusions: There are several systematic differences between cancer survivors completing and dropping out from exercise trials, possibly affecting the external validity of exercise effects. © 2024 The Authors. Scandinavian Journal of Medicine & Science In Sports published by John Wiley & Sons Ltd., The present study was part of a PhD project funded by the South‐Eastern Norway Regional Health Authority. The POLARIS study is supported by the Bas Mulder Award, granted to L. M. Buffart by the Alpe d’HuZes foundation/Dutch Cancer Society (VU2011–5045).

Published
2024
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6. Dropout from exercise trials among cancer survivors-An individual patient data meta-analysis from the POLARIS study

Author

Epi Kanker Team B, Cancer, Epi Kanker, JC onderzoeksprogramma Kanker, Western, Benedikte, Ivarsson, Andreas, Vistad, Ingvild, Demmelmaier, Ingrid, Aaronson, Neil K, Radcliffe, Gillian, van Beurden, Marc, Bohus, Martin, Courneya, Kerry S, Daley, Amanda J, Galvão, Daniel A, Garrod, Rachel, Goedendorp, Martine M, Griffith, Kathleen A, van Harten, Wim H, Hayes, Sandi C, Herrero-Roman, Fernando, Hiensch, Anouk E, Irwin, Melinda L, James, Erica, Kenkhuis, Marlou-Floor, Kersten, Marie José, Knoop, Hans, Lucia, Alejandro, May, Anne M, McConnachie, Alex, van Mechelen, Willem, Mutrie, Nanette, Newton, Robert U, Nollet, Frans, Oldenburg, Hester S, Plotnikoff, Ron, Schmidt, Martina E, Schmitz, Katie H, Schulz, Karl-Heinz, Short, Camille E, Sonke, Gabe S, Steindorf, Karen, Stuiver, Martijn M, Taaffe, Dennis R, Thorsen, Lene, Velthuis, Miranda J, Wenzel, Jennifer, Winters-Stone, Kerri M, Wiskemann, Joachim, Berntsen, Sveinung, Buffart, Laurien M, Epi Kanker Team B, Cancer, Epi Kanker, JC onderzoeksprogramma Kanker, Western, Benedikte, Ivarsson, Andreas, Vistad, Ingvild, Demmelmaier, Ingrid, Aaronson, Neil K, Radcliffe, Gillian, van Beurden, Marc, Bohus, Martin, Courneya, Kerry S, Daley, Amanda J, Galvão, Daniel A, Garrod, Rachel, Goedendorp, Martine M, Griffith, Kathleen A, van Harten, Wim H, Hayes, Sandi C, Herrero-Roman, Fernando, Hiensch, Anouk E, Irwin, Melinda L, James, Erica, Kenkhuis, Marlou-Floor, Kersten, Marie José, Knoop, Hans, Lucia, Alejandro, May, Anne M, McConnachie, Alex, van Mechelen, Willem, Mutrie, Nanette, Newton, Robert U, Nollet, Frans, Oldenburg, Hester S, Plotnikoff, Ron, Schmidt, Martina E, Schmitz, Katie H, Schulz, Karl-Heinz, Short, Camille E, Sonke, Gabe S, Steindorf, Karen, Stuiver, Martijn M, Taaffe, Dennis R, Thorsen, Lene, Velthuis, Miranda J, Wenzel, Jennifer, Winters-Stone, Kerri M, Wiskemann, Joachim, Berntsen, Sveinung, and Buffart, Laurien M

Published
2024

10. Real-world data on niraparib maintenance treatment in patients with non-gBRCA mutated platinum-sensitive recurrent ovarian cancer

Author

Vilming, Bente, primary, Fallås Dahl, Jørgen, additional, Bentzen, Anne Gry, additional, Ingebrigtsen, Vibeke Anett, additional, Berge Nilsen, Elisabeth, additional, Vistad, Ingvild, additional, Dørum, Anne, additional, Solheim, Olesya, additional, Bjørge, Line, additional, Zucknick, Manuela, additional, Aune, Guro, additional, and Lindemann, Kristina, additional

Published
2023
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12. Gynecological cancer survivors' experiences with sexual health communication in nurse‐led follow‐up consultations.

Author

Paulsen, Anita, Vistad, Ingvild, and Fegran, Liv

Subjects
*CANCER survivors, *MEDICAL communication, *ONCOLOGY nursing, *SEXUAL health, *COMMUNICATION in nursing, *END of treatment, *NURSES
Abstract

Introduction: Gynecological cancer and its treatment may cause sexual difficulties in terms of physical and psychosocial health. Considering the essential role that nurses play in cancer care, they are well positioned to be ideal providers for addressing sexual health concerns in the follow‐up phase of gynecological cancer. The aim of this study was to gain in‐depth knowledge of how gynecological cancer survivors experience sexual health communication in nurse‐led follow‐up consultations. Material and methods: Using a qualitative hermeneutic approach, we conducted individual semi‐structured interviews with 17 women from five different hospitals in Norway between April 4, 2022, and June 2, 2022. The women participated in a large intervention study on cancer follow‐up that included sexual health as one of several topics addressed by trained nurses in three consultations in the first year of follow‐up. A five‐stage Gadamerian‐inspired research method was utilized for data collection and analysis. Results: We identified three themes: (1) the importance of nurses listening to the women's own perceptions of sexuality, (2) post‐treatment sexual challenges influence the women's need to communicate about sexual health, and (3) nursing communication can help women regain their sexual health. Conclusions: Women who have undergone treatment for gynecological cancer find communication with trained nurses regarding sexual health beneficial. We recommend integration of trained nurses in the follow‐up team. The nurses should adjust communication according to each gynecological cancer survivor's unique understanding of sexuality and inform women with sexual health concerns at that end of treatment, that sexual health can improve during follow‐up. [ABSTRACT FROM AUTHOR]

Published
2024
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17. Time trends in human papillomavirus prevalence and genotype distribution in vulvar carcinoma in Norway.

Author

Meltzer‐Gunnes, Christin Julia, Lie, Agnes Kathrine, Jonassen, Christine Genevieve Monceyron, Rangberg, Anbjørg, Nystrand, Camilla Furlund, Småstuen, Milada Cvancarova, and Vistad, Ingvild

Subjects
VULVAR cancer, HUMAN papillomavirus, SQUAMOUS cell carcinoma, GENOTYPES, CARCINOMA, OVERALL survival
Abstract

Introduction: Approximately 25%–43% of all vulvar carcinomas are associated with human papillomavirus (HPV). In many countries, vulvar carcinoma incidence rates are increasing, possibly due to greater HPV exposure. However, studies exploring changes in HPV prevalence and genotype distribution in vulvar carcinoma over time are scarce. Our aim was to evaluate time trends in HPV prevalence and genotype distribution in vulvar squamous cell carcinoma in an unselected, nationwide sample of Norwegian women. Further, we explored clinical and histopathological aspects in relation to HPV status and investigated whether HPV status was associated with survival. Material and methods: All vulvar squamous cell carcinoma cases from 1970–1975 and 2000–2005 were extracted from the Cancer Registry of Norway and corresponding tissue blocks were retrieved. After detailed histology review, HPV testing was conducted using real‐time TaqMan PCR. Overall survival rates were calculated using the Kaplan–Meier method. Multivariable Cox regression analysis was performed to estimate hazard ratios adjusted for age at diagnosis, stage and diagnostic period. Results: Histological review was performed on 352 vulvar squamous cell carcinoma cases. We were able to obtain valid HPV analysis results for 282 cases, Overall, 29.8% (95% CI 24.5%–35.5%) of cases were high‐risk HPV (hrHPV)‐positive. When comparing the two periods, we found that the percentage of hrHPV‐positive tumors increased significantly from 23% (95% CI 16.0%–31.4%) in 1970–1975 to 35.3% (95% CI 27.8%–43.3%) in 2000–2005 (P = 0.025). The predominant genotypes were HPV 16 (73%), HPV 33 (21%), and HPV 18 (6%), with similar distributions in both periods. In the more recent cohort, several additional genotypes were detected: HPV 6, 11, 39, 45, 52, 58 and 66 were found in smaller percentages, ranging from 1.8% to 3.6%. In univariate analysis, patients with HPV‐positive tumors showed improved overall survival compared with patients with HPV‐negative tumors (hazard ratio [HR] 0.65, 95% CI 0.48–0.86). Conclusions: The prevalence of HPV in vulvar squamous cell carcinomas in Norway was significantly higher in 2000–2005 than in 1970–1975. The three predominant genotypes were HPV 16, 33 and 18 in both time periods. However, several other HPV genotypes have emerged over the last decades. HPV‐positivity was associated with better overall survival. [ABSTRACT FROM AUTHOR]

Published
2024
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18. Nurse–patient sexual health communication in gynaecological cancer follow‐up: A qualitative study from nurses' perspectives.

Author

Paulsen, Anita, Vistad, Ingvild, and Fegran, Liv

Subjects
*PATIENT aftercare, *ONCOLOGY nursing, *CANCER patient psychology, *WORK experience (Employment), *NURSES' attitudes, *NURSING, *CONFIDENCE, *RESEARCH methodology, *WORK, *INTERVIEWING, *ATTITUDES toward aging, *NURSE-patient relationships, *QUALITATIVE research, *PHENOMENOLOGY, *CANCER, *ATTITUDES toward sex, *COMMUNICATION, *HOSPITAL nursing staff, *RESEARCH funding, *SOUND recordings, *EXPERIENTIAL learning, *DESCRIPTIVE statistics, *THEMATIC analysis, *DATA analysis software, *SEXUAL health, *FEMALE reproductive organ tumors, *HEALTH promotion
Abstract

Aim: To explore nurse–patient sexual health communication from the perspectives of nurses trained to address sexual health in gynaecological cancer follow‐up. Design: A qualitative hermeneutic approach. Methods: Individual semi‐structured interviews with 10 nurses at five different hospitals in Norway were conducted in March and April 2021. A Gadamerian‐inspired research method was used in the analysis. Results: Three main themes with six sub‐themes were identified. The three main themes were: (1) building relationships through communication, (2) practice makes perfect—the importance of experience and knowledge, and (3) personal attitudes as promoters or inhibiters of sexual health communication. Conclusion: This study provides valuable insights into nurse–patient sexual health communication from the perspectives of nurses. The nurses in this study experienced the importance of having a good, respectful nurse–patient relationship as the foundation for sexual health communication. The professional confidence gained through experience and knowledge was emphasized, including the significance of how attitudes and taboos can influence sexual health communication. Impact: The main findings of this study indicate that training in sexual health communication and the possibility of addressing sexual health repeatedly give nurses skills and professional confidence to address sexual health in cancer follow‐up. Our study indicates that sexual health communication can be achieved in a clinical setting without being overly resource demanding. Our results may also motivate nurses to enhance their knowledge about sexual health in cancer follow‐ups. Patient or Public Contribution: A patient representative from the Norwegian Gynaecological Cancer Society have been involved in the planning of this study. She has given valuable contributions from the view of a gynaecological cancer patient. [ABSTRACT FROM AUTHOR]

Published
2023
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20. How many days of continuous physical activity monitoring reliably represent time in different intensities in cancer survivors.

Author

Western, Benedikte, Demmelmaier, Ingrid, Vistad, Ingvild, Hansen, Bjørge Herman, Stenling, Andreas, Henriksen, Hege Berg, Nordin, Karin M., Blomhoff, Rune, Berntsen, Sveinung, Western, Benedikte, Demmelmaier, Ingrid, Vistad, Ingvild, Hansen, Bjørge Herman, Stenling, Andreas, Henriksen, Hege Berg, Nordin, Karin M., Blomhoff, Rune, and Berntsen, Sveinung

Abstract

BACKGROUND: Physical activity (PA) monitoring is applied in a growing number of studies within cancer research. However, no consensus exists on how many days PA should be monitored to obtain reliable estimates in the cancer population. The objective of the present study was to determine the minimum number of monitoring days required for reliable estimates of different PA intensities in cancer survivors when using a six-days protocol. Furthermore, reliability of monitoring days was assessed stratified on sex, age, cancer type, weight status, and educational level. METHODS: Data was obtained from two studies where PA was monitored for seven days using the SenseWear Armband Mini in a total of 984 cancer survivors diagnosed with breast, colorectal or prostate cancer. Participants with ≥22 hours monitor wear-time for six days were included in the reliability analysis (n = 736). The intra-class correlation coefficient (ICC) and the Spearman Brown prophecy formula were used to assess the reliability of different number of monitoring days. RESULTS: For time in light PA, two monitoring days resulted in reliable estimates (ICC >0.80). Participants with BMI ≥25, low-medium education, colorectal cancer, or age ≥60 years required one additional monitoring day. For moderate and moderate-to-vigorous PA, three monitoring days yielded reliable estimates. Participants with BMI ≥25 or breast cancer required one additional monitoring day. Vigorous PA showed the largest within subject variations and reliable estimates were not obtained for the sample as a whole. However, reliable estimates were obtained for breast cancer survivors (4 days), females, BMI ≥30, and age <60 years (6 days). CONCLUSION: Shorter monitoring periods may provide reliable estimates of PA levels in cancer survivors when monitored continuously with a wearable device. This could potentially lower the participant burden and allow for less exclusion of participants not adhering to longer protocols.

Published
2023
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28. Understanding the quality of life (QOL) issues in survivors of cancer: towards the development of an EORTC QOL cancer survivorship questionnaire

Author

van Leeuwen, Marieke, Husson, Olga, Alberti, Paola, Arraras, Juan Ignacio, Chinot, Olivier L., Costantini, Anna, Darlington, Anne-Sophie, Dirven, Linda, Eichler, Martin, Hammerlid, Eva B., Holzner, Bernhard, Johnson, Colin D., Kontogianni, Meropi, Kjær, Trille Kristina, Morag, Ofir, Nolte, Sandra, Nordin, Andrew, Pace, Andrea, Pinto, Monica, Polz, Katja, Ramage, John, Reijneveld, Jaap C., Serpentini, Samantha, Tomaszewski, Krzysztof A., Vassiliou, Vassilios, Verdonck-de Leeuw, Irma M., Vistad, Ingvild, Young, Teresa E., Aaronson, Neil K., van de Poll-Franse, Lonneke V., and on behalf of the EORTC QLG

Published
2018
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30. Gynecological cancer patients’ experiences with eHealth technology and partly nurse-led consultations in a follow-up setting: A qualitative study

Author

Mette Skorstad, Vistad Ingvild, Sveinung Berntsen, and Berit Johannessen

Abstract

Background In the last decade, there has been a move toward personalized care, with a focus on the diversity of survivorship needs after initial cancer treatment. Empowering patients to actively participate in their own health management and survivorship care is encouraged. Consequently, a new follow-up model, called Lifestyle and Empowerment Techniques in Survivorship of Gynecologic Oncology (LETSGO), for gynecological cancer patients was developed and piloted at a Norwegian hospital. In LETSGO, a dedicated nurse replaced the physician in every second follow-up consultation. The nurse provided the patients with self-management techniques following cancer treatment, reinforced with eHealth technology (a specially designed app). Encouragement of behavioral change and evaluation of the late effects of treatment and recurrence symptoms were central aspects of the self-management techniques. The app further encouraged physical activity and positive lifestyle change, helped identify recurrence-related symptoms, and provided reminders on activity goals. This study aimed to investigate the views on alternating nurse-led and physician-led care supported by eHealth technology among participants who piloted the LETSGO intervention. Methods Semi-structured qualitative interviews were conducted to analyze how the participants experienced the LETSGO intervention 6–7 months after the intervention onset. Results All LETSGO pilot study’s participants felt safe and well taken care of. They perceived the nurses as being less busy than doctors, which made it easy for them to bring up any cancer-related challenges. Most participants reported increased empowerment and confidence in being able to recognize symptoms of cancer recurrence. Half of the participants used the app regularly and were motivated to increase their levels of physical activity. Some experienced technical errors with the app. Conclusions Overall, partly nurse-led consultations and eHealth technology were well-received among the participants. An intervention study is required for further evaluation. The reported technical app errors should be resolved and tested prior to eHealth application implementation. This study reports gynecological cancer patients’ perspectives of nurse-led follow-up and the use of eHealth technology, and is expected to be useful in personalized survivorship care planning. Trial registration: ClinicalTrials.gov, NCT03453788. Registration 5 March 2018, https://clinicaltrials.gov/ct2/show/NCT03453788

Published
2022

33. Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire

Author

van Leeuwen, Marieke, Kieffer, Jacobien M., Young, Teresa E., Annunziata, Maria Antonietta, Arndt, Volker, Arraras, Juan Ignacio, Autran, Didier, Hani, Hira Bani, Chakrabarti, Manas, Chinot, Olivier, Cho, Juhee, da Costa Vieira, Rene Aloisio, Darlington, Anne-Sophie, Debruyne, Philip R., Dirven, Linda, Doege, Daniela, Eller, Yannick, Eichler, Martin, Friðriksdóttir, Nanna, de Giorgi, Ugo, Gioulbasanis, Ioannis, Hammerlid, Eva, van Hemelrijck, Mieke, Hermann, Silke, Husson, Olga, Jefford, Michael, Johansen, Christoffer, Johnson, Colin, Kjaer, Trille Kristina, Kontogianni, Meropi, Lagergren, Pernilla, Lidington, Emma, Lisy, Karolina, Morag, Ofir, Nordin, Andy, Al Omari, Amal S. H., Pace, Andrea, de Padova, Silvia, Petranoviæ, Duska, Pinto, Monica, Ramage, John, Rammant, Elke, Reijneveld, Jaap, Serpentini, Samantha, Sodergren, Sam, Vassiliou, Vassilios, Verdonck-de Leeuw, Irma, Vistad, Ingvild, Aaronson, Neil K., van de Poll-Franse, Lonneke V., Neurology, CCA - Cancer Treatment and quality of life, Otolaryngology / Head & Neck Surgery, APH - Mental Health, and APH - Personalized Medicine

Subjects
Oncology, Oncology (nursing), social sciences, humanities
Abstract

Purpose: The purpose of this study is to develop a European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) questionnaire that captures the full range of physical, mental, and social health-related quality of life (HRQOL) issues relevant to disease-free cancer survivors. In this phase III study, we pretested the provisional core questionnaire (QLQ-SURV111) and aimed to identify essential and optional scales. Methods: We pretested the QLQ-SURV111 in 492 cancer survivors from 17 countries with one of 11 cancer diagnoses. We applied the EORTC QLG decision rules and employed factor analysis and item response theory (IRT) analysis to assess and, where necessary, modify the hypothesized questionnaire scales. We calculated correlations between the survivorship scales and the QLQ-C30 summary score and carried out a Delphi survey among healthcare professionals, patient representatives, and cancer researchers to distinguish between essential and optional scales. Results: Fifty-four percent of the sample was male, mean age was 60 years, and, on average, time since completion of treatment was 3.8 years. Eleven items were excluded, resulting in the QLQ-SURV100, with 12 functional and 9 symptom scales, a symptom checklist, 4 single items, and 10 conditional items. The essential survivorship scales consist of 73 items. Conclusions: The QLQ-SURV100 has been developed to assess comprehensively the HRQOL of disease-free cancer survivors. It includes essential and optional scales and will be validated further in an international phase IV study. Implications for Cancer Survivors: The availability of this questionnaire will facilitate a standardized and robust assessment of the HRQOL of disease-free cancer survivors.

Published
2022

34. Longitudinal effects of adjuvant chemotherapy and lymph node staging on patient-reported outcomes in endometrial cancer survivors: a prospective cohort study

Author

Forsse, David, primary, Barbero, Mark L., additional, Werner, Henrica M.J., additional, Woie, Kathrine, additional, Nordskar, Nina, additional, Berge Nilsen, Elisabeth, additional, Ellstrøm Engh, Marie, additional, Vistad, Ingvild, additional, Rege, Astri, additional, Sævik-Lode, Margaret, additional, Andreasen, Stine, additional, Haldorsen, Ingfrid S., additional, Trovik, Jone, additional, and Krakstad, Camilla, additional

Published
2022
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35. Age‐related differences in self‐report and objective measures of cognitive function in older patients prior to chemotherapy

Author

Utne, Inger, primary, Løyland, Borghild, additional, Grov, Ellen Karine, additional, Rasmussen, Hege Lund, additional, Torstveit, Ann Helen, additional, Paul, Steven M., additional, Ritchie, Christine, additional, Lindemann, Kristina, additional, Vistad, Ingvild, additional, Rodríguez‐Aranda, Claudia, additional, and Miaskowski, Christine, additional

Published
2021
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40. Lifestyle and Empowerment Techniques in Survivorship of Gynaecologic Oncology (LETSGO study): a study protocol for a multicentre longitudinal interventional study using mobile health technology and biobanking

Author

Vistad, Ingvild, primary, Skorstad, Mette, additional, Demmelmaier, Ingrid, additional, Småstuen, Milada Cvancarova, additional, Lindemann, Kristina, additional, Wisløff, Torbjørn, additional, van de Poll-Franse, Lonneke V, additional, and Berntsen, Sveinung, additional

Published
2021
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41. Real-life data of niraparib maintenance treatment in patients with recurrent platinum-sensitive ovarian cancer.

Author

Vilming, Bente, primary, Fallås-Dahl, Jørgen, additional, Bentzen, Anne-Gry, additional, Ingebrigtsen, Vibeke Anett, additional, Berge Nilsen, Elisabeth, additional, Vistad, Ingvild, additional, Dørum, Anne, additional, Solheim, Olesya, additional, Bjørge, Line, additional, Aune, Guro, additional, and Lindemann, Kristina, additional

Published
2021
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42. Lifestyle and Empowerment Techniques in Survivorship of Gynaecologic Oncology (LETSGO study) : a study protocol for a multicentre longitudinal interventional study using mobile health technology and biobanking

Author

Vistad, Ingvild, Skorstad, Mette, Demmelmaier, Ingrid, Smastuen, Milada Cvancarova, Lindemann, Kristina, Wisloff, Torbjorn, van de Poll-franse, Lonneke, V, Berntsen, Sveinung, Vistad, Ingvild, Skorstad, Mette, Demmelmaier, Ingrid, Smastuen, Milada Cvancarova, Lindemann, Kristina, Wisloff, Torbjorn, van de Poll-franse, Lonneke, V, and Berntsen, Sveinung

Abstract

Introduction The number of gynaecological cancer survivors is increasing and there is a need for a more sustainable model of follow-up care. Today's follow-up model is time-consuming and patients have reported unmet needs regarding information about their cancer and strategies for managing the consequences of treatment. The main aim of this study is to assess health-related empowerment-in terms of patient education, psychosocial support, and promotion of physical activity-in a new follow-up model by comparing it to standard follow-up in a quasi-randomised study involving intervention hospitals and control hospitals. Methods and analysis At the intervention hospitals, patients will be stratified by risk of recurrence and late effects to either 1 or 3 years' follow-up. Nurses will replace doctors in half of the follow-up visits and focus in particular on patient education, self-management and physical activity. They will provide patients with information and guide them in goal setting and action planning. These measures will be reinforced by a smartphone application for monitoring symptoms and promoting physical activity. At the control hospitals, patients will be included in the standard follow-up programme. All patients will be asked to complete questionnaires at baseline and after 3, 6, 12, 24 and 36 months. Blood samples will be collected for biobanking at 3, 12 and 36 months. The primary outcome is health-related empowerment. Secondary outcomes include health-related quality of life, adherence to physical activity recommendations, time to recurrence, healthcare costs and changes in biomarkers. Changes in these outcomes will be analysed using generalised linear mixed models for repeated measures. Type of hospital (intervention or control), time (measurement point), and possible confounders will be included as fixed factors. Ethics and dissemination The study is approved by the Regional Committee for Medical Research Ethics (2019/11093). Dissemination of findings w

Published
2021
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46. Age‐related differences in self‐report and objective measures of cognitive function in older patients prior to chemotherapy.

Author

Utne, Inger, Løyland, Borghild, Grov, Ellen Karine, Rasmussen, Hege Lund, Torstveit, Ann Helen, Paul, Steven M., Ritchie, Christine, Lindemann, Kristina, Vistad, Ingvild, Rodríguez‐Aranda, Claudia, and Miaskowski, Christine

Subjects
AGE distribution, SELF-evaluation, CANCER chemotherapy, CROSS-sectional method, SYMPTOMS, QUESTIONNAIRES, RESEARCH funding, SOCIODEMOGRAPHIC factors, COGNITIVE testing, MIDDLE age, OLD age
Abstract

Aim: Evaluate for differences in demographic and clinical characteristics and subjective and objective measures of cognitive function (CF) between younger older adults (YOA, 60–69 years) and older adults (OA, ≥70 years). Design: Cross‐sectional. Methods: Older oncology patients (n = 139) completed subjective (Attentional Function Index, European Organization for the Research and Treatment of Cancer Quality of Life Questionnaire (EORTC) CF scale) and objective (Montreal Cognitive Assessment, Trail Making Test (TMT) A & B) measures of CF prior to chemotherapy. Data were analyzed using parametric and nonparametric tests. Results: No differences were found between the two groups for any of the subjective or objective CF measures, except that OA patients had higher TMT B scores. Compared with the general population, OAs had significantly higher EORTC CF scores and YOAs had significantly worse scores for all of the objective tests. Clinically meaningful difference between group differences was found for the TMT B test. [ABSTRACT FROM AUTHOR]

Published
2022
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50. Spiritual Well-being in Patients With Metastatic Colorectal Cancer Receiving Noncurative Chemotherapy

Author

Rohde, Gudrun, Kersten, Christian, Vistad, Ingvild, and Mesel, Terje

Subjects
Adult, Male, Palliative Care, Articles, Middle Aged, Colorectal cancer, Qualitative research, Adaptation, Psychological, Quality of Life, Humans, Female, Spirituality, Neoplasm Metastasis, Spiritual well-being, Colorectal Neoplasms, Aged
Abstract

Background: Spiritual well-being (SWB) is an important quality-of-life dimension for cancer patients in the palliative phase. Therefore, it is important for healthcare professionals to recognize the concept of SWB from the patient’s point of view. A deeper understanding of how patients experience and reflect upon these issues might influence patient care. Objectives: The aim of this study was to explore SWB in colorectal cancer patients receiving chemotherapy in the palliative phase. Methods: We used a qualitative method of in-depth interviews and a hermeneutic editing approach for the analyses and interpretations. Results: Twenty colorectal cancer patients in the palliative phase, aged 34 to 75 years, were included: 12 patients were receiving first-line chemotherapy, and 8 patients were receiving second-line chemotherapy. Through empirical analyses, we identified subthemes according to the SWB dimensions defined by the European Organisation for Research and Treatment of Cancer quality-of-life group. Under the SWB dimension, (i) relationships with self and others, we identified the subthemes: (a) strategies for inner harmony and (b) sharing feelings with significant others. Under the dimension, (ii) existential issues, we identified the subtheme (c) coping with end-of-life thoughts. Under the dimension, (iii) specifically religious and/or spiritual beliefs and practices, we identified the subtheme (d) seeking faith as inner support. Conclusion: Knowledge about cancer patients’ use of different strategies to increase their SWB may help healthcare professionals to guide patients through this vulnerable phase. Implication for Practice: Healthcare professionals need sufficient courage and willingness to share their patients’ thoughts, beliefs, and grief to be able to guide patients toward improving their SWB.

Published
2017

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