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164 results on '"Victorson, David E."'

3. The association of baseline sarcoidosis measurements with 6-month outcomes that are of interest to patients: Results from the On-line Sarcoidosis Assessment Platform Study (OSAP)

Author

Judson, Marc A., Yucel, Recai, Preston, Sara, Chen, Edward S., Culver, Daniel A., Hamzeh, Nabeel, Lower, Elyse E., Sweiss, Nadera J., Valeyre, Dominique, Veltkamp, Marcel, Victorson, David E., Beaumont, Jennifer L., Singh, Noopur, Shivas, Tricha, Vancavage, Rachel, and Baughman, Robert P.

Published
2022
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5. Protocol of a randomised controlled multicentre trial investigating the effectiveness and safety of a wilderness programme on the mental and physical well-being of adolescents and young adults affected by cancer : the WAYA-2 study

Author

Jong, Miek C., Fernee, Carina Ribe, Stenling, Andreas, Lown, E Anne, Berntsen, Sveinung, Victorson, David E., Jong, Mats, Jong, Miek C., Fernee, Carina Ribe, Stenling, Andreas, Lown, E Anne, Berntsen, Sveinung, Victorson, David E., and Jong, Mats

Abstract

INTRODUCTION: Adolescents and young adults (AYAs) affected by cancer are an understudied group. Effective interventions are needed to support coping with the late effects of cancer, its treatment and to promote quality of life. Nature-based interventions may be promising in support of the self-management and health of AYAs affected by cancer. However, randomised controlled studies (RCTs) on the effectiveness of such interventions are lacking. We performed a first pilot RCT (n=42) that showed that it is feasible and safe to conduct such a study. Here, we propose a full-scale RCT to investigate the effectiveness and safety of a wilderness programme on the mental and physical health of AYAs affected by cancer. METHODS AND ANALYSIS: Participants are 150 AYAs affected by cancer, aged 16-39 years, who will be randomised to a wilderness (n=75) or a hotel stay (n=75). The wilderness programme is an 8-day intervention including a 6-day wilderness expedition. This is followed 3 months later by a 4-day intervention including a 2-day basecamp. Activities include hiking, backpacking, kayaking, rock climbing, mindfulness and bush-crafting. The comparison group is an 8-day hotel stay followed by a 4-day hotel stay (interventions include two travel days) at the same hotel after 3 months. Primary outcomes are psychological well-being and nature connectedness up to 1 year after the study start. Secondary outcomes are quality of life, physical activity and safety parameters. ETHICS AND DISSEMINATION: The Swedish Ethical Review Authority approved the study protocol on 27 September 2023 (reference: 2023-05247-01). The recruitment started on 19 February 2024 and the first part is planned to end on 31 December 2027. Study results will be disseminated by means of scientific publications, presentations at conferences, popular articles, interviews, chronicles and books. News items will be spread via social media, websites and newsletters. TRIAL REGISTRATION NUMBER: ISRCTN93856392.

Published
2024
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6. Need for Behavioral Interventions for Young Adults Living with Advanced Cancer in the U.S.

Author

Gudenkauf, Lisa M., Fox, Rina S., Gonzalez, Brian D., Jim, Heather S. L., Salsman, John M., Victorson, David E., Sanford, Stacy D., and Oswald, Laura B.

Subjects
TUMORS, TUMOR classification, BEHAVIOR therapy
Abstract

Simple Summary: Young adults (YAs) aged 18–39 living with advanced cancer face unique and complex challenges, but tailored behavioral interventions remain scarce. This commentary identifies unmet psychosocial needs and offers recommendations for targeted interventions to help improve overall quality of care for the often-marginalized group of YAs living with advanced cancer. The population of young adults (YAs) aged 18–39 living with advanced cancer is growing and faces a compounded set of challenges at the intersection of age and disease. Despite these substantial challenges, behavioral interventions tailored to YAs living with advanced cancer remain scarce. This commentary aims to (1) discuss the unmet psychological, social, and behavioral needs of YAs living with advanced cancer; (2) highlight the paucity of behavioral interventions tailored to this growing population; (3) offer recommendations for the development of behavioral interventions targeting the unique needs of YAs living with advanced cancer; and (4) describe potential far-reaching public health benefits of these targeted behavioral interventions. [ABSTRACT FROM AUTHOR]

Published
2024
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7. Coping strategies and psychosocial resources among women living with metastatic breast cancer: A qualitative study.

Author

Noriega Esquives, Blanca S., Walsh, Emily A., Penedo, Frank J., Thomas, Jessica L., Horner, Fiona S., Torzewski, Joanna B., Gradishar, William J., Victorson, David E., and Moreno, Patricia I.

Subjects
PSYCHOTHERAPY, QUALITATIVE research, FOCUS groups, STRESS management, OPTIMISM, GROUP identity, BREAST tumors, POSITIVE psychology, CANCER, MINDFULNESS, PSYCHOLOGY of women, PSYCHOLOGICAL adaptation, TREATMENT effectiveness, ATTITUDE (Psychology), MEDICAL research, RELIGION, SOCIAL support, INTERPERSONAL relations, PATIENTS' attitudes, AVOIDANCE (Psychology)
Abstract

Objective: Despite more women living with metastatic breast cancer (MBC), this population is underrepresented in cancer survivorship research. Few studies have assessed how women with MBC cope with their cancer experience. This qualitative study describes the coping strategies and psychosocial resources utilized by women living with MBC.Methods: Twenty-two women with MBC participated in four focus groups. Transcripts were analyzed using a general inductive approach. Codes derived from participants' responses were subsequently condensed into themes.Results: We identified 12 coping strategies and psychosocial resources and grouped them into five themes: Behavioral Coping Strategies (i.e. stress management, active coping and planning); Cognitive Coping Strategies and Psychological Resources (i.e. cognitive reappraisal, optimism, mindfulness, positive thinking, and religious coping); Existential Approach-Oriented Coping (i.e. acceptance, values-based living, and identity integration); Avoidance (i.e. avoidant coping); and Interpersonal Resources and Seeking Social Support (i.e. social support).Conclusions: Women living with MBC utilize several engagement and disengagement coping strategies, as well as intrapersonal and interpersonal resources. This study provides useful perspectives of women living with MBC that may inform the development of psychosocial interventions. Further research is needed to assess coping strategies and psychosocial resources across different subgroups of MBC patients and determine their impact on cancer outcomes. [ABSTRACT FROM AUTHOR]

Published
2024
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8. Does the Canadian Occupational Performance Measure (COPM) Capture the Complex Experiences of Cancer Survivors? A Mixed Methods Approach.

Author

Winters, Cassandra A., Marshall, Hilary K., Victorson, David E., Adler, Rachel F., and Magasi, Susan

Subjects
HEALTH self-care, RESEARCH funding, QUALITATIVE research, RESEARCH methodology evaluation, INTERVIEWING, RESEARCH evaluation, CANCER, JUDGMENT sampling, QUANTITATIVE research, DESCRIPTIVE statistics, EXPERIENCE, OCCUPATIONAL therapy, JOB satisfaction, RESEARCH methodology, CANCER patient psychology, MEDICAL needs assessment, INDUSTRIAL hygiene, JOB performance, EVALUATION
Abstract

Occupational therapy practitioners are uniquely positioned to address the needs of cancer survivors. This study aimed to understand the complex needs of survivors using The Canadian Occupational Performance Measure and in-depth interviewing. A convergent, mixed methods approach was utilized with a purposive sample of 30 cancer survivors. The results indicate that while the COPM can be a practical tool to address basic occupational performance problems, the in-depth interviews exposed these challenges are intricately connected to identity, relationships, and roles. Implications for occupational therapy practitioners include a critical approach to evaluation and interventions to capture the complex needs of survivors. [ABSTRACT FROM AUTHOR]

Published
2024
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9. Effects of mindful physical activity on perceived exercise exertion and other physiological and psychological responses: results from a within-subjects, counter-balanced study

Author

Solk, Payton, primary, Auster-Gussman, Lisa A., additional, Torre, Emily, additional, Welch, Whitney A., additional, Murphy, Karly, additional, Starikovsky, Julia, additional, Reading, Jean M., additional, Victorson, David E., additional, and Phillips, Siobhan M., additional

Published
2023
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13. Social isolation and social connectedness among young adult cancer survivors: A systematic review

Author

Fox, Rina S., primary, Armstrong, Grace E., additional, Gaumond, Julia S., additional, Vigoureux, Taylor F. D., additional, Miller, Corinne H., additional, Sanford, Stacy D., additional, Salsman, John M., additional, Katsanis, Emmanuel, additional, Badger, Terry A., additional, Reed, Damon R., additional, Gonzalez, Brian D., additional, Jim, Heather S. L., additional, Warner, Echo L., additional, Victorson, David E., additional, and Oswald, Laura B., additional

Published
2023
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15. Effects of Acute Aerobic Exercise, Mindfulness Training and Combined Mindfulness and Exercise on Cognitive Performance

Author

Torre, Emily, primary, Auster-Gussman, Lisa A., additional, Welch, Whitney, additional, Solk, Payton, additional, Murphy, Karly, additional, Whitaker, Madelyn, additional, Mishory, Abby, additional, Starikovsky, Julia, additional, Cullather, Erin, additional, Hernandez, Joanna, additional, Victorson, David E., additional, and Phillips, Siobhan M., additional

Published
2023
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21. Identifying a core outcome set for pulmonary sarcoidosis research - the Foundation for Sarcoidosis Research - Sarcoidosis Clinical OUtcomes Taskforce (SCOUT)

Author

Longziekten, Infection & Immunity, Harman, Nicola L, Gorst, Sarah L, Williamson, Paula R, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E, Walton, Marc K, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C, Culver, Daniel A, Longziekten, Infection & Immunity, Harman, Nicola L, Gorst, Sarah L, Williamson, Paula R, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E, Walton, Marc K, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C, and Culver, Daniel A

Published
2022

22. Financial burden for caregivers of adolescents and young adults with cancer

Author

Nightingale, Chandylen L., primary, Canzona, Mollie R., additional, Danhauer, Suzanne C., additional, Reeve, Bryce B., additional, Howard, Dianna S., additional, Tucker‐Seeley, Reginald D., additional, Golden, Shannon L. S., additional, Little‐Greene, Denisha, additional, Roth, Michael E., additional, Victorson, David E., additional, and Salsman, John M., additional

Published
2022
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24. Scout – sarcoidosis outcomes taskforce. A systematic review of outcomes to inform the development of a core outcome set for pulmonary sarcoidosis

Author

Harman, Nicola L, Gorst, Sarah L, Williamson, Paula R, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junks, Heidi, Kampstre, Nynke A, Sullivan, Eugene J, Victorson, David E, Walton, Marc, AL-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C, and Culver, Daniel A

Subjects
Systematic review, Core outcome set, Pulmonary sarcoidosis, Review, Outcomes
Abstract

Background: Clinical trials evaluating different management strategies for pulmonary sarcoidosis may measure different outcomes. This heterogeneity in outcomes can lead to waste in research due to the inability to compare and combine data. Core outcome sets (COS) have the potential to address this issue and here we describe a systematic review of outcomes as the first step in the development of a COS for pulmonary sarcoidosis research. Methods: A search of clinical trial registries for phase II, III and IV trials of pulmonary sarcoidosis was undertaken along with a rapid review of the patient perspective literature. Each study was screened for eligibility and outcomes extracted verbatim from the registry entry or publication then reviewed, grouped and categorised using the COMET taxonomy. Results: 36 trial registry entries and 6 studies on patients’ perspective of pulmonary sarcoidosis were included reporting 56 and 82 unique outcomes respectively across 23 domains. The most frequently reported outcome domain was “respiratory, thoracic and mediastinal outcomes”. However, the patients’ perspective literature identified outcomes in the “personal circumstances” and “societal/carer burden” domains that were not reported in any of the included trial registrations. Conclusions: Using both clinical trial registry data and published literature on patients’ perspective has allowed rapid review of outcomes measured and reported in pulmonary sarcoidosis research. The use of multiple sources has led to the development of a comprehensive list of outcomes that represents the first step in the development of a COS for use in future pulmonary sarcoidosis research.

Published
2021

26. Scout - sarcoidosis outcomes taskforce. A systematic review of outcomes to inform the development of a core outcome set for pulmonary sarcoidosis

Author

Longziekten, Infection & Immunity, Harman, Nicola L, Gorst, Sarah L, Williamson, Paula R, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E, Walton, Marc, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C, Culver, Daniel A, Longziekten, Infection & Immunity, Harman, Nicola L, Gorst, Sarah L, Williamson, Paula R, Barnathan, Elliot S, Baughman, Robert P, Judson, Marc A, Junk, Heidi, Kampstra, Nynke A, Sullivan, Eugene J, Victorson, David E, Walton, Marc, Al-Hakim, Tamara, Nabulsi, Hana, Singh, Noopur, Grutters, Jan C, and Culver, Daniel A

Published
2021

35. Mindfulness in migraine: A narrative review

Author

Wells, Rebecca Erwin, primary, Seng, Elizabeth K., additional, Edwards, Robert R., additional, Victorson, David E., additional, Pierce, Charles R., additional, Rosenberg, Lauren, additional, Napadow, Vitaly, additional, and Schuman-Olivier, Zev, additional

Published
2020
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37. Supplemental_Table_2 – Supplemental material for Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions

Author

Banas, Jennifer R., Magasi, Susan, The, Kim, and Victorson, David E.

Subjects
111099 Nursing not elsewhere classified, 111799 Public Health and Health Services not elsewhere classified, 160807 Sociological Methodology and Research Methods, FOS: Health sciences, FOS: Sociology
Abstract

Supplemental material, Supplemental_Table_2 for Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions by Jennifer R. Banas, Susan Magasi, Kim The and David E. Victorson in Qualitative Health Research

Published
2019
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38. QHR833361_Supplementary_Material_REV2 – Supplemental material for Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions

Author

Banas, Jennifer R., Magasi, Susan, The, Kim, and Victorson, David E.

Subjects
111099 Nursing not elsewhere classified, 111799 Public Health and Health Services not elsewhere classified, 160807 Sociological Methodology and Research Methods, FOS: Health sciences, FOS: Sociology
Abstract

Supplemental material, QHR833361_Supplementary_Material_REV2 for Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions by Jennifer R. Banas, Susan Magasi, Kim The and David E. Victorson in Qualitative Health Research

Published
2019
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41. Factors Affecting Quality of Life at Different Intervals After Treatment of Localized Prostate Cancer: Unique Influence of Treatment Decision Making Satisfaction, Personality and Sexual Functioning

Author

Victorson, David E., primary, Schuette, Stephanie, additional, Schalet, Benjamin D., additional, Kundu, Shilajit D., additional, Helfand, Brian T., additional, Novakovic, Kristian, additional, Sufrin, Nathaniel, additional, McGuire, Michael, additional, and Brendler, Charles, additional

Published
2016
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44. Fertility Preservation Preferences and Perspectives Among Adult Male Survivors of Pediatric Cancer and Their Parents

Author

Stein, Daniel M., primary, Victorson, David E., additional, Choy, Jeremy T., additional, Waimey, Kate E., additional, Pearman, Timothy P., additional, Smith, Kristin, additional, Dreyfuss, Justin, additional, Kinahan, Karen E., additional, Sadhwani, Divya, additional, Woodruff, Teresa K., additional, and Brannigan, Robert E., additional

Published
2014
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48. Institutional Alliances to Reduce Cancer Disparities in Chicago.

Author

Simon, Melissa A., Malin, Emily L., Hitsman, Brian L., Ciecierski, Christina C., Victorson, David E., Banas, Jennifer R., Stuart, Moira, Luedke, Tracy, and Cella, David

Subjects
TUMOR prevention, TUMOR risk factors, UNIVERSITIES & colleges, CANCER patients, CANCER treatment, COLLEGE students, COMMUNICATION, COMMUNITIES, CULTURE, DEANS (Education), EXECUTIVES, FOCUS groups, HEALTH behavior, HEALTH education, HISPANIC Americans, INTERPROFESSIONAL relations, EVALUATION of medical care, MINORITIES, PUBLIC relations, RESEARCH funding, PILOT projects, SPECIALTY hospitals, HEALTH equity, RESEARCH personnel, ORGANIZATIONAL goals
Abstract

A partnership formed between Northeastern Illinois University (NEIU) and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University sought to address well- documented cancer health disparities in Chicago by developing a collaborative research, training, and educational infrastructure between a minority- serving institution and a National Cancer Institute designated comprehensive cancer center. With a critical examination of partnership documentation and outputs, we describe the partnership's community- engaged approaches, challenges, and lessons learned. Northeastern Illinois University and the Lurie Cancer Center engaged in a yearlong partnership- building phase, identified interdisciplinary research teams, formed a governance structure, and identified collective aims. Partnership outcomes included funded inter- institutional research projects, new curriculum, and an annual research trainee program. Significant challenges faced included uncertain fiscal climate, widespread turnover, and dissimilar institutional demands. Lessons learned from this minority serving institution and comprehensive cancer center partnership may be useful for bridging distinct academic communities in the pursuit of ameliorating health disparities. [ABSTRACT FROM AUTHOR]

Published
2016
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