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1. Development of the global inflammatory bowel disease visualization of epidemiology studies in the 21st century (GIVES-21)

Author

Mak, Joyce W. Y., Sun, Yang, Limsrivilai, Julajak, Abdullah, Murdani, Kaibullayeva, Jamilya, Balderramo, Domingo, Vergara, Beatriz Iade, Paudel, Mukesh Sharma, Banerjee, Rupa, Hilmi, Ida, Ali, Raja Affendi Raja, Wei, Shu Chen, Ng, Ka Kei, Altuwaijri, Mansour, Kelly, Paul, Yamamoto-Furusho, Jesus K., Kotze, Paulo Gustavo, Ahuja, Vineet, Chong, Vui Heng, Dao, Hang Viet, Abbey, Yvonne, Ching, Jessica Y. L., Ho, Agnes, Chan, Alicia K. W., Bernstein, Charles N., Gearry, Richard B., Abreu, Maria, Rubin, David T., Dotan, Iris, Hracs, Lindsay, Kaplan, Gilaad G., and Ng, Siew C.

Published
2023
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2. Global Hospitalization Trends for Crohn’s Disease and Ulcerative Colitis in the 21st Century: A Systematic Review With Temporal Analyses

Author

Buie, Michael J., Quan, Joshua, Windsor, Joseph W., Coward, Stephanie, Hansen, Tawnya M., King, James A., Kotze, Paulo G., Gearry, Richard B., Ng, Siew C., Mak, Joyce W.Y., Abreu, Maria T., Rubin, David T., Bernstein, Charles N., Banerjee, Rupa, Yamamoto-Furusho, Jesus K., Panaccione, Remo, Seow, Cynthia H., Ma, Christopher, Underwood, Fox E., Ahuja, Vineet, Panaccione, Nicola, Shaheen, Abdel-Aziz, Holroyd-Leduc, Jayna, Kaplan, Gilaad G., Balderramo, Domingo, Chong, Vui Heng, Juliao-Baños, Fabián, Dutta, Usha, Simadibrata, Marcellus, Kaibullayeva, Jamilya, Sun, Yang, Hilmi, Ida, Raja Ali, Raja Affendi, Paudel, Mukesh Sharma, Altuwaijri, Mansour, Hartono, Juanda Leo, Wei, Shu Chen, Limsrivilai, Julajak, El Ouali, Sara, Vergara, Beatriz Iade, Dao, Viet Hang, Kelly, Paul, Hodges, Phoebe, Miao, Yinglei, and Li, Maojuan

Published
2023
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3. MODELING THE TRANSITION TO THE FOURTH EPIDEMIOLOGIC STAGE OF INFLAMMATORY BOWEL DISEASE: PREVALENCE EQUILIBRIUM

Author

Windsor, Joseph, primary, Hracs, Lindsay, additional, Cummings, Michael, additional, Gorospe, Julia, additional, Buie, Michael, additional, Quan, Joshua, additional, Markovinovic, Ante, additional, Caplan, Lea, additional, Goddard, Quinn, additional, Williamson, Tyler, additional, Abbey, Yvonne, additional, Abreu, Maria, additional, Ali, Raja, additional, Abdullah, Murdani, additional, Altuwaijri, Mansour, additional, Ahuja, Vineet, additional, Balderramo, Domingo, additional, Banerjee, Rupa, additional, Benchimol, Eric, additional, Bernstein, Charles, additional, Brunet-Mas, Eduard, additional, Burisch, Johan, additional, Dotan, Iris, additional, Dutta, Usha, additional, El Ouali, Sara, additional, Forbes, Angela, additional, Gearry, Richard, additional, Dao, Viet Hang, additional, Hartono, Juanda, additional, Hilmi, Ida, additional, Julian-Banos, Fabian, additional, Kaibullayeva, Jamilya, additional, Kelly, Paul, additional, Kotze, Paulo, additional, Lakatos, Peter, additional, Lees, Charlie, additional, Limsrivilai, Julajak, additional, Loftus, Edward, additional, Ludvigsson, Jonas, additional, Mak, Joyce, additional, Ng, Ka Kei, additional, Olen, Ola, additional, Panaccione, Remo, additional, Paudel, Mukesh, additional, Quaresma, Abel, additional, Rubin, David, additional, Simadibrata, Marcellus, additional, Sun, Yang, additional, Suzuki, Hidekazu, additional, Toro, Martin, additional, Turner, Dan, additional, Vergara, Beatriz Iade, additional, Wei, Shu-Chen, additional, Yamamoto-Furusho, Jesus, additional, Yang, Kuk-Kyun, additional, Ng, Siew, additional, Coward, Stephanie, additional, and Kaplan, Gilaad, additional

Published
2024
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4. Latin America consensus statement inflammatory bowel disease: importance of timely access to diagnosis and treatment.

Author

Steinwurz, Flavio, Machado, Marta Brenner, Veitia, Guillermo, De Paula, Juan Andres, Bautista Martinez, Socrates, Vergara, Beatriz Iade, Capdevielle, Beatriz, Martinez Silva, Francisca Ana, and Ramirez, Ana Luz

Subjects
INFLAMMATORY bowel diseases, CROHN'S disease, ULCERATIVE colitis, DIAGNOSIS, LITERATURE reviews
Abstract

Background: Inflammatory bowel diseases (IBDs) are chronic conditions that negatively interferes with the quality of life of the patients, on a physical, emotional, and social level. Its symptoms can vary including diarrhea, bleeding, abdominal pain, fever, and weight loss, depending on the type and location and severity of the disease. Despite evolving treatment, they do not always achieve control of the symptoms, so between 23% and 45% of people with idiopathic chronic ulcerative colitis, and up to 75% of those with Crohn's disease, eventually, will need surgery. Objective: The increase in its incidence in Latin America has promoted a renewed interest on the part of the medical and scientific community in standardizing and unifying criteria for the proper diagnosis and management of the disease, which is part of the current discussions of various events; however, this interest has not yet been reflected in policies and initiatives by governments to address the disease. We decided to develop a consensus meeting in order to elucidate the actual situation of IBD care in our region. Design: The methodology employed to build the consensus document derived from a review of literature, evidence, and policies on IBD, followed by a process of validation and feedback with a group of 10 experts in the field. Methods: Nine experts from different countries in Latin America were reunited in web meetings on 2 days and voted on topics derived from the consensus document. A full agreement with 100% approval was needed, so topics were discussed to reach the consensus otherwise were removed. Results: There is still a lack of information about IBD in Latin America, therefore IBD continues to be an 'invisible' disease and is little recognized by decision-makers. Conclusion: This document describes the current situation of IBDs in the Latin American region, highlighting the main barriers and challenges in timely access to diagnosis and treatment, in order to demonstrate the need to promote the development and implementation of policies, in order to improve the quality of care of patients with IBD. [ABSTRACT FROM AUTHOR]

Published
2023
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5. Additional file 1 of Development of the global inflammatory bowel disease visualization of epidemiology studies in the 21st century (GIVES-21)

Author

Mak, Joyce W. Y., Sun, Yang, Limsrivilai, Julajak, Abdullah, Murdani, Kaibullayeva, Jamilya, Balderramo, Domingo, Vergara, Beatriz Iade, Paudel, Mukesh Sharma, Banerjee, Rupa, Hilmi, Ida, Ali, Raja Affendi Raja, Wei, Shu Chen, Ng, Ka Kei, Altuwaijri, Mansour, Kelly, Paul, Yamamoto-Furusho, Jesus K., Kotze, Paulo Gustavo, Ahuja, Vineet, Chong, Vui Heng, Dao, Hang Viet, Abbey, Yvonne, Ching, Jessica Y. L., Ho, Agnes, Chan, Alicia K. W., Bernstein, Charles N., Gearry, Richard B., Abreu, Maria, Rubin, David T., Dotan, Iris, Hracs, Lindsay, Kaplan, Gilaad G., and Ng, Siew C.

Abstract

Additional file 1: Appendix A. GIVS-21 Environmental Questionnaire (GIVES-EN). Appendix B. GIVES-21 Current Additive Intake. Appendix C. Dietary Screener.

Published
2023
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6. Global Hospitalization Trends for Crohn’s Disease and Ulcerative Colitis in the 21st Century: A Systematic Review With Temporal Analyses

Author

Buie, Michael J., primary, Quan, Joshua, additional, Windsor, Joseph W., additional, Coward, Stephanie, additional, Hansen, Tawnya M., additional, King, James A., additional, Kotze, Paulo G., additional, Gearry, Richard B., additional, Ng, Siew C., additional, Mak, Joyce W.Y., additional, Abreu, Maria T., additional, Rubin, David T., additional, Bernstein, Charles N., additional, Banerjee, Rupa, additional, Yamamoto-Furusho, Jesus K., additional, Panaccione, Remo, additional, Seow, Cynthia H., additional, Ma, Christopher, additional, Underwood, Fox E., additional, Ahuja, Vineet, additional, Panaccione, Nicola, additional, Shaheen, Abdel-Aziz, additional, Holroyd-Leduc, Jayna, additional, Kaplan, Gilaad G., additional, Balderramo, Domingo, additional, Chong, Vui Heng, additional, Juliao-Baños, Fabián, additional, Dutta, Usha, additional, Simadibrata, Marcellus, additional, Kaibullayeva, Jamilya, additional, Sun, Yang, additional, Hilmi, Ida, additional, Raja Ali, Raja Affendi, additional, Paudel, Mukesh Sharma, additional, Altuwaijri, Mansour, additional, Hartono, Juanda Leo, additional, Wei, Shu Chen, additional, Limsrivilai, Julajak, additional, El Ouali, Sara, additional, Vergara, Beatriz Iade, additional, Dao, Viet Hang, additional, Kelly, Paul, additional, Hodges, Phoebe, additional, Miao, Yinglei, additional, and Li, Maojuan, additional

Published
2022
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7. Development of the global inflammatory bowel disease visualization of epidemiology studies in the 21st century (GIVES-21).

Author

Mak, Joyce W. Y., Sun, Yang, Limsrivilai, Julajak, Abdullah, Murdani, Kaibullayeva, Jamilya, Balderramo, Domingo, Vergara, Beatriz Iade, Paudel, Mukesh Sharma, Banerjee, Rupa, Hilmi, Ida, Ali, Raja Affendi Raja, Wei, Shu Chen, Ng, Ka Kei, Altuwaijri, Mansour, Kelly, Paul, Yamamoto-Furusho, Jesus K., Kotze, Paulo Gustavo, Ahuja, Vineet, Chong, Vui Heng, and Dao, Hang Viet

Subjects
INFLAMMATORY bowel diseases, DEVELOPING countries, DISEASE risk factors, CROHN'S disease, EPIDEMIOLOGY
Abstract

Background: There is a rapid increase in the incidence of inflammatory bowel diseases (IBD) in newly industrialized countries, yet epidemiological data is incomplete. We herein report the methodology adopted to study the incidence of IBD in newly industrialized countries and to evaluate the effect of environmental factors including diet on IBD development. Methods: Global IBD Visualization of Epidemiology Studies in the 21st Century (GIVES-21) is a population-based cohort of newly diagnosed persons with Crohn's disease and ulcerative colitis in Asia, Africa, and Latin America to be followed prospectively for 12 months. New cases were ascertained from multiple sources and were entered into a secured online system. Cases were confirmed using standard diagnostic criteria. In addition, endoscopy, pathology and pharmacy records from each local site were searched to ensure completeness of case capture. Validated environmental and dietary questionnaires were used to determine exposure in incident cases prior to diagnosis. Results: Through November 2022, 106 hospitals from 24 regions (16 Asia; 6 Latin America; 2 Africa) have joined the GIVES-21 Consortium. To date, over 290 incident cases have been reported. All patients have demographic data, clinical disease characteristics, and disease course data including healthcare utilization, medication history and environmental and dietary exposures data collected. We have established a comprehensive platform and infrastructure required to examine disease incidence, risk factors and disease course of IBD in the real-world setting. Conclusions: The GIVES-21 consortium offers a unique opportunity to investigate the epidemiology of IBD and explores new clinical research questions on the association between environmental and dietary factors and IBD development in newly industrialized countries. [ABSTRACT FROM AUTHOR]

Published
2023
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8. TRENDS IN INFLAMMATORY BOWEL DISEASE INCIDENCE AND PREVALENCE ACROSS EPIDEMIOLOGIC STAGES: A GLOBAL SYSTEMATIC REVIEW WITH META-ANALYSIS

Author

Gorospe, Julia, Windsor, Joseph, Hracs, Lindsay, Coward, Stephanie, Buie, Michael, Quan, Joshua, Caplan, Lea, Markovinovic, Ante, Cummings, Michael, Goddard, Quinn, Williamson, Tyler, Abbey, Yvonne, Abreu, Maria, Ali, Raja, Abdullah, Murdani, Altuwaijri, Mansour, Ahuja, Vineet, Balderramo, Domingo, Banerjee, Rupa, Benchimol, Eric, Bernstein, Charles, Brunet-Mas, Eduard, Burisch, Johan, Chong, Vui Heng, Dotan, Iris, Dutta, Usha, El Ouali, Sara, Forbes, Angela, Forss, Anders, Gearry, Richard, Dao, Viet Hang, Hartono, Juanda, Hilmi, Ida, Julian-Banos, Fabian, Kaibullayeva, Jamilya, Kelly, Paul, Kotze, Paulo, Lakatos, Peter, Lees, Charlie, Limsrivilai, Julajak, Loftus, Edward, Ludvigsson, Jonas, Mak, Joyce, Ng, Ka Kei, Olen, Ola, Panaccione, Remo, Paudel, Mukesh, Quaresma, Abel, Rubin, David, Simadibrata, Marcellus, Sun, Yang, Suzuki, Hidekazu, Toro, Martin, Turner, Dan, Vergara, Beatriz Iade, Wei, Shu-Chen, Yamamoto-Furusho, Jesus, Yang, Kuk-Kyun, Ng, Siew, and Kaplan, Gilaad

Published
2024
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9. MODELING THE TRANSITION TO THE FOURTH EPIDEMIOLOGIC STAGE OF INFLAMMATORY BOWEL DISEASE: PREVALENCE EQUILIBRIUM

Author

Windsor, Joseph, Hracs, Lindsay, Cummings, Michael, Gorospe, Julia, Buie, Michael, Quan, Joshua, Markovinovic, Ante, Caplan, Lea, Goddard, Quinn, Williamson, Tyler, Abbey, Yvonne, Abreu, Maria, Ali, Raja, Abdullah, Murdani, Altuwaijri, Mansour, Ahuja, Vineet, Balderramo, Domingo, Banerjee, Rupa, Benchimol, Eric, Bernstein, Charles, Brunet-Mas, Eduard, Burisch, Johan, Dotan, Iris, Dutta, Usha, El Ouali, Sara, Forbes, Angela, Gearry, Richard, Dao, Viet Hang, Hartono, Juanda, Hilmi, Ida, Julian-Banos, Fabian, Kaibullayeva, Jamilya, Kelly, Paul, Kotze, Paulo, Lakatos, Peter, Lees, Charlie, Limsrivilai, Julajak, Loftus, Edward, Ludvigsson, Jonas, Mak, Joyce, Ng, Ka Kei, Olen, Ola, Panaccione, Remo, Paudel, Mukesh, Quaresma, Abel, Rubin, David, Simadibrata, Marcellus, Sun, Yang, Suzuki, Hidekazu, Toro, Martin, Turner, Dan, Vergara, Beatriz Iade, Wei, Shu-Chen, Yamamoto-Furusho, Jesus, Yang, Kuk-Kyun, Ng, Siew, Coward, Stephanie, and Kaplan, Gilaad

Published
2024
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10. MACHINE LEARNING CLASSIFICATION OF THE EPIDEMIOLOGIC STAGES OF INFLAMMATORY BOWEL DISEASE ACROSS GEOGRAPHY AND TIME

Author

Hracs, Lindsay, Windsor, Joseph, Gorospe, Julia, Buie, Michael, Quan, Joshua, Caplan, Lea, Markovinovic, Ante, Cummings, Michael, Goddard, Quinn, Williamson, Tyler, Abbey, Yvonne, Abreu, Maria, Ali, Raja, Abdullah, Murdani, Altuwaijri, Mansour, Ahuja, Vineet, Balderramo, Domingo, Banerjee, Rupa, Benchimol, Eric, Bernstein, Charles, Brunet-Mas, Eduard, Burisch, Johan, Chong, Vui Heng, Dotan, Iris, Dutta, Usha, El Ouali, Sara, Forbes, Angela, Forss, Anders, Gearry, Richard, Dao, Viet Hang, Hartono, Juanda, Hilmi, Ida, Julian-Banos, Fabian, Kaibullayeva, Jamilya, Kelly, Paul, Kotze, Paulo, Lakatos, Peter, Lees, Charlie, Limsrivilai, Julajak, Loftus, Edward, Ludvigsson, Jonas, Mak, Joyce, Ng, Ka Kei, Olen, Ola, Panaccione, Remo, Paudel, Mukesh, Quaresma, Abel, Rubin, David, Simadibrata, Marcellus, Sun, Yang, Suzuki, Hidekazu, Toro, Martin, Turner, Dan, Vergara, Beatriz Iade, Wei, Shu-Chen, Yamamoto-Furusho, Jesus, Yang, Kuk-Kyun, Ng, Siew, Coward, Stephanie, and Kaplan, Gilaad

Published
2024
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