Search

This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID ( p  < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both p  < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID ( p  < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.