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3. Perspectives of women living with type 1 diabetes regarding preconception and antenatal care: A qualitative evidence synthesis.

Author

Toledo‐Chavarri, Ana, Delgado, Janet, and Rodríguez‐Martín, Beatriz

Subjects
*MEDICAL information storage & retrieval systems, *HEALTH services accessibility, *SYSTEMATIC reviews, *GLYCEMIC control, *TYPE 1 diabetes, *ATTITUDES toward illness, *CONTINUUM of care, *PREGNANCY outcomes, *PREGNANCY complications, *PRENATAL care, *MEDLINE, *THEMATIC analysis, *WOMEN'S health, *PRECONCEPTION care, *DISEASE risk factors
Abstract

Introduction: Pregnant women with type 1 diabetes may have an increased risk of complications for both the baby and themselves. Educational programmes, preconception planning, strict glycemic control and comprehensive medical care are some of the antenatal interventions that have been proposed to improve the outcomes of pregnant women with type 1 diabetes. While some evidence‐based recommendations about antenatal care are included in clinical practice guidelines (CPGs), the views, and experiences of women with type 1 diabetes about these interventions are not well known. Aim: To understand and synthesize the perceptions of women with type 1 diabetes about the interventions before pregnancy. Method: A qualitative evidence synthesis (QES) was carried out with a framework analysis guided by the Cochrane Qualitative and Implementation Methods Group approach. Three online databases (Medline, Embase and Web of Science) were searched. We included qualitative articles that were published from 2011 to 2021 and which were available in English or Spanish. Findings: Ten references met the inclusion criteria of the study and were included. Three main themes were identified: (a) acceptability of antenatal care, (b) feasibility and implementation consideration and (c) equity and accessibility difficulties. Conclusion: Continuity of care, coordination between health professionals and services, and a more holistic approach are the key aspects women say need to be considered for more acceptable, feasible and equitable preconception and antenatal care. Patient or Public Contribution: This QES was carried out as part of the CPGs on diabetes mellitus type 1, carried out as part of the Spanish Network of Health Technology Assessment Agencies. In this CPG, the representatives of the patient associations are Francisco Javier Darias Yanes, from the Association for Diabetes of Tenerife, who has participated in all the phases of the CPG; Aureliano Ruiz Salmón and Julián Antonio González Hernández (representatives of the Spanish Diabetes Federation (FEDE) who have participated as collaborator and external reviewer, respectively. [ABSTRACT FROM AUTHOR]

Published
2024
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4. Patient Empowerment and Involvement in Research

Author

Perestelo-Pérez, Lilisbeth, Rivero-Santana, Amado, Abt-Sacks, Analia, Toledo-Chavarri, Ana, Brito, Noe, Álvarez-Pérez, Yolanda, González-Hernández, Nerea, Serrano-Aguilar, Pedro, COHEN, IRUN R., Series editor, LAJTHA, ABEL, Series editor, LAMBRIS, JOHN D., Series editor, PAOLETTI, RODOLFO, Series editor, REZAEI, NIMA, Series editor, Posada de la Paz, Manuel, editor, Taruscio, Domenica, editor, and Groft, Stephen C., editor

Published
2017
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8. IC-Health Project: Development of MOOCs to Promote Digital Health Literacy: First Results and Future Challenges

Author

Perestelo-Perez, Lilisbeth, Torres-Castaño, Alezandra, González-González, Carina, Alvarez-Perez, Yolanda, Toledo-Chavarri, Ana, Wagner, Ana, Perello, Michelle, Broucke, Stephan Van Der, Díaz-Meneses, Gonzalo, Piccini, Barbara, Rivero-Santana, Amado, Serrano-Aguilar, Pedro, Consortium, on behalf of the IC Project, and UCL - SSH/IPSY - Psychological Sciences Research Institute

Subjects
020205 medical informatics, Monitoring, MOOCs, media_common.quotation_subject, Geography, Planning and Development, Population, lcsh:TJ807-830, shared decision making, lcsh:Renewable energy sources, 02 engineering and technology, Management, Monitoring, Policy and Law, Literacy, Digital media, 03 medical and health sciences, 0302 clinical medicine, Community of practice, 0202 electrical engineering, electronic engineering, information engineering, eHealth, open education, 030212 general & internal medicine, Sociology, Renewable Energy, education, lcsh:Environmental sciences, media_common, lcsh:GE1-350, Planning and Development, Medical education, education.field_of_study, Sustainability and the Environment, Geography, Policy and Law, Renewable Energy, Sustainability and the Environment, business.industry, lcsh:Environmental effects of industries and plants, digital health literacy, Focus group, Digital health, Management, lcsh:TD194-195, Facilitator, business, co-creation
Abstract

Digital health literacy (DHL) is the ability to search, understand and evaluate information from digital media and apply that knowledge to solve health problems. However, currently many citizens have not developed these skills, and this compromises not only the self-management of their health, but the possibility that health services are socially sustainable. The objective of this article was to present the objectives, activities and results of the IC-Health project whose objective was to develop a series of massive open online courses (MOOCs) to improve the DHL skills of European citizens. An exploratory report on DHL’s current evidence was developed. Furthermore, a survey, focus groups and group interviews were conducted to determine DHL levels and the needs of population cohorts (children, adolescents, pregnant and lactating women, the elderly, and people affected by type 1 and type 2 diabetes). A participation strategy with end users was designed through a community of practice for the creation of MOOCs with the seven European countries that participated in the consortium. Thirty-five MOOCs were developed in eight different languages and a descriptive and exploratory assessment of MOOCs was conducted with new participants. This first evaluation indicated that MOOCs can be an effective educational resource for DHL and a facilitator of shared decision-making processes. The process of co-creation of MOOCs, the components, the challenges and the opportunities identified in this European project could be useful for other developers of MOOCs who want to co-create interventions with beneficiaries in similar settings. Further longer-term actions are still needed to improve citizens’ DHL.

Published
2020
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10. Additional file 3: of Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana, Orrego, Carola, Lilisbeth Perestelo-Perez, Bermejo-Caja, Carlos, Mora, Nuria, Koatz, Débora, Ballester, Marta, Tasmania Del Pino, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco, Ramírez-Puerta, Ana, Canellas-Criado, Yolanda, Rey-Granado, Yolanda Del, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, Vázquez, José, and Aguirre, Armando

Subjects
humanities
Abstract

Informed consent for patients. (DOC 90 kb)

Published
2017
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11. Additional file 4: of Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana, Orrego, Carola, Lilisbeth Perestelo-Perez, Bermejo-Caja, Carlos, Mora, Nuria, Koatz, Débora, Ballester, Marta, Tasmania Del Pino, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco, Ramírez-Puerta, Ana, Canellas-Criado, Yolanda, Rey-Granado, Yolanda Del, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, Vázquez, José, and Aguirre, Armando

Abstract

Patient-Practitioner Orientation Scale (PPOS) questionnaire. (DOCX 16 kb)

Published
2017
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12. Additional file 5: of Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana, Orrego, Carola, Lilisbeth Perestelo-Perez, Bermejo-Caja, Carlos, Mora, Nuria, Koatz, Débora, Ballester, Marta, Tasmania Del Pino, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco, Ramírez-Puerta, Ana, Canellas-Criado, Yolanda, Rey-Granado, Yolanda Del, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, Vázquez, José, and Aguirre, Armando

Subjects
stomatognathic system, embryonic structures, parasitic diseases, reproductive and urinary physiology
Abstract

Patient Activation Measure (PAM) questionnaire. (DOCX 16 kb)

Published
2017
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13. Additional file 1: of Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana, Orrego, Carola, Lilisbeth Perestelo-Perez, Bermejo-Caja, Carlos, Mora, Nuria, Koatz, Débora, Ballester, Marta, Tasmania Del Pino, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco, Ramírez-Puerta, Ana, Canellas-Criado, Yolanda, Rey-Granado, Yolanda Del, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, Vázquez, José, and Aguirre, Armando

Abstract

SPIRIT (Standard Protocol Items: Recommendations for Interventional Trials) checklist. (DOC 121 kb)

Published
2017
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14. Additional file 2: of Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana, Orrego, Carola, Lilisbeth Perestelo-Perez, Bermejo-Caja, Carlos, Mora, Nuria, Koatz, Débora, Ballester, Marta, Tasmania Del Pino, Pérez-Ramos, Jeannet, Toledo-Chavarri, Ana, Robles, Noemí, Pérez-Rivas, Francisco, Ramírez-Puerta, Ana, Canellas-Criado, Yolanda, Rey-Granado, Yolanda Del, Muñoz-Balsa, Marcos José, Becerril-Rojas, Beatriz, Rodríguez-Morales, David, Sánchez-Perruca, Luis, Vázquez, José, and Aguirre, Armando

Subjects
education, health care economics and organizations, humanities
Abstract

Informed consent for primary healthcare professionals. (DOC 90 kb)

Published
2017
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15. Effectiveness of a virtual intervention for primary healthcare professionals aimed at improving attitudes towards the empowerment of patients with chronic diseases: study protocol for a cluster randomized controlled trial (e-MPODERA project)

Author

González-González, Ana Isabel, primary, Orrego, Carola, additional, Perestelo-Perez, Lilisbeth, additional, Bermejo-Caja, Carlos Jesús, additional, Mora, Nuria, additional, Koatz, Débora, additional, Ballester, Marta, additional, del Pino, Tasmania, additional, Pérez-Ramos, Jeannet, additional, Toledo-Chavarri, Ana, additional, Robles, Noemí, additional, Pérez-Rivas, Francisco Javier, additional, Ramírez-Puerta, Ana Belén, additional, Canellas-Criado, Yolanda, additional, del Rey-Granado, Yolanda, additional, Muñoz-Balsa, Marcos José, additional, Becerril-Rojas, Beatriz, additional, Rodríguez-Morales, David, additional, Sánchez-Perruca, Luis, additional, Vázquez, José Ramón, additional, and Aguirre, Armando, additional

Published
2017
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