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1. Priority populations’ experiences of isolation, quarantine and distancing for COVID-19: protocol for a longitudinal cohort study (Optimise Study)

Author

Alex Collie, Sophie Hill, Margaret Hellard, Alisa Pedrana, Peng Wang, Stephanie Curtis, Margaret Danchin, Jessica Kaufman, Rebecca Ryan, Joseph S Doyle, Robert Power, Danny Vadasz, Lisa Gibbs, Nick Scott, Jane Oliver, Stephanie Fletcher-Lartey, Caroline Homer, Danielle Horyniak, Anna Wilkinson, Angela Davis, Phoebe Kerr, Mark A Stoové, Anna Bowring, Bronwen Merner, Jack Wallace, Long Nguyen, Edwin Jit Leung Kwong, Katherine Heath, Alexander J Thomas, Freya Saich, Stephanie Munari, Aimee Altermatt, Thi Nguyen, Kathryn Young, Deborah Osborne, Martha Vazquez Corona, Tianhui Ke, Yanqin Zhang, Limya Eisa, Adil Al-Qassas, Deng Malith, Karen Block, Freya Shearer, Niamh Meagher, Ali Hassani, Giovanni Radhitio Putra Sadewo, Garry Robins, Colin Gallagher, Petr Matous, Bopha Roden, Maedeh Aboutalebi Karkavandi, James Coutinho, Chiara Broccatelli, Johan Koskinen, Nicholas Geard, Alison Coelho, Dean Lusher, and Katherine B Gibney

Subjects
Medicine
Abstract

Introduction Longitudinal studies can provide timely and accurate information to evaluate and inform COVID-19 control and mitigation strategies and future pandemic preparedness. The Optimise Study is a multidisciplinary research platform established in the Australian state of Victoria in September 2020 to collect epidemiological, social, psychological and behavioural data from priority populations. It aims to understand changing public attitudes, behaviours and experiences of COVID-19 and inform epidemic modelling and support responsive government policy.Methods and analysis This protocol paper describes the data collection procedures for the Optimise Study, an ongoing longitudinal cohort of ~1000 Victorian adults and their social networks. Participants are recruited using snowball sampling with a set of seeds and two waves of snowball recruitment. Seeds are purposively selected from priority groups, including recent COVID-19 cases and close contacts and people at heightened risk of infection and/or adverse outcomes of COVID-19 infection and/or public health measures. Participants complete a schedule of monthly quantitative surveys and daily diaries for up to 24 months, plus additional surveys annually for up to 48 months. Cohort participants are recruited for qualitative interviews at key time points to enable in-depth exploration of people’s lived experiences. Separately, community representatives are invited to participate in community engagement groups, which review and interpret research findings to inform policy and practice recommendations.Ethics and dissemination The Optimise longitudinal cohort and qualitative interviews are approved by the Alfred Hospital Human Research Ethics Committee (# 333/20). The Optimise Study CEG is approved by the La Trobe University Human Ethics Committee (# HEC20532). All participants provide informed verbal consent to enter the cohort, with additional consent provided prior to any of the sub studies. Study findings will be disseminated through public website (https://optimisecovid.com.au/study-findings/) and through peer-reviewed publications.Trial registration number NCT05323799.

Published
2024
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3. Inclusion of Cultural and Linguistic Diversity in COVID-19 Public Health Research: Research Design Adaptations to Seek Different Perspectives in Victoria, Australia

Author

Lisa Gibbs, Alexander J. Thomas, Alison Coelho, Adil Al-Qassas, Karen Block, Niamh Meagher, Limya Eisa, Stephanie Fletcher-Lartey, Tianhui Ke, Phoebe Kerr, Edwin Jit Leung Kwong, Colin MacDougall, Deng Malith, Katitza Marinkovic Chavez, Deborah Osborne, David J. Price, Freya Shearer, Mark Stoove, Kathryn Young, Yanqin Zhang, Katherine B. Gibney, and Margaret Hellard

Subjects
migrant, pandemic, Health, Toxicology and Mutagenesis, Public Health, Environmental and Occupational Health, research processes, culturally and linguistically diverse
Abstract

Participation of people from culturally and linguistically diverse (CALD) communities in public health research is often limited by challenges with recruitment, retention and second-language data collection. Consequently, people from CALD communities are at risk of their needs being marginalised in public health interventions. This paper presents intrinsic case analyses of two studies which were adapted to increase the cultural competence of research processes. Both cases were part of the Optimise study, a major mixed methods research study in Australia which provided evidence to inform the Victorian state government’s decision-making about COVID-19 public health measures. Case study 1 involved the core Optimise longitudinal cohort study and Case study 2 was the CARE Victorian representative survey, an Optimise sub-study. Both case studies engaged cultural advisors and bilingual staff to adjust the survey measures and research processes to suit target CALD communities. Reflexive processes provided insights into the strengths and weaknesses of the inclusive strategies. Selected survey results are provided, demonstrating variation across CALD communities and in comparison to participants who reported speaking English at home. While in most cases a gradient of disadvantage was evident for CALD communities, some patterns were unexpected. The case studies demonstrate the challenge and value of investing in culturally competent research processes to ensure research guiding policy captures a spectrum of experiences and perspectives.

Published
2023

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