1,216 results on '"Susan Lee"'
Search Results
2. Palliative care in Ethiopia’s rural and regional health care settings: a qualitative study of enabling factors and implementation challenges
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Atsede Aregay, Margaret O’Connor, Jill Stow, Nicola Ayers, and Susan Lee
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Palliative care ,Rural population ,Ethiopia ,Implementation ,Qualitative research ,Special situations and conditions ,RC952-1245 - Abstract
Abstract Background Palliative care is limited in Ethiopia, particularly in rural areas, where more than 78% of the population live. Current initiatives and research are focused on urban settings and are primarily donor dependent. This study aims to explore the status of palliative care, enabling factors and implementation challenges in Ethiopia’s rural and regional health care settings. Methods A qualitative regional case study was conducted with health professionals drawn from different health care settings, academic institutions and included health planners and practitioners. Focus groups were conducted with rural community members and face- to face- individual interviews were conducted with health professionals working in numerous roles as well as academic leaders. Results Participants indicated that despite a few leaders being aware of the inclusion of palliative care in the Ethiopia national policies and guidelines, palliative care is not, integrated into the existing health care system. Other participants responded that palliative care is not well integrated into the undergraduate and postgraduate courses except for limited content in the diploma and a few postgraduate courses. Participants described the challenges for palliative care implementation as follows: many lacked awareness about palliative care; and chronically ill patients other than those with HIV received inadequate care, limited to physical care, some pain management, and psychosocial support rather than comprehensive palliative care. In addition, some participants perceived that palliative care was not within the remit of their service, so families and patients were forced to seek alternative or informal care, including from traditional healers. Conclusions Enablers for the improvement of palliative care access in rural and regional health care were identified, including better integration of palliative care into the national health care plan and guidelines; palliative care content in university and college courses; and use of mobile phone technology to facilitate care. And policy makers and responsible stakeholders could consider the palliative care implementation in rural and regional health care settings through a combination of home, community and facility-based models.
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- 2023
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3. Perceptions of Barriers to Using Opioid Analgesics: A Mixed Methods Study
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Atsede Aregay, Margaret O'Connor, Jill Stow, Nicola Ayers, and Susan Lee
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accessibility ,availability ,mixed-method study ,morphine ,opioids ,rural ,Medicine (General) ,R5-920 - Abstract
Background: Availability and accessibility of opioids are a worldwide problem. In low-resource settings, such as Ethiopia, access to opioids is either limited or nonexistent and legally restricted in health care settings. This study aimed to identify barriers for the availability and accessibility of opioids in Ethiopian rural and regional health care settings. Methods: A mixed-method case study design was used. A total of 220 nurses from primary, secondary, and tertiary health care settings were invited to participate in a survey of knowledge and practice. For the qualitative interview, 38 participants were recruited from educational facilities, health services, and the community across a region. Results: Barriers in availability and accessibility of opioid analgesics were expressing pain considered as a sign of weakness, lack of knowledge, side effect concerns about prescribing morphine, only doctors being authorized to prescribe morphine, lack of foreign currency to import morphine ingredients, and inequity in accessing morphine in hospitals and none in rural health care settings. Conclusion: The findings of this study indicate that opioids, particularly morphine, were not consistently available and accessible to all patients in need. Health professionals lacked knowledge about opioids. Strengthening the existing pain-free initiatives and improving the type, dose, and supply of morphine could help reduce needless suffering and enhance access to essential pain medicines for those in need.
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- 2023
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4. Global posture reeducation compared with segmental muscle stretching exercises in the treatment of fibromyalgia: a randomized controlled trial
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Luciana Akemi Matsutani, Adriana de Sousa do Espírito Santo, Marina Ciscato, Susan Lee King Yuan, and Amelia Pasqual Marques
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Fibromyalgia ,Physical therapy modalities ,Muscle stretching exercises ,Cognitive behavioral therapy ,Medicine (General) ,R5-920 - Abstract
Abstract Background Muscle stretching exercises preserve corporal flexibility and decrease the retraction and shortening of myofascial and articular structures. These exercises are recommended for the treatment of fibromyalgia (FM). The purpose of the study was to verify and compare the effect of muscle stretching exercises on FM patients based on the global posture reeducation method against segmental muscle stretching exercises, both used in concert with an educational approach rooted in cognitive behavioral therapy. Methods Forty adults with FM were randomly allocated into two groups: global and segmental. The two kinds of therapies were performed in 10 individual sessions once a week. Two assessments were made: one at baseline and one at the end of therapy. The primary outcome variable was pain intensity (Visual Analog Scale). The secondary outcome variables were multidimensional pain (McGill Pain Questionnaire), the pain threshold at tender points (dolorimetry), attitudes toward chronic pain (Survey of Pain Attitudes-Brief Version), body posture (Postural Assessment Software Protocol), postural control (Modified Clinical Test of Sensory Interaction on Balance), flexibility (sit-and-reach test), the impact of FM on quality of life (Fibromyalgia Impact Questionnaire, FIQ), and self-reported perceptions and body self-care. Results At the end of treatment, there were no statistically significant differences between the groups in the outcome variables. Furthermore, the groups presented lower pain intensity (baseline vs. final; global group: 6 ± 1.8 vs. 2.2 ± 1.6 cm, p
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- 2023
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5. The association of QTc prolongation with cardiovascular events in cancer patients taking tyrosine kinase inhibitors (TKIs)
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Ismail Ghafary, Chang-Kyung Kim, Eric Roth, Michael Lu, Erin M. Taub, Susan Lee, Ira Cohen, and Zhongju Lu
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QTc prolongation ,Tyrosine kinase inhibitors (TKIs) ,Cancer treatment ,Cardiovascular events ,Diabetes ,Diseases of the circulatory (Cardiovascular) system ,RC666-701 ,Neoplasms. Tumors. Oncology. Including cancer and carcinogens ,RC254-282 - Abstract
Abstract Objective To investigate the association between stages of QTc prolongation and the risk of cardiac events among patients on TKIs. Methods This was a retrospective cohort study performed at an academic tertiary care center of cancer patients who were taking TKIs or not taking TKIs. Patients with two recorded ECGs between January 1, 2009, and December 31, 2019, were selected from an electronic database. The QTc duration > 450ms was determined as prolonged. The association between QTc prolongation progression and events of cardiovascular disease were compared. Results This study included a total of 451 patients with 41.2% of patients taking TKIs. During a median follow up period of 3.1 years, 49.5% subjects developed CVD and 5.4% subjects suffered cardiac death in patient using TKIs (n = 186); the corresponding rates are 64.2% and 1.2% for patients not on TKIs (n = 265), respectively. Among patient on TKIs, 4.8% of subjects developed stroke, 20.4% of subjects suffered from heart failure (HF) and 24.2% of subjects had myocardial infarction (MI); corresponding incidence are 6.8%, 26.8% and 30.6% in non-TKIs. When patients were regrouped to TKIs versus non-TKIs with and without diabetes, there was no significant difference in the incidence of cardiac events among all groups. Adjusted Cox proportional hazards models were applied to estimate hazard ratios (HRs) with 95% confidence intervals (CIs). There is a significant increased risk of HF events (HR, 95% CI: 2.12, 1.36–3.32) and MI events (HR, 95% CI: 1.78, 1.16–2.73) during the 1st visit. There are also trends for an increased incidence of cardiac adverse events associated with QTc prolongation among patient with QTc > 450ms, however the difference is not statistically significant. Increased cardiac adverse events in patients with QTc prolongation were reproduced during the 2nd visit and the incidence of heart failure was significantly associated with QTc prolongation(HR, 95% CI: 2.94, 1.73-5.0). Conclusion There is a significant increased QTc prolongation in patients taking TKIs. QTc prolongation caused by TKIs is associated with an increased risk of cardiac events.
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- 2023
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6. The quest for continuous quality improvement in Australian long day care services: getting the most out of the Assessment and Rating process
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Susan Lee Irvine, Lennie Barblett, Manjula Waniganayake, Fay Hadley, Rebecca Andrews, Maria Hatzigianni, Hui Li, Leanne Lavina, Linda J. Harrison, and Belinda Davis
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quality improvement ,early childhood education and care ,assessment and rating ,meaningful engagement ,long day care ,Education (General) ,L7-991 - Abstract
The National Quality Framework (NQF) was intended to drive continuous improvement in education and care services in Australia. Ten years into implementation, the effectiveness of the NQF is demonstrated by steady improvements in quality as measured against the National Quality Standard (NQS). The process of assessing and rating services is a key element in the NQF, drawing together regulatory compliance and quality assurance. This paper draws on findings from a national Quality Improvement Research Project investigating the characteristics, processes, challenges and enablers of quality improvement in long day care services, concentrating on Quality Area 1 Educational program and practice and Quality Area 7 Governance and leadership. This was a mixed-method study focusing on long day care services that had improved their rating from Working toward NQS to Meeting NQS or to Exceeding NQS. The study comprised three phases, and in this paper, we draw on Phase 3 to understand the contribution of the NQS Assessment and Rating (A&R) process to continuous quality improvement from the standpoint of providers and professionals delivering these services. Phase 3 involved qualitative case studies of 15 long day care services to investigate factors that enabled and challenged quality improvement. Data was collected during two-day site visits, using professional conversations and field notes to elicit the views and experiences of service providers, leaders and educators. In this paper, we look at how the A&R process is experienced by those involved in service provision, with a focus on the factors that enabled and challenged quality improvement. Recognizing the interchangeability of enablers and challenges, three broad themes emerged: (i) curriculum knowledge, pedagogical skills and agency; (ii) collaborative leadership and teamwork; and (iii) meaningful engagement in the A&R process. The study found that meaningful engagement in the A&R process informed priorities for ongoing learning and acted as a catalyst for continuous quality improvement. Apprised by stakeholder views and experiences of A&R, we offer a model to foster stakeholder participation in quality assurance matters through affordances of meaningful engagement.
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- 2024
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7. From future diets to dishes: communicating dietary shift associated with a 1.5°C scenario for Brazil, China, Sweden and the United Kingdom
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Susan Lee, Muir Freer, Ruth Wood, Oreane Edelenbosch, Maria Sharmina, Jonathan Doelman, Detlef van Vuuren, and Charlie Wilson
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communicating dietary change ,plant-based diets ,DDDI framework ,visualisation techniques ,sustainable diets ,climate-compatible diets ,Nutrition. Foods and food supply ,TX341-641 ,Food processing and manufacture ,TP368-456 - Abstract
IntroductionWith the pressing need to mitigate greenhouse gas emissions, this study aims to simplify complex data from Integrated Assessment Models (IAMs). It focuses on identifying dietary shifts that align with the 1.5°C global warming limit as stipulated by the Paris Agreement.MethodsThe research utilises the IMAGE Integrated Assessment Model and applies the Diets, Dishes, Dish Ingredients (DDDI) communication framework. This methodology enables the visualisation of potential dietary and dish composition changes, thereby making the data more comprehensible to a broader audience.ResultsThe study effectively translates traditional IAM outputs into accessible visualisations. These visual tools provide a nuanced understanding of a low greenhouse gas diet, extending its relevance beyond academia to include professionals in diet and nutrition.DiscussionThis research stands as a significant advancement in the field, lowering the barrier to understanding sustainable diets for the future. It enriches the existing dialogue on dietary change and climate goals and serves as a catalyst for further research and practical applications in diverse contexts.
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- 2023
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8. Perceived policy-related barriers to palliative care implementation: a qualitative descriptive study
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Atsede Aregay, Margaret O’Connor, Jill Stow, Nicola Ayers, and Susan Lee
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Medicine (General) ,R5-920 - Abstract
Background: Ethiopia has a national palliative care guideline, and palliative care is explicitly recognised in the country’s healthcare policy and health sector transformation plans. However, palliative care is not fully delivered in the regional public hospitals and primary health care units. Objective: This study explores perceived policy barriers to deliver palliative care services in rural and regional healthcare settings, which primary healthcare units largely serve. Design: Face-to-face interviews were conducted in a rural region of Ethiopia. Methods: Forty-two participants were recruited from a variety of health settings including primary, secondary and tertiary levels across the region. Interviews were conducted with policymakers from the regional health bureau, pharmacists, medical doctors, health officers (clinical officers) and nurses, including chief nursing officers in leadership roles at all levels of healthcare institutions. Data analysed using thematic analysis. Results: Participants described several barriers related to healthcare policy, including lack of government priority and focus on palliative care; lack of health professionals’ awareness of the national palliative care plans and guidelines; and lack of palliative care integration into the existing healthcare system and the national budget. Participants remarked that palliative care services in the region were mainly limited to HIV patients, often managed with external support and, hence unsustainable. Conclusions: Policy priority and focus is a fundamental component for the provision of palliative care because lack of focus and support from the government have led to inadequate access to palliative care for all in need. Hence, as participants suggested, palliative care should be integrated into all healthcare levels, particularly into the primary health care units and the health extension programme, to facilitate health extension workers to support millions living in rural areas.
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- 2023
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9. Health Information From Web Search Engines and Virtual Assistants About Pre-Exposure Prophylaxis for HIV Prevention in Adolescents and Young Adults: Content Analysis
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Kaja Darien, Susan Lee, Kayla Knowles, Sarah Wood, Miriam D Langer, Nellie Lazar, and Nadia Dowshen
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Pediatrics ,RJ1-570 - Abstract
BackgroundAdolescents and young adults are disproportionately affected by HIV, suggesting that HIV prevention methods such as pre-exposure prophylaxis (PrEP) should focus on this group as a priority. As digital natives, youth likely turn to internet resources regarding health topics they may not feel comfortable discussing with their medical providers. To optimize informed decision-making by adolescents and young adults most impacted by HIV, the information from internet searches should be educational, accurate, and readable. ObjectiveThe aims of this study were to compare the accuracy of web-based PrEP information found using web search engines and virtual assistants, and to assess the readability of the resulting information. MethodsAdolescent HIV prevention clinical experts developed a list of 23 prevention-related questions that were posed to search engines (Ask.com, Bing, Google, and Yahoo) and virtual assistants (Amazon Alexa, Microsoft Cortana, Google Assistant, and Apple Siri). The first three results from search engines and virtual assistant web references, as well as virtual assistant verbal responses, were recorded and coded using a six-tier scale to assess the quality of information produced. The results were also entered in a web-based tool determining readability using the Flesch-Kincaid Grade Level scale. ResultsGoogle web search engine and Google Assistant more frequently produced PrEP information of higher quality than the other search engines and virtual assistants with scores ranging from 3.4 to 3.7 and 2.8 to 3.3, respectively. Additionally, the resulting information generally was presented in language at a seventh and 10th grade reading level according to the Flesch-Kincaid Grade Level scale. ConclusionsAdolescents and young adults are large consumers of technology and may experience discomfort discussing their sexual health with providers. It is important that efforts are made to ensure the information they receive about HIV prevention methods, and PrEP in particular, is comprehensive, comprehensible, and widely available.
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- 2023
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10. Bibliography
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Susan Lee Johnson
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- 2020
11. Index
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Susan Lee Johnson
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- 2020
12. Notes
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Susan Lee Johnson
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- 2020
13. Acknowledgments
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Susan Lee Johnson
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- 2020
14. Part II. Crafting Kit Carson, 1960s–1970s: Down on Wounded Knee
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Susan Lee Johnson
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- 2020
15. Part III. Creating Craftswomen, 1890s–1940s: The Past Is Another Place
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Susan Lee Johnson
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- 2020
16. Epilogue: Where Our Fathers Died
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Susan Lee Johnson
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- 2020
17. Part I. Crafting Kit Carson, 1950s–1960s: The West Is a Happy Vector
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Susan Lee Johnson
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- 2020
18. Contents
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Susan Lee Johnson
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- 2020
19. Prologue: Grandmothers' Eyes
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Susan Lee Johnson
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- 2020
20. Title page, Copyright page, Dedication
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Susan Lee Johnson
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- 2020
21. PREPARE trial: a protocol for a multicentre randomised trial of frailty-focused preoperative exercise to decrease postoperative complication rates and disability scores
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Dean A Fergusson, Alan Forster, Gregg Nelson, Monica Taljaard, Jayna Holroyd-Leduc, Manoj M Lalu, John Muscedere, Duminda Wijeysundera, Daniel I McIsaac, Sylvain Boet, Kednapa Thavorn, Michael McMullen, Tarit Saha, Eric Jacobsohn, Tien Le, Husein Moloo, Allen Huang, Gary Dobson, Grace Ma, Stephanie Johnson, Colin McCartney, Elijah Dixon, Emily Hladkowicz, Sylvain Gagne, Julie Nantel, Barbara Power, Chelsia Gillis, Rodney Breau, Irfan Dhalla, Susan Lee, Rachel Khadaroo, Amanda Meliambro, Daniel Trottier, Keely Barnes, Laura Boland, Karina Branje, Gregory L. Bryson, Rosaleen Chun, Antoine Eskander, Hannah Frazer, Joanne Hutton, John Joanisse, Ana Johnson, Luke T. Lavallee, Cameron Love, Ronald Moore, Thomas Mutter, Sudhir Nagpal, Celena Scheede-Bergdhal, Pablo Serrano, Laura Tamblyn-Watts, Carl van Walraven, Brittany Warren, and Ilun Yang
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Medicine - Abstract
Introduction Frailty is a strong predictor of adverse postoperative outcomes. Prehabilitation may improve outcomes after surgery for older people with frailty by addressing physical and physiologic deficits. The objective of this trial is to evaluate the efficacy of home-based multimodal prehabilitation in decreasing patient-reported disability and postoperative complications in older people with frailty having major surgery.Methods and analysis We will conduct a multicentre, randomised controlled trial of home-based prehabilitation versus standard care among consenting patients >60 years with frailty (Clinical Frailty Scale>4) having elective inpatient major non-cardiac, non-neurologic or non-orthopaedic surgery. Patients will be partially blinded; clinicians and outcome assessors will be fully blinded. The intervention consists of >3 weeks of prehabilitation (exercise (strength, aerobic and stretching) and nutrition (advice and protein supplementation)). The study has two primary outcomes: in-hospital complications and patient-reported disability 30 days after surgery. Secondary outcomes include survival, lower limb function, quality of life and resource utilisation. A sample size of 750 participants (375 per arm) provides >90% power to detect a minimally important absolute difference of 8 on the 100-point patient-reported disability scale and a 25% relative risk reduction in complications, using a two-sided alpha value of 0.025 to account for the two primary outcomes. Analyses will follow intention to treat principles for all randomised participants. All participants will be followed to either death or up to 1 year.Ethics and dissemination Ethical approval has been granted by Clinical Trials Ontario (Project ID: 1785) and our ethics review board (Protocol Approval #20190409-01T). Results will be disseminated through presentation at scientific conferences, through peer-reviewed publication, stakeholder organisations and engagement of social and traditional media.Trial registration number NCT04221295.
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- 2022
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22. Developing a Consensus for Adolescent and Young Adult mHealth HIV Prevention Interventions in the United States: A Delphi Method Study
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Kayla Knowles, Nadia Dowshen, Susan Lee, and Amanda Tanner
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Medicine - Abstract
BackgroundEngaging adolescents and young adults (AYAs) who are at elevated risk for HIV acquisition or who are living with HIV in health care has posed a major challenge in HIV prevention and care efforts. Mobile health (mHealth) interventions are a popular and accessible strategy to support AYA engagement despite barriers to care present along the HIV care continuum. Even with progress in the field of mHealth research, expert recommendations for the process of designing, evaluating, and implementing HIV-related mHealth interventions are underdeveloped. ObjectiveThe aim of this study was to compile expert recommendations on the development, evaluation, and implementation of AYA-focused HIV prevention and care mHealth interventions. MethodsExperts from adolescent mHealth HIV research networks and investigators of recently funded HIV mHealth projects and programs were identified and invited to complete a series of electronic surveys related to the design, implementation, and evaluation of HIV-related mHealth interventions. A modified Delphi method was used to ask experts to score 35 survey items on a 4-point Likert scale from not important to very important and encouraged experts to leave additional comments in textboxes. Responses were reviewed by the researchers, a team of 4 HIV mHealth intervention experts. The average importance ratings from survey responses were calculated and then categorized as retained (high importance), flagged (mid-level importance), or dropped (no/low importance). Additionally, thematic analysis of expert comments helped modify survey items for the next survey round. An evaluation of the level of agreement among experts on the most important items followed each round until consensus was reached. ResultsOf the 35 invited experts, 23 completed the first survey representing a variety of roles within a research team. Following two rounds of Delphi surveys, experts scored 24 of the 28 (86%) survey items included in round two as important to very important. The final consensus items included 24 recommendations related to the mHealth intervention design process (n=15), evaluation (n=2), and implementation (n=7). The 3 survey items with the highest average scores focused on the design process, specifically, (1) the creation of a diverse team including researchers, app software developers, and youth representation; (2) the importance of AYA-focused content; and (3) the value of an iterative process. Additionally, experts highlighted the importance of establishing the best ways to collect data and the types of data for collection during the evaluation process as well as constructing a plan for participant technology disruption when implementing an mHealth intervention. ConclusionsThe modified Delphi method was a useful tool to convene experts to determine recommendations for AYA-focused HIV prevention and care mHealth interventions. These recommendations can inform future mHealth interventions. To ensure the acceptability, feasibility, and efficacy of these AYA HIV prevention interventions, the focus must be on the specific needs of AYAs by including representation of AYAs in the process, including consistent and relevant content, ensuring appropriate data is collected, and considering technology and health accessibility barriers.
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- 2022
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23. Baseline microbiome and metabolome are associated with response to ITIS diet in an exploratory trial in patients with rheumatoid arthritis
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Roxana Coras, Cameron Martino, Julia M. Gauglitz, Francesca Cedola, Anupriya Tripathi, Alan K. Jarmusch, Maram Alharthi, Marta Fernandez‐Bustamante, Meritxell Agustin‐Perez, Abha Singh, Soo‐In Choi, Tania Rivera, Katherine Nguyen, Tatyana Shekhtman, Tiffany Holt, Susan Lee, Shahrokh Golshan, Pieter C. Dorrestein, Rob Knight, and Monica Guma
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Medicine (General) ,R5-920 - Published
- 2022
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24. Validation of a patient-reported measure of social support provided by nurses in breast cancer care (SuPP-N): based on a cross-sectional patient survey in 83 German hospitals
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Lena Ansmann, Holger Pfaff, Johanna Sophie Lubasch, Markus Antonius Wirtz, and Susan Lee
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Medicine - Abstract
Objectives To validate the patient-reported measure of Social Support Perceived by Patients Scale-Nurses (SuPP-N).Design/setting A secondary data analysis based on a cross-sectional breast cancer patient survey in 83 German hospitals. Patients were asked to give written informed consent before they were discharged. If they agreed to participate, the questionnaire was sent via mail to their home address after discharge.Participants Of 5583 eligible patients, 4841 consented to participate in the study and 4217 returned completed questionnaires (response rate: 75.5 %). For the data analysis n=3954 respondents were included. On average, participants were 60 years old and mostly in cancer stages I and II.Primary and secondary outcome measures Perceived social support was assessed with a three-item patient-reported scale (SuPP-N). Convergent validity and criterion-related validity were tested using the following constructs: trust in nurses, trust in the treatment team (Wake Forest Physician Trust Scale, adapted), quality of life (European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire), processes organisation, availability of nurses.Results The structural equation model (SEM) assuming a one-dimensional structure of the instrument showed acceptable goodness of fit (root mean square error of approximation=0.04, Comparative Fit Index=0.96 and Tucker-Lewis Index=0.96; factor loadings ≥0.83). Hypothesis–consistent correlations with trust in nurses (beta=0.615; p
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- 2022
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25. Avaliação do agenciamento de autocuidados e sua associação com sintomas e qualidade de vida em indivíduos com fibromialgia
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Letícia Assis Couto, Susan Lee King Yuan, Ingred Merllin Batista de Souza, Adriana de Sousa do Espírito Santo, and Amélia Pasqual Marques
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Fibromialgia ,Autocuidado ,Dor ,Qualidade de Vida ,Therapeutics. Pharmacology ,RM1-950 - Abstract
RESUMO A fibromialgia (FM) é uma condição de alta prevalência e que causa desconforto físico, sofrimento mental e comprometimento nas relações sociais. Assim, o autocuidado pode ser um aspecto determinante para melhorar a qualidade de vida de indivíduos com FM, pois está relacionado ao ato de se investir de poder. Portanto, o objetivo deste estudo foi avaliar o agenciamento do autocuidado de indivíduos com FM e verificar a associação do autocuidado com variáveis sociodemográficas, sintomas e qualidade de vida. Participaram do estudo 40 indivíduos com FM, que preencheram os critérios diagnósticos do Colégio Americano de Reumatologia de 2010. O autocuidado foi avaliado pela Escala de Avaliação de Agenciamento de Autocuidados Revisada (EAAA-R), a intensidade da dor dos pacientes foi verificada pela Escala Visual Analógica (EVA) e pelo Índice de Dor Generalizada (IDG), enquanto a severidade dos sintomas foi avaliado pela Escala de Severidade dos Sintomas (SS) e a qualidade de vida pelo Questionário de Impacto da Fibromialgia Revisado (QIF-R). Utilizamos o coeficiente de correlação de Pearson (dados paramétricos) e coeficiente de correlação de Spearman (dados não paramétricos), com nível de significância α
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- 2020
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26. Defining immune correlates during latent and active chlamydial infection in sheep
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Sean R. Wattegedera, Morag Livingstone, Stephen Maley, Mara Rocchi, Susan Lee, Yvonne Pang, Nick M. Wheelhouse, Kevin Aitchison, Javier Palarea-Albaladejo, David Buxton, David Longbottom, and Gary Entrican
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Veterinary medicine ,SF600-1100 - Abstract
Abstract Ovine enzootic abortion (OEA) caused by the obligate intracellular bacterial pathogen Chlamydia abortus (C. abortus), is an endemic disease in most sheep-rearing countries worldwide. Following infection, C. abortus establishes a complex host–pathogen interaction with a latent phase in non-pregnant sheep followed by an active disease phase in the placenta during pregnancy leading to OEA. Improved knowledge of the host–pathogen interactions at these different phases of disease will accelerate the development of new diagnostic tests and vaccines to control OEA. Current evidence indicates that cellular immunity is essential for controlling C. abortus infection. We have previously described a model of mucosal (intranasal) infection of non-pregnant sheep with C. abortus that replicates the latent and active phases of OEA. We have investigated antigen-specific recall responses of peripheral blood mononuclear cells (PBMC) in sheep infected with C. abortus via the intranasal route to determine how these change during the latent and active phases of disease. By analysing cytokines associated with the major CD4+ve Thelper (Th) cell subsets (Interferon-gamma (IFN-γ)/Th1; Interleukin (IL)-4/Th2; IL-17A/Th17; IL-10/Tregulatory), we show that there is selective activation of PBMC producing IFN-γ and/or IL-10 during the latent phase following infection. These cytokines are also elevated during the active disease phase and while they are produced by sheep that are protected from OEA, they are also produced by sheep that abort, highlighting the difficulties in finding specific cellular immunological correlates of protection for complex intracellular pathogens.
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- 2020
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27. Nurse Expertise: A Critical Resource in the COVID-19 Pandemic Response
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Patricia Nayna Schwerdtle, Clifford J. Connell, Susan Lee, Virginia Plummer, Philip L. Russo, Ruth Endacott, and Lisa Kuhn
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Infectious and parasitic diseases ,RC109-216 ,Public aspects of medicine ,RA1-1270 - Published
- 2020
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28. Prevalence of low back pain in the elderly population: a systematic review
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Ingred Merllin Batista de Souza, Tina Fujii Sakaguchi, Susan Lee King Yuan, Luciana Akemi Matsutani, Adriana de Sousa do Espírito-Santo, Carlos Alberto de Bragança Pereira, and Amélia Pasqual Marques
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Prevalence ,Low Back Pain ,Spine ,Elderly ,Systematic Review ,Medicine (General) ,R5-920 - Abstract
The aim of this study was to estimate the prevalence of low-back pain (LBP) and to identify the level of functional disability in elderly individuals in different populations. From January 1985 to October 2018, a search was performed using the following databases: Embase, LILACS, SciELO, Scopus, Medline, and the Web of Science. The descriptors were low-back pain, back pain, lower-back pain, prevalence, and elderly in Portuguese and English. Two independent reviewers conducted a search for studies and evaluated their methodological quality. The search strategy returned 2186 titles, and 35 were included in this review. The studies evaluated 135,059 elderly individuals aged between 60 and 102 years, and the prevalence of LBP ranged from 21% to 75%. The levels of functional disability, as well as functional difficulties, activities of daily living, and physical capacity, were identified in 60% of the studies. This review indicated a high prevalence of LBP in elderly individuals and functional disability that affects factors important for independence. However, the studies used different methodologies, suggesting that more studies be conducted with scientific accuracy, methodological quality, and low risk of bias to contribute to the proposal of preventive actions for elderly populations.
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- 2019
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29. Comparing flow cytometry with culture-based methods for microbial monitoring and as a diagnostic tool for assessing drinking water treatment processes
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Ryan Cheswick, Elise Cartmell, Susan Lee, Andrew Upton, Paul Weir, Graeme Moore, Andreas Nocker, Bruce Jefferson, and Peter Jarvis
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Environmental sciences ,GE1-350 - Abstract
Flow cytometry (FCM) and the ability to measure both total and intact cell populations through DNA staining methodologies has rapidly gained attention and consideration across the water sector in the past decade. In this study, water quality monitoring was undertaken over three years across 213 drinking water treatment works (WTW) in the Scottish Water region (Total n = 39,340). Samples subject to routine regulatory microbial analysis using culture-based methods were also analysed using FCM. In addition to final treated water, the bacterial content in raw water was measured over a one-year period. Three WTW were studied in further detail using on-site inter-stage sampling and analysis with FCM. It was demonstrated that there was no clear link between FCM data and the coliform samples taken for regulatory monitoring. The disinfectant Ct value (Ct = mg·min/L) was the driving factor in determining final water cell viability and the proportion of intact cells (intact/total cells) and the frequency of coliform detections in the water leaving the WTW. However, the free chlorine residual, without consideration of treatment time, was shown to have little impact on coliform detections or cell counts. Amongst the three treatment trains monitored in detail, the membrane filtration WTW showed the greatest log removal and robustness in terms of final water intact cell counts. Flow cytometry was shown to provide insights into the bacteriological quality of water that adds significant value over and above that provided by traditional bacterial monitoring. Keywords: Flow cytometry, Disinfection, Drinking water, Bacteria
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- 2019
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30. Differences in Perceived Waiting Time by Health Insurance Type in the Inpatient Sector: An Analysis of Patients With Breast Cancer in Germany
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Susan Lee PhD, Sophie E. Gross PhD, Holger Pfaff PhD, and Antje Dresen PhD
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Public aspects of medicine ,RA1-1270 - Abstract
Although the relationship between health insurance and waiting time has been established in the ambulatory sector in Germany, research in the inpatient sector is limited. This study aims to contribute to previous work through analyzing differences in perceived waiting time by health insurance type during the inpatient stays of patients with breast cancer in Germany. This study utilizes cross-sectional data from 2017 of patients with breast cancer (N = 4626) who underwent primary breast cancer surgery in a certified breast care center in Germany. Results from multilevel logistic regression models indicate a significant effect of health insurance status on perceived waiting time, net of other relevant factors (patient’s sociodemographic background, Union for International Cancer Control stage, grading, self-reported and classified health, type of surgery, and chemotherapy). Patients with statutory insurance were significantly more likely than privately insured patients to report long waiting times for examinations/procedures, discharge, and to speak with the physician. There were no significant differences in waiting time for nursing staff between private and statutory insurance holders. Results align with previous findings in the ambulatory sector and suggest a private health insurance advantage, with private patients receiving priority to some health care services. Disparities in health care accessibility and quality need to continue to be addressed and discussed, as well as the impact of health insurance type on other indicators of health.
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- 2019
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31. Lee Model of Geriatric Palliative Care
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Susan Lee
- Subjects
Servicios hospitalarios. ,Dotación de personal ,Enfermería ,Nursing ,RT1-120 - Abstract
The model is based in the theory of human caring authored by Dr. Jean Watson. This theory honors autonomy, choice, and meaning through deep human connection. The Caritas field is the “inner world of practice at the heart level”. The model has four domains. The first one is most important. Is the health care that the person is receiving—the treatments, the surgery, the chemotherapy, the medications—aligned with the person’s wishes, preferences, and values.
- Published
- 2018
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32. Transformation in the Nurse-Patient Dyad or the Caregiver-Patient Dyad
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Susan Lee
- Subjects
Cuidado al final de la vida ,Educación interdisciplinaria ,Enfermería ,Cuidado paliativo ,Nursing ,RT1-120 - Abstract
Dependent nursing practice is following the doctor’s orders for medications, treatments, diet, activity, tests, etc. We ensure that the medical treatment is given. Shared practice is when the doctor is giving us parameters but leaves us to make judgments, as well. One example is giving medications “as needed” or titrating vasoactive medications in the intensive care unit according to blood pressure. Independent practice is what we do in our own scope of practice. What do we do with and for patients for which we do not need an order?
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- 2018
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33. An Overlooked Brain Region in the Aetiology of Anorexia Nervosa: The Importance of Behaviourally Driven Neuroimaging Analysis
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Andrea Phillipou, David Jonathan Castle, Larry Allen Abel, Caroline Gurvich, and Susan Lee Rossell
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Neurosciences. Biological psychiatry. Neuropsychiatry ,RC321-571 - Abstract
The neurobiological contributions to anorexia nervosa (AN) remain poorly understood, hindering the development of effective neurobiological treatments such as medications and brain stimulation. A large number of studies have been undertaken utilising neuroimaging techniques, such as magnetic resonance imaging (MRI), to gain a better understanding of the brain mechanisms involved in the illness. However, the analyses undertaken by many studies have utilised a whole-brain analytical approach as much of this research has been exploratory in nature. This is, however, problematic as small brain regions that differ between groups may not have the statistical power to produce statistically significant results. This is highlighted in a recent study undertaken by our group utilising diffusion-weighted imaging. In this research, we identified widespread white matter microstructural differences in individuals with AN, but only showed differences in a small brain region (the superior colliculus) when a region-of-interest approach that was driven by behavioural findings was utilised. The importance of hypothesis-driven neuroimaging analyses is discussed in this article.
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- 2018
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34. Saccadic Eye Movements in Anorexia Nervosa.
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Andrea Phillipou, Susan Lee Rossell, Caroline Gurvich, Matthew Edward Hughes, David Jonathan Castle, Richard Grant Nibbs, and Larry Allen Abel
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Medicine ,Science - Abstract
BACKGROUND:Anorexia Nervosa (AN) has a mortality rate among the highest of any mental illness, though the factors involved in the condition remain unclear. Recently, the potential neurobiological underpinnings of the condition have become of increasing interest. Saccadic eye movement tasks have proven useful in our understanding of the neurobiology of some other psychiatric illnesses as they utilise known brain regions, but to date have not been examined in AN. The aim of this study was to investigate whether individuals with AN differ from healthy individuals in performance on a range of saccadic eye movements tasks. METHODS:24 females with AN and 25 healthy individuals matched for age, gender and premorbid intelligence participated in the study. Participants were required to undergo memory-guided and self-paced saccade tasks, and an interleaved prosaccade/antisaccade/no-go saccade task while undergoing functional magnetic resonance imaging (fMRI). RESULTS:AN participants were found to make prosaccades of significantly shorter latency than healthy controls. AN participants also made an increased number of inhibitory errors on the memory-guided saccade task. Groups did not significantly differ in antisaccade, no-go saccade or self-paced saccade performance, or fMRI findings. DISCUSSION:The results suggest a potential role of GABA in the superior colliculus in the psychopathology of AN.
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- 2016
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35. Self perception and facial emotion perception of others in anorexia nervosa
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Andrea ePhillipou, Larry Allen Abel, David Jonathan Castle, Matthew Edward Hughes, Caroline eGurvich, Richard Grant Nibbs, and Susan Lee Rossell
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Affect ,Eating Disorders ,Eye Movements ,fMRI ,eyetracking ,Psychology ,BF1-990 - Abstract
Background: Whether individuals with anorexia nervosa (AN) are able to accurately perceive emotions from faces of others is unclear. Furthermore, whether individuals with AN process images of their own face differently to healthy individuals has thus far not been investigated. Therefore, the aim of this study was to investigate facial affect processing and the processing of one’s own face through measures of emotion identification, functional magnetic resonance imaging (fMRI) and eyetracking. Methods: 24 females with AN and 25 matched healthy control participants were presented with an implicit emotion processing task during fMRI and eyetracking, followed by an explicit emotion identification task. Results: The AN group were found to ‘hyperscan’ stimuli and avoided visually attending to salient features of their own face images. Results of the fMRI revealed increased activity to own face stimuli in AN in the right inferior and middle temporal gyri, and right lingual gyrus. AN participants were not found to display emotion identification deficits to the standard emotional face stimuli. Discussion: The findings are discussed in terms of increased anxiety to disorder-relevant stimuli in AN. Potential clinical implications are discussed in relation to the use of eyetracking techniques to improve the perception of self in AN.
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- 2015
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36. A systematic review of visual processing in body dysmorphic disorder (BDD)
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Virgili, Gemma, Neill, Erica, Enticott, Peter, Castle, David, and Rossell, Susan Lee
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- 2024
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37. “DOMESTIC” LIFE IN THE DIGGINGS
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JOHNSON, SUSAN LEE, primary
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- 2023
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38. Authoritarian Populism in Brazil: Bolsonaro's Caesarism, 'Counter-Trasformismo' and Reactionary Education Politics
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de Azevedo, Mario Luiz Neves and Robertson, Susan Lee
- Abstract
In this paper, we examine the rise of authoritarian populism in Brazil following the election in 2018 of Jair Messias Bolsonaro to the Presidency and reflect on the consequences of his far-right-wing politics for education. Our focus is broadly on three historical blocs (with five different presidents of the Republic) which make up the policy trajectory of Brazil over the period 1995-2019. We explore the complex cultural political economy surrounding more than a decade of left-wing government by Lula da Silva (2003-2010) and Dilma Rousseff (2011-2016) of the Workers Party (PT). In what has been described as simultaneously a tragedy, a farce, and a soap opera, Bolsonaro's rise involves the impeachment of Dilma, accusations of corruption, the imprisonment of Lula and the resignation of multiple ministers of the government. The intersections of right-wing conservative discourse, evangelical proselytising and populist discourse in Brazil, coupled with resentment from those whose fortunes had been diminished because of declining economic competitiveness, contributed to the election of Bolsonaro in 2018. A final section focuses on the education policy in Brazil, the ways in which any progressive gains have been erased and what this means for Brazilians.
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- 2022
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39. Selective prediction for extracting unstructured clinical data.
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Akshay Swaminathan, Iván López, William Wang, Ujwal Srivastava, Edward Tran, Aarohi Bhargava-Shah, Janet Y. Wu, Alexander L. Ren, Kaitlin Caoili, Brandon Bui, Layth Alkhani, Susan Lee, Nathan Mohit, Noel Seo, Nicholas Macedo, Winson Cheng, Charles Liu, Reena Thomas, Jonathan H. Chen, and Olivier Gevaert
- Published
- 2023
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40. Writing Kit Carson: Fallen Heroes in a Changing West
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Johnson, Susan Lee, author and Johnson, Susan Lee
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- 2020
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41. Examining relationships between state and trait psychotic symptoms and quality of life in schizophrenia spectrum disorders
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Tan, Eric Josiah, Toh, Wei Lin, and Rossell, Susan Lee
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- 2022
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42. A Mixed Methods Study of Elementary Teachers' Experiences with and Perspectives on the CCSS-Mathematics
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Swars, Susan Lee and Chestnutt, Cliff
- Abstract
This mixed methods study explored elementary teachers' (n = 73) experiences with and perspectives on the newly implemented CCSS-Mathematics at a high-needs, urban Professional Development School in a state where roll-out of the standards has been fraught with opposition. Analysis of the survey, questionnaire, and interview data reveals the findings cluster around: familiarity with and preparation to use the standards; implementation of the standards, including incorporation and teacher change; and tensions associated with enactment of the standards. Notably, the teachers believed in the merit of the standards but were constrained by their inadequate content knowledge, limited aligned curricular resources, lack of student readiness, and a perceived mismatch with ELLs. The results illuminate the professional needs of teachers during this critical time of transition and also add to the scant research in this area. [For the complete proceedings, see ED583989.]
- Published
- 2015
43. Time as a Social and Environmental Determinant of Health for Rural Women
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Madsen, Wendy, Judd, Jenni, Williams, Susan Lee, McKenzie, Fiona, Deagon, Jay, and Ames, Kate
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Background: Time insufficiency is frequently cited as a reason for poor dietary habits. This does not adequately explain the variations in how time is perceived as a factor in healthy eating. Aims: This study placed the eating behaviors of rural Australian women within the contexts of their stories to understand the factors that influenced healthy eating and how rural communities could enhance their health and well-being. Method: A three-phase sequential multimode narrative inquiry was used within four communities in rural Queensland, Australia. Each phase used a different mode of data collection: photo elicitation focus groups, narrative interviews, participatory workshops. Data were thematically analyzed iteratively to inform subsequent phases. Results. Nine final themes were identified. This article explored the theme of time and two contrasting perceptions of time sufficiency regarding healthy eating within a rural context during a drought. Discussion: Exploration of "time as a commodity" and "time as a duty" allowed a deeper understanding of time as a social and environmental determinant of health. Conclusion: Time's influence on healthy eating is much more than the minutes it takes to prepare a meal. To fully appreciate its impact, time should be considered as a social and environmental determinant of health.
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- 2020
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44. AT Makers: A Multidisciplinary Approach to Co-Designing Assistive Technologies by Co-Optimizing Expert Knowledge.
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Leila Aflatoony and Su Jin (Susan) Lee
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- 2020
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45. A Mixed Methods Study of Teach for America Teachers' Mathematical Beliefs, Knowledge, and Classroom Teaching Practices during a Reform-Based University Mathematics Methods Course
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Swars, Susan Lee
- Abstract
This mixed methods study examined the mathematical preparation of elementary teachers in a Teach for America (TFA) program, focal participants for whom there is scant extant research. Data collection occurred before and after a university mathematics methods course, with a particular focus on the participants' (n = 22) mathematical beliefs, specialized content knowledge, and classroom teaching practices. Data were collected via two beliefs surveys, a content knowledge instrument, and interviews. The results show the added value of the course and offer considerations for learning experiences during mathematics teacher preparation, some of which are specific to alternative teacher preparation programs such as TFA.
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- 2015
46. Time as a Social and Environmental Determinant of Health for Rural Women
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Madsen, Wendy, Judd, Jenni, Williams, Susan Lee, McKenzie, Fiona, Deagon, Jay, and Ames, Kate
- Published
- 2020
47. Prevalence of fibromyalgia: literature review update
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Amelia Pasqual Marques, Adriana de Sousa do Espírito Santo, Ana Assumpção Berssaneti, Luciana Akemi Matsutani, and Susan Lee King Yuan
- Subjects
Fibromialgia ,Prevalência ,Revisão ,Doenças reumáticas ,Dor crônica ,Diseases of the musculoskeletal system ,RC925-935 - Abstract
ABSTRACT The present study aimed to update the literature review on the prevalence of fibromyalgia published in 2006. A bibliographical survey was carried out from 2005 to 2014 in the MEDLINE, Web of Science, Embase, LILACS and SciELO databases and 3274 records were identified. Five researchers selected the studies, following the inclusion criteria: studies that obtained the prevalence of fibromyalgia. Fibromyalgia studies in associated diseases were excluded. When screening by title and abstract, 2073 irrelevant articles were excluded. The full texts of 210 articles were evaluated for eligibility and this review included 39 studies, described in 41 articles. The selected studies were grouped into four categories: (A) prevalence of fibromyalgia in the general population; (B) prevalence of fibromyalgia in women; (C) prevalence of fibromyalgia in rural and urban areas; (D) prevalence of fibromyalgia in special populations. The literature shows values of fibromyalgia prevalence in the general population between 0.2 and 6.6%, in women between 2.4 and 6.8%, in urban areas between 0.7 and 11.4%, in rural areas between 0.1 and 5.2%, and in special populations values between 0.6 and 15%. This literature review update shows a significant increase in fibromyalgia prevalence studies in the world. The new 2010 American College of Rheumatology criteria have not been widely used yet and the COPCORD (Community-oriented program for control of Rheumatic Diseases) methodology has increased the quality of studies on the prevalence of rheumatic diseases in general.
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48. On the phenomenology of auditory verbal hallucinations in affective and non-affective psychosis
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Toh, Wei Lin, Thomas, Neil, Hollander, Yitzchak, and Rossell, Susan Lee
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- 2020
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49. Characteristics of non-clinical hallucinations: A mixed-methods analysis of auditory, visual, tactile and olfactory hallucinations in a primary voice-hearing cohort
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Toh, Wei Lin, Thomas, Neil, Robertson, Michelle, and Rossell, Susan Lee
- Published
- 2020
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50. Psychotic disorders amid the COVID-19 pandemic: a consideration of risks and impacts
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Tan, Eric Josiah, Neill, Erica, and Rossell, Susan Lee
- Published
- 2022
- Full Text
- View/download PDF
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