1. Current practice of outpatient rehabilitation services in patients with mobility-impaired paralysis due to stroke or spinal cord injury: a qualitative interview study in Germany.
- Author
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Daniel, Tiziana, Spingler, Tamara, Hug, Andreas, Weidner, Norbert, Wensing, Michel, and Ullrich, Charlotte
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PATIENT education , *CROSS-sectional method , *OUTPATIENT services in hospitals , *RESEARCH funding , *INTERPROFESSIONAL relations , *QUALITATIVE research , *WHEELCHAIRS , *OUTPATIENT medical care , *INTERVIEWING , *SCIENTIFIC observation , *CONTENT analysis , *STATISTICAL sampling , *QUESTIONNAIRES , *SPINAL cord injuries , *MOVEMENT disorders , *DECISION making , *GOAL (Psychology) , *WORK experience (Employment) , *FUNCTIONAL status , *JUDGMENT sampling , *DESCRIPTIVE statistics , *CAREGIVERS , *SOUND recordings , *STROKE rehabilitation , *RESEARCH methodology , *BARTHEL Index , *DATA analysis software , *PARALYSIS , *HOSPITAL costs , *DISEASE complications - Abstract
Purpose: When mobility deficits persist after stroke or spinal cord injury (SCI), outpatient neurorehabilitation services are required. This study aimed to explore the current practice of German outpatient neurorehabilitation services and identify factors associated to this practice. Methods: This was a qualitative observational study in which semi-structured interviews were conducted with professionals from outpatient neurorehabilitation services and mobility-impaired patients. A qualitative content analysis with a data-driven coding process was used. Results: Three general practitioners, five physical, five occupational, and one speech therapist, one neuropsychologist, two outpatient nurses, one rehabilitation technician, one social worker, two patient advocates (long-term survivors, each stroke and SCI), and 20 patients (10 after stroke, 10 after SCI, all first-ever affected since approximately one year) participated. The reported experiences ranged from high satisfaction to perceived deficits in participation-oriented, evidence-based, and coordinated care. Identified associated factors were: (a) availability of specialised therapists and professional education, (b) outpatient service catalogue, (c) cost coverage, (d) setting rehabilitation goals, and (e) physician as care coordinator. Conclusion: Areas of improvement identified focused on: setting rehabilitation goals towards participation, training therapists on evidence-based treatments and shared decision-making, updating the outpatient service catalogue, and implementing coordination actions. Implementation of these recommendations should be evaluated. IMPLICATIONS FOR REHABILITATION: Professionals need to be trained in setting rehabilitation goals and treatments. The continuing education should be based on current evidence and address interprofessionalism. Academization and continuing education in scientific work for therapists should be advanced. Professionals should educate patients about rehabilitation goals and set rehabilitation goals together, both interprofessional coordinated and with the patient (shared decision-making). Activity and participation should be the central aspects. Rehabilitation clinicians should give instructions to therapists on what to do if rehabilitation goals are not worked on. Rehabilitation clinicians should encourage interprofessional collaboration and information exchange where this is not the case. The exchange of information between outpatient professionals should be promoted through appropriate measures, that is, interprofessional meetings could be introduced. The outpatient service catalogue should be revised regarding evidence-based and participation-oriented treatments and enable appropriate cost coverage. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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