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8. How compassionate is your neighborhood? Results of a cross-sectional survey on neighborhood participation regarding serious illness, death, and loss.

Author

D'Eer, Louise, Chambaere, Kenneth, Van den Block, Lieve, Dury, Sarah, Sallnow, Libby, Deliens, Luc, Smets, Tinne, and Cohen, Joachim

Subjects
ATTITUDES toward death, CROSS-sectional method, EMPATHY, VOLUNTEER service, ATTITUDES toward illness, RESEARCH funding, PALLIATIVE treatment, COMPASSION, SOCIAL cohesion, BEREAVEMENT, SURVEYS, CAREGIVERS, PUBLIC health, CONFIDENCE intervals, NEIGHBORHOOD characteristics, SOCIAL participation
Abstract

We conducted a cross-sectional survey measuring the extent and nature of neighborhood participation regarding serious illness, death and loss and the factors that are associated with it. We distributed the survey to 2324 adult citizens in two neighborhoods in Flanders, Belgium, to which 714 citizens responded (response rate 30.7%). Of the respondents, 42.4% participated in at least one action in their neighborhood around serious illness, death, or loss, for 30.8% of them this participation was sporadic. Most of the respondents participated by helping neighbors (32.4%) or by volunteering (10.3%). We found a positive association between perceived neighborhood social cohesion (β = 0.100; CI = 0.003-0.040), previous experiences with serious illness, death, and loss (β = 0.158; CI = 0.204-0.586) and neighborhood participation around serious illness, death and loss. Future research should investigate strategies on how to move from death literacy developed through illness, caregiving and bereavement experiences to neighborhood participation around these topics. [ABSTRACT FROM AUTHOR]

Published
2024
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10. Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

Author

Gatsolaeva, Yuliana, Miranda, Rose, Pivodic, Lara, Tanghe, Marc, van Hout, Hein, Van Den Noortgate, Nele, Froggatt, Katherine, Pasman, H. Roeline W., Baranska, Ilona, Oosterveld-Vlug, Mariska, Wichmann, Anne B., Engels, Yvonne, Vernooij-Dassen, Myrra, Hockley, Jo, Leppäaho, Suvi, Pautex, Sophie, Bassal, Catherine, Mammarella, Federica, Mercuri, Martina, Rossi, Paola, Segat, Ivan, Stodolska, Agata, Adang, Eddy, Kylänen, Marika, Andreasen, Paula, Kuitunen-Kaija, Outi, Moore, Danni Collingridge, Pac, Agnieszka, Kijowska, Violetta, Ten Koppel, Maud, van der Steen, Jenny T., de Paula, Emilie Morgan, Honinx, Elisabeth, Van den Block, Lieve, Piers, Ruth, Van Kuijk, Sander M.J., Onwuteaka-Philipsen, Bregje D., Payne, Sheila A., Szczerbińska, Katarzyna, Gambassi, Giovanni G., Finne-Soveri, Harriet, Deliens, Luc, and Smets, Tinne

Published
2021
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15. Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

Author

Van den Block, Lieve, Arrue, Borja, Baranska, Ilona, Moore, Danni Collingridge, Deliens, Luc, Engels, Yvonne, Finne-Soveri, Harriet, Froggatt, Katherine, Gambassi, Giovanni, Honincx, Elisabeth, Kijowska, Viola, Koppel, Maud ten, Kylanen, Marika, Mammarella, Federica, Miranda, Rose, Smets, Tinne, Onwuteaka-Philipsen, Bregje, Oosterveld-Vlug, Mariska, Pasman, Roeline, Payne, Sheila, Piers, Ruth, Pivodic, Lara, van der Steen, Jenny, Szczerbińska, Katarzyna, Van Den Noortgate, Nele, van Hout, Hein, Wichmann, Anne, Vernooij-Dassen, Myrra, Froggatt, Katherine A., Ling, Julie, and Payne, Sheila A.

Published
2020
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18. Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

Author

Adang, Eddy, Andreasen, Paula, Moore, Danni Collingridge, van Hout, Hein, ten Koppel, Maud, Mammarella, Federica, Mercuri, Martina, Onwuteaka-Philipsen, Bregje D., Pivodic, Lara, Rossi, Paola, Sowerby, Eleanor, Stodolska, Agata, Wichmann, Anne, van der Steen, Jenny T., Vernooij-Dassen, Myrra, the European Association for Palliative Care Onlus, European Forum for Primary Care, Age Platform Europe, Alzheimer Europe, Barańska, Ilona, Kijowska, Violetta, Engels, Yvonne, Finne-Soveri, Harriet, Froggatt, Katherine, Gambassi, Giovanni, Hammar, Teija, Oosterveld-Vlug, Mariska, Payne, Sheila, Van Den Noortgate, Nele, Smets, Tinne, Deliens, Luc, Van den Block, Lieve, and Szczerbińska, Katarzyna

Published
2020
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24. Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

Author

Gatsolaeva, Yuliana, Miranda, Rose, Pivodic, Lara, Tanghe, Marc, van Hout, Hein, Van Den Noortgate, Nele, Froggatt, Katherine, Onwuteaka-Philipsen, Bregje, Szczerbińska, Katarzyna, Oosterveld-Vlug, Mariska, Wichmann, Anne B., Engels, Yvonne, Vernooij-Dassen, Myrra, Hockley, Jo, Leppäaho, Suvi, Pautex, Sophie, Bassal, Catherine, Mammarella, Federica, Mercuri, Martina, Rossi, Paola, Segat, Ivan, Stodolska, Agata, Adang, Eddy, Andreasen, Paula, Kuitunen-Kaija, Outi, Moore, Danni Collingridge, Pac, Agnieszka, Kijowska, Violetta, Koppel, Maud ten, van der Steen, Jenny T., Morgan de Paula, Emilie, Honinx, Elisabeth, Smets, Tinne, Piers, Ruth, Deliens, Luc, Payne, Sheila, Kylänen, Marika, Barańska, Ilona, Pasman, H. Roeline W., Gambassi, Giovanni, and Van den Block, Lieve

Published
2019
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37. Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

Author

Adang, Eddy, Andreasen, Paula, Collingridge Moore, Danni, van Hout, Hein, ten Koppel, Maud, Mammarella, Federica, Mercuri, Martina, Onwuteaka-Philipsen, Bregje D., Pivodic, Lara, Rossi, Paola, Sowerby, Eleanor, Stodolska, Agata, Wichmann, Anne, van der Steen, Jenny T., Vernooij-Dassen, Myrra, the European Association for Palliative Care Onlus, European Forum for Primary Care, Age Platform Europe, Alzheimer Europe, Barańska, Ilona, Kijowska, Violetta, Engels, Yvonne, Finne-Soveri, Harriet, Froggatt, Katherine, Gambassi, Giovanni, Hammar, Teija, Oosterveld-Vlug, Mariska, Payne, Sheila, Van Den Noortgate, Nele, Smets, Tinne, Deliens, Luc, Van den Block, Lieve, and Szczerbińska, Katarzyna

Published
2020
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39. Civic Engagement in Neighbourhoods regarding serious illness, death and loss (CEIN): a study protocol for a convergent-parallel mixed-methods process and outcome evaluation that balances control and flexibility.

Author

D'Eer, Louise, Chambaere, Kenneth, Van den Block, Lieve, Dury, Sarah, Deliens, Luc, Cohen, Joachim, and Smets, Tinne

Subjects
SOCIAL support, RESEARCH methodology, HEALTH outcome assessment, CATASTROPHIC illness, RESIDENTIAL patterns, DEATH, BEREAVEMENT, SOCIAL responsibility
Abstract

Background: New public health approaches in palliative care attribute an active role to civic society in providing care for those who are seriously ill, caring, or bereaved. Accordingly, Civic Engagement In Neighbourhoods regarding serious illness, dying and loss (CEIN) are emerging worldwide. However, study protocols that advise on how to evaluate the impact and complex social change processes underlying these civic engagement initiatives are lacking. Objectives: The main objective of this study is to describe the study protocol for the evaluation of civic engagement initiatives in serious illness, dying, and loss in two neighbourhoods in Flanders, Belgium. Design: A convergent-parallel mixed-method process and outcome evaluation for the CEIN study. Methods & analysis: We look at the evaluation of CEIN through a critical realist lens, thereby including the social, political, and economic determinants of social change in CEIN, the mechanisms to achieve this social change, the outcomes, and the mutual connection between these three aspects. We will conduct a convergent-parallel mixed-method process and outcome evaluation in which qualitative (i.e. observations, interviews, group discussions, and ego network mapping) and quantitative data (i.e. a pre–post survey) are simultaneously but separately collected and analysed and in the last stage combined by narrative synthesis. Discussion: This protocol illustrates the difficulty of operationalising the desired long-term impact of social changes regarding serious illness, dying, and loss into more manageable outcomes. We recommend a well-cogitated logic model that connects the outcomes of the study to its potential actions. Applying this protocol in practice is a constant exercise between providing sufficient flexibility to meet feasibility, desirability, and context-specific needs in the CEIN study and providing sufficient guidelines to structure and control the evaluation process. [ABSTRACT FROM AUTHOR]

Published
2023
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40. Integrating palliative care in long-term care facilities across Europe (PACE): protocol of a cluster randomized controlled trial of the ‘PACE Steps to Success’ intervention in seven countries

Author

Smets, Tinne, Onwuteaka-Philipsen, Bregje B. D., Miranda, Rose, Pivodic, Lara, Tanghe, Marc, van Hout, Hein, Pasman, Roeline H. R. W., Oosterveld-Vlug, Mariska, Piers, Ruth, Van Den Noortgate, Nele, Wichmann, Anne B., Engels, Yvonne, Vernooij-Dassen, Myrra, Hockley, Jo, Froggatt, Katherine, Payne, Sheila, Szczerbińska, Katarzyna, Kylänen, Marika, Leppäaho, Suvi, Barańska, Ilona, Gambassi, Giovanni, Pautex, Sophie, Bassal, Catherine, Deliens, Luc, Van den Block, Lieve, and on behalf of the PACE trial group

Published
2018
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44. sj-docx-1-pcr-10.1177_26323524221137601 – Supplemental material for Researching two Compassionate Cities: study protocol for a mixed-methods process and outcome evaluation

Author

Quintiens, Bert, Smets, Tinne, Chambaere, Kenneth, Van Den Block, Lieve, Deliens, Luc, and Cohen, Joachim

Subjects
111702 Aged Health Care, FOS: Health sciences
Abstract

Supplemental material, sj-docx-1-pcr-10.1177_26323524221137601 for Researching two Compassionate Cities: study protocol for a mixed-methods process and outcome evaluation by Bert Quintiens, Tinne Smets, Kenneth Chambaere, Lieve Van Den Block, Luc Deliens and Joachim Cohen in Palliative Care and Social Practice

Published
2022
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