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113 results on '"Siegle, Anja"'

6. "There is No Alternative." Treatment Decision‐Making in Lung Cancer Patients with Limited Prognosis: Results of a Qualitative Interview Study.

Author

Unsöld, Laura, Deis, Nicole, Siegle, Anja, Thomas, Michael, Villalobos, Matthias, and Kalhori, Mohammad Reza

Subjects
QUALITATIVE research, INTERVIEWING, CONTENT analysis, DECISION making, CANCER patients, THEMATIC analysis, SOUND recordings, LUNG tumors, RESEARCH methodology
Abstract

Objective. Decision‐making in advanced cancer with a limited prognosis is particularly challenging: constantly evolving therapeutic algorithms with new treatment options that show marginal benefits have to be balanced with end‐of‐life decision‐making. But existing decision support tools for advanced cancer patients are rare, not routinely used in clinical practice and do not sufficiently meet patients' needs. Therefore, our project explores the experienced decision‐making process in advanced lung cancer to derive recommendations for the use of shared decision‐making in this context. Methods. 20 semistructured interviews with lung cancer patients, their relatives, and healthcare professionals were conducted. All data were transcribed verbatim and analyzed with a thematic content analysis. Results. The decision‐making process of advanced cancer patients is mainly characterized by a lack of perceived options. Physicians do not adequately present palliative care as an alternative or additional support for these patients. Being confronted with limited options that only include active cancer treatment patients tend to choose a more paternalistic decision model leaving the treatment decision to their physicians and accepting aggressive treatments uncritically. Conclusion. A paternalistic decision‐making model in advanced cancer may neglect individual wishes, values, and preferences of patients and promote a feeling of powerlessness. Empowerment of these patients is needed with context‐specific SDM tools and trainings of professionals to avoid overtreatment and facilitate the timely integration of palliative care. This trial is registered in DRKS00023674. [ABSTRACT FROM AUTHOR]

Published
2024
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7. Personal Values, Wishes, and Goals of Patients with Advanced Lung Cancer: A Qualitative Study.

Author

König, Mara, Siegle, Anja, Unsöld, Laura, Ludwig, Jan Ole, Deis, Nicole, Thomas, Michael, Poß-Doering, Regina, Villalobos, Matthias, and Abu-Odah, Hammoda

Subjects
*TRANSCENDENCE (Philosophy), *INTERPROFESSIONAL relations, *ACADEMIC medical centers, *RESEARCH funding, *AUTONOMY (Psychology), *INTERVIEWING, *CONTENT analysis, *GOAL (Psychology), *DECISION making in clinical medicine, *PATIENT-centered care, *LUNG tumors, *RESEARCH methodology, *CONCEPTUAL structures, *PHYSICIAN-patient relations, *QUALITY of life, *CANCER patient psychology, *DATA analysis software, *PATIENTS' attitudes, *VALUES (Ethics), *ADVANCE directives (Medical care), *SELF-perception
Abstract

Objective. Oncology and palliative care guidelines for patients with incurable cancer recommend supporting patients at the end of life (EOL) by considering their personal values, wishes, and goals to facilitate decision making in advance care planning and patient‐centered care. It is unclear, though, how to successfully address and integrate personal values in clinical practice. The aim of this study was to explore values, wishes, and goals from the perspective of patients with advanced lung cancer. Methods. Semistructured interviews were conducted with patients with advanced lung cancer and transcribed verbatim. The data were analysed using a structured content analysis. After identification of main categories, values were identified using Schwartz's Theory of Basic Human Values as a theoretical framework. Results. Identified main categories were "the individual in medical care," "living now," and "coming to terms." Values in the dimensions "conservation" and "openness to change" were described concerning patient‐physician interaction, therapy goals, preparedness for EOL, and life goals. "Self‐transcendence" values mainly related to caring for the burden on relatives. In general, patients showed reluctance in expressing information about personal values when communicating with physicians. Conclusion. Patients with advanced lung cancer engage in various ways to determine how they want and can influence their life and medical care. Different values and the associated wishes and goals play a crucial role in this context and should be taken into account by healthcare providers. The reluctance to express personal information in medical encounters underscores the need for a proactive attitude in physicians and improved interprofessional collaboration. The study was registered in the German register for clinical trials (DRKS00026993). [ABSTRACT FROM AUTHOR]

Published
2024
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17. Midwife-led antenatal consultation: towards a communication model

Author

Siegle, Anja and Roes, Martina

Subjects
General Nursing
Abstract

Aim: Evidence on effective communication in antenatal consultations between midwives and pregnant women is lacking. In a study, antenatal consultations implementation outcomes were evaluated. From the data, relevant aspects emerged concerning communication during consultations. This paper presents selected results and proposes a theoretical foundation for antenatal consultations. Design: A qualitative design. Methods: Semi-structured interviews were conducted with ten midwives, eight pregnant women, eight managers, and eight physicians in two hospitals. The interviews were audiotaped, transcribed, and analyzed with framework analysis using the following steps: 1) Familiarization; 2) Coding: first, inductive coding (open coding to identify new themes), followed by deductive coding (by theory-predefined codes); 3) Development and application of an analytic framework; 4) Data-charting in a matrix; and 5) Interpretation. Results: Amongst others, the following findings emerged from the data: communication about childbirth is influenced by the perceptions and conceptions of the midwife and the pregnant woman herself; pregnant women’s degree of participation in the consultation process depends to a significant extent on the attitude of the midwife. Conclusion: To assure the success of consultations, we propose a consultation model comprising the following elements: the life world of the woman and midwife, the construction of a social reality, and the mediation of mutual goals, expectations, intentions, wishes, and beliefs.

Published
2022

22. Vorausschauende Versorgung - Werte, Wünsche und Ziele aus der Perspektive von Patient:innen mit fortgeschrittenem Lungenkrebs: Eine qualitative Analyse

Author

König, Mara, Siegle, Anja, Unsöld, Laura, Deis, Nicole, Ludwig, Jan Ole, Thomas, Michael, and Villalobos-Bollen, Matthias

Subjects
ddc: 610, Medicine and health
Abstract

Hintergrund und Stand (inter)nationaler Forschung: Eine patientenorientierte Versorgung krebskranker Patient:innen mit limitierter Prognose richtet die Behandlungsangebote an den Präferenzen und Werten ihrer Patient:innen aus. Allerdings sind sich Patient:innen oft ihrer handlungsleitenden Werte [zum vollständigen Text gelangen Sie über die oben angegebene URL]

Published
2022
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27. Qualitative Interviews mit vulnerablen Patientengruppen - InterviewerInnen im Spannungsfeld zwischen Objektivität und Empathie

Author

Deis, Nicole, Unsöld, Laura, Siegle, Anja, Thomas, Michael, and Villalobos-Bollen, Matthias

Subjects
ddc: 610, Medicine and health
Abstract

Hintergrund/Fragestellung/Problem: Die Studie HELP hat die Entwicklung und Implementierung von Entscheidungshilfen für LungenkrebspatientInnen mit eingeschränkter Prognose zum Ziel, um bei wichtigen Therapieentscheidungen Unterstützung zu bieten. Um die Entwicklung der Entscheidungshilfen [zum vollständigen Text gelangen Sie über die oben angegebene URL]

Published
2021

28. Effects of an Interprofessional Communication Approach on Support Needs, Quality of Life, and Mood of Patients with Advanced Lung Cancer: A Randomized Trial

Author

Krug, Katja, primary, Bossert, Jasmin, additional, Deis, Nicole, additional, Krisam, Johannes, additional, Villalobos, Matthias, additional, Siegle, Anja, additional, Jung, Corinna, additional, Hagelskamp, Laura, additional, Unsöld, Laura, additional, Jünger, Jana, additional, Thomas, Michael, additional, and Wensing, Michel, additional

Published
2021
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29. Heidelberger Meilenstein Kommunikation (HeiMeKOM) – Erfahrungen, Best Practice Beispiele und Empfehlungen aus dem Abschluss-Symposium am 30./31. Januar 2020

Author

Villalobos, Matthias, primary, Deis, Nicole, primary, Wesselmann, Simone, additional, Seufferlein, Thomas, additional, Ehlers, Frauke, additional, Mahler, Cornelia, additional, Letsch, Anne, additional, Bausewein, Claudia, additional, Krones, Tanja, additional, Gaiser, Karin, additional, Engeser, Peter, additional, Kanzler, Melanie, additional, Lauerer, Michael, additional, Siegle, Anja, additional, Unsöld, Laura, additional, Krug, Katja, additional, Bossert, Jasmin, additional, Nagel, Eckhard, additional, Jünger, Jana, additional, Wensing, Michel, additional, and Thomas, Michael, additional

Published
2021
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32. Additional file 3 of Implementation of the milestones communication approach for patients with limited prognosis: evaluation of intervention fidelity

Author

Bossert, Jasmin, Wensing, Michel, Thomas, Michael, Villalobos, Matthias, Jung, Corinna, Siegle, Anja, Hagelskamp, Laura, Deis, Nicole, Jünger, Jana, and Krug, Katja

Abstract

Additional file 3. Relevant term definitions MCs: Contains the definition of relevant terms from the checklist of MCs and explains them using a suitable example.

Published
2020
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33. Additional file 4 of Implementation of the milestones communication approach for patients with limited prognosis: evaluation of intervention fidelity

Author

Bossert, Jasmin, Wensing, Michel, Thomas, Michael, Villalobos, Matthias, Jung, Corinna, Siegle, Anja, Hagelskamp, Laura, Deis, Nicole, Jünger, Jana, and Krug, Katja

Abstract

Additional file 4. Relevant term definitions Follow-up calls: Contains the definition of relevant terms from the checklist of Follow-up calls and explains them using a suitable example.

Published
2020
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34. Entwicklung einer Question Prompt List für Patienten mit einem metastasierten Lungenkarzinom in Deutschland

Author

Schulte-Vieting, Tamara, Jung, Corinna, Siegle, Anja, Thomas, Michael, and Villalobos, Matthias

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Hintergrund: Question Prompt Lists (QPL), sogenannte Fragenidentifikationslisten, enthalten mögliche Fragen und Themenbereiche, die für Patienten während einer Konsultation wichtig sein können. Viele wissenschaftliche Studien belegen, dass Question Prompt Lists (QPL) (d.h. Fragen-Identifikationslisten)[zum vollständigen Text gelangen Sie über die oben angegebene URL], 18. Deutscher Kongress für Versorgungsforschung (DKVF)

Published
2019

35. Das onkologische Beratungsteam: Ein erweitertes Tätigkeitsfeld der Pflege und seine arbeitszeitliche Verteilung

Author

Unsöld, Laura, Siegle, Anja, Jung, Corinna, Thomas, Michael, and Villalobos, Matthias

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Hintergrund: Das vorliegende Kommunikationskonzept ist ein longitudinales Kommunikationskonzept für Patienten mit limitierter Prognose (Median < 12 Monate). Es wurde anhand des metastasierten Lungenkarzinoms als Modellerkrankung entwickelt. Als eines der ersten Interventionsmodelle schafft[zum vollständigen Text gelangen Sie über die oben angegebene URL], 18. Deutscher Kongress für Versorgungsforschung (DKVF)

Published
2019
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38. Heidelberger Meilenstein Kommunikation (HeiMeKOM) – Erfahrungen, Best Practice Beispiele und Empfehlungen aus dem Abschluss-Symposium am 30./31. Januar 2020.

Author

Villalobos, Matthias, Deis, Nicole, Wesselmann, Simone, Seufferlein, Thomas, Ehlers, Frauke, Mahler, Cornelia, Letsch, Anne, Bausewein, Claudia, Krones, Tanja, Gaiser, Karin, Engeser, Peter, Kanzler, Melanie, Lauerer, Michael, Siegle, Anja, Unsöld, Laura, Krug, Katja, Bossert, Jasmin, Nagel, Eckhard, Jünger, Jana, and Wensing, Michel

Published
2022
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39. Additional file 2: of The Heidelberg Milestones Communication Approach (MCA) for patients with prognosis <12Â months: protocol for a mixed-methods study including a randomized controlled trial

Author

Siegle, Anja, Villalobos, Matthias, Bossert, Jasmin, Krug, Katja, Hagelskamp, Laura, Krisam, Johannes, Handtke, Violet, Deis, Nicole, JĂźnger, Jana, Wensing, Michel, and Thomas, Michael

Abstract

SPIRIT 2013 Checklist: Recommended items to address in a clinical trial protocol and related documents*. (PDF 144 kb)

Published
2018
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