1. Implementation of shared decision-making and patient-centered care in France: Towards a wider uptake in 2022
- Author
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Nora Moumjid, Marie-Anne Durand, Julien Carretier, Elodie Charuel, Jocelyne Daumer, Julie Haesebaert, Sandrine Hild, Julien Mancini, Giovanna Marsico, Cédric Rat, Yves Zerbib, Yves-Marie Vincent, François Blot, Université Claude Bernard Lyon 1 (UCBL), Université de Lyon, Centre d'Epidémiologie et de Recherche en santé des POPulations (CERPOP), Université Toulouse III - Paul Sabatier (UT3), Université de Toulouse (UT)-Université de Toulouse (UT)-Institut National de la Santé et de la Recherche Médicale (INSERM), Centre universitaire de médecine générale et santé publique (Unisanté), Université de Lausanne = University of Lausanne (UNIL), Dartmouth College [Hanover], Centre Léon Bérard [Lyon], AutomédiCation aCcompagnement Pluriprofessionnel PatienT (ACCePPT), Université Clermont Auvergne (UCA), Lyon Patients' Committee [Lyon] (LPC), Research on Healthcare Performance (RESHAPE - Inserm U1290 - UCBL1), Université de Lyon-Université de Lyon-Institut National de la Santé et de la Recherche Médicale (INSERM), Hospices Civils de Lyon (HCL), Collège national français des enseignants en médecine générale [Paris] (CNFEMG), Centre hospitalier universitaire de Nantes (CHU Nantes), Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale (SESSTIM - U1252 INSERM - Aix Marseille Univ - UMR 259 IRD), Institut de Recherche pour le Développement (IRD)-Aix Marseille Université (AMU)-Institut National de la Santé et de la Recherche Médicale (INSERM), Institut Paoli-Calmettes, Fédération nationale des Centres de lutte contre le Cancer (FNCLCC), Maison Médicale Jeanne Garnier [Paris], CHU Bordeaux [Bordeaux], Département interdisciplinaire d’organisation des parcours patients (DIOPP), and Institut Gustave Roussy (IGR)
- Subjects
MESH: Decision Making ,Patient-centered care ,[SDV]Life Sciences [q-bio] ,Decision Making ,Patientenschulung ,Medicine (miscellaneous) ,MESH: Patient Participation ,MESH: Patient-Centered Care ,Education ,Germany ,Geteilte Entscheidungsfindung ,Humans ,Patientenzentrierte Versorgung ,MESH: Germany ,Shared decision-making ,MESH: Humans ,Health Policy ,Healthcare professionals training ,Schulung von Gesundheitsfachkräften ,Entscheidungshilfen ,Patient training ,Patientenrechte ,Decision aids ,MESH: Health Policy ,Patient Participation ,Patient rights - Abstract
International audience; We present the evolution of patient-centered care (PCC) and shared decision-making (SDM) in France since 2017, highlighting advantages and drawbacks of their implementation at the macro level. We then focus on several key policy and legislative milestones that are aimed to develop PCC and SDM. These milestones underline the importance of patient movements to support and fund the development of research and practice in the field. We shall conclude by presenting the growing research agenda and selected key topics. These key topics notably include the increase in both patient and healthcare professional trainings on PCC and SDM provided by healthcare users' and patients' representatives. PCC and SDM continue to be central preoccupations at the macro level, supported by public health policies and patients/healthcare users' actions. This overview, however, suggests that although implementation initiatives have increased since 2017, implementation remains scarce in routine clinical practice. Funding, not only for research projects, but for the implementation of PCC and SDM in real-life settings (e-decision aids, clinical guidelines integrating PCC/SDM, human resources dedicated to PCC/SDM, etc.) are needed to promote sustained adoption. More systematic training for both healthcare professionals and patients is also warranted for a true acculturation to occur.
- Published
- 2022