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2 results on '"Scholtes, Emily"'

1. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants

Author

Wolf, Susan M., primary, Scholtes, Emily, additional, Koenig, Barbara A., additional, Petersen, Gloria M., additional, Berry, Susan A., additional, Beskow, Laura M., additional, Daly, Mary B., additional, Fernandez, Conrad V., additional, Green, Robert C., additional, LeRoy, Bonnie S., additional, Lindor, Noralane M., additional, O'Rourke, P. Pearl, additional, Breitkopf, Carmen Radecki, additional, Rothstein, Mark A., additional, Van Ness, Brian, additional, and Wilfond, Benjamin S., additional

Published
2018
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2. Incorporating Cost into the Return of Incidental Findings Calculus: Defining a Responsible Default for Genetics and Genomics Researchers.

Author

Scholtes, Emily

Subjects
*INCIDENTAL findings (Medicine), *DIAGNOSIS, *MEDICAL research, *MEDICAL screening -- Law & legislation, *GENETICS laws, *MEDICAL record laws, *ETHICS, *LAW
Abstract

The article analyzes the cost implications of a duty to return incidental findings and how these cost implications should shape future policy recommendations for genetics and genomics research. It reports the need of a responsible default rule to apply when researchers are not sure whether offering to return results is appropriate in the U.S.

Published
2016

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