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6 results on '"Santos, Lourdes E."'

1. Comparative aspects of the care of familial hypercholesterolemia in the “Ten Countries Study”

Author

Pang, Jing, Chan, Dick C., Hu, Miao, Muir, Lauretta A., Kwok, See, Charng, Min-Ji, Florkowski, Christopher M., George, Peter M., Lin, Jie, Loi, Do Doan, Marais, A. David, Nawawi, Hapizah M., Gonzalez-Santos, Lourdes E., Su, Ta-Chen, Truong, Thanh Huong, Santos, Raul D., Soran, Handrean, Tomlinson, Brian, Yamashita, Shizuya, Ademi, Zanfina, and Watts, Gerald F.

Published
2019
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2. Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC)

Author

Vallejo-Vaz, Antonio J., De Marco, Martina, Stevens, Christophe A.T., Akram, Asif, Freiberger, Tomas, Hovingh, G. Kees, Kastelein, John J.P., Mata, Pedro, Raal, Frederick J., Santos, Raul D., Soran, Handrean, Watts, Gerald F., Abifadel, Marianne, Aguilar-Salinas, Carlos A., Al-khnifsawi, Mutaz, AlKindi, Fahad A., Alnouri, Fahad, Alonso, Rodrigo, Al-Rasadi, Khalid, Al-Sarraf, Ahmad, Ashavaid, Tester F., Binder, Christoph J., Bogsrud, Martin P., Bourbon, Mafalda, Bruckert, Eric, Chlebus, Krzysztof, Corral, Pablo, Descamps, Olivier, Durst, Ronen, Ezhov, Marat, Fras, Zlatko, Genest, Jacques, Groselj, Urh, Harada-Shiba, Mariko, Kayikcioglu, Meral, Lalic, Katarina, Lam, Carolyn S.P., Latkovskis, Gustavs, Laufs, Ulrich, Liberopoulos, Evangelos, Lin, Jie, Maher, Vincent, Majano, Nelson, Marais, A. David, März, Winfried, Mirrakhimov, Erkin, Miserez, André R., Mitchenko, Olena, Nawawi, Hapizah M., Nordestgaard, Børge G., Paragh, György, Petrulioniene, Zaneta, Pojskic, Belma, Postadzhiyan, Arman, Reda, Ashraf, Reiner, Željko, Sadoh, Wilson E., Sahebkar, Amirhossein, Shehab, Abdullah, Shek, Aleksander B., Stoll, Mario, Su, Ta-Chen, Subramaniam, Tavintharan, Susekov, Andrey V., Symeonides, Phivos, Tilney, Myra, Tomlinson, Brian, Truong, Thanh-Huong, Tselepis, Alexandros D., Tybjærg-Hansen, Anne, Vázquez-Cárdenas, Alejandra, Viigimaa, Margus, Vohnout, Branislav, Widén, Elisabeth, Yamashita, Shizuya, Banach, Maciej, Gaita, Dan, Jiang, Lixin, Nilsson, Lennart, Santos, Lourdes E., Schunkert, Heribert, Tokgözoğlu, Lale, Car, Josip, Catapano, Alberico L., and Ray, Kausik K.

Published
2018
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3. Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

Author

Vallejo-Vaz, Antonio J., Akram, Asif, Kondapally Seshasai, Sreenivasa Rao, Cole, Della, Watts, Gerald F., Hovingh, G. Kees, Kastelein, John J.P., Mata, Pedro, Raal, Frederick J., Santos, Raul D., Soran, Handrean, Freiberger, Tomas, Abifadel, Marianne, Aguilar-Salinas, Carlos A., Alnouri, Fahad, Alonso, Rodrigo, Al-Rasadi, Khalid, Banach, Maciej, Bogsrud, Martin P., Bourbon, Mafalda, Bruckert, Eric, Car, Josip, Ceska, Richard, Corral, Pablo, Descamps, Olivier, Dieplinger, Hans, Do, Can T., Durst, Ronen, Ezhov, Marat V., Fras, Zlatko, Gaita, Dan, Gaspar, Isabel M., Genest, Jaques, Harada-Shiba, Mariko, Jiang, Lixin, Kayikcioglu, Meral, Lam, Carolyn S.P., Latkovskis, Gustavs, Laufs, Ulrich, Liberopoulos, Evangelos, Lin, Jie, Lin, Nan, Maher, Vincent, Majano, Nelson, Marais, A. David, März, Winfried, Mirrakhimov, Erkin, Miserez, André R., Mitchenko, Olena, Nawawi, Hapizah, Nilsson, Lennart, Nordestgaard, Børge G., Paragh, György, Petrulioniene, Zaneta, Pojskic, Belma, Reiner, Željko, Sahebkar, Amirhossein, Santos, Lourdes E., Schunkert, Heribert, Shehab, Abdullah, Slimane, M. Naceur, Stoll, Mario, Su, Ta-Chen, Susekov, Andrey, Tilney, Myra, Tomlinson, Brian, Tselepis, Alexandros D., Vohnout, Branislav, Widén, Elisabeth, Yamashita, Shizuya, Catapano, Alberico L., and Ray, Kausik K.

Published
2016
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4. An enquiry based on a standardised questionnaire into knowledge, awareness and preferences concerning the care of familial hypercholesterolaemia among primary care physicians in the Asia-Pacific region: the “Ten Countries Study”

Author

Pang, Jing, primary, Hu, Miao, additional, Lin, Jie, additional, Miida, Takashi, additional, Nawawi, Hapizah M, additional, Park, Jeong Euy, additional, Wu, Xue, additional, Ramli, Anis S, additional, Kim, Ngoc Thanh, additional, Kwok, See, additional, Gonzalez-Santos, Lourdes E, additional, Su, Ta-Chen, additional, Truong, Thanh Huong, additional, Soran, Handrean, additional, Yamashita, Shizuya, additional, Tomlinson, Brian, additional, and Watts, Gerald F, additional

Published
2017
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5. Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes

Author

University of Helsinki, Institute for Molecular Medicine Finland (FIMM), Vallejo-Vaz, Antonio J., Akram, Asif, Seshasai, Sreenivasa Rao Kondapally, Cole, Della, Watts, Gerald F., Hovingh, G. Kees, Kastelein, John J. P., Mata, Pedro, Raal, Frederick J., Santos, Raul D., Soran, Handrean, Freiberger, Tomas, Abifadel, Marianne, Aguilar-Salinas, Carlos A., Alnouri, Fahad, Alonso, Rodrigo, Al-Rasadi, Khalid, Banach, Maciej, Bogsrud, Martin P., Bourbon, Mafalda, Bruckert, Eric, Car, Josip, Ceska, Richard, Corral, Pablo, Descamps, Olivier, Dieplinger, Hans, Do, Can T., Durst, Ronen, Ezhov, Marat V., Fras, Zlatko, Gaita, Dan, Gaspar, Isabel M., Genest, Jaques, Harada-Shiba, Mariko, Jiang, Lixin, Kayikcioglu, Meral, Lam, Carolyn S. P., Latkovskis, Gustavs, Laufs, Ulrich, Liberopoulos, Evangelos, Lin, Jie, Lin, Nan, Maher, Vincent, Majano, Nelson, Marais, A. David, Maerz, Winfried, Mirrakhimov, Erkin, Miserez, Andre R., Mitchenko, Olena, Nawawi, Hapizah, Nilsson, Lennart, Nordestgaard, Borge G., Paragh, Gyorgy, Petrulioniene, Zaneta, Pojskic, Belma, Reiner, Zeljko, Sahebkar, Amirhossein, Santos, Lourdes E., Schunkert, Heribert, Shehab, Abdullah, Slimane, M. Naceur, Stoll, Mario, Su, Ta-Chen, Susekov, Andrey, Tilney, Myra, Tomlinson, Brian, Tselepis, Alexandros D., Vohnout, Branislav, Widen, Elisabeth, Yamashita, Shizuya, Catapano, Alberico L., Ray, Kausik K., EAS Familial Hypercholesterolaemia, University of Helsinki, Institute for Molecular Medicine Finland (FIMM), Vallejo-Vaz, Antonio J., Akram, Asif, Seshasai, Sreenivasa Rao Kondapally, Cole, Della, Watts, Gerald F., Hovingh, G. Kees, Kastelein, John J. P., Mata, Pedro, Raal, Frederick J., Santos, Raul D., Soran, Handrean, Freiberger, Tomas, Abifadel, Marianne, Aguilar-Salinas, Carlos A., Alnouri, Fahad, Alonso, Rodrigo, Al-Rasadi, Khalid, Banach, Maciej, Bogsrud, Martin P., Bourbon, Mafalda, Bruckert, Eric, Car, Josip, Ceska, Richard, Corral, Pablo, Descamps, Olivier, Dieplinger, Hans, Do, Can T., Durst, Ronen, Ezhov, Marat V., Fras, Zlatko, Gaita, Dan, Gaspar, Isabel M., Genest, Jaques, Harada-Shiba, Mariko, Jiang, Lixin, Kayikcioglu, Meral, Lam, Carolyn S. P., Latkovskis, Gustavs, Laufs, Ulrich, Liberopoulos, Evangelos, Lin, Jie, Lin, Nan, Maher, Vincent, Majano, Nelson, Marais, A. David, Maerz, Winfried, Mirrakhimov, Erkin, Miserez, Andre R., Mitchenko, Olena, Nawawi, Hapizah, Nilsson, Lennart, Nordestgaard, Borge G., Paragh, Gyorgy, Petrulioniene, Zaneta, Pojskic, Belma, Reiner, Zeljko, Sahebkar, Amirhossein, Santos, Lourdes E., Schunkert, Heribert, Shehab, Abdullah, Slimane, M. Naceur, Stoll, Mario, Su, Ta-Chen, Susekov, Andrey, Tilney, Myra, Tomlinson, Brian, Tselepis, Alexandros D., Vohnout, Branislav, Widen, Elisabeth, Yamashita, Shizuya, Catapano, Alberico L., Ray, Kausik K., and EAS Familial Hypercholesterolaemia

Abstract

Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atherosclerosis Society FH Studies Collaboration (EAS FHSC) is a new initiative of international stakeholders which will help establish a global FH registry to generate large-scale, robust data on the burden of FH worldwide. Methods: The EAS FHSC will maximise the potential exploitation of currently available and future FH data (retrospective and prospective) by bringing together regional/national/international data sources with access to individuals with a clinical and/or genetic diagnosis of heterozygous or homozygous FH. A novel bespoke electronic platform and FH Data Warehouse will be developed to allow secure data sharing, validation, cleaning, pooling, harmonisation and analysis irrespective of the source or format. Standard statistical procedures will allow us to investigate cross-sectional associations, patterns of real-world practice, trends over time, and analyse risk and outcomes (e.g. cardiovascular outcomes, all-cause death), accounting for potential confounders and subgroup effects. Conclusions: The EAS FHSC represents an excellent opportunity to integrate individual efforts across the world to tackle the global burden of FH. The information garnered from the registry will help reduce gaps in knowledge, inform best practices, assist in clinical trials design, support clinical guidelines and policies development, and ultimately improve the care of FH patients. (C) 2016 Elsevier Ireland Ltd.

Published
2016

6. An enquiry based on a standardised questionnaire into knowledge, awareness and preferences concerning the care of familial hypercholesterolaemia among primary care physicians in the Asia-Pacific region: the "Ten Countries Study".

Author

Jing Pang, Miao Hu, Jie Lin, Takashi Miida, Hapizah M. Nawawi, Jeong Euy Park, Xue Wu, Ramli, Anis S., Ngoc Thanh Kim, See Kwok, Gonzalez-Santos, Lourdes E., Ta-Chen Su, Thanh Huong Truong, Soran, Handrean, Shizuya Yamashita, Tomlinson, Brian, and Watts, Gerald F.

Abstract

Objective To determine physicians' knowledge, awareness and preferences regarding the care of familial hypercholesterolaemia (FH) in the Asia-Pacific region. Setting A formal questionnaire was anonymously completed by physicians from different countries/regions in the Asia-Pacific. The survey sought responses relating to general familiarity, awareness of management guidelines, identification (clinical characteristics and lipid profile), prevalence and inheritance, extent of elevation in risk of cardiovascular disease (CVD) and practice on screening and treatment. Participants Practising community physicians from Australia, Japan, Malaysia, South Korea, Philippines, Hong Kong, China, Vietnam and Taiwan were recruited to complete the questionnaire, with the UK as the international benchmark. Primary outcome An assessment and comparison of the knowledge, awareness and preferences of FH among physicians in 10 different countries/regions. Results 1078 physicians completed the questionnaire from the Asia-Pacific region; only 34% considered themselves to be familiar with FH. 72% correctly described FH and 65% identified the typical lipid profile, with a higher proportion of physicians from Japan and China selecting the correct FH definition and lipid profile compared with those from Vietnam and Philippines. However, less than half of the physician were aware of national or international management guidelines; this was significantly worse than physicians from the UK (35% vs 61%, p<0.001). Knowledge of prevalence (24%), inheritability (41%) and CVD risk (9%) of FH were also suboptimal. The majority of the physicians considered laboratory interpretative commenting as being useful (81%) and statin therapy as an appropriate cholesterollowering therapy (89%) for FH management. [ABSTRACT FROM AUTHOR]

Published
2017
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