1. Common data elements for epilepsy mobile health systems
- Author
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Goldenholz, DM, Moss, R, Jost, DA, Crone, NE, Krauss, G, Picard, R, Caborni, C, Cavazos, JE, Hixson, J, Loddenkemper, T, Salazar, TD, Lubbers, L, Harte-Hargrove, LC, Whittemore, V, Duun-Henriksen, J, Dolan, E, Kasturia, N, Oberemk, M, Cook, MJ, Lehmkuhle, M, Sperling, MR, Shafer, PO, Goldenholz, DM, Moss, R, Jost, DA, Crone, NE, Krauss, G, Picard, R, Caborni, C, Cavazos, JE, Hixson, J, Loddenkemper, T, Salazar, TD, Lubbers, L, Harte-Hargrove, LC, Whittemore, V, Duun-Henriksen, J, Dolan, E, Kasturia, N, Oberemk, M, Cook, MJ, Lehmkuhle, M, Sperling, MR, and Shafer, PO
- Abstract
OBJECTIVE: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. METHODS: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. RESULTS: A consensus statement is presented for epilepsy mHealth CDEs. SIGNIFICANCE: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
- Published
- 2018