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Our study seeks to elucidate meanings of healthcare encounters for women with chronic obstructive pulmonary disease stage III or IV. We conducted 12 narrative interviews which were analyzed using phenomenological hermeneutic interpretation. Our analysis revealed one theme; being met as a person and not as a diagnosis with three subthemes: getting sufficient time and feeling involved in care; fulfillment of personal needs; and experiencing disrespect and injustice. We found that meanings of healthcare encounters center on the expectation of being seen as a person. Feeling disrespected and injust leaves women unsupported and could pose serious health risks.

Chronic obstructive pulmonary disease stage III or IV is a progressive and incurable disease. The hallmark of the disease is breathlessness, and it is graded into four different stages, from mild to severe. Living with chronic obstructive pulmonary disease impacts almost every aspect of everyday life for an affected person. As the illness progresses to stages III and IV, the need for support from close relatives increases. The aim of this study was to explore and describe the experiences of close relatives of women with chronic obstructive pulmonary disease stage III or IV and it used qualitative content analysis of individual, semi-structured interviews. Close relatives (n = 9) were interviewed about their experience of being close to a woman with chronic obstructive pulmonary disease stage III or IV. They experienced stress and uncertainty in an unpredictable everyday life. Close relatives supported the women both practically and emotionally and they called for tailored information about the illness, considering it as an essential tool for support. The results highlighted that healthy close relatives had difficulty in understanding the experience of living with chronic obstructive pulmonary, as they take the simple fact of breathing for granted most of the time.

Background Living with chronic obstructive pulmonary disease stage III or IV means living an everyday life, severely restricted by breathlessness. Aim The aim of this study was to elucidate meanings of feeling well for women with chronic obstructive pulmonary disease stage III or IV. Method The study has used a phenomenological hermeneutical design. Individual narrative interviews were conducted with 14 women with chronic obstructive pulmonary disease at stages III or IV. Results The results revealed one theme: striving for moments of easier breathing despite being trapped in breathlessness with four subthemes: acting in rhythm with breathing, taking care of oneself, taking advantage of better moments, and being in togetherness in everyday life. Conclusion This study shows that women with chronic obstructive pulmonary disease at stages III or IV strived for moments of feeling well despite living with a severe illness. Feeling well meant that when connected to nature, they felt alive, free, and less trapped in breathlessness, which provided a sense of being unconscious of their breathing rhythm. They could do what healthy people tend to take for granted during everyday life. To feel well, the women found it important to receive tailored support from their close relatives.

In this study, we aimed to explore and describe the experiences of parents whose children have been diagnosed with type 1 diabetes (T1D) and the transitions of daily life. T1D is a long-term illness, and parents of children with T1D often become informal caregivers and face many challenges in their daily lives. A qualitative study design, in line with interpretive description, was used, and a sample of 10 parents of children with T1D participated in individual interviews. The COnsolidated criteria for REporting Qualitative Research (COREQ) checklist was used. The interviews were analyzed using interpretive descriptions. The analysis resulted in one main theme: “The realization of having taken ‘daily life’ for granted and having to accept a new reality,” with six themes showing different transitions in the parents' daily lives, including transitions in daily life patterns, parenthood, in relationships with family and friends, relationships with school personnel, relationships with healthcare personnel, and in knowledge and learning about the illness. Parents experienced multifaceted changes that affected their lives, as shown by the six identified transitions. Being the parent of a child with T1D implies a new reality with complex, irreversible life changes that may be unknown and unspoken to healthcare professionals and society. Healthcare systems, school personnel, and society at large need to improve their knowledge regarding parents' situations to better support them in embracing a new reality for themselves and their children long after the onset of T1D.

Aims: The aim of this hermeneutic study was to explore and elucidate the lived experiences of young people living with type 1 diabetes in terms of their everyday life and school in Sweden. Design: A qualitative interview study with a hermeneutic approach inspired by Gadamer's thinking. Methods: Interviews were conducted with a purposive sample of seven girls and three boys with type 1 diabetes between January and September 2017 and analysed with a hermeneutic method. Results: Young peoples' everyday lives were transformed and re-organized by their illness and they parodically live a double-edged everyday life. To support young people's healthcare personnel, headmasters and teachers must understand this double-edged situation.

Background: Living with chronic obstructive pulmonary disease stage III or IV has a major impact on a person's everyday life. This qualitative study focuses on women with chronic obstructive pulmonary disease stage III or IV. Aim: The aim of this study was to describe women's experiences of living with chronic obstructive pulmonary disease stage III or IV. Method: A purposive sample of fifteen women with chronic obstructive pulmonary disease stage III or IV participated in the study. Data were collected through individual semi-structured interviews that were subjected to qualitative content analysis. Findings: One theme was identified, stabilizing an ever-present breathlessness by restoring strength, and three categories are as follows: managing a restricted everyday life as an expert of their illness, being afraid of contracting infections leading to suffocation and suffering and importance of continuous help and support from significant others and digital media. Breathlessness restricted women with chronic obstructive pulmonary disease, living with a body they have to wait for. Managing everyday life was adapted to their limited abilities and energy. This required detailed planning, good knowledge of their breathing and body. Women were afraid of contracting life-threatening infections that caused suffering, especially COVID-19. The fear leads to isolation and digital media was described as an important means of communication. Significant others gave support and help that was practical and emotional. Women with chronic obstructive pulmonary disease experienced lack of continuous help and support from healthcare professionals. Conclusion: Stabilizing an ever-present breathlessness by restoring strength required women with chronic obstructive pulmonary disease stage III or IV to conduct detailed planning to manage everyday life. Being afraid of contracting infections and the consequences of suffocation had increased since the pandemic COVID-19 outbreak, which led to

AIM: To describe the experiences of dignity encounters from the perspective of people with long-term illness and their close relatives within a primary healthcare setting. BACKGROUND: The importance of dignity as a concept in nursing care is well known, and in every healthcare encounter, the patient's dignity has to be protected. METHODS: A purposive sample of 10 people (5 couples) participated in this qualitative descripted study. One person in each of the couples had a long-term illness. Conjoint interviews were conducted and analyzed with an inductive qualitative content analysis. RESULTS: The analysis resulted in three themes: i) Being supported by an encouraging contact; ii) Being listen to and understood; and iii) Being met with respect. Couples described being encountered with dignity as having accessibility to care in terms of being welcomed with their needs and receiving help. Accessibility promoted beneficial contact with healthcare personnel, who empowered the couples with guidance and support. Couples described a dignity encounter when healthcare personnel confirmed them as valuable and important persons. A dignity encounter was promoted their sense of feeling satisfied with the care they received and promoted safe care. Treated with dignity had a positive impact on the couples' health and well-being and enhanced their sense of a good impression of the healthcare personnel within the primary health care. CONCLUSIONS: Healthcare personnel must regard and consider people with long-term illnesses and their close relatives' experiences of dignity encounters to gain an understanding that enables them to support their needs and to know that the care is directed toward them., open access

Background A common long-term illness in Sweden is chronic obstructive pulmonary disease. Women living with the illness have an increasing disease burden. Everyday life is heavily impacted due to the women’s bodily restrictions’ foremost breathlessness, and fear of infections. Fear lead to isolation and thereby a shrinking life. The digital paradigm shift in our society has changed the way we communicate, socialize and work. Aim To describe the experiences of women living with chronic obstructive pulmonary disease stage III or IV. Method The study has a qualitative descriptive design. Individual semi-structured interviews were performed with a purposive sample of 15 women diagnosed with chronic obstructive pulmonary disease stage III or IV. The interview texts were analyzed with qualitative thematic content analysis. This study was approved by the Swedish Ethical Review Authority. Findings The findings are presented in one theme, stabilizing an ever-present breathlessness by restoring strength, and three categories; managing a restricted everyday life as an expert of their illness, being afraid of contracting infections leading to suffocation and suffering, importance of continuous help and support from significant others and digital media. Women were helped to manage and adapt to their limited abilities and energy by detailed planning, and good knowledge of their breathing and body. Women were afraid of contracting life-threatening infections, especially COVID-19. Fear led to self-isolation, digital media were described as an important means of communication. Women lacked continuity, participation, and support from healthcare professionals. Conclusion Women with chronic obstructive pulmonary disease stage III or IV lived an everyday life highly impacted by their illness. The use of digital care could alleviate suffering for women with COPD stage III or IV enabling safe, accessible, and individual support. By gaining understanding of the needs of women with COPD and

Background A common long-term illness in Sweden is chronic obstructive pulmonary disease. Women living with the illness have an increasing disease burden. Everyday life is heavily impacted due to the women’s bodily restrictions’ foremost breathlessness, and fear of infections. Fear lead to isolation and thereby a shrinking life. The digital paradigm shift in our society has changed the way we communicate, socialize and work. Aim To describe the experiences of women living with chronic obstructive pulmonary disease stage III or IV. Method The study has a qualitative descriptive design. Individual semi-structured interviews were performed with a purposive sample of 15 women diagnosed with chronic obstructive pulmonary disease stage III or IV. The interview texts were analyzed with qualitative thematic content analysis. This study was approved by the Swedish Ethical Review Authority. Findings The findings are presented in one theme, stabilizing an ever-present breathlessness by restoring strength, and three categories; managing a restricted everyday life as an expert of their illness, being afraid of contracting infections leading to suffocation and suffering, importance of continuous help and support from significant others and digital media. Women were helped to manage and adapt to their limited abilities and energy by detailed planning, and good knowledge of their breathing and body. Women were afraid of contracting life-threatening infections, especially COVID-19. Fear led to self-isolation, digital media were described as an important means of communication. Women lacked continuity, participation, and support from healthcare professionals. Conclusion Women with chronic obstructive pulmonary disease stage III or IV lived an everyday life highly impacted by their illness. The use of digital care could alleviate suffering for women with COPD stage III or IV enabling safe, accessible, and individual support. By gaining understanding of the needs of women with COPD and

When an older person suffers an acute event, such as a hip fracture, it influences the whole family. Research shows that while close relatives want to be a part of the older person’s life during recovery it is associated with a high perceived level of stress and burden. To provide in-depth knowledge of close relatives’ experiences in this situation, the aim of this study was to elucidate meanings of being a close relative to an older person recovering from hip fracture surgery. This study has a qualitative descriptive phenomenological hermeneutical design. Narrative interviews were conducted with ten close relatives. Analysis was conducted using phenomenological hermeneutical interpretation which provided a deeper understanding of the close relatives’ lived experiences of their older person’s recovery from hip fracture surgery. The structural analysis revealed two themes; “Participating in the illness journey”, which was constructed of the subthemes of facing the unimaginable yet expected, encountering healthcare personnel, and noticing recovery and “Putting oneself aside”, which was constructed of the subthemes of placing daily life on hold, giving support, and feeling concern and fear., Delarbete i diss. med titeln: "Being a helper: Meanings of being a close relative to an older person recovering from hip fracture".

Purpose The aim of this study was to elucidate meanings of participation in care for older people after hip fracture surgery and nurses working in an orthopaedic ward. Methods A qualitative phenomenological hermeneutical design was used. We conducted personal interviews with a narrative approach with 11 older people recovering from hip fracture surgery and 12 nurses working in an orthopaedic ward. Results The results show that for older people, participation meant being a co-creator in their own care, founded on being met with sensitivity and support, being told what is going to happen, taking responsibility and asking questions and being able to influence care. For nurses, patient participation meant meeting the patients' needs and requests by being open and allowing them to influence care while at the same time recognizing that the patients' possibility to influence care was limited. Conclusion The study shows that for older people and nurses, the phenomenon of participation has similar meanings but also differences. When older people participate in their care, they become a co-creator in care and confirmed as a person. This highlights the importance of a nurse-patient relationship built on trust, connectedness and communication based on a shared understanding.

Objective: The aim of this study was to describe the views and expectations concerning home healthcare from the perspective of older South Sami women and men in comparison with each other. Study design and methods: In this study, 56 older South Sami women (n=31) and men (n=25) were interviewed by telephone, using semi-structured interviews. Data was subjected to qualitative content analysis. Results: Our results revealed both similarities and some slight differences between the male and female participants. Both male and female participants expected the same care providers over time, in addition to expecting competence. Additionally, our female participants stressed that care providers should use time in their encounters with them as care receivers. For some female participants, this was related to competence. The findings also revealed that the care providers’ cultural backgrounds were of importance to both female and male participants, even if female participants preferred care providers with a South Sami background to a greater extent. The male participants stressed that having care providers with a South Sami background could be of importance, but they were more concerned about the care providers’ competence in the encounters with them as future care receivers. The main findings show that older South Sami women and men mostly have similar expectations of future home healthcare. Conclusions: Our results highlight that having the same care providers over time, with the necessary competence, is of importance to our participants. Additionally, participants prefer their care providers to have a South Sami background – although not at the expense of competence – and this was especially highlighted by the South Sami men. Implications for research, policy, and practice: Our study indicates that, if possible, in encounters with South Sami women and men, home healthcare services should facilitate for the same care providers over time and that they should be competent, pre

BackgroundHealthcare professionals in paediatric care face great demands to provide high-quality acute care and support for young people with long-term illnesses, such as type 1 diabetes. This study aims to describe healthcare professionals' experiences of supporting young people with type 1 diabetes in order to improve care. MethodsA qualitative research design was used to conduct individual interviews with seven healthcare professionals. The interview transcripts were subjected to inductive qualitative thematic content analysis. ResultsFour themes were identified: strengthening young people's motivation, sharing knowledge for better support, the imbalance between resources and needs and the transition of responsibility to the young person and their family. ConclusionsHealthcare professionals described motivating young people to improve their metabolic control by using a person-centred approach. Working in a team strengthened cross-professional perspectives, competence and understanding of young people's support needs and developed diabetes care. The transition of responsibility from healthcare to families and young people was important in improving glycemic control. The increased imbalance in resources and support needs in diabetes care must be addressed at a societal level and adapted according to today's needs., Diabetes i skolan DiS

We examined gynecological teaching women’s perception on what factors are important for developing a trustful patient-professional relationship when women undergo a pelvic examination. A qualitative research design was conducted with repeated focus group discussions. Our results show that healthcare professionals’ communications skills can strengthen a trustful patient-professional relationship. Treating women with dignity could make them feel less vulnerable and make the relationship trustworthy based on respect. Thus, having the ability to identify factors important for a trustful relationship may support healthcare professional’s ability to strengthen women’s health issues. A trustful relationship might also affect quality of care.

Introduction Living with whiplash‐associated disorders (WAD) means living every day under the influence of pain and limitations. As the incidence of WAD and the related intensity of pain are somewhat higher among women than men, the aim of the present study was to describe women's experiences of living with WAD. Methods A purposive sample of seven women participated in individual in‐depth qualitative interviews, the transcripts of which were subjected to qualitative content analysis. Results The results of the analysis suggested six themes of women's experiences with WAD: living with unpredictable pain; trying to manage the pain; living with limitations; being unable to work as before; needing support and understanding; and learning to live with limitations. The findings showed that unpredictable pain limited women's strength to engage in activities of daily life and be as active as before. Support and understanding were important for their ability to manage changes in their daily lives. Conclusions Pain considerably affects the daily lives of women with WAD, particularly by limiting their ability to perform activities and to enjoy their professional and social lives. As women with WAD need support with managing their daily lives, nurses and other healthcare personnel should adopt a person‐centred approach, in order to support such women according to their individual needs and circumstances.

The Sami are an indigenous population with multiple languages and dialects living in northern areas of Sweden, Norway, Finland, and the Kola Peninsula. The South Sami population lives in central regions of Sweden and Norway, and consist of about 2000 people. In this study, 56 older South Sami people from Sweden participated. Semi-structured interviews were conducted over the telephone and analysed through qualitative content analysis. The main findings show that older South Sami people's expectations of having care providers with a South Sami background speaking South Sami in home nursing care contain contradictions in and between participants. Participants had different preferences regarding having care providers with a South Sami background speaking South Sami in the future. When providing care to older South Sami people, individual adjustments are of importance, and our study showed that participants had different expectations despite having similar backgrounds.

This study is part of a larger research project designed to examine the view of home nursing care from the perspective of older South Sami people in Sweden. In the present study, we present findings from the point of view of their expectations of home nursing care. The Sami are an indigenous population living in northern Sweden, Norway, Finland and the Kola Peninsula, and consist of different Sami people, of which the South Sami population is one. This population consists of approximately 2000 persons living in the central regions of Sweden and Norway. Fifty-six older South Sami people participated in the study. Semi-structured interviews were conducted over the telephone and were analysed using latent content analysis. The main findings show how older South Sami people's expectation for home nursing care contains the same care providers over time, individual adjustments and competent care providers and do not differ from the general Swedish population. Interpersonal interaction is a hallmark of nursing care and other healthcare disciplines. Ideally, interpersonal care is achieved when individual care providers have few care receivers, which promote continuity in care, individual adjustments based on the care receivers individual needs and care providers with professional and relational competence.