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1. Factors Associated with Caregiver Sleep Quality Related to Children with Rare Epilepsy Syndromes

Author

McDonald, Brianne, Egan, Lynn, Jones, Monika, Weldon, Monica, Harris, Michael, Rice, Kim, Campbell, Vinez, Brandish, Juliann, Kercheval, Cindy, Villas, Nichole, Meskis, Mary Ann, Vogel-Farley, Vanessa, Miller, Ilene, Bartenhagen, Mike, Grabenstatter, Heidi, Utley, Karen, Nues, Paige, Cherry, Angela, Vozenilek, Gina, Sims, Scotty, Salazar, Tracy Dixon, SanInocencio, Christina, Forman, Stephanie, Wong, Nora, Bischoff, Kim, Walters, Julie, O’Boyle, Megan, Bliss, Geraldine, Davidow, Audrey, Schoyer, Lisa, DeWoody, Yssa, Wagner, Kira, Arcieri, Michael, Freed, Amber, Nye, Kim, Nakagawa, Jo Anne, Hecker, JayEtta, Hesdorffer, Dale C., Kroner, Barbara L., Shen, Jing, Farrell, Kathleen, Roberds, Steve, and Fureman, Brandy

Published
2020
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3. Factors Associated with Caregiver Sleep Quality Related to Children with Rare Epilepsy Syndromes

Author

Hesdorffer, Dale C., primary, Kroner, Barbara L., additional, Shen, Jing, additional, Farrell, Kathleen, additional, Roberds, Steve, additional, Fureman, Brandy, additional, McDonald, Brianne, additional, Egan, Lynn, additional, Jones, Monika, additional, Weldon, Monica, additional, Harris, Michael, additional, Rice, Kim, additional, Campbell, Vinez, additional, Brandish, Juliann, additional, Kercheval, Cindy, additional, Villas, Nichole, additional, Meskis, Mary Ann, additional, Vogel-Farley, Vanessa, additional, Miller, Ilene, additional, Bartenhagen, Mike, additional, Grabenstatter, Heidi, additional, Utley, Karen, additional, Nues, Paige, additional, Cherry, Angela, additional, Vozenilek, Gina, additional, Sims, Scotty, additional, Salazar, Tracy Dixon, additional, SanInocencio, Christina, additional, Forman, Stephanie, additional, Wong, Nora, additional, Bischoff, Kim, additional, Walters, Julie, additional, O’Boyle, Megan, additional, Bliss, Geraldine, additional, Davidow, Audrey, additional, Schoyer, Lisa, additional, DeWoody, Yssa, additional, Wagner, Kira, additional, Arcieri, Michael, additional, Freed, Amber, additional, Nye, Kim, additional, Nakagawa, Jo Anne, additional, and Hecker, JayEtta, additional

Published
2020
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5. COMMENTARY: INTERNATIONAL EPILEPSY DAY.

Author

Beniczky, Sándor, Byung-In Lee, Haut, Sheryl, Roberds, Steve, and Stein, Diane

Subjects
SPECIAL days, EPILEPSY, AWARENESS, TUBEROUS sclerosis
Abstract

The article offers comments of people on the creation of an international epilepsy day to raise awareness about epilepsy, in response to a letter by doctor M.A. Aleem published in this journal. It mentions the European Epilepsy Day organized by the Commission on European Affairs of the International League Against Epilepsy since 2011, the project Global Campaign Against Epilepsy which aims to improve global awareness, and the support for the day from the tuberous sclerosis complex community.

Published
2015
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6. The NIH's Rare Diseases Clinical Research Network: Fostering Collaborative Research on Rare Diseases.

Author

Kim, Helen, Evans, Phillip, Jinnah, H. A., Sahin, Mustafa, Roberds, Steve, Morava-Kozicz, Eva, Kozicz, Tamas, Vanderver, Adeline, Eichler, Florian, Fatemi, S. Ali, Sherbini, Omar, Shy, Michael, Kaminski, Henry, Hirano, Michio, Rosales, Xiomara, Thompson, John L., Gropman, Andrea, and Seminara, Jennifer

Subjects
*MYASTHENIA gravis, *RARE diseases, *CONGENITAL disorders, *IMMUNOLOGIC diseases, *GENETIC disorders, *NEUROLOGICAL disorders
Published
2020

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