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1. Improving social justice in observational studies: protocol for the development of a global and Indigenous STROBE-equity reporting guideline

Author

Funnell, Sarah, Jull, Janet, Mbuagbaw, Lawrence, Welch, Vivian, Dewidar, Omar, Wang, Xiaoqin, Lesperance, Miranda, Ghogomu, Elizabeth, Rizvi, Anita, Akl, Elie A., Avey, Marc T., Antequera, Alba, Bhutta, Zulfiqar A., Chamberlain, Catherine, Craig, Peter, Cuervo, Luis Gabriel, Dicko, Alassane, Ellingwood, Holly, Feng, Cindy, Francis, Damian, Greer-Smith, Regina, Hardy, Billie-Jo, Harwood, Matire, Hatcher-Roberts, Janet, Horsley, Tanya, Juando-Prats, Clara, Kasonde, Mwenya, Kennedy, Michelle, Kredo, Tamara, Krentel, Alison, Kristjansson, Elizabeth, Langer, Laurenz, Little, Julian, Loder, Elizabeth, Magwood, Olivia, Mahande, Michael Johnson, Melendez-Torres, G. J., Moore, Ainsley, Niba, Loveline Lum, Nicholls, Stuart G., Nkangu, Miriam Nguilefem, Lawson, Daeria O., Obuku, Ekwaro, Okwen, Patrick, Pantoja, Tomas, Petkovic, Jennifer, Petticrew, Mark, Pottie, Kevin, Rader, Tamara, Ramke, Jacqueline, Riddle, Alison, Shamseer, Larissa, Sharp, Melissa, Shea, Bev, Tanuseputro, Peter, Tugwell, Peter, Tufte, Janice, Von Elm, Erik, Waddington, Hugh Sharma, Wang, Harry, Weeks, Laura, Wells, George, White, Howard, Wiysonge, Charles Shey, Wolfenden, Luke, and Young, Taryn

Published
2023
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3. A scoping review establishes need for consensus guidance on reporting health equity in observational studies

Author

Wang, Xiaoqin, Dewidar, Omar, Rizvi, Anita, Huang, Jimmy, Desai, Payaam, Doyle, Rebecca, Ghogomu, Elizabeth, Rader, Tamara, Nicholls, Stuart G., Antequera, Alba, Krentel, Alison, Shea, Beverley, Hardy, Billie-Jo, Chamberlain, Catherine, Wiysonge, Charles S., Feng, Cindy, Juando-Prats, Clara, Lawson, Daeria O., Obuku, Ekwaro A., Kristjansson, Elizabeth, von Elm, Erik, Wang, Harry, Ellingwood, Holly, Waddington, Hugh Sharma, Ramke, Jacqueline, Jull, Janet Elizabeth, Hatcher-Roberts, Janet, Tufte, Janice, Little, Julian, Mbuagbaw, Lawrence, Weeks, Laura, Niba, Loveline Lum, Cuervo, Luis Gabriel, Wolfenden, Luke, Kasonde, Mwenya, Avey, Marc T., Sharp, Melissa K., Mahande, Michael Johnson, Nkangu, Miriam, Magwood, Olivia, Craig, Peter, Tugwell, Peter, Funnell, Sarah, Noorduyn, Stephen G., Kredo, Tamara, Horsley, Tanya, Young, Taryn, Pantoja, Tomas, Bhutta, Zulfiqar, Martel, Andrea, and Welch, Vivian A.

Published
2023
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6. Reporting of equity in observational epidemiology: A methodological review

Author

Dewidar, Omar, primary, Al-Zubaidi, Ali, additional, Bondok, Mostafa, additional, Abdelrazeq, Leenah, additional, Huang, Jimmy, additional, Jearvis, Alyssa, additional, Barker, Lucy C, additional, Elmestekawy, Nour, additional, Goghomu, Elizabeth, additional, Rader, Tamara, additional, Tufte, Janice, additional, Greer-Smith, Regina, additional, Waddington, Hugh S, additional, Nicholls, Stuart G, additional, Little, Julian, additional, Hardy, Billie-Jo, additional, Horsley, Tanya, additional, Young, Taryn, additional, Cuervo, Luis Gabriel, additional, Sharp, Melissa K, additional, Chamberlain, Catherine, additional, Shea, Beverley, additional, Craig, Peter, additional, Lawson, Daeria O, additional, Rizvi, Anita, additional, Wiysonge, Charles S, additional, Kredo, Tamara, additional, Francis, Damian, additional, Kristjansson, Elizabeth, additional, Bhutta, Zulfiqar, additional, Antequera, Alba, additional, Melendez-Torres, GJ, additional, Pantoja, Tomas, additional, Wang, Xiaoqin, additional, Jull, Janet, additional, Roberts, Janet Hatcher, additional, Funnell, Sarah, additional, White, Howard, additional, Krentel, Alison, additional, Mahande, Michael Johnson, additional, Ramke, Jacqueline, additional, Wells, George, additional, Petkovic, Jennifer, additional, Pottie, Kevin, additional, Niba, Loveline, additional, Feng, Cindy, additional, Nguliefem, Miriam N, additional, Tugwell, Peter, additional, Mbuagbaw, Lawrence, additional, and Welch, Vivian, additional

Published
2024
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7. When to replicate systematic reviews of interventions : consensus checklist

Author

Tugwell, Peter, Welch, Vivian Andrea, Karunananthan, Sathya, Maxwell, Lara J, Akl, Elie A, Avey, Marc T, Bhutta, Zulfiqar A, Brouwers, Melissa C, Clark, Jocalyn P, Cook, Sophie, Cuervo, Luis Gabriel, Curran, Janet Agnes, Ghogomu, Elizabeth Tanjong, Graham, Ian G, Grimshaw, Jeremy M, Hutton, Brian, Ioannidis, John P A, Jordan, Zoe, Jull, Janet Elizabeth, Kristjansson, Elizabeth, Langlois, Etienne V, Little, Julian, Lyddiatt, Anne, Martin, Janet E, Marušić, Ana, Mbuagbaw, Lawrence, Moher, David, Morton, Rachael L, Nasser, Mona, Page, Matthew J, Pardo, Jordi Pardo, Petkovic, Jennifer, Petticrew, Mark, Pigott, Terri, Pottie, Kevin, Rada, Gabriel, Rader, Tamara, Riddle, Alison Y, Rothstein, Hannah, Schüneman, Holger J, Shamseer, Larissa, Shea, Beverley J, Simeon, Rosiane, Siontis, Konstantinos C, Smith, Maureen, Soares-Weiser, Karla, Thavorn, Kednapa, Thavorn, David Tovey, Vachon, Brigitte, Valentine, Jeffery, Villemaire, Rebecca, Walker, Peter, Weeks, Laura, Wells, George, Wilson, David B, and White, Howard

Published
2020

8. Inappropriate use of clinical practices in Canada: a systematic review

Author

Squires, Janet E., Cho-Young, Danielle, Aloisio, Laura D., Bell, Robert, Bornstein, Stephen, Brien, Susan E., Decary, Simon, Varin, Melissa Demery, Dobrow, Mark, Estabrooks, Carole A., Graham, Ian D., Greenough, Megan, Grinspun, Doris, Hillmer, Michael, Horsley, Tanya, Hu, Jiale, Katz, Alan, Krause, Christina, Lavis, John, Levinson, Wendy, Levy, Adrian, Mancuso, Michelina, Morgan, Steve, Nadalin-Penno, Letitia, Neuner, Andrew, Rader, Tamara, Santos, Wilmer J., Teare, Gary, Tepper, Joshua, Vandyk, Amanda, Wilson, Michael, and Grimshaw, Jeremy M.

Subjects
Medical research, Medicine, Experimental, Medicine -- Practice, Medical care -- Quality management, Health
Abstract

Background: Inappropriate health care leads to negative patient experiences, poor health outcomes and inefficient use of resources. We aimed to conduct a systematic review of inappropriately used clinical practices in Canada. Methods: We searched multiple bibliometric databases and grey literature to identify inappropriately used clinical practices in Canada between 2007 and 2021. Two team members independently screened citations, extracted data and assessed methodological quality. Findings were synthesized in 2 categories: diagnostics and therapeutics. We reported ranges of proportions of inappropriate use for all practices. Medians and interquartile ranges (IQRs), based on the percentage of patients not receiving recommended practices (underuse) or receiving practices not recommended (overuse), were calculated. All statistics are at the study summary level. Results: We included 174 studies, representing 228 clinical practices and 28900762 patients. The median proportion of inappropriate care, as assessed in the studies, was 30.0% (IQR 12.0%56.6%). Underuse (median 43.9%, IQR 23.8%-66.3%) was more frequent than overuse (median 13.6%, IQR 3.2%30.7%). The most frequently investigated diagnostics were glycated hemoglobin (underused, range 18.0%-85.7%, n = 9) and thyroid-stimulating hormone (overused, range 3.0%-35.1%, n = 5). The most frequently investigated therapeutics were statin medications (underused, range 18.5%-71.0%, n = 6) and potentially inappropriate medications (overused, range 13.5%-97.3%, n = 9). Interpretation: We have provided a summary of inappropriately used clinical practices in Canadian health care systems. Our findings can be used to support health care professionals and quality agencies to improve patient care and safety in Canada., As health care systems struggle with sustainability, there is increased recognition that a substantial percentage of the health care received is inappropriate. (1) Inappropriate health care occurs when effective clinical [...]

Published
2022
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9. Establishing the Top 10 Research Priorities for Adolescent and Young Adult (AYA) Cancer in Canada: A Protocol for a James Lind Alliance Priority Setting Partnership.

Author

Tutelman, Perri R., Thurston, Chantale, Rader, Tamara, Henry, Brianna, Ranger, Tristyn, Abdelaal, Mohamed, Blue, Michelle, Buckland, Timothy W., Del Gobbo, Stefanie, Dobson, Lexy, Gallant, Emily, Heykoop, Cheryl, Jansen, Mackenzie, Larsen, Lorna, Maseja, Nicole, Oberoi, Sapna, Ramasamy, Vinesha, Smith, Marlie, Taylor, Evan, and Wendowsky, Nadia

Subjects
YOUNG adults, TEENAGERS, CANCER prognosis, CAREGIVERS
Abstract

Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer have unique medical and psychosocial needs. These needs could be better addressed through research that is focused on the topics that matter most to them. However, there is currently no patient-oriented research agenda for AYA cancer in Canada. This manuscript describes the early development and project protocol for a priority-setting partnership (PSP) for establishing the top 10 research priorities for AYA cancer in Canada. This project follows the PSP methodology outlined by the James Lind Alliance (JLA) to engage patients, caregivers, and clinicians in research prioritization. The steps of a JLA PSP include establishing a steering group and project partners, gathering uncertainties, data processing and verifying uncertainties, interim priority setting, and a final priority setting workshop. The AYA cancer PSP will result in a top 10 list of research priorities identified by Canadian AYA patients, caregivers, and clinicians that will be published and shared broadly with the research community. The first steering group meeting was held in April 2023, and the project is ongoing. The establishment of a patient-oriented research agenda for AYA cancer will catalyze a long-term and impactful research focus and ultimately improve outcomes for AYA patients with cancer in Canada. [ABSTRACT FROM AUTHOR]

Published
2024
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13. The Implementation in Context (ICON) Framework: A meta-framework of context domains, attributes and features in healthcare

Author

Squires, Janet E., Graham, Ian D., Santos, Wilmer J., Hutchinson, Alison M., Backman, Chantal, Bergström, Anna, Brehaut, Jamie, Brouwers, Melissa, Burton, Christopher, de Candido, Ligyana Korki, Cassidy, Christine, Chalmers, Cheyne, Chapman, Anna, Colquhoun, Heather, Curran, Janet, Varin, Melissa Demery, Doering, Paula, Rose, Annette Elliott, Fairclough, Lee, Francis, Jillian, Godfrey, Christina, Greenough, Megan, Grimshaw, Jeremy M., Grinspun, Doris, Harvey, Gillian, Hillmer, Michael, Ivers, Noah, Lavis, John, Li, Shelly-Anne, Michie, Susan, Miller, Wayne, Noseworthy, Thomas, Rader, Tamara, Robson, Mark, Rycroft-Malone, Jo, Stacey, Dawn, Straus, Sharon, Tricco, Andrea C., Wallin, Lars, Watkins, Vanessa, Squires, Janet E., Graham, Ian D., Santos, Wilmer J., Hutchinson, Alison M., Backman, Chantal, Bergström, Anna, Brehaut, Jamie, Brouwers, Melissa, Burton, Christopher, de Candido, Ligyana Korki, Cassidy, Christine, Chalmers, Cheyne, Chapman, Anna, Colquhoun, Heather, Curran, Janet, Varin, Melissa Demery, Doering, Paula, Rose, Annette Elliott, Fairclough, Lee, Francis, Jillian, Godfrey, Christina, Greenough, Megan, Grimshaw, Jeremy M., Grinspun, Doris, Harvey, Gillian, Hillmer, Michael, Ivers, Noah, Lavis, John, Li, Shelly-Anne, Michie, Susan, Miller, Wayne, Noseworthy, Thomas, Rader, Tamara, Robson, Mark, Rycroft-Malone, Jo, Stacey, Dawn, Straus, Sharon, Tricco, Andrea C., Wallin, Lars, and Watkins, Vanessa

Abstract

Background There is growing evidence that context mediates the effects of implementation interventions intended to increase healthcare professionals’ use of research evidence in clinical practice. However, conceptual clarity about what comprises context is elusive. The purpose of this study was to advance conceptual clarity on context by developing the Implementation in Context Framework, a meta-framework of the context domains, attributes and features that can facilitate or hinder healthcare professionals’ use of research evidence and the effectiveness of implementation interventions in clinical practice. Methods We conducted a meta-synthesis of data from three interrelated studies: (1) a concept analysis of published literature on context (n = 70 studies), (2) a secondary analysis of healthcare professional interviews (n = 145) examining context across 11 unique studies and (3) a descriptive qualitative study comprised of interviews with heath system stakeholders (n = 39) in four countries to elicit their tacit knowledge on the attributes and features of context. A rigorous protocol was followed for the meta-synthesis, resulting in development of the Implementation in Context Framework. Following this meta-synthesis, the framework was further refined through feedback from experts in context and implementation science. Results In the Implementation in Context Framework, context is conceptualized in three levels: micro (individual), meso (organizational), and macro (external). The three levels are composed of six contextual domains: (1) actors (micro), (2) organizational climate and structures (meso), (3) organizational social behaviour (meso), (4) organizational response to change (meso), (5) organizational processes (meso) and (6) external influences (macro). These six domains contain 22 core attributes of context and 108 features that illustrate these attributes. Conclusions The Implementation in Context Framework is the only meta-framework of context available t

Published
2023
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14. Inappropriateness of health care in Canada: a systematic review protocol

Author

Squires, Janet E., Graham, Ian D., Grinspun, Doris, Lavis, John, Légaré, France, Bell, Robert, Bornstein, Stephen, Brien, Susan E., Dobrow, Mark, Greenough, Megan, Estabrooks, Carole A., Hillmer, Michael, Horsley, Tanya, Katz, Alan, Krause, Christina, Levinson, Wendy, Levy, Adrian, Mancuso, Michelina, Maybee, Alies, Morgan, Steve, Penno, Letitia Nadalin, Neuner, Andrew, Rader, Tamara, Roberts, Janet, Teare, Gary, Tepper, Joshua, Vandyk, Amanda, Widmeyer, Denise, Wilson, Michael, and Grimshaw, Jeremy M.

Published
2019
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17. Methods for Documenting Systematic Review Searches: A Discussion of Common Issues

Author

Rader, Tamara, Mann, Mala, and Stansfield, Claire

Abstract

Introduction: As standardized reporting requirements for systematic reviews are being adopted more widely, review authors are under greater pressure to accurately record their search process. With careful planning, documentation to fulfill the Preferred Reporting Items for Systematic Reviews and Meta-Analyses requirements can become a valuable tool for organizing a systematic review literature search and planning updates. Methods: A working group of information specialists convened to discuss current practice and were informed by a Web-based survey of over 260 systematic review authors, trials search coordinators, librarians, and other information specialists conducted in February/March 2011. Discussion: Survey responses provided insight into current practices and difficulties of reporting searches. These included a lack of time, tools, clear understanding of the requirements, and uncertainty about responsibility for documenting these elements. This paper will present some of the practical aspects of documenting the systematic literature search. Section 1 provides background information and rationale for this paper. Section 2 discusses issues and recommendations arising from survey results. Section 3 outlines specific elements to be recorded. Section 4 guides the reader through the information management process. Section 5 concludes with implications for future research and practice. These principles are applicable to any large literature search for systematic reviews, health technology assessments, and guideline development.

Published
2014
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23. Reporting of health equity considerations in equity-relevant observational studies: Protocol for a systematic assessment

Author

Dewidar, Omar, primary, Rader, Tamara, additional, Waddington, Hugh, additional, Nicholls, Stuart G, additional, Little, Julian, additional, Hardy, Billie-Jo, additional, Horsley, Tanya, additional, Young, Taryn, additional, Cuervo, Luis Gabriel, additional, Sharp, Melissa K, additional, Chamberlain, Catherine, additional, Shea, Beverley, additional, Craig, Peter, additional, Lawson, Daeria O, additional, Rizvi, Anita, additional, Wiysonge, Charles Shey, additional, Kredo, Tamara, additional, Nguliefem, Miriam Nkangu, additional, Ghogomu, Elizabeth, additional, Francis, Damian, additional, Kristjansson, Elizabeth, additional, Bhutta, Zulfiqar, additional, Martin, Alba Antequera, additional, Melendez-Torres, G J, additional, Pantoja, Tomas, additional, Wang, Xiaoqin, additional, Jull, Janet, additional, Roberts, Janet Hatcher, additional, Funnell, Sarah, additional, White, Howard, additional, Krentel, Alison, additional, Mahande, Michael Johnson, additional, Ramke, Jacqueline, additional, Wells, George A, additional, Petkovic, Jennifer, additional, Tugwell, Peter, additional, Pottie, Kevin, additional, Mbuagbaw, Lawrence, additional, and Welch, Vivian, additional

Published
2022
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24. Guidance relevant to the reporting of health equity in observational research: a scoping review protocol

Author

Rizvi, Anita, primary, Lawson, Daeria O, additional, Young, Taryn, additional, Dewidar, Omar, additional, Nicholls, Stuart, additional, Akl, Elie A, additional, Little, Julian, additional, Magwood, Olivia, additional, Shamseer, Larissa, additional, Ghogomu, Elizabeth, additional, Jull, Janet Elizabeth, additional, Rader, Tamara, additional, Bhutta, Zulfiqar, additional, Chamberlain, Catherine, additional, Ellingwood, Holly, additional, Greer-Smith, Regina, additional, Hardy, Billie-Jo, additional, Harwood, Matire, additional, Kennedy, Michelle, additional, Kredo, Tamara, additional, Loder, Elizabeth, additional, Mahande, Michael Johnson J, additional, Mbuagbaw, Lawrence, additional, Nkangu, Miriam, additional, Okwen, Patrick M, additional, Ramke, Jacqueline, additional, Tufte, Janice, additional, Tugwell, Peter, additional, Wang, Xiaoqin, additional, Wiysonge, Charles Shey, additional, and Welch, Vivian A, additional

Published
2022
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27. Decision coaching for people making healthcare decisions

Author

Jull, Janet, additional, Köpke, Sascha, additional, Smith, Maureen, additional, Carley, Meg, additional, Finderup, Jeanette, additional, Rahn, Anne C, additional, Boland, Laura, additional, Dunn, Sandra, additional, Dwyer, Andrew A, additional, Kasper, Jürgen, additional, Kienlin, Simone Maria, additional, Légaré, France, additional, Lewis, Krystina B, additional, Lyddiatt, Anne, additional, Rutherford, Claudia, additional, Zhao, Junqiang, additional, Rader, Tamara, additional, Graham, Ian D, additional, and Stacey, Dawn, additional

Published
2021
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29. Remote Monitoring Programs for Cardiac Conditions

Author

Clark, Alexander, primary, Sousa, Bailey, additional, Smith, Andrea, additional, Steele, Duncan, additional, Rader, Tamara, additional, MacDougall, Danielle, additional, Kaunelis, David, additional, Mason, Jeff, additional, and Harris, Jonathan, additional

Published
2021
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31. Behavioural interventions delivered through interactive social media for health behaviour change, health outcomes, and health equity in the adult population

Author

Petkovic, Jennifer, additional, Duench, Stephanie, additional, Trawin, Jessica, additional, Dewidar, Omar, additional, Pardo Pardo, Jordi, additional, Simeon, Rosiane, additional, DesMeules, Marie, additional, Gagnon, Diane, additional, Hatcher Roberts, Janet, additional, Hossain, Alomgir, additional, Pottie, Kevin, additional, Rader, Tamara, additional, Tugwell, Peter, additional, Yoganathan, Manosila, additional, Presseau, Justin, additional, and Welch, Vivian, additional

Published
2021
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32. Decision coaching for people making healthcare decisions

Author

Jull, Janet, Koepke, Sascha, Smith, Maureen, Carley, Meg, Finderup, Jeanette, Rahn, Anne C., Boland, Laura, Dunn, Sandra, Dwyer, Andrew A., Kasper, Jurgen, Kienlin, Simone Maria, Legare, France, Lewis, Krystina B., Lyddiatt, Anne, Rutherford, Claudia, Zhao, Junqiang, Rader, Tamara, Graham, Ian D., Stacey, Dawn, Jull, Janet, Koepke, Sascha, Smith, Maureen, Carley, Meg, Finderup, Jeanette, Rahn, Anne C., Boland, Laura, Dunn, Sandra, Dwyer, Andrew A., Kasper, Jurgen, Kienlin, Simone Maria, Legare, France, Lewis, Krystina B., Lyddiatt, Anne, Rutherford, Claudia, Zhao, Junqiang, Rader, Tamara, Graham, Ian D., and Stacey, Dawn

Abstract

Background Decision coaching is non -directive support delivered by a healthcare provider to help patients prepare to actively participate in making a hea[th decision. 'Healthcare providers' are considered to be aEl people who are engaged in actions whose primary intent is to protect and improve health (e.g. nurses, doctors, pharmacists, social workers, health support vvorkers such as peer health workers). Little is known about the effectiveness of decision coaching. Objectives To determine the effects of decision coaching (I) for people facing healthcare decisions for themselves or a family member (P) compared to (C) usual care or evidence -based intervention only, on outcomes (0) related to preparation for decision making, decisional needs and potential adverse effects. Search methods We searched the Cochrane Library (Wiley), Cochrane Central Register of Controlled Trials (CENTRAL), MEDLINE (Ovid), Embase (Ovid), PsycINFO (Ovid), CI NAHL (Ebsco), Nursing and Allied Health Source (ProQuest), and Web of Science from database inception to June 2021. Selection criteria We included randomised controlled trials (RCTs) where the intervention was provided to adults or children preparing to make a treatment or screening healthcare decision for themselves or a family member. Decision coaching was defined as: a) delivered individually by a healthcare provider who istrained or using a protocol; and b) providing non -directive support and preparing an adult or child to participate in a healthcare decision. Comparisons included usual care or an alternate intervention. There were no language restrictions. Data collection and analysis Two authors independently screened citations, assessed risk of bias, and extracted data on characteristics of the intervention(s) and outcomes. Any disagreements were resolved by discussion to reach consensus. We used the standardised mean difference (SMD) with 95% confidence intervals (CI) as the measures of treatment effect and, where possible, sy

Published
2021

36. PROTOCOL: When and how to replicate systematic reviews

Author

Karunananthan, Sathya, primary, Maxwell, Lara J., additional, Welch, Vivian, additional, Petkovic, Jennifer, additional, Pardo, Jordi Pardo, additional, Rader, Tamara, additional, Avey, Marc T., additional, Baptiste‐Ngobi, John, additional, Batista, Ricardo, additional, Curran, Janet A., additional, Ghogomu, Elizabeth Tanjong, additional, Graham, Ian D., additional, Grimshaw, Jeremy M., additional, Ioannidis, John PA., additional, Jordan, Zoe, additional, Jull, Janet, additional, Lyddiatt, Anne, additional, Moher, David, additional, Petticrew, Mark, additional, Pottie, Kevin, additional, Rada, Gabriel, additional, Shamseer, Larissa, additional, Shea, Beverley, additional, Siontis, Konstantinos C., additional, Tschirhart, Naomi, additional, Vachon, Brigitte, additional, Wells, George A., additional, White, Howard, additional, and Tugwell, Peter, additional

Published
2020
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38. When and how to replicate systematic reviews

Author

Karunananthan, Sathya, primary, Maxwell, Lara J, additional, Welch, Vivian, additional, Petkovic, Jennifer, additional, Pardo Pardo, Jordi, additional, Rader, Tamara, additional, Avey, Marc T, additional, Baptiste-Ngobi, John, additional, Batista, Ricardo, additional, Curran, Janet A, additional, Tanjong Ghogomu, Elizabeth, additional, Graham, Ian D, additional, Grimshaw, Jeremy M, additional, Ioannidis, John PA, additional, Jordan, Zoe, additional, Jull, Janet, additional, Lyddiatt, Anne, additional, Moher, David, additional, Petticrew, Mark, additional, Pottie, Kevin, additional, Rada, Gabriel, additional, Shamseer, Larissa, additional, Shea, Beverley, additional, Siontis, Konstantinos, additional, Tschirhart, Naomi, additional, Vachon, Brigitte, additional, Wells, George A, additional, White, Howard, additional, and Tugwell, Peter, additional

Published
2020
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40. Decision coaching for people making healthcare decisions

Author

Jull, Janet, primary, Köpke, Sascha, additional, Boland, Laura, additional, Coulter, Angela, additional, Dunn, Sandra, additional, Graham, Ian D, additional, Hutton, Brian, additional, Kasper, Jürgen, additional, Kienlin, Simone Maria, additional, Légaré, France, additional, Lewis, Krystina B, additional, Lyddiatt, Anne, additional, Osaka, Wakako, additional, Rader, Tamara, additional, Rahn, Anne C, additional, Rutherford, Claudia, additional, Smith, Maureen, additional, and Stacey, Dawn, additional

Published
2019
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42. Non-clinical interventions for reducing unnecessary caesarean section

Author

Chen, Innie, primary, Opiyo, Newton, additional, Tavender, Emma, additional, Mortazhejri, Sameh, additional, Rader, Tamara, additional, Petkovic, Jennifer, additional, Yogasingam, Sharlini, additional, Taljaard, Monica, additional, Agarwal, Sugandha, additional, Laopaiboon, Malinee, additional, Wasiak, Jason, additional, Khunpradit, Suthit, additional, Lumbiganon, Pisake, additional, Gruen, Russell L, additional, and Betran, Ana Pilar, additional

Published
2018
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43. CS-36 Recommendations for the assessment of systemic lupus erythematosus in canada

Author

Keeling, Stephanie, primary, Alabdurubalnabi, Zainab, additional, Avina-Zubieta, Antonio, additional, Barr, Susan, additional, Bergeron, Louise, additional, Bernatsky, Sasha, additional, Bourre-Tessier, Josiane, additional, Clarke, Ann, additional, Baril-Dionne, Alexandra, additional, Dutz, Jan, additional, Ensworth, Stephanie, additional, Fifi-Mah, Aurore, additional, Fortin, Paul R, additional, Gladman, Dafna, additional, Haaland, Derek, additional, Hanly, John G, additional, Hiraki, Linda T, additional, Hussein, Sara, additional, Legault, Kimberly, additional, Levy, Deborah, additional, Lim, Lily, additional, Matsos, Mark, additional, McDonald, Emily G, additional, Medina-Rosas, Jorge, additional, Pardi, Jordi Pardo, additional, Peschken, Christine, additional, Pineau, Christian, additional, Pope, Janet, additional, Rader, Tamara, additional, Reynolds, Jen, additional, Silverman, Earl, additional, Tselios, Konstantinos, additional, Suitner, Manon, additional, Urowitz, Murray, additional, Touma, Zahi, additional, Vinet, Evelyne, additional, and Santesso, Nancy, additional

Published
2018
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44. Interactive social media interventions for health behaviour change, health outcomes, and health equity in the adult population

Author

Welch, Vivian, primary, Petkovic, Jennifer, additional, Simeon, Rosiane, additional, Presseau, Justin, additional, Gagnon, Diane, additional, Hossain, Alomgir, additional, Pardo Pardo, Jordi, additional, Pottie, Kevin, additional, Rader, Tamara, additional, Sokolovski, Alexandra, additional, Yoganathan, Manosila, additional, Tugwell, Peter, additional, and DesMeules, Marie, additional

Published
2018
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46. PROTOCOL: Interactive social media interventions for health behaviour change, health outcomes, and health equity in the adult population

Author

Welch, Vivian, primary, Petkovic, Jennifer, additional, Simeon, Rosiane, additional, Presseau, Justin, additional, Gagnon, Diane, additional, Hossain, Alomgir, additional, Pardo, Jordi Pardo, additional, Pottie, Kevin, additional, Rader, Tamara, additional, Sokolovski, Alexandra, additional, Yoganathan, Manosila, additional, Tugwell, Peter, additional, and DesMeules, Marie, additional

Published
2018
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48. How health equity is reported and analyzed in randomized trials

Author

Petkovic, Jennifer, primary, Welch, Vivian, additional, Jull, Janet, additional, Petticrew, Mark, additional, Kristjansson, Elizabeth, additional, Rader, Tamara, additional, Yoganathan, Manosila, additional, McGowan, Jessie, additional, Lyddiatt, Anne, additional, Grimshaw, Jeremy M, additional, Volmink, Jimmy, additional, Moher, David, additional, Shea, Beverley, additional, Pottie, Kevin, additional, Pantoja, Tomas, additional, Wells, George A, additional, and Tugwell, Peter, additional

Published
2017
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49. Potential harms associated with routine collection of patient sociodemographic information: A rapid review.

Author

Petkovic, Jennifer, Duench, Stephanie L., Welch, Vivian, Rader, Tamara, Jennings, Alison, Forster, Alan J., and Tugwell, Peter

Subjects
FAMILIES & psychology, DISCRIMINATION (Sociology), ETHNOPSYCHOLOGY, MEDICAL quality control, MEDICAL ethics, MEDLINE, ONLINE information services, PSYCHOLOGY of physicians, PRIVACY, SYSTEMATIC reviews, PROFESSIONAL practice, SOCIOECONOMIC factors, NARRATIVES, DATA analysis software, PATIENTS' attitudes, PHYSICIANS' attitudes
Abstract

Background: Health systems are recommended to capture routine patient sociodemographic data as a key step in providing equitable person‐centred care. However, collection of this information has the potential to cause harm, especially for vulnerable or potentially disadvantaged patients. Objective: To identify harms perceived or experienced by patients, their families, or health‐care providers from collection of sociodemographic information during routine health‐care visits and to identify best practices for when, by whom and how to collect this information. Search Strategy: We searched OVID MEDLINE, PubMed "related articles" via NLM and healthevidence.org to the end of January 2018 and assessed reference lists and related citations of included studies. Inclusion Criteria: We included studies reporting on harms of collecting patient sociodemographic information in health‐care settings. Data Extraction and Synthesis: Data on study characteristics and types of harms were extracted and summarized narratively. Main Results: Eighteen studies were included; 13 provided patient perceptions or experiences with the collection of these data and seven studies reported on provider perceptions. Five reported on patient recommendations for collecting sociodemographic information. Patients and providers reported similar potential harms which were grouped into the following themes: altered behaviour which may affect care‐seeking, data misuse or privacy concerns, discomfort, discrimination, offence or negative reactions, and quality of care. Patients suggested that sociodemographic information be collected face to face by a physician. Discussion and Conclusions: Overall, patients support the collection of sociodemographic information. However, harms are possible, especially for some population subgroups. Harms may be mitigated by providing a rationale for the collection of this information. [ABSTRACT FROM AUTHOR]

Published
2019
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50. Development and Alpha-testing of a Stepped Decision Aid for Patients Considering Nonsurgical Options for Knee and Hip Osteoarthritis Management

Author

Toupin April, Karine, primary, Rader, Tamara, additional, Hawker, Gillian A., additional, Stacey, Dawn, additional, O’Connor, Annette M., additional, Welch, Vivian, additional, Lyddiatt, Anne, additional, McGowan, Jessie, additional, Thorne, J. Carter, additional, Bennett, Carol, additional, Pardo Pardo, Jordi, additional, Wells, George A., additional, and Tugwell, Peter, additional

Published
2016
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