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1. European Society of Intensive Care Medicine guidelines on end of life and palliative care in the intensive care unit

Author

Kesecioglu, Jozef, Rusinova, Katerina, Alampi, Daniela, Arabi, Yaseen M., Benbenishty, Julie, Benoit, Dominique, Boulanger, Carole, Cecconi, Maurizio, Cox, Christopher, van Dam, Marjel, van Dijk, Diederik, Downar, James, Efstathiou, Nikolas, Endacott, Ruth, Galazzi, Alessandro, van Gelder, Fiona, Gerritsen, Rik T., Girbes, Armand, Hawyrluck, Laura, Herridge, Margaret, Hudec, Jan, Kentish-Barnes, Nancy, Kerckhoffs, Monika, Latour, Jos M., Malaska, Jan, Marra, Annachiara, Meddick-Dyson, Stephanie, Mentzelopoulos, Spyridon, Mer, Mervyn, Metaxa, Victoria, Michalsen, Andrej, Mishra, Rajesh, Mistraletti, Giovanni, van Mol, Margo, Moreno, Rui, Nelson, Judith, Suñer, Andrea Ortiz, Pattison, Natalie, Prokopova, Tereza, Puntillo, Kathleen, Puxty, Kathryn, Qahtani, Samah Al, Radbruch, Lukas, Rodriguez-Ruiz, Emilio, Sabar, Ron, Schaller, Stefan J., Siddiqui, Shahla, Sprung, Charles L., Umbrello, Michele, Vergano, Marco, Zambon, Massimo, Zegers, Marieke, Darmon, Michael, and Azoulay, Elie

Published
2024
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8. Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology

Author

Kwete, Xiaoxiao J., Bhadelia, Afsan, Arreola-Ornelas, Héctor, Mendez, Oscar, Rosa, William E., Connor, Stephen, Downing, Julia, Jamison, Dean, Watkins, David, Calderon, Renzo, Cleary, Jim, Friedman, Joseph R., De Lima, Liliana, Ntizimira, Christian, Pastrana, Tania, Pérez-Cruz, Pedro E., Spence, Dingle, Rajagopal, M.R., Vargas Enciso, Valentina, Krakauer, Eric L., Radbruch, Lukas, and Knaul, Felicia Marie

Published
2024
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10. The Lancet Breast Cancer Commission

Author

Arreola-Ornelas, Hector, Bhadelia, Afsan, Boughey, Judy C, Chatterjee, Sanjoy, Dodwell, David, Doubova, Svetlana, Du Plooy, Dorothy, Essue, Beverley, Goel, Neha, Gralow, Julie, Hawley, Sarah, Kiely, Belinda, Mann, Ritse, Mertz, Shirley, Palmieri, Carlo, Poortmans, Philip, Spanic, Tanja, Stephen, Lesley, Symmans, Fraser, Towns, Catherine, Verhoeven, Didier, Vinnicombe, Sarah, Watkins, David, Yip, Cheng-Har, Zikmund-Fisher, Brian, Coles, Charlotte E, Earl, Helena, Anderson, Benjamin O, Barrios, Carlos H, Bienz, Maya, Bliss, Judith M, Cameron, David A, Cardoso, Fatima, Cui, Wanda, Francis, Prudence A, Jagsi, Reshma, Knaul, Felicia Marie, McIntosh, Stuart A, Phillips, Kelly-Anne, Radbruch, Lukas, Thompson, Mareike K, André, Fabrice, Abraham, Jean E, Bhattacharya, Indrani S, Franzoi, Maria Alice, Drewett, Lynsey, Fulton, Alexander, Kazmi, Farasat, Inbah Rajah, Dharrnesha, Mutebi, Miriam, Ng, Dianna, Ng, Szeyi, Olopade, Olufunmilayo I, Rosa, William E, Rubasingham, Jeffrey, Spence, Dingle, Stobart, Hilary, Vargas Enciso, Valentina, Vaz-Luis, Ines, and Villarreal-Garza, Cynthia

Published
2024
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17. Palliative Sedierung

Author

Surges, Séverine Marie, primary, Brunsch, Holger, additional, Jaspers, Birgit, additional, and Radbruch, Lukas, additional

Published
2023
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25. Optimizing the Global Nursing Workforce to Ensure Universal Palliative Care Access and Alleviate Serious Health-Related Suffering Worldwide

Author

Rosa, William E., Parekh de Campos, Amisha, Abedini, Nauzley C., Gray, Tamryn F., Huijer, Huda Abu-Saad, Bhadelia, Afsan, Boit, Juli McGowan, Byiringiro, Samuel, Crisp, Nigel, Dahlin, Constance, Davidson, Patricia M., Davis, Sheila, De Lima, Liliana, Farmer, Paul E., Ferrell, Betty R., Hategekimana, Vedaste, Karanja, Viola, Knaul, Felicia Marie, Kpoeh, Julius D.N., Lusaka, Joseph, Matula, Samuel T., McMahon, Cory, Meghani, Salimah H., Moreland, Patricia J., Ntizimira, Christian, Radbruch, Lukas, Rajagopal, M.R., and Downing, Julia

Published
2022
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27. Palliativversorgung

Author

Ateş, Gülay, Jaspers, Birgit, Peuten, Sarah, Schneider, Werner, Radbruch, Lukas, Klauber, Jürgen, editor, Wasem, Jürgen, editor, Beivers, Andreas, editor, and Mostert, Carina, editor

Published
2021
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29. The Lancet Breast Cancer Commission

Author

Coles, Charlotte E, primary, Earl, Helena, additional, Anderson, Benjamin O, additional, Barrios, Carlos H, additional, Bienz, Maya, additional, Bliss, Judith M, additional, Cameron, David A, additional, Cardoso, Fatima, additional, Cui, Wanda, additional, Francis, Prudence A, additional, Jagsi, Reshma, additional, Knaul, Felicia Marie, additional, McIntosh, Stuart A, additional, Phillips, Kelly-Anne, additional, Radbruch, Lukas, additional, Thompson, Mareike K, additional, André, Fabrice, additional, Abraham, Jean E, additional, Bhattacharya, Indrani S, additional, Franzoi, Maria Alice, additional, Drewett, Lynsey, additional, Fulton, Alexander, additional, Kazmi, Farasat, additional, Inbah Rajah, Dharrnesha, additional, Mutebi, Miriam, additional, Ng, Dianna, additional, Ng, Szeyi, additional, Olopade, Olufunmilayo I, additional, Rosa, William E, additional, Rubasingham, Jeffrey, additional, Spence, Dingle, additional, Stobart, Hilary, additional, Vargas Enciso, Valentina, additional, Vaz-Luis, Ines, additional, Villarreal-Garza, Cynthia, additional, Arreola-Ornelas, Hector, additional, Bhadelia, Afsan, additional, Boughey, Judy C, additional, Chatterjee, Sanjoy, additional, Dodwell, David, additional, Doubova, Svetlana, additional, Du Plooy, Dorothy, additional, Essue, Beverley, additional, Goel, Neha, additional, Gralow, Julie, additional, Hawley, Sarah, additional, Kiely, Belinda, additional, Mann, Ritse, additional, Mertz, Shirley, additional, Palmieri, Carlo, additional, Poortmans, Philip, additional, Spanic, Tanja, additional, Stephen, Lesley, additional, Symmans, Fraser, additional, Towns, Catherine, additional, Verhoeven, Didier, additional, Vinnicombe, Sarah, additional, Watkins, David, additional, Yip, Cheng-Har, additional, and Zikmund-Fisher, Brian, additional

Published
2024
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30. Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology

Author

Kwete, Xiaoxiao J, primary, Bhadelia, Afsan, additional, Arreola-Ornelas, Hector, additional, Mendez, Osca, additional, Rosa, William E. Rosa E., additional, Connor, Stephen, additional, Downing, Julia, additional, Jamison, Dean, additional, Watkins, David, additional, Calderon, Renzo, additional, Cleary, Jim, additional, Friedman, Joe, additional, De Lima, Liliana, additional, Ntizimira, Christian, additional, Pastrana, Tania, additional, Perez-Cruz, Pedro E., additional, Spence, Dingle, additional, Rajagopal, M.R., additional, Vargas Enciso, Valentina, additional, Krakauer, Eric L., additional, Radbruch, Lukas, additional, and Knaul, Felicia Marie, additional

Published
2024
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32. ‘We are all in the same boat’: a qualitative cross-sectional analysis of COVID-19 pandemic imagery in scientific literature and its use for people working in the German healthcare sector

Author

Baranowski, Andreas M., primary, Blank, Rebecca, additional, Maus, Katja, additional, Tüttenberg, Simone C., additional, Matthias, Julia-K., additional, Culmann, Anna C., additional, Radbruch, Lukas, additional, Richter, Cornelia, additional, and Geiser, Franziska, additional

Published
2024
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36. Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation : An international Delphi study

Author

Surges, Séverine M, Brunsch, Holger, Jaspers, Birgit, Apostolidis, Kathi, Cardone, Antonella, Centeno, Carlos, Cherny, Nathan, Csikós, Àgnes, Fainsinger, Robin, Garralda, Eduardo, Ling, Julie, Menten, Johan, Mercadante, Sebastiano, Mosoiu, Daniela, Payne, Sheila, Preston, Nancy, Van den Block, Lieve, Hasselaar, Jeroen, Radbruch, Lukas, Surges, Séverine M, Brunsch, Holger, Jaspers, Birgit, Apostolidis, Kathi, Cardone, Antonella, Centeno, Carlos, Cherny, Nathan, Csikós, Àgnes, Fainsinger, Robin, Garralda, Eduardo, Ling, Julie, Menten, Johan, Mercadante, Sebastiano, Mosoiu, Daniela, Payne, Sheila, Preston, Nancy, Van den Block, Lieve, Hasselaar, Jeroen, and Radbruch, Lukas

Abstract

Background: The European Association for Palliative Care (EAPC) acknowledges palliative sedation as an important, broadly accepted intervention for patients with life-limiting disease experiencing refractory symptoms. The EAPC therefore developed 2009 a framework on palliative sedation. A revision was needed due to new evidence from literature, ongoing debate and criticism of methodology, terminology and applicability. Aim: To provide evidence- and consensus-based guidance on palliative sedation for healthcare professionals involved in end-of-life care, for medical associations and health policy decision-makers. Design: Revision between June 2020 and September 2022 of the 2009 framework using a literature update and a Delphi procedure. Setting: European. Participants: International experts on palliative sedation (identified through literature search and nomination by national palliative care associations) and a European patient organisation. Results: A framework with 42 statements for which high or very high level of consensus was reached. Terminology is defined more precisely with the terms suffering used to encompass distressing physical and psychological symptoms as well as existential suffering and refractory to describe the untreatable (healthcare professionals) and intolerable (patient) nature of the suffering. The principle of proportionality is introduced in the definition of palliative sedation. No specific period of remaining life expectancy is defined, based on the principles of refractoriness of suffering, proportionality and independent decision-making for hydration. Patient autonomy is emphasised. A stepwise pharmacological approach and a guidance on hydration decision-making are provided. Conclusions: This is the first framework on palliative sedation using a strict consensus methodology. It should serve as comprehensive and soundly developed information for healthcare professionals.

Published
2024

37. 'Not a panacea' - Expert perspectives on the concept of resilience and its potential for palliative care

Author

Maus, Katja, Peusquens, Frank, Kriegsmann-Rabe, Milena, Matthias, Julia-Katharina, Ateş, Gülay, Jaspers, Birgit, Geiser, Franziska, Radbruch, Lukas, Maus, Katja, Peusquens, Frank, Kriegsmann-Rabe, Milena, Matthias, Julia-Katharina, Ateş, Gülay, Jaspers, Birgit, Geiser, Franziska, and Radbruch, Lukas

Abstract

BACKGROUND Resilience is an increasingly used term in medicine and subject to various definitions, often not easy to grasp. There are established core concepts for patients receiving palliative care, for example, meaning in life, that have already been researched a lot. Resilience, relative to these concepts, is a new object of research in palliative care, where it has so far been used predominantly with regard to the well-being of teams. AIM To explore how experts in palliative care define the concept of resilience and its suitability for patients, significant others, and professionals. DESIGN Qualitative study using summarizing content analysis according to Mayring. SETTING/PARTICIPANTS Twenty-one health and social care professionals with expertise caring for persons with life-threatening/limiting illnesses and their relatives were interviewed in three individual interviews and four focus groups. All conversations were recorded, transcribed, coded via MAXQDA, and validated by another researcher. RESULTS Resilience has been described as something procedural, dynamic, individual, and flexible. In connection with well-known concepts such as posttraumatic growth or terms from the field of mindfulness, social environment or personal factors have also been linked to resilience. Resources such as spirituality can contribute to resilience, and resilience itself can function as a resource, for example, by contributing to quality of life. An active use of the term in practical work with patients or relatives is rare, but it is used in education or team measures. Limited lifespan can pose a challenge to an active use of the concept of resilience. CONCLUSION Resilience as a very individual approach provides added value to other core concepts of palliative care. Within the palliative context, the normative dimension of resilience must be well reflected. A broader definition of resilience is recommended, leaving room for everyone to find their own form of resilience. The concep

Published
2024

42. Meaning in life of terminally ill parents with minor children compared to palliative care patients – a quantitative analysis using SMiLE.

Author

Cuhls, Henning, Hesse, Michaela, Heuser, Gregory, Radbruch, Lukas, and Ateş, Gülay

Subjects
FAMILIES & psychology, PSYCHOLOGY of the terminally ill, LIFE, PALLIATIVE treatment, NATURE, T-test (Statistics), MINORS, QUESTIONNAIRES, ANIMALS, REMINISCENCE, INTERVIEWING, QUANTITATIVE research, PSYCHOLOGICAL adaptation, JUDGMENT sampling, DESCRIPTIVE statistics, LEISURE, LONGITUDINAL method, HORTICULTURE, QUALITY of life, PSYCHOLOGY of parents, SOCIAL support, INTERPERSONAL relations, DATA analysis software, PSYCHOSOCIAL factors
Abstract

Background: Caring for terminally ill patients with minor children can be very stressful. The perceived quality of life is significantly influenced by the Meaning in Life (MiL). No studies were found that focus on the prioritized special needs of this patient group. Objectives: The aim is to compare and contrast terminally ill parents with minor children and palliative care patients in Germany, in order to provide appropriate support beyond medical, nursing or therapeutic interventions. Methods: Terminally ill parents diagnosed were surveyed using a validated instrument 'Schedule for Meaning in Life Evaluation (SMiLE)'. The study listed various areas that contribute to the MiL, followed by an evaluation of their importance and satisfaction levels. The researchers then compared these findings with data collected from palliative care patients. Results: In Germany, 54 patients, mostly female and with a mean age of 43, were included in this study between February 2017 and September 2020. The median age of the 96 children during the survey phase was 7 years. The comparison group consists of 100 palliative care patients in Germany; mostly aged 50 years and older. For terminally ill patients most important areas were in decreasing order family (100%), social relations (80%), leisure time (61%), nature/animals (39%) and home/garden (30%). Although the overall indices are close between both groups, there are significant and highly correlated differences between them. Parents felt limited by their illness in being a mother or father, as they wanted to be. Conclusion: The involvement with SMiLE led patients to consider their coping resources. The areas relevant to terminally ill parents differed from those relevant to palliative care patients. All participants identified family as the most important factor for MiL. The results suggest that evaluating MiL can serve as a coping strategy and help terminally ill parents with minor children. Plain language summary: A comparison of answers to the meaning in life from seriously ill parents with young children with the answers of other seriously ill patients Background: Caring for seriously ill patients with young children can be very stressful. The quality of life depends on meaning in life. No studies were found that focus on the needs of this patients. Objectives: The aim was to explore similarities and differences between seriously ill parents with young children and palliative care patients in Germany to find the best way to support them. Methods: The Meaning in Life questions were used to find this out. Two researchers asked seriously ill parents about different things that make their lives meaningful. The researchers then compared the results with data from other seriously ill patients in need of palliative care. In Germany, 54 seriously ill parents with young children were interviewed between February 2017 and September 2020. The children were usually seven years old. The compared group consisted of 100 palliative care patients and was mostly older than 49 years. For seriously ill patients most important were family, social relations, leisure time, nature/animals, and home/garden. The values seemed similar, but there are clear differences between the groups. Parents felt their illness limited them in being a mother or a father. Conclusion: The questions helped patients helped to remember meaning in life and set goals. The things that mattered to seriously ill parents were different from those that mattered to palliative care patients. All participants said that family was the most important thing for meaning in life. The results show that thinking about meaning in life can help. [ABSTRACT FROM AUTHOR]

Published
2024
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43. Tumorschmerz

Author

Radbruch, Lukas, Elsner, Frank, Rolke, Roman, Baron, Ralf, editor, Koppert, Wolfgang, editor, Strumpf, Michael, editor, and Willweber-Strumpf, Anne, editor

Published
2019
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44. Quality of Life

Author

Radbruch, Lukas, Jaspers, Birgit, MacLeod, Roderick Duncan, editor, and Van den Block, Lieve, editor

Published
2019
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45. Wirksamkeit, Verträglichkeit und Sicherheit von medizinischem Cannabis

Author

Hoch, Eva, Schneider, Miriam, von Keller, Rupert, Bonnet, Udo, Falkai, Peter, Hasan, Alkomiet, Häuser, Winfried, Hinz, Burkhard, Jakob, Luise, Kabisch, Johannes, Kraus, Ludwig, Niemann, Dominik, Petzke, Frank, Pogarell, Oliver, Preuss, Ulrich, Radbruch, Lukas, Sarubin, Nina, Schacherbauer, Kathrin, Schäfer, Michael, Storr, Martin, Friemel, Chris Maria, Hoch, Eva, editor, Friemel, Chris Maria, editor, and Schneider, Miriam, editor

Published
2019
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46. Redefining Palliative Care—A New Consensus-Based Definition

Author

Radbruch, Lukas, De Lima, Liliana, Knaul, Felicia, Wenk, Roberto, Ali, Zipporah, Bhatnaghar, Sushma, Blanchard, Charmaine, Bruera, Eduardo, Buitrago, Rosa, Burla, Claudia, Callaway, Mary, Munyoro, Esther Cege, Centeno, Carlos, Cleary, Jim, Connor, Stephen, Davaasuren, Odontuya, Downing, Julia, Foley, Kathleen, Goh, Cynthia, Gomez-Garcia, Wendy, Harding, Richard, Khan, Quach T., Larkin, Phillippe, Leng, Mhoira, Luyirika, Emmanuel, Marston, Joan, Moine, Sebastien, Osman, Hibah, Pettus, Katherine, Puchalski, Christina, Rajagopal, M.R., Spence, Dingle, Spruijt, Odette, Venkateswaran, Chitra, Wee, Bee, Woodruff, Roger, Yong, Jinsun, and Pastrana, Tania

Published
2020
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47. Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study

Author

Surges, Séverine M, primary, Brunsch, Holger, additional, Jaspers, Birgit, additional, Apostolidis, Kathi, additional, Cardone, Antonella, additional, Centeno, Carlos, additional, Cherny, Nathan, additional, Csikós, Àgnes, additional, Fainsinger, Robin, additional, Garralda, Eduardo, additional, Ling, Julie, additional, Menten, Johan, additional, Mercadante, Sebastiano, additional, Mosoiu, Daniela, additional, Payne, Sheila, additional, Preston, Nancy, additional, Van den Block, Lieve, additional, Hasselaar, Jeroen, additional, and Radbruch, Lukas, additional

Published
2024
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