1. "It Isn't What I Had to Do, It's What I Get to Do": The Experiences of Black Family Caregivers Managing Dementia.
- Author
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Robinson-Lane, Sheria G., Johnson, Florence U., Tuyisenge, Marie Jeanne, Jackson, Jada, Qurashi, Tasneem, Tripathi, Priya, and Giordani, Bruno
- Subjects
FAMILIES & psychology ,TREATMENT of dementia ,PSYCHOLOGICAL resilience ,HEALTH services accessibility ,QUALITATIVE research ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,EMOTIONS ,PSYCHOLOGICAL adaptation ,FAMILY attitudes ,BURDEN of care ,PSYCHOLOGY of Black people ,RESEARCH methodology ,SOCIAL networks ,PSYCHOLOGICAL stress ,DEMENTIA ,PSYCHOLOGY of caregivers ,COMPARATIVE studies ,PSYCHOLOGICAL tests ,BARTHEL Index ,SOCIAL support ,MEDICAL needs assessment ,CAREGIVER attitudes ,DEMENTIA patients ,ACTIVITIES of daily living - Abstract
Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (n = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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