490 results on '"Potter, Beth K"'
Search Results
2. Review of clinical trials and guidelines for children and youth with mucopolysaccharidosis: outcome selection and measurement
3. Pregnancies with ‘double-positive’ multiple marker screening results: a population-based study in Ontario, Canada
4. Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency
5. Relationship Between Gestational Weight Gain and Health Service Utilization in Early Childhood: A Retrospective Cohort Study
6. Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review
7. Exome and genome sequencing for rare genetic disease diagnosis: A scoping review and critical appraisal of clinical guidance documents produced by genetics professional organizations
8. Youth and family involvement in the development of a plain language trial results communication tool: CommuniKIDS
9. Maternal weight and paediatric health use: mediating role of adverse birth outcomes: a retrospective cohort study
10. Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research
11. Paper II: thematic framework analysis of registry-based randomized controlled trials provided insights for designing trial ready registries
12. Paper I: Heterogeneous use of registry data for participant identification and primary outcome ascertainment is found in registry-based randomized controlled trials: A scoping review
13. Validation of gestational age determination from ultrasound or a metabolic gestational age algorithm using exact date of conception in a cohort of newborns conceived using assisted reproduction technologies
14. Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey
15. A Retrospective Cohort Study Investigating the Impact of Maternal Pre-Pregnancy Body Mass Index on Pediatric Health Service Utilization
16. Screening for depression among the general adult population and in women during pregnancy or the first-year postpartum: two systematic reviews to inform a guideline of the Canadian Task Force on Preventive Health Care
17. Outcomes of pregnancies with varying levels of nuchal translucency measurements: A population‐based retrospective study in Ontario, Canada.
18. Parental psychosocial aspects and stressors involved in the management of inborn errors of metabolism
19. Barriers in accessing medical cannabis for children with drug-resistant epilepsy in Canada: A qualitative study
20. Neurologists’ perspectives on medical cannabis for pediatric drug-resistant epilepsy in Canada: A qualitative interview study
21. What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening
22. Health-care providers’ perspectives on uncertainty generated by variant forms of newborn screening targets
23. Cannabis-based products for pediatric epilepsy: An updated systematic review
24. Examining Cultural Competence in Pediatric Hearing Loss Services: A Survey
25. Ultrasonographic Fetal Nuchal Translucency Measurements and Cytogenetic Outcomes
26. Family‐centred care interventions for children with chronic conditions: A scoping review
27. Co-developing The Canadian MPS Registry: A longitudinal rare disease patient registry
28. Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
29. Correction to: Establishing a core outcome set for mucopolysaccharidoses (MPS) in children: study protocol for a rapid literature review, candidate outcomes survey, and Delphi surveys
30. Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children
31. Screening for depression in children and adolescents: a protocol for a systematic review update
32. Family History Taking in Pediatric Practice : A Qualitative Interview Study
33. Association Between Newborn Metabolic Profiles and Pediatric Kidney Disease
34. Decision Models for Assessing the Cost Effectiveness of Treatments for Pediatric Drug-Resistant Epilepsy: A Systematic Review of Economic Evaluations
35. Relationship Between Gestational Weight Gain and Health Service Utilization in Early Childhood: A Retrospective Cohort Study
36. Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis
37. A secondary benefit: the reproductive impact of carrier results from newborn screening for cystic fibrosis
38. Postnatal Prediction of Gestational Age Using Newborn Fetal Hemoglobin Levels
39. Patient and public involvement in pragmatic trials: online survey of corresponding authors of published trials
40. Metabolic Clinic Atlas: Organization of Care for Children with Inherited Metabolic Disease in Canada
41. Translating rare-disease therapies into improved care for patients and families: what are the right outcomes, designs, and engagement approaches in health-systems research?
42. Nutritional management of phenylalanine hydroxylase (PAH) deficiency in pediatric patients in Canada: a survey of dietitians’ current practices
43. Incidental screen positive findings in a prospective cohort study in Matlab, Bangladesh: insights into expanded newborn screening for low-resource settings
44. Utilization of key preventive measures for pregnancy complications and malaria among women in Jimma Zone, Ethiopia
45. Association between newborn screening analytes and hypoxic ischemic encephalopathy
46. A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability
47. Paper II : Thematic framework analysis of registry-based randomized controlled trials provided insights for designing trial ready registries
48. Study Preregistration: Measuring What Matters: Development and Dissemination of a Core Outcome Set for Pediatric Anxiety Disorders Clinical Trials
49. Heterogeneous use of registry data for participant identification and primary outcome ascertainment is found in registry-based randomized controlled trials: A scoping review
50. Development and external validation of machine learning algorithms for postnatal gestational age estimation using clinical data and metabolomic markers
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