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9. Do patients’ and referral centers’ characteristics influence multiple sclerosis phenotypes? Results from the Italian multiple sclerosis and related disorders register

Author

Bergamaschi, Roberto, Beghi, Ettore, Bosetti, Cristina, Ponzio, Michela, Santucci, Claudia, Lepore, Vito, Mosconi, Paola, Aguglia, U., Amato, M. P., Ancona, A. L., Ardito, B., Avolio, C., Balgera, R., Banfi, P., Barcella, V., Barone, P., Bellantonio, P., Berardinelli, A., Bergamaschi, R., Bertora, P., Bianchi, M., Bramanti, P., Morra, V. Brescia, Brichetto, G., Brioschi, A. M., Buccafusca, M., Bucello, S., Busillo, V., Calchetti, B., Cantello, R., Capobianco, M., Capone, F., Capone, L., Cargnelutti, D., Carrozzi, M., Cartechini, E., Cavaletti, G., Cavalla, P., Celani, M. G., Clerici, R., Clerico, M., Cocco, E., Confalonieri, P., Coniglio, M. G., Conte, A., Corea, F., Cottone, S., Crociani, P., D’Andrea, F., Danni, M. C., De Luca, G., de Pascalis, D., De Riz, M., De Robertis, F., De Rosa, G., De Stefano, N., Corte, M. Della, Di Sapio, A., Docimo, R., Falcini, M., Falcone, N., Fermi, S., Ferraro, E., Ferrò, M. T., Fortunato, M., Foschi, M., Gajofatto, A., Gallo, A., Gallo, P., Gatto, M., Gazzola, P., Giordano, A., Granella, F., Grasso, M. F., Grasso, M. G., Grimaldi, L. M. E., Iaffaldano, P., Imperiale, D., Inglese, M., Iodice, R., Leva, S., Luezzi, V., Lugaresi, A., Lus, G., Maimone, D., Mancinelli, L., Maniscalco, G. T., Marfia, G. A., Marini, B., Marson, A., Mascoli, N., Massacesi, L., Melani, F., Merello, M., Meucci, G., Mirabella, M., Montepietra, S., Nasuelli, D., Nicolao, P., Passantino, F., Patti, F., Peresson, M., Pesci, I., Piantadosi, C., Piras, M. L., Pizzorno, M., Plewnia, K., Pozzilli, C., Protti, A., Quatrale, R., Realmuto, S., Ribizzi, G., Rinalduzzi, S., Rini, A., Romano, S., Romeo, M., Ronzoni, M., Rossi, P., Rovaris, M., Salemi, G., Santangelo, G., Santangelo, M., Santuccio, G., Sarchielli, P., Sinisi, L., Sola, P., Solaro, C., Spitaleri, D., Strumia, S., Tassinari, T., Tonietti, S., Tortorella, C., Totaro, R., Tozzo, A., Trivelli, G., Ulivelli, M., Valentino, P., Venturi, S., Vianello, M., Zaffaroni, M., Zarbo, R., Trojano, Maria, Battaglia, Mario Alberto, Capobianco, Marco, Pugliatti, Maura, Ulivelli, Monica, Mosconi, Paola, Gasperini, Claudio, Patti, Francesco, Amato, Maria Pia, Bergamaschi, Roberto, and Comi, Giancarlo

Published
2022
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11. Effect of an interactive Pilates-based telerehabilitation intervention in people with multiple sclerosis: Protocol for a Randomized Controlled Trial. (Preprint)

Author

Tacchino, Andrea, primary, Ponzio, Michela, additional, Confalonieri, Paolo, additional, Leocani, Letizia, additional, Inglese, Matilde, additional, Centonze, Diego, additional, Cocco, Eleonora, additional, Gallo, Paolo, additional, Paolicelli, Damiano, additional, Rovaris, Marco, additional, Sabattini, Loredana, additional, Tedeschi, Gioacchino, additional, Prosperini, Luca, additional, Patti, Francesco, additional, Sessa, Edoardo, additional, Pedrazzoli, Elisabetta, additional, Battaglia, Mario Alberto, additional, and Brichetto, Giampaolo, additional

Published
2024
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12. Impact of multiple sclerosis comorbidities on quality of life and job activity.

Author

Mallucci, Giulia, Monti, Maria Cristina, Ponzio, Michela, Borrelli, Paola, Montomoli, Cristina, and Bergamaschi, Roberto

Subjects
MULTIPLE sclerosis, QUALITY of life, QUALITY of work life, COMORBIDITY, MEDICAL records
Abstract

Background: Multiple sclerosis (MS) is frequently accompanied by comorbid conditions. Objectives: This study aimed to determine the prevalence of key comorbid conditions in people with multiple sclerosis (pwMS) and assess their impact on quality of life and work-related activities. Methods: A cross-sectional study involving 755 pwMS from two third-level Italian MS centers was conducted. Comorbidities were identified from medical records, and quality of life was assessed using the EQ-5D-3L questionnaire. Work-related challenges were evaluated using the Multiple Sclerosis Questionnaire for Job Difficulties (MSQ-Job). Results: 53.8% of pwMS had at least one comorbidity. Hypertension, depression, and anxiety were the most prevalent. Comorbidity presence was associated with reduced quality of life scores in almost all EQ-5D-3L domains and greater job difficulties in all but one MSQ-Job domain. Conclusion: Comorbidities in pwMS are prevalent and have a profound influence on quality of life and work-related activities. This comprehensive study offers new insights into the role of comorbidities in MS within the Italian context, emphasizing the need for a multidisciplinary approach in MS management. Further research is crucial to deepen our understanding of these findings in the broader Italian MS community. [ABSTRACT FROM AUTHOR]

Published
2024
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13. Occupational Physicians' Management of Workers with Multiple Sclerosis in Italy: Results from a Survey.

Author

rondinone, bruna maria, burest, giuliana, iavicoli, sergio, durando, paolo, battaglia, mario alberto, dini, guglielmo, montecucco, alfredo, rahmani, alborz, debarbieri, nicoletta, bandiera, paolo, ponzio, michela, manacorda, tommaso, pignattelli, elena, inglese, matilde, and persechino, benedetta

Abstract

Background: This study, conducted on a sample of Italian occupational physicians (OPs), aimed to gather data regarding professional activity and their needs in managing workers with multiple sclerosis (MS). Methods: A convenience sample of OPs recruited by e-mail invitation to the list of Italian Society of Occupational Medicine members was considered. A total of 220 OPs participated between July and October 2022. An ad hoc questionnaire was developed based on previous survey experiences. It investigated, among others, the characteristics of OP respondents, the evaluation of fitness for work issues, and the OP training and updating needs on MS and work. Results: Ninety-one percent of OPs had to assess the fitness for work of workers with MS during their activity. Sixty-four percent experienced particular difficulties in issuing a fitness for work judgment. Regarding the level of knowledge on MS, 54% judged it sufficient. The "Assessment of fitness for work for the specific task" and the "Role of the OPs in identifying reasonable accommodations" were the most interesting training topics regarding MS management in work contexts chosen by the respondents. Conclusions: The interest in the work inclusion and job retention of people with disability, particularly the aspects linked to the Identification and implementation of reasonable accommodations, will require integration with the occupational safety and health protection system and will undoubtedly impact the OP's activities. [ABSTRACT FROM AUTHOR]

Published
2024
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14. Job Retention by People With Disabilities: A Qualitative Study of the Perspectives of People With Multiple Sclerosis.

Author

Ponzio, Michela, Pignattelli, Elena, Verri, Anna, Grange, Erica, Persechino, Benedetta, Vitturi, Bruno Kusznir, Bandiera, Paolo, Manacorda, Tommaso, Inglese, Matilde, Durando, Paolo, and Battaglia, Mario Alberto

Abstract

Background: Multiple sclerosis (MS), because of its early age at onset, greatly impacts the working lives of those affected by it in ways linked to different factors, both professional and personal. It has been observed that only a small percentage (20-40%) of workers with MS retain their jobs after the diagnosis. When identifying factors determining job retention or loss in this setting, it is essential to consider the direct perspectives of people with MS (PwMS). Methods: A qualitative study, based on the conduction of two focus groups, was conducted to explore the personal experiences of PwMS who work. Results: The results show that there are numerous factors, both positive and negative, that can influence these people's ability to retain their jobs. The climate established in the workplace and the relationship between workers with MS and their colleagues were fundamentally important aspects, as was knowledge of the disease at the level of public opinion. Conclusions: Managing work is a complex undertaking for people with a disabling condition like MS. There needs to be greater awareness of the employment rights of PwMS. Improving these knowledge-based aspects could undoubtedly improve the quality of the working lives of PwM. [ABSTRACT FROM AUTHOR]

Published
2024
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16. An Internet- and Kinect-Based Multiple Sclerosis Fitness Intervention Training With Pilates Exercises: Development and Usability Study

Author

Tacchino, Andrea, primary, Ponzio, Michela, additional, Confalonieri, Paolo, additional, Leocani, Letizia, additional, Inglese, Matilde, additional, Centonze, Diego, additional, Cocco, Eleonora, additional, Gallo, Paolo, additional, Paolicelli, Damiano, additional, Rovaris, Marco, additional, Sabattini, Loredana, additional, Tedeschi, Gioacchino, additional, Prosperini, Luca, additional, Patti, Francesco, additional, Bramanti, Placido, additional, Pedrazzoli, Elisabetta, additional, Battaglia, Mario Alberto, additional, and Brichetto, Giampaolo, additional

Published
2023
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18. Risk of Getting COVID-19 in People With Multiple Sclerosis: A Case-Control Study

Author

Iaffaldano, Pietro, Lucisano, Giuseppe, Manni, Alessia, Paolicelli, Damiano, Patti, Francesco, Capobianco, Marco, Brescia Morra, Vincenzo, Sola, Patrizia, Pesci, Ilaria, Lus, Giacomo, De Luca, Giovanna, Lugaresi, Alessandra, Cavalla, Paola, Montepietra, Sara, Maniscalco, Giorgia Teresa, Granella, Franco, Ragonese, Paolo, Vianello, Marika, Brambilla, Laura, Totaro, Rocco, Toscano, Simona, Malucchi, Simona, Petracca, Maria, Moiola, Lucia, Ferraro, Diana, Lepore, Vito, Mosconi, Paola, Ponzio, Michela, Tedeschi, Gioacchino, Comi, Giancarlo, Battaglia, Mario Alberto, Filippi, Massimo, Amato, Maria Pia, and Trojano, Maria

Published
2022
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20. The administration of the paper and electronic versions of the Manual Ability Measure-36 (MAM-36) and Fatigue Severity Scale (FSS) is equivalent in people with multiple sclerosis

Author

Tacchino, Andrea, primary, Di Giovanni, Rachele, additional, Grange, Erica, additional, Spirito, Maria Marcella, additional, Ponzio, Michela, additional, Battaglia, Mario Alberto, additional, Brichetto, Giampaolo, additional, and Solaro, Claudio Marcello, additional

Published
2023
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22. The Italian multiple sclerosis register

Author

Trojano, Maria, Bergamaschi, Roberto, Amato, Maria Pia, Comi, Giancarlo, Ghezzi, Angelo, Lepore, Vito, Marrosu, Maria Giovanna, Mosconi, Paola, Patti, Francesco, Ponzio, Michela, Zaratin, Paola, Battaglia, Mario Alberto, and on behalf of the Italian Multiple Sclerosis Register Centers Group

Published
2019
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25. The economic impact of comorbidity in multiple sclerosis

Author

Ponzio, Michela, primary, Monti, Maria Cristina, additional, Mallucci, Giulia, additional, Borrelli, Paola, additional, Fusco, Sara, additional, Tacchino, Andrea, additional, Brichetto, Giampaolo, additional, Tronconi, Livio, additional, Montomoli, Cristina, additional, and Bergamaschi, Roberto, additional

Published
2022
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26. Barriers to exercise and the role of general practitioner: A cross-sectional survey among people with multiple sclerosis

Author

Correale, Luca, primary, Martinis, Luca, additional, Tavazzi, Eleonora, additional, Pedullà, Ludovico, additional, Mallucci, Giulia, additional, Brichetto, Giampaolo, additional, Bove, Marco, additional, Ponzio, Michela, additional, Borrelli, Paola, additional, Monti, Maria Cristina, additional, Bergamaschi, Roberto, additional, and Montomoli, Cristina, additional

Published
2022
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27. Work Barriers and Job Adjustments of People with Multiple Sclerosis: A Systematic Review

Author

Vitturi, Bruno Kusznir, primary, Rahmani, Alborz, additional, Dini, Guglielmo, additional, Montecucco, Alfredo, additional, Debarbieri, Nicoletta, additional, Bandiera, Paolo, additional, Ponzio, Michela, additional, Battaglia, Mario Alberto, additional, Brichetto, Giampaolo, additional, Inglese, Matilde, additional, Persechino, Benedetta, additional, and Durando, Paolo, additional

Published
2022
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29. Stigma, Discrimination and Disclosure of the Diagnosis of Multiple Sclerosis in the Workplace: A Systematic Review

Author

Vitturi, Bruno Kusznir, primary, Rahmani, Alborz, additional, Dini, Guglielmo, additional, Montecucco, Alfredo, additional, Debarbieri, Nicoletta, additional, Bandiera, Paolo, additional, Ponzio, Michela, additional, Battaglia, Mario Alberto, additional, Persechino, Benedetta, additional, Inglese, Matilde, additional, and Durando, Paolo, additional

Published
2022
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31. Spatial and temporal distribution of the prevalence of unemployment and early retirement in people with multiple sclerosis: A systematic review with meta-analysis

Author

Vitturi, Bruno Kusznir, primary, Rahmani, Alborz, additional, Dini, Guglielmo, additional, Montecucco, Alfredo, additional, Debarbieri, Nicoletta, additional, Bandiera, Paolo, additional, Battaglia, Mario Alberto, additional, Manacorda, Tommaso, additional, Persechino, Benedetta, additional, Buresti, Giuliana, additional, Ponzio, Michela, additional, Inglese, Matilde, additional, and Durando, Paolo, additional

Published
2022
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32. An interactive Multiple Sclerosis Fitness Intervention Training (MS-FIT) with Pilates exercises. Development and usability of a Kinect-based system. (Preprint)

Author

Tacchino, Andrea, primary, Ponzio, Michela, additional, Confalonieri, Paolo, additional, Leocani, Letizia, additional, Inglese, Matilde, additional, Centonze, Diego, additional, Cocco, Eleonora, additional, Gallo, Paolo, additional, Paolicelli, Damiano, additional, Rovaris, Marco, additional, Sabattini, Loredana, additional, Tedeschi, Gioacchino, additional, Prosperini, Luca, additional, Patti, Francesco, additional, Bramanti, Placido, additional, Pedrazzoli, Elisabetta, additional, Battaglia, Mario Alberto, additional, and Brichetto, Giampaolo, additional

Published
2022
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33. Occupational outcomes of people with multiple sclerosis: a scoping review

Author

Vitturi, Bruno Kusznir, primary, Rahmani, Alborz, additional, Dini, Guglielmo, additional, Montecucco, Alfredo, additional, Debarbieri, Nicoletta, additional, Sbragia, Elvira, additional, Bandiera, Paolo, additional, Ponzio, Michela, additional, Battaglia, Mario Alberto, additional, Manacorda, Tommaso, additional, Persechino, Benedetta, additional, Buresti, Giuliana, additional, Inglese, Matilde, additional, and Durando, Paolo, additional

Published
2022
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35. Do patients' and referral centers' characteristics influence multiple sclerosis phenotypes? Results from the Italian multiple sclerosis and related disorders register

Author

Bergamaschi, R, Beghi, E, Bosetti, C, Ponzio, M, Santucci, C, Lepore, V, Mosconi, P, Aguglia, U, Amato, M, Ancona, A, Ardito, B, Avolio, C, Balgera, R, Banfi, P, Barcella, V, Barone, P, Bellantonio, P, Berardinelli, A, Bertora, P, Bianchi, M, Bramanti, P, Morra, V, Brichetto, G, Brioschi, A, Buccafusca, M, Bucello, S, Busillo, V, Calchetti, B, Cantello, R, Capobianco, M, Capone, F, Capone, L, Cargnelutti, D, Carrozzi, M, Cartechini, E, Cavaletti, G, Cavalla, P, Celani, M, Clerici, R, Clerico, M, Cocco, E, Confalonieri, P, Coniglio, M, Conte, A, Corea, F, Cottone, S, Crociani, P, D'Andrea, F, Danni, M, De Luca, G, de Pascalis, D, De Riz, M, De Robertis, F, De Rosa, G, De Stefano, N, Corte, M, Di Sapio, A, Docimo, R, Falcini, M, Falcone, N, Fermi, S, Ferraro, E, Ferrò, M, Fortunato, M, Foschi, M, Gajofatto, A, Gallo, A, Gallo, P, Gatto, M, Gazzola, P, Giordano, A, Granella, F, Grasso, M, Grimaldi, L, Iaffaldano, P, Imperiale, D, Inglese, M, Iodice, R, Leva, S, Luezzi, V, Lugaresi, A, Lus, G, Maimone, D, Mancinelli, L, Maniscalco, G, Marfia, G, Marini, B, Marson, A, Mascoli, N, Massacesi, L, Melani, F, Merello, M, Meucci, G, Mirabella, M, Montepietra, S, Nasuelli, D, Nicolao, P, Passantino, F, Patti, F, Peresson, M, Pesci, I, Piantadosi, C, Piras, M, Pizzorno, M, Plewnia, K, Pozzilli, C, Protti, A, Quatrale, R, Realmuto, S, Ribizzi, G, Rinalduzzi, S, Rini, A, Romano, S, Romeo, M, Ronzoni, M, Rossi, P, Rovaris, M, Salemi, G, Santangelo, G, Santangelo, M, Santuccio, G, Sarchielli, P, Sinisi, L, Sola, P, Solaro, C, Spitaleri, D, Strumia, S, Tassinari, T, Tonietti, S, Tortorella, C, Totaro, R, Tozzo, A, Trivelli, G, Ulivelli, M, Valentino, P, Venturi, S, Vianello, M, Zaffaroni, M, Zarbo, R, Trojano, M, Battaglia, M, Pugliatti, M, Gasperini, C, Comi, G, Bergamaschi, Roberto, Beghi, Ettore, Bosetti, Cristina, Ponzio, Michela, Santucci, Claudia, Lepore, Vito, Mosconi, Paola, Amato, M P, Ancona, A L, Morra, V Brescia, Brioschi, A M, Celani, M G, Coniglio, M G, Danni, M C, Corte, M Della, Ferrò, M T, Grasso, M F, Grasso, M G, Grimaldi, L M E, Maniscalco, G T, Marfia, G A, Piras, M L, Trojano, Maria, Battaglia, Mario Alberto, Capobianco, Marco, Pugliatti, Maura, Ulivelli, Monica, Gasperini, Claudio, Patti, Francesco, Amato, Maria Pia, Comi, Giancarlo, Bergamaschi, R, Beghi, E, Bosetti, C, Ponzio, M, Santucci, C, Lepore, V, Mosconi, P, Aguglia, U, Amato, M, Ancona, A, Ardito, B, Avolio, C, Balgera, R, Banfi, P, Barcella, V, Barone, P, Bellantonio, P, Berardinelli, A, Bertora, P, Bianchi, M, Bramanti, P, Morra, V, Brichetto, G, Brioschi, A, Buccafusca, M, Bucello, S, Busillo, V, Calchetti, B, Cantello, R, Capobianco, M, Capone, F, Capone, L, Cargnelutti, D, Carrozzi, M, Cartechini, E, Cavaletti, G, Cavalla, P, Celani, M, Clerici, R, Clerico, M, Cocco, E, Confalonieri, P, Coniglio, M, Conte, A, Corea, F, Cottone, S, Crociani, P, D'Andrea, F, Danni, M, De Luca, G, de Pascalis, D, De Riz, M, De Robertis, F, De Rosa, G, De Stefano, N, Corte, M, Di Sapio, A, Docimo, R, Falcini, M, Falcone, N, Fermi, S, Ferraro, E, Ferrò, M, Fortunato, M, Foschi, M, Gajofatto, A, Gallo, A, Gallo, P, Gatto, M, Gazzola, P, Giordano, A, Granella, F, Grasso, M, Grimaldi, L, Iaffaldano, P, Imperiale, D, Inglese, M, Iodice, R, Leva, S, Luezzi, V, Lugaresi, A, Lus, G, Maimone, D, Mancinelli, L, Maniscalco, G, Marfia, G, Marini, B, Marson, A, Mascoli, N, Massacesi, L, Melani, F, Merello, M, Meucci, G, Mirabella, M, Montepietra, S, Nasuelli, D, Nicolao, P, Passantino, F, Patti, F, Peresson, M, Pesci, I, Piantadosi, C, Piras, M, Pizzorno, M, Plewnia, K, Pozzilli, C, Protti, A, Quatrale, R, Realmuto, S, Ribizzi, G, Rinalduzzi, S, Rini, A, Romano, S, Romeo, M, Ronzoni, M, Rossi, P, Rovaris, M, Salemi, G, Santangelo, G, Santangelo, M, Santuccio, G, Sarchielli, P, Sinisi, L, Sola, P, Solaro, C, Spitaleri, D, Strumia, S, Tassinari, T, Tonietti, S, Tortorella, C, Totaro, R, Tozzo, A, Trivelli, G, Ulivelli, M, Valentino, P, Venturi, S, Vianello, M, Zaffaroni, M, Zarbo, R, Trojano, M, Battaglia, M, Pugliatti, M, Gasperini, C, Comi, G, Bergamaschi, Roberto, Beghi, Ettore, Bosetti, Cristina, Ponzio, Michela, Santucci, Claudia, Lepore, Vito, Mosconi, Paola, Amato, M P, Ancona, A L, Morra, V Brescia, Brioschi, A M, Celani, M G, Coniglio, M G, Danni, M C, Corte, M Della, Ferrò, M T, Grasso, M F, Grasso, M G, Grimaldi, L M E, Maniscalco, G T, Marfia, G A, Piras, M L, Trojano, Maria, Battaglia, Mario Alberto, Capobianco, Marco, Pugliatti, Maura, Ulivelli, Monica, Gasperini, Claudio, Patti, Francesco, Amato, Maria Pia, and Comi, Giancarlo

Abstract

Background: Multiple sclerosis (MS) is characterized by phenotypical heterogeneity, partly resulting from demographic and environmental risk factors. Socio-economic factors and the characteristics of local MS facilities might also play a part. Methods: This study included patients with a confirmed MS diagnosis enrolled in the Italian MS and Related Disorders Register in 2000–2021. Patients at first visit were classified as having a clinically isolated syndrome (CIS), relapsing–remitting (RR), primary progressive (PP), progressive-relapsing (PR), or secondary progressive MS (SP). Demographic and clinical characteristics were analyzed, with centers’ characteristics, geographic macro-areas, and Deprivation Index. We computed the odds ratios (OR) for CIS, PP/PR, and SP phenotypes, compared to the RR, using multivariate, multinomial, mixed effects logistic regression models. Results: In all 35,243 patients from 106 centers were included. The OR of presenting more advanced MS phenotypes than the RR phenotype at first visit significantly diminished in relation to calendar period. Females were at a significantly lower risk of a PP/PR or SP phenotype. Older age was associated with CIS, PP/PR, and SP. The risk of a longer interval between disease onset and first visit was lower for the CIS phenotype, but higher for PP/PR and SP. The probability of SP at first visit was greater in the South of Italy. Discussion: Differences in the phenotype of MS patients first seen in Italian centers can be only partly explained by differences in the centers’ characteristics. The demographic and socio-economic characteristics of MS patients seem to be the main determinants of the phenotypes at first referral.

Published
2022

38. Correction to: The Italian multiple sclerosis register

Author

Trojano, Maria, Bergamaschi, Roberto, Amato, Maria Pia, Comi, Giancarlo, Ghezzi, Angelo, Lepore, Vito, Marrosu, Maria Giovanna, Mosconi, Paola, Patti, Francesco, Ponzio, Michela, Zaratin, Paola, Battaglia, Mario Alberto, and Italian Multiple Sclerosis Register Centers Group

Published
2019
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43. Family Functioning, Basic Needs and Psychological Well-Being

Author

Nocito, Marzia, Malaponte, Erika, Malara, Emanuela, Mancuso, Rocco, Mandica, Giorgia Martina, Mangone, Alessandra, Marafiori, Maria, Mento, Martina, Mezzopane, Antonietta, Mondi, Alessia, Morganti, Alessandro, Musarra, Denise, Muschio, Chantal, Musumeci, Ester, Niosi, Alessia, Occhipinti, Benedetta, Pacino, Gisella, Pandolfino, Laura, Pantò, Esmeralda, Parafioriti, Gloria, Passalacqua, Gabriele, Patera, Ippolita Caterina, Patti, Erika, Pavone, Giada, Perri, Aurora, Petruzzello, Sofia, Pirrello, Irene, Ponsù, Maria, Ponzio, Michela, Praticò, Vincenza, Pruiti, Marta, Raineri, Giusy, Repaci, Francesca Stefania, and Restuccia, Giovanni

Abstract

Background: The influence of parenting strategies and family functioning was extensively analysed in the study of the healthy development of adolescents. Self-determination theory expands this study by suggesting that at the basis of an optimal development there is the satisfaction of basic psychological needs. The aim of this study was to investigate the relation between family functioning and some related variables, such as intrinsic motivation, basic psychological needs, well-being and parental educational practices. Methods: 140 parents with their 70 teenagers took part to this research. For each of the variables to be investigated, specific self-reports were administered. Results: Results found that adolescent self-perceived well-being was related to supportive parental practices and to a better family functioning. Furthermore, basic psychological needs have been found fundamental for the well-being both in parents than in adolescents. Conclusions: The strength of this study lies in having considered family units, investigating the same variables in both parents and children, and finding satisfaction of basic psychological needs to be related to positive well-being outcomes across generations. The practical implications of these findings are discussed., Journal of Clinical & Developmental Psychology, Online First Articles

Published
2020
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50. What factors influence feeling competent as a parent with multiple sclerosis?

Author

Messmer Uccelli, Michele, Ponzio, Michela, and Traversa, Silvia

Subjects
MULTIPLE sclerosis, PARENT attitudes, STATISTICS, RESEARCH, PSYCHOLOGY of parents, AFFECT (Psychology), SOCIAL support, SOCIAL media, MULTIVARIATE analysis, PARENTING, QUALITY of life, QUESTIONNAIRES, DESCRIPTIVE statistics, PARENT-child relationships, PSYCHOLOGICAL adaptation, STATISTICAL correlation
Abstract

Objective: To identify factors that influence the perception parents with multiple sclerosis have of their competence in parenting. Method/design: Subjects were parents of a child with a maximum of 18 years of age recruited through a national multiple sclerosis organization's social media channels. Data on demographic and disease information, mood, coping, quality of life and perceived social support were collected using an anonymous online questionnaire. Univariate and multivariate analyses were performed to assess associations between these variables and subjects' perception of parenting sense of competence. Results: The sample consisted of 285 parents with multiple sclerosis, with a mean age of 41 years and a mean disease duration of 10.4 years. In the multivariate analysis, independent determinants of lower parenting sense of competence were anxiety (p = 0.012), depression (p = 0.001) and dysfunctional coping (p = 0.005). Problem-focused coping (p = 0.029) and higher physical and mental scores on the SF-12 (p = 0.006, p < 0.001, respectively) were related to a higher parenting sense of competence. Higher parent age correlated with a lower sense of parenting competence (p = 0.002). Conclusions: The perception parents with multiple sclerosis have of their parenting competence was most strongly correlated with mood, coping strategies and health-related quality of life, factors that are potentially modifiable. [ABSTRACT FROM AUTHOR]

Published
2022
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