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1. Registro del Grupo NADYA-SENPE de Nutrición Enteral Domiciliaria en España: años 2018 y 2019

Author

Wanden-Berghe C, Campos Martín C, Álvarez Hernández J, Burgos Peláez R, Matía Martín P, Cuerda Compés C, Lobo G, Martínez Olmos MÁ, De Luis Román DA, Palma Milla S, Gonzalo Marín M, Padín López S, Luengo Pérez LM, Santacruz Carmona N, Pintor de la Maza B, Suárez Llanos JP, Irles Rocamora JA, Forga Visa MT, Martín Palmero MÁ, Sánchez Sánchez R, Cardona Pera D, Tejera Pérez C, Ballesta Sánchez C, Higuera Pulgar I, Bonada Sanjaume A, Penacho Lázaro MÁ, Garde Orbaiz C, Arraiza Irigoyen C, Martín Folgueras T, Virgili Casas N, Cánovas Gaillemin B, Maíz Jiménez MI, Del Olmo García MD, Carabaña Pérez F, Parés Marimón RM, Morán López JM, Mauri Roca S, García Puente I, Sánchez-Vilar Burdiel O, García Delgado Y, Miserachs Aranda N, Calañas Continente A, Apezetxea Celaya A, Pereira Soto MÁ, Sánchez Martos EÁ, and Ponce González MÁ

Subjects
Nutrición enteral. Soporte nutricional. Cuidados domiciliarios. Registros
Abstract

Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.

Published
2022

2. [The NADYA-SENPE Home Enteral Nutrition Registry in Spain: years 2018 and 2019].

Author

Wanden-Berghe C, Campos Martín C, Álvarez Hernández J, Burgos Peláez R, Matía Martín P, de la Cuerda Compés C, Lobo G, Martínez Olmos MÁ, De Luis Román DA, Palma Milla S, Gonzalo Marín M, Padín López S, Luengo Pérez LM, Santacruz Carmona N, Pintor de la Maza B, Suárez Llanos JP, Irles Rocamora JA, Forga Visa MT, Martín Palmero MÁ, Sánchez Sánchez R, Cardona Pera D, Tejera Pérez C, Ballesta Sánchez C, Higuera Pulgar I, Bonada Sanjaume A, Penacho Lázaro MÁ, Garde Orbaiz C, Arraiza Irigoyen C, Martín Folgueras T, Virgili Casas N, Cánovas Gaillemin B, Maíz Jiménez MI, Del Olmo García MD, Carabaña Pérez F, Parés Marimón RM, Morán López JM, Mauri Roca S, García Puente I, Sánchez-Vilar Burdiel O, García Delgado Y, Miserachs Aranda N, Calañas Continente A, Apezetxea Celaya A, Pereira Soto MÁ, Sánchez Martos EÁ, and Ponce González MÁ

Subjects
Aged, Child, Female, Gastrostomy, Humans, Male, Registries, Spain epidemiology, Enteral Nutrition, Parenteral Nutrition, Home
Abstract

Introduction: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed.

Published
2022
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3. A home enteral nutrition (HEN); spanish registry of NADYA-SENPE group; for the year 2013.

Author

Wanden-Berghe C, Álvarez Hernández J, Burgos Peláez R, Cuerda Compes C, Matía Martín P, Luengo Pérez LM, Gómez Candela C, Pérez de la Cruz A, Calleja Fernández A, Martínez Olmos MÁ, Laborda González L, Campos Martín C, Leyes García P, Irles Rocamora JA, Suárez Llanos JP, Cardona Pera D, Gonzalo Marín M, Penacho Lázaro MÁ, Ballesta Sáncez C, Rabasa Soler A, Garde Orbaiz C, Cánovas Gaillemin B, Moreno Villares JM, del Olmo García MD, Carabaña Pérez F, Arraiza Irigoyen C, Mauri S, Sánchez-Vilar Burdiel O, Virgili Casas N, Miserachs Aranda N, Apezetxea Celaya A, Pereira Soto MÁ, and Ponce González MÁ

Subjects
Adolescent, Adult, Aged, Aged, 80 and over, Child, Child, Preschool, Female, Home Care Services, Humans, Infant, Infant, Newborn, Male, Middle Aged, Spain epidemiology, Young Adult, Parenteral Nutrition, Home statistics & numerical data, Registries
Abstract

Aim: To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013., Material and Methods: From January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done., Results: In this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value <0,001. Children mean age was 2,38 years (sd 4,35). The most frequent indication for HEN was neurological disease for children (49,1%). and for adults (60,6%). Gastrostomy was the most used administration route for children (51%) while younger ones were fed with NGT (p-value 0,003) also older adults (48%) were fed with this type of tube (p-value <0,001). The most frequent reasons for cessation of treatment was death, 44,4% were children and 54,7% were adults., Conclusions: The number of patients and hospitals registered increased in the last years while the other variables maintain steady. The registry developed allowing contrasted analysis of data in order to get more information., (Copyright AULA MEDICA EDICIONES 2014. Published by AULA MEDICA. All rights reserved.)

Published
2015
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