41 results on '"Peconi, Julie"'
Search Results
2. Are Welsh primary schools Sunproofed? Results of a national survey, part 1: scoping the landscape of sun safety policies in Wales.
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Peconi, Julie, Lanyon, Kirsty, Tod, Daniel, Driscoll, Timothy, Prathap, Swetha, Watkins, Alan, and Abbott, Rachel A
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PRIMARY schools , *SCHOOL food , *FREE schools , *SCHOOL rules & regulations , *SAFETY - Abstract
Background Schools with formal sun safety polices generally show better sun safety practices than schools without. Objectives To understand the extent to which Welsh primary schools have sun safety policies; to identify the key characteristics of policies; to assess whether policy adoption varies by school characteristics; and to consider what support schools need to develop sun safety policies. Methods An online multiple-choice survey on sun safety was distributed to all 1241 primary schools in Wales. Results In total, 471 (38.0%) schools responded. Of these, 183 (39.0%) reported having a formal sun safety policy. Welsh medium schools (P = 0.036) and schools in North Wales (P = 0.008) were more likely to report having a policy. Schools with a higher percentage of pupils receiving free school meals (P = 0.046) and with lower attendance rates (P = 0.008) were less likely to report having a sun safety policy. The primary reasons for schools not having a policy included being 'not aware of the need' (34.6%); 'need assistance with policy or procedure development' (30.3%); and 'not got around to it just yet' (26.8%). Conclusions With less than half of schools reporting a sun safety policy and variation in the presence/absence of a policy by school characteristics, our survey revealed inconsistency in formal sun safety provision in Welsh schools. The findings also suggest that schools are unaware of the importance of sun safety and need support to develop and implement policies. This snapshot of the current situation in primary schools in Wales provides a basis upon which the comprehensiveness, effectiveness and implementation of sun safety policies can be further evaluated. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Exploring perceptions of and attitudes towards tanning with school children, parents/carers and educators in Wales: A mixed methods study protocol for the SunChat study
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Porres, Gisselle Tur, primary, Lanyon, Kirsty, additional, Abbott, Rachel, additional, Lewis, Helen, additional, Marchant, Emily, additional, and Peconi, Julie, additional
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- 2023
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4. The epidemiology of demand for, and outcomes of, contacts with telephone based healthcare, with particular reference to ward deprivation scores : analysis of calls to NHS Direct Wales, 2002-2004
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Peconi, Julie Patricia
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362.109429 ,Telemedicine ,National health services--Great Britain - Abstract
NHS Direct Wales (NHSDW) is a nurse-led 24-hour health advice and information line. This study estimated the effect of deprivation on the demand for, and outcome of, direct calls to NHSDW after controlling for potentially confounding factors. The author analysed anonymous data from NHSDW on 410,000 calls over 2.5 years, including patient characteristics (age, gender, relationship to caller, ward of residence) and call characteristics (whether for triage or information, day of call). To each call she added ward data including: the corresponding Welsh Index of Multiple Deprivation score; population density; and distance from nearest Emergency Department (ED). She used multiple linear regression to model the relationship between deprivation and demand and binary logistic regression to model the relationship between deprivation and outcome. Confounding variables explained 33.0% of variation in advice call rates; and 27.5% of that in information call rates (both significant at 0.1% level). Deprivation was not a statistically significant predictor of these rates (significance levels 0.158 and 0.244 respectively). Deprivation had more effect on outcomes: an increase in deprivation from one fifth to the next fifth increased by 13% the probability of receiving advice to call 999 emergency care within triage calls [Odds ratio (OR) 1.127; 95% confidence interval (Cl) from 1.113 to 1.143]; and that of receiving advice to seek care face to face rather than self care by 5% (OR 1.049; Cl from 1.041 to 1.058) for triage calls and by 3% (OR 1.034; Cl from 1.022 to 1.047) for information calls. In short, deprivation had no detectable effect on demand for calls, but a positive effect on the outcome of the call. While it is possible that the data underestimated the ‘need’ of deprived patients for healthcare, they yield no evidence that NHSDW should seek to improve access from those patients.
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- 2014
5. Advice given by NHS Direct in Wales : do deprived patients get more urgent decisions? Study of routine data
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Peconi, Julie, Macey, Steven, Rodgers, Sarah, Russell, Ian, Snooks, Helen, and Watkins, Alan
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- 2017
6. Telenursing in the UK: A Brief Profile of National Health Service Direct
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Peconi, Julie, Snooks, Helen, Porter, Alison, Kumar, Sajeesh, editor, and Snooks, Helen, editor
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- 2011
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7. Cognitive aids for people with early stage dementia versus treatment as usual (Dementia Early Stage Cognitive Aids New Trial (DESCANT)): study protocol for a randomised controlled trial
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Chester, Helen, Clarkson, Paul, Davies, Linda, Hughes, Jane, Islam, Muhammad Saiful, Kapur, Narinder, Orrell, Martin, Peconi, Julie, Pitts, Rosa, Poland, Fiona, Russell, Ian, Challis, David, and Members of the HoSt-D (Home Support in Dementia) Programme Management Group
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- 2018
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8. Dementia Early Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia:randomised controlled trial
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Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, Roe, Brenda, Malik, Baber, Robinson, Catherine A, Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, Roe, Brenda, Malik, Baber, and Robinson, Catherine A
- Abstract
BACKGROUND Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. OBJECTIVE To investigate effects of memory aids and guidance by Dementia Support Practitioners (DSPs) for people in early stage dementia through a pragmatic, randomised controlled trial. METHODS Of 469 people with mild to moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by: Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; SMMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ). RESULTS DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS score increased to 14.6 (SD 10.4) in intervention and 12.6 (SD 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between group difference was 0.38 (95% confidence interval -0.89 to 1.65, P=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes. CONCLUSIONS This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers.
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- 2022
9. Dementia Early Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia : randomised controlled trial
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Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, Roe, Brenda, Malik, Baber, Robinson, Catherine A, Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, Roe, Brenda, Malik, Baber, and Robinson, Catherine A
- Abstract
BACKGROUND Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. OBJECTIVE To investigate effects of memory aids and guidance by Dementia Support Practitioners (DSPs) for people in early stage dementia through a pragmatic, randomised controlled trial. METHODS Of 469 people with mild to moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by: Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; SMMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ). RESULTS DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS score increased to 14.6 (SD 10.4) in intervention and 12.6 (SD 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between group difference was 0.38 (95% confidence interval -0.89 to 1.65, P=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes. CONCLUSIONS This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers.
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- 2022
10. Sun safety education in a maritime climate
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Peconi, Julie, primary, Fegan, Greg, additional, and Abbott, Rachel, additional
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- 2022
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11. Sunproofed study protocol: A mixed-methods scoping study of sun safety policies in primary schools in Wales
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Peconi, Julie, primary, O’Neill, Claire, additional, Fegan, Greg, additional, Lanyon, Kirsty, additional, Driscoll, Timothy, additional, Akbari, Ashley, additional, Watkins, Alan, additional, and Abbott, Rachel, additional
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- 2022
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12. Paramedic Assessment of Older Adults After Falls, Including Community Care Referral Pathway: Cluster Randomized Trial
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Snooks, Helen A., Anthony, Rebecca, Chatters, Robin, Dale, Jeremy, Fothergill, Rachael T., Gaze, Sarah, Halter, Mary, Humphreys, Ioan, Koniotou, Marina, Logan, Phillipa, Lyons, Ronan A., Mason, Suzanne, Nicholl, Jon, Peconi, Julie, Phillips, Ceri, Porter, Alison, Siriwardena, Aloysius Niroshan, Wani, Mushtaq, Watkins, Alan, Wilson, Lynsey, and Russell, Ian T.
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- 2017
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13. Dementia Early-Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia: randomised controlled trial
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Clarkson, Paul, primary, Pitts, Rosa, additional, Islam, Saiful, additional, Peconi, Julie, additional, Russell, Ian, additional, Fegan, Greg, additional, Beresford, Rebecca, additional, Entwistle, Charlotte, additional, Gillan, Vincent, additional, Orrell, Martin, additional, Challis, David, additional, Chester, Helen, additional, Hughes, Jane, additional, Kapur, Narinder, additional, Roe, Brenda, additional, Malik, Baber, additional, and Robinson, Catherine, additional
- Published
- 2021
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14. Components, impacts and costs of dementia home support: a research programme including the DESCANT RCT
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Clarkson, Paul, primary, Challis, David, additional, Hughes, Jane, additional, Roe, Brenda, additional, Davies, Linda, additional, Russell, Ian, additional, Orrell, Martin, additional, Poland, Fiona, additional, Jolley, David, additional, Kapur, Narinder, additional, Robinson, Catherine, additional, Chester, Helen, additional, Davies, Sue, additional, Sutcliffe, Caroline, additional, Peconi, Julie, additional, Pitts, Rosa, additional, Fegan, Greg, additional, Islam, Saiful, additional, Gillan, Vincent, additional, Entwistle, Charlotte, additional, Beresford, Rebecca, additional, Abendstern, Michele, additional, Giebel, Clarissa, additional, Ahmed, Saima, additional, Jasper, Rowan, additional, Usman, Adeela, additional, Malik, Baber, additional, and Hayhurst, Karen, additional
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- 2021
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15. Dementia Early Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia: randomised controlled trial
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Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, ROE, BRENDA, Malik, Baber, Robinson , Catherine, Clarkson, Paul, Pitts, Rosa, Islam, Saiful, Peconi, Julie, Russell, Ian, Fegan, Greg, Beresford, Rebecca, Entwistle, Charlotte, Gillan, Vincent, Orrell, Martin, Challis, David, Chester, Helen, Hughes, Jane, Kapur, Narinder, ROE, BRENDA, Malik, Baber, and Robinson , Catherine
- Abstract
BACKGROUND Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued. OBJECTIVE To investigate effects of memory aids and guidance by Dementia Support Practitioners (DSPs) for people in early stage dementia through a pragmatic, randomised controlled trial. METHODS Of 469 people with mild to moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by: Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; SMMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ). RESULTS DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS score increased to 14.6 (SD 10.4) in intervention and 12.6 (SD 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between group difference was 0.38 (95% confidence interval -0.89 to 1.65, P=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes. CONCLUSIONS This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers.
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- 2021
16. Components, impacts and costs of dementia home support: a research programme including the DESCANT RCT
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Clarkson, Paul, Challis, David, Hughes, Jane, ROE, BRENDA, Davies, Linda, Russell, Ian, Orrell, Martin, Poland, Fiona, Jolley, David, Kapur, Narinder, Robinson, Catherine, Chester, Helen, Davies, Sue, Sutcliffe, Caroline, Peconi, Julie, Pitts, Rosa, Fegan, Greg, Islam, Saiful, Gillan, Vincent, Entwistle, Charlotte, Beresford, Rebecca, Abendstern, Michele, Giebel, Clarissa, Ahmed, Saima, Jasper, Rowan, Usman, Adeela, Malik, Baber, Hayhurst, Karen, Clarkson, Paul, Challis, David, Hughes, Jane, ROE, BRENDA, Davies, Linda, Russell, Ian, Orrell, Martin, Poland, Fiona, Jolley, David, Kapur, Narinder, Robinson, Catherine, Chester, Helen, Davies, Sue, Sutcliffe, Caroline, Peconi, Julie, Pitts, Rosa, Fegan, Greg, Islam, Saiful, Gillan, Vincent, Entwistle, Charlotte, Beresford, Rebecca, Abendstern, Michele, Giebel, Clarissa, Ahmed, Saima, Jasper, Rowan, Usman, Adeela, Malik, Baber, and Hayhurst, Karen
- Abstract
Background: Over half of people with dementia live at home. We know little about what home support could be clinically effective or cost-effective in enabling them to live well. Objectives: We aimed to (1) review evidence for components of home support, identify their presence in the literature and in services in England, and develop an appropriate economic model; (2) develop and test a practical memory support package in early-stage dementia, test the clinical effectiveness and cost-effectiveness of routine home support in later-stage dementia and design a toolkit based on this evidence; and (3) elicit the preferences of staff, carers and people with dementia for home support inputs and packages, and evaluate the cost-effectiveness of these approaches in early- and later-stage dementia. Design: We undertook (1) an evidence synthesis, national surveys on the NHS and social care and an economic review; (2) a multicentre pragmatic randomised trial [Dementia Early Stage Cognitive Aids New Trial (DESCANT)] to estimate the clinical effectiveness and cost-effectiveness of providing memory aids and guidance to people with early-stage dementia (the DESCANT intervention), alongside process evaluation and qualitative analysis, an observational study of existing care packages in later-stage dementia along with qualitative analysis, and toolkit development to summarise this evidence; and (3) consultation with experts, staff and carers to explore the balance between informal and paid home support using case vignettes, discrete choice experiments to explore the preferences of people with dementia and carers between home support packages in early- and later-stage dementia, and cost–utility analysis building on trial and observational study. Setting: The national surveys described Community Mental Health Teams, memory clinics and social care services across England. Recruitment to the trial was through memo
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- 2021
17. Components, impacts and costs of dementia home support:a research programme including the DESCANT RCT
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Clarkson, Paul, Challis, David, Deactivated, Given Names Deactivated Family Name, Roe, Brenda, Davies, Linda M, Russell, Ian T., Orrell, Martin, Poland, Fiona, Jolley, David, Kapur, Narinder, Robinson, Catherine A, Chester, Helen, Davies, Sue, Sutcliffe, Caroline, Peconi, Julie, Pitts, Rosa, Fegan, Greg, Islam, Saiful, Gillan, Vincent, Entwistle, Charlotte, Beresford, Rebecca, Abendstern, Michele, Giebel, Clarissa, Ahmed, Dr Saima, Jasper, Rowan, Usman, Adeela Usman Mohammed, Malik, Baber, Hayhurst, Karen, Clarkson, Paul, Challis, David, Deactivated, Given Names Deactivated Family Name, Roe, Brenda, Davies, Linda M, Russell, Ian T., Orrell, Martin, Poland, Fiona, Jolley, David, Kapur, Narinder, Robinson, Catherine A, Chester, Helen, Davies, Sue, Sutcliffe, Caroline, Peconi, Julie, Pitts, Rosa, Fegan, Greg, Islam, Saiful, Gillan, Vincent, Entwistle, Charlotte, Beresford, Rebecca, Abendstern, Michele, Giebel, Clarissa, Ahmed, Dr Saima, Jasper, Rowan, Usman, Adeela Usman Mohammed, Malik, Baber, and Hayhurst, Karen
- Abstract
Background Over half of people with dementia live at home. We know little about what home support could be effective in enabling them to live well. Objectives We aimed to: (1) review evidence for components of home support, identify their presence in the literature and in services in England, and develop an appropriate economic model; (2) develop and test a practical memory support package in early-stage dementia, test the effectiveness of routine home support in later-stage dementia, and design a toolkit based on this evidence; (3) elicit preferences of staff, carers and people with dementia for home support inputs and packages, and evaluate cost-effectiveness of these approaches in early- and later-stage dementia. Design Thus we undertook: (1) evidence synthesis; national surveys on NHS and social care; and economic review (2) multi-centre pragmatic randomised trial (DESCANT) to estimate the effectiveness of providing memory aids and guidance to people with early-stage dementia (the DESCANT intervention) – alongside process evaluation and qualitative analysis; observational study of existing care packages in later-stage dementia alongside qualitative analysis; and toolkit development to summarise this evidence (3) consultation with experts, staff and carers to explore balance between informal and paid home support using case vignettes; Discrete Choice Experiments to explore the preferences of people with dementia and carers between home support packages in early- and later-stage dementia; and cost-utility analysis building on trial and observational study. Setting The national surveys described Community Mental Health Teams, memory clinics and social care services across England. Recruitment to the trial was through memory services in 9 NHS Trusts in England and one Health Board in Wales. Recruitment to the observational study was through social services in 17 local authorities in England. Recruitment for the vignette and preference studies was through memory serv
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- 2021
18. What are the highest priorities for research in emergency prehospital care?
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Snooks, Helen, Evans, Angela, Wells, Bridget, Peconi, Julie, Thomas, Marie, Woollard, Malcolm, Guly, Henry, Jenkinson, Emma, Turner, Janette, and Hartley-Sharpe, Chris
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- 2009
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19. Real nursing? The development of telenursing
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Snooks, Helen A., Williams, Anne M., Griffiths, Lesley J., Peconi, Julie, Rance, Jaynie, Snelgrove, Sharon, Sarangi, Srikant, Wainwright, Paul, and Cheung, Wai-Yee
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- 2008
20. Does deprivation affect the demand for NHS Direct? Observational study of routine data from Wales
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Peconi, Julie, primary, Macey, Steven, additional, Rodgers, Sarah E, additional, Russell, Ian T, additional, Snooks, Helen, additional, and Watkins, Alan, additional
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- 2019
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21. Support and Assessment for Fall Emergency Referrals (SAFER 1) trial protocol. Computerised on-scene decision support for emergency ambulance staff to assess and plan care for older people who have fallen: evaluation of costs and benefits using a pragmatic cluster randomised trial
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Roberts Stephen, Phillips Judith, Phillips Ceri, Peconi Julie, Merali Yasmin, Mason Suzanne, Lyons Ronan, Humphreys Ioan, Gaze Sarah, Dale Jeremy, Close Jacqueline, Cheung Wai-Yee, Snooks Helen, Russell Ian, Sánchez Antonio, Wani Mushtaq, Wells Bridget, and Whitfield Richard
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Special situations and conditions ,RC952-1245 ,Medical emergencies. Critical care. Intensive care. First aid ,RC86-88.9 - Abstract
Abstract Background Many emergency ambulance calls are for older people who have fallen. As half of them are left at home, a community-based response may often be more appropriate than hospital attendance. The SAFER 1 trial will assess the costs and benefits of a new healthcare technology - hand-held computers with computerised clinical decision support (CCDS) software - to help paramedics decide who needs hospital attendance, and who can be safely left at home with referral to community falls services. Methods/Design Pragmatic cluster randomised trial with a qualitative component. We shall allocate 72 paramedics ('clusters') at random between receiving the intervention and a control group delivering care as usual, of whom we expect 60 to complete the trial. Patients are eligible if they are aged 65 or older, live in the study area but not in residential care, and are attended by a study paramedic following an emergency call for a fall. Seven to 10 days after the index fall we shall offer patients the opportunity to opt out of further follow up. Continuing participants will receive questionnaires after one and 6 months, and we shall monitor their routine clinical data for 6 months. We shall interview 20 of these patients in depth. We shall conduct focus groups or semi-structured interviews with paramedics and other stakeholders. The primary outcome is the interval to the first subsequent reported fall (or death). We shall analyse this and other measures of outcome, process and cost by 'intention to treat'. We shall analyse qualitative data thematically. Discussion Since the SAFER 1 trial received funding in August 2006, implementation has come to terms with ambulance service reorganisation and a new national electronic patient record in England. In response to these hurdles the research team has adapted the research design, including aspects of the intervention, to meet the needs of the ambulance services. In conclusion this complex emergency care trial will provide rigorous evidence on the clinical and cost effectiveness of CCDS for paramedics in the care of older people who have fallen. Trial Registration ISRCTN10538608
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- 2010
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22. An evaluation of the appropriateness of advice and healthcare contacts made following calls to NHS Direct Wales
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Rance Jaynie, Cheung Wai-Yee, Munro James, Peconi Julie, Snooks Helen, and Williams Anne
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Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background An evaluation of NHS Direct Wales (NHSDW), a national telephone-based healthcare advice and information service, was undertaken. A key objective was to describe the actions of callers and assess the appropriateness of advice and healthcare contacts made following calls, results of which are reported here. Methods Postal questionnaires were sent to consecutive callers to NHSDW in May 2002 and February 2004 to determine 1) callers' actions following calls and 2) their views about the appropriateness of: advice given; and when to seek further care. An independent clinical panel agreed and applied a set of rules about healthcare sites where examinations, investigations, treatments and referrals could be obtained. The rules were then applied to the subsequent contacts to healthcare services reported by respondents and actions were classified in terms of whether they had been necessary and sufficient for the care received. Results Response rates were similar in each survey: 1033/1897 (54.5%); 606/1204 (50.3%), with 75% reporting contacting NHSDW. In both surveys, nearly half of all callers reported making no further healthcare contact after their call to NHSDW. The most frequent subsequent contacts made were with GPs. More than four fifths of callers rated the advice given - concerning any further care needed and when to seek it - as appropriate (further care needed: survey 1: 673/729, 82.3%; survey 2: 389/421, 92.4%; when to seek further care - survey 1: 462/555, 83.2%; survey 2: n = 295/346, 85.3%). A similar proportion of cases was also rated through the rule set and backed up by the clinical panel as having taken necessary and sufficient actions following their calls to NHSDW (survey 1: 624/729, 80.6%; survey 2: 362/421, 84.4%), with more unnecessary than insufficient actions identified at each survey (survey 1: unnecessary 132/729, 17.1% versus insufficient 11/729, 1.4%; survey 2: unnecessary 47/421, 11.0% versus insufficient 14/421, 3.3%). Conclusion Based on NHSDW caller surveys responses and applying a transparent rule set to caller actions a large majority of subsequent actions were assessed as appropriate, with insufficient contacts particularly infrequent. The challenge for NHSDW is to reduce the number of unnecessary contacts made following calls to the service, whilst maintaining safety.
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- 2009
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23. Thematic Research network for emergency and UnScheduled Treatment (TRUST): scoping the potential
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Edwards Adrian, Snooks Helen, and Peconi Julie
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Special situations and conditions ,RC952-1245 ,Medical emergencies. Critical care. Intensive care. First aid ,RC86-88.9 - Abstract
Abstract Background To identify the benefits of a network in emergency and unscheduled care research, a six week scoping study was undertaken. Objectives were to: draw together stakeholders; identify and prioritise research topics; identify sites for recruitment to studies; and agree a research strategy for a network. Methods A workshop was held to discuss and agree a research strategy based on results from four activities: visits to established research centres in emergency and unscheduled care; a literature overview; interviews with stakeholders in a GP out-of-hours service; and an exploration of the potential for routine data to support research in emergency care. Results Participants attended the workshop from user groups, primary care, the ambulance service, social care, the national telephone based health helpline, the Welsh Assembly Government and the academic sector. Site visits identified opportunities for collaboration. Gaps in knowledge were identified concerning the effectiveness of alternative models of emergency care delivery. Interview data highlighted a lack of evidence related to the quality of out-of-hours provision of primary care. The All Wales Injury Surveillance System (AWISS) was found to offer the potential to use routine data to support quantitative studies in emergency care. Three key issues emerged across all activities: working across boundaries; patient involvement; and triage. Conclusion The study included views from patient, provider, policy and academic perspectives and built the case for a research network in emergency care. Now funded, TRUST (Thematic Research network for emergency and UnScheduled Treatment) will allow the development of research proposals, building of research teams and recruitment of sites and patients both in Wales and across the UK. It aims to address the imbalance between investment and research in this area and help support provision of 'the right care to the right people at the right time'.
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- 2008
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24. Cognitive aids for people with early stage dementia versus treatment as usual (Dementia Early Stage Cognitive Aids New Trial [DESCANT]):study protocol for a randomised controlled trial
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Chester, Helen, Clarkson, Paul, Davies, Linda M, Deactivated, Given Names Deactivated Family Name, Islam, Muhammad Saiful, Kapur, Narinder, Orrell, Martin, Peconi, Julie, Pitts, Rosa, Poland, Fiona, Russell, Ian, Challis, David, Group, HoSt-D (Home Support in Dementia) Programme Management, Chester, Helen, Clarkson, Paul, Davies, Linda M, Deactivated, Given Names Deactivated Family Name, Islam, Muhammad Saiful, Kapur, Narinder, Orrell, Martin, Peconi, Julie, Pitts, Rosa, Poland, Fiona, Russell, Ian, Challis, David, and Group, HoSt-D (Home Support in Dementia) Programme Management
- Abstract
Background: There is a growing need for an evidence-based approach to home support for people with dementia and their carers following diagnosis but research on the effectiveness and cost-effectiveness of different approaches is sparse. The Dementia Early Stage Cognitive Aids New Trial [DESCANT] will evaluate the clinical and cost-effectiveness of a range of memory aids, training and support to people with mild to moderate dementia and their carers at home and compares that intervention with treatment as usual. Methods/Design: This is a multi-site, pragmatic randomised trial preceded by a feasibility study and internal pilot. We aim to allocate at random 360 pairs comprising a person with mild to moderate dementia and an identified carer between the DESCANT intervention and treatment as usual. We assess participants at baseline, 13 and 26 weeks. The primary outcome measure is the Bristol Activities of Daily Living Scale; other participant outcomes include cognition, quality of life, activities of daily living and social networking; and carer outcomes include quality of life, sense of competence and mental health. To enhance this quantitative evaluation we are conducting a qualitative component and a process evaluation to assess the implementation process and identify contextual factors associated with variation. Discussion: The DESCANT intervention reflects current policy to enhance the capabilities of people with dementia after diagnosis, and their carers. If it is clinically and cost-effective, its modest nature and cost will enhance the likelihood of it being incorporated into mainstream practice.
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- 2018
25. Support and Assessment for Fall Emergency Referrals (SAFER) 2: a cluster randomised trial and systematic review of clinical effectiveness and cost-effectiveness of new protocols for emergency ambulance paramedics to assess older people following a fall with referral to community-based care when appropriate
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Snooks, Helen A, primary, Anthony, Rebecca, additional, Chatters, Robin, additional, Dale, Jeremy, additional, Fothergill, Rachael, additional, Gaze, Sarah, additional, Halter, Mary, additional, Humphreys, Ioan, additional, Koniotou, Marina, additional, Logan, Phillipa, additional, Lyons, Ronan, additional, Mason, Suzanne, additional, Nicholl, Jon, additional, Peconi, Julie, additional, Phillips, Ceri, additional, Phillips, Judith, additional, Porter, Alison, additional, Siriwardena, A Niroshan, additional, Smith, Graham, additional, Toghill, Alun, additional, Wani, Mushtaq, additional, Watkins, Alan, additional, Whitfield, Richard, additional, Wilson, Lynsey, additional, and Russell, Ian T, additional
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- 2017
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26. Sun safety education in a maritime climate.
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Peconi, Julie, Fegan, Greg, and Abbott, Rachel
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- 2023
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27. Involving older people in a multi-centre randomised trial of a complex intervention in pre-hospital emergency care: implementation of a collaborative model
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Koniotou, Marina, primary, Evans, Bridie Angela, additional, Chatters, Robin, additional, Fothergill, Rachael, additional, Garnsworthy, Christopher, additional, Gaze, Sarah, additional, Halter, Mary, additional, Mason, Suzanne, additional, Peconi, Julie, additional, Porter, Alison, additional, Siriwardena, A. Niroshan, additional, Toghill, Alun, additional, and Snooks, Helen, additional
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- 2015
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28. Evaluating the effectiveness of different approaches to home support for people in later stage dementia: a protocol for an observational study.
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Chester, Helen, Clarkson, Paul, Hughes, Jane, Russell, Ian, Beresford, Joan, Davies, Linda, Jolley, David, Peconi, Julie, Poland, Fiona, Roberts, Chris, Sutcliffe, Caroline, Challis, David, and Members of the HoSt-D (Home Support in Dementia) Programme Management Group
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Background: Dementia is a major health problem with a growing number of people affected by the condition, both directly and indirectly through caring for someone with dementia. Many live at home but little is known about the range and intensity of the support they receive. Previous studies have mainly reported on discrete services within a single geographical area. This paper presents a protocol for study of different services across several sites in England. The aim is to explore the presence, effects, and cost-effectiveness of approaches to home support for people in later stage dementia and their carers.Methods: This is a prospective observational study employing mixed methods. At least 300 participants (people with dementia and their carers) from geographical areas with demonstrably different ranges of services available for people with dementia will be selected. Within each area, participants will be recruited from a range of services. Participants will be interviewed on two occasions and data will be collected on their characteristics and circumstances, quality of life, carer health and burden, and informal and formal support for the person with dementia. The structured interviews will also collect qualitative data to explore the perceptions of older people and carers.Conclusions: This national study will explore the components of appropriate and effective home support for people with late stage dementia and their carers. It aims to inform commissioners and service providers across health and social care. [ABSTRACT FROM AUTHOR]- Published
- 2017
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29. Qualitative research within trials: developing a standard operating procedure for a clinical trials unit
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Rapport, Frances, primary, Storey, Mel, additional, Porter, Alison, additional, Snooks, Helen, additional, Jones, Kerina, additional, Peconi, Julie, additional, Sánchez, Antonio, additional, Siebert, Stefan, additional, Thorne, Kym, additional, Clement, Clare, additional, and Russell, Ian, additional
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- 2013
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30. Support and Assessment for Fall Emergency Referrals (SAFER 1) trial protocol. Computerised on-scene decision support for emergency ambulance staff to assess and plan care for older people who have fallen: evaluation of costs and benefits using a pragmatic cluster randomised trial
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Snooks, Helen, primary, Cheung, Wai-Yee, additional, Close, Jacqueline, additional, Dale, Jeremy, additional, Gaze, Sarah, additional, Humphreys, Ioan, additional, Lyons, Ronan, additional, Mason, Suzanne, additional, Merali, Yasmin, additional, Peconi, Julie, additional, Phillips, Ceri, additional, Phillips, Judith, additional, Roberts, Stephen, additional, Russell, Ian, additional, Sánchez, Antonio, additional, Wani, Mushtaq, additional, Wells, Bridget, additional, and Whitfield, Richard, additional
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- 2010
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31. An evaluation of the appropriateness of advice and healthcare contacts made following calls to NHS Direct Wales
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Snooks, Helen, primary, Peconi, Julie, additional, Munro, James, additional, Cheung, Wai-Yee, additional, Rance, Jaynie, additional, and Williams, Anne, additional
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- 2009
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32. Thematic Research network for emergency and UnScheduled Treatment (TRUST): scoping the potential
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Peconi, Julie, primary, Snooks, Helen, additional, and Edwards, Adrian, additional
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- 2008
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33. What are the Highest Priorities for Research in Pre-Hospital Care? Results of a Review and Delphi Consultation Exercise
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Snooks, Helen, primary, Evans, Angela, additional, Wells, Bridget, additional, Peconi, Julie, additional, and Thomas, Marie, additional
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- 2008
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34. What are the highest priorities for research in pre-hospital care? Results of a review and Delphi consultation exercise.
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Snooks, Helen, Evans, Angela, Wells, Bridget, Peconi, Julie, and Thomas, Marie
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Background A recent national review of English ambulance services, Taking Healthcare to the Patient: Transforming NHS Ambulance Services, published by the Department of Health, recommended that pre-hospital care research topics should be prioritised to ensure that service provision and development are evidence based wherever possible and that limited available funds are targeted to the most pressing needs. Study objectives To identify gaps in research evidence related to delivery of pre-hospital care; and to rank topics in order of priority for research. Methods Research priorities were initially identified by delegates at the UK Ambulance Service Association's annual conference, AMBEX 2006. An examination of research reviews in pre-hospital care identified other research evidence gaps. Relevant websites, databases and review bibliographies were also searched. Management, service delivery and treatment recommendations in UK policy/guidance documents published since 2000 were matched to research evidence. A list of evidence gaps was circulated in a Delphi-style three-round consultation to experts in pre-hospital care, including clinicians, managers and researchers. Round 1 confirmed/identified research gaps; Round 2 focussed on ranking topics; and Round 3 reviewed the scores and provided an option to rescore. Scores were analysed using SPSS. Results Ninety-six research issues were identified for circulation and prioritisation from 52 reviews and expert consultation and these were matched against 30 policy and guidance documents. Forty people participated in the Delphi exercise. The subject receiving highest priority for research was the development of new performance measures other than emergency ambulance response times. Other highly ranked priorities included treatment of stroke, cardiac conditions, children and people who self-harm; alternatives to Accident and Emergency (A&E) treatment; patient information sharing across care providers; access issues; decision support systems; and demand management systems for pre-hospital care. These priorities reflect three key issues: measuring activity to benefit patients; development of safe non-A&E care; and providing appropriate evidence-based clinical care in the pre-hospital environment. Implications There are many evidence gaps related to current pre-hospital policy and practice including management, clinical and service delivery issues. This Delphi consultation combines expertise of clinicians, managers and researchers to generate consensus on future research priorities in pre-hospital care. The need to develop meaningful performance measures plus alternative methods of patient management illustrates the synergistic relationship between service delivery and performance measurement. It suggests an opportunity to identify alternatives to response times as indicators of quality of pre-hospital care. The final results from this study will be useful to commissioners when developing their strategic approach to decision making about which research should be funded to facilitate continued development of quality patient care in the pre-hospital setting. [ABSTRACT FROM AUTHOR]
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- 2008
35. Equity and service innovation: the implementation of a bibliotherapy scheme in Wales.
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Porter, Alison, Peconi, Julie, Evans, Angela, Snooks, Helen, Lloyd, Keith, and Russell, Ian
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BIBLIOTHERAPY , *PRIMARY care , *PUBLIC health administration , *MENTAL health , *PSYCHOLOGY of reading - Abstract
Objective: Book Prescription Wales (BPW) is a pilot bibiliotherapy scheme launched in July 2005 as a primary care treatment option for people with mild to moderate mental health problems. In an innovative model, patients are prescribed self-help books from a list, to borrow from local libraries. Our objective was to evaluate its implementation, focusing on the issue of equity of service delivery. Methods: Data were gathered from Welsh Assembly Government concerning project set-up and borrowing rates. Mailed questionnaires were completed by 21/22 (95.4%) Local Health Boards and 44/64 (68.8%) Community Mental Health Teams. In addition, 327 out of 497 (66%) primary care practices were surveyed by telephone, 20 prescribers took part in in-depth telephone interviews and three focus groups were conducted with library staff. Results: From July 2005–March 2006, books were borrowed 15,236 times. There was a 10-fold variation in borrowing rates across local authorities (1.07 to 10.18 loans/1000 people). The priority which Local Health Board staff reported giving to the scheme varied. Uptake among prescribers was mixed: in 35% of general practices (n = 116) no-one participated. Prescribers reported different ways of using the bibliotherapy scheme. Library staff reported issues of patchy uptake. Conclusion: Variation in usage of bibliotherapy raises questions about equity; it is unlikely to reflect the distribution of people who could potentially benefit. Factors influencing variation existed all along the implementation chain. It is not always possibly to separate demand-side and supply-side factors when considering equity and service innovation in health care. [ABSTRACT FROM AUTHOR]
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- 2008
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36. Paramedic assessment of older adults after falls, including community care referral pathway: cluster randomized trial
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Snooks, Helen A., Rebecca, Anthony, Robin, Chatters, Jeremy, Dale, Fothergill, Rachael T., Gaze, Sarah, Halter, Mary, Humphreys, Ioan, Koniotou, Marina, Logan, Phillipa, Lyons, Ronan A., Mason, Suzanne, Nicholl, Jon, Peconi, Julie, Phillips, Ceri, Porter, Alison, Siriwardena, A. Niroshan, Wani, Mushtaq, Watkins, Alan, Wilson, Lynsey, Russell, Ian T., Snooks, Helen A., Rebecca, Anthony, Robin, Chatters, Jeremy, Dale, Fothergill, Rachael T., Gaze, Sarah, Halter, Mary, Humphreys, Ioan, Koniotou, Marina, Logan, Phillipa, Lyons, Ronan A., Mason, Suzanne, Nicholl, Jon, Peconi, Julie, Phillips, Ceri, Porter, Alison, Siriwardena, A. Niroshan, Wani, Mushtaq, Watkins, Alan, Wilson, Lynsey, and Russell, Ian T.
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Study objective We aim to determine clinical and cost-effectiveness of a paramedic protocol for the care of older people who fall. Methods We undertook a cluster randomized trial in 3 UK ambulance services between March 2011 and June 2012. We included patients aged 65 years or older after an emergency call for a fall, attended by paramedics based at trial stations. Intervention paramedics could refer the patient to a community-based falls service instead of transporting the patient to the emergency department. Control paramedics provided care as usual. The primary outcome was subsequent emergency contacts or death. Results One hundred five paramedics based at 14 intervention stations attended 3,073 eligible patients; 110 paramedics based at 11 control stations attended 2,841 eligible patients. We analyzed primary outcomes for 2,391 intervention and 2,264 control patients. One third of patients made further emergency contacts or died within 1 month, and two thirds within 6 months, with no difference between groups. Subsequent 999 call rates within 6 months were lower in the intervention arm (0.0125 versus 0.0172; adjusted difference –0.0045; 95% confidence interval –0.0073 to –0.0017). Intervention paramedics referred 8% of patients (204/2,420) to falls services and left fewer patients at the scene without any ongoing care. Intervention patients reported higher satisfaction with interpersonal aspects of care. There were no other differences between groups. Mean intervention cost was $23 per patient, with no difference in overall resource use between groups at 1 or 6 months. Conclusion A clinical protocol for paramedics reduced emergency ambulance calls for patients attended for a fall safely and at modest cost.
37. Support and Assessment for Fall Emergency Referrals (SAFER) 2: a cluster randomised trial and systematic review of clinical effectiveness and cost-effectiveness of new protocols for emergency ambulance paramedics to assess older people following a fall with referral to community-based care when appropriate
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Snooks, Helen A., Anthony, Rebecca, Chatters, Robin, Dale, Jeremy, Fothergill, Rachael, Gaze, Sarah, Halter, Mary, Humphreys, Ioan, Koniotou, Marina, Logan, Phillipa, Lyons, Ronan, Mason, Suzanne, Nicholl, Jon, Peconi, Julie, Phillips, Ceri, Phillips, Judith, Porter, Alison, Siriwardena, A. Niroshan, Smith, Graham, Toghill, Alun, Wani, Mushtaq, Watkins, Alan, Whitfield, Richard, Wilson, Lynsey, Russell, Ian T., Snooks, Helen A., Anthony, Rebecca, Chatters, Robin, Dale, Jeremy, Fothergill, Rachael, Gaze, Sarah, Halter, Mary, Humphreys, Ioan, Koniotou, Marina, Logan, Phillipa, Lyons, Ronan, Mason, Suzanne, Nicholl, Jon, Peconi, Julie, Phillips, Ceri, Phillips, Judith, Porter, Alison, Siriwardena, A. Niroshan, Smith, Graham, Toghill, Alun, Wani, Mushtaq, Watkins, Alan, Whitfield, Richard, Wilson, Lynsey, and Russell, Ian T.
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Background: Emergency calls are frequently made to ambulance services for older people who have fallen, but ambulance crews often leave patients at the scene without any ongoing care. We evaluated a new clinical protocol which allowed paramedics to assess older people who had fallen and, if appropriate, refer them to community-based falls services. Objectives: To compare outcomes, processes and costs of care between intervention and control groups; and to understand factors which facilitate or hinder use. Design: Cluster randomised controlled trial. Participants: Participating paramedics at three ambulance services in England and Wales were based at stations randomised to intervention or control arms. Participants were aged 65 years and over, attended by a study paramedic for a fall-related emergency service call, and resident in the trial catchment areas. Interventions: Intervention paramedics received a clinical protocol with referral pathway, training and support to change practice. Control paramedics continued practice as normal. Outcomes: The primary outcome comprised subsequent emergency health-care contacts (emergency admissions, emergency department attendances, emergency service calls) or death at 1 month and 6 months. Secondary outcomes included pathway of care, ambulance service operational indicators, self-reported outcomes and costs of care. Those assessing outcomes remained blinded to group allocation. Results: Across sites, 3073 eligible patients attended by 105 paramedics from 14 ambulance stations were randomly allocated to the intervention group, and 2841 eligible patients attended by 110 paramedics from 11 stations were randomly allocated to the control group. After excluding dissenting and unmatched patients, 2391 intervention group patients and 2264 control group patients were included in primary outcome analyses. We did not find an effect on our overall primary outcome at 1 month or 6 months. However, further emergency service calls were reduce
38. Involving older people in a multi-centre randomised trial of a complex intervention in pre-hospital emergency care: implementation of a collaborative model
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Koniotou, Marina, Evans, Bridie Angela, Chatters, Robin, Fothergill, Rachael, Garnsworthy, Christopher, Gaze, Sarah, Halter, Mary, Mason, Suzanne, Peconi, Julie, Porter, Alison, Siriwardena, A. Niroshan, Toghill, Alun, Snooks, Helen, Koniotou, Marina, Evans, Bridie Angela, Chatters, Robin, Fothergill, Rachael, Garnsworthy, Christopher, Gaze, Sarah, Halter, Mary, Mason, Suzanne, Peconi, Julie, Porter, Alison, Siriwardena, A. Niroshan, Toghill, Alun, and Snooks, Helen
- Abstract
BACKGROUND: Health services research is expected to involve service users as active partners in the research process, but few examples report how this has been achieved in practice in trials. We implemented a model to involve service users in a multi-centre randomised controlled trial in pre-hospital emergency care. We used the generic Standard Operating Procedure (SOP) from our Clinical Trials Unit (CTU) as the basis for creating a model to fit the context and population of the SAFER 2 trial. METHODS: In our model, we planned to involve service users at all stages in the trial through decision-making forums at 3 levels: 1) strategic; 2) site (e.g. Wales; London; East Midlands); 3) local. We linked with charities and community groups to recruit people with experience of our study population. We collected notes of meetings alongside other documentary evidence such as attendance records and study documentation to track how we implemented our model. RESULTS: We involved service users at strategic, site and local level. We also added additional strategic level forums (Task and Finish Groups and Writing Days) where we included service users. Service user involvement varied in frequency and type across meetings, research stages and locations but stabilised and increased as the trial progressed. CONCLUSION: Involving service users in the SAFER 2 trial showed how it is feasible and achievable for patients, carers and potential patients sharing the demographic characteristics of our study population to collaborate in a multi-centre trial at the level which suited their health, location, skills and expertise. A standard model of involvement can be tailored by adopting a flexible approach to take account of the context and complexities of a multi-site trial. TRIAL REGISTRATION: Current Controlled Trials ISRCTN60481756 . Registered: 13 March 2009.
39. Are Welsh primary schools Sunproofed? Results of a national survey Part 2: sun protection practices in primary schools in Wales.
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Abbott RA, Tod D, Lanyon K, Driscoll T, Prathap S, Watkins A, and Peconi J
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Background: Skin cancer rates are on the rise globally. School sun safety programmes are recommended by the World Health Organisation to reduce the risk of future skin cancer at population level; however, these are encouraged but not mandated in Wales., Objectives: To explore current sun protection practices and sun safety education in primary schools in Wales and whether these are linked to the existence of a formal sun safety policy., Methods: An online survey to all 1241 Welsh primary schools asking about sun safety practices, education and formal policies., Results: 471 (38.0%) schools responded with the profile of responding schools generally matching the profile of schools in Wales. A minority (22,4.7%) of responding schools reported they had sufficient shade for most activities. In the spring and summer terms almost two thirds of schools encourage hat wearing (304, 64.8%) and sunscreen (296, 63.2%). While nearly all schools reported that parents were encouraged to apply sunscreen to students before school (449, 95.7%), there was wide variation in other sunscreen application practices. Less than one third of schools (129, 29.0%) reported that they include sun protection education in the curriculum in every year group, with 11.7% (52) including this in certain years only.Schools with a formal policy were more likely to report more comprehensive sun protection practices including having sufficient shade [OR 1.51, 95% CI 1.04-2.19; p = 0.032], having spare hats for pupils to wear [OR 1.59, 95% CI 1.07-2.37; p = 0.023], providing guidance for staff [OR 5.87, 95% CI 3.05-11.28; p < 0.001], encouraging them to model sun safe behaviours [OR 1.82, 95% CI 1.18-2.80; p = 0.007] and teaching sun protection education as part of the curriculum in every year group [OR 2.56, 95% CI 1.76-3.71; p < 0.001]. With respect to sunscreen, the existence of a formal policy did not seem to affect a school's practice., Conclusions: While in most cases, the existence of a formal policy suggests more comprehensive sun protection practices and education in schools, sun protection measures and education need improvement across the primary school sector in Wales to reverse rising skin cancer rates., (© The Author(s) 2024. Published by Oxford University Press on behalf of British Association of Dermatologists.)
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- 2024
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40. Dementia Early-Stage Cognitive Aids New Trial (DESCANT) of memory aids and guidance for people with dementia: randomised controlled trial.
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Clarkson P, Pitts R, Islam S, Peconi J, Russell I, Fegan G, Beresford R, Entwistle C, Gillan V, Orrell M, Challis D, Chester H, Hughes J, Kapur N, Roe B, Malik B, and Robinson C
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- Activities of Daily Living psychology, Caregivers psychology, Cognition, Humans, Quality of Life, Dementia psychology, Dementia therapy
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Background: Common memory aids for people with dementia at home are recommended. However, rigorous evaluation is lacking, particularly what guidance or support is valued., Objective: To investigate effects of memory aids and guidance by dementia support practitioners (DSPs) for people in early-stage dementia through a pragmatic, randomised controlled trial., Methods: Of 469 people with mild-to-moderate dementia and their informal carers, 468 were randomised to a DSP with memory aids or to usual care plus existing dementia guide. Allocation was stratified by Trust/Health Board; time since first attendance at memory service; gender; age; and living with primary carer or not. Primary outcome was Bristol Activities of Daily Living Scale (BADLS) Score at 3 and 6 months (primary end-point). Secondary outcomes for people with dementia: quality of life (CASP-19; DEMQOL); cognition and functioning (Clinical Dementia Rating Scale; S-MMSE); capability (ICECAP-O); social networks (LSNS-R); and instrumental daily living activities (R-IDDD). Secondary outcomes for carers: psychological health (GHQ-12); sense of competence (SSCQ)., Results: DSPs were successfully trained, compliance was good and welcomed by participants. Mean 6 months BADLS Score increased to 14.6 (SD: 10.4) in intervention and 12.6 (SD: 8.1) in comparator, indicative of greater dependence in the activities of daily living. Adjusted between-group difference was 0.38 (95% CI: -0.89 to 1.65, p=0.56). Though this suggests greater dependency in the intervention group the difference was not significant. No differences were found in secondary outcomes., Conclusions: This intervention did not maintain independence in the activities of daily living with no improvement in other outcomes for people with dementia or carers., Trial Registration Number: Current Controlled Trials ISRCTN12591717., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.)
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- 2022
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41. Components, impacts and costs of dementia home support: a research programme including the DESCANT RCT
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Clarkson P, Challis D, Hughes J, Roe B, Davies L, Russell I, Orrell M, Poland F, Jolley D, Kapur N, Robinson C, Chester H, Davies S, Sutcliffe C, Peconi J, Pitts R, Fegan G, Islam S, Gillan V, Entwistle C, Beresford R, Abendstern M, Giebel C, Ahmed S, Jasper R, Usman A, Malik B, and Hayhurst K
- Abstract
Background: Over half of people with dementia live at home. We know little about what home support could be clinically effective or cost-effective in enabling them to live well., Objectives: We aimed to (1) review evidence for components of home support, identify their presence in the literature and in services in England, and develop an appropriate economic model; (2) develop and test a practical memory support package in early-stage dementia, test the clinical effectiveness and cost-effectiveness of routine home support in later-stage dementia and design a toolkit based on this evidence; and (3) elicit the preferences of staff, carers and people with dementia for home support inputs and packages, and evaluate the cost-effectiveness of these approaches in early- and later-stage dementia., Design: We undertook (1) an evidence synthesis, national surveys on the NHS and social care and an economic review; (2) a multicentre pragmatic randomised trial [Dementia Early Stage Cognitive Aids New Trial (DESCANT)] to estimate the clinical effectiveness and cost-effectiveness of providing memory aids and guidance to people with early-stage dementia (the DESCANT intervention), alongside process evaluation and qualitative analysis, an observational study of existing care packages in later-stage dementia along with qualitative analysis, and toolkit development to summarise this evidence; and (3) consultation with experts, staff and carers to explore the balance between informal and paid home support using case vignettes, discrete choice experiments to explore the preferences of people with dementia and carers between home support packages in early- and later-stage dementia, and cost–utility analysis building on trial and observational study., Setting: The national surveys described Community Mental Health Teams, memory clinics and social care services across England. Recruitment to the trial was through memory services in nine NHS trusts in England and one health board in Wales. Recruitment to the observational study was through social services in 17 local authorities in England. Recruitment for the vignette and preference studies was through memory services, community centres and carers’ organisations., Participants: People aged > 50 years with dementia within 1 year of first attendance at a memory clinic were eligible for the trial. People aged > 60 years with later-stage dementia within 3 months of a review of care needs were eligible for the observational study. We recruited staff, carers and people with dementia for the vignette and preference studies. All participants had to give written informed consent., Main Outcome Measures: The trial and observational study used the Bristol Activities of Daily Living Scale as the primary outcome and also measured quality of life, capability, cognition, general psychological health and carers’ sense of competence., Methods: Owing to the heterogeneity of interventions, methods and outcome measures, our evidence and economic reviews both used narrative synthesis. The main source of economic studies was the NHS Economic Evaluation Database. We analysed the trial and observational study by linear mixed models. We analysed the trial by ‘treatment allocated’ and used propensity scores to minimise confounding in the observational study., Results: Our reviews and surveys identified several home support approaches of potential benefit. In early-stage dementia, the DESCANT trial had 468 randomised participants (234 intervention participants and 234 control participants), with 347 participants analysed. We found no significant effect at the primary end point of 6 months of the DESCANT intervention on any of several participant outcome measures. The primary outcome was the Bristol Activities of Daily Living Scale, for which scores range from 0 to 60, with higher scores showing greater dependence. After adjustment for differences at baseline, the mean difference was 0.38, slightly but not significantly favouring the comparator group receiving treatment as usual. The 95% confidence interval ran from –0.89 to 1.65 ( p = 0.56). There was no evidence that more intensive care packages in later-stage dementia were more effective than basic care. However, formal home care appeared to help keep people at home. Staff recommended informal care that cost 88% of formal care, but for informal carers this ratio was only 62%. People with dementia preferred social and recreational activities, and carers preferred respite care and regular home care. The DESCANT intervention is probably not cost-effective in early-stage dementia, and intensive care packages are probably not cost-effective in later-stage dementia. From the perspective of the third sector, intermediate intensity packages were cheaper but less effective. Certain elements may be driving these results, notably reduced use of carers’ groups., Limitations: Our chosen outcome measures may not reflect subtle outcomes valued by people with dementia., Conclusions: Several approaches preferred by people with dementia and their carers have potential. However, memory aids aiming to affect daily living activities in early-stage dementia or intensive packages compared with basic care in later-stage dementia were not clinically effective or cost-effective., Future Work: Further work needs to identify what people with dementia and their carers prefer and develop more sensitive outcome measures., Study Registration: Current Controlled Trials ISRCTN12591717. The evidence synthesis is registered as PROSPERO CRD42014008890., Funding: This project was funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research programme and will be published in full in Programme Grants for Applied Research ; Vol. 9, No. 6. See the NIHR Journals Library website for further project information., (Copyright © 2021 Clarkson et al. This work was produced by Clarkson et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This is an Open Access publication distributed under the terms of the Creative Commons Attribution CC BY 4.0 licence, which permits unrestricted use, distribution, reproduction and adaption in any medium and for any purpose provided that it is properly attributed. See: https://creativecommons.org/licenses/by/4.0/. For attribution the title, original author(s), the publication source – NIHR Journals Library, and the DOI of the publication must be cited.)
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- 2021
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