5,148 results on '"Patient Advocacy legislation & jurisprudence"'
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2. Trail Magic.
- Author
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Gray B
- Subjects
- Humans, North Carolina, Health Services Accessibility legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Patient Advocacy psychology, Female, Pregnancy, Abortion, Induced legislation & jurisprudence, Medical Tourism legislation & jurisprudence, Gynecologists legislation & jurisprudence, Gynecologists psychology
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- 2024
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3. Food and Drug Administration v Alliance for Hippocratic Medicine-A Cautious Win for Reproductive Health Care and FDA Authority.
- Author
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Goodwin MB, Whelan AM, and Gostin LO
- Subjects
- Female, Humans, United States, Mifepristone supply & distribution, Abortifacient Agents, Steroidal supply & distribution, Patient Advocacy legislation & jurisprudence, Pregnancy, United States Food and Drug Administration legislation & jurisprudence, Reproductive Health Services legislation & jurisprudence, Abortion, Induced legislation & jurisprudence, Abortion, Induced methods, Health Services Accessibility legislation & jurisprudence
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- 2024
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4. How Is Access to Legal Resources and Advocacy Foundational to Health Justice?
- Author
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Cannon YZ
- Subjects
- Humans, Health Services Accessibility legislation & jurisprudence, Lawyers, United States, Patient Advocacy legislation & jurisprudence, Social Justice
- Abstract
Health justice as a movement incorporates research about how to more effectively leverage law, policy, and institutions to dismantle inequitable power distributions and accompanying patterns of marginalization that are root causes of health inequity. Legal advocacy is key to health justice because it addresses patients' health-harming legal needs in housing, public benefits, employment, education, immigration, domestic violence, and other areas of law. In medical-legal partnerships, lawyers and clinicians are uniquely positioned to jointly identify and remove legal barriers to patients' health, advocate for structural reform, and build community power., (Copyright 2024 American Medical Association. All Rights Reserved.)
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- 2024
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5. 'My Advocacy is Not About Me, My Advocacy is About Canadians': A Qualitative Study of how Caregivers and Patients Influence Regulation of Medical Assistance in Dying in Canada.
- Author
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Jeanneret R, Close E, Downie J, Willmott L, and White BP
- Subjects
- Humans, Canada, Patient Advocacy legislation & jurisprudence, Male, Female, North American People, Caregivers legislation & jurisprudence, Qualitative Research, Suicide, Assisted legislation & jurisprudence
- Abstract
Medical assistance in dying (MAiD) was legalised federally in Canada after the Supreme Court decision in Carter v Canada (Attorney General) [2015] 1 SCR 331. The federal legislative framework for MAiD was established via Bill C-14 in 2016. Caregivers and patients were central to Carter and subsequent litigation and advocacy, which resulted in amendments to the law via Bill C-7 in 2021. Research has primarily focused on the impacts of regulation on caregivers and patients. This qualitative study investigates how caregivers and patients influence law reform and the operation of MAiD practice in Canada (ie, behave as 'regulatory actors'), using Black's definition of regulation. We found that caregivers and patients performed sustained, focused, and intentional actions that influenced law reform and the operation of MAiD in practice. Caregivers and patients are not passive objects of Canadian MAiD regulation, and their role in influencing regulation (eg, law reform and MAiD practice) should be supported where this is desired by the person. However, recognising the burdens of engaging in regulatory action to address barriers to accessing MAiD or to quality care, and MAiD system gaps, other regulatory actors (eg, governments) should minimise this burden, particularly where a person engages in regulatory action reluctantly., (© The Author(s) 2024. Published by Oxford University Press.)
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- 2024
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6. Even one voice: Teaching legislative advocacy as a core competency in family medicine.
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Brown A, Wall TN, Pratt G, Talen MR, O'Grady C, and Reitz R
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- Humans, Clinical Competence standards, Clinical Competence legislation & jurisprudence, Patient Advocacy education, Patient Advocacy legislation & jurisprudence, Curriculum standards, Family Practice education, Family Practice legislation & jurisprudence, Family Practice standards, Internship and Residency standards
- Abstract
Credentialing bodies increasingly focus on advocacy as a competency to be developed by physicians during residency. The skills of advocacy are especially important with the increased attention on social determinants of health, as restrictive state and federal health policy decisions gain widespread attention in the national news media. This movement is reflected in the ACGME's recently revised statement on the training mission of family medicine residencies with the most recent update of milestones, which identifies advocacy as a core competency. Additionally, the major family medicine organizations and governing bodies all similarly identify advocacy as an important professional responsibility for family physicians. Advocacy is a broad term that can be applied across a range of settings and scenarios. For the purposes of this paper we focus primarily on legislative advocacy as a specific area for growing curricular emphasis in family medicine residency programs., Competing Interests: Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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- 2024
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7. Advocacy in Action: NASN's 2024 Advocacy and Legislative Priorities.
- Author
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Hlinomaz J and Largent P
- Subjects
- Humans, United States, Nurse's Role, Lobbying, Patient Advocacy legislation & jurisprudence, School Nursing legislation & jurisprudence, Societies, Nursing legislation & jurisprudence
- Abstract
All nurses have a responsibility to advocate. Advocacy is the eighth school nurse standard and can be actualized in many ways. NASN has established advocacy priorities to provide members with strategic advocacy objectives to advance their school nursing practice. One aspect of these priorities is legislative advocacy. The NASN board of directors puts legislative advocacy into action when they visit their Congress members on Capitol Hill. This article describes NASN's advocacy priorities and how school nurse visits to "the Hill" introduces legislative priorities to legislators.
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- 2024
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8. Perspectives of Medical Organizations, Organ Procurement Organizations, and Advocacy Organizations About Revising the Uniform Determination of Death Act (UDDA).
- Author
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Lewis A
- Subjects
- Humans, United States, Societies, Medical, Patient Advocacy legislation & jurisprudence, Tissue and Organ Procurement legislation & jurisprudence, Tissue and Organ Procurement standards, Brain Death legislation & jurisprudence, Brain Death diagnosis
- Abstract
Background: The Uniform Law Commission paused work of the Drafting Committee to Revise the Uniform Determination of Death Act (UDDA) in September 2023., Methods: Thematic review was performed of comments submitted to the Uniform Law Commission by medical organizations (MO), organ procurement organizations (OPO), and advocacy organizations (AO) from 1/1/2023 to 7/31/2023., Results: Of comments from 41 organizations (22 AO, 15 MO, 4 OPO), 34 (83%) supported UDDA revision (50% OPO, 33% MO recommended against revision). The most comments addressed modifications to "all functions of the entire brain, including the brainstem" (31; 95% AO, 75% OPO, 47% MO), followed by irreversible versus permanent (25; 77% AO, 50% OPO, 40% MO), accommodation of brain death/death by neurologic criteria (BD/DNC) objections (23; 100% OPO, 80% MO, 32% AO), consent for BD/DNC evaluation (18; 75% OPO, 47% MO, 36% AO), "accepted medical standards" (13; 36% AO, 33% MO, 0% OPO), notification before BD/DNC evaluation (14; 100% OPO, 53% MO, 9% AO), time to gather before discontinuation of organ support after BD/DNC determination (12; 60% MO, 25% OPO, 9% AO), and BD/DNC examiner credential requirements (2; 13% MO, 0% AO, 0% OPO). The predominant themes were that the revised UDDA should include the term "irreversible" and shouldn't (1) stipulate specific medical guidelines, (2) require notification before BD/DNC evaluation, or (3) require time to gather before discontinuation of organ support after BD/DNC determination. Views on other topics were mixed, but MO and OPO generally advocated for the revised UDDA to take a functional approach to BD/DNC, not require consent for BD/DNC evaluation, and not require opt-out accommodation of BD/DNC objections. Contrastingly, many AO and some MO with religious affiliations or a focus on advocacy favored the revised UDDA take an anatomic approach to BD/DNC or eliminate BD/DNC altogether, require consent for BD/DNC evaluation, and require opt-out accommodation of BD/DNC objections., Conclusions: Most commenting organizations support UDDA revision, but perspectives on the approach vary, so the Drafting Committee could not formulate revisions that would be agreeable to all stakeholders., (© 2023. Springer Science+Business Media, LLC, part of Springer Nature and Neurocritical Care Society.)
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- 2024
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9. ISSCR guidelines uphold human right to science for benefit of all.
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Master Z, Lovell-Badge R, and Knoppers B
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- Abortion, Spontaneous, Congenital Abnormalities, Female, Humans, Infertility therapy, Male, Embryo Research ethics, Embryo Research legislation & jurisprudence, Guidelines as Topic, Human Rights legislation & jurisprudence, Patient Advocacy ethics, Patient Advocacy legislation & jurisprudence, Stem Cell Research ethics, Stem Cell Research legislation & jurisprudence
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- 2021
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10. The Impact of Political Advocacy on the Plastic Surgeon: A Data-Driven Analysis.
- Author
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Ellsworth WA 4th, Hill DA, Abu-Ghname A, Davis MJ, Buchanan EP, and Jalalabadi F
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- Breast abnormalities, Breast surgery, Breast Neoplasms surgery, Female, Humans, Retrospective Studies, Societies, Medical organization & administration, Surgeons organization & administration, Surgery, Plastic organization & administration, United States, Breast Implantation legislation & jurisprudence, Health Services Accessibility legislation & jurisprudence, Mastectomy adverse effects, Patient Advocacy legislation & jurisprudence, Political Activism
- Abstract
Background: Despite successful legislative efforts by the American Society of Plastic Surgeons (ASPS), the Plastic Surgery Political Action Committee remains underused. Participation in advocacy and financial contributions of ASPS members fall below those of similar surgical subspecialties. This study aims to perform a data-driven investigation into the impact of Plastic Surgery Political Action Committee efforts on the practicing plastic surgeon., Methods: A retrospective review of the ASPS procedural database from 1992 to 2018 and Plastic Surgery Political Action Committee contributions from 2012 to 2018 was performed. Postmastectomy breast and congenital anomaly reconstructions were analyzed. To determine significant variations in trends, change-point analyses were conducted. Changes in surgical volume were correlated to implementation of federal legislative efforts., Results: Three significant trends of increased breast reconstruction volume were detected with associations to three specific legislative changes: 1992 to 1998, which correlates with the Women's Health and Cancer Rights Act; 2006 to 2009, which correlates with the U.S. Food and Drug Administration's approval of silicone breast implant use; and 2013 to 2015, which correlates with the Breast Cancer Patient Education Act. During the study period, breast reconstruction procedures increased substantially compared with all reconstructive procedures (146.6 percent versus 3.6 percent). There were no significant trends detected for birth defect reconstructions. Although contributions were relatively stagnant, resident member contributions increased after 2015, correlating with formation of the Political Action Committee's Resident's Club., Conclusions: This study demonstrates a correlation in timing between Plastic Surgery Political Action Committee legislative accomplishments and the resulting case volume increase in some areas of plastic surgery. The data highlight the importance of political advocacy and how political action committee activities can directly impact patient access to care and the practice of plastic surgery., (Copyright © 2021 by the American Society of Plastic Surgeons.)
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- 2021
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11. Legislators Seek to Limit Options for Transgender Youths.
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- Adolescent, Female, Humans, Male, Patient Advocacy legislation & jurisprudence, Psychology, Adolescent, School Health Services organization & administration, Health Services Accessibility legislation & jurisprudence, Health Services for Transgender Persons legislation & jurisprudence, Transgender Persons legislation & jurisprudence
- Abstract
Curbs on medical treatment and participation in sports are proposed., (Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.)
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- 2021
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12. [Advocacy for the measurement and reduction of COVID-19 disparities according to migratory status and ethnic category in France].
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Melchior M, Desgrées du Loû A, Gosselin A, Datta GD, Carabali M, Merckx J, and Kaufman JS
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- Bias, COVID-19 mortality, COVID-19 pathology, Confidentiality legislation & jurisprudence, France epidemiology, Health Status Disparities, Humans, Morbidity, Mortality ethnology, Pandemics, Public Health Administration legislation & jurisprudence, Public Health Administration standards, Public Health Administration trends, SARS-CoV-2, COVID-19 ethnology, Emigrants and Immigrants statistics & numerical data, Ethnicity statistics & numerical data, Healthcare Disparities ethnology, Healthcare Disparities legislation & jurisprudence, Healthcare Disparities statistics & numerical data, Minority Groups statistics & numerical data, Patient Advocacy legislation & jurisprudence
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- 2021
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13. The University of Miami Infectious Disease Elimination Act Syringe Services Program: A Blueprint for Student Advocacy, Education, and Innovation.
- Author
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Tookes H, Bartholomew TS, St Onge JE, and Ford H
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- Administration, Intranasal, Disease Eradication, Education, Medical methods, Florida epidemiology, HIV Infections diagnosis, HIV Infections epidemiology, Harm Reduction, Ill-Housed Persons psychology, Humans, Naloxone administration & dosage, Naloxone supply & distribution, Narcotic Antagonists administration & dosage, Narcotic Antagonists supply & distribution, Opioid-Related Disorders mortality, Pilot Projects, Program Evaluation, Schools, Medical organization & administration, Syringes, Universities organization & administration, Vulnerable Populations statistics & numerical data, Opioid-Related Disorders prevention & control, Patient Advocacy legislation & jurisprudence, Students, Medical statistics & numerical data, Vulnerable Populations psychology
- Abstract
After the closure of pill mills and implementation of Florida's Prescription Drug Monitoring Program in 2010, high demand for opioids was met with counterfeit pills, heroin, and fentanyl. In response, medical students at the University of Miami Miller School of Medicine embarked on a journey to bring syringe services programs (SSPs) to Florida through an innovative grassroots approach. Working with the Florida Medical Association, students learned patient advocacy, legislation writing, and negotiation within a complex political climate. Advocacy over 4 legislative sessions (2013-2016) included committee testimony and legislative visit days, resulting in the authorization of a 5-year SSP pilot. The University of Miami's Infectious Disease Elimination Act (IDEA) SSP opened on December 1, 2016. Students identified an urgent need for expanded health care for program participants and founded a weekly free clinic at the SSP. Students who rotate through the clinic learn medicine and harm reduction through the lens of social justice, with exposure to people who use drugs, sex workers, individuals experiencing homelessness, and other vulnerable populations. The earliest success of the IDEA SSP was the distribution of over 2,000 boxes of nasal naloxone, which the authors believe positively contributed to a decrease in the number of opioid-related deaths in Miami-Dade County for the first time since 2013. The second was the early identification of a cluster of acute human immunodeficiency virus infections among program participants. Inspired by these successes, students from across the state joined University of Miami students and met with legislators in their home districts, wrote op-eds, participated in media interviews, and traveled to the State Capitol to advocate for decisive action to mitigate the opioid crisis. The 2019 legislature passed legislation authorizing SSPs statewide. In states late to adopt SSPs, medical schools have a unique opportunity to address the opioid crisis using this evidence-based approach., (Copyright © 2020 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the Association of American Medical Colleges.)
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- 2021
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14. Breast Radiology Advocacy: Responding to the Call-to-Action.
- Author
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Patel AK
- Subjects
- Breast diagnostic imaging, Early Detection of Cancer, Female, Humans, Breast Neoplasms diagnostic imaging, Health Communication methods, Health Services Accessibility legislation & jurisprudence, Mammography, Patient Advocacy legislation & jurisprudence
- Abstract
In an increasingly competitive and passionate health care environment, radiology advocacy is imperative, now more than ever. Arguably, it is particularly more crucial in the world of breast cancer, as we as a breast cancer community are tirelessly assembling to advocate for our patients on a variety of levels, whether it is including but not limited to, breast cancer screening, diagnosis, and treatment, access-to-care, education, or research funding. As breast radiologists, it is no longer simply enough to clock in our normal work hours; we must ALL make a concerted effort to vociferously advocate for our patients and profession., Competing Interests: Disclosure A.K. Patel has no relevant commercial or financial conflicts of interest., (Copyright © 2020 Elsevier Inc. All rights reserved.)
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- 2021
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15. Medical advocacy in the face of Australian immigration practices: A study of medical professionals defending the health rights of detained refugees and asylum seekers.
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Stoddart R, Simpson P, and Haire B
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- Australia, Female, Humans, Male, Patient-Centered Care ethics, Patient-Centered Care legislation & jurisprudence, Health Services Accessibility ethics, Health Services Accessibility legislation & jurisprudence, Patient Advocacy ethics, Patient Advocacy legislation & jurisprudence, Refugees legislation & jurisprudence
- Abstract
While medical advocacy is mandated as a core professional commitment in a growing number of ethical codes and medical training programs, medical advocacy and social justice engagement are regularly subordinated to traditional clinical responsibilities. This study aims to provide insight into factors that motivate clinician engagement and perseverance with medical advocacy, so as to inform attempts by policymakers, leaders and educators to promote advocacy practices in medicine. Furthermore, this study aims to provide an analysis of the role of medical advocates in systems where patients' rights are perceived to be infringed and consider how we might best support and protect these medical advocates as a profession, by exploring the experiences and perspectives of Australian clinicians defending the health of detained asylum seekers. In this qualitative study thirty-two medical and health professionals advocating on asylum seeker health in immigration detention were interviewed. Transcripts were coded both inductively and deductively from interview question domains and thematically analysed. Findings suggested that respondents' motivations for advocacy stemmed from deeply intertwined professional and personal ethics. Overall, advocacy responses originated from the union of three integral stimuli: personal ethics, proximity and readiness. We conclude that each of these three integral factors must be addressed in any attempt to foster advocacy within the medical profession. In light of current global trends of increasingly protectionist immigration practices, promoting effective physician advocacy may become essential in ensuring patients' universal right to health., Competing Interests: The authors have declared that no competing interests exist.
- Published
- 2020
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16. Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean.
- Author
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Ross LF
- Subjects
- Clinical Decision-Making ethics, Crowdsourcing economics, History, 21st Century, Humans, Infant, Male, Medical Futility ethics, Mitochondrial Encephalomyopathies genetics, New York City, Parenting, Patient Advocacy legislation & jurisprudence, Patient Transfer ethics, Patient Transfer legislation & jurisprudence, Practice Guidelines as Topic, Thymidine Kinase genetics, United Kingdom, United States, Withholding Treatment legislation & jurisprudence, Cell Cycle Proteins genetics, Mitochondrial Encephalomyopathies therapy, Patient Advocacy ethics, Respiration, Artificial ethics, Ribonucleotide Reductases genetics, Withholding Treatment ethics
- Abstract
Charlie Gard (August 4, 2016, to July 28, 2017) was an infant in the United Kingdom who was diagnosed with an encephalopathic form of mitochondrial DNA depletion syndrome caused by a mutation in the RRM2B gene. Charlie's parents raised £1.3 million (∼$1.6 million US) on a crowdfunding platform to travel to New York to pursue experimental nucleoside bypass treatment, which was being used to treat a myopathic form of mitochondrial DNA depletion syndrome caused by mutations in a different gene (TK2). The case made international headlines about what was in Charlie's best interest. In the medical ethics community, it raised the question of whether best interest serves as a guidance principle (a principle that provides substantive directions as to how decisions are to be made), an intervention principle (a principle specifying the conditions under which third parties are to intervene), both guidance and intervention, or neither. I show that the United Kingdom uses best interest as both guidance and intervention, and the United States uses best interest for neither. This explains why the decision to withdraw the ventilator without attempting nucleoside bypass treatment was the correct decision in the United Kingdom and why the opposite conclusion would have been reached in the United States., Competing Interests: POTENTIAL CONFLICTS OF INTEREST: The author has indicated she has no potential conflicts of interest to disclose., (Copyright © 2020 by the American Academy of Pediatrics.)
- Published
- 2020
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17. Public Appeals Challenging Criteria for Pediatric Organ Transplantation.
- Author
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Goldberg AM
- Subjects
- Age Factors, Child, Child, Preschool, Cystic Fibrosis surgery, Directed Tissue Donation legislation & jurisprudence, Female, Health Care Rationing legislation & jurisprudence, Health Care Rationing organization & administration, History, 21st Century, Humans, Intellectual Disability, Kidney Transplantation, Lung Transplantation ethics, Lung Transplantation legislation & jurisprudence, Male, Online Social Networking, Parents, Patient Advocacy legislation & jurisprudence, Pneumonia surgery, Prejudice, Public Opinion, Resource Allocation legislation & jurisprudence, Resource Allocation organization & administration, Substance-Related Disorders, Tissue and Organ Procurement ethics, Tissue and Organ Procurement organization & administration, Waiting Lists, Wolf-Hirschhorn Syndrome surgery, Young Adult, Directed Tissue Donation ethics, Health Care Rationing ethics, Patient Advocacy ethics, Resource Allocation ethics
- Abstract
In this article, I review the ethical issues that arise in the allocation of deceased-donor organs to children and young adults. By analyzing the public media cases of Sarah Murnaghan, Amelia Rivera, and Riley Hancey, I assess whether public appeals to challenge inclusion and exclusion criteria for organ transplantation are ethical and under which circumstances. The issues of pediatric allocation with limited evidence and candidacy affected by factors such as intellectual disability and marijuana use are specifically discussed. Finally, I suggest that ethical public advocacy can coexist with well-evidenced transplant allocation if and when certain conditions (morally defensible criteria, expert evidence, nonprioritization of the poster child, and greater advocacy for organ transplantation in general) are met., Competing Interests: POTENTIAL CONFLICT OF INTEREST: The author has indicated she has no potential conflicts of interest to disclose., (Copyright © 2020 by the American Academy of Pediatrics.)
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- 2020
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18. [Choosing for euthanasia in advanced dementia; an analysis of the decisions by the Supreme Court].
- Author
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Hendriks AC
- Subjects
- Advance Directives ethics, Aged, Ethics Committees, Clinical, Euthanasia ethics, Female, Humans, Intellectual Disability, Netherlands, Patient Advocacy ethics, Dementia, Euthanasia legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Abstract
For many yearsthere has been confusion in the Netherlands about the question of whether doctors are entitled to end the life of incompetent patients with advanced dementia. The euthanasia control commission, the disciplinary courts and the penal court all answered this question differently after a doctor had performed euthanasia on a 74-year-old woman with advanced dementia and an advance directive made at an earlier stage. On 21 April 2020 the Supreme Court provided clarity, at least to a certain extent. This contribution presents an analysis of the decisions made by the Supreme Court and their implications for self-chosen death in patients with advanced dementia.
- Published
- 2020
19. Evaluation of Legislative Advocacy Alerts for Pediatric Residents.
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Teran PR, Wong R, Van Ramshorst RD, Loh M, Cherian S, Ahlers-Schmidt CR, Okut H, and Kelly N
- Subjects
- Adult, Curriculum, Female, Humans, Male, Program Development, Program Evaluation, Societies, Medical, Texas, Internship and Residency, Patient Advocacy legislation & jurisprudence, Pediatrics education
- Published
- 2020
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20. Advocacy: The Pivotal Role of Oncology Nurses.
- Author
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Blackburn R, Johnson KG, and Chaveleh S
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- Adult, Female, Humans, Male, Middle Aged, United States, Health Policy legislation & jurisprudence, Nurse Clinicians psychology, Nurse's Role psychology, Oncology Nursing legislation & jurisprudence, Oncology Nursing organization & administration, Patient Advocacy legislation & jurisprudence, Patient Advocacy psychology
- Abstract
Advocacy, an important component of nursing professional practice, is pivotal to ensuring that nurses' experience and insight influence public policy. Understanding how to become engaged and receive training to inform that process can support nurses' professional development. Such engagement ensures that nurses' unique insights inform the policies that affect patient care and professional practice in oncology and beyond.
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- 2020
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21. A human rights approach to advocacy for people with dementia: A review of current provision in England and Wales.
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Dixon J, Laing J, and Valentine C
- Subjects
- England, Humans, Wales, Dementia, Human Rights, Patient Advocacy legislation & jurisprudence
- Published
- 2020
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22. Treading a tightrope: Professional perspectives on balancing the rights of patient's and relative's under the Mental Health Act in England.
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Dixon J, Wilkinson-Tough M, Stone K, and Laing J
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- England, Humans, Mental Health, Needs Assessment legislation & jurisprudence, Patient Discharge legislation & jurisprudence, Risk Assessment legislation & jurisprudence, Wales, Commitment of Mentally Ill legislation & jurisprudence, Mental Competency legislation & jurisprudence, Mental Disorders nursing, Patient Advocacy legislation & jurisprudence
- Abstract
Involuntary detention is used internationally to detain and treat people who are deemed to have a mental disorder. In England and Wales, approved mental health professionals (AMHPs) co-ordinate Mental Health Act assessments which allow for patients to be detained. AMHPs have legal duties to identify, inform and consult with a patient's nearest relative (NR), who are, in turn, given powers to initiate or challenge detention. Our study takes an original approach through examining how AMHPs interpret their duties towards nearest relatives. We adopted a two-stage design, which involved an online questionnaire with 55 AMHPs and focus group discussions with 33 AMHPs. The research was conducted in England between 2017 and 2018. Our questionnaire found that a high proportion of AMHPs reported that they had spoken to NRs for background information when assessing patients under the Mental Health Act. However, AMHPs were less likely to ask patients about their views of involving the NR prior to assessment. Focus group findings showed that AMHPs saw the NR role as offering an important 'safeguard' on the basis that NRs could provide information about the patient and advocate on their behalf. AMHPs identified practical difficulties in balancing their legal obligation towards NRs and patients; particularly where issues of potential abuse were raised or where patients had identified that they did not want NR involvement. While AMHPs stated that they sought to prioritise patient wishes regarding confidentiality, their accounts identified that patient consent about information sharing was sometimes implied rather than sought explicitly. Our findings reinforce conclusions by the recent Independent Review of the MHA, which states that current NR provisions are 'outdated, variable and insufficient'. We identify that current practice could be improved using advanced choice documents and outline implications for AMHP practice., (© 2019 John Wiley & Sons Ltd.)
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- 2020
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23. Professor Hal Kendig's Legacy: A fierce advocate for the rights and contributions of older people.
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Browning C and O'Loughlin K
- Subjects
- Age Factors, Ageism legislation & jurisprudence, Biomedical Research legislation & jurisprudence, Geriatrics legislation & jurisprudence, Health Policy legislation & jurisprudence, History, 20th Century, History, 21st Century, Humans, Patient Advocacy legislation & jurisprudence, Policy Making, Ageism history, Aging, Biomedical Research history, Geriatrics history, Health Policy history, Patient Advocacy history
- Published
- 2019
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24. California Takes the Lead on Data Privacy Law.
- Author
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Rothstein MA and Tovino SA
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- California, Federal Government, Government Regulation, Health Insurance Portability and Accountability Act, Humans, United States, Confidentiality legislation & jurisprudence, Data Collection methods, Information Dissemination legislation & jurisprudence, Medical Records Systems, Computerized legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Privacy legislation & jurisprudence
- Abstract
In the early 1970s, Congress considered enacting comprehensive privacy legislation, but it was unable to do so. In 1974, it passed the Privacy Act, applicable only to information in the possession of the federal government. In the intervening years, other information privacy laws enacted by Congress, such as the Health Insurance Portability and Accountability Act, have been weak and sector specific. With the explosion of information technology and the growing concerns about an absence of effective federal privacy laws, the legal focus has shifted to the states. Signaling a new direction in state data privacy and consumer protection law, the California Consumer Privacy Act establishes important rights and protections for California residents with regard to the collection, use, disclosure, and sale of their personal information. The CCPA is certain to spur similar legislation and to affect national and international businesses that collect data from California's residents. Understanding the new law is important for all data-driven industries, including health care., (© 2019 The Hastings Center.)
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- 2019
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25. Advocacy for Cardiac CT: The time is now!
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Blankstein R and Thomas D
- Subjects
- Cardiovascular Diseases economics, Health Care Costs, Humans, Policy Making, Predictive Value of Tests, Reimbursement Mechanisms, Stakeholder Participation, United States, Cardiovascular Diseases diagnostic imaging, Centers for Medicare and Medicaid Services, U.S. economics, Centers for Medicare and Medicaid Services, U.S. legislation & jurisprudence, Patient Advocacy economics, Patient Advocacy legislation & jurisprudence, Tomography, X-Ray Computed economics
- Published
- 2019
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26. Reasonable Expectations of Privacy and Disclosure of Health Data.
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Taylor MJ and Wilson J
- Subjects
- Patient Advocacy legislation & jurisprudence, Confidentiality legislation & jurisprudence, Disclosure legislation & jurisprudence, Information Dissemination legislation & jurisprudence, Informed Consent legislation & jurisprudence, Liability, Legal, Medical Records legislation & jurisprudence
- Abstract
The law of confidence allows for a range of defined circumstances in which confidential patient information (CPI) can be disclosed without breach of confidence-including statutory gateway and overriding public interest. Outside such circumstances, current guidance to health professionals (the 'standard account') assumes that CPI can only be lawfully disclosed with patient consent. This article argues that the standard account has not yet caught up with judgments, post the Human Rights Act 1998 coming into force, which have reinterpreted the law of confidence in the light of Article 8 of the European Convention on Human Rights. In particular, the article explains the significance of the concept of a 'reasonable expectation of privacy' to an action for breach of confidence and thus to legal liability for disclosure of health data. It argues that conformity with a reasonable expectation of privacy provides an alternative account for the lawful disclosure of CPI, and may provide a more sustainable and authentic approach to meeting obligations under the law of confidence than the standard account. The article concludes with recommendations for an evolution of the standard account in a way that could allow restatement of associated concepts (such as consent) free from particular pressure to bend them out of shape. The evolution proposed continues to bring to the fore the patient perspective and allows protection of their 'reasonable expectations' regarding uses of data collected about them rather than those of the profession., (© The Author(s) 2019. Published by Oxford University Press.)
- Published
- 2019
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27. Informed decision-making with and for people with dementia: Developing and pilot testing an education program for legal representatives (PRODECIDE).
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Lühnen J, Mühlhauser I, and Richter T
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- Adult, Aged, Delivery of Health Care legislation & jurisprudence, Female, Humans, Legal Guardians education, Male, Middle Aged, Patient Advocacy education, Proxy legislation & jurisprudence, Decision Making, Dementia psychology, Legal Guardians legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Published
- 2019
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28. Who Are "Unrepresented" Patients and What Count as "Important" Medical Decisions for Them?
- Author
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Ozar D
- Subjects
- Humans, Terminology as Topic, United States, Decision Making ethics, Hospitalization, Inpatients, Patient Advocacy legislation & jurisprudence, Physician's Role, Third-Party Consent ethics, Third-Party Consent legislation & jurisprudence
- Abstract
Unrepresented patients are hospital patients who lack decision-making capacity but have no advance directive and no one to serve as a legally authorized surrogate. An important first step in efforts to change the law and develop organizational policies that help respond to these patients' needs is determining which patients should be considered unrepresented and which aspects of hospital care should receive attention. This article proposes working definitions of unrepresented patient and important medical decisions based on the work of one statewide initiative, the Unrepresented Patients Project for Illinois., (© 2019 American Medical Association. All Rights Reserved.)
- Published
- 2019
- Full Text
- View/download PDF
29. Advocacy Services for College Victims of Sexual Assault: Navigating Complicated Confidentiality Concerns.
- Author
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Javorka M and Campbell R
- Subjects
- Adult, Aged, Female, Humans, Interviews as Topic, Male, Middle Aged, Organizational Policy, Qualitative Research, Confidentiality legislation & jurisprudence, Crime Victims, Patient Advocacy legislation & jurisprudence, Sex Offenses, Student Health Services legislation & jurisprudence, Universities
- Abstract
Recent policy reforms related to campus sexual assault may pose confidentiality concerns for victims. The current study aimed to understand current issues in providing confidential advocacy services for college victims of sexual assault, as well as the differential roles that campus-based and community-based advocacy play for college victims. For this qualitative study, semi-structured interviews were conducted with 22 national experts on campus sexual assault from a variety of disciplinary backgrounds. The results indicate that campus-based advocates face challenges in maintaining confidentiality of victims' information, whereas community-based advocates are more likely to have legal confidentiality protections. Consequently, participants noted that an ideal advocacy model for college victims might be one in which campus- and community-based services are closely coordinated to ensure access to services that are both confidential and meet the unique needs of college students. Implications for advocacy services are discussed, as well as future directions for research and evaluation on the effects of evolving policy aimed at improving institutional responses to sexual assault.
- Published
- 2019
- Full Text
- View/download PDF
30. Ethical failings of CPSO policy and the health care consent act: case review.
- Author
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Landry JT, Patel R, Neilipovitz D, Kyeremanteng K, and D'Egidio G
- Subjects
- Attitude of Health Personnel, Dissent and Disputes, Ethics, Medical, Guidelines as Topic, Health Care Surveys, Humans, Informed Consent legislation & jurisprudence, Ontario, Patient Advocacy legislation & jurisprudence, Policy Making, Terminal Care legislation & jurisprudence, Informed Consent ethics, Patient Advocacy ethics, Quality of Health Care ethics, Terminal Care ethics
- Abstract
End-of-life disputes in Ontario are currently overwhelmingly assessed through the singular lens of patient autonomy. The current dispute resolution mechanism(s) does not adequately consider evidence-based medical guidelines, standards of care, the patient's best interests, expert opinion, or distributive justice. We discuss two cases adjudicated by the Consent and Capacity board of Ontario that demonstrate the over emphasis on patient autonomy. Current health care policy and the Health Care Consent Act also place emphasis on patient autonomy without considering other ethically defensible factors. We argue that current policy and legislation require amendment, and unless there are measures undertaken to modify them, both the quality of care provided and the long-term capabilities of the health care system to remain publicly-funded, comprehensive and equitable, are at stake.
- Published
- 2019
- Full Text
- View/download PDF
31. Federal Right to Try: Where Is It Going?
- Author
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Folkers K, Chapman C, and Redman B
- Subjects
- Government Regulation, Health Services Accessibility legislation & jurisprudence, Humans, Terminally Ill legislation & jurisprudence, United States, United States Food and Drug Administration legislation & jurisprudence, Drugs, Investigational, Investigational New Drug Application legislation & jurisprudence, Orphan Drug Production legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Abstract
Policy-makers, bioethicists, and patient advocates have been engaged in a fierce battle about the merits and potential harms of a federal right-to-try law. This debate about access to investigational medical products has raised profound questions about the limits of patient autonomy, appropriate government regulation, medical paternalism, and political rhetoric. For example, do patients have a right to access investigational therapies, as the right-to-try movement asserts? What is government's proper role in regulating and facilitating access to drugs that are still in development? In this review, we analyze the history of the right-to-try movement, review the arguments put forth by supporters and opponents of the legislation, and consider the movement's consequences. Two possible scenarios may emerge. One is that the right-to-try pathway may fail to meaningfully increase patient access to investigational products. Alternatively, certain companies may attempt to rely on the federal right-to-try legislation to sell investigational products, taking advantage of the provision that allows for direct costs, as there is currently no clear mechanism for enforcement or monitoring of cost calculations., (© 2019 The Hastings Center.)
- Published
- 2019
- Full Text
- View/download PDF
32. Procedural and material aspects of the protection of the rights of a person subject to proceedings for legal incapacitation - Part I.
- Author
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Manowska M and Gałecki P
- Subjects
- Disability Evaluation, Humans, Mental Competency psychology, Poland, Expert Testimony legislation & jurisprudence, Intellectual Disability diagnosis, Mental Competency legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Abstract
The aim and effect of the procedure for legal incapacitation is to ensure the widest possible social integration and the widest possible autonomy of the incapacitated person; the procedure should provide the disabled person with full procedural guarantees enabling him or her to have a fair hearing and to make an equitable decision, not only regarding the issue of incapacitation, but also on the revocation of the incapacitation or on a change in the type of incapacitation. In the first part of the paper, we presented the problem of legal incapacitation, answered questions about who could initiate the proceedings for legal incapacitation, who could be a participant of such proceedings, whether issuing a certificate of health condition is a necessity, and we presented the procedural aspect of protecting the rights of a person against whom proceedings for incapacitation are pending.
- Published
- 2019
- Full Text
- View/download PDF
33. Procedural and material aspects of the protection of the rights of a person subject to proceedings for legal incapacitation - Part II.
- Author
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Manowska M and Gałecki P
- Subjects
- Disability Evaluation, Humans, Mental Competency psychology, Poland, Expert Testimony legislation & jurisprudence, Intellectual Disability diagnosis, Legal Guardians legislation & jurisprudence, Mental Competency legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Abstract
The aim and effect of the procedure for legal incapacitation is to ensure the widest possible social integration and the widest possible autonomy of the incapacitated person; the procedure should provide the disabled person with full procedural guarantees enabling him or her to have a fair hearing and to make an equitable decision, not only regarding the issue of incapacitation, but also on the revocation of the incapacitation or on a change in the type of incapacitation. In the first part of the paper, we presented the problem of legal incapacitation, answered questions about who could initiate the proceedings for legal incapacitation, who could be a participant of such proceedings, whether issuing a certificate of health condition is a necessity, and we presented the procedural aspect of protecting the rights of a person against whom proceedings for incapacitation are pending. In the second part of the manuscript, we described the characteristics of the institution of temporary advisor and guardian ad litem as well as the material aspect of protecting the rights of a person against whom proceedings for incapacitation are pending.
- Published
- 2019
- Full Text
- View/download PDF
34. What the 2018 midterm elections and regulatory changes mean for healthcare and NP advocacy.
- Author
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Kaplan L
- Subjects
- Humans, United States, Delivery of Health Care legislation & jurisprudence, Nurse Practitioners legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Politics
- Published
- 2019
- Full Text
- View/download PDF
35. Medicaid Work Requirements: the Need for Local Advocacy.
- Author
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Douthit NT
- Subjects
- Eligibility Determination trends, Health Personnel legislation & jurisprudence, Health Personnel trends, Humans, Medicaid trends, Patient Advocacy trends, United States, Eligibility Determination legislation & jurisprudence, Medicaid legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Published
- 2019
- Full Text
- View/download PDF
36. Envisioning Future Directions: Conversations With Leaders in Domestic and Sexual Assault Advocacy, Policy, Service, and Research.
- Author
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White JW, Sienkiewicz HC, and Smith PH
- Subjects
- Financial Support, Government Programs economics, Government Programs trends, Humans, Patient Advocacy legislation & jurisprudence, Sex Offenses legislation & jurisprudence, Health Policy trends, Leadership, Patient Advocacy trends, Sex Offenses trends
- Abstract
This article delves into the views of 72 leaders in domestic violence and sexual assault advocacy, policy, service, and research to determine their vision for the future direction of the field. Through discussions with experts, we identified numerous strategies necessary to best meet the needs of domestic violence and sexual assault victims. Common themes focused on the need to (a) examine the context of victims' and offenders' experiences; (b) increase cultural competence to adequately provide appropriate victim services and criminal justice responses for underserved, marginalized, and culturally specific populations; (c) increase reliance on victims' voices; (d) continue to develop partnerships at both the community and the state levels and ensure the role of local communities; (e) expand the concept of successful outcomes that can be reliably and validly assessed; (f) emphasize mixed-methods approaches to address these questions, in recognition that various methods complement each other; and (g) be open to novel or emerging approaches to intervention.
- Published
- 2019
- Full Text
- View/download PDF
37. The Juvenile Mental Health Advocacy Project for Court-Involved Youths.
- Author
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Elliott P, Schultz N, and Feinberg E
- Subjects
- Adolescent, Community Mental Health Services, Government Agencies, Humans, Schools, Juvenile Delinquency legislation & jurisprudence, Mental Health legislation & jurisprudence, Patient Advocacy legislation & jurisprudence
- Published
- 2018
- Full Text
- View/download PDF
38. Contribution of the Health Ombud to Accountability: The Life Esidimeni Tragedy in South Africa.
- Author
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Durojaye E and Agaba DK
- Subjects
- Humans, Long-Term Care standards, Mental Disorders therapy, Mortality, Patient Transfer, South Africa, Human Rights legislation & jurisprudence, Mental Health Services standards, Patient Advocacy legislation & jurisprudence, Social Responsibility
- Abstract
Competing Interests: Competing interests: None declared.
- Published
- 2018
39. Trauma and early blood transfusion: the challenging hemorrhage management in Jehovah's Witnesses.
- Author
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Lima GL and Byk J
- Subjects
- Ethics, Medical, Humans, Informed Consent legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Blood Transfusion ethics, Hemorrhage therapy, Jehovah's Witnesses, Multiple Trauma therapy, Personal Autonomy, Physician's Role
- Abstract
The management of patients, such as Jehovah's Witnesses, who refuse to receive blood transfusions, is often a medical challenge, not only because of the ethical dilemma, but also because it creates a major obstacle to rapid hemorrhage control in a setting of trauma. This article explores the reasons for this conflict between the physician's duty of care and the respect for the patient's autonomy, and draws a panorama of the main understandings of the Judiciary on the subject. Finally, it is concluded that the manifestation of the patient's will, although free, is not enough to release the doctor from his (her) duty of care. In case of danger to life, the doctor must carry out a blood transfusion, regardless of the patient's consent or the permission of those responsible for the patient.
- Published
- 2018
- Full Text
- View/download PDF
40. Building on a foundation of strong clinical trial data, SCCT advocacy gaining momentum with U.S. payers and stakeholders: Advocacy updates over the past year.
- Author
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Thomas DM and Shaw LJ
- Subjects
- Cardiovascular Diseases economics, Cardiovascular Diseases therapy, Health Care Costs, Humans, Medicare economics, Organizational Objectives, Policy Making, Predictive Value of Tests, Societies, Medical economics, Societies, Medical legislation & jurisprudence, United States, Cardiovascular Diseases diagnostic imaging, Patient Advocacy economics, Patient Advocacy legislation & jurisprudence, Societies, Medical organization & administration, Stakeholder Participation, Tomography, X-Ray Computed economics
- Published
- 2018
- Full Text
- View/download PDF
41. US Food and Drug Administration considers comments on proposed nicotine product regulations: Some criticize the agency for not moving fast enough to stop youth e-cigarette use.
- Author
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Printz C
- Subjects
- Adolescent, Adolescent Behavior, Adult, Health Plan Implementation legislation & jurisprudence, Health Plan Implementation organization & administration, Health Plan Implementation standards, Humans, Jurisprudence, Legislation as Topic organization & administration, Legislation as Topic standards, Patient Advocacy legislation & jurisprudence, Smoking Prevention methods, Time Factors, Tobacco Use Cessation Devices adverse effects, United States, Young Adult, Electronic Nicotine Delivery Systems standards, Nicotine toxicity, Smoking Prevention legislation & jurisprudence, United States Food and Drug Administration legislation & jurisprudence, United States Food and Drug Administration standards, Vaping adverse effects, Vaping epidemiology, Vaping legislation & jurisprudence, Vaping prevention & control
- Published
- 2018
- Full Text
- View/download PDF
42. Assessing the impact of a didactic lecture for student pharmacists on legislative advocacy.
- Author
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Mospan CM and Mospan GA
- Subjects
- Education, Pharmacy methods, Education, Pharmacy statistics & numerical data, Humans, Legislation as Topic, Pharmaceutical Services legislation & jurisprudence, Pharmaceutical Services statistics & numerical data, Students, Pharmacy statistics & numerical data, Surveys and Questionnaires, Teaching standards, Patient Advocacy legislation & jurisprudence, Students, Pharmacy psychology
- Abstract
Background and Purpose: Advocacy has been defined as "the essential competence". Literature describes and assesses the impact of elective, extracurricular, and co-curricular advocacy experiences, but there is a deficiency of literature that describes and assesses core curricular advocacy experiences., Educational Activity and Setting: An electronic pre- and post-survey was administered to second-year student pharmacists who attended a didactic lecture on advocacy within a pharmacy law course. All responses were anonymous and matched via self-generated code. Wilcoxon signed rank tests analyzed matched data., Findings: Pharmacy students were generally unaware of their legislative representation and did not know what to expect when meeting with legislators. A small percentage (24%) had previously contacted their legislator regarding pharmacy topics. All three knowledge items and seven of eight attitudes showed statistically significant improvement after the lecture. Following the lecture, 85% of students agreed/strongly agreed they were more prepared to be an advocate for pharmacy, with 76% reporting increased commitment., Discussion: This study shows that a brief didactic educational intervention may improve student pharmacists' knowledge of and commitment to political advocacy, addressing previously noted limitations of models to prepare student pharmacists for advocacy efforts. The skill of advocating was not addressed by this intervention., Summary: A brief didactic lecture at one institution showed a short-term positive influence on pharmacy students' knowledge and attitudes towards legislative advocacy. Introduction of advocacy within the core didactic curricula may provide a method to increase the prevalence of advocates within the profession of pharmacy, but this requires further assessment and identification of best practices., (Copyright © 2018 Elsevier Inc. All rights reserved.)
- Published
- 2018
- Full Text
- View/download PDF
43. The exercise of human rights and citizenship by older adults with an intellectual disability in Ireland.
- Author
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McCausland D, McCallion P, Brennan D, and McCarron M
- Subjects
- Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Female, Group Homes, Humans, Ireland, Male, Middle Aged, Residential Facilities, Choice Behavior, Human Rights legislation & jurisprudence, Intellectual Disability, Patient Advocacy legislation & jurisprudence, Personal Autonomy, Persons with Mental Disabilities legislation & jurisprudence, Politics
- Abstract
Background: The UN Convention on the Rights of Persons with Disabilities (CRPD) provides the benchmark for assessing human rights and citizenship for people with disabilities. This emphasises autonomy, choice, independence, equality and participation for individuals as its fundamental guiding principles., Methods: This paper explores the exercise of human rights and citizenship for older adults with intellectual disabilities (ID) in Ireland, including choice-making, advocacy and political participation. Cross-sectional data (n = 701) is drawn from wave 2 of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing. Rates of participation are reported, along with bivariate associations across a range of demographic, personal and social variables, while factors associated with level of choice-making and voting are explored., Results: We found very low rates of choice-making, advocacy and political participation amongst this population. Two factors of choice were explored: key life choice and everyday choice. Some commonalities were identified between the two factors, yet key differences were also noted. Type of residence was the strongest predictor of key life choice yet not significant in everyday choice, while the reverse was true for functioning in activities of daily living. Other factors were also significant in determining choice, including level of ID, contact with family, functional limitation, literacy, age, having friends and respondent type., Conclusions: Low rates of participation reported here impinge on the rights of older adults with ID under the principles of the UN CRPD. Choice-making emerged as a multi-factorial phenomenon, with different factors important depending on the type of choice involved. This encourages a nuanced and personalised response from policy and support services to overcome individual challenges to participation as equal citizens. The significance of respondent type also highlights the difficulty of including self-report, supported and proxy participants in ID research., (© 2018 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.)
- Published
- 2018
- Full Text
- View/download PDF
44. Advocacy for Health Care Policy in Case Management: An Ethical Mandate.
- Author
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Messutta D
- Subjects
- Humans, United States, Case Management ethics, Case Management legislation & jurisprudence, Health Policy legislation & jurisprudence, Patient Advocacy ethics, Patient Advocacy legislation & jurisprudence
- Published
- 2018
- Full Text
- View/download PDF
45. School Nurse Advocacy: The Dilemma of Ethical Interpretation Versus Legal Protection.
- Author
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Zirkel PA
- Subjects
- Adolescent, Ethics, Nursing, Female, Humans, Louisiana, Patient Advocacy ethics, Diabetes Mellitus, Type 2 nursing, Nurse's Role, Patient Advocacy legislation & jurisprudence, Safety, School Nursing legislation & jurisprudence, Suicide Prevention
- Abstract
This article summarizes the facts and rulings of a recent, representative federal court decision concerning the legal claims of a school nurse who had engaged in advocacy for student safety, with particular attention to a student with insulin-dependent diabetes who committed suicide. The discussion of the court's rulings for the school nurse's various legal claims identifies the difference between ethical interpretation in terms of prevailing perceptions among school nurses and legal protection in terms of the current state of the case law specific to such advocacy.
- Published
- 2018
- Full Text
- View/download PDF
46. A Brief Overview of Advances in LGBT Mental Health Advocacy in Lebanon.
- Author
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Fattal O, Mahmoud H, and Bazzi L
- Subjects
- Humans, Lebanon, Human Rights legislation & jurisprudence, Mental Health legislation & jurisprudence, Mental Health Services legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Sexual and Gender Minorities legislation & jurisprudence
- Published
- 2018
- Full Text
- View/download PDF
47. [Preventing violence during hospitalisations in psychiatry].
- Author
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Alezrah C, Lafont M, Bouet R, Depaigne-Loth A, Paindavoine C, Laurence M, Rodde-Dunet MH, and Senon JL
- Subjects
- Community Networks ethics, Community Networks legislation & jurisprudence, Consensus, Ethics, Medical, France, Guideline Adherence, Humans, Mental Disorders psychology, Patient Advocacy legislation & jurisprudence, Patient Isolation legislation & jurisprudence, Patient Isolation psychology, Psychiatric Department, Hospital ethics, Psychiatric Nursing legislation & jurisprudence, Restraint, Physical legislation & jurisprudence, Restraint, Physical psychology, Risk Assessment legislation & jurisprudence, Schizophrenia diagnosis, Schizophrenia nursing, Schizophrenic Psychology, Violence ethics, Commitment of Mentally Ill legislation & jurisprudence, Mental Disorders nursing, Psychiatric Department, Hospital legislation & jurisprudence, Violence prevention & control
- Abstract
Over recent years, the psychiatric sector has endeavoured to develop community-based care. Paradoxically, the number of compulsory hospitalisations is increasing. At the same time, the legal framework is evolving and measures relating to the deprivation of liberty in the context of psychiatric care have given rise to extensive guidelines. The work of the French National Health Authority represents, in this context, a certain continuity, with regard to the legal, ethical and social discussions around restriction of liberty practices within psychiatric units. The main focus is on the prevention and management of violent outbursts., (Copyright © 2018 Elsevier Masson SAS. All rights reserved.)
- Published
- 2018
- Full Text
- View/download PDF
48. [The RARE 2017 meeting from a patient organisation perspective].
- Author
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Triclin-Conseil N
- Subjects
- Adult, Child, Female, France epidemiology, Humans, Legislation, Medical organization & administration, Legislation, Medical trends, Male, Perception, Politics, Psychosocial Support Systems, Congresses as Topic organization & administration, Patient Advocacy legislation & jurisprudence, Patient Advocacy psychology, Patients psychology, Rare Diseases epidemiology, Rare Diseases therapy
- Published
- 2018
- Full Text
- View/download PDF
49. Domestic Violence Offender Treatment and Multidisciplinary Treatment Teams: The Role of "Treatment" Victim Advocates.
- Author
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Richards TN and Gover AR
- Subjects
- Colorado, Humans, Crime Victims, Domestic Violence legislation & jurisprudence, Patient Advocacy legislation & jurisprudence, Professional Role
- Abstract
In Colorado, "treatment victim advocates" (TVAs) serve alongside providers and probation/parole officers on "multidisciplinary treatment teams" (MTTs) to oversee domestic violence offender's treatment. Although this model provides an opportunity for victim safety concerns to be heard, the utility of using victim advocates as advisors regarding interventions for domestic violence offenders has yet to be studied. Using survey data and narrative responses from TVAs ( N = 37), the current study examines the challenges and opportunities TVAs face while serving on MTTs. Results suggest that, overall, TVAs are successful in communicating with other members of the MTT, are confident that their perspectives are valued in the offender decision-making process, and are able to provide a wide variety of services and referrals to the victims with whom they are engaged. Implications and recommendations for the Colorado model as well as correctional professionals managing domestic violence offenders internationally are presented and discussed.
- Published
- 2018
- Full Text
- View/download PDF
50. Addressing Social Determinants Of Health Through Medical-Legal Partnerships.
- Author
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Regenstein M, Trott J, Williamson A, and Theiss J
- Subjects
- Education, Housing, Humans, Lawyers, Delivery of Health Care legislation & jurisprudence, Interinstitutional Relations, Models, Organizational, Patient Advocacy legislation & jurisprudence, Social Determinants of Health
- Abstract
The US health care system needs effective tools to address complex social and environmental issues that perpetuate health inequities, such as food insecurity, education and employment barriers, and substandard housing conditions. The medical-legal partnership is a collaborative intervention that embeds civil legal aid professionals in health care settings to address seemingly intractable social problems that contribute to poor health outcomes and health disparities. More than three hundred health care organizations are home to medical-legal partnerships. This article draws upon national survey data and field research to identify three models of the medical-legal partnership that health care organizations have adopted and the core elements of infrastructure that they share. Financing and commitment from health care organizations are key considerations for sustaining and scaling up the medical-legal partnership as a health equity intervention.
- Published
- 2018
- Full Text
- View/download PDF
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