12 results on '"Passarini, Juliana Nalin"'
Search Results
2. Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries.
- Author
-
Haugen, Dagny Faksvåg, Hufthammer, Karl Ove, Gerlach, Christina, Sigurdardottir, Katrin, Hansen, Marit Irene Tuen, Ting, Grace, Tripodoro, Vilma Adriana, Goldraij, Gabriel, Yanneo, Eduardo Garcia, Leppert, Wojciech, Wolszczak, Katarzyna, Zambon, Lair, Passarini, Juliana Nalin, Saad, Ivete Alonso Bredda, Weber, Martin, Ellershaw, John, Mayland, Catriona Rachel, Faksvåg Haugen, Dagny, Sigurdardottir, Katrin Ruth, and Tuen Hansen, Marit Irene
- Subjects
MEDICAL quality control ,HOSPITALS ,SOCIAL support ,EMPATHY ,CONFIDENCE intervals ,TERMINALLY ill ,INTERVIEWING ,MEDICAL care ,MEDICAL personnel ,FAMILY attitudes ,PATIENTS' families ,HEALTH ,INFORMATION resources ,POSTAL service ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,COMMUNICATION ,INFORMATION needs ,DIGNITY ,RESPECT ,ODDS ratio ,CANCER patient medical care ,BEREAVEMENT - Abstract
Background: Recognized disparities in quality of end‐of‐life care exist. Our aim was to assess the quality of care for patients dying from cancer, as perceived by bereaved relatives, within hospitals in seven European and South American countries. Materials and Methods: A postbereavement survey was conducted by post, interview, or via tablet in Argentina, Brazil, Uruguay, U.K., Germany, Norway, and Poland. Next of kin to cancer patients were asked to complete the international version of the Care Of the Dying Evaluation (i‐CODE) questionnaire 6–8 weeks postbereavement. Primary outcomes were (a) how frequently the deceased patient was treated with dignity and respect, and (b) how well the family member was supported in the patient's last days of life. Results: Of 1,683 potential participants, 914 i‐CODE questionnaires were completed (response rate, 54%). Approximately 94% reported the doctors treated their family member with dignity and respect "always" or "most of the time"; similar responses were given about nursing staff (94%). Additionally, 89% of participants reported they were adequately supported; this was more likely if the patient died on a specialist palliative care unit (odds ratio, 6.3; 95% confidence interval, 2.3–17.8). Although 87% of participants were told their relative was likely to die, only 63% were informed about what to expect during the dying phase. Conclusion: This is the first study assessing quality of care for dying cancer patients from the bereaved relatives' perspective across several countries on two continents. Our findings suggest many elements of good care were practiced but improvement in communication with relatives of imminently dying patients is needed. (ClinicalTrials.gov Identifier: NCT03566732). Implications for Practice: Previous studies have shown that bereaved relatives' views represent a valid way to assess care for dying patients in the last days of their life. The Care Of the Dying Evaluation questionnaire is a suitable tool for quality improvement work to help determine areas where care is perceived well and areas where care is perceived as lacking. Health care professionals need to sustain high quality communication into the last phase of the cancer trajectory. In particular, discussions about what to expect when someone is dying and the provision of hydration in the last days of life represent key areas for improvement. Disparities exist in the quality of end‐of‐life care. This article assesses the quality of care for dying cancer patients, as perceived by bereaved relatives, within hospitals in seven European and South American countries. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
3. Assessing quality of care for the dying from the bereaved relatives’ perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure
- Author
-
Mayland, Catriona Rachel, primary, Gerlach, Christina, additional, Sigurdardottir, Katrin, additional, Hansen, Marit Irene Tuen, additional, Leppert, Wojciech, additional, Stachowiak, Andrzej, additional, Krajewska, Maria, additional, Garcia-Yanneo, Eduardo, additional, Tripodoro, Vilma Adriana, additional, Goldraij, Gabriel, additional, Weber, Martin, additional, Zambon, Lair, additional, Passarini, Juliana Nalin, additional, Saad, Ivete Bredda, additional, Ellershaw, John, additional, and Haugen, Dagny Faksvåg, additional
- Published
- 2019
- Full Text
- View/download PDF
4. International Care of the Dying Evaluation
- Author
-
Mayland, Catriona Rachel, primary, Gerlach, Christina, additional, Sigurdardottir, Katrin, additional, Hansen, Marit Irene Tuen, additional, Leppert, Wojciech, additional, Stachowiak, Andrzej, additional, Krajewska, Maria, additional, Garcia-Yanneo, Eduardo, additional, Tripodoro, Vilma Adriana, additional, Goldraij, Gabriel, additional, Weber, Martin, additional, Zambon, Lair, additional, Passarini, Juliana Nalin, additional, Saad, Ivete Bredda, additional, Ellershaw, John, additional, and Haugen, Dagny Faksvåg, additional
- Published
- 2019
- Full Text
- View/download PDF
5. Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway.
- Author
-
Hansen, Marit Irene Tuen, Haugen, Dagny Faksvåg, Sigurdardottir, Katrin Ruth, Kvikstad, Anne, Mayland, Catriona R., Schaufel, Margrethe Aase, on behalf of the ERANet-LAC CODE project group, Hufthammer, Karl Ove, Leppert, Wojciech, Wolszczak, Katarzyna, Yanneo, Eduardo Garcia, Tripodoro, Vilma, Goldraij, Gabriel, Weber, Martin, Gerlach, Christina, Zambon, Lair, Passarini, Juliana Nalin, Saad, Ivete Bredda, Ellershaw, John, and Ting, Grace
- Subjects
PSYCHOLOGICAL adaptation ,BEREAVEMENT ,CANCER patients ,PALLIATIVE treatment ,PATIENT safety ,QUALITY assurance ,QUESTIONNAIRES ,PSYCHOLOGY of Spouses ,SURVEYS ,UNCERTAINTY ,QUALITATIVE research ,EXTENDED families ,JOB performance ,PSYCHOSOCIAL factors ,SOCIAL support - Abstract
Background: The ERANet-LAC CODE (Care Of the Dying Evaluation) international survey assessed quality of care for dying cancer patients in seven countries, by use of the i-CODE questionnaire completed by bereaved relatives. The aim of this sub study was to explore which factors improve or reduce quality of end-of-life (EOL) care from Norwegian relatives' point of view, as expressed in free text comments. Methods: 194 relatives of cancer patients dying in seven Norwegian hospitals completed the i-CODE questionnaire 6–8 weeks after bereavement; recruitment period 14 months; response rate 58%. Responders were similar to non-responders in terms of demographic details.104 participants (58% spouse/partner) added free text comments, which were analyzed by systematic text condensation. Results: Of the 104 comments, 45% contained negative descriptions, 27% positive and 23% mixed. 78% described previous experiences, whereas 22% alluded to the last 2 days of life. 64% of the comments represented medical/surgical/oncological wards and 36% palliative care units. Four main categories were developed from the free text comments: 1) Participants described how attentive care towards the practical needs of patients and relatives promoted dignity at the end of life, which could easily be lost when this awareness was missing. 2) They experienced that lack of staff, care continuity, professional competence or healthcare service coordination caused uncertainty and poor symptom alleviation. 3) Inadequate information to patient and family members generated unpredictable and distressing final illness trajectories. 4) Availability and professional support from healthcare providers created safety and enhanced coping in a difficult situation. Conclusions: Our findings suggest that hospitals caring for cancer patients at the end of life and their relatives, should systematically identify and attend to practical needs, as well as address important organizational issues. Education of staff members ought to emphasize how professional conduct and communication fundamentally affect patient care and relatives' coping. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
6. What do bereaved relatives of cancer patients dying in hospital want to tell us? Analysis of free-text comments from the International Care of the Dying Evaluation (i-CODE) survey: a mixed methods approach.
- Author
-
Gerlach, Christina, Baus, Miriam, Gianicolo, Emilio, Bayer, Oliver, Haugen, Dagny Faksvåg, Weber, Martin, Mayland, Catriona R., ERANet-LAC CODE Core scientific group, Sigurdardottir, Katrin, Hansen, Marit Irene Tuen, Hufthammer, Karl Ove, Leppert, Wojciech, Wolszczak, Katarzyna, Yanneo, Eduardo Garcia, Tripodoro, Vilma, Goldraij, Gabriel, Zambon, Lair, Passarini, Juliana Nalin, Saad, Ivete Bredda, and Ellershaw, John
- Abstract
Purpose: We conducted an international survey of bereaved relatives of cancer patients dying in hospitals in seven countries, with the aim to assess and improve the quality of care. The survey used the i-CODE (International Care of the Dying Evaluation) questionnaire. Here, we report findings from the free-text comments submitted with the questionnaires. We explored for topic areas which would potentially be important for improving the quality of care. Further, we examined who reported free-texts and in what way, to reduce bias without ignoring the function the free-texts may have for those contributing. Methods: We used a combined qualitative-quantitative approach: logistic regression analysis to study the effect of respondents’ socio-demographic characteristics on the probability of free-texts contributions and thematic analysis to understand the free-text meaning. The primary survey outcomes, (1) how frequently the dying person was treated with dignity and respect and (2) support for the relative, were related to free-text content. Results: In total, 914 questionnaires were submitted; 457/914 (50%) contained free-text comments. We found no socio-demographic differences between the respondents providing free-texts and those who did not. We discovered different types of free-texts (“feedback,” “narrative,” “self-revelation”) containing themes of which “continuity of care,” “the one person who can make a difference,” and “the importance of being a companion to the dying” represent care dimensions supplementing the questionnaire items. A free-text type of grateful feedback was associated with well perceived support for the relative. Conclusion: Bereaved relatives used the free-texts to report details related to i-CODE items and to dimensions otherwise not represented. They highlighted the importance of the perceived support from human interaction between staff and the dying patient and themselves; and that more than professional competence alone, personal, meaningful interactions have profound importance. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
7. Utilização da ventilação não invasiva em edema agudo de pulmão e exacerbação da doença pulmonar obstrutiva crônica na emergência: preditores de insucesso
- Author
-
Passarini, Juliana Nalin de Souza, primary, Zambon, Lair, additional, Morcillo, André Moreno, additional, Kosour, Carolina, additional, and Saad, Ivete Alonso Bredda, additional
- Published
- 2012
- Full Text
- View/download PDF
8. Use of non-invasive ventilation in acute pulmonary edema and chronic obstructive pulmonary disease exacerbation in emergency medicine: predictors of failure.
- Author
-
de Souza Passarini, Juliana Nalin, Zambon, Lair, Moreno Morcillo, André, Kosour, Carolina, and Bredda Saad, Ivete Alonso
- Subjects
- *
ADULT respiratory distress syndrome , *EDEMA , *METABOLIC disorder treatment , *OBSTRUCTIVE lung disease treatment , *DISEASE exacerbation , *EMERGENCY medicine - Abstract
Objective: This study analyzed acute respiratory failure caused by acute pulmonary edema, as well as chronic obstructive pulmonary disease exacerbation, that was treated with non-invasive mechanical ventilation to identify the factors that are associated with the success or failure non-invasive mechanical ventilation in urgent and emergency service. Methods: This study was a prospective, descriptive and analytical study. We included patients of both genders aged ≥18 years who used non-invasive mechanical ventilation due to acute respiratory failure that was secondary to acute pulmonary edema or chronic obstructive pulmonary disease exacerbation. Patients with acute respiratory failure that was secondary to pathologies other than acute pulmonary edema and chronic obstructive pulmonary disease or who presented with contraindications for the technique were excluded. Expiratory pressures between 5 and 8 cmH2O and inspiratory pressures between 10 and 12 cmH2O were used. Supplemental oxygen maintained peripheral oxygen saturation at >90%. The primary outcome was endotracheal intubation. Results: A total of 152 patients were included. The median non-invasive mechanical ventilation time was 6 hours (range 1 - 32 hours) for chronic obstructive pulmonary disease patients (n=60) and 5 hours (range 2 - 32 hours) for acute pulmonary edema patients (n=92). Most (75.7%) patients progressed successfully. However, reduced APACHE II scores and lower peripheral oxygen saturation were observed. These results were statistically significant in patients who progressed to intubation (p<0.001). BiPAP (Bi-level Positive Airway Pressure portable ventilator), as continuous positive airway pressure use increased the probability of endotracheal intubation 2.3 times (p=0.032). Patients with acute pulmonary edema and elevated GCS scores also increased the probability of success. Conclusion: Respiratory frequency >25 rpm, higher APACHE II scores, BiPAP use and chronic obstructive pulmonary disease diagnosis were associated with endotracheal intubation. Higher GCS and SpO2 values were associated with NIV success. Noninvasive mechanical ventilation can be used in emergency services in acute respiratory failure cases caused by acute pulmonary edema and chronic obstructive pulmonary disease exacerbation, but patients with variables related to a higher percentage of endotracheal intubation should be specially monitored. [ABSTRACT FROM AUTHOR]
- Published
- 2012
9. Efeito dos bundles de prevenção de pneumonia associada à ventilação mecânica executados pela equipe de fisioterapia em hospital público: resultados preliminares.
- Author
-
de Souza Chaim, Taciana Alcara, Suwa Penha, Juliana Bruno, de Souza Passarini, Juliana Nalin, Tavares de Souza, Sara, de Souza Colussi, Arthur Jose, Felippe Ruffing, Leonardo, Albizu Piaskowy, Patricia, and Leão Perin, Paulo Osni
- Abstract
Copyright of Revista Brasileira de Terapia Intensiva is the property of Associacao de Medicina Intensiva Brasileira and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2018
10. 818299_supp_mat_ – Supplemental material for Assessing quality of care for the dying from the bereaved relatives’ perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure
- Author
-
Mayland, Catriona Rachel, Gerlach, Christina, Sigurdardottir, Katrin, Hansen, Marit Irene Tuen, Leppert, Wojciech, Stachowiak, Andrzej, Krajewska, Maria, Garcia-Yanneo, Eduardo, Tripodoro, Vilma Adriana, Goldraij, Gabriel, Weber, Martin, Lair Zambon, Passarini, Juliana Nalin, Ivete Bredda Saad, Ellershaw, John, and Haugen, Dagny Faksvåg
- Subjects
FOS: Clinical medicine ,111702 Aged Health Care ,FOS: Health sciences ,110308 Geriatrics and Gerontology ,3. Good health - Abstract
Supplemental material, 818299_supp_mat_ for Assessing quality of care for the dying from the bereaved relatives’ perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure by Catriona Rachel Mayland, Christina Gerlach, Katrin Sigurdardottir, Marit Irene Tuen Hansen, Wojciech Leppert, Andrzej Stachowiak, Maria Krajewska, Eduardo Garcia-Yanneo, Vilma Adriana Tripodoro, Gabriel Goldraij, Martin Weber, Lair Zambon, Juliana Nalin Passarini, Ivete Bredda Saad, John Ellershaw and Dagny Faksvåg Haugen in Palliative Medicine
11. 818299_supp_mat_ – Supplemental material for Assessing quality of care for the dying from the bereaved relatives’ perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure
- Author
-
Mayland, Catriona Rachel, Gerlach, Christina, Sigurdardottir, Katrin, Hansen, Marit Irene Tuen, Leppert, Wojciech, Stachowiak, Andrzej, Krajewska, Maria, Garcia-Yanneo, Eduardo, Tripodoro, Vilma Adriana, Goldraij, Gabriel, Weber, Martin, Lair Zambon, Passarini, Juliana Nalin, Ivete Bredda Saad, Ellershaw, John, and Haugen, Dagny Faksvåg
- Subjects
FOS: Clinical medicine ,111702 Aged Health Care ,FOS: Health sciences ,110308 Geriatrics and Gerontology ,3. Good health - Abstract
Supplemental material, 818299_supp_mat_ for Assessing quality of care for the dying from the bereaved relatives’ perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure by Catriona Rachel Mayland, Christina Gerlach, Katrin Sigurdardottir, Marit Irene Tuen Hansen, Wojciech Leppert, Andrzej Stachowiak, Maria Krajewska, Eduardo Garcia-Yanneo, Vilma Adriana Tripodoro, Gabriel Goldraij, Martin Weber, Lair Zambon, Juliana Nalin Passarini, Ivete Bredda Saad, John Ellershaw and Dagny Faksvåg Haugen in Palliative Medicine
12. Use of non-invasive ventilation in acute pulmonary edema and chronic obstructive pulmonary disease exacerbation in emergency medicine: predictors of failure.
- Author
-
Passarini JN, Zambon L, Morcillo AM, Kosour C, and Saad IA
- Abstract
Objective: This study analyzed acute respiratory failure caused by acute pulmonary edema, as well as chronic obstructive pulmonary disease exacerbation, that was treated with non-invasive mechanical ventilation to identify the factors that are associated with the success or failure non-invasive mechanical ventilation in urgent and emergency service., Methods: This study was a prospective, descriptive and analytical study. We included patients of both genders aged >18 years who used non-invasive mechanical ventilation due to acute respiratory failure that was secondary to acute pulmonary edema or chronic obstructive pulmonary disease exacerbation. Patients with acute respiratory failure that was secondary to pathologies other than acute pulmonary edema and chronic obstructive pulmonary disease or who presented with contraindications for the technique were excluded. Expiratory pressures between 5 and 8 cmH2O and inspiratory pressures between 10 and 12 cmH2O were used. Supplemental oxygen maintained peripheral oxygen saturation at >90%. The primary outcome was endotracheal intubation., Results: A total of 152 patients were included. The median non-invasive mechanical ventilation time was 6 hours (range 1 - 32 hours) for chronic obstructive pulmonary disease patients (n=60) and 5 hours (range 2 - 32 hours) for acute pulmonary edema patients (n=92). Most (75.7%) patients progressed successfully. However, reduced APACHE II scores and lower peripheral oxygen saturation were observed. These results were statistically significant in patients who progressed to intubation (p<0.001). BiPAP (Bi-level Positive Airway Pressure portable ventilator), as continuous positive airway pressure use increased the probability of endotracheal intubation 2.3 times (p=0.032). Patients with acute pulmonary edema and elevated GCS scores also increased the probability of success., Conclusion: Respiratory frequency >25 rpm, higher APACHE II scores, BiPAP use and chronic obstructive pulmonary disease diagnosis were associated with endotracheal intubation. Higher GCS and SpO2 values were associated with NIV success. Non-invasive mechanical ventilation can be used in emergency services in acute respiratory failure cases caused by acute pulmonary edema and chronic obstructive pulmonary disease exacerbation, but patients with variables related to a higher percentage of endotracheal intubation should be specially monitored.
- Published
- 2012
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.