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Dementia caregiver burden associated with patient agitation is one of the most common reasons for the institutionalization of a person with dementia. We developed an integrative sensing, analytics, modeling, and intervention system that detects early signs of agitation and notifies the caregiver to intervene before escalation.

Supplemental Material, HFRemoteEthnographic for BESI: Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment—Phases 1 and 2 by Azziza Bankole, Martha S. Anderson, Nutta Homdee, Ridwan Alam, Ashley Lofton, Nykesha Fyffe, Hilda Goins, Temple Newbold, Tonya Smith-Jackson and John Lach in American Journal of Alzheimer"s Disease & Other Dementias

Background and Objectives: Caregiver burden associated with dementia-related agitation is one of the commonest reasons a community-dwelling person with dementia (PWD) transitions to a care facility. Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment (BESI) is a system of body-worn and in-home sensors developed to provide continuous, noninvasive agitation assessment and environmental context monitoring to detect early signs of agitation and its environmental triggers. Research Design and Methods: This mixed methods, remote ethnographic study is explored in a 3-phase, multiyear plan. In Phase 1, we developed and refined the BESI system and completed usability studies. Validation of the system and the development of dyad-specific models of the relationship between agitation and the environment occurred in Phase 2. Results: Phases 1 and 2 results facilitated targeted changes in BESI, thus improving its overall usability for the final phase of the study, when real-time notifications and interventions will be implemented. Conclusion: Our results show a valid relationship between the presence of dementia related agitation and environmental factors and that persons with dementia and their caregivers prefer a home-based monitoring system like BESI.