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626 results on '"Newson, Ainsley"'

7. Long-term cost-effectiveness of a melanoma prevention program using genomic risk information compared with standard prevention advice in Australia

Author

Newson, Ainsley J., Morton, Rachael L., Kimlin, Michael, Keogh, Louise, Law, Matthew, Kirk, Judy, Dobbinson, Suzanne J., Kanetsky, Peter, Mann, Graham, Dawkins, Hugh, Savard, Jacqueline, Dunlop, Kate, Trevena, Lyndal, Jenkins, Mark, Allen, Martin, Butow, Phyllis, Wordsworth, Sarah, Lo, Serigne, Low, Cynthia, Smit, Amelia K., Espinoza, David, Cust, Anne E., Law, Chi Kin, Fernandez-Penas, Pablo, Nieweg, Omgo E., and Menzies, Alexander M.

Published
2023
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16. From ownership to custodianship of tumor biopsy tissue in genomic testing: a mixed methods study of patient views.

Author

Best, Megan C, Butow, Phyllis, Savard, Jacqueline, Newson, Ainsley J, Campbell, Rachel, Vatter, Sabina, Napier, Christine E, Bartley, Nicci, Tucker, Katherine, Ballinger, Mandy L, Thomas, David M, and Project, the PiGeOn

Subjects
BIOPSY, CROSS-sectional method, TISSUES, RESEARCH funding, RESPONSIBILITY, QUESTIONNAIRES, INTERVIEWING, HEALTH policy, PRESERVATION of organs, tissues, etc., COST benefit analysis, DESCRIPTIVE statistics, THEMATIC analysis, RESEARCH methodology, CANCER patient psychology, PUBLIC administration, GENETIC testing, PATIENTS' attitudes, MOLECULAR diagnosis, CULTURAL pluralism, RULES
Abstract

Tumor mutation profiling (MP) is often conducted on tissue from biopsies conducted for clinical purposes (diagnostic tissue). We aimed to explore the views of patients with cancer on who should own tumor biopsy tissue, pay for its storage, and decide on its future use; and determine their attitudes to and predictors of undergoing additional biopsies if required for research purposes. In this mixed methods, cross-sectional study, patients with advanced solid cancers enrolled in the Molecular Screening and Therapeutics Program (n  = 397) completed a questionnaire prior to undergoing MP (n  = 356/397). A subset (n  = 23) also completed a qualitative interview. Fifty percent of participants believed they and/or relatives should own and control access to diagnostic tissue. Most (65.5%) believed the government should pay for tissue preparation. Qualitative themes included (1) custodianship of diagnostic tissue, (2) changing value of tissue across time and between cultures, (3) equity regarding payment, and (4) cost-benefit considerations in deciding on additional biopsies. Policy and regulation should consider patient perspectives. Extension of publicly funded health care to include tissue retrieval for clinical trials should be considered. [ABSTRACT FROM AUTHOR]

Published
2024
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17. Impact of personal genomic risk information on melanoma prevention behaviors and psychological outcomes: a randomized controlled trial

Author

Smit, Amelia K., Allen, Martin, Beswick, Brooke, Butow, Phyllis, Dawkins, Hugh, Dobbinson, Suzanne J., Dunlop, Kate L., Espinoza, David, Fenton, Georgina, Kanetsky, Peter A., Keogh, Louise, Kimlin, Michael G., Kirk, Judy, Law, Matthew H., Lo, Serigne, Low, Cynthia, Mann, Graham J., Reyes-Marcelino, Gillian, Morton, Rachael L., Newson, Ainsley J., Savard, Jacqueline, Trevena, Lyndal, Wordsworth, Sarah, and Cust, Anne E.

Published
2021
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18. ‘Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: A qualitative study protocol of stakeholder perspectives

Author

Kariyawasam, Didu S., primary, Scarfe, Joanne, additional, Meagher, Christian, additional, Farrar, Michelle A., additional, Bhattacharya, Kaustav, additional, Carter, Stacy M., additional, Newson, Ainsley J., additional, Otlowski, Margaret, additional, Watson, Jo, additional, Millis, Nicole, additional, and Norris, Sarah, additional

Published
2024
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19. ‘Integrating Ethics and Equity with Economics and Effectiveness for newborn screening in the genomic age: a qualitative study protocol of stakeholder perspectives.

Author

Meagher, Christian, primary, Kariyawasam, Didu, additional, Scarfe, Joanne, additional, Farrar, Michelle, additional, Bhattcharya, Kaustav, additional, Carter, Stacy, additional, Newson, Ainsley, additional, Otlowski, Margaret, additional, Watson, Jo, additional, Millis, Nicole, additional, and Norris, Sarah, additional

Published
2024
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20. Dynamic Consent : An Evaluation and Reporting Framework

Author

Prictor, Megan, Lewis, Megan A., Newson, Ainsley J., Haas, Matilda, Baba, Sachiko, Kim, Hannah, Kokado, Minori, Minari, Jusaku, Molnár-Gábor, Fruzsina, Yamamoto, Beverley, Kaye, Jane, and Teare, Harriet J. A.

Published
2020

24. Gene selection for the Australian Reproductive Genetic Carrier Screening Project (“Mackenzie’s Mission”)

Author

Kirk, Edwin P., Ong, Royston, Boggs, Kirsten, Hardy, Tristan, Righetti, Sarah, Kamien, Ben, Roscioli, Tony, Amor, David J., Bakshi, Madhura, Chung, Clara W. T., Colley, Alison, Jamieson, Robyn V., Liebelt, Jan, Ma, Alan, Pachter, Nicholas, Rajagopalan, Sulekha, Ravine, Anja, Wilson, Meredith, Caruana, Jade, Casella, Rachael, Davis, Mark, Edwards, Samantha, Archibald, Alison, McGaughran, Julie, Newson, Ainsley J., Laing, Nigel G., and Delatycki, Martin B.

Published
2021
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30. Acceptability of risk-tailored cancer screening among Australian GPs: a qualitative study.

Author

LA Dunlop, Kate, Smit, Amelia K, Keogh, Louise A, Newson, Ainsley J, Rankin, Nicole M, and Cust, Anne E

Subjects
EARLY detection of cancer, MEDICAL screening, QUALITATIVE research, PROFESSIONAL education, SEMI-structured interviews
Abstract

Background: Cancer screening that is tailored to individual risk has the potential to improve health outcomes and reduce screening-related harms, if implemented well. However, successful implementation depends on acceptability, particularly as this approach will require GPs to change their practice. Aim: To explore Australian GPs' views about the acceptability of risk-tailored screening across cancer types and to identify barriers to and facilitators of implementation. Design and setting: A qualitative study using semi-structured interviews with Australian GPs. Method: Interviews were carried out with GPs and audio-recorded and transcribed. Data were first analysed inductively then deductively using an implementation framework. Results: Participants (n = 20) found risk-tailored screening to be acceptable in principle, recognising potential benefits in offering enhanced screening to those at highest risk. However, they had significant concerns that changes in screening advice could potentially cause confusion. They also reported that a reduced screening frequency or exclusion from a screening programme for those deemed low risk may not initially be acceptable, especially for common cancers with minimally invasive screening. Other reservations about implementing risk-tailored screening in general practice included a lack of high-quality evidence of benefit, fear of missing the signs or symptoms of a patient's cancer, and inadequate time with patients. While no single preferred approach to professional education was identified, education around communicating screening results and risk stratification was considered important. Conclusion: GPs may not currently be convinced of the net benefits of risk-tailored screening. Development of accessible evidence-based guidelines, professional education, risk calculators, and targeted public messages will increase its feasibility in general practice. [ABSTRACT FROM AUTHOR]

Published
2024
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47. What moral weight should patient‐led demand have in clinical decisions about assisted reproductive technologies?

Author

Stanbury, Craig, Lipworth, Wendy, Gallagher, Siun, Norman, Robert J., and Newson, Ainsley J.

Subjects
PROFESSIONAL practice, ETHICS, PATIENTS' attitudes, HUMAN reproductive technology, DECISION making in clinical medicine, FERTILIZATION in vitro, MEDICAL needs assessment, PSYCHOLOGY of physicians
Abstract

Evidence suggests that one reason doctors provide certain interventions in assisted reproductive technologies (ART) is because of patient demand. This is particularly the case when it comes to unproven interventions such as 'add‐ons' to in vitro fertilisation (IVF) cycles, or providing IVF cycles that are highly unlikely to succeed. Doctors tend to accede to demands for such interventions because patients are willing to do and pay 'whatever it takes' to have a baby. However, there is uncertainty as to what moral weight should be placed on patient‐led demands in ART, including whether it is acceptable for such demands to be invoked as a justification for intervention. We address this issue in this paper. We start by elucidating what we mean by 'patient‐led demand' and synthesise some of the evidence for this phenomenon. We then argue that a doctor's professional role morality (PRM) yields special responsibilities, particularly in commercialised healthcare settings such as ART, because of the nature of professions as social institutions that are distinct from markets. We argue on this basis that, while there may be reasons (consistent with PRM) for doctors to accede to patient demand, this is not always the case. There is often a gap in justification between acceding to patient‐led demands and providing contested interventions, particularly in commercial settings. As a result, acceding to demand in such settings needs a strong justification to be consistent with PRM. [ABSTRACT FROM AUTHOR]

Published
2024
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