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1. Infrastructure of Fertility Preservation Services for Pediatric Cancer Patients: A Report From the Children's Oncology Group.

Author

Frederick, Natasha N, Klosky, James L, Meacham, Lillian R, Quinn, Gwendolyn P, Kelvin, Joanne Frankel, Cherven, Brooke, Freyer, David R, Dvorak, Christopher C, Brackett, Julienne, Ahmed-Winston, Sameeya, Bryson, Elyse, Chow, Eric J, and Levine, Jennifer

Subjects
Rare Diseases, Pediatric, Contraception/Reproduction, Clinical Research, Prevention, Cancer, Good Health and Well Being, Adolescent, Cross-Sectional Studies, Cryopreservation, Fertility Preservation, Humans, Neoplasms, Oocytes
Abstract

PurposeFertility preservation (FP) services are part of comprehensive care for those newly diagnosed with cancer. The capacity to offer these services to children and adolescents with cancer is unknown.MethodsA cross-sectional survey was sent to 220 Children's Oncology Group member institutions regarding institutional characteristics, structure and organization of FP services, and barriers to FP. Standard descriptive statistics were computed for all variables. The association between site-specific factors and selected outcomes was examined using multivariable logistic regression.ResultsOne hundred forty-four programs (65.5%) returned surveys. Fifty-three (36.8%) reported a designated FP individual or team. Sperm banking was offered at 135 (97.8%) institutions, and testicular tissue cryopreservation at 37 (27.0%). Oocyte and embryo cryopreservation were offered at 91 (67.9%) and 62 (46.6%) institutions, respectively; ovarian tissue cryopreservation was offered at 64 (47.8%) institutions. The presence of dedicated FP personnel was independently associated with the ability to offer oocyte or embryo cryopreservation (odds ratio [OR], 4.7; 95% CI, 1.7 to 13.5), ovarian tissue cryopreservation (OR, 2.7; 95% CI, 1.2 to 6.0), and testicular tissue cryopreservation (OR, 3.3; 95% CI, 1.4 to 97.8). Only 26 (18.1%) participating institutions offered all current nonexperimental FP interventions. Barriers included cost (70.9%), inadequate knowledge or training (60.7%), difficulty characterizing fertility risk (50.4%), inadequate staffing (45.5%), and logistics with reproductive specialties (38%-39%).ConclusionThis study provides the most comprehensive view of the current landscape of FP infrastructure for children and adolescents with cancer and demonstrates that existing infrastructure is inadequate to offer comprehensive services to patients. We discuss modifiable factors to improve patient access to FP.

Published
2022

2. A View from the past into our collective future: the oncofertility consortium vision statement.

Author

Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, and Wallace, W Hamish

Subjects
Fertility preservation, Oncofertility, cancer, Genetics, Paediatrics and Reproductive Medicine, Obstetrics & Reproductive Medicine
Abstract

PurposeToday, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium.MethodsThe Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process.ResultsThis interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity.ConclusionThe goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Published
2021

4. Reproductive Health Assessment and Reports of Fertility Counseling in Pediatric and Adolescent Patients with Sickle Cell Disease After Hematopoietic Cell Transplantation

Author

George, Sobenna A., Veludhandi, Anirudh, Xiang, Yijin, Liu, Katie, Stenger, Elizabeth, Arnold, Staci D., Mehta, Akanksha, Schirmer, David A., Spencer, Jessica B., Guilcher, Gregory M.T., Bhatia, Monica, Abraham, Allistair, Gomez-Lobo, Veronica, Krishnamurti, Lakshmanan, and Meacham, Lillian R.

Published
2024
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5. Risk of increased mortality in underweight survivors: A brief report from the Childhood Cancer Survivor Study

Author

Tonorezos, Emily S., primary, Chou, Joanne F., additional, Moskowitz, Chaya S., additional, Leisenring, Wendy M., additional, Friedman, Danielle Novetsky, additional, Sklar, Charles A., additional, Dilley, Kimberly J., additional, Hudson, Melissa M., additional, Mertens, Ann, additional, Armstrong, Gregory T., additional, Robison, Leslie L., additional, Meacham, Lillian R., additional, and Oeffinger, Kevin C., additional

Published
2024
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6. The National Physicians Cooperative: transforming fertility management in the cancer setting and beyond

Author

Smith, Brigid M, Duncan, Francesca E, Ataman, Lauren, Smith, Kristin, Quinn, Gwendolyn P, Chang, R Jeffrey, Finlayson, Courtney, Orwig, Kyle, Valli-Pulaski, Hanna, Moravek, Molly B, Zelinski, Mary B, Su, H Irene, Vitek, Wendy, Smith, James F, Jeruss, Jacqueline S, Gracia, Clarisa, Coutifaris, Christos, Shah, Divya, Nahata, Leena, Gomez-Lobo, Veronica, Appiah, Leslie Coker, Brannigan, Robert E, Gillis, Valerie, Gradishar, William, Javed, Asma, Rhoton-Vlasak, Alice S, Kondapalli, Laxmi A, Neuber, Evelyn, Ginsberg, Jill P, Muller, Charles H, Hirshfeld-Cytron, Jennifer, Kutteh, William H, Lindheim, Steven R, Cherven, Brooke, Meacham, Lillian R, Rao, Pooja, Torno, Lilibeth, Sender, Leonard S, Vadaparampil, Susan T, Skiles, Jodi L, Schafer-Kalkhoff, Tara, Frias, Oliva J, Byrne, Julia, Westphal, Lynn M, Schust, Danny J, Klosky, James L, McCracken, Kate A, Ting, Alison, Khan, Zaraq, Granberg, Candace, Lockart, Barbara, Scoccia, Bert, Laronda, Monica M, Mersereau, Jennifer E, Marsh, Courtney, Pavone, Mary Ellen, and Woodruff, Teresa K

Subjects
Reproductive Medicine, Biomedical and Clinical Sciences, Contraception/Reproduction, Cancer, Prevention, Reproductive health and childbirth, Good Health and Well Being, Adult, Antineoplastic Agents, Behavioral Medicine, Child, Disease Progression, Endocrinology, Female, Fertility, Fertility Preservation, Gynecology, Humans, Intersectoral Collaboration, Medical Oncology, Neoplasms, Obstetrics, Physicians, Practice Guidelines as Topic, Pregnancy, Quality of Life, United States, Urology, fertility preservation, oncofertility, reproductive health, Oncology and Carcinogenesis, Oncology & Carcinogenesis, Oncology and carcinogenesis
Abstract

Once unimaginable, fertility management is now a nationally established part of cancer care in institutions, from academic centers to community hospitals to private practices. Over the last two decades, advances in medicine and reproductive science have made it possible for men, women and children to be connected with an oncofertility specialist or offered fertility preservation soon after a cancer diagnosis. The Oncofertility Consortium's National Physicians Cooperative is a large-scale effort to engage physicians across disciplines - oncology, urology, obstetrics and gynecology, reproductive endocrinology, and behavioral health - in clinical and research activities to enable significant progress in providing fertility preservation options to children and adults. Here, we review the structure and function of the National Physicians Cooperative and identify next steps.

Published
2018

8. Abstract 10580: Machine Learning-Assisted Echocardiographic Identification of Children at High Risk for Treatment-Related Cardiomyopathy: A Proof-of-Concept Study

Author

Yang, Christina, Chen, Zih-Hua, Gorantla, Lahari, Joshi, Sanika A, Longhi, Nicolas J, Yang, Jamie, Armenian, Saro, Bhat, Aarti, Border, William, Buddhe, Sujatha, Leger, Kasey J, Leisenring, Wendy M, Meacham, Lillian R, Nathan, Paul, Sachdeva, Ritu, Sadak, Karim, Chow, Eric, Boyle, Patrick M, and Edwards, Lindsay A

Published
2022
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9. Communication and ethical considerations for fertility preservation for patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group

Author

Anderson, Richard A, Barnbrock, Anke, Beck, Joern D, Bos, Annelies M E, Calaminus, Gabriele, Constine, Louis S, Demeestere, Isabelle, Denzer, Christian, Grabow, Desiree, di Iorgi, Natascia, Hoefgen, Holly R, Jahnukainen, Kirsi, Kaatsch, Peter, Kebudi, Rejin, Lambalk, Cornelis, Langer, Thorsten, Loonen, Jacqueline, Lorenzo, Armando, Meacham, Lillian R, Meissner, Andreas, Mitchell, Rod T, Nahata, Leena, Ranft, Andreas, Dinkelman-Smit, Marij, Stern, Catharyn, Stutz-Grunder, Eveline, Tournaye, Herman, van Dorp, Wendy, van Pelt, Ans M M, de Vries, Andrica, Yu, Richard, Mulder, Renée L, Font-Gonzalez, Anna, van Dulmen-den Broeder, Eline, Quinn, Gwendolyn P, Ginsberg, Jill P, Loeffen, Erik A H, Hudson, Melissa M, Burns, Karen C, van Santen, Hanneke M, Berger, Claire, Diesch, Tamara, Dirksen, Uta, Giwercman, Aleksander, Gracia, Clarisa, Hunter, Sarah E, Kelvin, Joanne F, Klosky, James L, Laven, Joop S E, Lockart, Barbara A, Neggers, Sebastian J C M M, Peate, Michelle, Phillips, Bob, Reed, Damon R, Tinner, Eva Maria E, Byrne, Julianne, Veening, Margreet, van de Berg, Marleen, Verhaak, Chris M, Anazodo, Antoinette, Rodriguez-Wallberg, Kenny, van den Heuvel-Eibrink, Marry M, Asogwa, Ogechukwu A, Brownsdon, Alexandra, Wallace, W Hamish, Green, Daniel M, Skinner, Roderick, Haupt, Riccardo, Kenney, Lisa B, Levine, Jennifer, van de Wetering, Marianne D, Tissing, Wim J E, Paul, Norbert W, Kremer, Leontien C M, and Inthorn, Julia

Published
2021
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10. Fertility preservation for female patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group

Author

Berger, Claire, Diesch, Tamara, Dirksen, Uta, Ginsberg, Jill, Giwercman, Aleksander, Grabow, Desiree, Gracia, Clarisa, Hunter, Sarah E, Inthorn, Julia, Kaatsch, Peter, Kelvin, Joanne F, Klosky, James L, Laven, Joop S E, Lockart, Barbara A, Neggers, Sebastian JCMM, Paul, Norbert W, Peate, Michelle, Phillips, Bob, Reed, Damon R, Tinner, Eva Maria E, van den Berg, Marleen, Verhaak, Chris, Mulder, Renée L, Font-Gonzalez, Anna, Hudson, Melissa M, van Santen, Hanneke M, Loeffen, Erik A H, Burns, Karen C, Quinn, Gwendolyn P, van Dulmen-den Broeder, Eline, Byrne, Julianne, Haupt, Riccardo, Wallace, W Hamish, van den Heuvel-Eibrink, Marry M, Anazodo, Antoinette, Anderson, Richard A, Barnbrock, Anke, Beck, Joern D, Bos, Annelies M E, Demeestere, Isabelle, Denzer, Christian, Di Iorgi, Natascia, Hoefgen, Holly R, Kebudi, Rejin, Lambalk, Cornelis, Langer, Thorsten, Meacham, Lillian R, Rodriguez-Wallberg, Kenny, Stern, Catharyn, Stutz-Grunder, Eveline, van Dorp, Wendy, Veening, Margreet, Veldkamp, Saskia, van der Meulen, Eline, Constine, Louis S, Kenney, Lisa B, van de Wetering, Marianne D, Kremer, Leontien C M, Levine, Jennifer, and Tissing, Wim J E

Published
2021
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11. Male Sexuality

Author

Katz, Anne, Cherven, Brooke, Ballard, Linda, Ritenour, Chad, Meacham, Lillian R., Woodruff, Teresa K., editor, Shah, Divya K., editor, and Vitek, Wendy S., editor

Published
2019
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15. Ovarian tissue cryopreservation as standard of care: what does this mean for pediatric populations?

Author

Nahata, Leena, Woodruff, Teresa K., Quinn, Gwendolyn P., Meacham, Lillian R., Chen, Diane, Appiah, Leslie C., Finlayson, Courtney, Orwig, Kyle E., Laronda, Monica M., Rowell, Erin E., Anazodo, Antoinette, Frias, Olivia, Rios, Julie Sroga, Whiteside, Stacy, Gomez-Lobo, Veronica, Dwiggins, Maggie, Childress, Krista J., Hoefgen, Holly R., Levine, Jennifer M., Jayasinghe, Yasmin, and Moravek, Molly

Published
2020
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17. Development of a Pediatric Fertility Preservation Program: A Report From the Pediatric Initiative Network of the Oncofertility Consortium

Author

Moravek, Molly B., Appiah, Leslie C., Anazodo, Antoinette, Burns, Karen C., Gomez-Lobo, Veronica, Hoefgen, Holly R., Jaworek Frias, Olivia, Laronda, Monica M., Levine, Jennifer, Meacham, Lillian R., Pavone, Mary Ellen, Quinn, Gwendolyn P., Rowell, Erin E., Strine, Andrew C., Woodruff, Teresa K., and Nahata, Leena

Published
2019
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19. Utility of apical four‐chamber longitudinal strain in the assessment of childhood cancer survivors: A multicenter study.

Author

Mosgrove, Matthew J., Sachdeva, Ritu, Stratton, Kayla L., Armenian, Saro H., Bhat, Aarti, Leger, Kasey J., Yang, Christina, Leisenring, Wendy M., Meacham, Lillian R., Sadak, Karim T., Narasimhan, Shanti L., Nathan, Paul C., Chow, Eric J., and Border, William L.

Subjects
RESEARCH, ECHOCARDIOGRAPHY, CONFIDENCE intervals, LEFT ventricular dysfunction, GLOBAL longitudinal strain, RETROSPECTIVE studies, TUMORS in children, CANCER patients, PEARSON correlation (Statistics), COMPARATIVE studies, DESCRIPTIVE statistics, RESEARCH funding, STATISTICAL correlation, SENSITIVITY & specificity (Statistics), LONGITUDINAL method
Abstract

Background: A previous multicenter study showed that longitudinal changes in standard cardiac functional parameters were associated with the development of cardiomyopathy in childhood cancer survivors (CCS). Evaluation of the relationship between global longitudinal strain (GLS) changes and cardiomyopathy risk was limited, largely due to lack of quality apical 2‐ and 3‐chamber views in addition to 4‐chamber view. We sought to determine whether apical 4‐chamber longitudinal strain (A4LS) alone can serve as a suitable surrogate for GLS in this population. Methods: A4LS and GLS were measured in echocardiograms with acceptable apical 2‐, 3‐, and 4‐chamber views. Correlation was evaluated using Pearson and Spearman coefficients, and agreement was evaluated with Bland–Altman plots. The ability of A4LS to identify normal and abnormal values compared to GLS as the reference was evaluated. Results: Among a total of 632 reviewed echocardiograms, we identified 130 echocardiograms from 56 patients with adequate views (38% female; mean age at cancer diagnosis 8.3 years; mean follow‐up 9.4 years). Correlation coefficients between A4LS and GLS were.89 (Pearson) and.85 (Spearman), with Bland–Altman plot of GLS—A4LS showing a mean difference of −.71 ± 1.8. Compared with GLS as the gold standard, A4LS had a sensitivity of 86% (95% CI 79%–93%) and specificity of 82% (69%–95%) when using normal range cutoffs and 90% (82%–97%) and 70% (58%–81%) when using ±2 standard deviations. Conclusion: A4LS performs well when compared with GLS in this population. Given the more recent adoption of apical 2‐ and 3‐chamber views in most pediatric echocardiography laboratories, A4LS is a reasonable stand‐alone measurement in retrospective analyses of older study cohorts and echocardiogram biorepositories. [ABSTRACT FROM AUTHOR]

Published
2024
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20. Risk factors for overweight and obesity after childhood acute lymphoblastic leukemia in North America and Switzerland: A comparison of two cohort studies

Author

Belle, Fabiën N., primary, Schindera, Christina, additional, Ansari, Marc, additional, Armstrong, Gregory T., additional, Beck‐Popovic, Maja, additional, Howell, Rebecca, additional, Leisenring, Wendy M., additional, Meacham, Lillian R., additional, Rössler, Jochen, additional, Spycher, Ben D., additional, Tonorezos, Emily, additional, von der Weid, Nicolas X., additional, Yasui, Yutaka, additional, Oeffinger, Kevin C., additional, and Kuehni, Claudia E., additional

Published
2023
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24. Incorporating gonadal health counseling into pediatric care of sickle cell patients

Author

Meacham, Lillian R., Pecker, Lydia H., Gee, Beatrice, and Mishkin, Adrienne

Subjects
Counseling, Young Adult, Fertility, Adolescent, Humans, Anemia, Sickle Cell, Hematology, Child, Reproductive and Sexual Health in Sickle Cell Disease
Abstract

Discussions regarding gonadal function and possible disease or treatment-related ovarian or testicular dysfunction, sexual dysfunction, and possible future infertility can be challenging in the sickle cell disease (SCD) pediatric care setting. A construct that stratifies topics into those that are time sensitive and those that require reproductive care expertise vs address gonadal health as a part of normal SCD care may be helpful. Pediatric health care discussions of gonadal function/dysfunction for patients with SCD can include (1) time-sensitive fertility consults preceding the start of gonadotoxic therapy and (2) targeted discussions at key time points during normally scheduled hematology clinic visits. The former conversations are best led by individuals with expertise in the risk for treatment-related infertility and fertility preservation. The latter discussions can be incorporated into targeted regularly scheduled visits with hematologists. These topics can be addressed as a part of planned education in pediatric care for adolescents and incorporated into transition plans as young adults transfer care to adult providers. Although the topics of puberty and gonadal health can be uncomfortable and many complex interdisciplinary and ethical issues arise in this process, these discussions can be aided by the collaterals and teaching handouts presented in this article.

Published
2022

25. Fertility assessment and treatment in adolescent and young adult cancer survivors

Author

Moravek, Molly B., primary, Pavone, Mary Ellen, additional, Burns, Karen, additional, Kashanian, James A., additional, Anderson, Richard A., additional, Klosky, James L., additional, Rotz, Seth J., additional, Stern, Catharyn J., additional, Rodriguez‐Wallberg, Kenny A., additional, Levine, Jennifer M., additional, and Meacham, Lillian R., additional

Published
2023
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26. Clinic reported facilitators and barriers to pediatric cancer survivor care delivery among survivorship clinics: A fishbone analysis

Author

Krauss, Victoria, primary, Mertens, Ann, additional, Marchak, Jordan Gilleland, additional, Haardörfer, Regine, additional, Meacham, Lillian R., additional, Lewis, Rebecca Williamson, additional, Wright, Robert, additional, Adisa, Oyinda, additional, Kommajosula, Apoorva, additional, and Escoffery, Cam, additional

Published
2023
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34. Late Effects Surveillance Recommendations among Survivors of Childhood Hematopoietic Cell Transplantation: A Children's Oncology Group Report

Author

Chow, Eric J., Anderson, Lynnette, Baker, K. Scott, Bhatia, Smita, Guilcher, Gregory M.T., Huang, Jennifer T., Pelletier, Wendy, Perkins, Joanna L., Rivard, Linda S., Schechter, Tal, Shah, Ami J., Wilson, Karla D., Wong, Kenneth, Grewal, Satkiran S., Armenian, Saro H., Meacham, Lillian R., Mulrooney, Daniel A., and Castellino, Sharon M.

Published
2016
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36. Germline Genetic and Treatment-Related Risk Factors for Diabetes Mellitus in Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study and St Jude Lifetime Cohorts

Author

Richard, Melissa A., primary, Mostoufi-Moab, Sogol, additional, Rathore, Nisha, additional, Baedke, Jessica, additional, Brown, Austin L., additional, Chanock, Stephen J., additional, Friedman, Danielle N., additional, Gramatges, M. Monica, additional, Howell, Rebecca M., additional, Kamdar, Kala Y., additional, Leisenring, Wendy M., additional, Meacham, Lillian R., additional, Morton, Lindsay M., additional, Oeffinger, Kevin, additional, Robison, Leslie L., additional, Sapkota, Yadav, additional, Sklar, Charles A., additional, Armstrong, Gregory T., additional, Bhatia, Smita, additional, and Lupo, Philip J., additional

Published
2022
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37. Preliminary Results of Promis Sexual Function and Satisfaction and Perceived Risk for Infertility after Hematopoietic Cell Transplantation for Sickle Cell Disease: A Stellar Study

Author

Meacham, Lillian R, primary, Veludhandi, Anirudh, additional, Xiang, Yijin, additional, Stenger, Elizabeth, additional, Arnold, Staci D., additional, Mehta, Akanksha, additional, Pecker, Lydia H., additional, Hsieh, Michael, additional, Maher, Jacqueline Y, additional, and Krishnamurti, Lakshmanan, additional

Published
2022
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38. Gonadal Hormone Production after Hematopoietic Cell Transplant (HCT) in Patients with Sickle Cell Disease (SCD): A Stellar Study

Author

George, Sobenna A, primary, Veludhandi, Anirudh, additional, Xiang, Yijin, additional, Stenger, Elizabeth, additional, Arnold, Staci D., additional, Mehta, Akanksha, additional, Schirmer, David A, additional, Spencer, Jessica B, additional, Guilcher, Gregory M, additional, Bhatia, Monica, additional, Abraham, Allistair, additional, Gomez-Lobo, Veronica, additional, Krishnamurti, Lakshmanan, additional, and Meacham, Lillian R, additional

Published
2022
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40. Hypothalamic-Pituitary and Other Endocrine Surveillance Among Childhood Cancer Survivors

Author

Endocrinologie onderzoek, Child Health, Cancer, Neurochirurgen, MS Interne Geneeskunde, MS Radiotherapie, Endocrinologie patientenzorg, Brain, van Iersel, Laura, Mulder, Renee L., Denzer, Christian, Cohen, Laurie E., Spoudeas, Helen A., Meacham, Lillian R., Sugden, Elaine, Schouten-van Meeteren, Antoinette Y.N., Hoving, Eelco W., Packer, Roger J., Armstrong, Gregory T., Mostoufi-Moab, Sogol, Stades, Aline M., van Vuurden, Dannis, Janssens, Geert O., Thomas-Teinturier, Cécile, Murray, Robert D., Di Iorgi, Natascia, Neggers, Sebastian J.C.M.M., Thompson, Joel, Toogood, Andrew A., Gleeson, Helena, Follin, Cecilia, Bardi, Edit, Torno, Lilibeth, Patterson, Briana, Morsellino, Vera, Sommer, Grit, Clement, Sarah C., Srivastava, Deokumar, Kiserud, Cecilie E., Fernandez, Alberto, Scheinemann, Katrin, Raman, Sripriya, Yuen, Kevin C.J., Wallace, W. Hamish, Constine, Louis S., Skinner, Roderick, Hudson, Melissa M., Kremer, Leontien C.M., Chemaitilly, Wassim, van Santen, Hanneke M., Endocrinologie onderzoek, Child Health, Cancer, Neurochirurgen, MS Interne Geneeskunde, MS Radiotherapie, Endocrinologie patientenzorg, Brain, van Iersel, Laura, Mulder, Renee L., Denzer, Christian, Cohen, Laurie E., Spoudeas, Helen A., Meacham, Lillian R., Sugden, Elaine, Schouten-van Meeteren, Antoinette Y.N., Hoving, Eelco W., Packer, Roger J., Armstrong, Gregory T., Mostoufi-Moab, Sogol, Stades, Aline M., van Vuurden, Dannis, Janssens, Geert O., Thomas-Teinturier, Cécile, Murray, Robert D., Di Iorgi, Natascia, Neggers, Sebastian J.C.M.M., Thompson, Joel, Toogood, Andrew A., Gleeson, Helena, Follin, Cecilia, Bardi, Edit, Torno, Lilibeth, Patterson, Briana, Morsellino, Vera, Sommer, Grit, Clement, Sarah C., Srivastava, Deokumar, Kiserud, Cecilie E., Fernandez, Alberto, Scheinemann, Katrin, Raman, Sripriya, Yuen, Kevin C.J., Wallace, W. Hamish, Constine, Louis S., Skinner, Roderick, Hudson, Melissa M., Kremer, Leontien C.M., Chemaitilly, Wassim, and van Santen, Hanneke M.

Published
2022

41. Hypothalamic-Pituitary and Other Endocrine Surveillance Among Childhood Cancer Survivors

Author

van Iersel, Laura, primary, Mulder, Renee L, additional, Denzer, Christian, additional, Cohen, Laurie E, additional, Spoudeas, Helen A, additional, Meacham, Lillian R, additional, Sugden, Elaine, additional, Schouten-van Meeteren, Antoinette Y N, additional, Hoving, Eelco W, additional, Packer, Roger J, additional, Armstrong, Gregory T, additional, Mostoufi-Moab, Sogol, additional, Stades, Aline M, additional, van Vuurden, Dannis, additional, Janssens, Geert O, additional, Thomas-Teinturier, Cécile, additional, Murray, Robert D, additional, Di Iorgi, Natascia, additional, Neggers, Sebastian J C M M, additional, Thompson, Joel, additional, Toogood, Andrew A, additional, Gleeson, Helena, additional, Follin, Cecilia, additional, Bardi, Edit, additional, Torno, Lilibeth, additional, Patterson, Briana, additional, Morsellino, Vera, additional, Sommer, Grit, additional, Clement, Sarah C, additional, Srivastava, Deokumar, additional, Kiserud, Cecilie E, additional, Fernandez, Alberto, additional, Scheinemann, Katrin, additional, Raman, Sripriya, additional, Yuen, Kevin C J, additional, Wallace, W Hamish, additional, Constine, Louis S, additional, Skinner, Roderick, additional, Hudson, Melissa M, additional, Kremer, Leontien C M, additional, Chemaitilly, Wassim, additional, and van Santen, Hanneke M, additional

Published
2021
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45. Fertility preservation for female patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group

Author

Mulder, Renée L, Font-Gonzalez, Anna, Hudson, Melissa M, van Santen, Hanneke M, Loeffen, Erik A H, Burns, Karen C, Quinn, Gwendolyn P, van Dulmen-den Broeder, Eline, Byrne, Julianne, Haupt, Riccardo, Wallace, W Hamish, van den Heuvel-Eibrink, Marry M, Anazodo, Antoinette, Anderson, Richard A, Barnbrock, Anke, Beck, Joern D, Bos, Annelies M E, Demeestere, Isabelle, Denzer, Christian, Di Iorgi, Natascia, Hoefgen, Holly R, Kebudi, Rejin, Lambalk, Cornelis, Langer, Thorsten, Meacham, Lillian R, Rodriguez-Wallberg, Kenny, Stern, Catharyn, Stutz-Grunder, Eveline, van Dorp, Wendy, Veening, Margreet, et al, University of Zurich, and Mulder, Renée L

Subjects
10036 Medical Clinic, 610 Medicine & health, 2730 Oncology
Published
2021

47. Hypothalamic-Pituitary and Other Endocrine Surveillance Among Childhood Cancer Survivors.

Author

Iersel, Laura van, Mulder, Renee L, Denzer, Christian, Cohen, Laurie E, Spoudeas, Helen A, Meacham, Lillian R, Sugden, Elaine, Meeteren, Antoinette Y N Schouten-van, Hoving, Eelco W, Packer, Roger J, Armstrong, Gregory T, Mostoufi-Moab, Sogol, Stades, Aline M, Vuurden, Dannis van, Janssens, Geert O, Thomas-Teinturier, Cécile, Murray, Robert D, Iorgi, Natascia Di, Neggers, Sebastian J C M M, and Thompson, Joel

Subjects
CANCER survivors, CHILDHOOD cancer, HYPOTHALAMIC-pituitary-adrenal axis
Abstract

Endocrine disorders in survivors of childhood, adolescent, and young adult (CAYA) cancers are associated with substantial adverse physical and psychosocial effects. To improve appropriate and timely endocrine screening and referral to a specialist, the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG) aims to develop evidence and expert consensus-based guidelines for healthcare providers that harmonize recommendations for surveillance of endocrine disorders in CAYA cancer survivors. Existing IGHG surveillance recommendations for premature ovarian insufficiency, gonadotoxicity in males, fertility preservation, and thyroid cancer are summarized. For hypothalamic-pituitary (HP) dysfunction, new surveillance recommendations were formulated by a guideline panel consisting of 42 interdisciplinary international experts. A systematic literature search was performed in MEDLINE (through PubMed) for clinically relevant questions concerning HP dysfunction. Literature was screened for eligibility. Recommendations were formulated by drawing conclusions from quality assessment of all evidence, considering the potential benefits of early detection and appropriate management. Healthcare providers should be aware that CAYA cancer survivors have an increased risk for endocrine disorders, including HP dysfunction. Regular surveillance with clinical history, anthropomorphic measures, physical examination, and laboratory measurements is recommended in at-risk survivors. When endocrine disorders are suspected, healthcare providers should proceed with timely referrals to specialized services. These international evidence-based recommendations for surveillance of endocrine disorders in CAYA cancer survivors inform healthcare providers and highlight the need for long-term endocrine follow-up care in subgroups of survivors and elucidate opportunities for further research. [ABSTRACT FROM AUTHOR]

Published
2022
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49. Genetic and treatment risks for diabetes mellitus (DM) in survivors of childhood cancer: A report from the Childhood Cancer Survivor Study (CCSS) and St. Jude Lifetime (SJLIFE) cohorts.

Author

Richard, Melissa A., primary, Mostoufi-Moab, Sogol, additional, Rathore, Nisha, additional, Brown, Austin L., additional, Chanock, Stephen J., additional, Friedman, Danielle Novetsky, additional, Gramatges, Maria Monica, additional, Howell, Rebecca M., additional, Kamdar, Kala, additional, Leisenring, Wendy M., additional, Meacham, Lillian R., additional, Morton, Lindsay M., additional, Oeffinger, Kevin C., additional, Robison, Leslie L., additional, Sapkota, Yadav, additional, Sklar, Charles A., additional, Yasui, Yutaka, additional, Armstrong, Gregory T., additional, Bhatia, Smita, additional, and Lupo, Philip, additional

Published
2021
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50. A View from the past into our collective future: the oncofertility consortium vision statement.

Author

UCL - SSS/IREC/GYNE - Pôle de Gynécologie, UCL - (SLuc) Service de gynécologie et d'andrologie, Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, Wallace, W Hamish, Wartella, Ellen A, Westphal, Lynn M, Whiteside, Stacy, Wilcox, Lea H, Wyns, Christine, Xiao, Shuo, Xu, Jing, Zelinski, Mary, UCL - SSS/IREC/GYNE - Pôle de Gynécologie, UCL - (SLuc) Service de gynécologie et d'andrologie, Woodruff, Teresa K, Ataman-Millhouse, Lauren, Acharya, Kelly S, Almeida-Santos, Teresa, Anazodo, Antoinette, Anderson, Richard A, Appiah, Leslie, Bader, Joy, Becktell, Kerri, Brannigan, Robert E, Breech, Lesley, Bourlon, Maria T, Bumbuliene, Žana, Burns, Karen, Campo-Engelstein, Lisa, Campos, Jacira R, Centola, Grace M, Chehin, Mauricio Barbour, Chen, Diane, De Vos, Michel, Duncan, Francesca E, El-Damen, Ahmed, Fair, Douglas, Famuyiwa, Yemi, Fechner, Patricia Y, Fontoura, Paula, Frias, Olivia, Gerkowicz, Sabrina A, Ginsberg, Jill, Gracia, Clarisa R, Goldman, Kara, Gomez-Lobo, Veronica, Hazelrigg, Brent, Hsieh, Michael H, Hoyos, Luis R, Hoyos-Martinez, Alfonso, Jach, Robert, Jassem, Jacek, Javed, Murid, Jayasinghe, Yasmin, Jeelani, Roohi, Jeruss, Jacqueline S, Kaul-Mahajan, Nalini, Keim-Malpass, Jessica, Ketterl, Tyler G, Khrouf, Mohamed, Kimelman, Dana, Kusuhara, Atsuko, Kutteh, William H, Laronda, Monica M, Lee, Jung Ryeol, Lehmann, Vicky, Letourneau, Joseph M, McGinnis, Lynda K, McMahon, Eileen, Meacham, Lillian R, Mijangos, Monserrat Fabiola Velez, Moravek, Molly, Nahata, Leena, Ogweno, George Moses, Orwig, Kyle E, Pavone, Mary Ellen, Peccatori, Fedro Alessandro, Pesce, Romina Ileana, Pulaski, Hanna, Quinn, Gwendolyn, Quintana, Ramiro, Quintana, Tomas, de Carvalho, Bruno Ramalho, Ramsey-Goldman, Rosalind, Reinecke, Joyce, Reis, Fernando M, Rios, Julie, Rhoton-Vlasak, Alice S, Rodriguez-Wallberg, Kenny A, Roeca, Cassandra, Rotz, Seth J, Rowell, Erin, Salama, Mahmoud, Saraf, Amanda J, Scarella, Anibal, Schafer-Kalkhoff, Tara, Schmidt, Deb, Senapati, Suneeta, Shah, Divya, Shikanov, Ariella, Shnorhavorian, Margarett, Skiles, Jodi L, Smith, James F, Smith, Kristin, Sobral, Fabio, Stimpert, Kyle, Su, H Irene, Sugimoto, Kouhei, Suzuki, Nao, Thakur, Mili, Victorson, David, Viale, Luz, Vitek, Wendy, Wallace, W Hamish, Wartella, Ellen A, Westphal, Lynn M, Whiteside, Stacy, Wilcox, Lea H, Wyns, Christine, Xiao, Shuo, Xu, Jing, and Zelinski, Mary

Abstract

Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Published
2021

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