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Purpose: Health and social care professionals (professionals) often lack knowledge, skills and confidence to support adults at end of life with significant caregiving responsibilities for children, < 18. A recent systematic review highlighted a dearth of educational interventions (n = 2) to equip professionals to provide supportive care to families when a parent has cancer. Addressing an evident gap in education, this paper details the adaption and optimisation of a face-to-face educational intervention to an accessible eLearning resource. Methods: Guided by the 'Person-based Approach', a theory-driven and evidence-based face-to-face educational intervention was adapted and optimised as an eLearning resource. This incorporated current evidence, alongside insights from an expert group, learning technologists and research team, leading to the design of an eLearning prototype. This was optimised for acceptability and usability using think-aloud interviews with end-users (n = 13) and patient and public involvement (n = 4). Results: An iterative adaption and optimisation process enabled implementation of navigational improvements, changes to enhance clarity on language and appropriateness of images and interactive components. During optimisation, positive feedback was reported; especially regarding the 'look and feel' and on the educational videos and reflective exercises embedded throughout the eLearning resource. Conclusion: The systematic adaption and optimisation of this novel eLearning resource has aimed to promote relevance, appropriateness, and applicability of an accessible evidence-based and theory-driven training resource for professionals. It has the potential to promote family-centred supportive end of life cancer care, which ultimately can promote better bereavement outcomes. An evaluation of the intervention is required to explore impact on practice. [ABSTRACT FROM AUTHOR]

Aims and Objectives: To explore how nurses and midwives engage with patient experience data collected via a mobile health app to inform person‐centred practice improvements. Background: A large amount of data is collected in healthcare, yet there is limited evidence outlining how nursing and midwifery staff utilise patient experience data to inform person‐centred quality and safety improvements. Methods: This study utilised action research, underpinned by Practice Development methodology and has been reported using the SQUIRE 2.0 checklist. Six clinical units (medical short stay, acute medical, surgical, oncology/haematology, day surgery and maternity) in a large health district in Australia engaged in three cycles of data collection using a mobile health app. The app captured patient experience data relating to the person‐centred KPIs developed and tested by McCance et al. (2012). Staff used the data to develop and evaluate person‐centred practice. Results: A number of improvements in scores and practice occurred through engaging with the data in a cyclical way. All six clinical units saw an improvement in four or more of the KPIs in the patient survey results from cycle one to cycle three, with two clinical units improving in all eight. On average across the six units, there was also an increase in time nurses/midwives were visible to their patients, an increase in clinical documentation reflecting the patients' needs and what was important to them, an increase in positive comments and a decrease in negative comments in patient stories. Conclusion: This study shows that collecting and utilising data from the person‐centred KPIs in a collaborative and cyclical way lead to enhanced patient experience and the development and implementation of person‐centred quality and safety improvements. Relevance to clinical practice: Capturing and utilising data that are meaningful to nursing/midwifery teams in a cyclical, action‐orientated approach result in person‐centred practice improvements that enhance the experience of those that are receiving and delivering patient care. [ABSTRACT FROM AUTHOR]

Aims and Objectives: Exploring the influence of the 100% single‐room environment on staff and patient experience of person‐centred practice in an acute‐care setting. Background: Current building guidance for the NHS advocates increasing the single‐room inpatient environment. There is little evidence of the impact of this design in adult acute‐care settings on the experience and delivery of person‐centred care. Design: Ethnography, underpinned by McCormack and McCance's Person‐centred Practice Framework. Methods: Data collection took place between March and June 2018. Staff and patients in a National Health Service hospital in the United Kingdom took part in observations of practice (n = 108 hours); face to face inpatient interviews (n = 9); and participatory reflective staff groups (n = 3). A reflexive journal was kept by the researcher throughout the study. Reporting adhered to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist. Results: Themes relating to care delivery and interactions were identified. Staff and patients' views converged around visibility and isolation. Patients appreciated the privacy afforded by the single rooms, while staff experienced a psychological shift, being viewed (and viewing themselves) as 'visitors'. There was space for more sympathetic presencing, encouraging patients to speak more openly, to facilitate knowing and authentic engagement. However, time remained an issue resulting in more task‐focused care. Conclusion: Changes to the physical environment have an impact on the delivery and experience of person‐centred practice. While the facilities enhance patient experience, the interweaving of engagement, emotional support and the development of therapeutic relationships remain challenging. [ABSTRACT FROM AUTHOR]

This study tested the acceptability of the iMPAKT App with end users. Cognitive task analysis and semi-structured interviews were used. Twelve participants took part. The majority of tasks were found to be easy to complete but issues were identified with a section of the app that provides Speech-To-Text transcription of patients speaking about their experience of care. Artificial Intelligence (AI) based systems may be needed to address these limitations. Overall views on acceptability of the app were positive and participants valued how it could be used to support practice improvement initiatives and large scale collection of person-centred measures. [ABSTRACT FROM AUTHOR]